Thank you Millie!
I will stay in contact and report back on any news I gather at MD
Anderson. I've avoided researching, seeking a specialist, CMLHope,
EVERYTHING...because of the PAH~~~I guess I was angry that no one
caught it sooner, despite my best efforts to get SOMEONE (docs) to
listen to me.
, bilateral. Now am reinitiated on Gleevac 100mg every day and all
is well. Barely detectable Philadelphia Chromosomes per the BCR ABL.
From: kellyelise kellyeli...@aol.com
To: CMLHope cmlhope@googlegroups.com
Sent: Friday, September 30, 2011 1:05 PM
Subject: [CMLHope] Re: Problems with Food
)
To: CMLHope _cmlhope@googlegroups.com_
(mailto:cmlhope@googlegroups.com)
Sent: Friday, September 30, 2011 1:05 PM
Subject: [CMLHope] Re: Problems with Food and Gleevec
Thank you for the info on Dr. Talpaz - I had sent him an email a while
back but received no reply. My onc NP recommended Dr
that one.
Best wishes to you all for great health,
Susan Zimmerman (rszim0...@aol.com)
-Original Message-
From: Teepee710 teepee...@aol.com
To: cmlhope cmlhope@googlegroups.com
Sent: Sat, Oct 1, 2011 11:41 am
Subject: Re: [CMLHope] Re: Problems with Food and Gleevec
Dear Rszimo 702
Thanks
: kellyelise _kellyelise5@aol.com_ (mailto:kellyeli...@aol.com)
To: CMLHope _cmlhope@googlegroups.com_
(mailto:cmlhope@googlegroups.com)
Sent: Friday, September 30, 2011 1:05 PM
Subject: [CMLHope] Re: Problems with Food and Gleevec
Thank you for the info on Dr. Talpaz - I had sent him an email
_cmlhope@googlegroups.com_
(mailto:cmlhope@googlegroups.com)
Sent: Friday, September 30, 2011 1:05 PM
Subject: [CMLHope] Re: Problems with Food and Gleevec
Thank you for the info on Dr. Talpaz - I had sent him an email a while
back but received no reply. My onc NP recommended Dr. Jorge
Hi Kelly,
I wish you a lot of luck and, hopefully, success on your trip to Houston.
Please let us know how things are going for you from time to time.Hugs,
Millie
--
[CMLHope]
A support group of http://cmlhope.com
-
You received this
.
From: kellyelise kellyeli...@aol.com
To: CMLHope cmlhope@googlegroups.com
Sent: Friday, September 30, 2011 1:05 PM
Subject: [CMLHope] Re: Problems with Food and Gleevec
Thank you for the info on Dr. Talpaz - I had sent him an email a while
back but received no reply. My onc NP recommended Dr
: Re: [CMLHope] Re: Problems with Food and Gleevec
Was on Sprycel and experienced shortness of air. Hematologist stopped the
Sprycel. Before that was on 400mg Gleevac and it was stopped due to Eye
bleeds, bilateral. Now am reinitiated on Gleevac 100mg every day and all
is well.Barely
kellyeli...@aol.com
To: CMLHope cmlhope@googlegroups.com
Sent: Friday, September 30, 2011 1:05 PM
Subject: [CMLHope] Re: Problems with Food and Gleevec
Thank you for the info on Dr. Talpaz - I had sent him an email a while
back but received no reply. My onc NP recommended Dr. Jorge Cortes at
MD
I Was Wondering if there is any connection with nose bleeds to Gleevec.
could anyone give me some information about this and is serious?
Thanks
Teepee
Suzieq,
You are not whining or complaining!! We all have to vent sometime!
Quite frankly, I am grateful to be off all TKIs as of now. The Sprycel
about did me in. I don't know if you remember, but, I now have PAH
(pulmonary arterial hypertension) as a result of the Sprycel. I
underwent a heart
Kelly, I don't know how far away you are from Chicago but you could try
calling Northwestern Medical Faculty FoundationComprehensive Cancer Center
675 North St. Clair St. Suite 21-700 Chicago, IL. 60611 Phone No.
(312) 695-0990. This is where I go, and I fly in from Fort Myers,
Dr. Moshe Talpaz U of M 734-647-8901.
On Sep 27, 2011 11:07 AM, myvet...@aol.com wrote:
Kelly, I don't know how far away you are from Chicago but you could try
calling Northwestern Medical Faculty Foundation Comprehensive Cancer
Center
675 North St. Clair St. Suite 21-700 Chicago, IL. 60611
Susan:
Good to hear from you again.. a great big THANK YOU! I
remember your struggles. I just want you to know, I wasn't
complaining about mine, cause I, too, am very grateful for Gleevec
the wonderful doctors that I've had since my journey with CML began
in Jan. 2004. I am very
Hi Suzieq, We all here have had our good days and our bad days. That's
what's so great about this CML group. We are all good listeners. greenie
In a message dated 9/26/2011 12:12:45 P.M. Pacific Daylight Time,
sheila.a.wat...@gmail.com writes:
Susan:
Good to hear from you
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