Re: [CMLHope] Hi group

2010-06-29 Thread ICANDOALLTTC
Hi Greenie and sorry for your problems. If you know my story you know that Gleevec quit working for me after 5 years. I started taking Tasigna and it only worked for 8 months and I am now on Sprycel, the last drug out there for CML. Don't worry, you can get help for the other drugs if you

[CMLHope] Re: Hi group

2010-06-29 Thread Suzieq
Sorry Greenie to hear this.but, you are right about some of these doctors that act like they do not care. Even after being on Gleevec since Feb. 2004, I still have a few showing up each time. My doctor told me that that was just the way it seems to be with me each time. Only twice have my

Bryan Fowler Re: [CMLHope] Digest for cmlhope@googlegroups.com - 1 Message in 1 Topic

2010-06-29 Thread lblaine767
Who are you and why are you in this group? If you are not suppose to be getting messages from the CML group, please let Rob know and he will remove you. This is for those of us that have Leukemia! It is for encouragement and advise, not bad language and negativity! - Original Message -

[CMLHope] Doctors' attitudes

2010-06-29 Thread Victoria Reiter
It is essential that one find a doctor with the proper attitude who not only pays attention to your condition and your labwork but, very importantly, to your concerns. If your doctor won't listen to you closely, or is too busy and blows you off, it is extremely important to find another doctor.

[CMLHope] Re: Hi group

2010-06-29 Thread sheila
Hi Greenie, We talked through e-mail a few years back I am from DeMotte, IN and was diagnosed coming up in August 5 years ago. I used to drive all the way to Mayo Clinic until a couple years ago Zavie had mentioned Dr. Talpz at the University of Michigan, he is now my doctor and is absolutely

Re: [CMLHope] Doctors' attitudes

2010-06-29 Thread Mustardny
I've had the same onc. since I was diagnosed in May 2005 he's been a God's send to me. As a matter of fact I trust everybody in my doctor's group to take care of my needs. If anybody in CML Hope group is located in Central New Jersey is looking for a doctor Dr. Stephen Young is

Re: [CMLHope] Doctors' attitudes

2010-06-29 Thread C.M. Houtz
I've had the same onc. since 1993, and he is absolutely wonderful. I sometimes feel as if I'm his only patient, although I know that I'm not. He never rushes me and explains anything to me. He also is in contact with my other doctors and sends them reports after every visit. I am so lucky

Re: [CMLHope] Hi group

2010-06-29 Thread Myvety2k
Thanks Jeanie. In a message dated 6/29/2010 7:37:09 A.M. Central Daylight Time, icandoall...@aol.com writes: Hi Greenie and sorry for your problems. If you know my story you know that Gleevec quit working for me after 5 years. I started taking Tasigna and it only worked for 8 months

Re: [CMLHope] Re: Hi group

2010-06-29 Thread Myvety2k
Thanks for your reply Suziq In a message dated 6/29/2010 9:11:07 A.M. Central Daylight Time, sheila.a.wat...@gmail.com writes: Sorry Greenie to hear this.but, you are right about some of these doctors that act like they do not care. Even after being on Gleevec since Feb. 2004, I

Re: [CMLHope] Doctors' attitudes

2010-06-29 Thread Myvety2k
Hi Vivi, I agree. I've been in a study with Novartis going back to Feb 5th, 2000. The Doctor that was in charge left a month ago and moved to New York. Next meeting with this Doctor that I have now if all does not go well I will ask for a change. I'm at Northwestern in Chicago. Greenie

Re: [CMLHope] Re: Hi group

2010-06-29 Thread Myvety2k
Hi Sheila, I remember the name. How could I forget, my X-wife's name is Sheila. I have to stay with Northwestern because they are supplying me with the drug for free. BUT, if things change I would like to have their phone number. Thanks, Greenie In a message dated 6/29/2010 10:19:32