Nick is at 14 years on Gleevec. He's doing well. We celebrated our 57th
Anniversary this year. Just thank God for each day together. We appreciate
all the updates and news from others with CML.Elizabeth
On Sunday, September 3, 2017 5:10 AM, "cmlhope@googlegroups.com"
wrote:
|
I will Skype you when i can
I was up in PA and fell and fractured my knee and my tibia and in a
wheelchair now and back in Florida
Marty
On Sun, Sep 3, 2017 at 1:41 PM, Tony Lanoue wrote:
> Thx Marty! Give me a shout sometime via Skype, it's been a while!
>
> Sent from my iPhone
>
> On Sep 3, 2
Thx Marty! Give me a shout sometime via Skype, it's been a while!
Sent from my iPhone
On Sep 3, 2017, at 11:38 AM, 'Susan Rosenthal' via CMLHope
mailto:cmlhope@googlegroups.com>> wrote:
Tony:
This Oct. 2, 2017, I will have been off Gleevec for two years.
So far, I've remained undetectable-had
That's great Susan, maybe I gave up too soon! That's good to know when I try
going off Sprycel if my numbers come up a little bit I will try to ride it out
and see if they start coming back down, thanks so much for the info!
Sent from my iPhone
On Sep 3, 2017, at 11:38 AM, 'Susan Rosenthal' via
Tony:
This Oct. 2, 2017, I will have been off Gleevec for two years.
So far, I've remained undetectable-had on blip February 2015, but Dr. Druker
assured me that happens about 4 months out and that the next month would show
undetectable again. Been undetectable since just like he said😀
Had my
You know what Tony, i have known you for a long time and the one thing that
always impress me is that your always on top of things and being so is that
your mind will treat your body in a very helpful way.
No question about that. You'll see.
18's,
Marty
PS still recovering from a fractured knee
Every two months
From: 'Jeanie' via CMLHope
Sent: Sunday, September 3, 2017 8:07 AM
To: cmlhope@googlegroups.com
Subject: Re: [CMLHope] 3 months off Gleevec
How often are u getting tested. Thanks.
My Motto:
Faith and Pills
With Love
🐠18's
Dx 1/2004 CML Leukemi
Every time I've tried to go off I go out of remission so I'm cutting down some
and see what happens. Blood is good. Gonna check bcr if it's online yet.
Moffitt has a patient portal online. All your records are there. Blessing
My Motto:
Faith and Pills
With Love
🐠18's
Dx 1/2004 CML Leukemia
St
How often are u getting tested. Thanks.
My Motto:
Faith and Pills
With Love
🐠18's
Dx 1/2004 CML Leukemia
Started Gleevec 2/2004
Started Tasigna 9/2009
Started Sprycel 11/2009
Started Ponatinib 1/2015
Doctor Balducci Moffitt Cancer Center
> On Sep 2, 2017, at 3:58 PM, nycotb176 wrote:
>
> Goi
Very touching. Love ya!
My Motto:
Faith and Pills
With Love
🐠18's
Dx 1/2004 CML Leukemia
Started Gleevec 2/2004
Started Tasigna 9/2009
Started Sprycel 11/2009
Started Ponatinib 1/2015
Doctor Balducci Moffitt Cancer Center
> On Sep 2, 2017, at 8:34 PM, Marty Gartenberg wrote:
>
>
> Every once
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