Re: [QUAD-L] indwelling urinary catheter problems
Bladder Management System, West Islip, NY | | | | | | | | | | | Bladder Management System, West Islip, NY Uro Cycler Inc. in West Islip, NY is proud to offer an innovative device for bladder management — the Uro Cycler... | | | Thanks for sharing this. On Sunday, November 5, 2023 at 01:00:36 PM MST, wheelch...@aol.com wrote: Not sure if this going to help or confuse anyone but here it goes. More than a decade ago, I met a Dr Tom at a conference in Atlanta. I believe that he was from Florida, at the time. Back then he was representing a product called UROCYCLER. It was not an indwelling cath, but an accessory for those with indwelling catheters. The theory behind its design and function seemed like it might be good for some, but not everyone. It is a ceramic device that connected between the indwelling catheter and collection bag. It allows urine to collect in the bladder until pressure builds up and then the magnets separate, allowing the urine to leave the bladder... under turbulence, to empty the bladder.Has anyone heard of this system? You can Google, UROCYCLE and see for yourselves.Comments AppreciatedBest WishesOn Sunday, November 5, 2023 at 08:47:21 AM CST, Nichole Rohling wrote: I do 30 ml twice in the evening when I get in bed and 1 time in the morning before I get up From: toran spencer [mailto:toran.spen...@outlook.com] Sent: Saturday, November 4, 2023 4:31 PM To: Nichole Rohling; 'Danny Hearn'; quad-list@eskimo.com Subject: Re: [QUAD-L] indwelling urinary catheter problems How often should you flush your tube often? Get Outlook for iOS From: Nichole Rohling Sent: Saturday, November 4, 2023 1:02:48 PM To: 'Danny Hearn' ; quad-list@eskimo.com Subject: RE: [QUAD-L] indwelling urinary catheter problems I just use sterile water. Work fine for me. Nicki From: Danny Hearn [mailto:ddh...@sbcglobal.net] Sent: Saturday, November 4, 2023 2:07 PM To: Eric Olson; SHIRLEY BELL; Don Price; Jeffrey Gaede Cc: quad-list Subject: Re: [QUAD-L] indwelling urinary catheter problems I have a supra-pubic also..like some of you I have persistant bacteria that I live with also, when I flush we just use sterile water, I have read that some use saline or a mix of water and 0.25 acetic acid, I have not tried the colloidal silver as a flush eitherwhat type flush do most of you use if not doing the silver method??? Thanks Dan H>*** 26 years post. On Saturday, November 4, 2023 at 12:03:13 AM CDT, Jeffrey Gaede wrote: I feel for you, Shirley. I'm right there with you, Don. I really don't have an issue with incontinence but I've had my share of UTIs (indwelling catheter). I'm 44 years post (C3-4). I've also been told that I have a "resistant bug" that's not an issue for the most part. I'm told it's just there. The condition has an actual name but I can't recall it at the moment. I love the list of UTI-solution ideas, Don. Thanks for providing them. Never heard of the colloidal silver flush. I'll have to do some research and speak with my doctor about that one. Good luck, Shirley. Good luck, All. Jeff On Friday, November 3, 2023 at 01:15:06 PM PDT, Don Price wrote: Shirley, I hope you get everything figured out and working properly again. UTIs and incontinence are such a life-suck. They're just about the hardest part of life with SCI. I'm 41 years post-injury (C5-6, complete) and i've had my share of UTIs. I've developed a resistant bladder bug that is probably with me all the time. As long as i drink enough fluids I'm not symptomatic of infection, even though if i did a urinalysis i'm sure it would come back positive. I try not to use antibiotics except as a last resort. I know a bunch of quads and just about every one has some favorite method of treating a UTI without antibiotics. Things I've heard include: cranberry pills, d-mannose, large doses vitamin C, probiotics, lime oil, oil of oregano and bladder flushes with various solutions. I'm not a doctor, so obviously be careful trying any of these. The thing that has worked best for me (I have a suprapubic catheter) is irrigating with a solution of colloidal silver. Silver is a natural antiseptic/antifungal, so when i feel i'm getting a UTI symptom (usually cloudy/smelly urine) I use a syringe to push the colloidal silver water up my catheter into my bladder, then clamp off the catheter for at least 20 minutes. i do this twice a day (once morning, once bedtime) for about 3 days at it makes a huge difference. I wouldn't consider it a miracle cure, but it seems to take out enough bad bacteria that my symptoms clear up for a while with no side effects or possibility of resistance I will be the first to admit that my results are purely anec
Re: [QUAD-L] indwelling urinary catheter problems
Regarding my post about colloidal silver bladder flush. The colloidal silver comes in a suspension of distilled water. How much of it you use will vary from person to person, depending on your bladder capacity. I know my bladder holds about 100cc comfortably for 20 minutes, but yours may hold more or less. Push the liquid into your bladder using syringe (just the plunger, no needle), clamp the catheter, retain for at least 20 minutes, if possible. Be sure to empty your bladder immediately if you start getting A.D. Again, i think it's wise to consult your urologist first. Also do some Googling. I learned that colloidal silver was what they used to treat infections before antibiotics were discovered. It's also an antifungal. No, I don't work for a silver company. I sound like i'm selling something. Haha. It's just a natural remedy that has greatly reduced (not eliminated) my bladder bacteria. I wanted to share the info. Here's a link to one example of the product: https://www.google.com/search?sca_esv=579920261&rlz=1C1GCEA_enUS1045US1045&sxsrf=AM9HkKnOUIJ3j2sYyY4AZuyYJBWVZg4CjQ:1699305156534&q=colloidal+silver&tbm=shop&source=lnms&sa=X&ved=2ahUKEwj1lOGBpbCCAxWqHkQIHZD-B0AQ0pQJegQIDRAB&biw=1280&bih=855&dpr=1#spd=11803390539720863859 On Saturday, November 4, 2023 at 09:41:58 AM MST, Eric Olson wrote: How much water and how much silver? On Fri, Nov 3, 2023 at 3:13 PM Don Price wrote: Shirley, I hope you get everything figured out and working properly again. UTIs and incontinence are such a life-suck. They're just about the hardest part of life with SCI. I'm 41 years post-injury (C5-6, complete) and i've had my share of UTIs. I've developed a resistant bladder bug that is probably with me all the time. As long as i drink enough fluids I'm not symptomatic of infection, even though if i did a urinalysis i'm sure it would come back positive. I try not to use antibiotics except as a last resort. I know a bunch of quads and just about every one has some favorite method of treating a UTI without antibiotics. Things I've heard include: cranberry pills, d-mannose, large doses vitamin C, probiotics, lime oil, oil of oregano and bladder flushes with various solutions. I'm not a doctor, so obviously be careful trying any of these. The thing that has worked best for me (I have a suprapubic catheter) is irrigating with a solution of colloidal silver. Silver is a natural antiseptic/antifungal, so when i feel i'm getting a UTI symptom (usually cloudy/smelly urine) I use a syringe to push the colloidal silver water up my catheter into my bladder, then clamp off the catheter for at least 20 minutes. i do this twice a day (once morning, once bedtime) for about 3 days at it makes a huge difference. I wouldn't consider it a miracle cure, but it seems to take out enough bad bacteria that my symptoms clear up for a while with no side effects or possibility of resistance I will be the first to admit that my results are purely anecdotal, and i was highly skeptical of this silver stuff when another quad friend of mine told me about it. I gave it a try because i was running out of other options, and it ended up working for me. I don't have any studies to share--definitely do your own research. You can purchase colloidal silver online. Half gallon of it for about $40. I use enough each flush to fill my bladder but not cause A.D. Everyone's bladder is different, so i recommend discussing with your urologist first. If anyone has further questions you can email me directly.donpric...@yahoo.com Best wishes,Don. On Wednesday, October 25, 2023 at 11:29:30 AM MST, SHIRLEY BELL wrote: Thanks everyone, My Dr does want a sample when I change the catheter again. I just did and this time things are ok, right now. don't want to try to change again as that's when it goes south. On 10/25/2023 1:30 PM EDT Eric Olson wrote: just happened to run across this article. Looks like you have a few of the signs of an infection https://www.hollister.com/en/continencecare/continencelearningcenter/livingwithaneurologicalcondition/7signsthatyoumayhaveaurinarytractinfection On Wed, Oct 25, 2023 at 10:25 AM SHIRLEY BELL wrote: Hi all, anyone have an indwelling Catheter for 40 or so years and had severe issues on and off with spasms and incontinence resulting in changing even new catheters until one works? It's hard to explain but not good. I take the max on spasm pills. Can't get in to see Dr for a few weeks, wanted to do research before. Would a supra pubic help with this? Any help would be appreciated. Thanks, Shirley
RE: [QUAD-L] indwelling urinary catheter problems
Great to see you post! I’ll have to check it out! Nicki From: wheelch...@aol.com [mailto:wheelch...@aol.com] Sent: Sunday, November 5, 2023 2:00 PM To: 'toran spencer'; quad-list@eskimo.com; Nichole Rohling Subject: Re: [QUAD-L] indwelling urinary catheter problems Not sure if this going to help or confuse anyone but here it goes. More than a decade ago, I met a Dr Tom at a conference in Atlanta. I believe that he was from Florida, at the time. Back then he was representing a product called UROCYCLER. It was not an indwelling cath, but an accessory for those with indwelling catheters. The theory behind its design and function seemed like it might be good for some, but not everyone. It is a ceramic device that connected between the indwelling catheter and collection bag. It allows urine to collect in the bladder until pressure builds up and then the magnets separate, allowing the urine to leave the bladder... under turbulence, to empty the bladder. Has anyone heard of this system? You can Google, UROCYCLE and see for yourselves. Comments Appreciated Best Wishes On Sunday, November 5, 2023 at 08:47:21 AM CST, Nichole Rohling wrote: I do 30 ml twice in the evening when I get in bed and 1 time in the morning before I get up From: toran spencer [mailto:toran.spen...@outlook.com] Sent: Saturday, November 4, 2023 4:31 PM To: Nichole Rohling; 'Danny Hearn'; quad-list@eskimo.com Subject: Re: [QUAD-L] indwelling urinary catheter problems How often should you flush your tube often? Get Outlook for iOS <https://aka.ms/o0ukef> _ From: Nichole Rohling Sent: Saturday, November 4, 2023 1:02:48 PM To: 'Danny Hearn' ; quad-list@eskimo.com Subject: RE: [QUAD-L] indwelling urinary catheter problems I just use sterile water. Work fine for me. Nicki From: Danny Hearn [mailto:ddh...@sbcglobal.net] Sent: Saturday, November 4, 2023 2:07 PM To: Eric Olson; SHIRLEY BELL; Don Price; Jeffrey Gaede Cc: quad-list Subject: Re: [QUAD-L] indwelling urinary catheter problems I have a supra-pubic also..like some of you I have persistant bacteria that I live with also, when I flush we just use sterile water, I have read that some use saline or a mix of water and 0.25 acetic acid, I have not tried the colloidal silver as a flush eitherwhat type flush do most of you use if not doing the silver method??? Thanks Dan H>*** 26 years post. On Saturday, November 4, 2023 at 12:03:13 AM CDT, Jeffrey Gaede wrote: I feel for you, Shirley. I'm right there with you, Don. I really don't have an issue with incontinence but I've had my share of UTIs (indwelling catheter). I'm 44 years post (C3-4). I've also been told that I have a "resistant bug" that's not an issue for the most part. I'm told it's just there. The condition has an actual name but I can't recall it at the moment. I love the list of UTI-solution ideas, Don. Thanks for providing them. Never heard of the colloidal silver flush. I'll have to do some research and speak with my doctor about that one. Good luck, Shirley. Good luck, All. Jeff On Friday, November 3, 2023 at 01:15:06 PM PDT, Don Price wrote: Shirley, I hope you get everything figured out and working properly again. UTIs and incontinence are such a life-suck. They're just about the hardest part of life with SCI. I'm 41 years post-injury (C5-6, complete) and i've had my share of UTIs. I've developed a resistant bladder bug that is probably with me all the time. As long as i drink enough fluids I'm not symptomatic of infection, even though if i did a urinalysis i'm sure it would come back positive. I try not to use antibiotics except as a last resort. I know a bunch of quads and just about every one has some favorite method of treating a UTI without antibiotics. Things I've heard include: cranberry pills, d-mannose, large doses vitamin C, probiotics, lime oil, oil of oregano and bladder flushes with various solutions. I'm not a doctor, so obviously be careful trying any of these. The thing that has worked best for me (I have a suprapubic catheter) is irrigating with a solution of colloidal silver. Silver is a natural antiseptic/antifungal, so when i feel i'm getting a UTI symptom (usually cloudy/smelly urine) I use a syringe to push the colloidal silver water up my catheter into my bladder, then clamp off the catheter for at least 20 minutes. i do this twice a day (once morning, once bedtime) for about 3 days at it makes a huge difference. I wouldn't consider it a miracle cure, but it seems to take out enough bad bacteria that my symptoms clear up for a while with no side effects or possibility of resistance I will be the first to admit that my results are purely anecdotal, and i was highly skeptical
Re: [QUAD-L] indwelling urinary catheter problems
Not sure if this going to help or confuse anyone but here it goes. More than a decade ago, I met a Dr Tom at a conference in Atlanta. I believe that he was from Florida, at the time. Back then he was representing a product called UROCYCLER. It was not an indwelling cath, but an accessory for those with indwelling catheters. The theory behind its design and function seemed like it might be good for some, but not everyone. It is a ceramic device that connected between the indwelling catheter and collection bag. It allows urine to collect in the bladder until pressure builds up and then the magnets separate, allowing the urine to leave the bladder... under turbulence, to empty the bladder.Has anyone heard of this system? You can Google, UROCYCLE and see for yourselves.Comments AppreciatedBest WishesOn Sunday, November 5, 2023 at 08:47:21 AM CST, Nichole Rohling wrote: I do 30 ml twice in the evening when I get in bed and 1 time in the morning before I get up From: toran spencer [mailto:toran.spen...@outlook.com] Sent: Saturday, November 4, 2023 4:31 PM To: Nichole Rohling; 'Danny Hearn'; quad-list@eskimo.com Subject: Re: [QUAD-L] indwelling urinary catheter problems How often should you flush your tube often? Get Outlook for iOS From: Nichole Rohling Sent: Saturday, November 4, 2023 1:02:48 PM To: 'Danny Hearn' ; quad-list@eskimo.com Subject: RE: [QUAD-L] indwelling urinary catheter problems I just use sterile water. Work fine for me. Nicki From: Danny Hearn [mailto:ddh...@sbcglobal.net] Sent: Saturday, November 4, 2023 2:07 PM To: Eric Olson; SHIRLEY BELL; Don Price; Jeffrey Gaede Cc: quad-list Subject: Re: [QUAD-L] indwelling urinary catheter problems I have a supra-pubic also..like some of you I have persistant bacteria that I live with also, when I flush we just use sterile water, I have read that some use saline or a mix of water and 0.25 acetic acid, I have not tried the colloidal silver as a flush eitherwhat type flush do most of you use if not doing the silver method??? Thanks Dan H>*** 26 years post. On Saturday, November 4, 2023 at 12:03:13 AM CDT, Jeffrey Gaede wrote: I feel for you, Shirley. I'm right there with you, Don. I really don't have an issue with incontinence but I've had my share of UTIs (indwelling catheter). I'm 44 years post (C3-4). I've also been told that I have a "resistant bug" that's not an issue for the most part. I'm told it's just there. The condition has an actual name but I can't recall it at the moment. I love the list of UTI-solution ideas, Don. Thanks for providing them. Never heard of the colloidal silver flush. I'll have to do some research and speak with my doctor about that one. Good luck, Shirley. Good luck, All. Jeff On Friday, November 3, 2023 at 01:15:06 PM PDT, Don Price wrote: Shirley, I hope you get everything figured out and working properly again. UTIs and incontinence are such a life-suck. They're just about the hardest part of life with SCI. I'm 41 years post-injury (C5-6, complete) and i've had my share of UTIs. I've developed a resistant bladder bug that is probably with me all the time. As long as i drink enough fluids I'm not symptomatic of infection, even though if i did a urinalysis i'm sure it would come back positive. I try not to use antibiotics except as a last resort. I know a bunch of quads and just about every one has some favorite method of treating a UTI without antibiotics. Things I've heard include: cranberry pills, d-mannose, large doses vitamin C, probiotics, lime oil, oil of oregano and bladder flushes with various solutions. I'm not a doctor, so obviously be careful trying any of these. The thing that has worked best for me (I have a suprapubic catheter) is irrigating with a solution of colloidal silver. Silver is a natural antiseptic/antifungal, so when i feel i'm getting a UTI symptom (usually cloudy/smelly urine) I use a syringe to push the colloidal silver water up my catheter into my bladder, then clamp off the catheter for at least 20 minutes. i do this twice a day (once morning, once bedtime) for about 3 days at it makes a huge difference. I wouldn't consider it a miracle cure, but it seems to take out enough bad bacteria that my symptoms clear up for a while with no side effects or possibility of resistance I will be the first to admit that my results are purely anecdotal, and i was highly skeptical of this silver stuff when another quad friend of mine told me about it. I gave it a try because i was running out of other options, and it ended up working for me. I don't have any studies to share--definitely do your own research. You can purchase colloidal silver online. Half gallon of it for about $40. I use eno
RE: [QUAD-L] indwelling urinary catheter problems
I do 30 ml twice in the evening when I get in bed and 1 time in the morning before I get up From: toran spencer [mailto:toran.spen...@outlook.com] Sent: Saturday, November 4, 2023 4:31 PM To: Nichole Rohling; 'Danny Hearn'; quad-list@eskimo.com Subject: Re: [QUAD-L] indwelling urinary catheter problems How often should you flush your tube often? Get Outlook for iOS <https://aka.ms/o0ukef> _ From: Nichole Rohling Sent: Saturday, November 4, 2023 1:02:48 PM To: 'Danny Hearn' ; quad-list@eskimo.com Subject: RE: [QUAD-L] indwelling urinary catheter problems I just use sterile water. Work fine for me. Nicki From: Danny Hearn [mailto:ddh...@sbcglobal.net] Sent: Saturday, November 4, 2023 2:07 PM To: Eric Olson; SHIRLEY BELL; Don Price; Jeffrey Gaede Cc: quad-list Subject: Re: [QUAD-L] indwelling urinary catheter problems I have a supra-pubic also..like some of you I have persistant bacteria that I live with also, when I flush we just use sterile water, I have read that some use saline or a mix of water and 0.25 acetic acid, I have not tried the colloidal silver as a flush eitherwhat type flush do most of you use if not doing the silver method??? Thanks Dan H>*** 26 years post. On Saturday, November 4, 2023 at 12:03:13 AM CDT, Jeffrey Gaede wrote: I feel for you, Shirley. I'm right there with you, Don. I really don't have an issue with incontinence but I've had my share of UTIs (indwelling catheter). I'm 44 years post (C3-4). I've also been told that I have a "resistant bug" that's not an issue for the most part. I'm told it's just there. The condition has an actual name but I can't recall it at the moment. I love the list of UTI-solution ideas, Don. Thanks for providing them. Never heard of the colloidal silver flush. I'll have to do some research and speak with my doctor about that one. Good luck, Shirley. Good luck, All. Jeff On Friday, November 3, 2023 at 01:15:06 PM PDT, Don Price wrote: Shirley, I hope you get everything figured out and working properly again. UTIs and incontinence are such a life-suck. They're just about the hardest part of life with SCI. I'm 41 years post-injury (C5-6, complete) and i've had my share of UTIs. I've developed a resistant bladder bug that is probably with me all the time. As long as i drink enough fluids I'm not symptomatic of infection, even though if i did a urinalysis i'm sure it would come back positive. I try not to use antibiotics except as a last resort. I know a bunch of quads and just about every one has some favorite method of treating a UTI without antibiotics. Things I've heard include: cranberry pills, d-mannose, large doses vitamin C, probiotics, lime oil, oil of oregano and bladder flushes with various solutions. I'm not a doctor, so obviously be careful trying any of these. The thing that has worked best for me (I have a suprapubic catheter) is irrigating with a solution of colloidal silver. Silver is a natural antiseptic/antifungal, so when i feel i'm getting a UTI symptom (usually cloudy/smelly urine) I use a syringe to push the colloidal silver water up my catheter into my bladder, then clamp off the catheter for at least 20 minutes. i do this twice a day (once morning, once bedtime) for about 3 days at it makes a huge difference. I wouldn't consider it a miracle cure, but it seems to take out enough bad bacteria that my symptoms clear up for a while with no side effects or possibility of resistance I will be the first to admit that my results are purely anecdotal, and i was highly skeptical of this silver stuff when another quad friend of mine told me about it. I gave it a try because i was running out of other options, and it ended up working for me. I don't have any studies to share--definitely do your own research. You can purchase colloidal silver online. Half gallon of it for about $40. I use enough each flush to fill my bladder but not cause A.D. Everyone's bladder is different, so i recommend discussing with your urologist first. If anyone has further questions you can email me directly. donpric...@yahoo.com Best wishes, Don. On Wednesday, October 25, 2023 at 11:29:30 AM MST, SHIRLEY BELL wrote: Thanks everyone, My Dr does want a sample when I change the catheter again. I just did and this time things are ok, right now. don't want to try to change again as that's when it goes south. On 10/25/2023 1:30 PM EDT Eric Olson wrote: just happened to run across this article. Looks like you have a few of the signs of an infection https://www.hollister.com/en/continencecare/continencelearningcenter/livingwithaneurologicalcondition/7signsthatyoumayhaveaurinarytractinfection On Wed,
Re: [QUAD-L] indwelling urinary catheter problems
How often should you flush your tube often? Get Outlook for iOS<https://aka.ms/o0ukef> From: Nichole Rohling Sent: Saturday, November 4, 2023 1:02:48 PM To: 'Danny Hearn' ; quad-list@eskimo.com Subject: RE: [QUAD-L] indwelling urinary catheter problems I just use sterile water. Work fine for me. Nicki From: Danny Hearn [mailto:ddh...@sbcglobal.net] Sent: Saturday, November 4, 2023 2:07 PM To: Eric Olson; SHIRLEY BELL; Don Price; Jeffrey Gaede Cc: quad-list Subject: Re: [QUAD-L] indwelling urinary catheter problems I have a supra-pubic also..like some of you I have persistant bacteria that I live with also, when I flush we just use sterile water, I have read that some use saline or a mix of water and 0.25 acetic acid, I have not tried the colloidal silver as a flush eitherwhat type flush do most of you use if not doing the silver method??? Thanks Dan H>*** 26 years post. On Saturday, November 4, 2023 at 12:03:13 AM CDT, Jeffrey Gaede wrote: I feel for you, Shirley. I'm right there with you, Don. I really don't have an issue with incontinence but I've had my share of UTIs (indwelling catheter). I'm 44 years post (C3-4). I've also been told that I have a "resistant bug" that's not an issue for the most part. I'm told it's just there. The condition has an actual name but I can't recall it at the moment. I love the list of UTI-solution ideas, Don. Thanks for providing them. Never heard of the colloidal silver flush. I'll have to do some research and speak with my doctor about that one. Good luck, Shirley. Good luck, All. Jeff On Friday, November 3, 2023 at 01:15:06 PM PDT, Don Price wrote: Shirley, I hope you get everything figured out and working properly again. UTIs and incontinence are such a life-suck. They're just about the hardest part of life with SCI. I'm 41 years post-injury (C5-6, complete) and i've had my share of UTIs. I've developed a resistant bladder bug that is probably with me all the time. As long as i drink enough fluids I'm not symptomatic of infection, even though if i did a urinalysis i'm sure it would come back positive. I try not to use antibiotics except as a last resort. I know a bunch of quads and just about every one has some favorite method of treating a UTI without antibiotics. Things I've heard include: cranberry pills, d-mannose, large doses vitamin C, probiotics, lime oil, oil of oregano and bladder flushes with various solutions. I'm not a doctor, so obviously be careful trying any of these. The thing that has worked best for me (I have a suprapubic catheter) is irrigating with a solution of colloidal silver. Silver is a natural antiseptic/antifungal, so when i feel i'm getting a UTI symptom (usually cloudy/smelly urine) I use a syringe to push the colloidal silver water up my catheter into my bladder, then clamp off the catheter for at least 20 minutes. i do this twice a day (once morning, once bedtime) for about 3 days at it makes a huge difference. I wouldn't consider it a miracle cure, but it seems to take out enough bad bacteria that my symptoms clear up for a while with no side effects or possibility of resistance I will be the first to admit that my results are purely anecdotal, and i was highly skeptical of this silver stuff when another quad friend of mine told me about it. I gave it a try because i was running out of other options, and it ended up working for me. I don't have any studies to share--definitely do your own research. You can purchase colloidal silver online. Half gallon of it for about $40. I use enough each flush to fill my bladder but not cause A.D. Everyone's bladder is different, so i recommend discussing with your urologist first. If anyone has further questions you can email me directly. donpric...@yahoo.com Best wishes, Don. On Wednesday, October 25, 2023 at 11:29:30 AM MST, SHIRLEY BELL wrote: Thanks everyone, My Dr does want a sample when I change the catheter again. I just did and this time things are ok, right now. don't want to try to change again as that's when it goes south. On 10/25/2023 1:30 PM EDT Eric Olson wrote: just happened to run across this article. Looks like you have a few of the signs of an infection https://www.hollister.com/en/continencecare/continencelearningcenter/livingwithaneurologicalcondition/7signsthatyoumayhaveaurinarytractinfection On Wed, Oct 25, 2023 at 10:25 AM SHIRLEY BELL mailto:sbell...@cox.net>> wrote: Hi all, anyone have an indwelling Catheter for 40 or so years and had severe issues on and off with spasms and incontinence resulting in changing even new catheters until one works? It's hard to explain but not good. I take the max on spasm pills. Can't get in to see Dr for a few weeks, wanted to do research before. Would a supra pubic help with this? Any help would be appreciated. Thanks, Shirley
RE: [QUAD-L] indwelling urinary catheter problems
I just use sterile water. Work fine for me. Nicki From: Danny Hearn [mailto:ddh...@sbcglobal.net] Sent: Saturday, November 4, 2023 2:07 PM To: Eric Olson; SHIRLEY BELL; Don Price; Jeffrey Gaede Cc: quad-list Subject: Re: [QUAD-L] indwelling urinary catheter problems I have a supra-pubic also..like some of you I have persistant bacteria that I live with also, when I flush we just use sterile water, I have read that some use saline or a mix of water and 0.25 acetic acid, I have not tried the colloidal silver as a flush eitherwhat type flush do most of you use if not doing the silver method??? Thanks Dan H>*** 26 years post. On Saturday, November 4, 2023 at 12:03:13 AM CDT, Jeffrey Gaede wrote: I feel for you, Shirley. I'm right there with you, Don. I really don't have an issue with incontinence but I've had my share of UTIs (indwelling catheter). I'm 44 years post (C3-4). I've also been told that I have a "resistant bug" that's not an issue for the most part. I'm told it's just there. The condition has an actual name but I can't recall it at the moment. I love the list of UTI-solution ideas, Don. Thanks for providing them. Never heard of the colloidal silver flush. I'll have to do some research and speak with my doctor about that one. Good luck, Shirley. Good luck, All. Jeff On Friday, November 3, 2023 at 01:15:06 PM PDT, Don Price wrote: Shirley, I hope you get everything figured out and working properly again. UTIs and incontinence are such a life-suck. They're just about the hardest part of life with SCI. I'm 41 years post-injury (C5-6, complete) and i've had my share of UTIs. I've developed a resistant bladder bug that is probably with me all the time. As long as i drink enough fluids I'm not symptomatic of infection, even though if i did a urinalysis i'm sure it would come back positive. I try not to use antibiotics except as a last resort. I know a bunch of quads and just about every one has some favorite method of treating a UTI without antibiotics. Things I've heard include: cranberry pills, d-mannose, large doses vitamin C, probiotics, lime oil, oil of oregano and bladder flushes with various solutions. I'm not a doctor, so obviously be careful trying any of these. The thing that has worked best for me (I have a suprapubic catheter) is irrigating with a solution of colloidal silver. Silver is a natural antiseptic/antifungal, so when i feel i'm getting a UTI symptom (usually cloudy/smelly urine) I use a syringe to push the colloidal silver water up my catheter into my bladder, then clamp off the catheter for at least 20 minutes. i do this twice a day (once morning, once bedtime) for about 3 days at it makes a huge difference. I wouldn't consider it a miracle cure, but it seems to take out enough bad bacteria that my symptoms clear up for a while with no side effects or possibility of resistance I will be the first to admit that my results are purely anecdotal, and i was highly skeptical of this silver stuff when another quad friend of mine told me about it. I gave it a try because i was running out of other options, and it ended up working for me. I don't have any studies to share--definitely do your own research. You can purchase colloidal silver online. Half gallon of it for about $40. I use enough each flush to fill my bladder but not cause A.D. Everyone's bladder is different, so i recommend discussing with your urologist first. If anyone has further questions you can email me directly. donpric...@yahoo.com Best wishes, Don. On Wednesday, October 25, 2023 at 11:29:30 AM MST, SHIRLEY BELL wrote: Thanks everyone, My Dr does want a sample when I change the catheter again. I just did and this time things are ok, right now. don't want to try to change again as that's when it goes south. On 10/25/2023 1:30 PM EDT Eric Olson wrote: just happened to run across this article. Looks like you have a few of the signs of an infection https://www.hollister.com/en/continencecare/continencelearningcenter/livingwithaneurologicalcondition/7signsthatyoumayhaveaurinarytractinfection On Wed, Oct 25, 2023 at 10:25 AM SHIRLEY BELL wrote: Hi all, anyone have an indwelling Catheter for 40 or so years and had severe issues on and off with spasms and incontinence resulting in changing even new catheters until one works? It's hard to explain but not good. I take the max on spasm pills. Can't get in to see Dr for a few weeks, wanted to do research before. Would a supra pubic help with this? Any help would be appreciated. Thanks, Shirley
Re: [QUAD-L] indwelling urinary catheter problems
I have a supra-pubic also..like some of you I have persistant bacteria that I live with also, when I flush we just use sterile water, I have read that some use saline or a mix of water and 0.25 acetic acid, I have not tried the colloidal silver as a flush eitherwhat type flush do most of you use if not doing the silver method??? Thanks Dan H>*** 26 years post. On Saturday, November 4, 2023 at 12:03:13 AM CDT, Jeffrey Gaede wrote: I feel for you, Shirley. I'm right there with you, Don. I really don't have an issue with incontinence but I've had my share of UTIs (indwelling catheter). I'm 44 years post (C3-4). I've also been told that I have a "resistant bug" that's not an issue for the most part. I'm told it's just there. The condition has an actual name but I can't recall it at the moment. I love the list of UTI-solution ideas, Don. Thanks for providing them. Never heard of the colloidal silver flush. I'll have to do some research and speak with my doctor about that one. Good luck, Shirley. Good luck, All. Jeff On Friday, November 3, 2023 at 01:15:06 PM PDT, Don Price wrote: Shirley, I hope you get everything figured out and working properly again. UTIs and incontinence are such a life-suck. They're just about the hardest part of life with SCI. I'm 41 years post-injury (C5-6, complete) and i've had my share of UTIs. I've developed a resistant bladder bug that is probably with me all the time. As long as i drink enough fluids I'm not symptomatic of infection, even though if i did a urinalysis i'm sure it would come back positive. I try not to use antibiotics except as a last resort. I know a bunch of quads and just about every one has some favorite method of treating a UTI without antibiotics. Things I've heard include: cranberry pills, d-mannose, large doses vitamin C, probiotics, lime oil, oil of oregano and bladder flushes with various solutions. I'm not a doctor, so obviously be careful trying any of these. The thing that has worked best for me (I have a suprapubic catheter) is irrigating with a solution of colloidal silver. Silver is a natural antiseptic/antifungal, so when i feel i'm getting a UTI symptom (usually cloudy/smelly urine) I use a syringe to push the colloidal silver water up my catheter into my bladder, then clamp off the catheter for at least 20 minutes. i do this twice a day (once morning, once bedtime) for about 3 days at it makes a huge difference. I wouldn't consider it a miracle cure, but it seems to take out enough bad bacteria that my symptoms clear up for a while with no side effects or possibility of resistance I will be the first to admit that my results are purely anecdotal, and i was highly skeptical of this silver stuff when another quad friend of mine told me about it. I gave it a try because i was running out of other options, and it ended up working for me. I don't have any studies to share--definitely do your own research. You can purchase colloidal silver online. Half gallon of it for about $40. I use enough each flush to fill my bladder but not cause A.D. Everyone's bladder is different, so i recommend discussing with your urologist first. If anyone has further questions you can email me directly.donpric...@yahoo.com Best wishes,Don. On Wednesday, October 25, 2023 at 11:29:30 AM MST, SHIRLEY BELL wrote: Thanks everyone, My Dr does want a sample when I change the catheter again. I just did and this time things are ok, right now. don't want to try to change again as that's when it goes south. On 10/25/2023 1:30 PM EDT Eric Olson wrote: just happened to run across this article. Looks like you have a few of the signs of an infection https://www.hollister.com/en/continencecare/continencelearningcenter/livingwithaneurologicalcondition/7signsthatyoumayhaveaurinarytractinfection On Wed, Oct 25, 2023 at 10:25 AM SHIRLEY BELL wrote: Hi all, anyone have an indwelling Catheter for 40 or so years and had severe issues on and off with spasms and incontinence resulting in changing even new catheters until one works? It's hard to explain but not good. I take the max on spasm pills. Can't get in to see Dr for a few weeks, wanted to do research before. Would a supra pubic help with this? Any help would be appreciated. Thanks, Shirley
Re: [QUAD-L] indwelling urinary catheter problems
How much water and how much silver? On Fri, Nov 3, 2023 at 3:13 PM Don Price wrote: > Shirley, > > I hope you get everything figured out and working properly again. UTIs and > incontinence are such a life-suck. They're just about the hardest part of > life with SCI. > > I'm 41 years post-injury (C5-6, complete) and i've had my share of UTIs. > I've developed a resistant bladder bug that is probably with me all the > time. As long as i drink enough fluids I'm not symptomatic of infection, > even though if i did a urinalysis i'm sure it would come back positive. I > try not to use antibiotics except as a last resort. > > I know a bunch of quads and just about every one has some favorite method > of treating a UTI without antibiotics. Things I've heard include: cranberry > pills, d-mannose, large doses vitamin C, probiotics, lime oil, oil of > oregano and bladder flushes with various solutions. I'm not a doctor, so > obviously be careful trying any of these. > > The thing that has worked best for me (I have a suprapubic catheter) is > irrigating with a solution of colloidal silver. Silver is a natural > antiseptic/antifungal, so when i feel i'm getting a UTI symptom (usually > cloudy/smelly urine) I use a syringe to push the colloidal silver water up > my catheter into my bladder, then clamp off the catheter for at least 20 > minutes. i do this twice a day (once morning, once bedtime) for about 3 > days at it makes a huge difference. I wouldn't consider it a miracle cure, > but it seems to take out enough bad bacteria that my symptoms clear up for > a while with no side effects or possibility of resistance > > I will be the first to admit that my results are purely anecdotal, and i > was highly skeptical of this silver stuff when another quad friend of mine > told me about it. I gave it a try because i was running out of other > options, and it ended up working for me. I don't have any studies to > share--definitely do your own research. > > You can purchase colloidal silver online. Half gallon of it for about $40. > I use enough each flush to fill my bladder but not cause A.D. Everyone's > bladder is different, so i recommend discussing with your urologist first. > > If anyone has further questions you can email me directly. > donpric...@yahoo.com > > Best wishes, > Don. > > > > On Wednesday, October 25, 2023 at 11:29:30 AM MST, SHIRLEY BELL < > sbell...@cox.net> wrote: > > > Thanks everyone, My Dr does want a sample when I change the catheter > again. I just did and this time things are ok, right now. don't want to try > to change again as that's when it goes south. > > On 10/25/2023 1:30 PM EDT Eric Olson wrote: > > > just happened to run across this article. Looks like you have a few of > the signs of an infection > > > https://www.hollister.com/en/continencecare/continencelearningcenter/livingwithaneurologicalcondition/7signsthatyoumayhaveaurinarytractinfection > > On Wed, Oct 25, 2023 at 10:25 AM SHIRLEY BELL wrote: > > Hi all, anyone have an indwelling Catheter for 40 or so years and had > severe issues on and off with spasms and incontinence resulting in changing > even new catheters until one works? It's hard to explain but not good. I > take the max on spasm pills. Can't get in to see Dr for a few weeks, wanted > to do research before. Would a supra pubic help with this? Any help would > be appreciated. Thanks, Shirley > >
Re: [QUAD-L] indwelling urinary catheter problems
I feel for you, Shirley. I'm right there with you, Don. I really don't have an issue with incontinence but I've had my share of UTIs (indwelling catheter). I'm 44 years post (C3-4). I've also been told that I have a "resistant bug" that's not an issue for the most part. I'm told it's just there. The condition has an actual name but I can't recall it at the moment. I love the list of UTI-solution ideas, Don. Thanks for providing them. Never heard of the colloidal silver flush. I'll have to do some research and speak with my doctor about that one. Good luck, Shirley. Good luck, All. Jeff On Friday, November 3, 2023 at 01:15:06 PM PDT, Don Price wrote: Shirley, I hope you get everything figured out and working properly again. UTIs and incontinence are such a life-suck. They're just about the hardest part of life with SCI. I'm 41 years post-injury (C5-6, complete) and i've had my share of UTIs. I've developed a resistant bladder bug that is probably with me all the time. As long as i drink enough fluids I'm not symptomatic of infection, even though if i did a urinalysis i'm sure it would come back positive. I try not to use antibiotics except as a last resort. I know a bunch of quads and just about every one has some favorite method of treating a UTI without antibiotics. Things I've heard include: cranberry pills, d-mannose, large doses vitamin C, probiotics, lime oil, oil of oregano and bladder flushes with various solutions. I'm not a doctor, so obviously be careful trying any of these. The thing that has worked best for me (I have a suprapubic catheter) is irrigating with a solution of colloidal silver. Silver is a natural antiseptic/antifungal, so when i feel i'm getting a UTI symptom (usually cloudy/smelly urine) I use a syringe to push the colloidal silver water up my catheter into my bladder, then clamp off the catheter for at least 20 minutes. i do this twice a day (once morning, once bedtime) for about 3 days at it makes a huge difference. I wouldn't consider it a miracle cure, but it seems to take out enough bad bacteria that my symptoms clear up for a while with no side effects or possibility of resistance I will be the first to admit that my results are purely anecdotal, and i was highly skeptical of this silver stuff when another quad friend of mine told me about it. I gave it a try because i was running out of other options, and it ended up working for me. I don't have any studies to share--definitely do your own research. You can purchase colloidal silver online. Half gallon of it for about $40. I use enough each flush to fill my bladder but not cause A.D. Everyone's bladder is different, so i recommend discussing with your urologist first. If anyone has further questions you can email me directly.donpric...@yahoo.com Best wishes,Don. On Wednesday, October 25, 2023 at 11:29:30 AM MST, SHIRLEY BELL wrote: Thanks everyone, My Dr does want a sample when I change the catheter again. I just did and this time things are ok, right now. don't want to try to change again as that's when it goes south. On 10/25/2023 1:30 PM EDT Eric Olson wrote: just happened to run across this article. Looks like you have a few of the signs of an infection https://www.hollister.com/en/continencecare/continencelearningcenter/livingwithaneurologicalcondition/7signsthatyoumayhaveaurinarytractinfection On Wed, Oct 25, 2023 at 10:25 AM SHIRLEY BELL wrote: Hi all, anyone have an indwelling Catheter for 40 or so years and had severe issues on and off with spasms and incontinence resulting in changing even new catheters until one works? It's hard to explain but not good. I take the max on spasm pills. Can't get in to see Dr for a few weeks, wanted to do research before. Would a supra pubic help with this? Any help would be appreciated. Thanks, Shirley
Re: [QUAD-L] indwelling urinary catheter problems
Shirley, I hope you get everything figured out and working properly again. UTIs and incontinence are such a life-suck. They're just about the hardest part of life with SCI. I'm 41 years post-injury (C5-6, complete) and i've had my share of UTIs. I've developed a resistant bladder bug that is probably with me all the time. As long as i drink enough fluids I'm not symptomatic of infection, even though if i did a urinalysis i'm sure it would come back positive. I try not to use antibiotics except as a last resort. I know a bunch of quads and just about every one has some favorite method of treating a UTI without antibiotics. Things I've heard include: cranberry pills, d-mannose, large doses vitamin C, probiotics, lime oil, oil of oregano and bladder flushes with various solutions. I'm not a doctor, so obviously be careful trying any of these. The thing that has worked best for me (I have a suprapubic catheter) is irrigating with a solution of colloidal silver. Silver is a natural antiseptic/antifungal, so when i feel i'm getting a UTI symptom (usually cloudy/smelly urine) I use a syringe to push the colloidal silver water up my catheter into my bladder, then clamp off the catheter for at least 20 minutes. i do this twice a day (once morning, once bedtime) for about 3 days at it makes a huge difference. I wouldn't consider it a miracle cure, but it seems to take out enough bad bacteria that my symptoms clear up for a while with no side effects or possibility of resistance I will be the first to admit that my results are purely anecdotal, and i was highly skeptical of this silver stuff when another quad friend of mine told me about it. I gave it a try because i was running out of other options, and it ended up working for me. I don't have any studies to share--definitely do your own research. You can purchase colloidal silver online. Half gallon of it for about $40. I use enough each flush to fill my bladder but not cause A.D. Everyone's bladder is different, so i recommend discussing with your urologist first. If anyone has further questions you can email me directly.donpric...@yahoo.com Best wishes,Don. On Wednesday, October 25, 2023 at 11:29:30 AM MST, SHIRLEY BELL wrote: Thanks everyone, My Dr does want a sample when I change the catheter again. I just did and this time things are ok, right now. don't want to try to change again as that's when it goes south. On 10/25/2023 1:30 PM EDT Eric Olson wrote: just happened to run across this article. Looks like you have a few of the signs of an infection https://www.hollister.com/en/continencecare/continencelearningcenter/livingwithaneurologicalcondition/7signsthatyoumayhaveaurinarytractinfection On Wed, Oct 25, 2023 at 10:25 AM SHIRLEY BELL wrote: Hi all, anyone have an indwelling Catheter for 40 or so years and had severe issues on and off with spasms and incontinence resulting in changing even new catheters until one works? It's hard to explain but not good. I take the max on spasm pills. Can't get in to see Dr for a few weeks, wanted to do research before. Would a supra pubic help with this? Any help would be appreciated. Thanks, Shirley
Re: [QUAD-L] indwelling urinary catheter problems
Thanks everyone, My Dr does want a sample when I change the catheter again. I just did and this time things are ok, right now. don't want to try to change again as that's when it goes south. > On 10/25/2023 1:30 PM EDT Eric Olson wrote: > > > just happened to run across this article. Looks like you have a few of the > signs of an infection > > https://www.hollister.com/en/continencecare/continencelearningcenter/livingwithaneurologicalcondition/7signsthatyoumayhaveaurinarytractinfection > > On Wed, Oct 25, 2023 at 10:25 AM SHIRLEY BELL mailto:sbell...@cox.net> wrote: > > > Hi all, anyone have an indwelling Catheter for 40 or so years and had > > severe issues on and off with spasms and incontinence resulting in changing > > even new catheters until one works? It's hard to explain but not good. I > > take the max on spasm pills. Can't get in to see Dr for a few weeks, wanted > > to do research before. Would a supra pubic help with this? Any help would > > be appreciated. Thanks, Shirley > > >
Re: [QUAD-L] indwelling urinary catheter problems
just happened to run across this article. Looks like you have a few of the signs of an infection https://www.hollister.com/en/continencecare/continencelearningcenter/livingwithaneurologicalcondition/7signsthatyoumayhaveaurinarytractinfection On Wed, Oct 25, 2023 at 10:25 AM SHIRLEY BELL wrote: > Hi all, anyone have an indwelling Catheter for 40 or so years and had > severe issues on and off with spasms and incontinence resulting in changing > even new catheters until one works? It's hard to explain but not good. I > take the max on spasm pills. Can't get in to see Dr for a few weeks, wanted > to do research before. Would a supra pubic help with this? Any help would > be appreciated. Thanks, Shirley >
Re: [QUAD-L] indwelling urinary catheter problems
I don't know if a supra pubic would solve your problems or not. but it sure makes catheter changes easier. I too wonder if you have a uti On Wed, Oct 25, 2023 at 10:42 AM Nichole Rohling wrote: > Hi Shirey, > > > > I’ve had an indwelling cath for 25 years. Minimal problems. Do you > irrigate it? > > I irrigate in the morning and at night. Is sediment stopping it up? > > If so could be a bladder stone. Do you have a UTI? That can cause spasms. > > > > Hope you get it figured out soon. > > > > Nicki > > > > > > *From:* SHIRLEY BELL [mailto:sbell...@cox.net] > *Sent:* Wednesday, October 25, 2023 10:25 AM > *To:* quad-list > *Subject:* [QUAD-L] indwelling urinary catheter problems > > > > Hi all, anyone have an indwelling Catheter for 40 or so years and had > severe issues on and off with spasms and incontinence resulting in changing > even new catheters until one works? It's hard to explain but not good. I > take the max on spasm pills. Can't get in to see Dr for a few weeks, wanted > to do research before. Would a supra pubic help with this? Any help would > be appreciated. Thanks, Shirley >
RE: [QUAD-L] indwelling urinary catheter problems
Hi Shirey, I’ve had an indwelling cath for 25 years. Minimal problems. Do you irrigate it? I irrigate in the morning and at night. Is sediment stopping it up? If so could be a bladder stone. Do you have a UTI? That can cause spasms. Hope you get it figured out soon. Nicki From: SHIRLEY BELL [mailto:sbell...@cox.net] Sent: Wednesday, October 25, 2023 10:25 AM To: quad-list Subject: [QUAD-L] indwelling urinary catheter problems Hi all, anyone have an indwelling Catheter for 40 or so years and had severe issues on and off with spasms and incontinence resulting in changing even new catheters until one works? It's hard to explain but not good. I take the max on spasm pills. Can't get in to see Dr for a few weeks, wanted to do research before. Would a supra pubic help with this? Any help would be appreciated. Thanks, Shirley