Re: [CMLHope]

2013-07-19 Thread Marty Gartenberg
Hi Richard, Well to be honest with you I must have been cut from the same mold that you were. However, there is one big difference. I am on dialysis and my energy level is next to nothing after my treatments and for the next day afterward then it's back again to another dialysis treatment and so

Re: [CMLHope] Re: Hi

2013-07-19 Thread Marty Gartenberg
Hi Millie, You want to know something? No matter what you are and have been going through your still here and kicking. You Millie are just like that pink ever-ready bunny. You just keep going and going. You ended your last statement with *That's what we all do, so nothing new..!* * *

[CMLHope] A good story....

2013-07-19 Thread ANGELYN ESDERS
 http://play.simpletruths.com/movie/the-empty-pickle-jar/store/   -- -- [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Google Groups CMLHope group. To post to this group, send email

Re: [CMLHope] Re: Hi

2013-07-19 Thread Susan Zimmerman
Hello all, Thanks so much for the inspiration, Millie, Marty, Richard and Beth! You guys are fantastic and I am suddenly most aware of your help and encouragement. Marcie has also helped amazingly with that! During the six years while not on gleevec against my doc's orders, I skipped over

Re: [CMLHope] Re: Hi

2013-07-19 Thread bkbarney
Dear Susan, So sorry you are struggling. But I am so glad you are listening to the warning sides of your body and paying attention. So often people override their own knowing or their doctors won't listen...You stay strong and be a good advocate for yourself. I am on sprycel at a lower dose

Re: [CMLHope]

2013-07-19 Thread bkbarney
Beautiful story MartyI will remember it...the screws storyand pass it on...thanks for sharingand Richard, you can do it...I am going to take a walk...and I will think of you out there walking along side of me..you an do it, a little bit at a timeme too...Beth

Re: [CMLHope] Re: Hi

2013-07-19 Thread Susan Zimmerman
Thanks so much, Beth!!! I'm getting on the phone this afternoon come hell or high water! Somebody that holds great weight with me told me to get off my a__ and get moving toward a specialist, so I guess I'll do it! 18's Susan -Original Message- From: bkbarney bkbar...@aol.com

Re: [CMLHope]

2013-07-19 Thread Susan Zimmerman
Dear Millie and Beth, Somehow I missed this e-mail to me, Millie...! God bless you, now I feel silly about having reiterated all my small problems to you guys with great big ones. Each man's challenges are only what he can bear. I have written to Dr. Pinilla and I'm confident he will write

Re: [CMLHope] Photos

2013-07-19 Thread Susan Zimmerman
Dear Skip, You are amazing and inspiring and certainly anything but boring! Your real struggles are truly so very serious. Thanks for being such an inspiration to us, both NOW AND IN THE PAST. I will be praying for you as well. 18's, Susan F. Zimmerman Look among the nations and watch;

Re: [CMLHope]

2013-07-19 Thread Richard H
My ONC doesn't speak about log reductions. My reports show a percentage and has an area that graphs a 2 year history by percentage. My testing has only occured at 2 different labs in the 10 years and I have been told that I was in a blast phase. I am off Gleevec because it was destroying my

Re: [CMLHope] Re: Hi

2013-07-19 Thread Richard H
You are spot on about having the right specialist. I am very fortunate to have an ONC that is a specialist in CML and he has at least one other CML specialist in rhe same group to concult with. Last year the total group became part of the latest desinated National Cancer Centers. Richard H..

Re: [CMLHope]

2013-07-19 Thread Richard H
On Monday, July 15, 2013 7:36:53 AM UTC-5, Peter wrote: Hi Richard. Wow, five years off Gleevec - that's wonderful! What confuses me though, is this: My doc freaks out when I drop below a 3-log reduction, which, as I understand it, is equal to 0.1%, yet your doc does not get worried