Re: [QUAD-L] Scoliosis
Wow, best wishes Bobbie. Keep us informed. Scoliosis showed up on my cat scan for from testing for cancer. My back hurts alot but not like you describe. Dianna I was diognosis with scoliosis about 15+ years ago. Now it's gotten much worse. Mine is in the shape of a C and it is starting to push my hip out. On my left hip, if I'm lying down, and put my hand ther and feel around, I can feel my hip bone poking out about 1 from my hand! It has gotten me so concerned that I'm going to see a orthopedic Sergon after I get an MRI of my spine. I have no idea what can be done. Anybody have problems with their hips? -Original Message- From: Gmail bobbiehumphre...@gmail.com To: quad-list quad-list@eskimo.com Sent: Wed, Apr 8, 2015 4:40 pm Subject: [QUAD-L] Scoliosis I was diognosis with scoliosis about 15+ years ago. Now it's gotten much worse. Mine is in the shape of a C and it is starting to push my hip out. On my left hip, if I'm lying down, and put my hand ther and feel around, I can feel my hip bone poking out about 1 from my hand! It has gotten me so concerned that I'm going to see a orthopedic Sergon after I get an MRI of my spine. I have no idea what can be done. Anybody have problems with their hips? Bobbie . Smile Everyday
Re: [QUAD-L] Scoliosis
I know they can put a Harrington rod in the spine it has helped the girls that had them done. There is a lot of rehab time but we have lots of time, right? I hope that your Dr visit goes well. I have 1 leg shorter than the other due to a fractured hip that I did not know about. My aid dropped me out of the hoyer. I went to the hospital complained about my R shoulder nothing about my hip. Several yrs later x-ray found my old fractured hip. So I still have pain with that R hip. Lindaf - Original Message - From: Gmail bobbiehumphre...@gmail.com To: quad-list quad-list@eskimo.com Sent: Wednesday, April 8, 2015 1:45:24 PM Subject: [QUAD-L] Scoliosis I was diognosis with scoliosis about 15+ years ago. Now it's gotten much worse. Mine is in the shape of a C and it is starting to push my hip out. On my left hip, if I'm lying down, and put my hand ther and feel around, I can feel my hip bone poking out about 1 from my hand! It has gotten me so concerned that I'm going to see a orthopedic Sergon after I get an MRI of my spine. I have no idea what can be done. Anybody have problems with their hips? Bobbie . Smile Everyday
Re: [QUAD-L] Scoliosis +
Tod and Greg took the words right out of my mouth! With my body being super hypersensitive by having posttraumatic syringomyelia and getting worse and not having the suppositories work like they used to... things have gotten worse for me over the years rather than staying the same. I must say I am very envious of those quads who seem to skim through most of their life without any of the above. Big sigh Lori On Tue, Dec 29, 2009 at 2:34 PM, Tod E. Santee sant...@cox.net wrote: Ya know, Greg... I've thought the same thing at times. But then I also realize that if I ever *did* get a 1-week break from it all (those 2), it would be no time before I'd be wishing for a 2-week break! Wish in one hand B-Program in another! Ahhh...shit! Best! --Tod Greg g...@eskimo.com wrote: For me, the worst part of being a quad is the issue of the b-program. It's become harder to go through, more sweating, spasms, time, etc. The number 2 thing is the 24/7 pain. If I could just have a weeks break of both. Greg _ In a message dated 12/28/2009 12:59:55 PM Eastern Standard Time, bobbie...@aol.com writes: Quite honestly I'm very tired of dealing with this quad crap and putting up an I'm OK front to everybody but my husband. I hear ya Bobbie. The pain everything else that tags along with quads, I can relate to. But I'm sorry for you and all others who were robbed at such a young time of life. Dianna -- Lori Age - 45 C4/5 complete quad, nearly 30 years post Tucson, AZ
Re: [QUAD-L] Scoliosis +
Lori, they are far and few... and shall be known as the chosen few. Happy New Year! Best Wishes In a message dated 12/30/2009 3:17:08 P.M. Central Standard Time, lorilivin...@gmail.com writes: Tod and Greg took the words right out of my mouth! . I must say I am very envious of those quads who seem to skim through most of their life without any of the above. Big sigh Lori On Tue, Dec 29, 2009 at 2:34 PM, Tod E. Santee _sant...@cox.net_ (mailto:sant...@cox.net) wrote: Ya know, Greg... I've thought the same thing at times. But then I also realize that if I ever *did* get a 1-week break from it all (those 2), it would be no time before I'd be wishing for a 2-week break! Wish in one hand B-Program in another! Ahhh...shit! Best! --Tod Greg _g...@eskimo.com_ (mailto:g...@eskimo.com) wrote: For me, the worst part of being a quad is the issue of the b-program. It's become harder to go through, more sweating, spasms, time, etc. The number 2 thing is the 24/7 pain. If I could just have a weeks break of both. Greg _ In a message dated 12/28/2009 12:59:55 PM Eastern Standard Time, _bobbie...@aol.com_ (mailto:bobbie...@aol.com) writes: Quite honestly I'm very tired of dealing with this quad crap and putting up an I'm OK front to everybody but my husband. I hear ya Bobbie. The pain everything else that tags along with quads, I can relate to. But I'm sorry for you and all others who were robbed at such a young time of life. Dianna -- Lori Age - 45 C4/5 complete quad, nearly 30 years post Tucson, AZ
RE: [QUAD-L] Scoliosis +
I went pretty long (20-25 years) with everything going OK. No meds at all, just the antibiotics for a UTI now and then. Butt then everything just went bad. I blame it all on when the back of my Permobil broke and I fell backwards into a flat position. Caused hip problems about a year later. Lots of pain and then the pain meds not only cause constipation, butt slow down your system so it doesn't work right. Milalax really helps, butt is not perfect. I just try to force myself to get out and do things. Greg _ Tod and Greg took the words right out of my mouth! With my body being super hypersensitive by having posttraumatic syringomyelia and getting worse and not having the suppositories work like they used to... things have gotten worse for me over the years rather than staying the same. I must say I am very envious of those quads who seem to skim through most of their life without any of the above.
RE: [QUAD-L] Scoliosis +
For me, the worst part of being a quad is the issue of the b-program. It's become harder to go through, more sweating, spasms, time, etc. The number 2 thing is the 24/7 pain. If I could just have a weeks break of both. Greg _ In a message dated 12/28/2009 12:59:55 PM Eastern Standard Time, bobbie...@aol.com writes: Quite honestly I'm very tired of dealing with this quad crap and putting up an I'm OK front to everybody but my husband. I hear ya Bobbie. The pain everything else that tags along with quads, I can relate to. But I'm sorry for you and all others who were robbed at such a young time of life. Dianna
RE: [QUAD-L] Scoliosis +
Ya know, Greg... I've thought the same thing at times. But then I also realize that if I ever *did* get a 1-week break from it all (those 2), it would be no time before I'd be wishing for a 2-week break! Wish in one hand B-Program in another! Ahhh...shit! Best! --Tod Greg g...@eskimo.com wrote: For me, the worst part of being a quad is the issue of the b-program. It's become harder to go through, more sweating, spasms, time, etc. The number 2 thing is the 24/7 pain. If I could just have a weeks break of both. Greg _ In a message dated 12/28/2009 12:59:55 PM Eastern Standard Time, bobbie...@aol.com writes: Quite honestly I'm very tired of dealing with this quad crap and putting up an I'm OK front to everybody but my husband. I hear ya Bobbie. The pain everything else that tags along with quads, I can relate to. But I'm sorry for you and all others who were robbed at such a young time of life. Dianna
Re: [QUAD-L] Scoliosis +
Bobbie, are you incomplete or a complete injury? How many years post and on what level C./4? Do you deal with pain? Mine is through the roof! I am complete C 4,5,6,7 36 years post, I deal with my pain by limiting my hours in the chair averaging 8 hrs per day and taking three different types of pain meds - perkiest (sp) soma, Hydrocodone. I don't take then all at the same time, I take different ones according to my pain level at the time and of course the weather here in New Jersey. I also have a syrinx at C 5 that is a worse pain than my scoliosis - sometimes. Quite honestly I'm very tired of dealing with this quad crap and putting up an I'm OK front to everybody but my husband. I don't get the flu shot or breast exams or uro exams or any other preventive health exams because I don't want to prolong my life as a quad. I'm grateful to you guys to talk to and hear what you have to say. Happy New Year! ~ Bobbie
Re: [QUAD-L] Scoliosis
Hi Mr. Dangerwood (Steve): I have the curved back and pain to go with it. If you don't mind a story with some what I did try parts, keep reading. Otherwise, skip to the end. I was injured at 16 and was 5'11 at the time -- long legs but a lot of trunk height, too. They knew I wasn't done growing in height and scoliosis would become a problem so, before I even left rehab, I was fitted for a trunk brace... turtleshell-style thing that I put on in bed and velcroed the front to. It became a quick problem because it kept riding up under my armpits as I'd move and shift in my chair. I found a way to attach a strap to the bottom of the back half that could be threaded down between my seat and chair back and then buckled (or tied, velcroed, something) to the frame of my chair to keep it from moving up. It was pretty successful. I never fell or lost my balance using it (lol)... I could take a pretty solid gut punch from certain kids at school and watch them hurt their hands, too!! (bigger LMAO!) Anyway, after a year or two it was just too much of a pain in the ass to do this every day and it restricted my movement enough to make certain tasks impossible that could have led to more independence. I gave it up. We tried a special, custom formed chair back that kept me straight but it also kept me from moving to reach things. I forget what it was called but it was made with some type of mixture poured into an opening in the chair back while someone held me in a correct, straight position. It foamed up, filled in around my sides, and turned solid in a matter of minutes. But because it filled the sides I could no longer lean to the side to reach for light switches or lean over to pick things up, etc. I used it a while but it, too, was just something I couldn't get accustomed to after several months. SO... Now I curve. A big ole S-shaped curve. And I'm a hooker ... I hook an arm around one push handle while driving or doing other things to keep from falling. I'm told almost all us hookers have curved backs. There's one low curve to the right so I found a camera bag and filled it with things I occasionally (but rarely) need like my wallet, a box of emergency meds in case I get stuck without somewhere, and a few other fill ins. I just stuff that between my low side and the armrest of my chair each morning. I have an old 8-10 chain from a biker/trucker-type wallet attached to it that I clip to my belt loop. That way if I do pull it out for some reason, at least I'll know I won't drop it! For pain, besides the side camera bag, the only thing that helps me is continuously moving... pushing my back from one side to the other, stretching sideways and WAY, WAY FAR forwards while holding the push handles behind me with my wrists (I don't have the triceps to push back up if I fall forward or the strength for external rotation to help push myself back up. So my leaning forward looks more like an approved CIA interrogation stress position.) I find that even when it hurts to move, moving hurts even more if I haven't kept moving! Staying limber and not allowing myself to stiffen up has been my best medicine. Next best is the drugs... unfortunately. I've gone as low on baclofen and valium as I can. Any lower and I spasm enough to move my just perfect seating position and I'm not spasm-free enough to drive safely. The less tight, spasm-free back and legs helps with pain. My back also gives me a sciatica-type pain in one or both legs. I take neurontin (gabapentin) for that -- again, just enough to take the edge off. And finally, dilaudid (hydromorphone) for the pains that the others don't seem to help at all. Best of luck to you! I know how much the pain thing sucks!! (And I hate the idea of more drugs!) Best regards, Tod Steve Crowder dangerwo...@san.rr.com wrote: Bobbie, are you incomplete or a complete injury? How many years post and on what level C./4? Do you deal with pain? Mine is through the roof! Look forward to hearing back from you, Nick Www.SurvivingParalysis.com dangerwo...@san.rr.com - Original Message - From: bobbie...@aol.com To: dangerwo...@san.rr.com ; quad-list@eskimo.com Sent: Sunday, December 27, 2009 4:19 PM Subject: Re: [QUAD-L] Scoliosis In a post Does anyone else out there have scoliosis -- curvature of the spine? I do Bobbie Humphreys C-5,6.7 motocross jumping accident in 1973 at 17 Married to Sweet Pete Living in Parsippany, New Jersey
Re: [QUAD-L] Scoliosis
I thought I was starting a seizure. Good luck stopping scoliosis. too. I can't say I've had much luck with it. That voice software needs a little tweaking. Merry Happy Y'all, john From: Don Price donpric...@yahoo.com To: quad-list@eskimo.com; Dan d...@unh.edu Sent: Sun, December 27, 2009 11:42:47 AM Subject: Re: [QUAD-L] Scoliosis Must be using Dragon Un-Naturally Speaking. LOL - Original Message - From: Dan To: quad-list@eskimo.com Sent: Sunday, December 27, 2009 9:24 AM Subject: Re: [QUAD-L] Scoliosis Hey Steve, I assume you're using speech recognition hardware but what does the following mean? Dan At 12:50 AM 12/27/2009, Steve Crowder said something that elicited my response: I honestly camera after I calmly before a command year and a okay. You go to sleep so he appears for her chastity a CEO, I looked at him to suffer hungry cool a lot more to you will my current Mac know how it should implement the are you!
RE: [QUAD-L] Scoliosis
I have it quite a bit now. I have one pad pushing my lower ribs to the left and one pad push my upper ribs to the right. That helps me sit straighter. Greg
Re: [QUAD-L] Scoliosis +
In a message dated 12/28/2009 12:59:55 PM Eastern Standard Time, bobbie...@aol.com writes: Quite honestly I'm very tired of dealing with this quad crap and putting up an I'm OK front to everybody but my husband. I hear ya Bobbie. The pain everything else that tags along with quads, I can relate to. But I'm sorry for you and all others who were robbed at such a young time of life. Dianna
Re: [QUAD-L] Scoliosis
Scoli, is very common with those who have a spinal cord injury. Gravity and positioning are the greater causes. Perhaps, that is why doctors and therapist recommend a positioning evaluation to determine the best way to support the spine, back and body of those with Neuro injuries. Best Wishes, In a message dated 12/26/2009 11:51:14 P.M. Central Standard Time, dangerwo...@san.rr.com writes: Hi everybody. Merry Christmas. I was wondering -- thinking about a few things. Does anyone else out there have scoliosis -- curvature of the spine? Because I am SO bent that, combined with my sensation, which is still fully intact, I deal with so much pain I have to do so many things to stimulate straightening my spine, I honestly camera after I calmly before a command year and a okay. You go to sleep so he appears for her chastity a CEO, I looked at him to suffer hungry cool a lot more to you will my current Mac know how it should implement the are you! Something I was thinking about doing. Was putting some of you together in one of the chat rooms at my website and draw in some discussion topics at you, such as pain management, caregiver rates, etc. Is that something some of you might be interested in and would want to get involved in? I would love to know. Thanks, Nick _Www.SurvivingParalysis.com_ (http://www.survivingparalysis.com/) _dangerwo...@san.rr.c_ (mailto:dangerwo...@san.rr.c)
Re: [QUAD-L] Scoliosis
Hey Steve, I assume you're using speech recognition hardware but what does the following mean? Dan At 12:50 AM 12/27/2009, Steve Crowder said something that elicited my response: I honestly camera after I calmly before a command year and a okay. You go to sleep so he appears for her chastity a CEO, I looked at him to suffer hungry cool a lot more to you will my current Mac know how it should implement the are you!
Re: [QUAD-L] Scoliosis
Must be using Dragon Un-Naturally Speaking. LOL - Original Message - From: Dan To: quad-list@eskimo.com Sent: Sunday, December 27, 2009 9:24 AM Subject: Re: [QUAD-L] Scoliosis Hey Steve, I assume you're using speech recognition hardware but what does the following mean? Dan At 12:50 AM 12/27/2009, Steve Crowder said something that elicited my response: I honestly camera after I calmly before a command year and a okay. You go to sleep so he appears for her chastity a CEO, I looked at him to suffer hungry cool a lot more to you will my current Mac know how it should implement the are you!
Re: [QUAD-L] Scoliosis
I saw this kind of 'Language' on a website one time from a girl who had a phrase-generator that would spit out random subject/verb/predicate gibberish sentences that sounded like English but were meaningless. AZDAVE In a message dated 12/27/2009 8:43:10 A.M. Pacific Standard Time, donpric...@yahoo.com writes: Must be using Dragon Un-Naturally Speaking. LOL - Original Message - From: _Dan_ (mailto:d...@unh.edu) To: _quad-l...@eskimo.com_ (mailto:quad-list@eskimo.com) Sent: Sunday, December 27, 2009 9:24 AM Subject: Re: [QUAD-L] Scoliosis Hey Steve, I assume you're using speech recognition hardware but what does the following mean? Dan At 12:50 AM 12/27/2009, Steve Crowder said something that elicited my response: I honestly camera after I calmly before a command year and a okay. You go to sleep so he appears for her chastity a CEO, I looked at him to suffer hungry cool a lot more to you will my current Mac know how it should implement the are you!
Re: [QUAD-L] Scoliosis
Does anyone else out there have scoliosis -- curvature of the spine? I do Bobbie Humphreys C-5,6.7 motocross jumping accident in 1973 at 17 Married to Sweet Pete Living in Parsippany, New Jersey
Re: [QUAD-L] Scoliosis
I do also, started at 13, wore a Milwaukee brace~ for a few years, not long enough...young dumb. Doc said I'd be sorry.. ? Never had any pain as a result~ mind over matter? Cannot explain it.? ? Chat room is a good idea, keep us updated! ? Shelly 3 years post injury c6-c7 incomplete quad -Original Message- From: Steve Crowder lt;dangerwo...@san.rr.comgt; To: quad-list@eskimo.com Sent: Sun, Dec 27, 2009 12:50 am Subject: [QUAD-L] Scoliosis ? Hi everybody. Merry Christmas. I was wondering -- thinking about a few things. Does anyone else out there have scoliosis -- curvature of the spine? Because I am SO bent that, combined with my sensation, which is still fully intact, I deal with so much pain I have to do so many things to stimulate straightening my spine, I honestly camera after I calmly before a command year and a okay. You go to sleep so he appears for her chastity a CEO, I looked at him to suffer hungry cool a lot more to you will my current Mac know how it should implement the are you! ? Something I was thinking about doing. Was putting some of you together in one of the chat rooms at my web site and draw in some discussion topics at you, such as pain management, caregiver rates, etc. Is that something some of you might be interested in and would want to get involved in? I would love to know. ? Thanks, Nick Www.SurvivingParalysis.com dangerwo...@san.rr.c
Re: [QUAD-L] Scoliosis
Bobbie, are you incomplete or a complete injury? How many years post and on what level C./4? Do you deal with pain? Mine is through the roof! Look forward to hearing back from you, Nick Www.SurvivingParalysis.com dangerwo...@san.rr.com - Original Message - From: bobbie...@aol.com To: dangerwo...@san.rr.com ; quad-list@eskimo.com Sent: Sunday, December 27, 2009 4:19 PM Subject: Re: [QUAD-L] Scoliosis In a post Does anyone else out there have scoliosis -- curvature of the spine? I do Bobbie Humphreys C-5,6.7 motocross jumping accident in 1973 at 17 Married to Sweet Pete Living in Parsippany, New Jersey
