Re: [CMLHope] Skip Duffie to beth and all Sprycel and new drug

2013-07-03 Thread Skip Duffie
  .Hello all thanks for including me in your email.  I was on sprycel and after while I had to have my chest drained. over a two month period I had to have 8.5 lts of fluid removed.  So they had to take me off sprycel. I understand a lot of people who are on

Re: [CMLHope] Skip Duffie to beth and all Sprycel and new drug

2013-07-03 Thread ICANDOALLTTC
Thanks Skip for the update. You are truly a CML Warrior! Blessings Jeanie3 In a message dated 7/3/2013 9:29:30 A.M. Eastern Daylight Time, skipd_2...@yahoo.com writes: .Hello all thanks for including me in your email. I was on sprycel and after while I had to have my chest

Re: [CMLHope] Millie Bright Morning star

2013-07-03 Thread ICANDOALLTTC
Thanks Marty, Have a great one today! I'm good. Jeanie3 In a message dated 7/2/2013 11:50:47 P.M. Eastern Daylight Time, wa2...@gmail.com writes: Hi Jeanie, Couldn't have said it better myself. Happy July 4th 18's Marty On Tue, Jul 2, 2013 at 8:30 AM, _ICANDOALLTTC@aol.com_

[CMLHope] An update on the pain

2013-07-03 Thread Suzieq
I saw the Pain Management Doctor last Friday, he suggested doing one of the Epidural Injections into the L-5 which he said is worse than the 3 4 which are also bulging/protruding. I was very nervous, but he was in and out within 5 minutes and there was some pain, but not as bad as I

Re: [CMLHope] Skip Duffie to beth and all Sprycel and new drug

2013-07-03 Thread ICANDOALLTTC
Hi Beth and thanks for the update. I do suffer from ongoing right side pain but don't know what it is. I thought the group might like this to understand your cpks CPK isoenzymes testEmail this page to a friendShare on facebookShare on twitterBookmark SharePrinter-friendly version The

[CMLHope] achieving major molecular response interesting note

2013-07-03 Thread ICANDOALLTTC
This is interesting With BCR-ABL inhibitors, outcomes that were once out of reach are now everyday possibilities for people with Ph+ CML. And with IS PCR (International Scale polymerase chain reaction) testing, we can set meaningful, attainable treatment goals for which to strive, and ensure

Re: [CMLHope] The Keeper

2013-07-03 Thread ICANDOALLTTC
Great story and so true. My hubby died from heart disease complicated by diabetes. I was always there for him and wished he could be here for me. Some things just aren't meant to be, and thank heavens if this CML hasn't taught us anything else, it has taught us to treasure what we have

[CMLHope] Hi Marty

2013-07-03 Thread C.M. Houtz
Hi MartyWhat do you think of this warm humid weather in PA. Not a lot different then in Florida these days. I know that you're having some issues with your health and I'm hoping that they are ones that you can deal with. You have had so much over the past years and it seems like we can't

Re: [CMLHope] Hi Marty

2013-07-03 Thread Marty Gartenberg
Dear Millie, I wish you good luck with your upcoming tests. Funny you should mention Monday, Wednesday and Friday. Those are my dialysis days. You and I and just about everyone here simply has to do whatever we all need to do. Stay alive but also try to live our lives as best we can. It sounds

Re: [CMLHope] Skip Duffie to beth and all Sprycel and new drug

2013-07-03 Thread Marty Gartenberg
Skip, your like the rock of Gibralter! 18's Marty On Wed, Jul 3, 2013 at 9:29 AM, Skip Duffie skipd_2...@yahoo.com wrote: *.Hello all * *thanks for including me in your email. I was on sprycel and after while I had to have my chest drained.* ** *over a two month period I had to