Re: [Felvtalk] Wolfie Update

2009-10-25 Thread Belinda Sauro

   Hi Gary,
  Yep, am on both CRF lists ... He's been getting fluids for about 3 
1/2 years now, gets binders, potassium, heart meds and all kinds of 
other goodies.  He has been doing fairly well until the last 4 or 5 
months, he has lost all muscle mass in both back legs and is starting to 
really lose weight.


He is 18 1/2 and sleeps a lot but I guess at that age he as earned it!!

--

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Re: [Felvtalk] Wolfie Update

2009-10-25 Thread gary
Sounds like you are well versed in the crf stuff.  It's tough to watch these
old ones start to fail, I lost a couple of my old guys earlier this year, 17
and 18, had them since they were tiny kittens.

Gary

-Original Message-
From: felvtalk-boun...@felineleukemia.org
[mailto:felvtalk-boun...@felineleukemia.org] On Behalf Of Belinda Sauro
Sent: Sunday, October 25, 2009 1:33 AM
To: felvtalk@felineleukemia.org
Subject: Re: [Felvtalk] Wolfie Update

Hi Gary,
   Yep, am on both CRF lists ... He's been getting fluids for about 3 
1/2 years now, gets binders, potassium, heart meds and all kinds of 
other goodies.  He has been doing fairly well until the last 4 or 5 
months, he has lost all muscle mass in both back legs and is starting to 
really lose weight.

He is 18 1/2 and sleeps a lot but I guess at that age he as earned it!!

-- 

Belinda


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Re: [Felvtalk] Wolfie Update

2009-10-25 Thread Jane Lyons

thanks very much, Gary
I'll call him.

Jane
On Oct 24, 2009, at 9:52 PM, gary wrote:

I don't believe I have seen any side effects listed anywhere and  
the two I
have on it have just gotten their 4th shot with no noticeable side  
effects.
One is just about 11 weeks old and pretty small, the other about 5  
months

and both seem to be doing fine.

I don't really know if it would help with the stomatitis, but you  
can call
the vet that is the company's technical assistance guy for  
Acemannan.  It is

made by VPL and their tech asst. page is
http://www.vpl.com/techinfo.php Dr. Greg Biehle is his name and he  
is very
good about talking to people about it.  I talked to him and my vet  
talked to
him.  My vet said they were very impressed with him.  Ask him about  
the
stomatitis.  I think he only works in the morning and has some days  
he is in

surgery, but he will call you back.

Gary

-Original Message-
From: felvtalk-boun...@felineleukemia.org
[mailto:felvtalk-boun...@felineleukemia.org] On Behalf Of Jane Lyons
Sent: Saturday, October 24, 2009 5:51 PM
To: felvtalk@felineleukemia.org
Subject: Re: [Felvtalk] Wolfie Update

Gary are their side effects to the Acemannan?
I have never heard about it from my vets, although they always seem  
the

last to know. My cat is Felv but stable now although she has
stomatitis. Do you think it
might help?
Thanks
Jane



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Re: [Felvtalk] Wolfie Update

2009-10-24 Thread gary
Hi Belinda,

Sorry your little kitty is so sick, an HCT of 16% is serious, but not yet
critical.  The critical part is how fast it is dropping, 10% and under is
critical.  I have had a couple that were so fast nothing could be done.

Now the bad news, you missed.  There wouldn't be much wetness from .15 cc
and there won't be any if it goes in. The dosage is almost correct (probably
close enough) but the actual correct dosage is .16 cc.  If it were me, I
would do it again, even if some of it got in, he needs the whole dose and a
bit over won't hurt him.  I have had a couple of misses myself and there is
just what seems to be a tiny bit of wetness.  If you want to check and see
just how little fluid that really is, just use one of the old syringes and
take up .15 of water and squirt it on his fur.

I don't want to discourage you, but sometimes Epogen works and sometimes it
doesn't.  Also, it takes awhile to get the full benefit of it, sometimes as
long as 2 - 3 weeks.

Presently, I am trying Acemannan Immunostimulant on a couple of FeLV kittens
and it seems to be working.  The smaller kitten I didn't get a HCT on to
start with, he had pale gums and a URI.  The other had an HCT of 18%, after
3 shots of Acemannan (one a week) his HCT just before his fourth shot was
32%.  Both kittens seem to be doing well now.  I wish I had had some of this
when I lost a couple of my adult FeLV cats that got really sick.  I've
spoken to the vet who did the trials and he said it brought some of the test
cats back from death's door.  Of course, it is not 100% effective, works for
some and they lost some.  He said about one third of the calls he gets about
it are from vets who want to try it on their own FeLV or FIV cats.

The down side of it is it is a little expensive and only a vet can buy it.
My vet charges me $125 for four 10 ml vials and I think that may be his cost
or close to it as I was told it was about $175.  The protocol is one shot a
week for 6 weeks and then one a month.  It is dosed at 1 mg per kg. Fred
would need 3.2 mg, the stuff is 1 mg per ml, so 10 mg per bottle or about 3
shots for Fred. The other downside is the first 6 shots are given IP
(through the abdominal wall) so I have the vet do these and even he doesn't
like it.  The monthly shots can be given sub-q. 

The instructions say once it is mixed you have to use it in 4 hours, but the
vet who did the trials said you can keep it in the fridge for a week or in
the freezer for a month.  The two kittens I have use almost a third of a
bottle (it comes in two bottle pairs, one with the powder and one with
saline) and you mix the saline with the powder.  I have them save the saline
bottle and after the first sots I have them take half of what is left and
put it in the saline bottle and I freeze one and put one in the fridge.

Gary   

-Original Message-
From: felvtalk-boun...@felineleukemia.org
[mailto:felvtalk-boun...@felineleukemia.org] On Behalf Of Belinda Sauro
Sent: Friday, October 23, 2009 11:18 PM
To: felvtalk@felineleukemia.org
Subject: Re: [Felvtalk] Wolfie Update

 Gary,
   I got the 1ml 2000 IU and Fred weighs 7lb 2oz.  I am using a insulin 
syringe that is 1/2 cc and was told to give Fred .15 or on the 15 line 
on the syringe.  Does that sound right to you, his HCT was 16% on 
Tuesday, he got his first shot today and his fur felt wet after, not 
much but a bit, I hope I didn't miss and he didn't really get it.  I was 
afraid to do more but he is so weak if I did miss I am really afraid he 
won't make it to Sunday when I give him the next dose.

Any suggestions.



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Re: [Felvtalk] Wolfie Update

2009-10-24 Thread MaryChristine
thanks for the report on the acemannan, gary--i've heard really good things
about it, not necessarily in terms of cure, but re: giving cats some
additional months or years of quality time with their humans.

AND there's research behind it.

also thanks, as usual, for making the math of dosages clear: i know that
sometimes i have trouble making sense out of it, and have learned that
you're the one to run to!

MC

-- 
Spay  Neuter Your Neighbors!
Maybe That'll Make The Difference

MaryChristine
Special-Needs Coordinator, Purebred Cat Breed Rescue (www.purebredcats.org)
Member, SCAT (Special-Cat Action Team)
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Re: [Felvtalk] Wolfie Update

2009-10-24 Thread dlgegg
thank you


 Sharyl cline...@yahoo.com wrote: 
 Dorlis,
 Here is the link to the yahoo anemia group.
 http://pets.groups.yahoo.com/group/Feline_Anemia/
 
 Sharyl
 
 --- On Fri, 10/23/09, dlg...@windstream.net dlg...@windstream.net wrote:
 
  From: dlg...@windstream.net dlg...@windstream.net
  Subject: Re: [Felvtalk] Wolfie Update
  To: felvtalk@felineleukemia.org
  Cc: Sharyl cline...@yahoo.com
  Date: Friday, October 23, 2009, 9:02 PM
  Sharyl,  i missed the lik for
  anemia, could you send it again?  asking because Lil
  Bit did have a kidney infection and her count dropped
  1  point.  we gave her fluids and anitbiotics and
  in 1 week, she had bounced back.  so far no repeats,
  BUT.  DORLIS
   Sharyl cline...@yahoo.com
  wrote: 
   
   Amy,
   Epogen is very effective for treating non-regenerative
  anemia.  Treatment is not started until the HCT or PCV
  is below 20 and usually in the mid-teens. The Anemia group I
  gave you the link for has more info on treatment protocol.
   Sharyl
   
   --- On Thu, 8/6/09, Iva Lark Emily Seaberg melleph...@sbcglobal.net
  wrote:
   
From: Iva Lark Emily Seaberg melleph...@sbcglobal.net
Subject: Re: [Felvtalk] Wolfie Update
To: felvtalk@felineleukemia.org
Date: Thursday, August 6, 2009, 1:32 AM
A few years ago I had a kitty with
Chronic Renal Failure. Towards the end he was
  extremely
anemic and we did the Epogen. I'm so glad we did
  it because
it did buy us some time. I decided to try the
  Epogen when it
became clear he was not making new blood cells,
  his anemia
became extreme and we knew that without help he
  would die
from it, a slow, lethargic and very sad death. I
  wanted to
give him a chance and the Epogen did. My vet
  talked to UC
Davis about his unique situation (he also had
  high blood
pressure and a heart problem) and we gave him a
  really
really low dose. I believe typically they give it
  3-4 times
a week and we gave it once a week. It was such a
  low dose
the vet thought it might not work, but it did and
  actually
better than we anticipated.

So, I can't speak for the FeLV stuff, but I can
  say the
Epogen wasn't as evil as I was expecting to be
  from what I
had heard word of mouth. We used it very
  cautiously, and it
seemed to make a big difference. You just really
  have to
watch it, start off slow. It is easier to add
  treatments
then try and slow it down and you don't want
  their values
increasing too fast.

Good luck,

Iva

- Original Message - 
 Message: 7
 Date: Tue, 4 Aug 2009 16:38:44 -0700 (PDT)
 From: Amy awilkin...@yahoo.com
 Subject: [Felvtalk] Wolfie Update

 
 So I've been posting about my cat Wolfie who
  has been
losing weight since about mid 2006, from 15.4 lbs
  down to
10.8 lbs today.  His last visit was on July 2nd
  and he
had a HCT of 29.  He also tested positive for
Mycoplasma haemominutum previously called
  Haemobartonella
felis small form.  He's been on doxy, pred, and
Pet-Tinic twice daily for almost a month.
 
 My vet thought he looked great today and he
  hasn't
lost any weight since his last visit but he's not
  gaining
and his HCT is still going down.  We took a tiny
  amount
of blood and sent it out for a reticulocyte
  count. I've lost
almost all my leuk positives to anemia in the end
  (except
for one to lymphoma and one to neurological
  issues) and I'm
really bummed out by the news.  I was hoping
  treating
the Hemobart would help the HCT even though my
  vet wasn't as
optimistic.
 
 I'm just wondering how most people here lose
  their
leuk positives.  It seems all of mine do so
  well, are
completely asymptomatic and then out of nowhere
  they stop
making red blood cells, the HCT starts to drop,
  and it is
downhill from there.  My vet wrote me a 10 page
  letter
on everything that could cause weight loss and
  anemia and we
have eliminated almost all the possibilities I
  think. 
We haven't done a digestive panel yet because it
  takes 4 mls
of blood and I don't want to do that with his HCT
  dropping.
If the reticulocyte test comes back and shows he
  is making
red blood cells, we will start investigating
  digestive
issues or anything else that could be causing his
  lower
HCT.  If it comes back as nonregenerative
  anemia, is
there anything I can do?  I know there is the
  option of
Epogen and I'm looking into that.  Anything else
  or do
I just spend time with him and wait?  I hate
  this point
where they are feeling fine, looking fine, and I
  know it's
only
 a matter of time :(  This guy has been with
  me
longer than any of my other positives and I'd do
  anything to
help him but I'm afraid there's nothing else I
  can do. 
Thoughts?
 
 Amy

Re: [Felvtalk] Wolfie Update

2009-10-24 Thread dlgegg
you probably did, just that i am playing late night catch up on e-mails and 
most likely missed it.  dorlis  double thank you
 gary gcru...@centurytel.net wrote: 
 I thought I had answered this when the subject first came up, but with my
 memory, you never know.  They don't have much of a website, it most has a
 few links to download forms. 
 http://www.walmart.com/catalog/catalog.gsp?cat=538876   It is faster to just
 call them if you want to find out if they have what you are looking for and
 how much that will be.  You can also have your vet or doctor call in the
 script.  Phone number is 1-877-453-4566.
 
 Gary
 
 -Original Message-
 From: felvtalk-boun...@felineleukemia.org
 [mailto:felvtalk-boun...@felineleukemia.org] On Behalf Of
 dlg...@windstream.net
 Sent: Friday, October 23, 2009 8:55 PM
 To: felvtalk@felineleukemia.org
 Cc: MaryChristine
 Subject: Re: [Felvtalk] Wolfie Update
 
 I NEVER HEARDOF WALMART SPECIALITY PHARMACY BEFORE.  DORLIS
  MaryChristine twelvehousec...@gmail.com wrote: 
  well, actually i very vaguely think that i might have been mentioned
  years ago in terms of getting fluids, but since i'm not sure, i
  wouldn't know where to find where i might have filed it!
  
  MC
  
  On Sat, Aug 8, 2009 at 5:26 PM, MaryChristinetwelvehousec...@gmail.com
 wrote:
   gary, is there a link to walmart's specialty pharmacy? i've never
   heard of it as an entity before
  
   thanks!
  
   MC
  
   --
   Spay  Neuter Your Neighbors!
   Maybe That'll Make The Difference
  
   MaryChristine
   Special-Needs Coordinator, Purebred Cat Breed Rescue
 (www.purebredcats.org)
   Member, SCAT (Special-Cat Action Team)
  
  
  
  
 
 
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Re: [Felvtalk] Wolfie Update

2009-10-24 Thread Belinda Sauro

   Hi Gary,
  Fred's anemia is not FeLV related, he is negative, would the 
acemannan still be something to consider if the anemia is from 
insufficient renal function vs FeLV+ status?  He is non regenerative 
anemia because of the renal insufficiency.


--

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happiness is being owned by cats ...

http://bemikitties.com

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Re: [Felvtalk] Wolfie Update

2009-10-24 Thread MaryChristine
belinda, i can't remember if the archives from a couple of years ago
survived the server issues, but there was a LOT of discussion on the list
just over two years ago, i think, when hideyo was trying to obtain
some--during the period it wasn't available for some administrative problem.
i think that a lot of the research involving it was cited back then. i know
folks have used it for lymphomas from injection-site sarcomas, tho i DON'T
think it was the, immunostimulant formulation: not sure that one existed
then.

if i recall tho, both hideyo and paolo? from south america had good
experiences with talking with the company. (i may be fantasizing all of
this, but i'm pretty sure i'm not.)

-- 
Spay  Neuter Your Neighbors!
Maybe That'll Make The Difference

MaryChristine
Special-Needs Coordinator, Purebred Cat Breed Rescue (www.purebredcats.org)
Member, SCAT (Special-Cat Action Team)
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Re: [Felvtalk] Wolfie Update

2009-10-24 Thread Belinda Sauro
   Thanks MC, I wrote to Hideyo and I think she wrote back will have to 
double check, I ended up getting the epogen because I needed to get Fred 
started on something right away and they could get that in 1 day.  He 
gets his second shot tomorrow.



--

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Re: [Felvtalk] Wolfie Update

2009-10-24 Thread Belinda Sauro

   Gary,
  I tried the test with a used syringe and Fred's fur wasn't anywhere 
near that wet yesterday so I think I figured out what happened.  When I 
tented and started giving him the shot, when he felt the epo going in he 
started to move and I pushed against him harder to keep him from pulling 
the syringe out so I think at that point the syringe may have gone in 
farther and out the other side ... but I think it was towards the end of 
the shot so didn't lose too much.  I am going to give him a little extra 
tomorrow though, his HCT has been slowly dropping over 4 or 5 years, he 
was at 28% when we first diagnosed him hyper-t  CRF 4 years ago and I 
know he was CRF a good year before that, someone had been peeing a lot 
for a while but I couldn't pin point who.  over the last year his HCT 
was between 24% and 20% but since a month ago it went to 16%.  My vet 
checked for bleeding there isn't any so it is because of his CRF.  We 
will check him again in 2 weeks after starting the epo.


--

Belinda
happiness is being owned by cats ...

http://bemikitties.com

http://BelindaSauro.com


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Re: [Felvtalk] Wolfie Update

2009-10-24 Thread MaryChristine
keeping all paws crossed.

-- 
Spay  Neuter Your Neighbors!
Maybe That'll Make The Difference

MaryChristine
Special-Needs Coordinator, Purebred Cat Breed Rescue (www.purebredcats.org)
Member, SCAT (Special-Cat Action Team)
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Re: [Felvtalk] Wolfie Update

2009-10-24 Thread James G Wilson
MC, Belinda and all, 

Yes, the archives are intact. They are on a separate 
server, so they weren't affected by the issues we had 
back in July of '08. Belinda, I typed in Acemannan just to 
be sure. Here's the url: 
http://www.mail-
archive.com/search?q=acemannanl=felvt...@felineleuk
emia.org

I hope that helps. We too are keeping fingers and paws 
crossed for Fred. Best wishes to all.

James G. Wilson - phaed...@charter.net
http://www.felineleukemia.org (FeLV Research  Support)
http://www.facebook.com/crambone
http://weather62025.com (Weather for Edwardsville, IL)

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Re: [Felvtalk] Wolfie Update

2009-10-24 Thread Jane Lyons

Gary are their side effects to the Acemannan?
I have never heard about it from my vets, although they always seem the
last to know. My cat is Felv but stable now although she has  
stomatitis. Do you think it

might help?
Thanks
Jane
On Oct 24, 2009, at 12:54 PM, gary wrote:


Hi Belinda,

Sorry your little kitty is so sick, an HCT of 16% is serious, but  
not yet
critical.  The critical part is how fast it is dropping, 10% and  
under is
critical.  I have had a couple that were so fast nothing could be  
done.


Now the bad news, you missed.  There wouldn't be much wetness from . 
15 cc
and there won't be any if it goes in. The dosage is almost correct  
(probably
close enough) but the actual correct dosage is .16 cc.  If it were  
me, I
would do it again, even if some of it got in, he needs the whole  
dose and a
bit over won't hurt him.  I have had a couple of misses myself and  
there is
just what seems to be a tiny bit of wetness.  If you want to check  
and see
just how little fluid that really is, just use one of the old  
syringes and

take up .15 of water and squirt it on his fur.

I don't want to discourage you, but sometimes Epogen works and  
sometimes it
doesn't.  Also, it takes awhile to get the full benefit of it,  
sometimes as

long as 2 - 3 weeks.

Presently, I am trying Acemannan Immunostimulant on a couple of  
FeLV kittens
and it seems to be working.  The smaller kitten I didn't get a HCT  
on to
start with, he had pale gums and a URI.  The other had an HCT of  
18%, after
3 shots of Acemannan (one a week) his HCT just before his fourth  
shot was
32%.  Both kittens seem to be doing well now.  I wish I had had  
some of this

when I lost a couple of my adult FeLV cats that got really sick.  I've
spoken to the vet who did the trials and he said it brought some of  
the test
cats back from death's door.  Of course, it is not 100% effective,  
works for
some and they lost some.  He said about one third of the calls he  
gets about

it are from vets who want to try it on their own FeLV or FIV cats.

The down side of it is it is a little expensive and only a vet can  
buy it.
My vet charges me $125 for four 10 ml vials and I think that may be  
his cost
or close to it as I was told it was about $175.  The protocol is  
one shot a
week for 6 weeks and then one a month.  It is dosed at 1 mg per kg.  
Fred
would need 3.2 mg, the stuff is 1 mg per ml, so 10 mg per bottle or  
about 3

shots for Fred. The other downside is the first 6 shots are given IP
(through the abdominal wall) so I have the vet do these and even he  
doesn't

like it.  The monthly shots can be given sub-q.

The instructions say once it is mixed you have to use it in 4  
hours, but the
vet who did the trials said you can keep it in the fridge for a  
week or in
the freezer for a month.  The two kittens I have use almost a third  
of a

bottle (it comes in two bottle pairs, one with the powder and one with
saline) and you mix the saline with the powder.  I have them save  
the saline
bottle and after the first sots I have them take half of what is  
left and
put it in the saline bottle and I freeze one and put one in the  
fridge.


Gary

-Original Message-
From: felvtalk-boun...@felineleukemia.org
[mailto:felvtalk-boun...@felineleukemia.org] On Behalf Of Belinda  
Sauro

Sent: Friday, October 23, 2009 11:18 PM
To: felvtalk@felineleukemia.org
Subject: Re: [Felvtalk] Wolfie Update

 Gary,
   I got the 1ml 2000 IU and Fred weighs 7lb 2oz.  I am using a  
insulin

syringe that is 1/2 cc and was told to give Fred .15 or on the 15 line
on the syringe.  Does that sound right to you, his HCT was 16% on
Tuesday, he got his first shot today and his fur felt wet after, not
much but a bit, I hope I didn't miss and he didn't really get it.   
I was
afraid to do more but he is so weak if I did miss I am really  
afraid he

won't make it to Sunday when I give him the next dose.

Any suggestions.



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Re: [Felvtalk] Wolfie Update

2009-10-24 Thread gary
Hi Belinda,

OK, just didn't want him to miss out.  I didn't realize he wasn't FeLV
positive. I don't think the Acemannan would be of help with his CRF, Epogen
is the way to go for that.  Are you on the FCRF yahoo list?  Lots of good
info on just about every therapy and support for crf kitties there.  They
usually suggest you start Epogen at 20%, but 16% isn't bad.  You may have
mentioned this before, but do you have to give him fluids regularly?

Gary

-Original Message-
From: felvtalk-boun...@felineleukemia.org
[mailto:felvtalk-boun...@felineleukemia.org] On Behalf Of Belinda Sauro
Sent: Saturday, October 24, 2009 3:33 PM
To: felvtalk@felineleukemia.org
Subject: Re: [Felvtalk] Wolfie Update

Gary,
   I tried the test with a used syringe and Fred's fur wasn't anywhere 
near that wet yesterday so I think I figured out what happened.  When I 
tented and started giving him the shot, when he felt the epo going in he 
started to move and I pushed against him harder to keep him from pulling 
the syringe out so I think at that point the syringe may have gone in 
farther and out the other side ... but I think it was towards the end of 
the shot so didn't lose too much.  I am going to give him a little extra 
tomorrow though, his HCT has been slowly dropping over 4 or 5 years, he 
was at 28% when we first diagnosed him hyper-t  CRF 4 years ago and I 
know he was CRF a good year before that, someone had been peeing a lot 
for a while but I couldn't pin point who.  over the last year his HCT 
was between 24% and 20% but since a month ago it went to 16%.  My vet 
checked for bleeding there isn't any so it is because of his CRF.  We 
will check him again in 2 weeks after starting the epo.



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Re: [Felvtalk] Wolfie Update

2009-10-24 Thread gary
I don't believe I have seen any side effects listed anywhere and the two I
have on it have just gotten their 4th shot with no noticeable side effects.
One is just about 11 weeks old and pretty small, the other about 5 months
and both seem to be doing fine.

I don't really know if it would help with the stomatitis, but you can call
the vet that is the company's technical assistance guy for Acemannan.  It is
made by VPL and their tech asst. page is 
http://www.vpl.com/techinfo.php Dr. Greg Biehle is his name and he is very
good about talking to people about it.  I talked to him and my vet talked to
him.  My vet said they were very impressed with him.  Ask him about the
stomatitis.  I think he only works in the morning and has some days he is in
surgery, but he will call you back.

Gary

-Original Message-
From: felvtalk-boun...@felineleukemia.org
[mailto:felvtalk-boun...@felineleukemia.org] On Behalf Of Jane Lyons
Sent: Saturday, October 24, 2009 5:51 PM
To: felvtalk@felineleukemia.org
Subject: Re: [Felvtalk] Wolfie Update

Gary are their side effects to the Acemannan?
I have never heard about it from my vets, although they always seem the
last to know. My cat is Felv but stable now although she has  
stomatitis. Do you think it
might help?
Thanks
Jane



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Re: [Felvtalk] Wolfie Update

2009-10-24 Thread dlgegg
Hi Belinda,

i have only given fluids to my Lil Bit, but i learned fast to put the bag in 
water same temperature as my body.  first time i gave her fluids, she nearly 
jumped out of my lap.  it was room temperature (70) and cold to her.  next day 
i put the bag in the sink with warm water until it was comfortable to me.  at 
least it was closer to her body temperature and she didn't mind it very much.  
at least she didn't try to get away from me.  GARY need to weigh in on this as 
i am not sure you should warm up the Epogen.  dorlis
 gary gcru...@centurytel.net wrote: 
 Hi Belinda,
 
 OK, just didn't want him to miss out.  I didn't realize he wasn't FeLV
 positive. I don't think the Acemannan would be of help with his CRF, Epogen
 is the way to go for that.  Are you on the FCRF yahoo list?  Lots of good
 info on just about every therapy and support for crf kitties there.  They
 usually suggest you start Epogen at 20%, but 16% isn't bad.  You may have
 mentioned this before, but do you have to give him fluids regularly?
 
 Gary
 
 -Original Message-
 From: felvtalk-boun...@felineleukemia.org
 [mailto:felvtalk-boun...@felineleukemia.org] On Behalf Of Belinda Sauro
 Sent: Saturday, October 24, 2009 3:33 PM
 To: felvtalk@felineleukemia.org
 Subject: Re: [Felvtalk] Wolfie Update
 
 Gary,
I tried the test with a used syringe and Fred's fur wasn't anywhere 
 near that wet yesterday so I think I figured out what happened.  When I 
 tented and started giving him the shot, when he felt the epo going in he 
 started to move and I pushed against him harder to keep him from pulling 
 the syringe out so I think at that point the syringe may have gone in 
 farther and out the other side ... but I think it was towards the end of 
 the shot so didn't lose too much.  I am going to give him a little extra 
 tomorrow though, his HCT has been slowly dropping over 4 or 5 years, he 
 was at 28% when we first diagnosed him hyper-t  CRF 4 years ago and I 
 know he was CRF a good year before that, someone had been peeing a lot 
 for a while but I couldn't pin point who.  over the last year his HCT 
 was between 24% and 20% but since a month ago it went to 16%.  My vet 
 checked for bleeding there isn't any so it is because of his CRF.  We 
 will check him again in 2 weeks after starting the epo.
 
 
 
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Re: [Felvtalk] Wolfie Update

2009-10-24 Thread dlgegg
prayres for Fred  dorlis
 Belinda Sauro ma...@bemikitties.com wrote: 
 Thanks MC, I wrote to Hideyo and I think she wrote back will have to 
 double check, I ended up getting the epogen because I needed to get Fred 
 started on something right away and they could get that in 1 day.  He 
 gets his second shot tomorrow.
 
 
 -- 
 
 Belinda
 happiness is being owned by cats ...
 
 http://bemikitties.com
 
 http://BelindaSauro.com
 
 
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Re: [Felvtalk] Wolfie Update

2009-10-23 Thread dlgegg
Sharyl,  i missed the lik for anemia, could you send it again?  asking because 
Lil Bit did have a kidney infection and her count dropped 1  point.  we gave 
her fluids and anitbiotics and in 1 week, she had bounced back.  so far no 
repeats, BUT.  DORLIS
 Sharyl cline...@yahoo.com wrote: 
 
 Amy,
 Epogen is very effective for treating non-regenerative anemia.  Treatment is 
 not started until the HCT or PCV is below 20 and usually in the mid-teens. 
 The Anemia group I gave you the link for has more info on treatment protocol.
 Sharyl
 
 --- On Thu, 8/6/09, Iva Lark Emily Seaberg melleph...@sbcglobal.net wrote:
 
  From: Iva Lark Emily Seaberg melleph...@sbcglobal.net
  Subject: Re: [Felvtalk] Wolfie Update
  To: felvtalk@felineleukemia.org
  Date: Thursday, August 6, 2009, 1:32 AM
  A few years ago I had a kitty with
  Chronic Renal Failure. Towards the end he was extremely
  anemic and we did the Epogen. I'm so glad we did it because
  it did buy us some time. I decided to try the Epogen when it
  became clear he was not making new blood cells, his anemia
  became extreme and we knew that without help he would die
  from it, a slow, lethargic and very sad death. I wanted to
  give him a chance and the Epogen did. My vet talked to UC
  Davis about his unique situation (he also had high blood
  pressure and a heart problem) and we gave him a really
  really low dose. I believe typically they give it 3-4 times
  a week and we gave it once a week. It was such a low dose
  the vet thought it might not work, but it did and actually
  better than we anticipated.
  
  So, I can't speak for the FeLV stuff, but I can say the
  Epogen wasn't as evil as I was expecting to be from what I
  had heard word of mouth. We used it very cautiously, and it
  seemed to make a big difference. You just really have to
  watch it, start off slow. It is easier to add treatments
  then try and slow it down and you don't want their values
  increasing too fast.
  
  Good luck,
  
  Iva
  
  - Original Message - 
   Message: 7
   Date: Tue, 4 Aug 2009 16:38:44 -0700 (PDT)
   From: Amy awilkin...@yahoo.com
   Subject: [Felvtalk] Wolfie Update
  
   
   So I've been posting about my cat Wolfie who has been
  losing weight since about mid 2006, from 15.4 lbs down to
  10.8 lbs today.  His last visit was on July 2nd and he
  had a HCT of 29.  He also tested positive for
  Mycoplasma haemominutum previously called Haemobartonella
  felis small form.  He's been on doxy, pred, and
  Pet-Tinic twice daily for almost a month.
   
   My vet thought he looked great today and he hasn't
  lost any weight since his last visit but he's not gaining
  and his HCT is still going down.  We took a tiny amount
  of blood and sent it out for a reticulocyte count. I've lost
  almost all my leuk positives to anemia in the end (except
  for one to lymphoma and one to neurological issues) and I'm
  really bummed out by the news.  I was hoping treating
  the Hemobart would help the HCT even though my vet wasn't as
  optimistic.
   
   I'm just wondering how most people here lose their
  leuk positives.  It seems all of mine do so well, are
  completely asymptomatic and then out of nowhere they stop
  making red blood cells, the HCT starts to drop, and it is
  downhill from there.  My vet wrote me a 10 page letter
  on everything that could cause weight loss and anemia and we
  have eliminated almost all the possibilities I think. 
  We haven't done a digestive panel yet because it takes 4 mls
  of blood and I don't want to do that with his HCT dropping.
  If the reticulocyte test comes back and shows he is making
  red blood cells, we will start investigating digestive
  issues or anything else that could be causing his lower
  HCT.  If it comes back as nonregenerative anemia, is
  there anything I can do?  I know there is the option of
  Epogen and I'm looking into that.  Anything else or do
  I just spend time with him and wait?  I hate this point
  where they are feeling fine, looking fine, and I know it's
  only
   a matter of time :(  This guy has been with me
  longer than any of my other positives and I'd do anything to
  help him but I'm afraid there's nothing else I can do. 
  Thoughts?
   
   Amy
  
  
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Re: [Felvtalk] Wolfie Update

2009-10-23 Thread dlgegg
YOU GOT PROCRIT FOR $300.00.  WHERE DO YOU LIVE?  I AM IN EASTERN MISSOURI AND 
WHEN I HAD TO TAKE IT I PAID $1645.00 FOR 4 - 1MIL VIALS WHICH LASTED ME 4 
WEEKS.  AND THAT STILL WAS CHEAP THAN GOING TO THE CANCER CLINIC AND PAYING FOR 
A DRS. VISIT AND A NURSE TO GIVE IT.  THAT CAMETO $500.00 MORE FOR EACH 
INJECTION.  DORLIS
 Belinda Sauro ma...@bemikitties.com wrote: 
 Procrit and Epogen are the same thing, one is basically the generic of 
 the other, where I live the Procrit was $20.00 cheaper, I paid $300.00 
 for a 6 month supply of Epogen.
 
 -- 
 
 Belinda
 happiness is being owned by cats ...
 
 http://bemikitties.com
 
 http://BelindaSauro.com
 
 
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Re: [Felvtalk] Wolfie Update

2009-10-23 Thread dlgegg
COURSE, I WAS PAYING HUMAN PRICES FOR PROCRIT, BUT WOW WHAT A DIFFERENCE IN 
PRICING!  DORLIS
   gary gcru...@centurytel.net wrote: 
 I made a slight error when typing below, it should say a dose is 100 units
 PER KG, not just 100 units.  How many doses one vial gives you depends on
 the size of your cat.  For mine it is 5 doses, just about enough to see if
 it is working.  You start with 3 times a week and as you approach your
 target level of hemocrit, you start cutting back to twice a week and monitor
 results and then to once a week and if you get lucky, maybe to once every 10
 - 14 days.  It just depends on how the hemocrit level responds.  Here is a
 link to an article you may find helpful.
 http://www.felinecrf.org/anaemia.htm#epogen_eprex_procrit 
 
 Your vet is over the edge on prices, just have him call it in to the Walmart
 Specialty Pharmacy at 1-877-453-4566.  You will also need U100 insulin
 syringes, they are .5ml maximum and are marked for .01ml minimum so it is
 pretty easy to draw up the units you need.
 
 Gary
 
 -Original Message-
 From: felvtalk-boun...@felineleukemia.org
 [mailto:felvtalk-boun...@felineleukemia.org] On Behalf Of Amy
 Sent: Friday, August 07, 2009 8:31 PM
 To: felvtalk@felineleukemia.org
 Subject: Re: [Felvtalk] Wolfie Update
 
 Hi Gary,
 
 How many shots does that vial give you?  I'm trying to figure out the
 expense of Epogen.  My vet quoted me $277 for Procrit and she said it was
 almost double that at the other pharmacy she uses.  I need to do the math to
 figure out how many doses that $277 is for but it sounds like your deal is
 way better.  
 
 Amy
 
  I had the vet call in a prescription
  to the Walmart Specialty Pharmacy.
  
  It was $30.68 for a 1ml 2000 unit vial and they shipped it
  FedEx overnight
  for free.  Got it about an hour ago and have already
  given the first shot
  (100 units).  As long as it is given Sub-q, I do it
  myself (shots, fluids,
  etc.).
  
  I am looking into Staph Protein A which showed a lot of
  promise in treating
  FeLV back in the mid 80s.  This is given with a shot
  into the abdominal
  cavity - I think I will be letting the vet do that.
  
  Gary
  
 
 
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Re: [Felvtalk] Wolfie Update

2009-10-23 Thread dlgegg
I NEVER HEARDOF WALMART SPECIALITY PHARMACY BEFORE.  DORLIS
 MaryChristine twelvehousec...@gmail.com wrote: 
 well, actually i very vaguely think that i might have been mentioned
 years ago in terms of getting fluids, but since i'm not sure, i
 wouldn't know where to find where i might have filed it!
 
 MC
 
 On Sat, Aug 8, 2009 at 5:26 PM, MaryChristinetwelvehousec...@gmail.com 
 wrote:
  gary, is there a link to walmart's specialty pharmacy? i've never
  heard of it as an entity before
 
  thanks!
 
  MC
 
  --
  Spay  Neuter Your Neighbors!
  Maybe That'll Make The Difference
 
  MaryChristine
  Special-Needs Coordinator, Purebred Cat Breed Rescue (www.purebredcats.org)
  Member, SCAT (Special-Cat Action Team)
 
 
 
 
 -- 
 Spay  Neuter Your Neighbors!
 Maybe That'll Make The Difference
 
 MaryChristine
 Special-Needs Coordinator, Purebred Cat Breed Rescue (www.purebredcats.org)
 Member, SCAT (Special-Cat Action Team)
 
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Re: [Felvtalk] Wolfie Update

2009-10-23 Thread gary
I thought I had answered this when the subject first came up, but with my
memory, you never know.  They don't have much of a website, it most has a
few links to download forms. 
http://www.walmart.com/catalog/catalog.gsp?cat=538876   It is faster to just
call them if you want to find out if they have what you are looking for and
how much that will be.  You can also have your vet or doctor call in the
script.  Phone number is 1-877-453-4566.

Gary

-Original Message-
From: felvtalk-boun...@felineleukemia.org
[mailto:felvtalk-boun...@felineleukemia.org] On Behalf Of
dlg...@windstream.net
Sent: Friday, October 23, 2009 8:55 PM
To: felvtalk@felineleukemia.org
Cc: MaryChristine
Subject: Re: [Felvtalk] Wolfie Update

I NEVER HEARDOF WALMART SPECIALITY PHARMACY BEFORE.  DORLIS
 MaryChristine twelvehousec...@gmail.com wrote: 
 well, actually i very vaguely think that i might have been mentioned
 years ago in terms of getting fluids, but since i'm not sure, i
 wouldn't know where to find where i might have filed it!
 
 MC
 
 On Sat, Aug 8, 2009 at 5:26 PM, MaryChristinetwelvehousec...@gmail.com
wrote:
  gary, is there a link to walmart's specialty pharmacy? i've never
  heard of it as an entity before
 
  thanks!
 
  MC
 
  --
  Spay  Neuter Your Neighbors!
  Maybe That'll Make The Difference
 
  MaryChristine
  Special-Needs Coordinator, Purebred Cat Breed Rescue
(www.purebredcats.org)
  Member, SCAT (Special-Cat Action Team)
 
 
 
 


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Re: [Felvtalk] Wolfie Update

2009-10-23 Thread Belinda Sauro

Gary,
  I got the 1ml 2000 IU and Fred weighs 7lb 2oz.  I am using a insulin 
syringe that is 1/2 cc and was told to give Fred .15 or on the 15 line 
on the syringe.  Does that sound right to you, his HCT was 16% on 
Tuesday, he got his first shot today and his fur felt wet after, not 
much but a bit, I hope I didn't miss and he didn't really get it.  I was 
afraid to do more but he is so weak if I did miss I am really afraid he 
won't make it to Sunday when I give him the next dose.


Any suggestions.

--

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happiness is being owned by cats ...

http://bemikitties.com

http://BelindaSauro.com


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Re: [Felvtalk] Wolfie Update

2009-10-23 Thread Sharyl
Dorlis,
Here is the link to the yahoo anemia group.
http://pets.groups.yahoo.com/group/Feline_Anemia/

Sharyl

--- On Fri, 10/23/09, dlg...@windstream.net dlg...@windstream.net wrote:

 From: dlg...@windstream.net dlg...@windstream.net
 Subject: Re: [Felvtalk] Wolfie Update
 To: felvtalk@felineleukemia.org
 Cc: Sharyl cline...@yahoo.com
 Date: Friday, October 23, 2009, 9:02 PM
 Sharyl,  i missed the lik for
 anemia, could you send it again?  asking because Lil
 Bit did have a kidney infection and her count dropped
 1  point.  we gave her fluids and anitbiotics and
 in 1 week, she had bounced back.  so far no repeats,
 BUT.  DORLIS
  Sharyl cline...@yahoo.com
 wrote: 
  
  Amy,
  Epogen is very effective for treating non-regenerative
 anemia.  Treatment is not started until the HCT or PCV
 is below 20 and usually in the mid-teens. The Anemia group I
 gave you the link for has more info on treatment protocol.
  Sharyl
  
  --- On Thu, 8/6/09, Iva Lark Emily Seaberg melleph...@sbcglobal.net
 wrote:
  
   From: Iva Lark Emily Seaberg melleph...@sbcglobal.net
   Subject: Re: [Felvtalk] Wolfie Update
   To: felvtalk@felineleukemia.org
   Date: Thursday, August 6, 2009, 1:32 AM
   A few years ago I had a kitty with
   Chronic Renal Failure. Towards the end he was
 extremely
   anemic and we did the Epogen. I'm so glad we did
 it because
   it did buy us some time. I decided to try the
 Epogen when it
   became clear he was not making new blood cells,
 his anemia
   became extreme and we knew that without help he
 would die
   from it, a slow, lethargic and very sad death. I
 wanted to
   give him a chance and the Epogen did. My vet
 talked to UC
   Davis about his unique situation (he also had
 high blood
   pressure and a heart problem) and we gave him a
 really
   really low dose. I believe typically they give it
 3-4 times
   a week and we gave it once a week. It was such a
 low dose
   the vet thought it might not work, but it did and
 actually
   better than we anticipated.
   
   So, I can't speak for the FeLV stuff, but I can
 say the
   Epogen wasn't as evil as I was expecting to be
 from what I
   had heard word of mouth. We used it very
 cautiously, and it
   seemed to make a big difference. You just really
 have to
   watch it, start off slow. It is easier to add
 treatments
   then try and slow it down and you don't want
 their values
   increasing too fast.
   
   Good luck,
   
   Iva
   
   - Original Message - 
Message: 7
Date: Tue, 4 Aug 2009 16:38:44 -0700 (PDT)
From: Amy awilkin...@yahoo.com
Subject: [Felvtalk] Wolfie Update
   

So I've been posting about my cat Wolfie who
 has been
   losing weight since about mid 2006, from 15.4 lbs
 down to
   10.8 lbs today.  His last visit was on July 2nd
 and he
   had a HCT of 29.  He also tested positive for
   Mycoplasma haemominutum previously called
 Haemobartonella
   felis small form.  He's been on doxy, pred, and
   Pet-Tinic twice daily for almost a month.

My vet thought he looked great today and he
 hasn't
   lost any weight since his last visit but he's not
 gaining
   and his HCT is still going down.  We took a tiny
 amount
   of blood and sent it out for a reticulocyte
 count. I've lost
   almost all my leuk positives to anemia in the end
 (except
   for one to lymphoma and one to neurological
 issues) and I'm
   really bummed out by the news.  I was hoping
 treating
   the Hemobart would help the HCT even though my
 vet wasn't as
   optimistic.

I'm just wondering how most people here lose
 their
   leuk positives.  It seems all of mine do so
 well, are
   completely asymptomatic and then out of nowhere
 they stop
   making red blood cells, the HCT starts to drop,
 and it is
   downhill from there.  My vet wrote me a 10 page
 letter
   on everything that could cause weight loss and
 anemia and we
   have eliminated almost all the possibilities I
 think. 
   We haven't done a digestive panel yet because it
 takes 4 mls
   of blood and I don't want to do that with his HCT
 dropping.
   If the reticulocyte test comes back and shows he
 is making
   red blood cells, we will start investigating
 digestive
   issues or anything else that could be causing his
 lower
   HCT.  If it comes back as nonregenerative
 anemia, is
   there anything I can do?  I know there is the
 option of
   Epogen and I'm looking into that.  Anything else
 or do
   I just spend time with him and wait?  I hate
 this point
   where they are feeling fine, looking fine, and I
 know it's
   only
a matter of time :(  This guy has been with
 me
   longer than any of my other positives and I'd do
 anything to
   help him but I'm afraid there's nothing else I
 can do. 
   Thoughts?

Amy
   
   
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Re: [Felvtalk] Wolfie Update

2009-08-08 Thread gary
I made a slight error when typing below, it should say a dose is 100 units
PER KG, not just 100 units.  How many doses one vial gives you depends on
the size of your cat.  For mine it is 5 doses, just about enough to see if
it is working.  You start with 3 times a week and as you approach your
target level of hemocrit, you start cutting back to twice a week and monitor
results and then to once a week and if you get lucky, maybe to once every 10
- 14 days.  It just depends on how the hemocrit level responds.  Here is a
link to an article you may find helpful.
http://www.felinecrf.org/anaemia.htm#epogen_eprex_procrit 

Your vet is over the edge on prices, just have him call it in to the Walmart
Specialty Pharmacy at 1-877-453-4566.  You will also need U100 insulin
syringes, they are .5ml maximum and are marked for .01ml minimum so it is
pretty easy to draw up the units you need.

Gary

-Original Message-
From: felvtalk-boun...@felineleukemia.org
[mailto:felvtalk-boun...@felineleukemia.org] On Behalf Of Amy
Sent: Friday, August 07, 2009 8:31 PM
To: felvtalk@felineleukemia.org
Subject: Re: [Felvtalk] Wolfie Update

Hi Gary,

How many shots does that vial give you?  I'm trying to figure out the
expense of Epogen.  My vet quoted me $277 for Procrit and she said it was
almost double that at the other pharmacy she uses.  I need to do the math to
figure out how many doses that $277 is for but it sounds like your deal is
way better.  

Amy

 I had the vet call in a prescription
 to the Walmart Specialty Pharmacy.
 
 It was $30.68 for a 1ml 2000 unit vial and they shipped it
 FedEx overnight
 for free.  Got it about an hour ago and have already
 given the first shot
 (100 units).  As long as it is given Sub-q, I do it
 myself (shots, fluids,
 etc.).
 
 I am looking into Staph Protein A which showed a lot of
 promise in treating
 FeLV back in the mid 80s.  This is given with a shot
 into the abdominal
 cavity - I think I will be letting the vet do that.
 
 Gary
 


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Re: [Felvtalk] Wolfie Update

2009-08-08 Thread gary
Procrit and Epogen are exactly the same product.  It is made by the same
company, but labeled as Procrit for another company that sells it.

Gary

-Original Message-
From: felvtalk-boun...@felineleukemia.org
[mailto:felvtalk-boun...@felineleukemia.org] On Behalf Of Sharyl
Sent: Friday, August 07, 2009 9:35 PM
To: felvtalk@felineleukemia.org
Subject: Re: [Felvtalk] Wolfie Update


Amy, check on the Anemia board.  I believe that fewer shots/wk are required
with the Procrit than the Epogen.  In the end I think the cost is pretty
much a wash.
Sharyl



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Re: [Felvtalk] Wolfie Update

2009-08-08 Thread gary
It came FedEx overnight in a little styrofoam cooler with two ice packs that
were still mostly frozen.

Gary

-Original Message-
From: felvtalk-boun...@felineleukemia.org
[mailto:felvtalk-boun...@felineleukemia.org] On Behalf Of Belinda Sauro
Sent: Saturday, August 08, 2009 12:04 AM
To: felvtalk@felineleukemia.org
Subject: Re: [Felvtalk] Wolfie Update

   Gary,
 Make sure it has been kept cold or it is worthless.  It should be kept 
in the fridge and not shaken.

-- 

Belinda
happiness is being owned by cats ...



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Re: [Felvtalk] Wolfie Update

2009-08-08 Thread Amy
Hi Gary,

This makes more sense.  I saw you said you gave a dose of 100 units and I was 
thrown since my vet told me to dose at 100 units per KG.  The price is actually 
pretty similar that way because you have 4 doses at $30 or 24 doses at $240.  
My vet's quote was for Procrit, 24 doses (500U/dose, dosed at 100U/kg).  I will 
definitely let her know about the Walmart specialty pharmacy, though, since 
it's still about $40 less.  Thanks for that info.  It will be nice to not have 
to start with buying 24 doses right from the start since this will be our first 
time trying it. 

Amy

 I made a slight error when typing
 below, it should say a dose is 100 units
 PER KG, not just 100 units.  How many doses one vial
 gives you depends on
 the size of your cat.  For mine it is 5 doses, just
 about enough to see if
 it is working.  You start with 3 times a week and as
 you approach your
 target level of hemocrit, you start cutting back to twice a
 week and monitor
 results and then to once a week and if you get lucky, maybe
 to once every 10
 - 14 days.  It just depends on how the hemocrit level
 responds.  Here is a
 link to an article you may find helpful.
 http://www.felinecrf.org/anaemia.htm#epogen_eprex_procrit
 
 
 Your vet is over the edge on prices, just have him call it
 in to the Walmart
 Specialty Pharmacy at 1-877-453-4566.  You will also
 need U100 insulin
 syringes, they are .5ml maximum and are marked for .01ml
 minimum so it is
 pretty easy to draw up the units you need.
 
 Gary
 
 -Original Message-
 From: felvtalk-boun...@felineleukemia.org
 [mailto:felvtalk-boun...@felineleukemia.org]
 On Behalf Of Amy
 Sent: Friday, August 07, 2009 8:31 PM
 To: felvtalk@felineleukemia.org
 Subject: Re: [Felvtalk] Wolfie Update
 
 Hi Gary,
 
 How many shots does that vial give you?  I'm trying to
 figure out the
 expense of Epogen.  My vet quoted me $277 for Procrit
 and she said it was
 almost double that at the other pharmacy she uses.  I
 need to do the math to
 figure out how many doses that $277 is for but it sounds
 like your deal is
 way better.  
 
 Amy
 
  I had the vet call in a prescription
  to the Walmart Specialty Pharmacy.
  
  It was $30.68 for a 1ml 2000 unit vial and they
 shipped it
  FedEx overnight
  for free.  Got it about an hour ago and have already
  given the first shot
  (100 units).  As long as it is given Sub-q, I do it
  myself (shots, fluids,
  etc.).
  
  I am looking into Staph Protein A which showed a lot
 of
  promise in treating
  FeLV back in the mid 80s.  This is given with a shot
  into the abdominal
  cavity - I think I will be letting the vet do that.
  
  Gary
  
 
 
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Re: [Felvtalk] Wolfie Update

2009-08-08 Thread gary
I didn't price what Walmart charges for multiple vials, might even be
cheaper.

Gary

-Original Message-
From: felvtalk-boun...@felineleukemia.org
[mailto:felvtalk-boun...@felineleukemia.org] On Behalf Of Amy
Sent: Saturday, August 08, 2009 9:09 AM
To: felvtalk@felineleukemia.org
Subject: Re: [Felvtalk] Wolfie Update

Hi Gary,

This makes more sense.  I saw you said you gave a dose of 100 units and I
was thrown since my vet told me to dose at 100 units per KG.  The price is
actually pretty similar that way because you have 4 doses at $30 or 24 doses
at $240.  My vet's quote was for Procrit, 24 doses (500U/dose, dosed at
100U/kg).  I will definitely let her know about the Walmart specialty
pharmacy, though, since it's still about $40 less.  Thanks for that info.
It will be nice to not have to start with buying 24 doses right from the
start since this will be our first time trying it. 

Amy

 I made a slight error when typing
 below, it should say a dose is 100 units
 PER KG, not just 100 units.  How many doses one vial
 gives you depends on
 the size of your cat.  For mine it is 5 doses, just
 about enough to see if
 it is working.  You start with 3 times a week and as
 you approach your
 target level of hemocrit, you start cutting back to twice a
 week and monitor
 results and then to once a week and if you get lucky, maybe
 to once every 10
 - 14 days.  It just depends on how the hemocrit level
 responds.  Here is a
 link to an article you may find helpful.
 http://www.felinecrf.org/anaemia.htm#epogen_eprex_procrit
 
 
 Your vet is over the edge on prices, just have him call it
 in to the Walmart
 Specialty Pharmacy at 1-877-453-4566.  You will also
 need U100 insulin
 syringes, they are .5ml maximum and are marked for .01ml
 minimum so it is
 pretty easy to draw up the units you need.
 
 Gary
 


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Re: [Felvtalk] Wolfie Update

2009-08-08 Thread MaryChristine
gary, is there a link to walmart's specialty pharmacy? i've never
heard of it as an entity before

thanks!

MC

-- 
Spay  Neuter Your Neighbors!
Maybe That'll Make The Difference

MaryChristine
Special-Needs Coordinator, Purebred Cat Breed Rescue (www.purebredcats.org)
Member, SCAT (Special-Cat Action Team)

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Re: [Felvtalk] Wolfie Update

2009-08-08 Thread MaryChristine
well, actually i very vaguely think that i might have been mentioned
years ago in terms of getting fluids, but since i'm not sure, i
wouldn't know where to find where i might have filed it!

MC

On Sat, Aug 8, 2009 at 5:26 PM, MaryChristinetwelvehousec...@gmail.com wrote:
 gary, is there a link to walmart's specialty pharmacy? i've never
 heard of it as an entity before

 thanks!

 MC

 --
 Spay  Neuter Your Neighbors!
 Maybe That'll Make The Difference

 MaryChristine
 Special-Needs Coordinator, Purebred Cat Breed Rescue (www.purebredcats.org)
 Member, SCAT (Special-Cat Action Team)




-- 
Spay  Neuter Your Neighbors!
Maybe That'll Make The Difference

MaryChristine
Special-Needs Coordinator, Purebred Cat Breed Rescue (www.purebredcats.org)
Member, SCAT (Special-Cat Action Team)

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Re: [Felvtalk] Wolfie Update

2009-08-08 Thread Gloria B. Lane
You probably have to live in the boonies of Arkansas to know about  
stuff like that, cause you can't get it anywhere else ho ho Gary -


Gloria


On Aug 8, 2009, at 4:26 PM, MaryChristine wrote:


gary, is there a link to walmart's specialty pharmacy? i've never
heard of it as an entity before

thanks!

MC

--
Spay  Neuter Your Neighbors!
Maybe That'll Make The Difference

MaryChristine
Special-Needs Coordinator, Purebred Cat Breed Rescue (www.purebredcats.org 
)

Member, SCAT (Special-Cat Action Team)

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Re: [Felvtalk] Wolfie Update

2009-08-07 Thread Amy
So here's my dilemma.  I'm struggling with a lot of decisions right now but 
I'll try to summarize.  His hematocrit was 29 a month ago, now it's 27.  Over 
the past 5 years, it's never been below high 30's.  So something is going on 
that it's going down.  My vet wants me to bring him back Wednesday and do an 
ear prick, check his HCT, and if it's ok, do a digestive panel to check for 
malabsorption, pancreatitis and other stuff (this is a test I've been asking 
about for some time, not something she is pushing).  It takes 4 mls of blood.  
I definitely want to rule this stuff out but am hesitant to draw more blood.  
Part of me feels I'm so terrified of this decreasing HCT that I've sort of 
given up.  That same part of me definitely doesn't want to accelerate that 
decline by drawing blood if he's really going down the path of the virus in the 
bone marrow, not making red blood cells, HCT steadily decreasing til he fails.  
On the other hand what if the anemia is
 mild because it's due to something like the digestive stuff and I could save 
him and don't try?  I'm so torn.  I'll hate myself if I do this bloodwork and 
my happy, relatively stable cat starts to crash.  Thoughts?  I'm going to post 
his whole history on the anemia group and get some opinions too and I'm trying 
to research the likelihood of the anemia coming from digestive issues.

Amy

--- On Thu, 8/6/09, Belinda Sauro ma...@bemikitties.com wrote:

 From: Belinda Sauro ma...@bemikitties.com
 Subject: Re: [Felvtalk] Wolfie Update
 To: felvtalk@felineleukemia.org
 Date: Thursday, August 6, 2009, 10:31 PM
 PS.  His anemia was related to
 his positive status.  My vet thinks the virus activated
 in his bone marrow and that is what brought on the anemia,
 he developed pancreatic cancer in the 6 months we were
 trying to figure out what was going on.  It was obvious
 something was still wrong because even after we got his HCT
 normalized he was very lethargic and wouldn't eat.  My
 gut feeling was pancreatitis but my vet didn't think so
 because his blood work was normal, I wish I had followed my
 instincts and had the test for pancreatitis done, he may not
 have developed cancer if we had treated him for that.
 
 -- 
 Belinda
 happiness is being owned by cats ...
 
 http://bemikitties.com
 
 http://BelindaSauro.com
 
 
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Re: [Felvtalk] Wolfie Update

2009-08-07 Thread Amy
Hi Belinda,

Can I just clarify?  Bailey was leuk positive and had no other issues other 
than the anemia?  While you were trying to figure that out, he developed 
pancreatitis?  No CRF or anything else, you were using the Epogen solely for 
the leukemia related anemia?  The reason I'm asking is because I'm trying to 
weigh the pros and cons of whether to start Epogen when Wolfie's HCT gets low.  
My vet and I are trying to understand how it could hypothetically work for 
anemia related to bone marrow issues as opposed to CRF and she says it doesn't 
make sense that it would help.  Again she's not saying it doesn't help or that 
we shouldn't try it (she's totally up for it if I am), we are just trying to 
figure out how it could help by looking at the causes of the anemia.  You are 
the only person I've heard say they used it for a leuk pos cat with anemia 
rather than CRF so we are very interested in your story.  Thanks for sharing.  
Sounds like Bailey was a very lucky cat to
 have you.

Amy

--- On Thu, 8/6/09, Belinda Sauro ma...@bemikitties.com wrote:

 From: Belinda Sauro ma...@bemikitties.com
 Subject: Re: [Felvtalk] Wolfie Update
 To: felvtalk@felineleukemia.org
 Date: Thursday, August 6, 2009, 10:27 PM
   Bailey was on epogen for
 almost 6 months when he became anemic, it brought his HCT
 from a low of 15% back up to 40% within 6 weeks or so. 
 When he passed he was still on a maintanence dose of epogen
 once a week and his HCT was holding at 33%.
 
 -- 
 Belinda
 happiness is being owned by cats ...
 
 http://bemikitties.com
 
 http://BelindaSauro.com
 
 
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Re: [Felvtalk] Wolfie Update

2009-08-07 Thread Sharyl

Amy, CRF is not the only cause for non-regenerative anemia.  You will read a 
lot about CRF and anemia on the Internet because of all the CRF groups.  The 
info you are looking for is epogen helps non-regenerative anemia no matter what 
caused the anemia. 

Again, a HCT of less than 20 is needed for a accurate test result.  In the mean 
time you can give Super B Complex, B12 and folic acid supplements to help him. 

Sharyl

--- On Fri, 8/7/09, Amy awilkin...@yahoo.com wrote:

 From: Amy awilkin...@yahoo.com
 Subject: Re: [Felvtalk] Wolfie Update
 To: felvtalk@felineleukemia.org
 Date: Friday, August 7, 2009, 11:21 AM
 Hi Belinda,
 
 Can I just clarify?  Bailey was leuk positive and had
 no other issues other than the anemia?  While you were
 trying to figure that out, he developed pancreatitis? 
 No CRF or anything else, you were using the Epogen solely
 for the leukemia related anemia?  The reason I'm asking
 is because I'm trying to weigh the pros and cons of whether
 to start Epogen when Wolfie's HCT gets low.  My vet and
 I are trying to understand how it could hypothetically work
 for anemia related to bone marrow issues as opposed to CRF
 and she says it doesn't make sense that it would help. 
 Again she's not saying it doesn't help or that we shouldn't
 try it (she's totally up for it if I am), we are just trying
 to figure out how it could help by looking at the causes of
 the anemia.  You are the only person I've heard say
 they used it for a leuk pos cat with anemia rather than CRF
 so we are very interested in your story.  Thanks for
 sharing.  Sounds like Bailey was a very lucky cat to
  have you.
 
 Amy
 
 --- On Thu, 8/6/09, Belinda Sauro ma...@bemikitties.com
 wrote:
 
  From: Belinda Sauro ma...@bemikitties.com
  Subject: Re: [Felvtalk] Wolfie Update
  To: felvtalk@felineleukemia.org
  Date: Thursday, August 6, 2009, 10:27 PM
    Bailey was on epogen for
  almost 6 months when he became anemic, it brought his
 HCT
  from a low of 15% back up to 40% within 6 weeks or
 so. 
  When he passed he was still on a maintanence dose of
 epogen
  once a week and his HCT was holding at 33%.
  
  -- 
  Belinda
  happiness is being owned by cats ...
  
  http://bemikitties.com
  
  http://BelindaSauro.com
  
  
  ___
  Felvtalk mailing list
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Re: [Felvtalk] Wolfie Update

2009-08-07 Thread Sharyl

Amy, we often have to do tests to understand the problem.  You always have the 
option of a transfusion if needed. 

My sweet Albert, CRF, anemia, CHF, HCM, had an HCT in the low 20's for 1 1/2 
yrs.  He did just fine until his little heart gave out.  

If Wolfie was my kitty I'd give him the supplements to help the anemia.  Then 
I'd discuss with the vet the most informative tests and do the blood work.  
There is a new IDEXX Spec fPL test for pancreatitis.

We do what we can to help our beloved companions.  It really doesn't help them 
to obsess about a no.  Yes Wolfie is anemic but it is not at a critical stage 
by any means.
Good Luck whatever you decide to do.
Sharyl

--- On Fri, 8/7/09, Amy awilkin...@yahoo.com wrote:

 From: Amy awilkin...@yahoo.com
 Subject: Re: [Felvtalk] Wolfie Update
 To: felvtalk@felineleukemia.org
 Date: Friday, August 7, 2009, 11:15 AM
 So here's my dilemma.  I'm
 struggling with a lot of decisions right now but I'll try to
 summarize.  His hematocrit was 29 a month ago, now it's
 27.  Over the past 5 years, it's never been below high
 30's.  So something is going on that it's going
 down.  My vet wants me to bring him back Wednesday and
 do an ear prick, check his HCT, and if it's ok, do a
 digestive panel to check for malabsorption, pancreatitis and
 other stuff (this is a test I've been asking about for some
 time, not something she is pushing).  It takes 4 mls of
 blood.  I definitely want to rule this stuff out but am
 hesitant to draw more blood.  Part of me feels I'm so
 terrified of this decreasing HCT that I've sort of given
 up.  That same part of me definitely doesn't want to
 accelerate that decline by drawing blood if he's really
 going down the path of the virus in the bone marrow, not
 making red blood cells, HCT steadily decreasing til he
 fails.  On the other hand what if the anemia is
  mild because it's due to something like the digestive
 stuff and I could save him and don't try?  I'm so
 torn.  I'll hate myself if I do this bloodwork and my
 happy, relatively stable cat starts to crash. 
 Thoughts?  I'm going to post his whole history on the
 anemia group and get some opinions too and I'm trying to
 research the likelihood of the anemia coming from digestive
 issues.
 
 Amy
 
 --- On Thu, 8/6/09, Belinda Sauro ma...@bemikitties.com
 wrote:
 
  From: Belinda Sauro ma...@bemikitties.com
  Subject: Re: [Felvtalk] Wolfie Update
  To: felvtalk@felineleukemia.org
  Date: Thursday, August 6, 2009, 10:31 PM
  PS.  His anemia was related to
  his positive status.  My vet thinks the virus
 activated
  in his bone marrow and that is what brought on the
 anemia,
  he developed pancreatic cancer in the 6 months we
 were
  trying to figure out what was going on.  It was
 obvious
  something was still wrong because even after we got
 his HCT
  normalized he was very lethargic and wouldn't eat. 
 My
  gut feeling was pancreatitis but my vet didn't think
 so
  because his blood work was normal, I wish I had
 followed my
  instincts and had the test for pancreatitis done, he
 may not
  have developed cancer if we had treated him for that.
  
  -- 
  Belinda
  happiness is being owned by cats ...
  
  http://bemikitties.com
  
  http://BelindaSauro.com
  
  
  ___
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Re: [Felvtalk] Wolfie Update

2009-08-07 Thread Belinda Sauro

  Hi Amy,
  Yes Bailey was getting the epogen ONLY for his anemia that was 
related to his FeLV+ status, he did not have CRF.  He was not the only 
cat my vet used epogen for that was positive, she had been treating 
another positive cat for a year that was positive and anemic.  I don't 
know the outcome of that kitty.


--

Belinda
happiness is being owned by cats ...

http://bemikitties.com

http://BelindaSauro.com


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Re: [Felvtalk] Wolfie Update

2009-08-07 Thread gary
Hi Amy,

I am expecting to delivery of the Epogen for one of my FeLV positives today.
I will let everyone know how it works out.

Gary

-Original Message-
From: felvtalk-boun...@felineleukemia.org
[mailto:felvtalk-boun...@felineleukemia.org] On Behalf Of Amy
Sent: Thursday, August 06, 2009 9:00 PM
To: felvtalk@felineleukemia.org
Subject: Re: [Felvtalk] Wolfie Update

Thanks for the info.  I've joined the anemia group and am reading up on it.
Has anybody on this list tried the Epogen for a leuk pos cat that is anemic?
I read a lot about Epogen being very effective for anemia and I read about
people using it for CRF.  Just wondering what sort of experiences people
have had using it for non-regenerative anemia not due to CRF.

Thanks
Amy



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Re: [Felvtalk] Wolfie Update

2009-08-07 Thread Sander, Sue
Gary,  What do you mean you are expecting a delivery of Epogen.  Don't
you need to get this from your vet?  I'm new to all of this.

Susan 

-Original Message-
From: felvtalk-boun...@felineleukemia.org
[mailto:felvtalk-boun...@felineleukemia.org] On Behalf Of gary
Sent: Friday, August 07, 2009 3:01 PM
To: felvtalk@felineleukemia.org
Subject: Re: [Felvtalk] Wolfie Update

Hi Amy,

I am expecting to delivery of the Epogen for one of my FeLV positives
today.
I will let everyone know how it works out.

Gary

-Original Message-
From: felvtalk-boun...@felineleukemia.org
[mailto:felvtalk-boun...@felineleukemia.org] On Behalf Of Amy
Sent: Thursday, August 06, 2009 9:00 PM
To: felvtalk@felineleukemia.org
Subject: Re: [Felvtalk] Wolfie Update

Thanks for the info.  I've joined the anemia group and am reading up on
it.
Has anybody on this list tried the Epogen for a leuk pos cat that is
anemic?
I read a lot about Epogen being very effective for anemia and I read
about people using it for CRF.  Just wondering what sort of experiences
people have had using it for non-regenerative anemia not due to CRF.

Thanks
Amy



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Re: [Felvtalk] Wolfie Update

2009-08-07 Thread gary
I had the vet call in a prescription to the Walmart Specialty Pharmacy.

It was $30.68 for a 1ml 2000 unit vial and they shipped it FedEx overnight
for free.  Got it about an hour ago and have already given the first shot
(100 units).  As long as it is given Sub-q, I do it myself (shots, fluids,
etc.).

I am looking into Staph Protein A which showed a lot of promise in treating
FeLV back in the mid 80s.  This is given with a shot into the abdominal
cavity - I think I will be letting the vet do that.

Gary

-Original Message-
From: felvtalk-boun...@felineleukemia.org
[mailto:felvtalk-boun...@felineleukemia.org] On Behalf Of Sander, Sue
Sent: Friday, August 07, 2009 2:04 PM
To: felvtalk@felineleukemia.org
Subject: Re: [Felvtalk] Wolfie Update

Gary,  What do you mean you are expecting a delivery of Epogen.  Don't
you need to get this from your vet?  I'm new to all of this.

Susan 



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Re: [Felvtalk] Wolfie Update

2009-08-07 Thread Sander, Sue
Thank you very much.  This group sure knows a lot.

Susan 

-Original Message-
From: felvtalk-boun...@felineleukemia.org
[mailto:felvtalk-boun...@felineleukemia.org] On Behalf Of gary
Sent: Friday, August 07, 2009 4:48 PM
To: felvtalk@felineleukemia.org
Subject: Re: [Felvtalk] Wolfie Update

I had the vet call in a prescription to the Walmart Specialty Pharmacy.

It was $30.68 for a 1ml 2000 unit vial and they shipped it FedEx
overnight for free.  Got it about an hour ago and have already given the
first shot (100 units).  As long as it is given Sub-q, I do it myself
(shots, fluids, etc.).

I am looking into Staph Protein A which showed a lot of promise in
treating FeLV back in the mid 80s.  This is given with a shot into the
abdominal cavity - I think I will be letting the vet do that.

Gary

-Original Message-
From: felvtalk-boun...@felineleukemia.org
[mailto:felvtalk-boun...@felineleukemia.org] On Behalf Of Sander, Sue
Sent: Friday, August 07, 2009 2:04 PM
To: felvtalk@felineleukemia.org
Subject: Re: [Felvtalk] Wolfie Update

Gary,  What do you mean you are expecting a delivery of Epogen.  Don't
you need to get this from your vet?  I'm new to all of this.

Susan 



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Re: [Felvtalk] Wolfie Update

2009-08-07 Thread Amy
Hi Gary,

How many shots does that vial give you?  I'm trying to figure out the expense 
of Epogen.  My vet quoted me $277 for Procrit and she said it was almost double 
that at the other pharmacy she uses.  I need to do the math to figure out how 
many doses that $277 is for but it sounds like your deal is way better.  

Amy

 I had the vet call in a prescription
 to the Walmart Specialty Pharmacy.
 
 It was $30.68 for a 1ml 2000 unit vial and they shipped it
 FedEx overnight
 for free.  Got it about an hour ago and have already
 given the first shot
 (100 units).  As long as it is given Sub-q, I do it
 myself (shots, fluids,
 etc.).
 
 I am looking into Staph Protein A which showed a lot of
 promise in treating
 FeLV back in the mid 80s.  This is given with a shot
 into the abdominal
 cavity - I think I will be letting the vet do that.
 
 Gary
 
 -Original Message-
 From: felvtalk-boun...@felineleukemia.org
 [mailto:felvtalk-boun...@felineleukemia.org]
 On Behalf Of Sander, Sue
 Sent: Friday, August 07, 2009 2:04 PM
 To: felvtalk@felineleukemia.org
 Subject: Re: [Felvtalk] Wolfie Update
 
 Gary,  What do you mean you are expecting a delivery
 of Epogen.  Don't
 you need to get this from your vet?  I'm new to all of
 this.
 
 Susan 
 
 
 
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Re: [Felvtalk] Wolfie Update

2009-08-07 Thread Sharyl

Amy, check on the Anemia board.  I believe that fewer shots/wk are required 
with the Procrit than the Epogen.  In the end I think the cost is pretty much a 
wash.
Sharyl

--- On Fri, 8/7/09, Amy awilkin...@yahoo.com wrote:

 From: Amy awilkin...@yahoo.com
 Subject: Re: [Felvtalk] Wolfie Update
 To: felvtalk@felineleukemia.org
 Date: Friday, August 7, 2009, 9:30 PM
 Hi Gary,
 
 How many shots does that vial give you?  I'm trying to
 figure out the expense of Epogen.  My vet quoted me
 $277 for Procrit and she said it was almost double that at
 the other pharmacy she uses.  I need to do the math to
 figure out how many doses that $277 is for but it sounds
 like your deal is way better.  
 
 Amy
 
  I had the vet call in a prescription
  to the Walmart Specialty Pharmacy.
  
  It was $30.68 for a 1ml 2000 unit vial and they
 shipped it
  FedEx overnight
  for free.  Got it about an hour ago and have already
  given the first shot
  (100 units).  As long as it is given Sub-q, I do it
  myself (shots, fluids,
  etc.).
  
  I am looking into Staph Protein A which showed a lot
 of
  promise in treating
  FeLV back in the mid 80s.  This is given with a shot
  into the abdominal
  cavity - I think I will be letting the vet do that.
  
  Gary
  
  -Original Message-
  From: felvtalk-boun...@felineleukemia.org
  [mailto:felvtalk-boun...@felineleukemia.org]
  On Behalf Of Sander, Sue
  Sent: Friday, August 07, 2009 2:04 PM
  To: felvtalk@felineleukemia.org
  Subject: Re: [Felvtalk] Wolfie Update
  
  Gary,  What do you mean you are expecting a delivery
  of Epogen.  Don't
  you need to get this from your vet?  I'm new to all
 of
  this.
  
  Susan 
  
  
  
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Re: [Felvtalk] Wolfie Update

2009-08-07 Thread Belinda Sauro

  Gary,
Make sure it has been kept cold or it is worthless.  It should be kept 
in the fridge and not shaken.


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Re: [Felvtalk] Wolfie Update

2009-08-07 Thread Belinda Sauro
Procrit and Epogen are the same thing, one is basically the generic of 
the other, where I live the Procrit was $20.00 cheaper, I paid $300.00 
for a 6 month supply of Epogen.


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Re: [Felvtalk] Wolfie Update

2009-08-06 Thread Hiromi Page

***Sorry about my lengthy email***

Hello MaryChristine  sorry about my late response :-)

 
I don't know how to read the blood test results, but here is what I have...
What's on the left of arrow is the results of first blood test taken on 
1/9/2009, and
what's on the right of arrow is the resulst of second test taken on 3/28/2009.
I didn't know which values indicate what, so I wrote down the items indicating 
abnormal values (High  Low) from the first blood test results...
 
AST (SGOT) 121 (H) - 32
ALT (SGPT) 145 (H) - 52
Cholesterol Total 235 (H) - 304 (still High)
Phosphorous 3.0 (L) - 4.1 (still Low)
CA/PHOS Ratio 2.7 (H) - 2.2
Total Protein 15.8 (H) - 7.6
Albumin 5.2 (H) - 3.2
Globulin 10.6 (H) - 4.4
LDH 1141 (H) - 434
RBC 3.2 (L) - 7.4
HGB 5.2 (L) - 11.1
HCT 18 (L) - 39
MCV 58 (H) - 53
MCHC 28.2 (L) - 29.1
Lymphs 17 (L) - 62 (H)
Lymph/Absolute 935 (L) - 2728
Platelet Count 58 (L) - 253
FELV (ELISA) Positive - Negative
 
1/9/2009 - I took my cat, Puma to the vet for bladder infection (I thought that 
was the only problem then).  Since it was the first time, the vet did the blood 
test.  Looking at the test results, he told me that Puma was FeLV+ and had 
severe anemia. (I don't know what kind...)
The vet gave Puma LCTI on 1/31, 2/7, 2/14 (once a week for 3 weeks) 2/28, 3/14 
(every other week).
On 3/28 which is two weeks after his 5th shots, the vet did the 2nd blood test 
which you can see the results above.  Looking at the 2nd test results, the vet 
told me that Puma no longer has anemia; however, I asked the vet to continue 
the LCTI treatment.
The vet gave Puma LCTI on 4/11, 5/9, 6/6, and 7/4 (Once a month).  I'm planning 
to ask the vet to do another blood test on 9/5 which will be two month from the 
last treatment.
 
Only other thing that I did was to make sure that Puma gets nutritious food.
When the treatment started, I switched from dry food (Nutro Natural Choice 
Complete Care) to can food (Natural Balance Ultra Formula) (I'm back to dry 
food (Wellness) now though)

I also gave him Hi-Vite drop daily (and I still do...)

 

Let me know if I missed anything that you asked.

 

Hiromi :-)
 
 From: twelvehousec...@gmail.com
 Date: Wed, 5 Aug 2009 13:08:36 -0400
 To: felvtalk@felineleukemia.org
 Subject: Re: [Felvtalk] Wolfie Update
 
 hiromi, i'd be very interested in learning about the blood values your
 cat showed, what kind of anemia it had, what other things you tried,
 how long it was on the lcti, etc.
 
 -- 
 Spay  Neuter Your Neighbors!
 Maybe That'll Make The Difference
 
 MaryChristine
 Special-Needs Coordinator, Purebred Cat Breed Rescue (www.purebredcats.org)
 Member, SCAT (Special-Cat Action Team)
 
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Re: [Felvtalk] Wolfie Update

2009-08-06 Thread Sharyl

Amy,
Epogen is very effective for treating non-regenerative anemia.  Treatment is 
not started until the HCT or PCV is below 20 and usually in the mid-teens. The 
Anemia group I gave you the link for has more info on treatment protocol.
Sharyl

--- On Thu, 8/6/09, Iva Lark Emily Seaberg melleph...@sbcglobal.net wrote:

 From: Iva Lark Emily Seaberg melleph...@sbcglobal.net
 Subject: Re: [Felvtalk] Wolfie Update
 To: felvtalk@felineleukemia.org
 Date: Thursday, August 6, 2009, 1:32 AM
 A few years ago I had a kitty with
 Chronic Renal Failure. Towards the end he was extremely
 anemic and we did the Epogen. I'm so glad we did it because
 it did buy us some time. I decided to try the Epogen when it
 became clear he was not making new blood cells, his anemia
 became extreme and we knew that without help he would die
 from it, a slow, lethargic and very sad death. I wanted to
 give him a chance and the Epogen did. My vet talked to UC
 Davis about his unique situation (he also had high blood
 pressure and a heart problem) and we gave him a really
 really low dose. I believe typically they give it 3-4 times
 a week and we gave it once a week. It was such a low dose
 the vet thought it might not work, but it did and actually
 better than we anticipated.
 
 So, I can't speak for the FeLV stuff, but I can say the
 Epogen wasn't as evil as I was expecting to be from what I
 had heard word of mouth. We used it very cautiously, and it
 seemed to make a big difference. You just really have to
 watch it, start off slow. It is easier to add treatments
 then try and slow it down and you don't want their values
 increasing too fast.
 
 Good luck,
 
 Iva
 
 - Original Message - 
  Message: 7
  Date: Tue, 4 Aug 2009 16:38:44 -0700 (PDT)
  From: Amy awilkin...@yahoo.com
  Subject: [Felvtalk] Wolfie Update
 
  
  So I've been posting about my cat Wolfie who has been
 losing weight since about mid 2006, from 15.4 lbs down to
 10.8 lbs today.  His last visit was on July 2nd and he
 had a HCT of 29.  He also tested positive for
 Mycoplasma haemominutum previously called Haemobartonella
 felis small form.  He's been on doxy, pred, and
 Pet-Tinic twice daily for almost a month.
  
  My vet thought he looked great today and he hasn't
 lost any weight since his last visit but he's not gaining
 and his HCT is still going down.  We took a tiny amount
 of blood and sent it out for a reticulocyte count. I've lost
 almost all my leuk positives to anemia in the end (except
 for one to lymphoma and one to neurological issues) and I'm
 really bummed out by the news.  I was hoping treating
 the Hemobart would help the HCT even though my vet wasn't as
 optimistic.
  
  I'm just wondering how most people here lose their
 leuk positives.  It seems all of mine do so well, are
 completely asymptomatic and then out of nowhere they stop
 making red blood cells, the HCT starts to drop, and it is
 downhill from there.  My vet wrote me a 10 page letter
 on everything that could cause weight loss and anemia and we
 have eliminated almost all the possibilities I think. 
 We haven't done a digestive panel yet because it takes 4 mls
 of blood and I don't want to do that with his HCT dropping.
 If the reticulocyte test comes back and shows he is making
 red blood cells, we will start investigating digestive
 issues or anything else that could be causing his lower
 HCT.  If it comes back as nonregenerative anemia, is
 there anything I can do?  I know there is the option of
 Epogen and I'm looking into that.  Anything else or do
 I just spend time with him and wait?  I hate this point
 where they are feeling fine, looking fine, and I know it's
 only
  a matter of time :(  This guy has been with me
 longer than any of my other positives and I'd do anything to
 help him but I'm afraid there's nothing else I can do. 
 Thoughts?
  
  Amy
 
 
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Re: [Felvtalk] Wolfie Update

2009-08-06 Thread Amy

   If nothing else is working, by
 the way I have heard doxy can take as long as 6 weeks to
 show results, but if his HCT is still going down don't know
 that I would be thinking that.  But as I was saying if
 nothing else is working and you are faced with death, my
 personally I would try the epogen, if the alternative is
 death you have nothing to lose.
 
 Sending lots of prayers for Wolfie and you.
 
 What is his HCT now??

It was 27 when we went this week and he's still acting fine.  He's nowhere near 
where I'd start it yet.  Just wanted to know if there's anything I can do 
before he gets to the low 20's/teens or if I just wait.

Thanks
Amy
 
 -- 
 Belinda
 happiness is being owned by cats ...
 
 http://bemikitties.com
 
 http://BelindaSauro.com
 
 
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Re: [Felvtalk] Wolfie Update

2009-08-06 Thread Belinda Sauro
   I would keep doing what you're doing, 27% isn't horrible.  Be sure 
and keep up the pet tinic, is he getting folic acid too it isn't in pet 
tinic and is needed for building new blood.


I wouldn't panic yet, just keep a close eye on him and think positive.

--

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happiness is being owned by cats ...

http://bemikitties.com

http://BelindaSauro.com


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Re: [Felvtalk] Wolfie Update

2009-08-06 Thread Amy
Thanks, joined both of these.

Amy

--- On Wed, 8/5/09, Sharyl cline...@yahoo.com wrote:

 From: Sharyl cline...@yahoo.com
 Subject: Re: [Felvtalk] Wolfie Update
 To: felvtalk@felineleukemia.org
 Date: Wednesday, August 5, 2009, 9:21 AM
 
 Amy. I haven't had any success once they start to
 fail.  Maybe others can help.  There are two yahoo
 groups that may help with the symptoms.
 
 There is a assist feeding group that can offer support
 regarding the wt. loss.
 http://pets.groups.yahoo.com/group/Feline-Assisted-Feeding/
 
 There is an anemia group that has info in their files on
 Epogen for non-regenerative anemia
 http://pets.groups.yahoo.com/group/Feline_Anemia/
 
 Hugs to Wolfie
 Sharyl
 
 --- On Tue, 8/4/09, Amy awilkin...@yahoo.com
 wrote:
 


  

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Re: [Felvtalk] Wolfie Update

2009-08-06 Thread Amy
He isn't getting a folic acid supplement but he does get some in his EVO cat 
food.  I'm almost done with the bottle of Pet-Tinic and then I'm going to try 
Nutrived.

Amy

    I would keep doing
 what you're doing, 27% isn't horrible.  Be sure and
 keep up the pet tinic, is he getting folic acid too it isn't
 in pet tinic and is needed for building new blood.
 
 I wouldn't panic yet, just keep a close eye on him and
 think positive.
 
 -- 
 Belinda
 happiness is being owned by cats ...
 
 http://bemikitties.com
 
 http://BelindaSauro.com
 
 
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Re: [Felvtalk] Wolfie Update

2009-08-06 Thread Amy
Thanks for the info.  I've joined the anemia group and am reading up on it.  
Has anybody on this list tried the Epogen for a leuk pos cat that is anemic?  I 
read a lot about Epogen being very effective for anemia and I read about people 
using it for CRF.  Just wondering what sort of experiences people have had 
using it for non-regenerative anemia not due to CRF.

Thanks
Amy

--- On Thu, 8/6/09, Sharyl cline...@yahoo.com wrote:

 From: Sharyl cline...@yahoo.com
 Subject: Re: [Felvtalk] Wolfie Update
 To: felvtalk@felineleukemia.org
 Date: Thursday, August 6, 2009, 6:48 AM
 
 Amy,
 Epogen is very effective for treating non-regenerative
 anemia.  Treatment is not started until the HCT or PCV
 is below 20 and usually in the mid-teens. The Anemia group I
 gave you the link for has more info on treatment protocol.
 Sharyl
 
 --- On Thu, 8/6/09, Iva Lark Emily Seaberg melleph...@sbcglobal.net
 wrote:
 
  From: Iva Lark Emily Seaberg melleph...@sbcglobal.net
  Subject: Re: [Felvtalk] Wolfie Update
  To: felvtalk@felineleukemia.org
  Date: Thursday, August 6, 2009, 1:32 AM
  A few years ago I had a kitty with
  Chronic Renal Failure. Towards the end he was
 extremely
  anemic and we did the Epogen. I'm so glad we did it
 because
  it did buy us some time. I decided to try the Epogen
 when it
  became clear he was not making new blood cells, his
 anemia
  became extreme and we knew that without help he would
 die
  from it, a slow, lethargic and very sad death. I
 wanted to
  give him a chance and the Epogen did. My vet talked to
 UC
  Davis about his unique situation (he also had high
 blood
  pressure and a heart problem) and we gave him a
 really
  really low dose. I believe typically they give it 3-4
 times
  a week and we gave it once a week. It was such a low
 dose
  the vet thought it might not work, but it did and
 actually
  better than we anticipated.
  
  So, I can't speak for the FeLV stuff, but I can say
 the
  Epogen wasn't as evil as I was expecting to be from
 what I
  had heard word of mouth. We used it very cautiously,
 and it
  seemed to make a big difference. You just really have
 to
  watch it, start off slow. It is easier to add
 treatments
  then try and slow it down and you don't want their
 values
  increasing too fast.
  
  Good luck,
  
  Iva
  
  - Original Message - 
   Message: 7
   Date: Tue, 4 Aug 2009 16:38:44 -0700 (PDT)
   From: Amy awilkin...@yahoo.com
   Subject: [Felvtalk] Wolfie Update
  
   
   So I've been posting about my cat Wolfie who has
 been
  losing weight since about mid 2006, from 15.4 lbs down
 to
  10.8 lbs today.  His last visit was on July 2nd and
 he
  had a HCT of 29.  He also tested positive for
  Mycoplasma haemominutum previously called
 Haemobartonella
  felis small form.  He's been on doxy, pred, and
  Pet-Tinic twice daily for almost a month.
   
   My vet thought he looked great today and he
 hasn't
  lost any weight since his last visit but he's not
 gaining
  and his HCT is still going down.  We took a tiny
 amount
  of blood and sent it out for a reticulocyte count.
 I've lost
  almost all my leuk positives to anemia in the end
 (except
  for one to lymphoma and one to neurological issues)
 and I'm
  really bummed out by the news.  I was hoping
 treating
  the Hemobart would help the HCT even though my vet
 wasn't as
  optimistic.
   
   I'm just wondering how most people here lose
 their
  leuk positives.  It seems all of mine do so well,
 are
  completely asymptomatic and then out of nowhere they
 stop
  making red blood cells, the HCT starts to drop, and it
 is
  downhill from there.  My vet wrote me a 10 page
 letter
  on everything that could cause weight loss and anemia
 and we
  have eliminated almost all the possibilities I
 think. 
  We haven't done a digestive panel yet because it takes
 4 mls
  of blood and I don't want to do that with his HCT
 dropping.
  If the reticulocyte test comes back and shows he is
 making
  red blood cells, we will start investigating
 digestive
  issues or anything else that could be causing his
 lower
  HCT.  If it comes back as nonregenerative anemia, is
  there anything I can do?  I know there is the option
 of
  Epogen and I'm looking into that.  Anything else or
 do
  I just spend time with him and wait?  I hate this
 point
  where they are feeling fine, looking fine, and I know
 it's
  only
   a matter of time :(  This guy has been with me
  longer than any of my other positives and I'd do
 anything to
  help him but I'm afraid there's nothing else I can
 do. 
  Thoughts?
   
   Amy
  
  
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Re: [Felvtalk] Wolfie Update

2009-08-06 Thread Belinda Sauro
  Great, I think as long as he seems to feel fine and his HCT doesn't 
start dropping I would be too concerned yet.  All kitties are 
individuals and maybe that is a decent HCT for him, wouldn't want it to 
get much lower though.  Fred's (CRF) HCT has been between 24% and 29% 
for the last 3 years or more.


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Re: [Felvtalk] Wolfie Update

2009-08-06 Thread Belinda Sauro
  Bailey was on epogen for almost 6 months when he became anemic, it 
brought his HCT from a low of 15% back up to 40% within 6 weeks or so.  
When he passed he was still on a maintanence dose of epogen once a week 
and his HCT was holding at 33%.


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Re: [Felvtalk] Wolfie Update

2009-08-06 Thread Belinda Sauro
PS.  His anemia was related to his positive status.  My vet thinks the 
virus activated in his bone marrow and that is what brought on the 
anemia, he developed pancreatic cancer in the 6 months we were trying to 
figure out what was going on.  It was obvious something was still wrong 
because even after we got his HCT normalized he was very lethargic and 
wouldn't eat.  My gut feeling was pancreatitis but my vet didn't think 
so because his blood work was normal, I wish I had followed my instincts 
and had the test for pancreatitis done, he may not have developed cancer 
if we had treated him for that.


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Re: [Felvtalk] Wolfie Update

2009-08-05 Thread Sharyl

Amy. I haven't had any success once they start to fail.  Maybe others can help. 
 There are two yahoo groups that may help with the symptoms.

There is a assist feeding group that can offer support regarding the wt. loss.
http://pets.groups.yahoo.com/group/Feline-Assisted-Feeding/

There is an anemia group that has info in their files on Epogen for 
non-regenerative anemia
http://pets.groups.yahoo.com/group/Feline_Anemia/

Hugs to Wolfie
Sharyl

--- On Tue, 8/4/09, Amy awilkin...@yahoo.com wrote:

 From: Amy awilkin...@yahoo.com
 Subject: [Felvtalk] Wolfie Update
 To: felvtalk@felineleukemia.org
 Date: Tuesday, August 4, 2009, 7:38 PM
 
 So I've been posting about my cat Wolfie who has been
 losing weight since about mid 2006, from 15.4 lbs down to
 10.8 lbs today.  His last visit was on July 2nd and he
 had a HCT of 29.  He also tested positive for
 Mycoplasma haemominutum previously called Haemobartonella
 felis small form.  He's been on doxy, pred, and
 Pet-Tinic twice daily for almost a month.  
 
 My vet thought he looked great today and he hasn't lost any
 weight since his last visit but he's not gaining and his HCT
 is still going down.  We took a tiny amount of blood
 and sent it out for a reticulocyte count.  I've lost
 almost all my leuk positives to anemia in the end (except
 for one to lymphoma and one to neurological issues) and I'm
 really bummed out by the news.  I was hoping treating
 the Hemobart would help the HCT even though my vet wasn't as
 optimistic.  
 
 I'm just wondering how most people here lose their leuk
 positives.  It seems all of mine do so well, are
 completely asymptomatic and then out of nowhere they stop
 making red blood cells, the HCT starts to drop, and it is
 downhill from there.  My vet wrote me a 10 page letter
 on everything that could cause weight loss and anemia and we
 have eliminated almost all the possibilities I think. 
 We haven't done a digestive panel yet because it takes 4 mls
 of blood and I don't want to do that with his HCT
 dropping.  If the reticulocyte test comes back and
 shows he is making red blood cells, we will start
 investigating digestive issues or anything else that could
 be causing his lower HCT.  If it comes back as
 nonregenerative anemia, is there anything I can do?  I
 know there is the option of Epogen and I'm looking into
 that.  Anything else or do I just spend time with him
 and wait?  I hate this point where they are feeling
 fine, looking fine, and I know it's only
  a matter of time :(  This guy has been with me longer
 than any of my other positives and I'd do anything to help
 him but I'm afraid there's nothing else I can do. 
 Thoughts?
 
 Amy
 
 
       
 
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Re: [Felvtalk] Wolfie Update

2009-08-05 Thread Hiromi Page

Hello Amy :-)

All I know is that Lymphocyte T-Cell Immunomodulator by Imulan worked very 
well for my FeLV+ cat w/ severe anemia...

http://www.imulan.com/

 

Hiromi :-D
 
 Date: Tue, 4 Aug 2009 16:38:44 -0700
 From: awilkin...@yahoo.com
 To: felvtalk@felineleukemia.org
 Subject: [Felvtalk] Wolfie Update
 
 
 So I've been posting about my cat Wolfie who has been losing weight since 
 about mid 2006, from 15.4 lbs down to 10.8 lbs today. His last visit was on 
 July 2nd and he had a HCT of 29. He also tested positive for Mycoplasma 
 haemominutum previously called Haemobartonella felis small form. He's been on 
 doxy, pred, and Pet-Tinic twice daily for almost a month. 
 
 My vet thought he looked great today and he hasn't lost any weight since his 
 last visit but he's not gaining and his HCT is still going down. We took a 
 tiny amount of blood and sent it out for a reticulocyte count. I've lost 
 almost all my leuk positives to anemia in the end (except for one to lymphoma 
 and one to neurological issues) and I'm really bummed out by the news. I was 
 hoping treating the Hemobart would help the HCT even though my vet wasn't as 
 optimistic. 
 
 I'm just wondering how most people here lose their leuk positives. It seems 
 all of mine do so well, are completely asymptomatic and then out of nowhere 
 they stop making red blood cells, the HCT starts to drop, and it is downhill 
 from there. My vet wrote me a 10 page letter on everything that could cause 
 weight loss and anemia and we have eliminated almost all the possibilities I 
 think. We haven't done a digestive panel yet because it takes 4 mls of blood 
 and I don't want to do that with his HCT dropping. If the reticulocyte test 
 comes back and shows he is making red blood cells, we will start 
 investigating digestive issues or anything else that could be causing his 
 lower HCT. If it comes back as nonregenerative anemia, is there anything I 
 can do? I know there is the option of Epogen and I'm looking into that. 
 Anything else or do I just spend time with him and wait? I hate this point 
 where they are feeling fine, looking fine, and I know it's only
 a matter of time :( This guy has been with me longer than any of my other 
 positives and I'd do anything to help him but I'm afraid there's nothing else 
 I can do. Thoughts?
 
 Amy
 
 
 
 
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Re: [Felvtalk] Wolfie Update

2009-08-05 Thread MaryChristine
hiromi, i'd be very interested in learning about the blood values your
cat showed, what kind of anemia it had, what other things you tried,
how long it was on the lcti, etc.

-- 
Spay  Neuter Your Neighbors!
Maybe That'll Make The Difference

MaryChristine
Special-Needs Coordinator, Purebred Cat Breed Rescue (www.purebredcats.org)
Member, SCAT (Special-Cat Action Team)

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Re: [Felvtalk] Wolfie Update

2009-08-05 Thread Belinda Sauro
  If nothing else is working, by the way I have heard doxy can take as 
long as 6 weeks to show results, but if his HCT is still going down 
don't know that I would be thinking that.  But as I was saying if 
nothing else is working and you are faced with death, my personally I 
would try the epogen, if the alternative is death you have nothing to lose.


Sending lots of prayers for Wolfie and you.

What is his HCT now??

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Belinda
happiness is being owned by cats ...

http://bemikitties.com

http://BelindaSauro.com


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Re: [Felvtalk] Wolfie Update

2009-08-05 Thread Iva Lark Emily Seaberg
A few years ago I had a kitty with Chronic Renal Failure. Towards the end he 
was extremely anemic and we did the Epogen. I'm so glad we did it because it 
did buy us some time. I decided to try the Epogen when it became clear he 
was not making new blood cells, his anemia became extreme and we knew that 
without help he would die from it, a slow, lethargic and very sad death. I 
wanted to give him a chance and the Epogen did. My vet talked to UC Davis 
about his unique situation (he also had high blood pressure and a heart 
problem) and we gave him a really really low dose. I believe typically they 
give it 3-4 times a week and we gave it once a week. It was such a low dose 
the vet thought it might not work, but it did and actually better than we 
anticipated.


So, I can't speak for the FeLV stuff, but I can say the Epogen wasn't as 
evil as I was expecting to be from what I had heard word of mouth. We used 
it very cautiously, and it seemed to make a big difference. You just really 
have to watch it, start off slow. It is easier to add treatments then try 
and slow it down and you don't want their values increasing too fast.


Good luck,

Iva

- Original Message - 

Message: 7
Date: Tue, 4 Aug 2009 16:38:44 -0700 (PDT)
From: Amy awilkin...@yahoo.com
Subject: [Felvtalk] Wolfie Update




So I've been posting about my cat Wolfie who has been losing weight since 
about mid 2006, from 15.4 lbs down to 10.8 lbs today.  His last visit was 
on July 2nd and he had a HCT of 29.  He also tested positive for 
Mycoplasma haemominutum previously called Haemobartonella felis small 
form.  He's been on doxy, pred, and Pet-Tinic twice daily for almost a 
month.


My vet thought he looked great today and he hasn't lost any weight since 
his last visit but he's not gaining and his HCT is still going down.  We 
took a tiny amount of blood and sent it out for a reticulocyte count. 
I've lost almost all my leuk positives to anemia in the end (except for 
one to lymphoma and one to neurological issues) and I'm really bummed out 
by the news.  I was hoping treating the Hemobart would help the HCT even 
though my vet wasn't as optimistic.


I'm just wondering how most people here lose their leuk positives.  It 
seems all of mine do so well, are completely asymptomatic and then out of 
nowhere they stop making red blood cells, the HCT starts to drop, and it 
is downhill from there.  My vet wrote me a 10 page letter on everything 
that could cause weight loss and anemia and we have eliminated almost all 
the possibilities I think.  We haven't done a digestive panel yet because 
it takes 4 mls of blood and I don't want to do that with his HCT dropping. 
If the reticulocyte test comes back and shows he is making red blood 
cells, we will start investigating digestive issues or anything else that 
could be causing his lower HCT.  If it comes back as nonregenerative 
anemia, is there anything I can do?  I know there is the option of Epogen 
and I'm looking into that.  Anything else or do I just spend time with him 
and wait?  I hate this point where they are feeling fine, looking fine, 
and I know it's only
a matter of time :(  This guy has been with me longer than any of my other 
positives and I'd do anything to help him but I'm afraid there's nothing 
else I can do.  Thoughts?


Amy



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