Re: [CMLHope] Re: stopping meds.

2012-10-03 Thread ICANDOALLTTC
and well. -Original Message- From: ICANDOALLTTC icandoall...@aol.com To: cmlhope cmlhope@googlegroups.com Sent: Sat, Sep 15, 2012 3:53 pm Subject: Re: [CMLHope] Re: stopping meds. Thanks Beth, Yes I have asked my Onc to lower my dose, but he says if it isn't broke don't fix it. I

Re: [CMLHope] Re: stopping meds.

2012-09-30 Thread bkbarney
are in this together..there are many new possibilities on the horizon...HOPE is alive and well. -Original Message- From: ICANDOALLTTC icandoall...@aol.com To: cmlhope cmlhope@googlegroups.com Sent: Sat, Sep 15, 2012 3:53 pm Subject: Re: [CMLHope] Re: stopping meds. Thanks Beth, Yes I have asked my

Re: [CMLHope] Re: stopping meds.

2012-09-15 Thread ICANDOALLTTC
that supports more and more options...may you feel some relief from your toxicity... Peace.. Keep us posted. hug,Beth -Original Message- From: ICANDOALLTTC icandoall...@aol.com To: cmlhope cmlhope@googlegroups.com Sent: Tue, Sep 4, 2012 2:43 pm Subject: Re: [CMLHope] Re: stopping meds

Re: [CMLHope] Re: stopping meds.

2012-09-04 Thread ICANDOALLTTC
Great story Richard and such an inspiration to all. Blessings, Jeanie3 In a message dated 8/27/2012 11:50:45 P.M. Eastern Daylight Time, richard1huff...@comcast.net writes: Each of us need to do what is best for that person. My situation is being monitored by some of our best

Re: [CMLHope] Re: stopping meds.

2012-09-04 Thread ICANDOALLTTC
: Tue, Aug 28, 2012 7:48 am Subject: Re: [CMLHope] Re: stopping meds. RichardI am totally with you and your decision. The longer I live with CML the more I understand that there are few givens. Each of us reacts differently to the TKI's and we must make individual decisions. Like

Re: [CMLHope] Re: stopping meds.

2012-09-04 Thread bkbarney
from your toxicity... Peace.. Keep us posted. hug,Beth -Original Message- From: ICANDOALLTTC icandoall...@aol.com To: cmlhope cmlhope@googlegroups.com Sent: Tue, Sep 4, 2012 2:43 pm Subject: Re: [CMLHope] Re: stopping meds. Hi Beth, I was started on Sprycel after the two other drugs

Re: [CMLHope] Re: stopping meds.

2012-08-29 Thread Myvety2k
HI Richard, I found out that I had CML two weeks before Xmas of 1998. Went on Interferon for 3 months, that almost killed me. After that about 2 to 3 month later Chicago called me and put me into a study at Northwestern. STI571. Their were 8 of us from the Chicago area, I was the only

Re: [CMLHope] Re: stopping meds.

2012-08-29 Thread bkbarney
am Subject: Re: [CMLHope] Re: stopping meds. RichardI am totally with you and your decision.  The longer I live with CML the more I understand that there are few givens.  Each of us reacts differently to the TKI's and we must make individual decisions.  Like you, I am so grateful

Re: [CMLHope] Re: stopping meds.

2012-08-28 Thread TEDBDD
RichardI am totally with you and your decision. The longer I live with CML the more I understand that there are few givens. Each of us reacts differently to the TKI's and we must make individual decisions. Like you, I am so grateful for these amazing drugs that have enabled us all to

Re: [CMLHope] Re: stopping meds.

2012-08-28 Thread Marty Gartenberg
Yes indeed Richard, You stated that since all of these TKI's have been around that I will die of something else. You must remember that everyone who is born will eventually have to die. So it is good to know that CML will not be your undoing. I am one of those members that you spoke about. I had

Re: [CMLHope] Re: stopping meds.

2012-08-28 Thread Richard H
Yes, we will all eventually die. You, Lottie, and Skip were the first names that I thought of when I was writing but didn't want to miss any one that around before 2/2003. I am fortunate to have some footprints in the sand to follow and voices to keep me keeping on. Richard H. On Tuesday,

[CMLHope] Re: stopping meds.

2012-08-27 Thread Richard H
Each of us need to do what is best for that person. My situation is being monitored by some of our best specialists. I have other major medical problems that are being monitored also. I have a heart issues, lung issues from three bouts with pnemonia when I was young and 40 years of smoking.