Re: [CMLHope] 3 months off Gleevec

Tony: This Oct. 2, 2017, I will have been off Gleevec for two years. So far, I've remained undetectable-had on blip February 2015, but Dr. Druker assured me that happens about 4 months out and that the next month would show undetectable again. Been undetectable since just like he said Had

Re: [CMLHope] Gleevec

Contact Dr. Druker in Portland, Oregon. Hugs, Susan Rosenthal > On Aug 8, 2017, at 6:57 AM, Ken Roberson wrote: > > Good morning everyone, > I just discovered that this site is still active. > I have been on Gleevec for 17 years with good results, but have had >

Re: [CMLHope] New Facebook Group - ZAVIE - CML ZERO CLUB MEMBERS - WHERE ARE YOU

Marty: My hat was personally given to me by Zavie and Ida as well/ My number was 584 Hugs, Susan > On Jul 19, 2017, at 10:45 AM, Marty Gartenberg wrote: > > Hi Tony, I do have a list of the numbers and names but I am not here in my > home in Florida because I am currently

Re: [CMLHope] Digest for cml...@googlegroups.com - 1 update in 1 topic

I am one of those 50% people not on Gleevec. I was on Gleevec for almost 13 years. I go out to Portland, Oregon, and see Dr. Druker all the way from Miami. I've been off Gleevec now since October 2, 2015. I've remained undetectable so far. Hugs, Susan Rosenthal Have a wonderful day > On

Re: [CMLHope] Zavies list and cramps

Be careful with tonic water if your hemoglobin is low. It is possible to have it go lower. Hugs, Susan Rosenthal Have a wonderful day > On Oct 18, 2016, at 9:17 AM, bvision wrote: > > Please add me to the Z's list too. Gleevec from 2003-2008, Tasigna > 2008-present.

[CMLHope] How Am I Doing?

Jeanie and others: I am doing great...I hope I just sent in my 10 month (since October 2, 2015) TKI-free 6 week PCR test. My fingers are crossed. When we don’t hear from Marty, we know that something is going on. Hugs, Susan Rosenthal -- -- [CMLHope] A support group of

[CMLHope] To Susan Zimmerman

Susan: Are you able to have an appointment with Dr. Druker in Portland, Oregon? At least email him Hugs, Susan Rosenthal Have a wonderful day -- -- [CMLHope] A support group of http://cmlhope.com - You received this message because you are

Re: [CMLHope] Digest for cmlhope@googlegroups.com - 1 update in 1 topic

Victoria: Dr. Brian Druker just told me about a month ago that if your hemoglobin and white blood cells are in the good range, it is okay to consider taking the shingles vaccine. There seems to be a lot of controversy out there on this topic. Make sure that the information you are receiving

[CMLHope] Jeanie

THIS IS ABSOLUTELY WONDERFUL news to hear! Hugs, Susan Rosenthal Miami, FL -- -- [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Google Groups CMLHope group. To post to this group,

Re: [CMLHope] Digest for cmlhope@googlegroups.com - 7 updates in 2 topics

Richard: Awesome news! Please make sure that you're monitored every three months. I've been on 250 mg since 2008...monitored PCR and PK testing every three months by Dr. Druker. I'm visiting with him in July. I think he will further reduce me to 200mg since I'm still have eye bleeds, eye

[CMLHope] Dr. Druker and Marty

Susan: I do not remember meeting you or Sharon. However, I was chosen by the LLS to introduce him…I thought that was a real honor. He is as awesome as you saw him as he is a doctor. Every having CML does indeed have their own story to tell, that is for sure. Hugs, Susan