Re: [QUAD-L] ever get a cold?
Clip Seriously, do you guys get colds? No, I've never had a cold. I've been a quad for nearly 12 years. Keith/34/C4-5/NJ ** See what's new at http://www.aol.com
RE: [QUAD-L] ever get a cold?
Perhaps the sad truth is that we just cant tell? Danny Espinoza 24/m/California Occupation before accident - Network engineer / SR. Network security engineer Broke c2,c6,c7 and doner bone at c2 TBI from blood going to central cortex from spinal cord off a vent woohoo however only one diaphragm works right now due to asymmetric SCI http://www.myspace.com/DannyLNX http://www.myspace.com/DannyLNX From: John S. [mailto:[EMAIL PROTECTED] Sent: Tuesday, October 02, 2007 6:13 PM To: quad-list@eskimo.com Subject: [QUAD-L] ever get a cold? It seems like y'all took acidophylus and it caused a UTI from a psuedamonas strain. I've never not tested positive for psuedamonas. If it isn't dominant then your pretty normal and the best treatment is excersize and rest. We have these immune systems that can pull us through some pretty nasty infections without a lot of the major anti biotics. I use to have a para friend that intermitant catheterized himself with a catheter he kept in his hatband. Yea, Yucky! I'm cetainly not telling anyone what to take or not take, I'm just pointing out that as quads most of us do not have impaired immune systems. How many of you remember having a cold. 32 years as a quad, I've had some kickass infections, septicemia, pneumonia, bone infections, influenza, even a brain infection(explains a lot) but never a cold. About Stacy having the runs. every anti-biotic has that as a side effect which in turn subjects you to e.coli which causes a different infection that needs another anti-biotic that also causes the runs. Trust me the acidophylus didn't make it worse. In fact, acidophylus and other pro biotics eat the stuff the bad bacteria needs and can help maintain your system where your not taking the stuff that gives you the runs. Also, opiates will help stop the runs and several over the counter treatments may work for you. I do wish my advice would work quickly for you, Stacy. I also spend long periods of time waiting for help when I get runs or a condom comes off. I often have gas and cant tell if I had an accident. I have a weird neighbor that thinks that is so funny he stops in to break wind to try to torment me. We have quadriplegia in common , but quads just aren't all alike. What works for me may not work for you. I don't treat UTI's as long as I can live with them. I get a low grade fever, I take tylenol. About every 5 years I get an IVP to see what my system is doing and if there is any stones. The ladies don't have an option to use a condom catheter and looking at some new statistics, there isn't a significant reduction in infections with one. A lot of the differences we have is the doctors we see. My doctors are usually just curious why I'm still alive. I don't go for tests that don't produce information about me that I don't need. Doctors love running tests on us that produce generalized data that has nothing to with me. My doctor told me I had a syrinx before an MRI was available. I'm on Medicare/Medicaid and this test will change nothing. Oh, by the way, if you sit in on a part of a medical lecture, nobody cares. If there is a university hospital nearby, I highly recomend this. Just say you didn't want to interupt and couldn't leave without help. Dr. Randall Braddom is a goldmine of information and only talks down to stupid doctors. The people at your local GNC can be great help. Once again, Stacy, don't give up. it is a hard balance to get but it will work. If you use an opiat to stop from having a bowel movement then use miri-lax the day before you want your bowels to move. Wear lots of perfume? Seriously, do you guys get colds? Best wishes and always in my prayers, john _ Don't let your dream ride pass you by. Make http://us.rd.yahoo.com/evt=51200/*http:/autos.yahoo.com/index.html;_ylc=X3o DMTFibjNlcHF0BF9TAzk3MTA3MDc2BHNlYwNtYWlsdGFncwRzbGsDYXV0b3MtZHJlYW1jYXI- it a reality with Yahoo! Autos.
Re: [QUAD-L] ever get a cold?
I realize what acidophilus does. I have been taking an extra pill a day and still having accidents. This antibiotic(zyvox) must be some pretty potent stuff. I just fear that when I can get up, I'm going to mess up my pants and wheelchair cushion bc it often gets past the depends I wear. Having a roho is awful when I leak around my catheter bc of a kink or if its clogged. I can't imagine cleaning it from a accident from loose stool. It's quite depressing to just think about. I have had the flu once in 6 years. I didn't get a shot last year and of course got sick. Otherwise I haven't gotten sick even when I was in school and sat next to the same girl all semester and she was really sick for a week. So to be clear, I'm quite aware what acidophilus doesand I did get it from GNC. Stacy - Original Message From: John S. [EMAIL PROTECTED] To: quad-list@eskimo.com Sent: Tuesday, October 2, 2007 9:13:16 PM Subject: [QUAD-L] ever get a cold? It seems like y'all took acidophylus and it caused a UTI from a psuedamonas strain. I've never not tested positive for psuedamonas. If it isn't dominant then your pretty normal and the best treatment is excersize and rest. We have these immune systems that can pull us through some pretty nasty infections without a lot of the major anti biotics. I use to have a para friend that intermitant catheterized himself with a catheter he kept in his hatband. Yea, Yucky! I'm cetainly not telling anyone what to take or not take, I'm just pointing out that as quads most of us do not have impaired immune systems. How many of you remember having a cold. 32 years as a quad, I've had some kickass infections, septicemia, pneumonia, bone infections, influenza, even a brain infection(explains a lot) but never a cold. About Stacy having the runs. every anti-biotic has that as a side effect which in turn subjects you to e.coli which causes a different infection that needs another anti-biotic that also causes the runs. Trust me the acidophylus didn't make it worse. In fact, acidophylus and other pro biotics eat the stuff the bad bacteria needs and can help maintain your system where your not taking the stuff that gives you the runs. Also, opiates will help stop the runs and several over the counter treatments may work for you. I do wish my advice would work quickly for you, Stacy. I also spend long periods of time waiting for help when I get runs or a condom comes off. I often have gas and cant tell if I had an accident. I have a weird neighbor that thinks that is so funny he stops in to break wind to try to torment me. We have quadriplegia in common , but quads just aren't all alike. What works for me may not work for you. I don't treat UTI's as long as I can live with them. I get a low grade fever, I take tylenol. About every 5 years I get an IVP to see what my system is doing and if there is any stones. The ladies don't have an option to use a condom catheter and looking at some new statistics, there isn't a significant reduction in infections with one. A lot of the differences we have is the doctors we see. My doctors are usually just curious why I'm still alive. I don't go for tests that don't produce information about me that I don't need. Doctors love running tests on us that produce generalized data that has nothing to with me. My doctor told me I had a syrinx before an MRI was available. I'm on Medicare/Medicaid and this test will change nothing. Oh, by the way, if you sit in on a part of a medical lecture, nobody cares. If there is a university hospital nearby, I highly recomend this. Just say you didn't want to interupt and couldn't leave without help. Dr. Randall Braddom is a goldmine of information and only talks down to stupid doctors. The people at your local GNC can be great help. Once again, Stacy, don't give up. it is a hard balance to get but it will work. If you use an opiat to stop from having a bowel movement then use miri-lax the day before you want your bowels to move. Wear lots of perfume? Seriously, do you guys get colds? Best wishes and always in my prayers, john Don't let your dream ride pass you by. Make it a reality with Yahoo! Autos. Fussy? Opinionated? Impossible to please? Perfect. Join Yahoo!'s user panel and lay it on us. http://surveylink.yahoo.com/gmrs/yahoo_panel_invite.asp?a=7
Re: [QUAD-L] acidophilus, hair loss, accidents. OH MY
When I can get to the doctor, I will. I'm still waiting for outside help so I can get out of this dmn bed. I need to get blood drawn, see the pain specialist, rehab doctor, and my general physician. So as soon as I can ge up, I will catch up on these appointments. Thanks for asking wheel. You have so much info to give. Stacy - Original Message From: [EMAIL PROTECTED] [EMAIL PROTECTED] To: [EMAIL PROTECTED]; [EMAIL PROTECTED]; [EMAIL PROTECTED]; quad-list@eskimo.com Sent: Tuesday, October 2, 2007 7:58:41 PM Subject: Re: [QUAD-L] acidophilus, hair loss, accidents. OH MY In a message dated 10/2/2007 1:57:40 P.M. Central Daylight Time, [EMAIL PROTECTED] writes: On top of it, my hair is falling out and I have no idea why. That just started a couple of months ago so I know it isn't from the infection or surgery due to my spinal fusion. Stacy I know that it might sound a bit silly at this point, but have you considered taking the apple cider vinegar/ honey mix, twice a day for a week. Baseline the PH of your urine at the beginning and at one week intervals. This mix should not interfere with the meds you are taking, but if you have any questions, ask your doctor. Let us know and best wishes W See what's new at AOL.com and Make AOL Your Homepage. Shape Yahoo! in your own image. Join our Network Research Panel today! http://surveylink.yahoo.com/gmrs/yahoo_panel_invite.asp?a=7
Re: [QUAD-L] acidophilus, hair loss, accidents. OH MY
I have some but the problem is that I transfer and it slides on me because I cant pick myself up with m arms anymore since I lost so much strength. I had a hard time with them when I could pick myself up. When I slide, it slides. It's not much fun. I suppose I could put it underneath the cover but my covers are in bad shape and I would hate to have to wash them that much. Good suggestion, ty, Stacy - Original Message From: Danny Hearn [EMAIL PROTECTED] To: Stacy Harim [EMAIL PROTECTED]; [EMAIL PROTECTED]; [EMAIL PROTECTED]; quad-list@eskimo.com Sent: Wednesday, October 3, 2007 12:08:58 PM Subject: Re: [QUAD-L] acidophilus, hair loss, accidents. OH MY Stacy---while your having accidents, try to put an extra cover over the top of your Roho to help extra protect it from getting into your cusion...the bed pads hospitals use for grown ups are too large, but the hospital size for babies is just about the right size...see if you can pick up a few or buy a couple for when you are having bowel problems. Dan Stacy Harim [EMAIL PROTECTED] wrote: When I can get to the doctor, I will. I'm still waiting for outside help so I can get out of this dmn bed. I need to get blood drawn, see the pain specialist, rehab doctor, and my general physician. So as soon as I can ge up, I will catch up on these appointments. Thanks for asking wheel. You have so much info to give. Stacy - Original Message From: [EMAIL PROTECTED] [EMAIL PROTECTED] To: [EMAIL PROTECTED]; [EMAIL PROTECTED]; [EMAIL PROTECTED]; quad-list@eskimo.com Sent: Tuesday, October 2, 2007 7:58:41 PM Subject: Re: [QUAD-L] acidophilus, hair loss, accidents. OH MY In a message dated 10/2/2007 1:57:40 P.M. Central Daylight Time, [EMAIL PROTECTED] writes: On top of it, my hair is falling out and I have no idea why. That just started a couple of months ago so I know it isn't from the infection or surgery due to my spinal fusion. Stacy I know that it might sound a bit silly at this point, but have you considered taking the apple cider vinegar/ honey mix, twice a day for a week. Baseline the PH of your urine at the beginning and at one week intervals. This mix should not interfere with the meds you are taking, but if you have any questions, ask your doctor. Let us know and best wishes W See what's new at AOL.com and Make AOL Your Homepage. Boardwalk for $500? In 2007? Ha! Play Monopoly Here and Now (it's updated for today's economy) at Yahoo! Games. Be a better Heartthrob. Get better relationship answers from someone who knows. Yahoo! Answers - Check it out. http://answers.yahoo.com/dir/?link=listsid=396545433
Re: [QUAD-L] acidophilus, hair loss, accidents. OH MY
Stacy---while your having accidents, try to put an extra cover over the top of your Roho to help extra protect it from getting into your cusion...the bed pads hospitals use for grown ups are too large, but the hospital size for babies is just about the right size...see if you can pick up a few or buy a couple for when you are having bowel problems. Dan Stacy Harim [EMAIL PROTECTED] wrote: When I can get to the doctor, I will. I'm still waiting for outside help so I can get out of this dmn bed. I need to get blood drawn, see the pain specialist, rehab doctor, and my general physician. So as soon as I can ge up, I will catch up on these appointments. Thanks for asking wheel. You have so much info to give. Stacy - Original Message From: [EMAIL PROTECTED] [EMAIL PROTECTED] To: [EMAIL PROTECTED]; [EMAIL PROTECTED]; [EMAIL PROTECTED]; quad-list@eskimo.com Sent: Tuesday, October 2, 2007 7:58:41 PM Subject: Re: [QUAD-L] acidophilus, hair loss, accidents. OH MY In a message dated 10/2/2007 1:57:40 P.M. Central Daylight Time, [EMAIL PROTECTED] writes: On top of it, my hair is falling out and I have no idea why. That just started a couple of months ago so I know it isn't from the infection or surgery due to my spinal fusion. Stacy I know that it might sound a bit silly at this point, but have you considered taking the apple cider vinegar/ honey mix, twice a day for a week. Baseline the PH of your urine at the beginning and at one week intervals. This mix should not interfere with the meds you are taking, but if you have any questions, ask your doctor. Let us know and best wishes W - See what's new at AOL.com and Make AOL Your Homepage. - Boardwalk for $500? In 2007? Ha! Play Monopoly Here and Now (it's updated for today's economy) at Yahoo! Games.
Re: [QUAD-L] Psuedamonas UTI
HI, LorI, Yes we have had a lot of uti problems last few years. While you were off the list or unable to respond---I wrote about how I also had my 1st bladder stone removed just this past Febuary, it was large about a golf ball size, So I don't know what is causing my infections now...I was hoping after that things would go well for a long time. The Lab my insurance uses is INCOMPETENT ! always throwing my culture out saying ( more than 1 organism ) So last week I made them write MUST TEST FOR ALL ORGANISMS...because I have a supra pubic catheter and ALWAYS have more than 1 . This time they did it correct and found out yesterday it is Pseudamonas..I called 1st thing this morn but still have not heard from my Urologist as to what to do? The other 2 times in years past he told me wait and see what happens, and both times I was rushed to the emergency with Autonomic Dysreflexia feeling like I was gonna die...Also my bloodstream was infected and my white blood cells were almost gone, I was so weak I could hardly sit up. I'm so confused NOW--I don't know if I should wait or if It can possibly get better OR will the past repeat.? We changed my catheter today and flushed with acetic acid..my wife stayed home from work to help do all this. To tpo it all off---We had a vacation to Branson Mo, planned with family members for 4 day's the 20th to 24th of this month! My wife and other family had this scheduled for a year...I sure hope I don't cause it to be messed up. Oh well such is life...I hope this will work out soon. Take care and thanks for all the advice from all you on the list.!Dan H. Lori Michaelson [EMAIL PROTECTED] wrote: Hi Danny, You and I have been talking (around 2 years now?) about the chronic UTIs that we both have been plagued with. But it seems like you have not had very good luck with competent doctors. Neither have I but I finally found out that the culprit were those very big, big bladder stones that had been sitting in growing in my bladder for years and kept growing. Anyway, you said that you have had a bad UTI for a month now! If it is bad then I must assume it has gone systemic and you have been running a fever with severe chills for a whole month? Something does not sound right. Not to mention being extremely dangerous!!! In other words... what the F***? have you or the doctors than waiting on/for? After a whole month... you just got urine culture results today which only take three days (on the outside)? Just before, and after, having my bladder stones removed a year ago this past May... the bug that came after me twice in 2 months was Pseudomonas. It is one of the worst ones and both times I had to be treated with IV antibiotics via a PICC line at home. Again, you and I have discussed these ongoing UTIs both on list and off list. There must be some source, or culprit, causing your chronic infections. Mine was bladder stones but it has to be a process of elimination kind of deal. And only you know your body best! You already know that I have had repeated serious UTIs such as Pseudomonas. Yes, it is very depressing not to mention life-threatening. And going through an entire month ... how in the world did you let it go that long if it WAS so BAD? My fevers that bad really quick and I thought I would die before ibuprofen in some sort of antibiotic began kicking in. Then finding out that Pseudomonas has been growing in there the whole time? I would began to think that your urologist OR even your regular physician... sits around reading comic books rather than trying to help you! As far as how many times one can use the IV drugs before the bug gets resistant to them it is really academic if you NEED them anyway. My greatest fear with all my troubles ALSO was the fear that the bugs were growing more and more resistant. After all... when you have to resort to IV antibiotics... that is scary enough! There is nothing left to resort to. This is what leads me to think that your position does not give a rat's ass about your well-being. How you describe it... this is dead serious and something not to just brush off again and again. Also, like I have told you so many times... you might need to travel to get a better urologist and one really cares about your well-being! This quack that you keep going to has not been very helpful... has he? Therefore, because these things can get quite serious... you better get real proactive real fast. If I sound like I am yelling at you or preaching to you... maybe it is because that I care more about you than your doctor does! Tough love if you want to call it that. :-) I was so upset when I got a Pseudomonas infection AFTER having my bladder stones out and my doctor was not happy either. *I* finally found the answer on the Internet. To be brief... I found out that by me eating a banana a day... that amount
[QUAD-L] Van steering
Hi, Anyone know a site on the web that gas/brake handholds can be viewed. Mine works OK but when appling the brakes it makes me lean forward pretty far. Also any used power lockdowns out there? Not the E-Z lock that the box mounts on the van floor, but just the opposite, the device mounts to the chair and the pin is on the van floor. GA ** See what's new at http://www.aol.com
RE: [QUAD-L] Van steering
HYPERLINK http://www.dsp-mobilityelectronics.com/http://www.dsp-mobilityelectronics. com/ Mark Jackson RollinOn _ From: [EMAIL PROTECTED] [mailto:[EMAIL PROTECTED] Sent: Wednesday, October 03, 2007 2:30 PM To: quad-list@eskimo.com Subject: [QUAD-L] Van steering Hi, Anyone know a site on the web that gas/brake handholds can be viewed. Mine works OK but when appling the brakes it makes me lean forward pretty far. Also any used power lockdowns out there? Not the E-Z lock that the box mounts on the van floor, but just the opposite, the device mounts to the chair and the pin is on the van floor. GA _ See what's new at HYPERLINK http://www.aol.com?NCID=AOLCMP0030001170; \nAOL.com and HYPERLINK http://www.aol.com/mksplash.adp?NCID=AOLCMP0030001169; \nMake AOL Your Homepage. No virus found in this incoming message. Checked by AVG Free Edition. Version: 7.5.488 / Virus Database: 269.14.0/1046 - Release Date: 10/3/2007 10:08 AM No virus found in this outgoing message. Checked by AVG Free Edition. Version: 7.5.488 / Virus Database: 269.14.0/1046 - Release Date: 10/3/2007 10:08 AM
FW: [QUAD-L] acidophilus, hair loss, accidents. OH MY
Take a trip to the health food storeand buy some probiotics. Same as acidophilus only more specific and supposedly more effective. Date: Wed, 3 Oct 2007 09:08:58 -0700From: [EMAIL PROTECTED]: Re: [QUAD-L] acidophilus, hair loss, accidents. OH MYTo: [EMAIL PROTECTED]; [EMAIL PROTECTED]; [EMAIL PROTECTED]; [EMAIL PROTECTED] your having accidents, try to put an extra cover over the top of your Roho to help extra protect it from getting into your cusion...the bed pads hospitals use for grown ups are too large, but the hospital size for babies is just about the right size...see if you can pick up a few or buy a couple for when you are having bowel problems. DanStacy Harim [EMAIL PROTECTED] wrote: When I can get to the doctor, I will. I'm still waiting for outside help so I can get out of this dmn bed. I need to get blood drawn, see the pain specialist, rehab doctor, and my general physician. So as soon as I can ge up, I will catch up on these appointments. Thanks for asking wheel. You have so much info to give. Stacy - Original Message From: [EMAIL PROTECTED] [EMAIL PROTECTED]To: [EMAIL PROTECTED]; [EMAIL PROTECTED]; [EMAIL PROTECTED]; [EMAIL PROTECTED]: Tuesday, October 2, 2007 7:58:41 PMSubject: Re: [QUAD-L] acidophilus, hair loss, accidents. OH MY In a message dated 10/2/2007 1:57:40 P.M. Central Daylight Time, [EMAIL PROTECTED] writes: On top of it, my hair is falling out and I have no idea why. That just started a couple of months ago so I know it isn't from the infection or surgery due to my spinal fusion. Stacy I know that it might sound a bit silly at this point, but have you considered taking the apple cider vinegar/ honey mix, twice a day for a week. Baseline the PH of your urine at the beginning and at one week intervals. This mix should not interfere with the meds you are taking, but if you have any questions, ask your doctor. Let us know and best wishes W See what's new at AOL.com and Make AOL Your Homepage. Boardwalk for $500? In 2007? Ha! Play Monopoly Here and Now (it's updated for today's economy) at Yahoo! Games. _ Peek-a-boo FREE Tricks Treats for You! http://www.reallivemoms.com?ocid=TXT_TAGHMloc=us
FW: [QUAD-L] Van steering
that style tie-down is made by Ahnafield in Indianapolis. From: [EMAIL PROTECTED]: [EMAIL PROTECTED]; [EMAIL PROTECTED]: RE: [QUAD-L] Van steeringDate: Wed, 3 Oct 2007 16:20:40 -0500 http://www.dsp-mobilityelectronics.com/ Mark Jackson RollinOn From: [EMAIL PROTECTED] [mailto:[EMAIL PROTECTED] Sent: Wednesday, October 03, 2007 2:30 PMTo: [EMAIL PROTECTED]: [QUAD-L] Van steering Hi, Anyone know a site on the web that gas/brake handholds can be viewed. Mine works OK but when appling the brakes it makes me lean forward pretty far. Also any used power lockdowns out there? Not the E-Z lock that the box mounts on the van floor, but just the opposite, the device mounts to the chair and the pin is on the van floor. GA See what's new at AOL.com and Make AOL Your Homepage. No virus found in this incoming message.Checked by AVG Free Edition.Version: 7.5.488 / Virus Database: 269.14.0/1046 - Release Date: 10/3/2007 10:08 AM No virus found in this outgoing message.Checked by AVG Free Edition.Version: 7.5.488 / Virus Database: 269.14.0/1046 - Release Date: 10/3/2007 10:08 AM _ Windows Live Hotmail and Microsoft Office Outlook – together at last. Get it now. http://office.microsoft.com/en-us/outlook/HA102225181033.aspx?pid=CL100626971033
