Re: The Eye Conditions Topic
Re: The Eye Conditions Topic Being born blind is definitely a lucky thing. URL: http://forum.audiogames.net/viewtopic.php?pid=316412#p316412 ___ Audiogames-reflector mailing list Audiogames-reflector@sabahattin-gucukoglu.com https://sabahattin-gucukoglu.com/cgi-bin/mailman/listinfo/audiogames-reflector
Re: The Eye Conditions Topic
Re: The Eye Conditions Topic Reading this topic makes me realize how extremely lucky I am:I was born blind. (Yes, I do consider that as being lucky, though definitely not for the URL: http://forum.audiogames.net/viewtopic.php?pid=316406#p316406 ___ Audiogames-reflector mailing list Audiogames-reflector@sabahattin-gucukoglu.com https://sabahattin-gucukoglu.com/cgi-bin/mailman/listinfo/audiogames-reflector
Re: The Eye Conditions Topic
Re: The Eye Conditions Topic Hello...Just figured I would jump in here. I was born fully sited. When I was around 2 years old, we had a German Shepard going through training or something like that. Apparently I was able to open the front door when nobody was around or looking or something, and the dog either had a litter of puppies that I got too close to, or she jumped up and hit me and my nose was bleeding, or both. Whatever happened, it set her off, and I lost part of my left index finger and had a torn up face. I hear I went through 15 surgeries, 1 of which I had to have a skin graft put over both my eyes. I no longer have a skin graft over my right eye, but I have sinus drainage out of my left as opposed to where ever it normally comes out of, so that 1 stays closed. I'm able to see lights, shadows, and colors. As for the dog, I'd rather not go into that, everyone could probably figure out what happened to her. Contrary to what most of the people who heard about it think, I actually reall y love dogs, especially the big 1s. I don't have a big dog inside the house, but I have a little 1 who I'm fond of just as much. If everyone knows about Chris on the forum, he hated them ever since I told him about my accident, despite never having any direct contact with 1. Also, I've had a past of people giving their opinion on what they think blind people should and shouldn't be allowed to do, which ticks me off just a little bit looking back. I could go into other things I've went through, but I think I'll save that for another time. URL: http://forum.audiogames.net/viewtopic.php?pid=316396#p316396 ___ Audiogames-reflector mailing list Audiogames-reflector@sabahattin-gucukoglu.com https://sabahattin-gucukoglu.com/cgi-bin/mailman/listinfo/audiogames-reflector
Re: The Eye Conditions Topic
Re: The Eye Conditions Topic @Draco since my eye has so much scarring from various mess-ups it is physically impossible to take my pressure accept "digitally" as one particularly nice ophthalmic specialist put it, I.E gently pressing on the closed eyelid with fingers. Apparently I'm now extremely good at taking this manually, while pressure gun or pen simply don't work for me. So we have these hilarious conversationsDoctor: "your pressure is off the scale you need surgery" me: "no it isn't my pressure is mid twenties at most, if it were off the scale I'd be in agony!" Doctor: "but you need surgery!" me: "but every member of my family for the last three generations has had a haemorrhage under surgery so bugger off!" One thing I will say though, is being the son of two nhs parents, my mum a physiotherapist and my dada psychiatric nurse, I actually have a different view of the nhs generally. Indeed, When I was in the states getting married I was rather appauled at some of the conversations and things that happened eg "I don't feel well should I get a checkup? well it costs %100 just to see if I actually have something wrong!" or "I don't like what this last doctor is saying so I'll go to a different one, who recommends a totally different treatment which is impossible to get on my insurance!" Frankly it all seemd a bit nuts to me, and what was even nuttier iswhen I discussed this with people their assumption was that people in either paid taxes as large as insurance premiums, or were forced! to accept whatever a doctor said as lore because doctors were "The Government!" so whatever else you say about the Nhs, I can I much prefer it to the alternative, and in fairness in my case having grown up with two medical parents I feel quite qualified to give Doctors what for if they're being inconvenient . Then again at the moment pretty much it's a case of see someone once a year whereupon I just say everything is fine with my pressure . If I ever want to check if my sight has deteriorated, I just go and play my Snes .@Afrim, that is bloody awful! sorry to hear the state in Albania is so nuts! @Daigonite, I'm afraid I'll leave the technology and access discussion, since it is a little too close to my doctorate and after reading god knows how many academic articles on the nature of disability and writing and rechecking goodness knows how many pages of thesis I want a miner break from the subject, indeed my ultimate conclusion at the moment is that disabled people are quite capable of buggering off and leaving me alone! . This is I'm afraid why I bowed out of the usability discussion thread, that is too much like work to me .On the eugenics question I'm probably the wrong person to ask. My lady physically cannot have children, neither myself nor Mrs. Dark want! children, so the hole subject is marginally academic for us anyway, besides with where the worlds' population is going before you get down to the question of whether parents should have disabled children, a much more relevant question seems to be should parents have children at all given that we're rapidly running out of room on this planet. URL: http://forum.audiogames.net/viewtopic.php?pid=315475#p315475 ___ Audiogames-reflector mailing list Audiogames-reflector@sabahattin-gucukoglu.com https://sabahattin-gucukoglu.com/cgi-bin/mailman/listinfo/audiogames-reflector
Re: The Eye Conditions Topic
Re: The Eye Conditions Topic @Draco since my eye has so much scarring from various mess-ups it is physically impossible to take my pressure accept "digitally" as one particularly nice ophthalmic specialist put it, I.E gently pressing on the closed eyelid with fingers. Apparently I'm now extremely good at taking this manually, while pressure gun or pen simply don't work for me. So we have these hilarious conversationsDoctor: "your pressure is off the scale you need surgery" me: "no it isn't my pressure is mid twenties at most, if it were off the scale I'd be in agony!" Doctor: "but you need surgery!" me: "but every member of my family for the last three generations has had a haemorrhage under surgery so bugger off!" One thing I will say though, is being the son of two nhs parents, my mum a physiotherapist and my dada psychiatric nurse, I actually have a different view of the nhs generally. Indeed, When I was in the states getting married I was rather appauled at some of the conversations and things that happened eg "I don't feel well should I get a checkup? well it costs %100 just to see if I actually have something wrong!" or "I don't like what this last doctor is saying so I'll go to a different one, who recommends a totally different treatment which is impossible to get on my insurance!" Frankly it all seemd a bit nuts to me, and what was even nuttier iswhen I discussed this with people their assumption was that people in either paid taxes as large as insurance premiums, or were forced! to accept whatever a doctor said as lore because doctors were "The Government!" so whatever else you say about the Nhs, I can I much prefer it to the alternative, and in fairness in my case having grown up with two medical parents I feel quite qualified to give Doctors what for if they're being inconvenient . Then again at the moment pretty much it's a case of see someone once a year whereupon I just say everything is fine with my pressure . If I ever want to check if my sight has deteriorated, I just go and play my Snes .@Afrim, that is bloody awful! sorry to hear the state in Albania is so nuts! @Daigonite, I'm afraid I'll leave the technology and access discussion, since it is a little too close to my doctorate and after reading god knows how many academic articles on the nature of disability and writing and rechecking goodness knows how many pages of thesis I want a miner break from the subject, indeed my ultimate conclusion at the moment is that disabled people are quite capable of buggering off and leaving me alone! . This is I'm afraid why I bowed out of the usability discussion thread, that is too much like work to me .On the eugenics question I'm probably the wrong person to ask. mrs. Dark emphatically cannot have children, neither myself nor Mrs. Dark want! children, so the hole subject is marginally academic for us anyway, besides with where the worlds' population is going before you get down to the question of whether parents should have disabled children, a much more relevant question seems to be should parents have children at all given that we're rapidly running out of room on this planet . URL: http://forum.audiogames.net/viewtopic.php?pid=315475#p315475 ___ Audiogames-reflector mailing list Audiogames-reflector@sabahattin-gucukoglu.com https://sabahattin-gucukoglu.com/cgi-bin/mailman/listinfo/audiogames-reflector
Re: The Eye Conditions Topic
Re: The Eye Conditions Topic Yep. But people just outright don't believe it's possible. (The people you meet walking 2 blocks...) What people believe is doable determines what they try/fund. The high costs of Jaws and braille do not help matters, since those are what people are most likely to encounter when investigating the efficiency. URL: http://forum.audiogames.net/viewtopic.php?pid=315431#p315431 ___ Audiogames-reflector mailing list Audiogames-reflector@sabahattin-gucukoglu.com https://sabahattin-gucukoglu.com/cgi-bin/mailman/listinfo/audiogames-reflector
Re: The Eye Conditions Topic
Re: The Eye Conditions Topic It's so silly too because accessibility just seems like such a better option, proper accessibility that is. If it's software and it's designed for common hardware, anyone could theoretically download it. Can't do that with surgery. Plus, you gain the workforce of all the people you were going to have to "cull" and make a whole bunch of mothers a lot less depressed. Just saying people!I think the only way to cure all blindness would be to create some sort of robotic eye anyways, since that's really the only way to overcome the probem entirely. And then you've got rehabilitation to work out. Have fun at least now it's obvious which solution is more viable. URL: http://forum.audiogames.net/viewtopic.php?pid=315425#p315425 ___ Audiogames-reflector mailing list Audiogames-reflector@sabahattin-gucukoglu.com https://sabahattin-gucukoglu.com/cgi-bin/mailman/listinfo/audiogames-reflector
Re: The Eye Conditions Topic
Re: The Eye Conditions Topic It's so silly too because accessibility just seems like such a better option, proper accessibility that is. If it's software and it's designed for common hardware, anyone could theoretically download it. Can't do that with surgery. Plus, you gain the workforce of all the people you were going to have to "cull" and make a whole bunch of mothers a lot less depressed. Just saying people! URL: http://forum.audiogames.net/viewtopic.php?pid=315425#p315425 ___ Audiogames-reflector mailing list Audiogames-reflector@sabahattin-gucukoglu.com https://sabahattin-gucukoglu.com/cgi-bin/mailman/listinfo/audiogames-reflector
Re: The Eye Conditions Topic
Re: The Eye Conditions Topic Yeah, that's a big part of my argument. Wiping out those with hereditary blindness just makes it harder for the rest of us.(That is not to say that I would support keeping, say, Dark's family as blind as possible just for the advantages. That's not my choice to make.) URL: http://forum.audiogames.net/viewtopic.php?pid=315423#p315423 ___ Audiogames-reflector mailing list Audiogames-reflector@sabahattin-gucukoglu.com https://sabahattin-gucukoglu.com/cgi-bin/mailman/listinfo/audiogames-reflector
Re: The Eye Conditions Topic
Re: The Eye Conditions Topic Even if everyone who was blind pledged never to have children, not all blindness is hereditary. So it would be a fruitless jesture. URL: http://forum.audiogames.net/viewtopic.php?pid=315415#p315415 ___ Audiogames-reflector mailing list Audiogames-reflector@sabahattin-gucukoglu.com https://sabahattin-gucukoglu.com/cgi-bin/mailman/listinfo/audiogames-reflector
Re: The Eye Conditions Topic
Re: The Eye Conditions Topic I actually have very little idea what the relevant medical terms to my visual history are. The best I know regarding my left eye is "something something retinal detachment". That was from birth. My right eye started scarring for no apparent reason a couple years later (the description I heard was "sympathy syndrome"). A few surgeries and a weekend with an eye-patch later, my vision was stable at "can play Mario, cannot read standard print even with extra thick glasses".Fast forward 9 years, and I was in Las Vegas for an evening mid roadtrip. I tried looking around while outside—it was near sunset and the start of July—and my eye was suddenly very unhappy and looking at the sky was painful. This got worse rather rapidly—the best metrics I have are from games, since that's mostly all I used any detailed vision for—and within a year or so it was more or less useless. Actually, Orco's description of the last stages ssounds an awful lot like my experience. I can't tell if I have any vision left, or if everything that seems kinda like it is just my brain not realizing it's not getting any meaningful information from my eye. So I'm just going with total at this point. I heard a doctor mention Uveitis, after Vegas, which could have had its impact reduced except that nothing was approved for this at the time other than the aptly named FML, which accomplished a whole lot of nothing at that point.I heard about how back before Eugenics was pushed out of the overton window, there was a push for people with inheritible eye conditions to not have children. While this could theoretically reduce the instances of blindness dramatically, it's incredibly short-sided and absolutist. ... ur, pun not intended. Basically, the point in curing blindness is to reduce suffering and societal costs, and families who have been blind for generations are going to have worked out how to deal with those things better than most. By wiping out blind families, not only are you targeting the least suffering and least costly blind people, but you're destroying repositories of skills and knowledge from which uninherited blind people can benefit. Reducing the total number of blind people in the world is not the same as reducing negative impacts due to blindness. But that's a whole other eqine carcass.Speaking of color and generations of blindness... I was wondering the other day if a civilization composed entirely of blind people would ever discover the moon. Even with the necessary observations and connections being provided, I still got stuck at the concept of color being invented to explain why people can feel the sun but not the moon, since the idea of light would probably be linked to the idea of heat, and the moon being a giant reflector in the sky raises plenty of questions. URL: http://forum.audiogames.net/viewtopic.php?pid=315412#p315412 ___ Audiogames-reflector mailing list Audiogames-reflector@sabahattin-gucukoglu.com https://sabahattin-gucukoglu.com/cgi-bin/mailman/listinfo/audiogames-reflector
Re: The Eye Conditions Topic
Re: The Eye Conditions Topic My philosophy on the subject is basically that people all have functions that they can or cannot do, just like any other "engine" would. An engine is anything that is capable of executing abstract functions, such as performing a task. Blindness affects people's ability to perform a task at the same level as sighted people. So, if that function can be achieved through technology instead, blindness is essentially equivalent to vision in that function. Of course, it's never that simple, but an interesting thing to defend my theory - blind people generally out perform sighted people in low vision enviorments. Blind people exist in a unique "mode" than sighted people, and if they lost their vision early enough, their brains are oriented towards using the same "mental capacity" so to speak to process navigation as opposed to vision. This is another reason why losing vision later on in life is so hard. URL: http://forum.audiogames.net/viewtopic.php?pid=315407#p315407 ___ Audiogames-reflector mailing list Audiogames-reflector@sabahattin-gucukoglu.com https://sabahattin-gucukoglu.com/cgi-bin/mailman/listinfo/audiogames-reflector
Re: The Eye Conditions Topic
Re: The Eye Conditions Topic I actually stumbled across a 20 year old New Scientist piece they did in 1997 on the future of accessible tech for disabled people, based on how things were in 1997, they got Narrator right and screenreaders, they got talking clocks and watches, though they said humorously that it'd be a talking smartphone on your wrist, which...sorta has happened in a way and talking self driving cars within 10 years. They got most of it right.They also stated that, interestingly even as far back as 1997 with Dolly the sheep, that ethical concerns would prevent cloning human cells to repear nerve damage. Bear in mind this was in 1997, and think how that has turned out.As an aside the article also stated there were certain jobs that would never be accessible to blind or partially sighted people, many o which are commonplace now with better tech, chef was one it highlighted with the precision needed and more bizarrely, massage therapist was put forward as one a blind person bck i n 1997 couldn't do.Insanely enough, a blind person in 1997 could appl for an SCCA (Sports Car Club of America) competition license and blindness was not even on the medical testing requirements at that point. Also th e NHRA up until several years ago had a similar idea. I had a friend in Florida that pulled that and got an NHRA drag racing competition license, then did zip on it.Oh and on the subject of that sport, I was listening to a podcast by the fantastically funny Joe Amato who retired in 2000 due to detatched retinas from the G-forces from that sport and he said he thinks there will come aday when a fully blind driver wins in that sport, as it's all about listening and feeling, not visual feedback. Or, as he put it:#If I can go 30 down a quarter mile with my retinas being screewed up each run and there's up to 20 runs in a weekend of racing and 30 weekends a year, then I don't see why a blind man couldn't do the same thing I did. All you gotta do is go fast and go straight and get out of the car in 10 seconds, and listen to your crew chiefNote: His comment was sarcastic, but still his point is valid: That's a guy who won events and titles while having his retinas detatching and his corneas slowly damaged year on year. In other words: He's a badass. Acutally met him a few years ago when I was in New England and he is a decent guy to talk to and discussed drag racing for a few hours . Fun times. Point is: He said, under the rules circa 2015, when I met him...he'd be disable due to his eye damage if he anted to pursue that but he's got millions of bucks in the bank and a long career to look back on. URL: http://forum.audiogames.net/viewtopic.php?pid=315404#p315404 ___ Audiogames-reflector mailing list Audiogames-reflector@sabahattin-gucukoglu.com https://sabahattin-gucukoglu.com/cgi-bin/mailman/listinfo/audiogames-reflector
Re: The Eye Conditions Topic
Re: The Eye Conditions Topic I kind of have this theory that blindness at some point won't be relevant to human communication anymore due to technology, so it might be possible that blindness is never cured, and it may very well be ignored eventually in favor for more scalable technological options. URL: http://forum.audiogames.net/viewtopic.php?pid=315403#p315403 ___ Audiogames-reflector mailing list Audiogames-reflector@sabahattin-gucukoglu.com https://sabahattin-gucukoglu.com/cgi-bin/mailman/listinfo/audiogames-reflector
Re: The Eye Conditions Topic
Re: The Eye Conditions Topic @Dark: Thankfully...I don't remember that actually, but I point blank hate those pressure tests with the air gun. No, THere's a reason they had to put me under to measure my pressure. Honestly, it worked out for the best. That, and it got my then consultant and aneithatist more work...ha.Again I don't fault the NHS, I fault the management and hospital managers for screwing stuff up, on so, so many levels and letting the older, experienced doctors go, and the political machianations that saw my local hospital close, reopen, reclose, get on the national news, reopen againand then get merged with another one and now that's under reviewholy crap, I just want a neat, efficient and safe hospital here, guysAh, student doctors...fun bunch of people. Oddly enough my story about eing shouted back to bed wasa student nurse, who I believe got reprimanded by the ward sister or whatever they call it nowaday in NHS-speak. I just call her the ward sister since it's what I knew them as growing up.Speaking of oculists and Russia, is it me or is that where all the genuinel groundbreaking research is going on?I would love for the Moorfields hospital to actually do its research, but ethical conerns and stuffya, no...but I was told by my then consultant, there's no point having an optic nerve transplant as if it goes bad you'll lose the sight you got remaining. It's a cas of managing what I got left reall. URL: http://forum.audiogames.net/viewtopic.php?pid=315399#p315399 ___ Audiogames-reflector mailing list Audiogames-reflector@sabahattin-gucukoglu.com https://sabahattin-gucukoglu.com/cgi-bin/mailman/listinfo/audiogames-reflector
Re: The Eye Conditions Topic
Re: The Eye Conditions Topic Sorry for the long message, Well, my case is a little bit different; I may not be able to explain it in English, but anyway. I was born not blind, I had full sight in the beginning of my life. In 1997, when I was nearly one and a half year old, I was part of a terrible accident which caused a really awful injury to my mum, I and my brother and father. There was a very problematic situation that year here in Albania, and everything was messy. Schools, universities, public institutions, including hospitals were at an incredibly terrible state. Our country was nearly at war because of the problems caused by the government and criminal bands which were leading our country at that time. Anyway, my family was part of a really bad accident. My mum and I were shot in distance by mistake by two guys who had targeted another person, and we got badly injured. My mum ended in hospital, nearly dead, with less than 2.5 liters of blood remaining in her body, which is 50% of the whole amoun t of blood in a human's body. My condition, however, was nearly the same, even worse; my face was completely devastated and my eyes, particularly the right one had been severely damaged, starting from the nose. The doctors were not sure whether I'd be able to survive or not, since the condition was really serious. After some treatments, and after receiving an amount of blood from my cousin, I managed (thankfully) to survive. The doctors did whatever was possible to improve the conditions of my eyes and they managed to successfully avoid many issues which would accompany me in a long run. Since that time, I've not had any serious problem with my eyes, though I've had occasional visits to my doctor who examined me when I got injured. I went to Russia in 1998, where I visited a professional oculist. He told me there could be done something to return my sight again, but certainly in the future, and the operation would cost a little bit too much. Now, I do not hopeful ly have any complications and it's all going well. URL: http://forum.audiogames.net/viewtopic.php?pid=315396#p315396 ___ Audiogames-reflector mailing list Audiogames-reflector@sabahattin-gucukoglu.com https://sabahattin-gucukoglu.com/cgi-bin/mailman/listinfo/audiogames-reflector
Re: The Eye Conditions Topic
Re: The Eye Conditions Topic "draco it's amusing what you say about being a test case for cryotherapy. At one point I was looking at having a cornial graft, and it was suggested to use cryotherapy at that point. It was deeply unpleasant actually since basically I had a hole conference of student doctors all taking turns to poke me in eyeball with electrodes while I had other electrodes taped to my head in an effort to see if I had enough optic nurve to make the cornial thing workable. The decision was that it would be too much of a risk for my remaining site, which is why I'd not like to mess with it. My mum did have a laser surgery recently for her glorcoma, which both worked in the sense of reducing pressure, and also failed in the sense of actually reducing her vision, and since I personally dont' have that much vision to start with I don't want to mess with things since I'd hate the idea of losing what I have. @Orco, with colours and my lady it isn't just a question of being interested in colour because she wants to wear matching clothes, she actually has a genuine interest in the experience and ideas even though she likely has nothing to match them up with. this is one reason I strongly suspect she is synaesthesic and probably does! experience colour. "Daigonite, there is some interesting things done with human nurve interfaces at the moment, something similar to Jordi laforge from Tng, but whether it will result in anything, or still worse, anything which is actually affordable for most people is another question. URL: http://forum.audiogames.net/viewtopic.php?pid=315395#p315395 ___ Audiogames-reflector mailing list Audiogames-reflector@sabahattin-gucukoglu.com https://sabahattin-gucukoglu.com/cgi-bin/mailman/listinfo/audiogames-reflector
Re: The Eye Conditions Topic
Re: The Eye Conditions Topic Oh I agreee with that, but I have been keeping up with the research in Russia about it, but I'm curious and not hopeful, if I was offered a new optic nerve and an eye replacement 20 years from now I'd consider it long and hard.I do think however that certain doctors need to be more cautious in their diagnoses honestly, as I was initially down for a cataract operation...despite never having had cataracts, somehow I got switched with a cataracts operation, which was fixed beforehand thankfully.I do think though that blindness won't ever be cured, I believe it's part of nature's way of a strong species, sort of making sure the srong of a species survive and don't get too old or too weak really. URL: http://forum.audiogames.net/viewtopic.php?pid=315393#p315393 ___ Audiogames-reflector mailing list Audiogames-reflector@sabahattin-gucukoglu.com https://sabahattin-gucukoglu.com/cgi-bin/mailman/listinfo/audiogames-reflector
Re: The Eye Conditions Topic
Re: The Eye Conditions Topic In all honesty, while I'm not a doctor and I can't speak for them, I don't think that blindness in all of its diverse forms will be cured any time soon and I think that our knowledge as a species about glaucoma, itself a very diverse set of conditions, is just the tip of the iceberg. Managing the pressure may be the only real solution for certain types because we simply don't know how to fix the problem. URL: http://forum.audiogames.net/viewtopic.php?pid=315390#p315390 ___ Audiogames-reflector mailing list Audiogames-reflector@sabahattin-gucukoglu.com https://sabahattin-gucukoglu.com/cgi-bin/mailman/listinfo/audiogames-reflector
Re: The Eye Conditions Topic
Re: The Eye Conditions Topic @12: Indeed, Ive been told by consultants my vision was stable and wouldn't get any worse, then it just dropped off a cliff, each of my consultants I saw just told me oh eat X Y and Z to manage the pressure. Fortunately I actually like most of the foods they suggested, but just managing the pressure, Really. Is that the best they can do? (Admittedly, I did go in for cycolodiode laser thingy surgeryI don't remember the details but I remember looking out my bedroom window and not leaving my bed for a day and hiding in a dark room)Credit where it's due, my local NHS trust haven't put a foot wrongwell, actually, lemme clarify that.The doctors, from the very first consultant who put me into cryotherapy and has often told me I have a claim to fame as either the first or one of the first people in the country to be put into cryotherapy to save my other eye (though I dunno how true that is, I just toss it into conversation), and the past few consu ltants I've had have known their stuffthough the actual management of the hospital, holy crap it's been shoving from pillar to post, sending out appointments then in the same letter telling me oh I have to wait 3 months for one, so I book a vacation and halfway on the road I get a call oh hey, come in tomrrow for a test.Again. I can't fault the doctors, nurses, ph arm acy techs, researchers into glaucomamy issue lies with the middle managers and the way my local hospital is run, That, and the fact they cannot, for love nor money, attract a glaucoma specialist. I had my laser diode whatever it's called surgery done by a specialist who went to anotheer NHS trust and does the name Dr Mr Annand ring any bells, as I've run across his name on papers.He was extremely friendly and professional and reassuring, so credit where it's due to him, but when he ame in specifically to do a weekend surgery the nurses there treated himfrom what I hard, like crap, least, the youger ones. I got up to go to the toilet and I got shouted back to my bed by a nurse in training, it took a doctor who heard me explaining to basically tell the trainee nurse that yes, patients are actually allowed to go to the toilet if they are supervised. Which meant, humorously, II had a doctor outside the bathroom door. I had my brother come in from the States at tha t time to keep watch on me and he asked me, quote; Why do you need to take a piss test, you been on the roids again?(Fun fact: I did, actually, legitimately get given steroid injections. Which made it all the funnier...nurses had no idea what we were laughing about, though admittedly)Okay, Gripe 2 with my nurses, or rather the hospital. My grandmother was a nasty piece of work and made the entire hospital's lives hell, so when I went in, I overheard a ew nurses talking about me behind my back and snidely asking oh hs he related to that horrible old bitch. Exact, freaking. Words. I flagged down a senior nurse and told them. Next thing I heard was a lot of arguing and about professionalism.Also, for some insanely funny reason, I managed to befriend the hospital chaplain and debate religion with him. CoE ordained minister debating religious stuff with me, over toast and a cup of tea...and speaking of, I got a running joke in that hospital from the older nurses that I needed a loyalty card that entitled me to a free plate of toast and a cup of hot tea...I was not happy when they ran out of hot tea nd gave me decaffinated tea. Ew.So...yeah, it's sort of off on a tangent but I wanted o add it to the topic.Also, for the colors thing that I noticed, I'm actually asked a lot by my parents what color would go good on this room, what do you think of this carpet and so forth. I'm frogging blind, what do I care? (Acutally, I care a lot since I can picture what a room looks like, and I can make out light/dark/etc), and I've always argued that you should open a room up more with colors/painting and suchlike, ya know? URL: http://forum.audiogames.net/viewtopic.php?pid=315389#p315389 ___ Audiogames-reflector mailing list Audiogames-reflector@sabahattin-gucukoglu.com https://sabahattin-gucukoglu.com/cgi-bin/mailman/listinfo/audiogames-reflector
Re: The Eye Conditions Topic
Re: The Eye Conditions Topic I'm not blind but recently was diagnosed with migraine aura without headache which causes visual disturbances and a need to hide out in dark places. It apparently runs in the family and nobody told me. My condition gets so severe that exposure to light through my job causes short term and long term effects, which affect my output greatly. I wish I could turn off my eyes sometimes, lol. URL: http://forum.audiogames.net/viewtopic.php?pid=315373#p315373 ___ Audiogames-reflector mailing list Audiogames-reflector@sabahattin-gucukoglu.com https://sabahattin-gucukoglu.com/cgi-bin/mailman/listinfo/audiogames-reflector
Re: The Eye Conditions Topic
Re: The Eye Conditions Topic How ironic. Glaucoma causes more preventable blindness than any other disease, yet there are some forms of glaucoma where blindness can't be prevented.At least I am thankful for the sighted years I had, some people don't even get that much. And I am thankful that I didn't start losing my vision until age 53. URL: http://forum.audiogames.net/viewtopic.php?pid=315366#p315366 ___ Audiogames-reflector mailing list Audiogames-reflector@sabahattin-gucukoglu.com https://sabahattin-gucukoglu.com/cgi-bin/mailman/listinfo/audiogames-reflector
Re: The Eye Conditions Topic
Re: The Eye Conditions Topic I'll dive in here...Severe glaucoma here and ROP (according to my medical records).So, ya, it sucks, I'm turning 29 with barely any sight. Looks like I'll lose a bet with a friend that I'd keep my sight till 30...ack, why couldn't it wait a year...justwhy?Seriously though adjusting to losing my sight is hard and it just shows how easily frustrated with every day things I get. I don't identify as blind for a number of reasons mostly due to how education in my area was when I was in school, Braille was the only method taught, the fully blind kids were pulled out of woodworking class, art class, cooking/home economics class, PSHE (why, no clue) and not allowed to do practical experiments in science classes.Because I had sight I got to do those things but had to have an NTA in the classroom, though admittedly it made for some fun conversations, Dark, you'll remember the failed citizenship classes initiative, I only eve r did a few of those but I was lucky enough to have my NTA be a justice of the peace, and it made or some insanely interesting back and forth between the JP and the teacher.Also made or some fun times in science class when I somehow pulled the gas tube off a Bunsen burner and managed to get the rest of my class to dive fo cover under wooden desks. True story.And last school story for now. I had a group of sighted friends who I convinced to hold on ot each other's wrists, and a metal faucet.Then I too a wrist and put it against a Van de Graff generator. That...was payback to my class for bullying me. Never, ever, ever uck with somebody who knows how electricity worksfrom that moment n, I was avoided like the plague in fear of the fact I'd give them another shock.Somewhat amusingly I never injured myself in sewing classyet one of the girls in my class managed to stich her hand across her palm. Cue the school freaking out that a sighted full y able student would do such a thingand actually making the sewing machines more accessible to make them safer. Same with the drills in wood work class. They were made more useable to make them safer. How's that one work?It's just been frustrating adapting honestly and, I dunno if it's just me but people seemingly don't want to know me since I lost my sight. Oddly nough I got my core group of friends who stick around but...most other people just drift away URL: http://forum.audiogames.net/viewtopic.php?pid=315343#p315343 ___ Audiogames-reflector mailing list Audiogames-reflector@sabahattin-gucukoglu.com https://sabahattin-gucukoglu.com/cgi-bin/mailman/listinfo/audiogames-reflector
Re: The Eye Conditions Topic
Re: The Eye Conditions Topic I never said that they don't care about color. They do, just like sighted people do. For example, unless they want to look like a crazy person or a clown, they need to be aware of what color the clothes they are putting on are so that they can be sure that they go well together.What I said was that if you've never seen color, you can't miss it. Though I'll admit you might regret not having seen it. URL: http://forum.audiogames.net/viewtopic.php?pid=315339#p315339 ___ Audiogames-reflector mailing list Audiogames-reflector@sabahattin-gucukoglu.com https://sabahattin-gucukoglu.com/cgi-bin/mailman/listinfo/audiogames-reflector
Re: The Eye Conditions Topic
Re: The Eye Conditions Topic @orco, actually there are people who are totally blind who have an interest in colour. Mrs. Dark had retinal blastoma at the age of one, so while she probably saw colours in her first year of life she has little memory of them. Yet, she loves rich descriptions of colour in books, wants to know what colour things are and how different colours fit together etc. In fairness I am fairly sure she is synaesthesic as well, she certainly does! have tactile and taste synaesthesia so it wouldn't surprise me if she has colour synaesthesia too, after all I myself have colour, temperature and tactile synaesthesia. URL: http://forum.audiogames.net/viewtopic.php?pid=315304#p315304 ___ Audiogames-reflector mailing list Audiogames-reflector@sabahattin-gucukoglu.com https://sabahattin-gucukoglu.com/cgi-bin/mailman/listinfo/audiogames-reflector
Re: The Eye Conditions Topic
Re: The Eye Conditions Topic @fatihYeah, Things got pretty dark for me during those years when I went from very usable 20/60 vision down to legally blind where they tested my vision with hand motions.I remember thinking that if I had to be blind, that maybe it would have been better if I had stayed blind from birth, instead of loosing my vision later in life after I had gotten used to being able to see.But now, I'm thankful for all those sighted years. I have lots of good memories from them, while I have few, if any, really good memories from after I started losing my vision.But then, since I was declared legally blind only three to four years ago, I consider myself a rank beginner, still wet behind the ears, at being blind. URL: http://forum.audiogames.net/viewtopic.php?pid=315258#p315258 ___ Audiogames-reflector mailing list Audiogames-reflector@sabahattin-gucukoglu.com https://sabahattin-gucukoglu.com/cgi-bin/mailman/listinfo/audiogames-reflector
Re: The Eye Conditions Topic
Re: The Eye Conditions Topic I was born prematurelly and I have premature retinopathy. I don't have sight at all and I am fine with it. If I had sight before and I had lost it I have probably gone crazy for a few months at best. URL: http://forum.audiogames.net/viewtopic.php?pid=315250#p315250 ___ Audiogames-reflector mailing list Audiogames-reflector@sabahattin-gucukoglu.com https://sabahattin-gucukoglu.com/cgi-bin/mailman/listinfo/audiogames-reflector
Re: The Eye Conditions Topic
Re: The Eye Conditions Topic At least I can be thankful I had vision for most of my life so I have my memories. Other than the words, those who have never had vision have no concept of what color is. On the other hand, you can't miss what you've never had either. URL: http://forum.audiogames.net/viewtopic.php?pid=315215#p315215 ___ Audiogames-reflector mailing list Audiogames-reflector@sabahattin-gucukoglu.com https://sabahattin-gucukoglu.com/cgi-bin/mailman/listinfo/audiogames-reflector
Re: The Eye Conditions Topic
Re: The Eye Conditions Topic Lol, I do know I'm lucky with colour, especially being synaesthesic since goodness knows what would happen if I could still experience colour and not see it. that would drive me screwy. URL: http://forum.audiogames.net/viewtopic.php?pid=315210#p315210 ___ Audiogames-reflector mailing list Audiogames-reflector@sabahattin-gucukoglu.com https://sabahattin-gucukoglu.com/cgi-bin/mailman/listinfo/audiogames-reflector
Re: The Eye Conditions Topic
Re: The Eye Conditions Topic When I was diagnosed with glaucoma, the doctor told me that it was common for people who have cateracts at birth to develop glaucoma later in life. He also said that at present with wasn't known whether the glaucoma is a result of having the surgery or whether it would develop regardless.You are fortunate that you can still see color. The only color I see any more is the color of the fog over what little vision I have left generated by my brain. URL: http://forum.audiogames.net/viewtopic.php?pid=315193#p315193 ___ Audiogames-reflector mailing list Audiogames-reflector@sabahattin-gucukoglu.com https://sabahattin-gucukoglu.com/cgi-bin/mailman/listinfo/audiogames-reflector
Re: The Eye Conditions Topic
Re: The Eye Conditions Topic Glaucoma and cateracts? Hay Orko, snap .My family have congenital glaucoma and Cateracts, which while supposedly a 1-4 chance affected both my grandma, mum and now my brother and I. In my brother's case the congenital cateracts were removed at birth and he has since had partial sight, able to use a screen magnifier and read normal print with a heavy magnification, though he does suffer severe photosensitivity. Unfortunately, I wasn't quite so lucky. I was born prematurely and an to remove cateracts and insert artificial lenses went rather wrong (it had never been tried on a prem baby before), and resulted in my eyes being severely damaged through oxygen deficiency. I was left with light, dark colour, and while I learned braille I could conceivably have used a magnifier, though only at a large magnification size. Wh en I was 7 however, an operation to reduce the pressure caused a massive expulsive haemorrhage in my right eye so I lost all of my vision in that eye.these days I am not sure how much vision I actually have, not very much, but enough for light dark and colour, though certainly not enough to read print. I am on a bunch of eye drops to keep my pressurestable which have worked up to now, plus occasional extra Diuretic if I ever feel my pressure is increasing, which usually comes with pain and headaches.The one thing I can say though, is I was glad I was born in the eighties since had I not been I probably would never have gotten into gaming. Roughly speaking the more complex the game and it's viewpoint, the harder for me to play. I could never read in game text, but I could use text highlighting to make guesses at menus. This meant while rpgs were always out, I had a lot of fun with 16 bit era games from beatemups, to puzzle games to my particular love, e xploration platformers like the mega man, Metroid and Turrican series. When things went 3d in the 32 bit era, everything pretty much went down the tubes for me. I could still play beatemups, but that was it, indeed I first came across audiogames since I was running out of stuff in the mainstream I could play. Btw, yes I know there are many totally blind people who play by sound, memorization and guesswork, but that just isn't an adequate experience for me, since I do want to for example know where my character is and what is around me. I'll also say that on the topic of sleep I'm not exactly great either, and my wife (who is totally blind has it even worse). URL: http://forum.audiogames.net/viewtopic.php?pid=315191#p315191 ___ Audiogames-reflector mailing list Audiogames-reflector@sabahattin-gucukoglu.com https://sabahattin-gucukoglu.com/cgi-bin/mailman/listinfo/audiogames-reflector
Re: The Eye Conditions Topic
Re: The Eye Conditions Topic I was born with cateracts, which wasn't discovered until I was a year old. Since your sense of vision isn't fully developed at birth, it's very important that any problems be addressed as soon as possible to allow vision to develop normally. By the time they discovered my cateracts, it was too late.They could still remove the cateracts and I'd be able to see but my vision would never be able to develop fully, so to get 20/60 vision I had to wear very thick bifocals. If you don't know, 20/60 vision means that I could only see about one third of the detail people with normal 20/20 vision see. So while I could still do most things like ride a bike or read mainstream books and newspapers, my vision wasn't good enough to allow me to drive.Then when I was about 16 the vision in my left eye started looking like I was looking through water. My eye doctor said he couldn't see anything wrong so my dad stopped looking into it further and event ually the left eye went completely dark. Later when I was visiting my mom , she took me to an eye doctor near where she lived and he refered us to a retina specialist where I found out my left eye had suffered a complete retina detachment and that it was too old to attempt reattaching it. My dad was so mad at my eye doctor that when we visited him after I returned from my mom's place with news about what happened to the left eye, he told me to wait in the waiting room and went in to see the doctor by himself. When he came out he had a look on his face that scared me. We never went back to that doctor for my yearly eye exams.I suspect that if suing your doctor had been a thing back then, he would have probably sued him right out of business.For the next 20 or so years, my vision was stable and changed very little, then I was diagnosed with severe glaucoma. At that time eyedrops were all that was needed to keep it under control.Ten or so more years later and the eye drops were no longer keeping my glaucoma under control, and I started noticing the effect it was having on my vision. Not the narrowing of the field of view they are always describing how glaucoma effects your vision but a slowly growing fog over my entire field of view and sensitivity to bright light.Since I'd had eye surgery before for my cateracts I wasn't a candidate for a laser procedure that was available for glaucoma so I opted to have a shunt put in. At first it was working and keeping my eye pressures down but then the shunt started working through the layers of the sclera, the white of the eye, and backing out of the eye and leaving the eye open to infection so they had to remove it so they could reclose the eye.Through all of this my vision never stopped deteriorating. I am now at the point where the only thing I can just barely make out are sources of light, or things with a high contrast to their backgrounds but only as an are a that's slightly lighter or darker. I haven't been able to see enough detail to get by with a magnifier since late 2013. That's when I bought JAWS 15.I will eventually go completely blind, probably within the next two years. URL: http://forum.audiogames.net/viewtopic.php?pid=315180#p315180 ___ Audiogames-reflector mailing list Audiogames-reflector@sabahattin-gucukoglu.com https://sabahattin-gucukoglu.com/cgi-bin/mailman/listinfo/audiogames-reflector
The Eye Conditions Topic
The Eye Conditions Topic Hey audiogamers:I wrote this topic to assess the variety of optical conditions we all have as a community, and to share stories about said conditions.To start, I have bilateral Optic Nerve Hypoplasia, (ONH) a condition whereby the optic nerves are underdeveloped. with this, in my particular case, (and there are many different cases within this spectrum), I have a 20 degree field restriction, and am left with only light, color and motion perception in my right eye, and almost nothing in my left eye. along with this comes septo-optic displasia, a condition which includes hypopituitarism and absent septum pellucidum, as well as other midline structures of the brain being missing, mostly controlling hormone development, and the most important to me, sleep.non24 is a risk for anyone with a visual impairment, however it is very prevalent in people with ONH, as in some cases, notably, of course, Mine, your hormone control is underdeveloped. For instanc e, I just stayed up for 2 straight days, not out of any desire to do so, but out of an inability to do otherwise. before that I was sleeping during most of the day and being awake for the whole night.So, what various Eye quirks, or as the sighted say, Disabilities, do you guys have? URL: http://forum.audiogames.net/viewtopic.php?pid=315166#p315166 ___ Audiogames-reflector mailing list Audiogames-reflector@sabahattin-gucukoglu.com https://sabahattin-gucukoglu.com/cgi-bin/mailman/listinfo/audiogames-reflector
