[QUAD-L] Trachs
I have a couple brand-new trachs which I have no use for. One of them is a Portex size 7 cuffed trach and the other is a Portex size 8 cuffed trach. If anybody could use them just send me an email with your address and I will mail it to you. Needless to say it's first come first serve. I don't want anything for them. I would rather see somebody get some use out of them. I will just end up throwing them away. Raymond
Re: [QUAD-L] Trachs
Fantastic advice Amy. I don't think it had anything other than when I had my trach surgery it was one of the biggest decisions I've ever made. I no longer need a ventilator,Thanks to the wonderful respiratory technicians down here in Tampa, to breathe and therefore had my trach removed. (jumping up and down with joy). Good luck and follow her advice and I think you will be fine. Take care, Quadius PS I will definitely not share my horror stories about my trach, as they were extremely unusual. That is of course unless you are allergic to silicone, like I am. On 10/10/07, Amy Davis [EMAIL PROTECTED] wrote: THis is a very scary decision I am sure for you to have to make. But you gotta breathe! Trachs are very intimadating for caregives and patients. But once you get used to it...it is like everything else, just a part of your routine care. Passey Muir valves do work but it does take some training and gettting used too. You cannot just pop it on and hope it works. my BF keeps his trach uncuffed and he can actually talk on the vent without the PM valve. My bf is on a vent and it does not stop him from doing things he enjoys. ( I am sure he would argue that point!). It does take more time to deal with daily issues related to trachs and vents. The biggest danger is the trach plugging up due to secretions. Anyone that takes care of you MUST know how to change the trach in case of an emergency. Infection is definetly a problem. Anytime you have a direct opening into the body...this is going to be an issue. Keep it clean and dry as possible. A split dressing under the trach with a very small amount of desitin will help to keep the skin dry. Good pulmonary care like breathing treatments, Chest percussion and keeping the secretions loose so they do not stop up the trach are the basic principles. The vent you are speaking of is small and portable. If you depend on the vent to breathe make sure you DO NOT leave home without any supplies you need!!! This is very important. Make sure you have an extra charged battery, and at least 1 extra tubing, cannulas, collars...anything that you may need. Even if you don't think you will need itTAKE IT! We just have a bag and keep everything packed in that. Just grab it and go when you are traveling. You never know when you will have an emergency or snag a circuit and get a hole in the tubing. Anything is possible and will happen when you least expect it or get into a hurry. My best advice...teach your caregivers to take their time...make sure the trach care is done right. And keep it clean and dry around the trach site. And always be prepared for anything that could happen. THEN RELAX! Good luck and best wishes. Amy *Miriam Braunstein [EMAIL PROTECTED]* wrote: Hi all. I'm new to the list, but not to quadhood. I have a form of muscular dystrophy called dysautonomic mitochondrial myopathy/cytopathy. Like a lot of MD quads, I have breathing troubles and use a Pulmonetics LTV 1000 volume ventilator. I've been on a noninvasive protocol, mask at night and mouthpiece by day, but I'm starting to have problems keeping my sats and CO2 decent. So I'm having a tracheotomy (in December, likely) and I'll be able to hook my vent up to that and get breathing support more easily than noninvasively. I have heard trach horror stories-- does anybody use a vent via trach? If you do, is it a huge infection problem, does the Passy-Muir valve really work, how hard is the care? I'm afraid on this one. It seems really intimidating. Any advice from a trached person would be most welcome. Thanks very much. Take care, all Miri -- Need a vacation? Get great deals to amazing places http://us.rd.yahoo.com/evt=48256/*http://travel.yahoo.com/;_ylc=X3oDMTFhN2hucjlpBF9TAzk3NDA3NTg5BHBvcwM1BHNlYwNncm91cHMEc2xrA2VtYWlsLW5jbQ--on Yahoo! Travel. -- Pinpoint customers http://us.rd.yahoo.com/evt=48250/*http://searchmarketing.yahoo.com/arp/sponsoredsearch_v9.php?o=US2226cmp=Yahooctv=AprNIs=Ys2=EMb=50who are looking for what you sell.
[QUAD-L] Trachs
Hi all. I'm new to the list, but not to quadhood. I have a form of muscular dystrophy called dysautonomic mitochondrial myopathy/cytopathy. Like a lot of MD quads, I have breathing troubles and use a Pulmonetics LTV 1000 volume ventilator. I've been on a noninvasive protocol, mask at night and mouthpiece by day, but I'm starting to have problems keeping my sats and CO2 decent. So I'm having a tracheotomy (in December, likely) and I'll be able to hook my vent up to that and get breathing support more easily than noninvasively. I have heard trach horror stories-- does anybody use a vent via trach? If you do, is it a huge infection problem, does the Passy-Muir valve really work, how hard is the care? I'm afraid on this one. It seems really intimidating. Any advice from a trached person would be most welcome. Thanks very much. Take care, all Miri - Need a vacation? Get great deals to amazing places on Yahoo! Travel.
RE: [QUAD-L] Trachs
I did for a while.. I am off it now however! yay I have a small scar now but it isn't bad.. The thing about being on a vent that I liked the most about being on a vent is the suctioning is a lot easier and less painful. I hope one day you won't be on a vent! Danny Espinoza 24/m/California Occupation before accident - Network engineer / SR. Network security engineer Broke c2,c6,c7 and doner bone at c2 TBI from blood going to central cortex from spinal cord off a vent woohoo however only one diaphragm works right now due to asymmetric SCI http://www.myspace.com/DannyLNX http://www.myspace.com/DannyLNX From: Miriam Braunstein [mailto:[EMAIL PROTECTED] Sent: Tuesday, October 09, 2007 11:13 PM To: quad-list@eskimo.com Subject: [QUAD-L] Trachs Hi all. I'm new to the list, but not to quadhood. I have a form of muscular dystrophy called dysautonomic mitochondrial myopathy/cytopathy. Like a lot of MD quads, I have breathing troubles and use a Pulmonetics LTV 1000 volume ventilator. I've been on a noninvasive protocol, mask at night and mouthpiece by day, but I'm starting to have problems keeping my sats and CO2 decent. So I'm having a tracheotomy (in December, likely) and I'll be able to hook my vent up to that and get breathing support more easily than noninvasively. I have heard trach horror stories-- does anybody use a vent via trach? If you do, is it a huge infection problem, does the Passy-Muir valve really work, how hard is the care? I'm afraid on this one. It seems really intimidating. Any advice from a trached person would be most welcome. Thanks very much. Take care, all Miri _ Need a vacation? Get http://us.rd.yahoo.com/evt=48256/*http:/travel.yahoo.com/;_ylc=X3oDMTFhN2hu cjlpBF9TAzk3NDA3NTg5BHBvcwM1BHNlYwNncm91cHMEc2xrA2VtYWlsLW5jbQ-- great deals to amazing places on Yahoo! Travel.
Re: [QUAD-L] Trachs
THis is a very scary decision I am sure for you to have to make. But you gotta breathe! Trachs are very intimadating for caregives and patients. But once you get used to it...it is like everything else, just a part of your routine care. Passey Muir valves do work but it does take some training and gettting used too. You cannot just pop it on and hope it works. my BF keeps his trach uncuffed and he can actually talk on the vent without the PM valve. My bf is on a vent and it does not stop him from doing things he enjoys. ( I am sure he would argue that point!). It does take more time to deal with daily issues related to trachs and vents. The biggest danger is the trach plugging up due to secretions. Anyone that takes care of you MUST know how to change the trach in case of an emergency. Infection is definetly a problem. Anytime you have a direct opening into the body...this is going to be an issue. Keep it clean and dry as possible. A split dressing under the trach with a very small amount of desitin will help to keep the skin dry. Good pulmonary care like breathing treatments, Chest percussion and keeping the secretions loose so they do not stop up the trach are the basic principles. The vent you are speaking of is small and portable. If you depend on the vent to breathe make sure you DO NOT leave home without any supplies you need!!! This is very important. Make sure you have an extra charged battery, and at least 1 extra tubing, cannulas, collars...anything that you may need. Even if you don't think you will need itTAKE IT! We just have a bag and keep everything packed in that. Just grab it and go when you are traveling. You never know when you will have an emergency or snag a circuit and get a hole in the tubing. Anything is possible and will happen when you least expect it or get into a hurry. My best advice...teach your caregivers to take their time...make sure the trach care is done right. And keep it clean and dry around the trach site. And always be prepared for anything that could happen. THEN RELAX! Good luck and best wishes. Amy Miriam Braunstein [EMAIL PROTECTED] wrote: Hi all. I'm new to the list, but not to quadhood. I have a form of muscular dystrophy called dysautonomic mitochondrial myopathy/cytopathy. Like a lot of MD quads, I have breathing troubles and use a Pulmonetics LTV 1000 volume ventilator. I've been on a noninvasive protocol, mask at night and mouthpiece by day, but I'm starting to have problems keeping my sats and CO2 decent. So I'm having a tracheotomy (in December, likely) and I'll be able to hook my vent up to that and get breathing support more easily than noninvasively. I have heard trach horror stories-- does anybody use a vent via trach? If you do, is it a huge infection problem, does the Passy-Muir valve really work, how hard is the care? I'm afraid on this one. It seems really intimidating. Any advice from a trached person would be most welcome. Thanks very much. Take care, all Miri - Need a vacation? Get great deals to amazing places on Yahoo! Travel. - Pinpoint customers who are looking for what you sell.
Re: [QUAD-L] Trachs
Great Advice Amy. I'm one of those who would be scared at the very thought of doing what you know... and do so well. Teach and instruct as many as you can as you never know when you need an extra hand Best Wishes W In a message dated 10/10/2007 7:12:29 A.M. Central Daylight Time, [EMAIL PROTECTED] writes: My best advice...teach your caregivers to take their time...make sure the trach care is done right. And keep it clean and dry around the trach site. And always be prepared for anything that could happen. THEN RELAX! Good luck and best wishes. Amy ** See what's new at http://www.aol.com
Re: [QUAD-L] Trachs
Hi Miri, I'm not a vent user, but I did want to welcome you to the Q-List. I'm sure someone can offer some advice, or you might try Jim Lupin's Vent-List @ http://www.makoa.org/vent/index.html. Either way, welcome! With Love, CtrlAltDel aka Dave C4/5 Complete - 31 Years Post Texas, USA Miriam Braunstein [EMAIL PROTECTED] wrote: Hi all. I'm new to the list, but not to quadhood. I have a form of muscular dystrophy called dysautonomic mitochondrial myopathy/cytopathy. Like a lot of MD quads, I have breathing troubles and use a Pulmonetics LTV 1000 volume ventilator. I've been on a noninvasive protocol, mask at night and mouthpiece by day, but I'm starting to have problems keeping my sats and CO2 decent. So I'm having a tracheotomy (in December, likely) and I'll be able to hook my vent up to that and get breathing support more easily than noninvasively. I have heard trach horror stories-- does anybody use a vent via trach? If you do, is it a huge infection problem, does the Passy-Muir valve really work, how hard is the care? I'm afraid on this one. It seems really intimidating. Any advice from a trached person would be most welcome. Thanks very much. Take care, all Miri - Need a vacation? Get great deals to amazing places on Yahoo! Travel.
