What a horrible experience Ron, I'm so sorry. So you are still looking for
a neurosurgeon. Have you been in contact with Syringomyelia Alliance
Project, Inc. (ASAP), I went to one in their meetings and they seem to have a
lot of
information and support about research and surgeons. I was
I had the same experience Ron, they told me they no longer perform sirinx
surgury unless a person begins losing function. My left arm is causing me a bit
of worry but I'm hoping it is something else like pinched nerves or
something..In the next few weeks i'll have to set up a time to get it
That is crummy Ron, so you have to have loss of funtion before the Docs will do
anything. Geez what we have to go through, they just don't realize how hard it
is living with a SCI. Sorry you had to go through all of that!
Lindaf
Is it possible, that the doctors or hospital are providing the details of
what the insurance company will pay for rather than just a medical evaluation?
When one considers the possible results of any risky surgery, one hopes for
the best results possible. Insurance companies often don't
3 years ago when they found a syrinx at c7 in my spinal cord I did extensive
research on the net. I found over and over Scott Falcis success stories and new
surgical techniques. I called Craig hospital, they said to send in my Mri. I
sent it to them and they called me and agreed to perform the
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