Re: [CMLHope] Pictures

2016-06-02 Thread 'Jeanie' via CMLHope
called CML and let's not forget that. >>>>> >>>>> There are so many stories that surrounds us and every one of them are >>>>> meant to be. We all stand here and try help each other. Why? it's because >>>>> it is meant to be. We

Fwd: [CMLHope] Ron can you add Wendy to our group. She needs Marty's and others advise. Thanks.

2016-06-02 Thread 'Jeanie' via CMLHope
; > > Sent from my iPhone > > Begin forwarded message: > >> From: "'Jeanie' via CMLHope" <cmlhope@googlegroups.com> >> Date: May 31, 2016 at 4:46:08 PM EDT >> To: cmlhope@googlegroups.com >> Subject: [CMLHope] Ron can you add Wendy t

Re: [CMLHope] Pictures

2016-06-02 Thread 'Jeanie' via CMLHope
em are meant >>> to be. We all stand here and try help each other. Why? it's because it is >>> meant to be. We give of each other, and also to each other, and you know >>> what I am talking about. It is all about trying to live our lives the best >>> way tha

[CMLHope] Anyone heard from John? I'm worried.

2016-06-06 Thread 'Jeanie' via CMLHope
Anyone heard from John? He's on Ponatinib like me. -- -- [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to

Re: [CMLHope] Check out MyNMs MyChart - Test Details

2016-06-07 Thread 'Jeanie' via CMLHope
Couldn't open it. Required password. Blessings. Sent from my iPhone > On Jun 7, 2016, at 10:03 AM, Myvety2k via CMLHope > wrote: > > MyNMs MyChart - Test Details > > Hi Group, I received some results from Northwestern this morning from years > passed and I have

Re: [CMLHope] Check out MyNMs MyChart - Test Details

2016-06-09 Thread 'Jeanie' via CMLHope
lt;wa2...@gmail.com> wrote: > > Jeanie, > > It appears that your following in the foot steps of 18's... Just march ahead > Jeanie > > 18's, > > Marty > >> On Thu, Jun 9, 2016 at 9:55 AM, 'Jeanie' via CMLHope >> <cmlhope@googlegroups.com>

Re: [CMLHope] Check out MyNMs MyChart - Test Details

2016-06-09 Thread 'Jeanie' via CMLHope
Here's mine: BCR/AbL Quantitive test results low positive for BCR/ABL P210 transcripts were detected less than 0.0008% IS MMR 0.1% IS Molecular Response 4.0 (MR4) 0.1% IS Molecular Response 4.5 (MM4.5) 0.0032% iS This is after over a year on Ponatinib Blessings Sent from my iPhone > On Jun 7,

Re: [CMLHope] Pictures

2016-06-03 Thread 'Jeanie' via CMLHope
t; >> There are so many stories that surrounds us and every one of them are meant >> to be. We all stand here and try help each other. Why? it's because it is >> meant to be. We give of each other, and also to each other, and you know >> what I am talking about

[CMLHope]

2016-06-03 Thread 'Jeanie' via CMLHope
YOUR WORTH IT. FINALLY, AND YOU CAN ASK JEANIE AND EVERYONE ELSE ON THIS CML SITE ABOUT WHEN EVERY TIME I END A POST I SEND ALONG TWO NUMBERS AND LET ME INTRODUCE YOU TO THEM AND WHAT THERE MEANING IS... 18's WHICH MEANS LIFE Marty > On Mon, May 30, 2016 at 8:48 AM, 'Jeanie' via CMLHo

Re: [CMLHope] Pictures

2016-06-04 Thread 'Jeanie' via CMLHope
;>> For instance this site, and everyone that reads it or posts on it are meant >>> to be because all of us are still kicking (as you said) and we all share >>> this disease called CML and let's not forget that. >>> >>> There are so many stories that surrounds

Re: [CMLHope] About John Hopkins Cancer Update

2016-06-14 Thread 'Jeanie' via CMLHope
Oh no!!! I'm so sorry. I'm there with you in sprit and love for your family. This is so hard I know. I am praying for you right now. Love Jeanie My Motto: Faith and Pills With Love 18's Dx 1/2004 CML Leukemia Started Gleevec 2/2004 Started Tasigna 9/2009 Started Sprycel 11/2009 Started

Re: [CMLHope] About John Hopkins Cancer Update

2016-06-14 Thread 'Jeanie' via CMLHope
gt; > 18's, > > Marty > >> On Mon, Jun 13, 2016 at 6:07 PM, 'Jeanie' via CMLHope >> <cmlhope@googlegroups.com> wrote: >> Our food today is full of junk. You would have to grow everything yourself >> and use no fertilizer or pesticides. You can't even b

[CMLHope] Let us know if you need anything Greenie

2016-06-14 Thread 'Jeanie' via CMLHope
We are here for you. Let us know if you need anything. ❤️ My Motto: Faith and Pills With Love 18's Dx 1/2004 CML Leukemia Started Gleevec 2/2004 Started Tasigna 9/2009 Started Sprycel 11/2009 Started Ponatinib 1/2015 Doctor Balducci Moffitt Cancer Center -- -- [CMLHope] A support group of

Re: [CMLHope] About John Hopkins Cancer Update

2016-06-14 Thread 'Jeanie' via CMLHope
So true Marty. When I lost my Hubbie I could feel him everywhere. I even saw him standing at the refrigerator door where I had seen him so many times. Love will sustain you and yours. ❤️ My Motto: Faith and Pills With Love 18's Dx 1/2004 CML Leukemia Started Gleevec 2/2004 Started

Re: [CMLHope] About John Hopkins Cancer Update

2016-06-14 Thread 'Jeanie' via CMLHope
ion on >> the lower part of my left leg, that I got I got last week. They had to admit >> me and I was started on Vankromycen IV for the last week and just got home >> today. >> >> Just another small bump in the road for me. >> >> I hope that everyone

Re: [CMLHope] About John Hopkins Cancer Update

2016-06-14 Thread 'Jeanie' via CMLHope
So young. Did he have heart problems? My niece lost her son much the same way. He was playing baseball and just passed out. He was in his 30s. Blessing to you and all. My Motto: Faith and Pills With Love 18's Dx 1/2004 CML Leukemia Started Gleevec 2/2004 Started Tasigna 9/2009 Started

Re: [CMLHope] About John Hopkins Cancer Update

2016-06-14 Thread 'Jeanie' via CMLHope
But Jeanie, you now can see what my father taught me and just look right into > your heart and mind... By the way Jeannie, your heart and your mind are very > powerful tools. > > Sorry about the loss of your "Hubby" > > 18's > > Marty > >> On Tue, J

Re: [CMLHope] About John Hopkins Cancer Update

2016-06-15 Thread 'Jeanie' via CMLHope
imply > change your attitude as I once did. > > I prefer to live my life as best as I can, no matter what I go through > because I never forget that there may be some bumps in the road but there > also some very good times going along that road as well. How about you? > >

Re: [CMLHope] About John Hopkins Cancer Update

2016-06-15 Thread 'Jeanie' via CMLHope
l that you need to do is to simply > change your attitude as I once did. > > I prefer to live my life as best as I can, no matter what I go through > because I never forget that there may be some bumps in the road but there > also some very good times going along that road a

Re: [CMLHope] About John Hopkins Cancer Update

2016-06-13 Thread 'Jeanie' via CMLHope
Our food today is full of junk. You would have to grow everything yourself and use no fertilizer or pesticides. You can't even buy gum or toothpaste without artificial sweetener. I was a health nut before I got cancer. Go figure. I think moderation is the key and variety. Try to get

[CMLHope] To Marty advise

2016-05-30 Thread 'Jeanie' via CMLHope
I was wondering if you could give her some advice. She is set up for a BMT but can't decide. Thanks Sent from my iPhoneI love to see people get on this page and talk about living with CML rather than dying from CML... I believe if you truly want to see the face of cancer walk into a

Re: [CMLHope] To Marty advise

2016-05-30 Thread 'Jeanie' via CMLHope
THROUGH THIS, BECAUSE IT IS JUST A BUMP IN THE ROAD. > > YOU KNOW I TELL YOU LIKE IT IS SO MAYBE IT IS TIME TO DO WHAT YOU FEEL IS > BEST. > > I LEAVE YOU WITH SOMETHING ELSE, IT TOOK ME ALMOST TWO HOURS TO WRITE THIS TO > YOU, AND DO YOU WANT TO KNOW WHY? IT IS BECAUSE YOUR WO

Re: [CMLHope] Pictures

2016-05-30 Thread 'Jeanie' via CMLHope
Thank you so very much Marty. If I knew then what I knew today I think I would have Had the transplant. My onc at that time thought I Was too old. However I'm still alive and kicking After 4 tkis. I am sick; I can't seem to kick this flu. Just resting after my vacation. I sure had a good

[CMLHope] Ron can you add Wendy to our group. She needs Marty's and others advise. Thanks.

2016-05-31 Thread 'Jeanie' via CMLHope
Wendy's email. caligirlny...@aol.com Sent from my iPhone > On May 30, 2016, at 8:48 AM, 'Jeanie' via CMLHope <cmlhope@googlegroups.com> > wrote: > > I was wondering if you could give her some advice. She is set up for a BMT > but can't decide. Thanks > > Sent

Re: [CMLHope] About John Hopkins Cancer Update

2016-06-16 Thread 'Jeanie' via CMLHope
gt; >>> But Jeanie, you now can see what my father taught me and just look right >>> into your heart and mind... By the way Jeannie, your heart and your mind >>> are very powerful tools. >>> >>> Sorry about the loss of your "Hubby" >>&g

[CMLHope] How is everyone

2016-08-02 Thread 'Jeanie' via CMLHope
Checking in. How is everyone I hope very good. I am worried about Marty. Has anyone heard from him? I have been sick again. Seems this flu just won't go away! Let me know how you are all doing. Blessings! My Motto: Faith and Pills With Love 18's Dx 1/2004 CML Leukemia Started Gleevec 2/2004

Re: [CMLHope] Ferone treatment

2016-08-12 Thread 'Jeanie' via CMLHope
There are better treatments now. I'm on Ponatinib and its working good. I take 1 15 mg pill daily. I've been on most of the tkis. I got mutants on all except the one I'm in now.Yes go to specialist. Blessings. My Motto: Faith and Pills With Love 18's Dx 1/2004 CML Leukemia Started

Re: [CMLHope] Tasigna and Lipitor

2016-07-20 Thread 'Jeanie' via CMLHope
I haven't taken any of those drugs but I would quit the drug and get back with your doctor. What you are experiencing are side effects of Crestor. Good luck. My Motto: Faith and Pills With Love 18's Dx 1/2004 CML Leukemia Started Gleevec 2/2004 Started Tasigna 9/2009 Started Sprycel

Re: [CMLHope] Re: Fatigue side effect nilotinib

2016-07-17 Thread 'Jeanie' via CMLHope
Yes rest when you can. Light exercise if you can. Drink lots of water. Eat good. Massage is good. Be sure to get blood tested often. My Motto: Faith and Pills With Love 18's Dx 1/2004 CML Leukemia Started Gleevec 2/2004 Started Tasigna 9/2009 Started Sprycel 11/2009 Started Ponatinib 1/2015

Re: [CMLHope] Fatigue side effect testing nilotinib

2016-07-18 Thread 'Jeanie' via CMLHope
dragging with this ongoing virus..am > going to restart sprycel cell very soon...will keep everyone updated..love, > Beth > > > -----Original Message- > From: 'Jeanie' via CMLHope <cmlhope@googlegroups.com> > To: cmlhope <cmlhope@googlegroups.com> > Sent: F

Re: [CMLHope] Anyone out there. Testing

2016-07-15 Thread 'Jeanie' via CMLHope
esday, July 12, 2016 8:06 PM >>> Subject: Re: [CMLHope] Anyone out there. Testing >>> >>> Hi Jeanie, >>> >>> I'm out here in the heat & humidity trying to stay cool.  >>> >>> Sherri >>> >>> On Tue, Jul 12,

Re: [CMLHope] Fatigue side effect testing nilotinib

2016-07-15 Thread 'Jeanie' via CMLHope
able...I lost 6 weeks in a > blink! > > Hope life has calmed down for those struggling this summer and that we all > can find some joy in the weeks to come! I hear there are some sweet movies > out guaranteed to make you smile...so I am going to look into this.......:) >

[CMLHope] Anyone out there. Testing

2016-07-12 Thread 'Jeanie' via CMLHope
My Motto: Faith and Pills With Love 18's Dx 1/2004 CML Leukemia Started Gleevec 2/2004 Started Tasigna 9/2009 Started Sprycel 11/2009 Started Ponatinib 1/2015 Doctor Balducci Moffitt Cancer Center -- -- [CMLHope] A support group of http://cmlhope.com

Re: [CMLHope] Fatigue side effect testing nilotinib

2016-07-12 Thread 'Jeanie' via CMLHope
il.com> wrote: > > Thank you all for the feedback. I am trying acupunture and guaraná. > > Em 28 de jun de 2016 11:39, "'Jeanie' via CMLHope" <cmlhope@googlegroups.com> > escreveu: >> When I was first in Gleevec I wanted to go visit my daughter. She cal

Re: [CMLHope] Anyone out there. Testing

2016-07-13 Thread 'Jeanie' via CMLHope
gt; >> On Tue, Jul 12, 2016 at 11:03 AM, 'Jeanie' via CMLHope >> <cmlhope@googlegroups.com> wrote: >> >> >> My Motto: >> Faith and Pills >> With Love >> 18's >> Dx 1/2004 CML Leukemia >> Started Gleevec 2/2004 >> Started T

Re: [CMLHope] Anyone out there. Testing

2016-07-13 Thread 'Jeanie' via CMLHope
; I'm out here in the heat & humidity trying to stay cool.  >> >> Sherri >> >> On Tue, Jul 12, 2016 at 11:03 AM, 'Jeanie' via CMLHope >> <cml...@googlegroups.com> wrote: >> >> >> My Motto: >> Faith and Pills >>

Re: [CMLHope] Anyone out there. Testing

2016-07-13 Thread 'Jeanie' via CMLHope
;>> From: sherri swanson <swanson@gmail.com> >>> To: cml...@googlegroups.com >>> Sent: Tuesday, July 12, 2016 8:06 PM >>> Subject: Re: [CMLHope] Anyone out there. Testing >>> >>> Hi Jeanie, >>> >>> I'm out here in the

Re: [CMLHope] New BCR-ABL test in

2016-07-13 Thread 'Jeanie' via CMLHope
Great news!!! Keep fighting. My Motto: Faith and Pills With Love 18's Dx 1/2004 CML Leukemia Started Gleevec 2/2004 Started Tasigna 9/2009 Started Sprycel 11/2009 Started Ponatinib 1/2015 Doctor Balducci Moffitt Cancer Center > On Jul 13, 2016, at 6:56 AM, Myvety2k via CMLHope

Re: [CMLHope] Anyone out there. Testing

2016-07-13 Thread 'Jeanie' via CMLHope
To: cmlhope@googlegroups.com > Sent: Tuesday, July 12, 2016 8:06 PM > Subject: Re: [CMLHope] Anyone out there. Testing > > Hi Jeanie, > > I'm out here in the heat & humidity trying to stay cool.  > > Sherri > > On Tue, Jul 12, 2016 at 11:03 AM, 'Jeanie' via

Re: [CMLHope] Fatigue side effect testing nilotinib

2016-07-13 Thread 'Jeanie' via CMLHope
us know how you are. > > God bless and keep you. > Joyce in IL >> On Jul 12, 2016, at 11:04 AM, 'Jeanie' via CMLHope >> <cmlhope@googlegroups.com> wrote: >> >> Anyone there. Testing >> >> My Motto: >> Faith and Pills >>

Re: [CMLHope] Fatigue side effect nilotinib

2016-06-28 Thread 'Jeanie' via CMLHope
When I was first in Gleevec I wanted to go visit my daughter. She called and I told her I was too tired to pack. She said don't pack get some rest. So my advise to you is don't do anything you don't have to do. Rest as much as you can. Your body is fighting a horrible disease and its

[CMLHope] Happy Fourth Of July

2016-07-04 Thread 'Jeanie' via CMLHope
Hello to all my wonderful warriors. I am hanging in there and blood is almost normal. Wbc came down to 9 but would like them a little lower but thank God I am back in MMR. I would like to hear from all; just a note to know how you are.  My Motto: Faith and Pills With Love

[CMLHope] Testing

2016-07-05 Thread 'Jeanie' via CMLHope
My Motto: Faith and Pills With Love 18's Dx 1/2004 CML Leukemia Started Gleevec 2/2004 Started Tasigna 9/2009 Started Sprycel 11/2009 Started Ponatinib 1/2015 Doctor Balducci Moffitt Cancer Center -- -- [CMLHope] A support group of http://cmlhope.com

Re: [CMLHope] Fatigue side effect nilotinib

2016-07-07 Thread 'Jeanie' via CMLHope
PM, Ricardo Gadelha <ricardodgade...@gmail.com> wrote: > > Thank you all for the feedback. I am trying acupunture and guaraná. > > Em 28 de jun de 2016 11:39, "'Jeanie' via CMLHope" <cmlhope@googlegroups.com> > escreveu: >> When I was first in Gleevec

[CMLHope] Fwd: Happy Fourth Of July

2016-07-07 Thread 'Jeanie' via CMLHope
6 at 7:22:39 PM EDT > To: 'Jeanie' via CMLHope <cmlhope@googlegroups.com> > Subject: Happy Fourth Of July > > Hello to all my wonderful warriors. I am hanging in there and blood is > almost normal. Wbc came down to 9 but would like them a little lower but > thank G

Re: [CMLHope] Fatigue side effect nilotinib

2016-07-08 Thread 'Jeanie' via CMLHope
r Balducci Moffitt Cancer Center > >> On Jul 6, 2016, at 7:12 PM, Ricardo Gadelha <ricardodgade...@gmail.com> >> wrote: >> >> Thank you all for the feedback. I am trying acupunture and guaraná. >> >> Em 28 de jun de 2016 11:39, "'Jeanie' vi

Re: [CMLHope] Fatigue side effect nilotinib

2016-07-08 Thread 'Jeanie' via CMLHope
r Balducci Moffitt Cancer Center > >> On Jul 6, 2016, at 7:12 PM, Ricardo Gadelha <ricardodgade...@gmail.com> >> wrote: >> >> Thank you all for the feedback. I am trying acupunture and guaraná. >> >> Em 28 de jun de 2016 11:39, "'Jeanie' via CMLH

Re: [CMLHope] Skip have you heard from Marty

2016-08-05 Thread 'Jeanie' via CMLHope
Glad you are good. Blessings My Motto: Faith and Pills With Love 18's Dx 1/2004 CML Leukemia Started Gleevec 2/2004 Started Tasigna 9/2009 Started Sprycel 11/2009 Started Ponatinib 1/2015 Doctor Balducci Moffitt Cancer Center > On Aug 4, 2016, at 5:35 PM, 'rszim0...@aol.com' via CMLHope >

Re: [CMLHope] Posting Privileges Have Been Removed For Some Members

2016-08-06 Thread 'Jeanie' via CMLHope
My Motto: Faith and Pills With Love 18's Dx 1/2004 CML Leukemia Started Gleevec 2/2004 Started Tasigna 9/2009 Started Sprycel 11/2009 Started Ponatinib 1/2015 Doctor Balducci Moffitt Cancer Center > On Mar 11, 2005, at 12:26 AM, Rob wrote: > > I have reviewed all of the

Re: [CMLHope] Posting Privileges Have Been Removed For Some Members

2016-08-06 Thread 'Jeanie' via CMLHope
That's an old text. Please ignore. My Motto: Faith and Pills With Love 18's Dx 1/2004 CML Leukemia Started Gleevec 2/2004 Started Tasigna 9/2009 Started Sprycel 11/2009 Started Ponatinib 1/2015 Doctor Balducci Moffitt Cancer Center > On Aug 6, 2016, at 7:16 AM, Jeanie

[CMLHope] Haven't heard from John either.

2016-08-06 Thread 'Jeanie' via CMLHope
Hi all Not well at all today. Just hanging in there. Does anyone know John who was on Ponatinib like me?? Haven't heard from him. Pain in side much worse. I was on oxycodone but took myself off due to terrible side effect. However it did help the pain. Taking my morning walk. Making

Re: [CMLHope] Haven't heard from John either.

2016-08-06 Thread 'Jeanie' via CMLHope
e been living > with this for so long. > > Praying for ya, honey, as all of u are in my prayers! > Hugs and 18's, > Sisan z > > Sent from my Sprint phone > > -- Original message-- > From: 'Jeanie' via CMLHope > Date: Sat, Aug 6, 2016 8:10 AM > To:

Re: [CMLHope] Haven't heard from John either.

2016-08-06 Thread 'Jeanie' via CMLHope
So sorry for your loss. I have 2 sons and know the pain you both are having. So glad to hear from you. Something's wrong with Marty but don't know what. And John hasn't checked in for a long time. Just keep living each day and enjoy each other. My hubby passed 18 years ago. I always

Re: [CMLHope] Haven't heard from John either.

2016-08-07 Thread 'Jeanie' via CMLHope
Hi Greenie I lost my young grandson,19, in a gun shot accident a couple years ago so I feel your loss. He was my baby and we were so close. But as you say life goes on and live on the good memories. He was a chef and would cook me meals so delicious. You will never forget the day you got

Re: [CMLHope] How is everyone

2016-08-02 Thread 'Jeanie' via CMLHope
as on > the original Gleevec study since 2001. > These words were music to my ears~~~ > Angie in Canada > From: 'Jeanie' via CMLHope <cmlhope@googlegroups.com> > To: 'Jeanie' via CMLHope <cmlhope@googlegroups.com> > Sent: Tuesday, August 2, 2016 1:13 PM > Subject: [CMLH

Re: [CMLHope] Tasigna and Lipitor

2016-07-22 Thread 'Jeanie' via CMLHope
My husband and brother got very ill on Lipitor. Try some natural ways first if you can. My Motto: Faith and Pills With Love 18's Dx 1/2004 CML Leukemia Started Gleevec 2/2004 Started Tasigna 9/2009 Started Sprycel 11/2009 Started Ponatinib 1/2015 Doctor Balducci Moffitt Cancer Center > On

Re: [CMLHope] Happy 4th of July!

2016-07-01 Thread 'Jeanie' via CMLHope
Happy Freedom Day!!!and the rockets break glare My Motto: Faith and Pills With Love 18's Dx 1/2004 CML Leukemia Started Gleevec 2/2004 Started Tasigna 9/2009 Started Sprycel 11/2009 Started Ponatinib 1/2015 Doctor Balducci Moffitt Cancer Center > On Jul 1, 2016, at 12:06 AM,

Re: [CMLHope] Disability and retirement

2017-02-02 Thread 'Jeanie' via CMLHope
Center > On Feb 2, 2017, at 10:22 AM, Marty Gartenberg <wa2...@gmail.com> wrote: > > Hey Jeanie, > > Your on the ball. Yea, you must be a smart resourceful person. > > 18's, > > Marty > >> On Thu, Feb 2, 2017 at 10:17 AM, 'Jeanie' via CMLHope >>

Re: [CMLHope] Disability and retirement

2017-02-02 Thread 'Jeanie' via CMLHope
Hi Greenie Did you still get your pension check? My Motto: Faith and Pills With Love 18's Dx 1/2004 CML Leukemia Started Gleevec 2/2004 Started Tasigna 9/2009 Started Sprycel 11/2009 Started Ponatinib 1/2015 Doctor Balducci Moffitt Cancer Center > On Feb 2, 2017, at 11:35 AM, Myvety2k via

Re: [CMLHope] 39 years with cml

2017-02-06 Thread 'Jeanie' via CMLHope
I was donating blood and having lots of tooth X-rays when I got it. Just don't know. Was around a lot of pesticides in my generation. Always spraying for mosquitos and such when I was a girl. Lived by a strawberries farm and they sprayed every day. No sickness of any kind until CML. Go

Re: [CMLHope] Fun thing to do

2017-02-08 Thread 'Jeanie' via CMLHope
et I was in the direct line of fire when an old lady >>> on a scooter hit a display of Javex. It splashed all over me.completely >>> ruined my clothes...and I had to drive home on that VERY HOT summer day(two >>> hr drive) in clothing soaked with Javex. Apparently

Re: [CMLHope] Fun thing to do

2017-02-08 Thread 'Jeanie' via CMLHope
of this was all about i probably wouldn't have > gotten CML > > Want to know what a FARADA suit is? CHECK THIS OUT > > https://www.youtube.com/watch?v=9tzga6qAaBA > > 18's, > > Marty > >> On Mon, Feb 6, 2017 at 6:08 PM, 'Jeanie' via CMLHope >> <

Re: [CMLHope] Fun thing to do

2017-02-08 Thread 'Jeanie' via CMLHope
; hr drive) in clothing soaked with Javex. Apparently it absorbs through the > skin. I felt very ill the next day. I have always wondered.. > > I was cleaning calcium deposits off of seashells using CLR. It worked very > well. I did not wear gloves. I have always wondered..... >

Re: [CMLHope] Fun thing to do

2017-02-08 Thread 'Jeanie' via CMLHope
f engineer for a television station and at times i had to >>> be enclosed in a Faraday suit to try and avoid the dangerous currents and >>> high voltages of the transmitter. >>> >>> Had i known then what all of this was all about i probably wouldn't have >&g

Re: [CMLHope] Fun thing to do

2017-02-08 Thread 'Jeanie' via CMLHope
when an old lady >>> on a scooter hit a display of Javex. It splashed all over me.completely >>> ruined my clothes...and I had to drive home on that VERY HOT summer day(two >>> hr drive) in clothing soaked with Javex. Apparently it absorbs through the >&g

Re: [CMLHope] Fun thing to do

2017-02-08 Thread 'Jeanie' via CMLHope
t all of this was all about i probably wouldn't have >> gotten CML >> >> Want to know what a FARADA suit is? CHECK THIS OUT >> >> https://www.youtube.com/watch?v=9tzga6qAaBA >> >> 18's, >> >> Marty >> >>> On Mon, Feb

Re: [CMLHope] Re: Fun thing to do

2017-02-08 Thread 'Jeanie' via CMLHope
Thanks Peter We just didn't know the dangers. My mom used gas for cleaning different things. When I was little my brother and I decided to get dizzy smelling gas. We took off the gas cap and smelled the gas and turned round and round. Oh how sick I was. My Motto: Faith and Pills With Love

Re: [CMLHope] Fun thing to do

2017-02-08 Thread 'Jeanie' via CMLHope
gineer for a television station and at times i had to >>>> be enclosed in a Faraday suit to try and avoid the dangerous currents and >>>> high voltages of the transmitter. >>>> >>>> Had i known then what all of this was all about i probably wouldn't

Re: [CMLHope] Disability and retirement

2017-02-02 Thread 'Jeanie' via CMLHope
Hi to all My hubby was retired and was getting his retirement from his company. When he finally got his disability they cut his retirement and even made him pay back what they had paid him as his disability was retroactive. Medicare takes over when you start receiving it and our company

Re: [CMLHope] 39 years with cml

2017-02-02 Thread 'Jeanie' via CMLHope
Hi Skip and loved the web page. We have another CML friend whose leukemia started in his hip. You've had a long hard Journey but you are still with us. Praises. Mine is much the same as yours but they had already started on Gleevec then. I got mutations to all and am now on Ponatinib. I

Re: [CMLHope] 39 years with cml

2017-02-06 Thread 'Jeanie' via CMLHope
to be removed bu Mohs surgery, > > Then finally the immune drugs that keeps my systen free of rejection. > > 18's > > Marty > >> On Mon, Feb 6, 2017 at 8:03 AM, 'Jeanie' via CMLHope >> <cmlhope@googlegroups.com> wrote: >> I was donating blood

Re: [CMLHope] 39 years with cml

2017-02-06 Thread 'Jeanie' via CMLHope
had to be removed bu Mohs surgery, > > Then finally the immune drugs that keeps my systen free of rejection. > > 18's > > Marty > >> On Mon, Feb 6, 2017 at 8:03 AM, 'Jeanie' via CMLHope >> <cmlhope@googlegroups.com> wrote: >> I was donating blood

[CMLHope] Fun thing to do

2017-02-06 Thread 'Jeanie' via CMLHope
Let's all make s list of all the things we were doing when we got CML. Things that we didn't normally do or that were done every day. Mine were: Exposure to pesticides Dental X-rays more than normal Donating blood Deep grief over loss of hubby Thanks group. My Motto: Faith and Pills With Love

Re: [CMLHope] RE: feeling worried

2017-01-28 Thread 'Jeanie' via CMLHope
Ana Burgos <anab...@hotmail.com> wrote: > > > My mun after 13 years on Gleveec is now 0,19 the doctor is going to repeat > the pcr test if it is the same or worse wants to change the medication. > Can you tell me how is the move from gleevec to tasigna? Does it have lo

Re: [CMLHope] Change on date

2017-01-28 Thread 'Jeanie' via CMLHope
ke it a repeat >>> performance for you. I love everyone on this site and I know that everyone >>> on this site also loves me so do whatever you need to try and stay healthy >>> including no caffeine, drink water with non caffeinated iced tea mix, just >>> keep a pitc

Re: [CMLHope] Re: feeling worried

2017-01-28 Thread 'Jeanie' via CMLHope
signa? Does it have lots >> of side effects? >> >> >> >> >> >> >> >> >> >> De: 'Jeanie' via CMLHope >> Enviado: jueves, 5 de enero de 2017 22:51 >> Para: 'Jeanie' via CMLHope >> Asunto: [CMLHope] 2nd part

Re: [CMLHope] RE: feeling worried

2017-01-28 Thread 'Jeanie' via CMLHope
ll me how is the move from gleevec to tasigna? Does it have lots > of side effects? > > > > > De: 'Jeanie' via CMLHope > Enviado: jueves, 5 de enero de 2017 22:51 > Para: 'Jeanie' via CMLHope > Asunto: [CMLHope] 2nd part blood report. > > > > -

Re: [CMLHope] Haven't gotten any e-mail notifications

2016-09-06 Thread 'Jeanie' via CMLHope
Me either. Think everyone is on vacation. I had my cat scan. Some bad news. My pancreas has atrophied. Got to cut down on fat. I wonder if that is what is causing my pain. I know Ponatinib causes pancreatitis. Dr never says anything about it. Everything else was the same except for a

Re: [CMLHope] Re: About Marty

2016-09-08 Thread 'Jeanie' via CMLHope
I knew something had happened. Thanks so much for the news. My Motto: Faith and Pills With Love 18's Dx 1/2004 CML Leukemia Started Gleevec 2/2004 Started Tasigna 9/2009 Started Sprycel 11/2009 Started Ponatinib 1/2015 Doctor Balducci Moffitt Cancer Center > On Sep 8, 2016, at 6:58 AM,

Re: [CMLHope] Haven't gotten any e-mail notifications

2016-09-08 Thread 'Jeanie' via CMLHope
still in MMR. So I > will try to put it out of mind. > We learn so much from each other. Maybe you can enlighten me as to what a > ERCP is. > God bless and keep you. > Joyce in IL > > >> On Sep 6, 2016, at 1:48 PM, 'Jeanie' via CMLHope <cmlhope@googlegroup

[CMLHope] Marty number

2016-09-07 Thread 'Jeanie' via CMLHope
Here is Marty' s number. I can't hear good on phone so if someone could call great. 561_364/8998 Thanks My Motto: Faith and Pills With Love 18's Dx 1/2004 CML Leukemia Started Gleevec 2/2004 Started Tasigna 9/2009 Started Sprycel 11/2009 Started Ponatinib 1/2015 Doctor Balducci Moffitt Cancer

Re: [CMLHope] Haven't gotten any e-mail notifications

2016-09-07 Thread 'Jeanie' via CMLHope
> > Sent from my Sprint phone > > ------ Original message-- > From: 'Jeanie' via CMLHope > Date: Tue, Sep 6, 2016 8:48 AM > To: cmlhope@googlegroups.com; > Subject:Re: [CMLHope] Haven't gotten any e-mail notifications > > Thanks Joyce,Yes a low fat diet is recommended

Re: [CMLHope] Haven't gotten any e-mail notifications

2016-09-07 Thread 'Jeanie' via CMLHope
eks..I > agree with Joyce, so happy to be on the upside of the grass..we warriors need > to keep on uniting...stay stronger together... I will write more soon. Take > good care and know that you are loved and thought of18's Beth > > > -Original Message- > From: 'Jeanie' via

Re: [CMLHope] Re: About Marty

2016-09-09 Thread 'Jeanie' via CMLHope
Remember when we didn't hear from Millie for a while? Marty was the one who got in touch her son and gave us the news. He also sent flowers I believe. She had liver failure and had been in Tasigna for a long time. Bless her heart!! I still miss her like crazy. She had a lot of pain.

Re: [CMLHope] Just checking in

2016-09-11 Thread 'Jeanie' via CMLHope
Hi Beth and so sorry you got bitten. I was once bitten by a scorpion. That really hurt. Yes it's good to hear from everyone so keep posting. My ct scan showed several things wrong but this old body is aging and I'm taking a powerful chemo. Some times I wonder if I really want to know what's

Re: [CMLHope] Just checking in

2016-09-11 Thread 'Jeanie' via CMLHope
Hi Norm and all and sure do enjoy hearing from you. I've missed our Tasigna group but hope everyone has found this group as it is a wonderful comfort time and all. I'm so sorry about your friend and am happy to hear you have another one to enjoy. Thank you so much for giving us your story

Re: [CMLHope] Just checking in

2016-09-11 Thread 'Jeanie' via CMLHope
Hi Marty Just wondered how you fell. Love ya My Motto: Faith and Pills With Love 18's Dx 1/2004 CML Leukemia Started Gleevec 2/2004 Started Tasigna 9/2009 Started Sprycel 11/2009 Started Ponatinib 1/2015 Doctor Balducci Moffitt Cancer Center > On Sep 11, 2016, at 5:39 AM, sherri swanson

Re: [CMLHope] Just checking in

2016-09-12 Thread 'Jeanie' via CMLHope
at day. > > > Love, Beth. > > > -----Original Message- > From: 'Jeanie' via CMLHope <cmlhope@googlegroups.com> > To: cmlhope <cmlhope@googlegroups.com> > Sent: Sun, Sep 11, 2016 4:04 pm > Subject: Re: [CMLHope] Just checking in > > Hi Beth and so sorry you got

Re: [CMLHope] Just checking in

2016-09-13 Thread 'Jeanie' via CMLHope
had so many tests..maybe a > hernia they cannot see??? something is hiding..but not life threatening..just > a serious nuisance. > > I am thinking of you.. > > Love, B > > > -Original Message- > From: 'Jeanie' via CMLHope <cmlhope@googlegroups.com> &

Re: [CMLHope] Medicare and presc drugs cost

2016-09-15 Thread 'Jeanie' via CMLHope
I am on Medicare. I chose to have Medicare D which covers most of my prescriptions. Also if you are on low income there are companies that will pay your copay. Hope this helps. My Motto: Faith and Pills With Love 18's Dx 1/2004 CML Leukemia Started Gleevec 2/2004 Started Tasigna 9/2009

Re: [CMLHope] All zero club members

2016-09-30 Thread 'Jeanie' via CMLHope
t;> Just to let you know my Zavies zero club number is #1 and face book wasn't >>> even around then, so I also never got on face book. >>> >>> Join our club >>> >>>> On Wed, Sep 28, 2016 at 1:44 PM, sherri swanson >>>> <swanso

Re: [CMLHope] All zero club members

2016-09-30 Thread 'Jeanie' via CMLHope
lub >> >>> On Wed, Sep 28, 2016 at 1:44 PM, sherri swanson >>> <swanson.sherri...@gmail.com> wrote: >>> To bad I'm not on facebook. I have a Zavie number. >>> >>>> On Wed, Sep 28, 2016 at 8:19 AM, 'Jeanie' via CMLHope >>>>

Re: [CMLHope] Medicare and presc drugs cost

2016-09-15 Thread 'Jeanie' via CMLHope
I have Humana with no monthly payments. You can also call Medicare and they will look for your best option. My Motto: Faith and Pills With Love 18's Dx 1/2004 CML Leukemia Started Gleevec 2/2004 Started Tasigna 9/2009 Started Sprycel 11/2009 Started Ponatinib 1/2015 Doctor Balducci Moffitt

Re: [CMLHope] Insurance

2016-09-19 Thread 'Jeanie' via CMLHope
Yes when we started Medicare that had to become our primary insurance. Work insurance pays the copay unless they can wiggle out if it. Good luck. My Motto: Faith and Pills With Love 18's Dx 1/2004 CML Leukemia Started Gleevec 2/2004 Started Tasigna 9/2009 Started Sprycel 11/2009 Started

Re: [CMLHope] All zero club members

2016-09-28 Thread 'Jeanie' via CMLHope
28, 2016, at 1:44 PM, sherri swanson <swanson.sherri...@gmail.com> > wrote: > > To bad I'm not on facebook. I have a Zavie number. > >> On Wed, Sep 28, 2016 at 8:19 AM, 'Jeanie' via CMLHope >> <cmlhope@googlegroups.com> wrote: >> Thanks. I'll let h

Re: [CMLHope] All zero club members

2016-09-28 Thread 'Jeanie' via CMLHope
rs.com> wrote: > > I am # 76.... > > From: 'Jeanie' via CMLHope <cmlhope@googlegroups.com> > To: 'Jeanie' via CMLHope <cmlhope@googlegroups.com> > Sent: Wednesday, September 28, 2016 7:30 AM > Subject: [CMLHope] All zero club members > > > Hi Florida

Re: [CMLHope] My sister, me and my older brother

2016-09-26 Thread 'Jeanie' via CMLHope
Yes Marty God works in mysterious ways. But you are Still here with us and that's what counts. My mom fell over one of those and dislocated her shoulder. They are dangerous and am ever mindful of them. One of my sisters church friends tripped over a rug at a restaurant we visit quiet a

Re: [CMLHope] Zavie's List

2016-10-02 Thread 'Jeanie' via CMLHope
Wow!!! And thanks. Anyone else?!!! My Motto: Faith and Pills With Love 18's Dx 1/2004 CML Leukemia Started Gleevec 2/2004 Started Tasigna 9/2009 Started Sprycel 11/2009 Started Ponatinib 1/2015 Doctor Balducci Moffitt Cancer Center > On Sep 30, 2016, at 11:06 PM, ANGELYN ESDERS

Re: [CMLHope] This was posted on our Yahoo site - WE ALL NEED TO READ THE ARTICLE!!!!!

2016-11-10 Thread 'Jeanie' via CMLHope
my counts are back within range. > I'll take it. > > Hope everyone is doing well. > > L'Chaim > > Sherri > >> On Mon, Nov 7, 2016 at 2:50 PM, 'Jeanie' via CMLHope >> <cmlhope@googlegroups.com> wrote: >> Good to hear from you and I know what

Re: [CMLHope] This was posted on our Yahoo site - WE ALL NEED TO READ THE ARTICLE!!!!!

2016-11-07 Thread 'Jeanie' via CMLHope
Good to hear from you and I know what you mean. I get tired of it all too but I've been a CML warrior almost 13 years and live by faith and pills. I'm on my fourth tki now and I feel it's my last try. I can't go off because my platelets and wbc go sky high when I do. Just get your rest and

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