Hi Sherri My sister has terrible leg edema and she doesn't have CML. She had her vein stripped and it has helped. She takes water pill daily. I'm like you can't quit the tkis. Blessings.
My Motto: Faith and Pills With Love 🐠18's Dx 1/2004 CML Leukemia Started Gleevec 2/2004 Started Tasigna 9/2009 Started Sprycel 11/2009 Started Ponatinib 1/2015 Doctor Balducci Moffitt Cancer Center > On Nov 9, 2016, at 3:01 AM, sherri swanson <swanson.sherri...@gmail.com> > wrote: > > I heard about this and when I was having some edema, my oncologist took me > off my Gleevec as all of my doctors were sure that was the reason for my leg > edema. I was off the Gleevec for 6 months and in that time my counts started > going up. Slowly at first and then by the 6th month very quickly. My > oncologist advised me that I will not be able to stop the Gleevec as it took > me so long to get my count down when I first started it 14 years ago. > > So today I am back on my original dosage of 600mg of Gleevec once a day and > the edema has never been figured out and my legs still get to 24 inches > around on any given day. But the good news, my counts are back within range. > I'll take it. > > Hope everyone is doing well. > > L'Chaim > > Sherri > >> On Mon, Nov 7, 2016 at 2:50 PM, 'Jeanie' via CMLHope >> <cmlhope@googlegroups.com> wrote: >> Good to hear from you and I know what you mean. I get tired of it all too >> but I've been a CML warrior almost 13 years and live by faith and pills. >> I'm on my fourth tki now and I feel it's my last try. I can't go off >> because my platelets and wbc go sky high when I do. Just get your rest and >> eat healthy, get some exercise and get lots of love. Hang in there warrior. >> ♥️♥️ >> Marty give us an uplift today. >> >> My Motto: >> Faith and Pills >> With Love >> 🐠18's >> Dx 1/2004 CML Leukemia >> Started Gleevec 2/2004 >> Started Tasigna 9/2009 >> Started Sprycel 11/2009 >> Started Ponatinib 1/2015 >> Doctor Balducci Moffitt Cancer Center >> >>> On Nov 6, 2016, at 12:42 AM, Richard H <rbhuffm...@gmail.com> wrote: >>> >>> Ryan Romero >>> Today at 12:11 PM >>> >>> >>> Hi everyone!!! >>> >>> I hope you all are doing well and continuing the fight! >>> >>> I wanted to share with you all a fantastic front page article in CURE >>> Magazine and also ask you if anyone has tried or had success with the LAST >>> Trial. I know some of you have asked your oncologists about this in the >>> past but never say any updates. >>> >>> For those that don't know what this trial is; after 3-4 years of pcrU on >>> TKIs (your chemo- gleevec for me), they are pulling people off gradually. >>> Reports show 50% remain pcrU !!! >>> >>> Today is a bad day for me. I'm tried of the side effects of treatment and >>> overall just tired. Needing some inspiration I picked up my CURE Magaizine >>> and noticed that CML was on the front page. Here's a link below. >>> >>> http://www.curetoday.com/publications/cure/2016/hematology-2-2016/targeted-power-improving-prognoses-for-patients-with-chronic-myeloid-leukemia. >>> >>> >>> >>> Ryan "chemo-sabi" >>> dx-10.27.2009 >>> Interferon-10/09-12/09 >>> Gleevec-400mg 1xd-12/09-02-11 >>> BCR-ABL- undetectable 2/2011 >>> 02/2011-Today- 400mg gleevec >>> -- >>> -- >>> [CMLHope] >>> A support group of http://cmlhope.com >>> ------------------------------------------------- >>> >>> You received this message because you are subscribed to the Google Groups >>> "CMLHope" group. >>> To post to this group, send email to CMLHope@googlegroups.com >>> To unsubscribe from this group, send email to >>> cmlhope-unsubscr...@googlegroups.com >>> For more options, visit this group at http://groups.google.com/group/CMLHope >>> --- >>> You received this message because you are subscribed to the Google Groups >>> "CMLHope" group. >>> To unsubscribe from this group and stop receiving emails from it, send an >>> email to cmlhope+unsubscr...@googlegroups.com. >>> For more options, visit https://groups.google.com/d/optout. >> >> -- >> -- >> [CMLHope] >> A support group of http://cmlhope.com >> ------------------------------------------------- >> >> You received this message because you are subscribed to the Google Groups >> "CMLHope" group. >> To post to this group, send email to CMLHope@googlegroups.com >> To unsubscribe from this group, send email to >> cmlhope-unsubscr...@googlegroups.com >> For more options, visit this group at http://groups.google.com/group/CMLHope >> --- >> You received this message because you are subscribed to the Google Groups >> "CMLHope" group. >> To unsubscribe from this group and stop receiving emails from it, send an >> email to cmlhope+unsubscr...@googlegroups.com. >> For more options, visit https://groups.google.com/d/optout. > > -- > -- > [CMLHope] > A support group of http://cmlhope.com > ------------------------------------------------- > > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To post to this group, send email to CMLHope@googlegroups.com > To unsubscribe from this group, send email to > cmlhope-unsubscr...@googlegroups.com > For more options, visit this group at http://groups.google.com/group/CMLHope > --- > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To unsubscribe from this group and stop receiving emails from it, send an > email to cmlhope+unsubscr...@googlegroups.com. > For more options, visit https://groups.google.com/d/optout. -- -- [CMLHope] A support group of http://cmlhope.com ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to cmlhope+unsubscr...@googlegroups.com. For more options, visit https://groups.google.com/d/optout.
