Re: [CMLHope] Look at this, the way GOD meant it to be, absolutely beautiful enjoy this, sound up...

2018-01-25 Thread Jamie Tufariello
On Saturday, October 7, 2017, 'Jeanie' via CMLHope wrote: > Thanks Marty, very beautiful. ✝✝✝ > > My Motto: > Faith and Pills > With Love > 18's > Dx 1/2004 CML Leukemia > Started Gleevec 2/2004 > Started Tasigna 9/2009 > Started Sprycel 11/2009 > Started

Re: [CMLHope] Skip

2018-01-25 Thread Jamie Tufariello
On Monday, July 27, 2015, Suzieq wrote: > > Thanks everyone. I do hope Skip is doing okay. > > Keep Looking up!, > > Suzieq > > -- > -- > [CMLHope] > A support group of http://cmlhope.com > - > > You received this

Re: [CMLHope] 12 years old boy with CML

2018-01-25 Thread Jamie Tufariello
On Monday, July 27, 2015, sherri swanson wrote: > You are correct about learning from our parents. I learned from my > grandparents. They were from Europe and when they first came here spoke no > English at all. It was not until my mother, their first born went to

Re: [CMLHope] Cml and Shingles vaccine

2018-01-25 Thread Jamie Tufariello
On Friday, June 12, 2015, Poongothai R wrote: > > > > > > *Hi friends! Just want to know we cml warriors can take Shingles > vaccine?Kothai* > > -- > -- > [CMLHope] > A support group of http://cmlhope.com > - > > You

Re: [CMLHope] Is the high cost of CML care "worth it"?

2018-01-25 Thread Jamie Tufariello
On Saturday, June 6, 2015, 'RobertGlover from Hornsby' via CMLHope < cmlhope@googlegroups.com> wrote: > Thank you for posting this link http://www.cmleukemia.com/ > asco-2015---chicago.html> to the cmlhope site. > > I zoomed in on the link to the article: > > > *Is the high cost of CML care

Re: [CMLHope] off Sprycel

2018-01-25 Thread Jamie Tufariello
On Tuesday, June 9, 2015, Choi wrote: > Hi, this is Choi from South Korea. One of my CML friends had some problems > and I just wonder who had a similar experience. > > He was diagnosed with CML chronic phase on july 2012 and started Gleevec > 400mg for 16 months and

Re: [CMLHope] A bit of good news today

2018-01-25 Thread Jamie Tufariello
On Wednesday, May 27, 2015, sherri swanson wrote: > Hi Everyone! > > In the mist of all the bad news I've been getting lately, I got some good > news this afternoon. My Onc called me to tell me that my BCR/ABL was > undetectable. So with that that good news still

Re: [CMLHope] Today's

2018-01-25 Thread Jamie Tufariello
On Wednesday, May 20, 2015, rszim0702 via CMLHope wrote: > Guess you and I are kind of on the same track.both were off everything > for quite some time, now my number is .01%, near 0and you are, too! > Every day is a gift. We will be on vacay next week in

Re: [CMLHope] New abstracts at ASCO 2015

2018-01-25 Thread Jamie Tufariello
On Thursday, June 4, 2015, cousineg wrote: > See New abstracts at ASCO 2015 > > > -- > -- > [CMLHope] > A support group of http://cmlhope.com > - > > You received this

Re: [CMLHope] Seeing Dr. Druker on the Cancer Special

2018-01-25 Thread Jamie Tufariello
On Wednesday, April 22, 2015, Suzieq wrote: > > I forgot in my previous post to ask if ya'll watched the recent PBS > special on Cancer. It was really fascinating, I thought. They had Dr. > Druker on towards the end of the 2nd in the series and how Gleevec was >

Re: [CMLHope] anemia

2018-01-25 Thread 'Susan Zimmerman' via CMLHope
I am on bosutinib for over 2 years now. There are absolutely no side effects except diarrhea. This can be controlled with medicine. I am happy to be on this drug. Susan F. Zimmerman "All who humble themselves before the Lord shall be given every blessing, and shall have wonderful peace."

Re: [CMLHope] Nadia

2018-01-25 Thread 'Jeanie' via CMLHope
Who is James Tufanello and why did I get all these email from him? My Motto: Faith and Pills With Love 18's Dx 1/2004 CML Leukemia Started Gleevec 2/2004 Started Tasigna 9/2009 Started Sprycel 11/2009 Started Ponatinib 1/2015 Doctor Balducci Moffitt Cancer Center > On Jan 25, 2018, at 11:37

[CMLHope] Can't take less pills. Doesn't work for me.

2018-01-25 Thread 'Jeanie' via CMLHope
I have to take 1 15 mg Ponatinib daily. Do you know what the fish stands for? Love you so very much My Motto: Faith and Pills With Love 18's Dx 1/2004 CML Leukemia Started Gleevec 2/2004 Started Tasigna 9/2009 Started Sprycel 11/2009 Started Ponatinib 1/2015 Doctor Balducci Moffitt Cancer

Re: [CMLHope] Well wishes

2018-01-25 Thread Jamie Tufariello
On Wednesday, November 22, 2017, 'Susan Zimmerman' via CMLHope < cmlhope@googlegroups.com> wrote: > Happy Thanksgiving to all! I pray you all are well enough to enjoy the > holidays. Ours will be quiet and cozy by the fire. Turkey on the menu. So > glad I am part of this awesome and loving group.

Re: [CMLHope] My Mushroom and Barley Soup

2018-01-25 Thread Jamie Tufariello
On Monday, November 27, 2017, Marty Gartenberg wrote: > Hi Joyce, > > Yes I am glad to be back at home. Now I will pass on the recipe for my > mushroom and barley soup. > > Everything listed here is for about 5 quarts. First get a quart of > Swanson beef broth 32 ounces but I

Re: [CMLHope]

2018-01-25 Thread Jamie Tufariello
On Saturday, September 9, 2017, Marty Gartenberg wrote: > We are righting to everyone that may be facing this upcoming hurricane. > May we all be safe and look forward to resuming our lives after this event > has passed. > > GOD bless each and everyone one of us. > > 18's, > >

Re: [CMLHope] Digest for cmlhope@googlegroups.com - 5 updates in 1 topic

2018-01-25 Thread Jamie Tufariello
On Saturday, September 9, 2017, Sheila Watson wrote: > Marty, I am glad to hear that. I was worrying over ya'll earlier today. > My brother is still in Hudson (up above Tampa about 30 or 40 miles. I > worry about him, but he is suppose to be going to a friend's

Re: [CMLHope] Digest for cmlhope@googlegroups.com - 2 updates in 1 topic

2018-01-25 Thread Jamie Tufariello
On Saturday, November 25, 2017, NICK WOODS wrote: > Nick and I send best wishes for a Happy Thanksgiving and hope those of you > who are not feeling well will have some family or friends who will be there > with you. Nick's celebrated 14 years and he's still on Gleevec.

Re: [CMLHope] Greetings from the land of Harvey

2018-01-25 Thread Jamie Tufariello
On Sunday, September 10, 2017, Norm wrote: > I do not get to post often but wanted to wish all of the group the best > and to check on Jeanie and the rest of the Floridians. > We did not flood at my home or office but there are still areas that are > not accessible because

Re: [CMLHope] 3 months off Gleevec

2018-01-25 Thread Jamie Tufariello
On Saturday, September 2, 2017, nycotb176 wrote: > Going on 16 yrs on 400 gm of Gleevec, when I was diagnosed with > sclerosis of the Liver. My Oncologist at Moffitt Cancer Center lowered my > dosage to 200. After a year, I was still in remission.No Philadelphia Bug >

Re: [CMLHope] Stopping Gleevec

2018-01-25 Thread Jamie Tufariello
On Saturday, August 5, 2017, Vivi wrote: > After seventeen years on Gleevec, and considered "in remission," my > oncologist asked me if I would like to stop taking Gleevec. > At first glance, this sounded spectacular but then she said: > "you'll have to come in once a month

Re: [CMLHope] Gleevec

2018-01-25 Thread Jamie Tufariello
On Tuesday, August 8, 2017, Ken Roberson wrote: > Good morning everyone, > I just discovered that this site is still active. > I have been on Gleevec for 17 years with good results, but have had > additional medical challenges. > I was a member of the original

Re: [CMLHope] Blood results. B

2018-01-25 Thread Jamie Tufariello
On Monday, August 7, 2017, 'Jeanie' via CMLHope wrote: > > > -- > -- > [CMLHope] > A support group of http://cmlhope.com > - > > You received this message because you are subscribed to the Google Groups > "CMLHope" group.

Re: [CMLHope] 18's where did it come from and why I always end my emails with it

2018-01-25 Thread Jamie Tufariello
On Saturday, May 30, 2015, Marty Gartenberg wrote: > The center of the Bible. If you notice the numbers 18 are always in there > with are sometimes sandwiched between other similar numbers. > > 18's true meaning is life! > > So, 18's to each and every one of you precious

Re: [CMLHope] Re: FABULOUS VIDEO OF THE YEAR !

2018-01-25 Thread Jamie Tufariello
On Thursday, December 7, 2017, Joyce Mesnarich wrote: > Thanks Marty. That was beautiful. Need to watch it twice: Once to read > the words and once to enjoy the beautiful pictures. > Joyce in Southern Illinois > > > On Dec 3, 2017, at 11:09 AM, Marty Gartenberg

Re: [CMLHope] Digest for cmlhope@googlegroups.com - 3 updates in 1 topic

2018-01-25 Thread Jamie Tufariello
On Wednesday, June 17, 2015, David Bradley wrote: > Angelyn: I was in complete molecular remission. I stopped Gleevec in > December to commence another medication for my CLL. A PCR was done in > March and I was positive for CML. I went back on Gleevec (concurrently >

Re: [CMLHope] Digest for cmlhope@googlegroups.com - 2 updates in 1 topic

2018-01-25 Thread Jamie Tufariello
On Saturday, July 11, 2015, Victoria Reiter wrote: > My onc told me that I could not take the shingles vaccine nor any > live-virus vaccine. I've been on Gleevec since 2000. > > On Fri, Jun 12, 2015 at 6:20 AM, wrote: > >> cmlhope@googlegroups.com

Re: [CMLHope] Digest for cmlhope@googlegroups.com - 1 update in 1 topic

2018-01-25 Thread Jamie Tufariello
On Monday, August 3, 2015, Maria Cashion wrote: > > > On Sat, Aug 1, 2015 at 6:28 AM, wrote: > >> cmlhope@googlegroups.com >> >> Google >> Groups >>

Re: [CMLHope] cml and shingles

2018-01-25 Thread Jamie Tufariello
On Monday, June 15, 2015, Poongothai R wrote: > > > > *Richard,Thanks for your informative post.Kothai* > > -- > -- > [CMLHope] > A support group of http://cmlhope.com > - > > You received this message because you are

Re: [CMLHope] Digest for cml...@googlegroups.com - 1 update in 1 topic

2018-01-25 Thread Jamie Tufariello
On Monday, July 13, 2015, Peter wrote: > Yes, there certainly are many different opinions on this subject, ranging > from "No way" to "No problem". I wish somebody would come up with a > definite answer! > The truth is probably exactly what my doc told me: "There are no

Re: [CMLHope] CCI12222017.pdf

2018-01-25 Thread Jamie Tufariello
On Friday, December 22, 2017, Myvety2k via CMLHope wrote: > > > -- > -- > [CMLHope] > A support group of http://cmlhope.com > - > > You received this message because you are subscribed to the Google Groups > "CMLHope"

Re: [CMLHope] Digest for cmlhope@googlegroups.com - 4 updates in 1 topic

2018-01-25 Thread Jamie Tufariello
On Friday, December 22, 2017, 'Dr. Francis Farrell' via CMLHope < cmlhope@googlegroups.com> wrote: > What is your bcr/abl? > > Sent from my iPad > > On Dec 22, 2017, at 5:11 AM, cmlhope@googlegroups.com wrote: > > cmlhope@googlegroups.com >

Re: [CMLHope] Digest for cmlhope@googlegroups.com - 10 updates in 1 topic

2018-01-25 Thread Jamie Tufariello
On Saturday, September 19, 2015, educatorsusan via CMLHope < cmlhope@googlegroups.com> wrote: > Mr. Noles: > I am so sorry to hear about Nadia. Because I still see her gardening, I > picture her still gardening up in heaven. May those happy memories linger > in your mind and sustain your spirit

Re: [CMLHope] Three months

2018-01-25 Thread Jamie Tufariello
On Tuesday, September 29, 2015, ANGELYN ESDERS wrote: > After 14+ years, I have been off Gleevec for 3 months. > So far, so good... All blood counts are A-OK. > I am starting to feel a little braver about it now... > Angie in Canada > > -- > -- > [CMLHope] > A support group of

Re: [CMLHope]

2018-01-25 Thread Jamie Tufariello
On Thursday, April 20, 2017, Joyce Mesnarich wrote: > I have been missing hearing from members of the group also. Marty, I am > so happy to hear that you and your sweetie were able to take a cruise and > celebrate your anniversary. Greenie, who knows what happened to your name

Re: [CMLHope] Hi john

2018-01-25 Thread Jamie Tufariello
On Wednesday, October 7, 2015, 'Icandoallttc' via CMLHope < cmlhope@googlegroups.com> wrote: > Hi john and how are you? > Are you in remission? > I just found out I was in cr molecular remission in July after 7 months > on ponatinib. My onc never really talked to me about it. Strange. > Let us

Re: [CMLHope] Nadia

2018-01-25 Thread Jamie Tufariello
On Saturday, September 19, 2015, John Barrons wrote: > Mr Noles I am very sorry to hear the news of Nadia. I extend my sympathies > to you and your family John Barrons > > Sent from my iPad > > -- > -- > [CMLHope] > A support group of http://cmlhope.com >

Re: [CMLHope] CML and Gleevec-Thankful for another year

2018-01-25 Thread Jamie Tufariello
On Tuesday, December 26, 2017, Nick wrote: > Hi, Nick's been on Gleevec since 2003. He's on 400 of Gleevec, too. Yes, > he's noticed he's dropping things from his fingers. We're not sure just > why, but try to not hold anything which might break or spill. > > We hope

Re: [CMLHope] Digest for cmlhope@googlegroups.com - 8 updates in 1 topic

2018-01-25 Thread Jamie Tufariello
On Friday, April 21, 2017, 'LadyRx' via CMLHope wrote: > I'm still here, too! I was wondering where everyone went! Hopefully, > everyone is healthy and just taking a break! Greenie, in case you are > taking Ibuprofen (for arthritis and pain) you should let your doctor

Re: [CMLHope] Fwd: Pharma Not in Business of Health, Healing, Cures, Wellness by Gwen Olsen (Check the attached video)

2018-01-25 Thread Jamie Tufariello
On Thursday, July 27, 2017, أحمد عمر wrote: > Hi All, > > FYI > > Ex-Pharma Sales Reps Speaks Out - Pharma Not in Business of Health, > Healing, Cures, Wellness. > > Gwen Olsen spent fifteen years as a pharmaceutical sales rep working for > such healthcare giants as

Re: [CMLHope] New Facebook Group - ZAVIE - CML ZERO CLUB MEMBERS - WHERE ARE YOU

2018-01-25 Thread Jamie Tufariello
On Monday, June 5, 2017, Robert W Neill Jr wrote: > A new Facebook reunion group has been started for Zavie's Zero Club members > > https://www.facebook.com/groups/1673390782910601/ > > -- > -- > [CMLHope] > A support group of http://cmlhope.com >

Re: [CMLHope] Digest for cmlhope@googlegroups.com - 1 update in 1 topic

2018-01-25 Thread Jamie Tufariello
On Monday, April 24, 2017, Victoria Reiter wrote: > I agree about remaining on Gleevec and not messing around with other > medical entities. > > On Wed, Dec 14, 2016 at 3:13 PM, Victoria Reiter > wrote: > >> I'm not quite satisfied with 50%...rather

Re: [CMLHope]

2018-01-25 Thread Jamie Tufariello
On Thursday, June 15, 2017, Ana Burgos wrote: > I think you arent receiving my emails, dont know why > > I haven been in this group for 14 years as my mother is taking gleevec > > -- > -- > [CMLHope] > A support group of http://cmlhope.com >

Re: [CMLHope] Medicare retirement

2018-01-25 Thread Jamie Tufariello
On Sunday, February 5, 2017, 'Boogie_Woogie' via CMLHope < cmlhope@googlegroups.com> wrote: > > Any advice for me?I want to retire this June. Any advice on which > presc. > Coverage is better coverage? > > Signed too tired to keep workin > > Thanks. . 14 years cml survivor > Sent from

Re: [CMLHope] 39 years with cml

2018-01-25 Thread Jamie Tufariello
On Wednesday, February 1, 2017, skipd wrote: > /just want to say hi to all you cml'ers and to let you know I am still on > the green side was talking to Marty he told me to get on > > > In case you do not know me here is a place you can see but its not > finished still have

Re: [CMLHope] Life

2018-01-25 Thread Jamie Tufariello
On Wednesday, October 11, 2017, Richard H wrote: > Thanks Marty. > > Richard H. > > On Tuesday, October 10, 2017 at 9:16:22 AM UTC-5, wa2yyx wrote: >> >> >> *I was thinking about most of us that have been through a mirage of >> illnesses, myself included, and in thinking

Re: [CMLHope] anemia

2018-01-25 Thread Jamie Tufariello
On Friday, December 22, 2017, Ana Burgos wrote: > Hello, > > my mum is suffering from very low hemoglobine and very low iron. > > any of you happen the same? > > another question is what do you think about bosutinib, after 14 years in > gleevec the doc. is thinking of

Re: [CMLHope] Holiday Season!

2018-01-25 Thread Jamie Tufariello
On Monday, November 20, 2017, bkbarney via CMLHope wrote: > Wonderful news Richard!!! I hope you and everyone here has a lovely Thanks > giving and a very healthy and peaceful holiday season.. > > Love and 18's to all, > > Beth > > > -Original Message- > From: