Hi Rien, I started a study the first week in Jan. 2000 at Northwestern
Hosp. in Chicago at 400 mg each day before it was approve my the FDA. They
changed it later to 300 mg because of the Gleevec rash. I got sick in 2009
and stopped Gleevec for 26 days because of sinus infection and the
After 12 years on Gleevec(I was in the first trials at Siteman cancer center) I
switched to Tasigna and all of those symptoms you described went away and I'm
still molecularly cancer free. Maybe you should talk to your doctor about
switching meds. Made a world of difference for me.
Diagnosed:
Hi
After 14 years on Glivec and being in deep remision 5MR i stopped treatment
more than 3 years ago. Did monthly PCR for 1 year and now every 2-3 month.
Feeling great. No zombi eyes, less cramps and living normal life.
Best
Giora
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ב-5 באוג׳ 2017, בשעה 20:59, 'Holly' via
Hi all. This is Jeanie. I have lost remission
4 times and really sick most of the times. I am on my 4 the and probably las
tki , Ponatinib. I get mutants. So far not on Ponatinib. Ive been taking
Ponatinib for over 2 years. So far so good but worry every time I get blood
work. My doctor
After seventeen years on Gleevec, and considered "in remission," my
oncologist asked me if I would like to stop taking Gleevec.
At first glance, this sounded spectacular but then she said:
"you'll have to come in once a month to be tested."
After deep thought (about twenty seconds), I said, "Talk
Hello!
I stopped taking Gleevec after 13 years. I had my checkups every month, but
only in the first year. In the second year every two months and from now on
every three months for the rest of my life.
It seems that everybody reacts in a different way. I myself had more
bonecramps after having
As you can see everyone has a different result. I have taken breaks from
Gleevec several times for three months to 5 1/2 years. I am now on 200mg
Gleevec and still detectable. So it is your decision and your ONC is
sitting in your corner, be brave and see how long you can go without
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