Re: [CMLHope] anemia

[L Clapp]

Who is her oncologist because my oncologist Dr. Talpaz just moved me from
Sprycel to Bosulif. ?

On Fri, Dec 22, 2017 at 2:10 PM, Ana Burgos  wrote:

> Hello,
>
> my mum is suffering from very low hemoglobine and very low iron.
>
> any of you happen the same?
>
> another question is what do you think about bosutinib, after 14 years in
> gleevec the doc. is thinking of changing to bosutinib
>
> what about side effects comparing it to gleevec?
>
>
> thanks in advance
>
>
>
>
> --
> .
>
> --
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Re: [CMLHope] anemia

['Jeanie' via CMLHope]

Thanks Susan. I have never had diarrhea but have constipation. Tried everything 
and finally saw Mira lax.   Tried it and it worked perfect. Can you believe 
after trying all those things.  You can buy generic and insurance pays. 
Keep looking up. 


My Motto:
Faith and Pills
With Love
18's
Dx 1/2004 CML Leukemia
Started Gleevec 2/2004
Started Tasigna 9/2009
Started Sprycel 11/2009
Started Ponatinib 1/2015
Doctor Balducci Moffitt Cancer Center 

> On Jan 25, 2018, at 1:21 PM, 'Susan Zimmerman' via CMLHope 
>  wrote:
> 
> I am on bosutinib for over 2 years now. There are absolutely no side effects 
> except diarrhea. This can be controlled with medicine. I am happy to be on 
> this drug.
> 
> Susan F. Zimmerman
> "All who humble themselves before the Lord shall be given every blessing, and 
> shall have wonderful peace." Ps.37:11
> 
> 
> 
> On Thursday, January 25, 2018 Jamie Tufariello  wrote:
> 
> 
> 
>> On Friday, December 22, 2017, Ana Burgos  wrote:
>> Hello, 
>> my mum is suffering from very low hemoglobine and very low iron.
>> any of you happen the same?
>> another question is what do you think about bosutinib, after 14 years in 
>> gleevec the doc. is thinking of changing to bosutinib
>> what about side effects comparing it to gleevec?
>> 
>> thanks in advance
>> 
>> 
>> 
>>  .
>> -- 
>> -- 
>> [CMLHope]
>> A support group of http://cmlhope.com
>> -
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Re: [CMLHope] anemia

['Susan Zimmerman' via CMLHope]

I am on bosutinib for over 2 years now. There are absolutely no side effects 
except diarrhea. This can be controlled with medicine. I am happy to be on this 
drug.

Susan F. Zimmerman
"All who humble themselves before the Lord shall be given every blessing, and 
shall have wonderful peace." Ps.37:11

On Thursday, January 25, 2018 Jamie Tufariello  wrote:



On Friday, December 22, 2017, Ana Burgos  wrote:

Hello, 

my mum is suffering from very low hemoglobine and very low iron.

any of you happen the same?

another question is what do you think about bosutinib, after 14 years in 
gleevec the doc. is thinking of changing to bosutinib

what about side effects comparing it to gleevec?


thanks in advance




.

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Re: [CMLHope] anemia

[Jamie Tufariello]

On Friday, December 22, 2017, Ana Burgos  wrote:

> Hello,
>
> my mum is suffering from very low hemoglobine and very low iron.
>
> any of you happen the same?
>
> another question is what do you think about bosutinib, after 14 years in
> gleevec the doc. is thinking of changing to bosutinib
>
> what about side effects comparing it to gleevec?
>
>
> thanks in advance
>
>
>
>
> --
> .
>
> --
> --
> [CMLHope]
> A support group of http://cmlhope.com
> -
>
> You received this message because you are subscribed to the Google Groups
> "CMLHope" group.
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> group/CMLHope
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Re: [CMLHope] anemia

[Myvety2k via CMLHope]

I would rather go back to Chicago for my test but the cost to  fly at this 
time of the year is very costly.  I was just their on Dec 6 and  it was 
close to $600.  I checked the fly's for month of Jan and I can fly  their for 
$40 going but at $445 back.Have to see and Oncologist  on Jan 2nd and see if I 
can get it done at Lee Health Center a few miles from my  home.
 
greenie
 
 
In a message dated 12/22/2017 4:38:43 P.M. Eastern Standard Time,  
cmlhope@googlegroups.com writes:

Pcr
Hi Greenie
Doctors at Moffitt don't do BMA. They do PCR blood  test. My doctor Dr 
Baldicci, 
Is my doctor and head of the senior oncology center  of Moffitt and they 
are't doing BMA 
So instead of drawing 2 vials blood they draw  three. 
Dr Balducci is retiring the first of the year but  there are many 
specialist there. Good luck 

My Motto:  
Faith and Pills
With Love
18's
Dx 1/2004 CML Leukemia
Started Gleevec 2/2004
Started Tasigna 9/2009
Started Sprycel 11/2009
Started Ponatinib 1/2015
Doctor Balducci Moffitt Cancer Center 


On Dec 22, 2017, at 3:47 PM, Marty Gartenberg  wrote:




Hi Ana,

It's not so much the question of changing one  of her TKI's, from Bosutinib 
 to Bosutinib after being on Gleevec for fourteen years. Since  there a lot 
of things that you and your mother need to consider like her  age, her 
general health like the low Hemoglobin and Red Cell Blood counts  which you 
didn't include in your email, and one important thing how are her  kidneys? 
What 
her Creatinine level are right now? And has she had a CBC  (Complete Blood 
Count lately? Also if she did what were the results? You  already know but 
what were they actually? Can  you specify what these counts were or are?? 


One  other thing, is his or her doctor, i assume that he or she is a 
qualified  Oncologist? And are any of their specialties for-instance is  CML?
Also how many mg of Gleevec is she taking and for  how long? I know that 
you mentioned that it was for the past 14 years, but  has she ever taken a 
"vacation" from it, and if so did she have any  effects of it reappearing ?  
Has she been tested for ABL/PCR  lately and what were her results? 


Finally,  has your mother seen a Nephroloigst lately? All of these 
questions are very  important and before any doctor/s makes any decisions about 
changing  any of her TKI's you have to know exactly what these answers are 
before  anyone can give you any advise.


I  will leave you with this advice:
Please  don't let any of this intimidate you or your mother because you
have the right to ask questions  and those that you have requested 
them from have the oblation to  answer them.  


If you get the chance would you  kindly let me know about my answers 
from  me to you.


I  don't recall if i ever have spoken to you before. So  just so you know i 
always
end  any of my posts with 18's which means LIFE.


18's,


Marty


On Fri, Dec 22, 2017 at 3:34 PM, Marty Gartenberg   wrote:

Hi Ana,

It's not so much the question of changing one of her TKI's, from  Bosutinib 
 to Bosutinib after being on Gleevec for fourteen years. Since  there a lot 
of things that you and your mother need to consider like her  age, her 
general health like the low Hemoglobin and Red Cell Blood counts  which you 
didn't include in your email, and one important thing how are  her kidneys? 
What 
her Creatinine level are right now? And has she had a  CBC (Complete Blood 
Count lately? Also if she did what were the results?  You already know but 
what were they actually? Can  you specify what these counts were or are?? 


One other thing, is his or her doctor, i assume  that he or she is a 
qualified Oncologist? And are any of their specialties  for-instance is CML?
Also how many mg of Gleevec is she taking and for  how long? Has she been 
tested you for ABL/PCR lately and what were her  results were her results?


Finally, has your mother seen a Nephroloigst  lately? All of these 
questions are very important and before any doctor/s  makes any decisions about 
changing any of her TKI's you have to know  exactly what these answers are 
before anyone can give you any  advise.


I  will leave you with this advice:
Please  don't let any of this intimidate you or your mother because  you
have the right to ask  questions and those that you have requested 
them from have the oblation  to answer them.  


If you get the chance would  you kindly let me know about my answers 
from  me to you.


I  don't recall if i ever have spoken to you before. So  just so you know i 
always
end  any of my posts with 18's which means LIFE.


18's,


Marty











 

On Fri, Dec 22, 2017 at 2:10 PM, Ana Burgos  wrote:


 
 
Hello, 
my mum is suffering from  very low hemoglobine and very low iron. 
any of you happen the  same? 
another question is what  do you think about bosutinib, after 14 years in 
gleevec the doc. is  thinking of changing to bosutinib 
what about side effects  

Re: [CMLHope] anemia

['Jeanie' via CMLHope]

Pcr
Hi Greenie
Doctors at Moffitt don't do BMA. They do PCR blood test. My doctor Dr Baldicci, 
Is my doctor and head of the senior oncology center of Moffitt and they are't 
doing BMA 
So instead of drawing 2 vials blood they draw three. 
Dr Balducci is retiring the first of the year but there are many specialist 
there. Good luck 

My Motto:
Faith and Pills
With Love
18's
Dx 1/2004 CML Leukemia
Started Gleevec 2/2004
Started Tasigna 9/2009
Started Sprycel 11/2009
Started Ponatinib 1/2015
Doctor Balducci Moffitt Cancer Center 

> On Dec 22, 2017, at 3:47 PM, Marty Gartenberg  wrote:
> 
> Hi Ana,
> 
> It's not so much the question of changing one of her TKI's, from Bosutinib to 
> Bosutinib after being on Gleevec for fourteen years. Since there a lot of 
> things that you and your mother need to consider like her age, her general 
> health like the low Hemoglobin and Red Cell Blood counts which you didn't 
> include in your email, and one important thing how are her kidneys? What her 
> Creatinine level are right now? And has she had a CBC (Complete Blood Count 
> lately? Also if she did what were the results? You already know but what were 
> they actually? Can you specify what these counts were or are?? 
> 
> One other thing, is his or her doctor, i assume that he or she is a qualified 
> Oncologist? And are any of their specialties for-instance is CML?
> Also how many mg of Gleevec is she taking and for how long? I know that you 
> mentioned that it was for the past 14 years, but has she ever taken a 
> "vacation" from it, and if so did she have any effects of it reappearing ?  
> Has she been tested for ABL/PCR lately and what were her results? 
> 
> Finally, has your mother seen a Nephroloigst lately? All of these questions 
> are very important and before any doctor/s makes any decisions about changing 
> any of her TKI's you have to know exactly what these answers are before 
> anyone can give you any advise.
> 
> I will leave you with this advice:
> Please don't let any of this intimidate you or your mother because you
> have the right to ask questions and those that you have requested 
> them from have the oblation to answer them.  
> 
> If you get the chance would you kindly let me know about my answers 
> from me to you.
> 
> I don't recall if i ever have spoken to you before. So just so you know i 
> always
> end any of my posts with 18's which means LIFE.
> 
> 18's,
> 
> Marty
> 
>> On Fri, Dec 22, 2017 at 3:34 PM, Marty Gartenberg  wrote:
>> Hi Ana,
>> 
>> It's not so much the question of changing one of her TKI's, from Bosutinib 
>> to Bosutinib after being on Gleevec for fourteen years. Since there a lot of 
>> things that you and your mother need to consider like her age, her general 
>> health like the low Hemoglobin and Red Cell Blood counts which you didn't 
>> include in your email, and one important thing how are her kidneys? What her 
>> Creatinine level are right now? And has she had a CBC (Complete Blood Count 
>> lately? Also if she did what were the results? You already know but what 
>> were they actually? Can you specify what these counts were or are?? 
>> 
>> One other thing, is his or her doctor, i assume that he or she is a 
>> qualified Oncologist? And are any of their specialties for-instance is CML?
>> Also how many mg of Gleevec is she taking and for how long? Has she been 
>> tested you for ABL/PCR lately and what were her results were her results?
>> 
>> Finally, has your mother seen a Nephroloigst lately? All of these questions 
>> are very important and before any doctor/s makes any decisions about 
>> changing any of her TKI's you have to know exactly what these answers are 
>> before anyone can give you any advise.
>> 
>> I will leave you with this advice:
>> Please don't let any of this intimidate you or your mother because you
>> have the right to ask questions and those that you have requested 
>> them from have the oblation to answer them.  
>> 
>> If you get the chance would you kindly let me know about my answers 
>> from me to you.
>> 
>> I don't recall if i ever have spoken to you before. So just so you know i 
>> always
>> end any of my posts with 18's which means LIFE.
>> 
>> 18's,
>> 
>> Marty
>> 
>>   
>> 
>> 
>> 
>> 
>>> On Fri, Dec 22, 2017 at 2:10 PM, Ana Burgos  wrote:
>>> Hello, 
>>> my mum is suffering from very low hemoglobine and very low iron.
>>> any of you happen the same?
>>> another question is what do you think about bosutinib, after 14 years in 
>>> gleevec the doc. is thinking of changing to bosutinib
>>> what about side effects comparing it to gleevec?
>>> 
>>> thanks in advance
>>> 
>>> 
>>> 
>>>  .
>>> -- 
>>> -- 
>>> [CMLHope]
>>> A support group of http://cmlhope.com
>>> -
>>>  
>>> You received this message because you are subscribed to the Google Groups 
>>> "CMLHope" group.
>>> To post to this group, send email to 

Re: [CMLHope] anemia

[Marty Gartenberg]

Hi Ana,

It's not so much the question of changing one of her TKI's, from Bosutinib
to Bosutinib after being on Gleevec for fourteen years. Since there a lot
of things that you and your mother need to consider like her age, her
general health like the low Hemoglobin and Red Cell Blood counts which you
didn't include in your email, and one important thing how are her kidneys?
What her Creatinine level are right now? And has she had a CBC (Complete
Blood Count lately? Also if she did what were the results? You already know
but what were they actually? Can you specify what these counts were or
are??

One other thing, is his or her doctor, i assume that he or she is a
qualified Oncologist? And are any of their specialties for-instance is CML?
Also how many mg of Gleevec is she taking and for how long? I know that you
mentioned that it was for the past 14 years, but has she ever taken a
"vacation" from it, and if so did she have any effects of it reappearing ?
Has she been tested for ABL/PCR lately and what were her results?

Finally, has your mother seen a Nephroloigst lately? All of these questions
are very important and before any doctor/s makes any decisions about
changing any of her TKI's you have to know exactly what these answers are
before anyone can give you any advise.

I will leave you with this advice:
Please don't let any of this intimidate you or your mother because you
have the right to ask questions and those that you have requested
them from have the oblation to answer them.

If you get the chance would you kindly let me know about my answers
from me to you.

I don't recall if i ever have spoken to you before. So just so you know i
always
end any of my posts with 18's which means LIFE.

18's,

Marty

On Fri, Dec 22, 2017 at 3:34 PM, Marty Gartenberg  wrote:

> Hi Ana,
>
> It's not so much the question of changing one of her TKI's, from Bosutinib
> to Bosutinib after being on Gleevec for fourteen years. Since there a lot
> of things that you and your mother need to consider like her age, her
> general health like the low Hemoglobin and Red Cell Blood counts which you
> didn't include in your email, and one important thing how are her kidneys?
> What her Creatinine level are right now? And has she had a CBC (Complete
> Blood Count lately? Also if she did what were the results? You already know
> but what were they actually? Can you specify what these counts were or
> are??
>
> One other thing, is his or her doctor, i assume that he or she is a
> qualified Oncologist? And are any of their specialties for-instance is CML?
> Also how many mg of Gleevec is she taking and for how long? Has she been
> tested you for ABL/PCR lately and what were her results were her results?
>
> Finally, has your mother seen a Nephroloigst lately? All of these
> questions are very important and before any doctor/s makes any
> decisions about changing any of her TKI's you have to know exactly what
> these answers are before anyone can give you any advise.
>
> I will leave you with this advice:
> Please don't let any of this intimidate you or your mother because you
> have the right to ask questions and those that you have requested
> them from have the oblation to answer them.
>
> If you get the chance would you kindly let me know about my answers
> from me to you.
>
> I don't recall if i ever have spoken to you before. So just so you know i
> always
> end any of my posts with 18's which means LIFE.
>
> 18's,
>
> Marty
>
>
>
>
>
>
> On Fri, Dec 22, 2017 at 2:10 PM, Ana Burgos  wrote:
>
>> Hello,
>>
>> my mum is suffering from very low hemoglobine and very low iron.
>>
>> any of you happen the same?
>>
>> another question is what do you think about bosutinib, after 14 years in
>> gleevec the doc. is thinking of changing to bosutinib
>>
>> what about side effects comparing it to gleevec?
>>
>>
>> thanks in advance
>>
>>
>>
>>
>> --
>> .
>>
>> --
>> --
>> [CMLHope]
>> A support group of http://cmlhope.com
>> -
>>
>> You received this message because you are subscribed to the Google Groups
>> "CMLHope" group.
>> To post to this group, send email to CMLHope@googlegroups.com
>> To unsubscribe from this group, send email to
>> cmlhope-unsubscr...@googlegroups.com
>> For more options, visit this group at http://groups.google.com/group
>> /CMLHope
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>>
>
>

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Re: [CMLHope] anemia

[Marty Gartenberg]

Hi Ana,

It's not so much the question of changing one of her TKI's, from Bosutinib
to Bosutinib after being on Gleevec for fourteen years. Since there a lot
of things that you and your mother need to consider like her age, her
general health like the low Hemoglobin and Red Cell Blood counts which you
didn't include in your email, and one important thing how are her kidneys?
What her Creatinine level are right now? And has she had a CBC (Complete
Blood Count lately? Also if she did what were the results? You already know
but what were they actually? Can you specify what these counts were or
are??

One other thing, is his or her doctor, i assume that he or she is a
qualified Oncologist? And are any of their specialties for-instance is CML?
Also how many mg of Gleevec is she taking and for how long? Has she been
tested you for ABL/PCR lately and what were her results were her results?

Finally, has your mother seen a Nephroloigst lately? All of these questions
are very important and before any doctor/s makes any decisions about
changing any of her TKI's you have to know exactly what these answers are
before anyone can give you any advise.

I will leave you with this advice:
Please don't let any of this intimidate you or your mother because you
have the right to ask questions and those that you have requested
them from have the oblation to answer them.

If you get the chance would you kindly let me know about my answers
from me to you.

I don't recall if i ever have spoken to you before. So just so you know i
always
end any of my posts with 18's which means LIFE.

18's,

Marty






On Fri, Dec 22, 2017 at 2:10 PM, Ana Burgos  wrote:

> Hello,
>
> my mum is suffering from very low hemoglobine and very low iron.
>
> any of you happen the same?
>
> another question is what do you think about bosutinib, after 14 years in
> gleevec the doc. is thinking of changing to bosutinib
>
> what about side effects comparing it to gleevec?
>
>
> thanks in advance
>
>
>
>
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> .
>
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[CMLHope] anemia

[Ana Burgos]

Hello,

my mum is suffering from very low hemoglobine and very low iron.

any of you happen the same?

another question is what do you think about bosutinib, after 14 years in 
gleevec the doc. is thinking of changing to bosutinib

what about side effects comparing it to gleevec?


thanks in advance




.

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[CMLHope] Anemia

[sassy]

Hi
  Need to know what your counts would be
when put on Procrit???
Mary
Joe's other 1/2
dx1996 hydrea until
gleevec until restance
Sprycel 50mg since Nov


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[CMLHope] anemia

[sheila]

Is it normal to be anemic while taking gleevec?  Last summer before I
was diagnosed I was anemic and after I started taking gleevec my
hemoglobin level went back to normal.  In May of 2006 I went from
taking 400 mgs of gleevec to 800 mgs.  In July my hemoglobin levels
started falling and since I have been anemic.  I was just wondering if
this was a side effect or what since I'm on a  higher dose?   I also
suffer with neutropina and average a neulasta shot about once every 5 ~
6 weeks.

Thanks!

Sheila
38 yrs old
dxed 8/3/05
800 mgs gleevec
Last FISH (5 weeks ago) 3.8%
down from 68% in May


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