[CMLHope] Where is everyone?

Is everyone alright? I haven't a post from anyone in a long time. 18's Marty -- -- [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Google Groups CMLHope group. To post to this

Re: [CMLHope] Where is everyone?

I'm still sitting here anemic and with no platelets. They don't know WHAT to do with me. :(Angie in Canada   From: Marty Gartenberg wa2...@gmail.com To: CMLHope@googlegroups.com Sent: Friday, June 5, 2015 7:35 AM Subject: [CMLHope] Where is everyone? Is everyone alright? I haven't a

[CMLHope] Ponatinib

Hi Jeanie and everyone: Two weeks prior to last Wednesday I went on one pill a week. Last Wednesday my WB went down from 18 to 3.9 and platelets went from 63 to 18. So, now I am off the drug for three weeks. Obviously, I am very sensitive to the drug or it is very strong or both. The tweaking

Re: [CMLHope] Where is everyone?

So sorry Angie. Don't know what to say. Have you had transfusions? That's what they did for me. Praying for you. Prayers Blessings Jeanie 18,s Dx 1/2004 Started Gleevec 2/2004 Started Tasigna 9/2009 Started Sprycel 11/2009 Started Ponatinib January 2015 On Jun 5, 2015, at 9:32 AM,

Re: [CMLHope] Where is everyone?

Hi Marty I posted Monday. Did you not receive it? Prayers Blessings Jeanie 18,s Dx 1/2004 Started Gleevec 2/2004 Started Tasigna 9/2009 Started Sprycel 11/2009 Started Ponatinib January 2015 On Jun 5, 2015, at 7:35 AM, Marty Gartenberg wa2...@gmail.com wrote: Is everyone alright? I

Re: [CMLHope] Ponatinib

Hi John. So happy the drug is working. My reaction to the drug is very different. It has put my blood counts back in the normal range. I still take one 15 mg pill daily. My WBC are in the high normal range. Most if the side effects are gone. The doctor seems to worry about me blood

Re: [CMLHope] Where is everyone?

Hi Susan Will pray for you and hubby. My hubby had triple bypass in his 50s. He lived 10 more years after surgery but he also had diabetes. Good luck. Prayers Blessings Jeanie 18,s Dx 1/2004 Started Gleevec 2/2004 Started Tasigna 9/2009 Started Sprycel 11/2009 Started Ponatinib January

Re: [CMLHope] Where is everyone?

Thanks so much Jeanie. I will count on your prayers! God knows, 18's, Susan F. Zimmerman Look among the nations and watch; be utterly astounded! For I will work a work in your days which you would not believe, though it were told you. Hab. 1:5 -Original Message- From:

Re: [CMLHope] Where is everyone?

Doing fine here. Today hubby has a heart cath, so trusting the Lord to bring him through. They think there is a blockage. Hope you are continuing to improve. 18's, Susan Z -Original Message- From: Marty Gartenberg wa2...@gmail.com To: CMLHope CMLHope@googlegroups.com Sent:

Re: [CMLHope] Ponatinib

Hi Jeanie, you seem to be doing OK. I am feeling fine. So glad that summer is on its way. Sent from my iPad On Jun 5, 2015, at 10:09 AM, 'Icandoallttc' via CMLHope cmlhope@googlegroups.com wrote: Hi John. So happy the drug is working. My reaction to the drug is very different. It has

Re: [CMLHope] Where is everyone?

Have you any idea how I could contact either of them? I think it could be well worth while.Thank you for the suggestion, Marty.Angie   From: Marty Gartenberg wa2...@gmail.com To: cmlhope@googlegroups.com Sent: Friday, June 5, 2015 4:57 PM Subject: Re: [CMLHope] Where is everyone? Hi

Re: [CMLHope] Where is everyone?

Hi Angie, I have a suggestion for you. Why not speak to one of the CML gurus like Dr. Brian Druker or Moshie Talpaz. They are both very fine CML doctors I hope it helps you out 18's, Marty On Fri, Jun 5, 2015 at 9:32 AM, ANGELYN ESDERS esd...@rogers.com wrote: I'm still sitting here anemic

Re: [CMLHope] Ponatinib

http://www.cmladvocates.net/3-news/newsflash/423-ash-2014-new-data-on-ponati nib-most-potent-but-overdosed good info on ponatinib In a message dated 6/5/2015 10:09:22 A.M. Eastern Daylight Time, cmlhope@googlegroups.com writes: Hi John. So happy the drug is working. My reaction to the

Re: [CMLHope] Where is everyone?

Brian J. Druker, MD Director, OHSU Knight Cancer Institute JELD-WEN Chair of Leukemia Research Investigator, Howard Hughes Medical Institute *Admin Unit:* The Knight Cancer Institute *Email:* druk...@ohsu.edu *Phone:* 503-494-5596 *Lab Phone:* 503-494-5599 *Fax:* 503-494-3688 *Office:* Biomedical

Re: [CMLHope] Where is everyone?

Praying for strength for you and for your husband to come through this without any problems.. Lots of love and care being sent your way..Beth -Original Message- From: 'Icandoallttc' via CMLHope cmlhope@googlegroups.com To: cmlhope cmlhope@googlegroups.com Sent: Fri, Jun 5, 2015 9:09 am

Re: [CMLHope]

Good luck Marcie...thinking of you and sending you good wishes...hope the bone marrow biopsy goes well..18's Beth -Original Message- From: 'Icandoallttc' via CMLHope cmlhope@googlegroups.com To: cmlhope cmlhope@googlegroups.com Sent: Fri, Jun 5, 2015 9:12 am Subject: Re: [CMLHope]

Re: [CMLHope] Where is everyone?

Dear Angie, I am so sorry you are having such trouble with your counts...I feel for you and know the fear involved when people say to you I don't know what to do with you.. I heard those words myself...some time ago... I see Dr. Druker, as several people on this site also see him. I travel

Re: [CMLHope] Where is everyone?

Marty, thank you so very much! I will use this help that you have given me. I appreciate it hugely! Hugely.Most sincerely,Angie   From: Marty Gartenberg wa2...@gmail.com To: cmlhope@googlegroups.com Sent: Friday, June 5, 2015 8:47 PM Subject: Re: [CMLHope] Where is everyone? Brian

[CMLHope]

I'm waiting at the hospital for blood work for CBC and bone marrow work. Sent from my iPhone -- -- [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Google Groups CMLHope group. To

Re: [CMLHope] Where is everyone?

Have they done the dye test to find the blockage. My hubby had been working hard one day and when he came in to eat he starting hurting in the chest really bad. He thought it was indigestion. He took rolaids but he kept hurting. The pain got so bad we called 911. He was taken to the hospital

Re: [CMLHope]

Good luck. Been there done that. Prayers to you today and every day. Are you having a bone marrow aspiration ? Prayers Blessings Jeanie 18,s Dx 1/2004 Started Gleevec 2/2004 Started Tasigna 9/2009 Started Sprycel 11/2009 Started Ponatinib January 2015 On Jun 5, 2015, at 11:01 AM, 'Marcie