Re: [CMLHope] Digest for cmlhope@googlegroups.com - 7 updates in 3 topics

2017-09-03 Thread NICK WOODS
Nick is at 14 years on Gleevec.  He's doing well.  We celebrated our 57th Anniversary this year.  Just thank God for each day together.  We appreciate all the updates and news from others with CML.Elizabeth   On Sunday, September 3, 2017 5:10 AM, "cmlhope@googlegroups.com" wrote: |

Re: [CMLHope] 3 months off Gleevec

2017-09-03 Thread Marty Gartenberg
I will Skype you when i can I was up in PA and fell and fractured my knee and my tibia and in a wheelchair now and back in Florida Marty On Sun, Sep 3, 2017 at 1:41 PM, Tony Lanoue wrote: > Thx Marty! Give me a shout sometime via Skype, it's been a while! > > Sent from my iPhone > > On Sep 3, 2

Re: [CMLHope] 3 months off Gleevec

2017-09-03 Thread Tony Lanoue
Thx Marty! Give me a shout sometime via Skype, it's been a while! Sent from my iPhone On Sep 3, 2017, at 11:38 AM, 'Susan Rosenthal' via CMLHope mailto:cmlhope@googlegroups.com>> wrote: Tony: This Oct. 2, 2017, I will have been off Gleevec for two years. So far, I've remained undetectable-had

Re: [CMLHope] 3 months off Gleevec

2017-09-03 Thread Tony Lanoue
That's great Susan, maybe I gave up too soon! That's good to know when I try going off Sprycel if my numbers come up a little bit I will try to ride it out and see if they start coming back down, thanks so much for the info! Sent from my iPhone On Sep 3, 2017, at 11:38 AM, 'Susan Rosenthal' via

Re: [CMLHope] 3 months off Gleevec

2017-09-03 Thread 'Susan Rosenthal' via CMLHope
Tony: This Oct. 2, 2017, I will have been off Gleevec for two years. So far, I've remained undetectable-had on blip February 2015, but Dr. Druker assured me that happens about 4 months out and that the next month would show undetectable again. Been undetectable since just like he said😀 Had my

Re: [CMLHope] 3 months off Gleevec

2017-09-03 Thread Marty Gartenberg
You know what Tony, i have known you for a long time and the one thing that always impress me is that your always on top of things and being so is that your mind will treat your body in a very helpful way. No question about that. You'll see. 18's, Marty PS still recovering from a fractured knee

Re: [CMLHope] 3 months off Gleevec

2017-09-03 Thread Pete Pabon
Every two months From: 'Jeanie' via CMLHope Sent: Sunday, September 3, 2017 8:07 AM To: cmlhope@googlegroups.com Subject: Re: [CMLHope] 3 months off Gleevec How often are u getting tested. Thanks. My Motto: Faith and Pills With Love 🐠18's Dx 1/2004 CML Leukemi

Re: [CMLHope] Re: 3 months off Gleevec

2017-09-03 Thread 'Jeanie' via CMLHope
Every time I've tried to go off I go out of remission so I'm cutting down some and see what happens. Blood is good. Gonna check bcr if it's online yet. Moffitt has a patient portal online. All your records are there. Blessing My Motto: Faith and Pills With Love 🐠18's Dx 1/2004 CML Leukemia St

Re: [CMLHope] 3 months off Gleevec

2017-09-03 Thread 'Jeanie' via CMLHope
How often are u getting tested. Thanks. My Motto: Faith and Pills With Love 🐠18's Dx 1/2004 CML Leukemia Started Gleevec 2/2004 Started Tasigna 9/2009 Started Sprycel 11/2009 Started Ponatinib 1/2015 Doctor Balducci Moffitt Cancer Center > On Sep 2, 2017, at 3:58 PM, nycotb176 wrote: > > Goi

Re: [CMLHope] Words OF WISDOM.

2017-09-03 Thread 'Jeanie' via CMLHope
Very touching. Love ya! My Motto: Faith and Pills With Love 🐠18's Dx 1/2004 CML Leukemia Started Gleevec 2/2004 Started Tasigna 9/2009 Started Sprycel 11/2009 Started Ponatinib 1/2015 Doctor Balducci Moffitt Cancer Center > On Sep 2, 2017, at 8:34 PM, Marty Gartenberg wrote: > > > Every once