Since it's been close to two and half years now since that first visit to 
the doctor who did the cbc test and called me at home that night and scared 
the living day lights out of me by saying something was terribly wrong 
because my white cell count was off the page and they were going to have to 
send it out to another lab to count it as they didn't have the resources at 
their small lab to do it,  I am not quiet sure what the actual count was 
when it came back a few days later and he once again called me at home 
telling me that the cat scan showed a very enlarged spleen and he was 
sending me back to my regular doctor because he was just a general surgeon 
and could not treat me. (really all he did was scare me half to death).  My 
regular doctor thought I had diversticulitis in the beginning and treated me 
with anti-biotics for that but two weeks later he could still feel the 
swelling in my lower left side (spleen, but he didn't know it) and he sent 
me to this general surgeon doctor for a second opinion who felt around on me 
and set up all the tests.  It was quiet a harrowing experience to say the 
least.  Anyway, within four days of that first visit with the dr. who called 
me at home, I was at my first hemo/oncologist and he is the one who told me 
they had to get the counts down as I was in stroke range.  I am pretty sure 
like Doug's, mine were over the 200,000 range.  But I quickly responded to 
the Hydroxyurea.  As far as the bmb and other blood tests done while I was 
waiting.........I forgot to mention that that lab messed up two different 
tests and lost one causing me to have to go through retesting.  That is when 
my husband decided to work it where he could get me in to the Sitemen Cancer 
Center in St. Louis. I loved the first doctor I saw there.  He told us that 
where the other oncologist saw maybe one or two patients a week with CML, he 
probably saw a hundred a day.  I felt so very much better knowing that.  
Plus,  I've never had a problem with any of the blood testings or with how 
they do their BMB as they have a set up where you are in and out in probably 
fortyfive minutes and they are virtually pain free.  (Yippee for me).   So,  
all of those problems with the first lab could be the reason for why it took 
me at least three weeks before getting results showing PH+.

Now, people,  I have a new delimma (sp.?).  I just found out that I have 
been shifted to now another new doctor within my group. This will be my 
fourth at this facility since beginning there in March of 2004.  This is a 
woman and her name is Dr. Amanda Cashen.  Does anyone know of her and is 
there any way I can check up on her before going.  I go for my next app. 
July 10th and I am to have a BMB that day as well. Thanks for any 
information that you all give,  it really does help so very much.  I agree 
with the person who said that we had to "take control" of the CML and not 
let it control us.

Keep Looking up,

Suzieq

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