[CMLHope] Re: Problems with Food and Gleevec

2011-10-02 Thread kellyelise
Thank you Millie! I will stay in contact and report back on any news I gather at MD Anderson. I've avoided researching, seeking a specialist, CMLHope, EVERYTHING...because of the PAH~~~I guess I was angry that no one caught it sooner, despite my best efforts to get SOMEONE (docs) to listen to me.

Re: [CMLHope] Re: Problems with Food and Gleevec

2011-10-01 Thread lrc lrc
, bilateral. Now am reinitiated on Gleevac 100mg every day and all is well. Barely detectable Philadelphia Chromosomes per the BCR ABL. From: kellyelise kellyeli...@aol.com To: CMLHope cmlhope@googlegroups.com Sent: Friday, September 30, 2011 1:05 PM Subject: [CMLHope] Re: Problems with Food

Re: [CMLHope] Re: Problems with Food and Gleevec

2011-10-01 Thread Teepee710
) To: CMLHope _cmlhope@googlegroups.com_ (mailto:cmlhope@googlegroups.com) Sent: Friday, September 30, 2011 1:05 PM Subject: [CMLHope] Re: Problems with Food and Gleevec Thank you for the info on Dr. Talpaz - I had sent him an email a while back but received no reply. My onc NP recommended Dr

Re: [CMLHope] Re: Problems with Food and Gleevec

2011-10-01 Thread rszim0...@aol.com
that one. Best wishes to you all for great health, Susan Zimmerman (rszim0...@aol.com) -Original Message- From: Teepee710 teepee...@aol.com To: cmlhope cmlhope@googlegroups.com Sent: Sat, Oct 1, 2011 11:41 am Subject: Re: [CMLHope] Re: Problems with Food and Gleevec Dear Rszimo 702 Thanks

Re: [CMLHope] Re: Problems with Food and Gleevec

2011-10-01 Thread Teepee710
: kellyelise _kellyelise5@aol.com_ (mailto:kellyeli...@aol.com) To: CMLHope _cmlhope@googlegroups.com_ (mailto:cmlhope@googlegroups.com) Sent: Friday, September 30, 2011 1:05 PM Subject: [CMLHope] Re: Problems with Food and Gleevec Thank you for the info on Dr. Talpaz - I had sent him an email

Re: [CMLHope] Re: Problems with Food and Gleevec

2011-10-01 Thread Teepee710
_cmlhope@googlegroups.com_ (mailto:cmlhope@googlegroups.com) Sent: Friday, September 30, 2011 1:05 PM Subject: [CMLHope] Re: Problems with Food and Gleevec Thank you for the info on Dr. Talpaz - I had sent him an email a while back but received no reply. My onc NP recommended Dr. Jorge

Re: [CMLHope] Re: Problems with Food and Gleevec

2011-09-30 Thread C.M. Houtz
Hi Kelly, I wish you a lot of luck and, hopefully, success on your trip to Houston. Please let us know how things are going for you from time to time.Hugs, Millie -- [CMLHope] A support group of http://cmlhope.com - You received this

Re: [CMLHope] Re: Problems with Food and Gleevec

2011-09-30 Thread maggy...@bellsouth.net
. From: kellyelise kellyeli...@aol.com To: CMLHope cmlhope@googlegroups.com Sent: Friday, September 30, 2011 1:05 PM Subject: [CMLHope] Re: Problems with Food and Gleevec Thank you for the info on Dr. Talpaz - I had sent him an email a while back but received no reply. My onc NP recommended Dr

RE: [CMLHope] Re: Problems with Food and Gleevec

2011-09-30 Thread Tony
: Re: [CMLHope] Re: Problems with Food and Gleevec Was on Sprycel and experienced shortness of air. Hematologist stopped the Sprycel. Before that was on 400mg Gleevac and it was stopped due to Eye bleeds, bilateral. Now am reinitiated on Gleevac 100mg every day and all is well.Barely

Re: [CMLHope] Re: Problems with Food and Gleevec

2011-09-30 Thread Teepee710
kellyeli...@aol.com To: CMLHope cmlhope@googlegroups.com Sent: Friday, September 30, 2011 1:05 PM Subject: [CMLHope] Re: Problems with Food and Gleevec Thank you for the info on Dr. Talpaz - I had sent him an email a while back but received no reply. My onc NP recommended Dr. Jorge Cortes at MD

Re: [CMLHope] Re: Problems with Food and Gleevec

2011-09-29 Thread Teepee710
I Was Wondering if there is any connection with nose bleeds to Gleevec. could anyone give me some information about this and is serious? Thanks Teepee

[CMLHope] Re: Problems with Food and Gleevec

2011-09-27 Thread kellyelise
Suzieq, You are not whining or complaining!! We all have to vent sometime! Quite frankly, I am grateful to be off all TKIs as of now. The Sprycel about did me in. I don't know if you remember, but, I now have PAH (pulmonary arterial hypertension) as a result of the Sprycel. I underwent a heart

Re: [CMLHope] Re: Problems with Food and Gleevec

2011-09-27 Thread Myvety2k
Kelly, I don't know how far away you are from Chicago but you could try calling Northwestern Medical Faculty FoundationComprehensive Cancer Center 675 North St. Clair St. Suite 21-700 Chicago, IL. 60611 Phone No. (312) 695-0990. This is where I go, and I fly in from Fort Myers,

Re: [CMLHope] Re: Problems with Food and Gleevec

2011-09-27 Thread lrc lrc
Dr. Moshe Talpaz U of M 734-647-8901. On Sep 27, 2011 11:07 AM, myvet...@aol.com wrote: Kelly, I don't know how far away you are from Chicago but you could try calling Northwestern Medical Faculty Foundation Comprehensive Cancer Center 675 North St. Clair St. Suite 21-700 Chicago, IL. 60611

[CMLHope] Re: Problems with Food and Gleevec

2011-09-26 Thread Suzieq
Susan: Good to hear from you again.. a great big THANK YOU! I remember your struggles. I just want you to know, I wasn't complaining about mine, cause I, too, am very grateful for Gleevec the wonderful doctors that I've had since my journey with CML began in Jan. 2004. I am very

Re: [CMLHope] Re: Problems with Food and Gleevec

2011-09-26 Thread Myvety2k
Hi Suzieq, We all here have had our good days and our bad days. That's what's so great about this CML group. We are all good listeners. greenie In a message dated 9/26/2011 12:12:45 P.M. Pacific Daylight Time, sheila.a.wat...@gmail.com writes: Susan: Good to hear from you