Hi Michele,
Always look at the bottom of a site and see what its says about privacy.
It is usually written at the very bottom of a site. If is doubt, you can
always ask their permission.
Good luck,
Jeanie<3
In a message dated 9/5/2012 12:09:53 P.M. Eastern Daylight Time,
ballroom...@gma
My Onc doesn't even bring them in the office to discuss them. I have to
ask home for a copy and he does give me one but I would like for him to go
over them.
If they are good, that is all he cares about.
Jeanie<3
In a message dated 9/5/2012 12:06:25 A.M. Eastern Daylight Time,
richard1
m: LearnToBallroomDanceOnline.com
> To: cmlhope
> Sent: Thu, Sep 6, 2012 8:54 pm
> Subject: Re: [CMLHope] Re: [cml 2] Fw: Neutropenia - How To Avoid
> Infections
>
> Wow, Susanthat is crazy!
> How are you doing?
> Michele
>
> On Thu, Sep 6, 2012 at 2:43 PM, Susan
Susan F. Zimmerman
-Original Message-
From: LearnToBallroomDanceOnline.com
To: cmlhope
Sent: Thu, Sep 6, 2012 8:54 pm
Subject: Re: [CMLHope] Re: [cml 2] Fw: Neutropenia - How To Avoid Infections
Wow, Susanthat is crazy!
How are you doing?
Michele
On Thu, Sep 6, 2012 at 2:43
I always read your posts, I read them if they are
> tagged on to others... I am happy to hear how you are...keep on "dancing"
> as Tom said. Beth
>
>
>
> -Original Message-
> From: TEDBDD
> To: cmlhope
> Sent: Thu, Sep 6, 2012 12:50 pm
> Subject: Re
ry day is a gift.
>
> Blessings,
> Susan F. Zimmerman
>
>
> -Original Message-
> From: LearnToBallroomDanceOnline.com
> To: cmlhope
> Sent: Thu, Sep 6, 2012 11:59 am
> Subject: Re: [CMLHope] Re: [cml 2] Fw: Neutropenia - How To Avoid
> Infections
>
: cmlhope
Sent: Thu, Sep 6, 2012 11:59 am
Subject: Re: [CMLHope] Re: [cml 2] Fw: Neutropenia - How To Avoid Infections
Just curious; Does ANYONE see my messages? regardless of the content I never
see a reply.
I know that a lot of you seem to "know" each other as I read YOUR content, but
Michelle, we see you, I always read your posts, I read them if they are
tagged on to others... I am happy to hear how you are...keep on
"dancing" as Tom said. Beth
-Original Message-
From: TEDBDD
To: cmlhope
Sent: Thu, Sep 6, 2012 12:50 pm
Subject: Re: [CMLHope] Re:
Hi Michele,
I've seen your posts, and didn't answer as I had no information on what you
were asking. I'm so sorry that you haven't been getting any thing from the
site. There are a lot of wonderful people here and I know that they're always
glad to help when they can. The correspondence vari
Michelle.we hear you...I know you are a Sprycel user like me and that
you are "dancing your way through" your CML journey. We are glad to have
your company on the ride we share. Tom
In a message dated 9/6/2012 1:11:50 P.M. Eastern Daylight Time,
myvet...@aol.com writes:
Don't worry
Don't worry Michele your one of the crowd. If you write a post use a post
that someone else mailed and reply to it.
greenie
In a message dated 9/6/2012 11:59:34 A.M. Eastern Daylight Time,
ballroom...@gmail.com writes:
Just curious; Does ANYONE see my messages? regardless of the conten
suggest you write them for permission.
> Patrick
> Galveston - the nation's fastest growing cruise port.
>
>
> --- On *Thu, 9/6/12, LearnToBallroomDanceOnline.com >* wrote:
>
>
> From: LearnToBallroomDanceOnline.com
> Subject: Re: [CMLHope] Re: [cml 2] Fw: Neutro
ng cruise port.
--- On Thu, 9/6/12, LearnToBallroomDanceOnline.com
wrote:
From: LearnToBallroomDanceOnline.com
Subject: Re: [CMLHope] Re: [cml 2] Fw: Neutropenia - How To Avoid Infections
To: cmlhope@googlegroups.com
Date: Thursday, September 6, 2012, 10:59 AM
Just curious; Does ANYONE see my me
yes
Date: Thu, 6 Sep 2012 09:59:26 -0600
Subject: Re: [CMLHope] Re: [cml 2] Fw: Neutropenia - How To Avoid Infections
From: ballroom...@gmail.com
To: cmlhope@googlegroups.com
Just curious; Does ANYONE see my messages? regardless of the content I never
see a reply.I know that a lot of you seem
Just curious; Does ANYONE see my messages? regardless of the content I
never see a reply.
I know that a lot of you seem to "know" each other as I read YOUR content,
but either no ones sees my
posts or I am just not "one" of the crowd.
Thanks,
Michele
On Thu, Sep 6, 2012 at 9:34 AM, wrote:
> **
Richardthanks for sharing as well. Hope you continue to do well!
Best, Tom
In a message dated 9/6/2012 12:09:59 A.M. Eastern Daylight Time,
richard1huff...@comcast.net writes:
Thanks for sharing. I also use a simuluar version. I susually put it in
when I post my results.
Rich
Thanks for sharing. I also use a simuluar version. I susually put it in
when I post my results.
Richard H.
dxd 2/2003
400mg Gleevec 3/2003
Undetectable 11/03
RT-PCR negative 11/04
QT-PCR .003 11/05
RBC 8.
Gleevec Vacation 11/06-6/07
Iron infusion 11/06
Transfusions 12/06-5/07
QT-P
Hi All,
I think that Lottie's article on How to Avoid Infection" is terrific! I
wrote to her asking her permission to repost it on my leukemia blog, but
have not heard from her.
Maybe you guys can help me get the ok, or do you think that I can just
repost it?
http://www.leukemiasurvivor.co/
Thanks,
Richard...nice work, I do the same thing with my blood work. I also keep
a shorthand version of my journey that I share with my Doc's which they say
helps...particularly if you change Doc's or have to be treated in a new
facility. I have shared it before...but here it is. I believe Zavie
My onc gave me an excel file but need to ask for an update as it's 300 days
old by now
https://docs.google.com/viewer?url=http://cml-and-me.com/wp-files/resultaten.xlsx&hl=en_US&chrome=true
She even color coded it and added what optimal values should be in green,
blue is low and red is too hig
My ONC carefully went over my first CBC and instructed me on which readings
he considered the most important. When the PCR's started he did the same
thing. He told me to never leave his office without a copy for my
records. At about the 3 year anniversary he made a comment about having to
di
Thanks Skip, My onc doesn't ever talk about my blood counts with me. I
have to ask him for a printout. I just don't understand him at all. I do
keep track of all that as they sure don't seem to. Hang in there.
Jeanie<3
In a message dated 9/1/2012 9:20:20 A.M. Eastern Daylight Time,
sk
Hi Skip, you sure do have a lot of complicated problems but the one thing
that really counts is that your still alive to have these problems. I mean
just look at yourself being a survivor with CML for over 35 years. That is
what really counts. I admire you for all of what you have gone through and
Great Article Lottie,
and the things it tells you to avoid are exactly what has been told to me, at
least once or twice
a month. My blood reports tell me I have Leukopenia, Neutropenia, and
Thrombocytopenia.
If anyone has any of these in their report they should look out for your ANC
(Absolut
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