I was diagnosed August 3, 2005 with CML at Mayo in MN. I started taking 400 mgs of gleevec daily. By the 3rd week everything was almost normal including my very large spleen but then after that I crashed. So on on off the med I went for months. At diagnosis 98% of my cells were leukemic then in November when I had another FISH test done 3.4% of my cells were leukemic. Then in December my local onc had me take 400 mgs of gleevec every other day because I was so freaked out about being off the med. So in March when I went back to Mayo for a 6 month follow up they did another FISH to find out that my cells were up to 28%. I went back on the 400 mgs every day. They just redrew another FISH now my leukemia cells are 68%. My Mayo doc called and he wants me to take 600 mgs for a week, have labs drawn which I do weekly and if everything is fine start taking 800 mgs daily "if" I can tolerate it. I have had neulastin shots to help white count production. I go back to Mayo June 7th. My doc told me over the phone that when I came that we would discuss the new age drug and transplant. I will be 38 in June and have no sibling match. He knows I am strictly against transplant. Has anyone out there had this happen but when taken the higher dose that it helped. Why would I have responded at first then have it take off again? Am I resistant? HELP!!
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