Re: [QUAD-L] PROLIA
Hi Paul, I'm also a C5/6 quad. I've been getting Prolia for the past 3 yrs and haven't felt any difference after any injections. It seems to have, at least, slowed my bone loss. My SCI was in 1983 so I'm 40 yrs into this. I started with Fosamax pills around 2000, then moved on to another pill I can't remember, and then started 5 yrs of annual Reclast infusions. All those were intended to stop or slow bone loss. The first I tried that was supposed to actually rebuild bone was a daily, subcutaneous injection called Forteo, but it caused very unusual crystals to form in my bladder and clog my catheter within a week or so (I tried it every 2 days but it just meant 2 weeks without a clog). No reason or similar symptoms were reported but I tried again after 6-8 months with the same result. So, they approved one more year of Reclast before starting Prolia 3 yrs ago. I hope it works well for you! Best, Tod On Fri, Dec 29, 2023 at 11:47 AM Paul Jacobson wrote: > Getting my first PROLIA injection next week to increase bone density. > > Is it a good idea? What are the initial side effects? > > > > Thank you, > > Paul c5/6 20 yrs post >
[QUAD-L] PROLIA
Getting my first PROLIA injection next week to increase bone density. Is it a good idea? What are the initial side effects? Thank you, Paul c5/6 20 yrs post
Re: [QUAD-L] Prolia to treat osteoporosis
Hi All! I'm a long-time Quad-List member though I haven't written in a LONG time for a number of reasons, but this recently caught my attention because my own Prolia date is coming up again soon in the next couple months. Two years ago my endocrinologist was trying to get insurance approval to try a then-newish medication, *Evenity*, to help rebuild some of the bone loss that's occurred over the last 40 years. Unfortunately, it was only approved for use in post-menopausal women, of which I'm neither. Are there any men or women here that have used it (especially men)? Has it helped rebuild bone in anyone who has used it? About me, I'm a 56 yr old C5-6, complete quad, 40 yrs post-injury since a fall from a tree when I was goofing around as a teen (that latter part is likely a basically-familiar story to many here, I'm sure). I lived and started college in PA before tiring of the cold & dampness getting me sick. I moved to Tucson, finished my biology degree and got a high school teaching certification. I taught 11 years full-time and 2 years part-time at the biggest high school in the city before some other injuries (and more) caused me to have to leave on long-term disability until getting to my required number of years for full retirement. My wife was a physical therapist at the University of Arizona's Adaptive Fitness program and gym. We typically travel internationally a couple times a year and we're both certified scuba divers, so that determines some of our travel. Best wishes & Happy Holidays, --Tod Santee On Tue, Dec 5, 2023 at 5:14 PM toran spencer wrote: > Hi > > Can anybody give me some suggestion on what I can do for my muscles I > don’t take baclofen or Lyrica because of the side effects. However, I’m > having so much muscle tension and aching pain. I don’t know what to do. Do > anybody have any suggestions on any natural supplements or anything? > > Get Outlook for iOS <https://aka.ms/o0ukef> > -- > *From:* Ben Mattlin > *Sent:* Sunday, December 3, 2023 1:42:27 PM > *To:* 'Paul Jacobson' ; 'quad-list' < > quad-list@eskimo.com> > *Subject:* RE: [QUAD-L] Prolia to treat osteoporosis > > > Yup. I've been on it for several years now. One shot every six months. > Other quads had warned me about bad side effects, but I've never > experienced any. My latest bone-density scans don't show any improvement, > but my osteoporosis has not gotten worse, either. My doctor says that's a > win. > > > > *From:* Paul Jacobson > *Sent:* Sunday, December 3, 2023 10:28 AM > *To:* quad-list > *Subject:* [QUAD-L] Prolia to treat osteoporosis > > > > Hi, > > > > Has anyone ever tried Prolia or anything similar to treat osteoporosis? > > What were your results and concerns. > > > > Thanks, > > Paul c5/6 >
Re: [QUAD-L] Prolia to treat osteoporosis
Hi Can anybody give me some suggestion on what I can do for my muscles I don’t take baclofen or Lyrica because of the side effects. However, I’m having so much muscle tension and aching pain. I don’t know what to do. Do anybody have any suggestions on any natural supplements or anything? Get Outlook for iOS<https://aka.ms/o0ukef> From: Ben Mattlin Sent: Sunday, December 3, 2023 1:42:27 PM To: 'Paul Jacobson' ; 'quad-list' Subject: RE: [QUAD-L] Prolia to treat osteoporosis Yup. I've been on it for several years now. One shot every six months. Other quads had warned me about bad side effects, but I've never experienced any. My latest bone-density scans don't show any improvement, but my osteoporosis has not gotten worse, either. My doctor says that's a win. From: Paul Jacobson Sent: Sunday, December 3, 2023 10:28 AM To: quad-list Subject: [QUAD-L] Prolia to treat osteoporosis Hi, Has anyone ever tried Prolia or anything similar to treat osteoporosis? What were your results and concerns. Thanks, Paul c5/6
RE: [QUAD-L] Prolia to treat osteoporosis
Yup. I've been on it for several years now. One shot every six months. Other quads had warned me about bad side effects, but I've never experienced any. My latest bone-density scans don't show any improvement, but my osteoporosis has not gotten worse, either. My doctor says that's a win. From: Paul Jacobson Sent: Sunday, December 3, 2023 10:28 AM To: quad-list Subject: [QUAD-L] Prolia to treat osteoporosis Hi, Has anyone ever tried Prolia or anything similar to treat osteoporosis? What were your results and concerns. Thanks, Paul c5/6
[QUAD-L] Prolia to treat osteoporosis
Hi, Has anyone ever tried Prolia or anything similar to treat osteoporosis? What were your results and concerns. Thanks, Paul c5/6
Re: [QUAD-L] PROLIA INJECTIONS - BONE LOSS
Thank you so much for your input. I haven’t gotten a scam for 2 1/2 years it seems like it always gets worse and I take prolia. On Wed, Oct 25, 2023 at 10:09 AM SHIRLEY BELL wrote: > Hi Dana, I had something years back, shots of ? I don't get bone scans > anymore. I feel what is the use? > > On 10/24/2023 2:34 AM EDT Dana wrote: > > > I get them, I don’t really know how effective They are. I am months behind > on getting mine because I need A new dexis. sorry for the spelling error. I > have had three different types of treatment. I have had her shots, the > infusion and now Prolia. My bone loss is always worse.I appreciate > everyone’s responses. Dana > > On Sat, Sep 30, 2023 at 8:47 PM Paul Jacobson > wrote: > > Has anyone had PROLIA injections for bone loss? If so, how did it work for > you? > > Any side effects? > > > > Thank you! Paul c5/6 > >
Re: [QUAD-L] PROLIA INJECTIONS - BONE LOSS
Hi Dana, I had something years back, shots of ? I don't get bone scans anymore. I feel what is the use? > On 10/24/2023 2:34 AM EDT Dana wrote: > > > I get them, I don’t really know how effective They are. I am months behind on > getting mine because I need A new dexis. sorry for the spelling error. I have > had three different types of treatment. I have had her shots, the infusion > and now Prolia. My bone loss is always worse.I appreciate everyone’s > responses. Dana > > On Sat, Sep 30, 2023 at 8:47 PM Paul Jacobson mailto:pjacob...@san.rr.com> wrote: > > > > > Has anyone had PROLIA injections for bone loss? If so, how did it work for > > you? > > > > Any side effects? > > > > > > > > Thank you! Paul c5/6 > > >
Re: [QUAD-L] PROLIA INJECTIONS - BONE LOSS
I get them, I don’t really know how effective They are. I am months behind on getting mine because I need A new dexis. sorry for the spelling error. I have had three different types of treatment. I have had her shots, the infusion and now Prolia. My bone loss is always worse.I appreciate everyone’s responses. Dana On Sat, Sep 30, 2023 at 8:47 PM Paul Jacobson wrote: > Has anyone had PROLIA injections for bone loss? If so, how did it work for > you? > > Any side effects? > > > > Thank you! Paul c5/6 >
[QUAD-L] PROLIA INJECTIONS - BONE LOSS
Has anyone had PROLIA injections for bone loss? If so, how did it work for you? Any side effects? Thank you! Paul c5/6
