Re: [QUAD-L] Sick/upper respiratory

2007-03-23 Thread B. Kimberlin \(Quadius\)
I sure hope you get better from the upper respiratory crud.  Believe it or not, 
every time I thought I was finally over it, I kept contracting some of the 
symptoms.  Thankfully my respiratory system has been functioning well for over 
two weeks (knock on wood) and there has been no return of the fluid in my lungs.
  
Simple things are what doomed me.  I thought I had successfully disinfected 
everything, but discovered the ventilator (which I used simply to help inflate 
my lungs with the nebulizer) needed to have the tubing changed as well as the 
nebulizer.  My sip-n-puff needed to have the outside as well has the inside 
thoroughly cleaned with a bleach water solution.  All of my mouth stick's 
needed to be sanitized.  Once I got this all accomplished, I began to feel much 
better pretty quickly.  Now I just need to get back into my groove.
Thanks for the well wishes,
Quadius
[EMAIL PROTECTED] wrote:
Hey Linda, you better get better yourself.  That lady in Valpo Rehab 
may need some help with the Ombudsman in being able to travel outside of Rehab 
Jail.
  W
   
   
   
  In a message dated 3/16/2007 5:39:37 P.M. Central Daylight Time, [EMAIL 
PROTECTED] writes:
Hey Quadius,
  I have that upper respiratory crude now, along with a UTI. I am up  down in 
my chair, I don't know exactly what I want. Glad to see you are better.
  Lindaf

  
   




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Re: [QUAD-L] Caffeine and protein

2007-03-23 Thread B. Kimberlin \(Quadius\)
  Dillon,
  It is definitely possible to drink too much water. I have done it, however, 
it takes quite a bit of water to become extremely dangerous. I did have been 
hospitalized because of this, but it was a matter of heat stroke or over 
hydration for me. It's a long story, but definitely monitor how much water you 
are taking in. I drink about 4 to 5 L a day and am always having trouble with 
low potassium and sodium.
  There are times when sodas definitely give me problems with my urine, but I 
have not seen any differences in my skin. I also try to take in carbonated 
water at times and I find this to be an adequate substitute for sodas, while 
giving me more water. Although, I tried to make sure it is low in sugar and 
other nasty things. The carbonation gives me the illusion that I am full and I 
tend to eat less, therefore, my weight is a little easier to manage, but not 
completely easy.
  Quadius


Dillon Ewa [EMAIL PROTECTED] wrote:Hello again, hello,
   
  I wanted to ask all of you a question that might help solve my most immediate 
concern and prime factor keeping me from being more participative, both 
socially and vocationally.  I drink two or three glasses of Pepsi a day and 
wanted to know if caffeine is so bad for one's skin that it should be 
eliminated from my diet altogether or just reduced?  I believe I drink plenty 
of water, mostly in the morning and evening hours. Can one drink too much 
water, maybe?
  Also, how much protein is appropriate to eat in one day.  I take protein 
drinks and try to keep meat or food with protein regularly in my diet.
   
  I just cannot find a solution to my skin problems.
   
  Dillon



 
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Re: [QUAD-L] ROM Poll

2007-03-18 Thread B. Kimberlin \(Quadius\)
I do range of motion twice a day.  It is difficult for me to function without 
it.  My spasms would probably be intolerable, but with medication and this 
exercise, I am able to do pretty well.
Quadius

[EMAIL PROTECTED] wrote:  In a message dated 3/9/2007 2:04:42 PM Eastern 
Standard Time, [EMAIL PROTECTED] writes:
I would like using this forum to take a poll, or not.
1) Who ranges, who spasms, and who have contracted hands?
   
  Merrill
  I don't do rom anymore. I have all over spasms. legs, back  tummy muscles. 
my fingers are curled only because i had tendon transfers, they were straight.
  diane
   
  
   


 
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Re: [QUAD-L] belly subject

2007-03-18 Thread B. Kimberlin \(Quadius\)
Interesting, I am about 30 pounds lighter than I was when I was injured and 
about 40 pounds lighter than my all-time high, but I still have a slight quad 
belly.  If I do lose weight, I am able to lose a little bit of it, but the 
majority of the weight seems to come off my arms and legs.  I would really like 
it if I could lose off my face and neck.  The way I figure it, I could wear a 
tent for a shirt and at least my neck and face would look thin.  :-)
Quadius

[EMAIL PROTECTED] wrote:Dan, actually that is 99-44/100% correct.  Back 
in 1996 while at the Paralympics in Atlanta, I met several quads at the games 
in the best shape of their lives.  C5/6 and C7, these quads were flat and hard. 
 They also worked the Permobil Booth at several exhibitions and signed pictures 
of themselves to those who attended.  Yes, the flat and hard belly is a rare 
event.
  Best Wishes
  W
   
   
   
   
  In a message dated 3/12/2007 10:04:36 A.M. Central Daylight Time, [EMAIL 
PROTECTED] writes:
   That is True W..Plus my doctor said this ( once you have a quad-gut 
no matter how much weight you lose, you will still have the quad gut. ) He 
said you can lose 100 pounds and be very skinny but the quad gut will still be 
there. S  good luck to all in their daring effort   ;-) 
Dan

  
   




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Re: [QUAD-L] Poll

2007-03-18 Thread B. Kimberlin \(Quadius\)
Bicycle accident.  April 5, 1995
Quadius

[EMAIL PROTECTED] wrote:  I would just like to know what caused members of 
this message board to become quadriplegics or paraplegics?
   
  I became a quadriplegic due to an illness that affects the spinal cord 
(Transverse Myelitis), July 2, 2005
  Naomi
C-4 quad since July 2, 2005
Transverse Myelitis





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Re: [QUAD-L] Sick

2007-03-16 Thread B. Kimberlin \(Quadius\)
Sorry this is so late in response Dan, but I have been recovering much lower 
than I originally anticipated.  It seems like I have one good day and if it do 
too much, the next day is spent recovering.  The answer to your question is no. 
 I did not require hospitalization; thank God.
My lungs have now been clear for one week; knock on wood.  If only I could get 
my energy level back up to normal on a daily basis, would be 100% once again.
  Quadius

Dan Tessiatore [EMAIL PROTECTED] wrote:  Quadius, Sorry to hear you were ill. 
 Were you hospitalized?  I hope your lungs clear and you feel well.  Dan T.

B. Kimberlin (Quadius) [EMAIL PROTECTED] wrote: Hey guys and gals,
I have been suffering with an upper respiratory infection that invaded my 
lungs, but I am slowly but surely coming out of it.  To say it has been a 
struggle is a bit of an understatement; it's more of a battle.  Anyway, I hope 
I didn't miss too much while I was away (three weeks and counting), but I have 
not had the energy or the ability to dictate.  Right now my voice is still in 
and out and there is really no hope that I will be able to get through the 340 
e-mails on the quad list alone.
   
Hopefully I will be back to read every e-mail very shortly.
Quadius
PS I haven't had an illness which has infected my lungs since 2000.  Almost 7 
years without no problems. 
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Re: [QUAD-L] Sick

2007-03-16 Thread B. Kimberlin \(Quadius\)
I sincerely hope nobody on this list or for that matter no other paralyzed 
individuals get this particular virus.  Not only is it persistent, it will 
attack over and over again.  I am almost back, but I am still having to take it 
easy I love more than I thought I would by now.
  
As for the links to my blogs, they are always accessible on MSN spaces.  Just 
search for Quadius.
Here is the link: http://spaces.msn.com/quadius/
  
I cannot wait to get back to posting on a normal basis.  Unfortunately, I am 
370 behind, with little hope of catching up right now.
Quadius
 [EMAIL PROTECTED] wrote:
  Hi Quadius
   
  So sorry to hear that you have been having a respiratory infection.  I know 
exactly what you're going through as I have to often but have been looking at 
the last two months not to get.  I have had them for six months before when I 
had Pseudomonas of the lungs with two rounds of IV's and another month of the 
same medication in my breathing machine.  It is so horrible to be fighting to 
breathe with so much suctioning.
   
  I'm glad you're seeing a light at the end of the tunnel.  Seven years without 
a problem is quite amazing to hear.  I hope you were feeling back to your usual 
posting and writing of your blogs, although I keep losing your links.  I guess 
I need to put them in the address book along with your e-mail address.  I'm 
always losing links for people.  When you're feeling better send me your links 
to my bulletin in my space.  Hope to hear from you soon.
   
  Glad to have you back with posting again and feeling normal as we can..
   
  Dana
   
 UPI's are much tougher on Quads than ABs.  Hopefully with some good 
drugs and breath conditioning those lungs and system will be back in best of 
shape.  Best Wishes
  W
   
   
   
  In a message dated 3/6/2007 2:26:05 P.M. Central Standard Time, [EMAIL 
PROTECTED] writes:
Hey guys and gals,
I have been suffering with an upper respiratory infection that invaded my 
lungs, but I am slowly but surely coming out of it.  To say it has been a 
struggle is a bit of an understatement; it's more of a battle.  Anyway, I hope 
I didn't miss too much while I was away (three weeks and counting), but I have 
not had the energy or the ability to dictate.  Right now my voice is still in 
and out and there is really no hope that I will be able to get through the 340 
e-mails on the quad list alone.
   
Hopefully I will be back to read every e-mail very shortly.
Quadius
PS I haven't had an illness which has infected my lungs since 2000.  Almost 7 
years without no problems.
  
   




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Re: [QUAD-L] I'm new to the list!

2007-03-12 Thread B. Kimberlin \(Quadius\)
Sorry I'm a little late, but welcome to the list.
Quadius

Bruce and Debbie Hamilton [EMAIL PROTECTED] wrote:  Hi my name is Debbie. I 
am almost 2 years postaccident. I was diagnosed as 
a C4, my function level now is C6 on the right C5 on the left. The first 
year postaccident was absolutely horrendous! During the second year, I've 
worked on accepting the new me. I am 47 years old, married, and have three 
boys one still at home. I am now living in Colorado after going to Craig 
hospital and have found there aren't very many resources after being 
discharged. Such as rehab for SCI. I look forward to asking questions in 
this group. I need the support! Will post questions soon.

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Re: [QUAD-L] devotees

2007-03-06 Thread B. Kimberlin \(Quadius\)
I had one contact me a few years back.  I agree, it was rather creepy.
Quadius

[EMAIL PROTECTED] wrote:  Are there women  devotees lol



 
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RE: [QUAD-L] Vista Dragon NaturallySpeaking 8

2007-02-10 Thread B. Kimberlin \(Quadius\)
I am using version 9 professional, but Steve is probably correct regarding the 
RAM.  I currently have 1 GB and at times it does seem to bog down a little more 
if I have too many programs running.  You may also want to see if there is 
anything on no-brainer (however it is spelled with know instead).  I just don't 
want to train the word in my vocabulary.
http://www.knowbrainer.com/PubForum/index.cfm
  hopefully this helps.
Quadius

Steve Oldaker [EMAIL PROTECTED] wrote:
  Dana...
   
  According to Nuance, NaturallySpeaking's parent company, the only Vista 
compliant version of NaturallySpeaking is Ver. 9. Even then you have to upgrade 
to Ver. 9.5 for Vista compatibility, and 9.5 is currently only available for 
the standard and preferred editions. They are working on the 9.5 version for 
the professional edition and it should be available soon. They will not be 
providing any Vista compatible updates for any previous versions of 
NaturallySpeaking. Looks like it will be best to stay with Windows XP unless 
you want to upgrade to Ver. 9.5. If you do go with Vista and NaturallySpeaking 
9.5, I strongly recommend having at least 2GB of RAM on the computer at a 
minimum, more if your computer and budget can handle it.
   
  Steve

  
-
  From: [EMAIL PROTECTED] [mailto:[EMAIL PROTECTED] 
Sent: Saturday, February 10, 2007 11:37 AM
To: quad-list@eskimo.com; [EMAIL PROTECTED]
Subject: [QUAD-L] (no subject)


  
  Can anyone help me with this question.  My brother is setting up my new 
laptop and he says it will not take Dragon.  Is this true.  He says Visa has 
its own voice program.  I can't imagine not having Dragon.  Does any one know 
anything about the new VISTA program and Dragon.
   
  I hope someone can help me.  I just have Dragon 8 professional and he thought 
he had to order Dragon 9482 work.  Surely someone has come across this problem. 
 He is taking my bedroom computer to work on and all I will have is the laptop 
in here.  My living room computer is new but it did not have this to so Dragon 
eight is working fairly well with some problems.  He thought it was also a 64 
bit whatever that means?

HELP!
   
  Dana


 
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Re: [QUAD-L] introductions

2007-02-10 Thread B. Kimberlin \(Quadius\)
Welcome Jessica and may your stay here be considerably longer and less 
problematic than your previous.
Quadius

Jessica Ann Gordon [EMAIL PROTECTED] wrote:  hi all!

my name is jessica. i'm new to the list -- kinda. i was a subscriber 
a few years back but had technical difficulties. s, i'm back! i'm 
a c6/c7 quad due to a car accident 7 years ago. i'm 26 years old and 
live in maine with my boyfriend and our great dane and 2 kitties.

look fwd to future correspondence!

=jessica



 
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Re: [QUAD-L] Stuntman's Birthday?

2007-02-09 Thread B. Kimberlin \(Quadius\)
They used to say that about Tampa.  They even had a joke with the end of it 
being some guy was extremely happy because he was in hell am I had frozen over, 
so he joked that the Buccaneers had obviously won the Super Bowl.
  
Maybe one day in a Lions might get it also.
Quadius
Bill_J [EMAIL PROTECTED] wrote:
  Dave,
  I'm a Lions fan, too.  A friend of mine said Watch for hell to freeze over.  
You'll know the Lions won the Super Bowl.  LOL
   
  Bill age 56
C6 Incomplete since 7/20/68
Leesburg, FL
Out of my mind. Back in five minutes.
- Original Message - 
  From: David K. Kelmer 
  To: Tim Thompson ; Quad List 
  Sent: Wednesday, February 07, 2007 5:23 PM
  Subject: Re: [QUAD-L] Stuntman's Birthday?
  

  Hi Tim,
   
  Sorry about the 'Bears' loss to the Colts.  I'm a Detroit Lions fan so I'll 
lend you our 'Motto' --- There is ALWAYS next year!  :)  I hope you're feeling 
better by now.
   
  With Love,
  
CtrlAltDel aka Dave
C4/5 Complete - 30 Years Post
   
   
  Texas, USA
  

Tim Thompson [EMAIL PROTECTED] wrote:
Thanks,
  I'm way behind on my e-mails, just now recovering from a cath pull induced 
UTI.
  Looking fwd to Da Bears ride the Colts in the Superbow!.
GO BEARS!
   
  Stunt
 
  On 1/29/07, David K. Kelmer [EMAIL PROTECTED] wrote: Hi Stuntman,
   
  If I recall correctly you have a birthday coming up.  If I'm correct I want 
to wish you a very Happy Birthday.  If I'm not I will just wish you a very 
Happy Day!
   
  With Love,
  
CtrlAltDel aka Dave
C4/5 Complete - 30 Years Post
   
   
  Texas, USA
   





 
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Re: [QUAD-L] Hotels (my horror story)

2007-02-09 Thread B. Kimberlin \(Quadius\)
This is really ironic, I was just talking to my brother yesterday about how 
asinine it is that we need prescriptions for things like catheters, changing 
kits, etc.  Who in their right mind is going to buy such an expensive product, 
but someone that really needs it.  I might be wrong, but I really don't see 
this being in the same venue as a controlled substance, like Valium or codeine.
Quadius (Billy from Tampa)

Danny Hearn [EMAIL PROTECTED] wrote:  Billy, I sure agree with you on 
that issue. About 3 years ago my son was getting married 5 hours out of town 
from me, So we did my once a month catheter change the night before we left 
town. I thought this is great now no worries at all, I'm good for a whole 
month.Well on the way down my cath got blocked up..this has only happened 2 
times ever in 6 years of wearing a supra-pubic, Urine was coming out of my cath 
entry hole site and I was getting some disreflexia.  It was so hard finding a 
medical supplier that had the right catheter and all the stuff needed to change 
it...also when we did.they had to get hold of our hometown doctors for 
approval for us to buy the needed stuff, that took 2 hours for approval , And 
when it was approved they charged us over $80 dollars for supplies that would 
have been less than $15 or $ 20 back home. Now we travel prepared no matter 
what ! ;-)   ((  Why do simple medical supplies need
 approval ))  If anyone knows let us know.Thanks ,  Dan H.

B. Kimberlin (Quadius) [EMAIL PROTECTED] wrote: I'll share with you my 
nightmare on my first overnight trip.
To keep it short, I ended up clogging a catheter late in the evening and of 
course I was thinking ahead, so I had packed a new catheter and catheter 
changing tray.  As I walked my PCA through each step, imagine my horror when I 
watched the tube, which fills up the balloon, in the catheter virtually explode 
just below the syringe insertion point.
  Knowing this catheter was completely useless, I almost in hysteria when I 
asked my sister-in-law where they had placed the clogged catheter and she 
revealed it had just been thrown away.  Not knowing what to do, I contemplated 
trying to get to the nearest hospital, but ended up pulling the old catheter 
out of the garbage, cleaning it as thoroughly as possible, irritating it like 
there was no tomorrow until it was finally cleared of the obstruction, and then 
we reinserted the catheter.
  Of course I ended up getting a UTI, however, at least I didn't have a stroke 
because of the dysreflexia.  Needless to say, now if I'm going to travel 
anywhere I have at least two backup catheters.  You just never know!  
Quadius


Amy Davis [EMAIL PROTECTED] wrote:
One more piece of advice. Once we stayed in a motel in adjoining rooms with 
some of his family. We locked the security lock on the inside of our room door. 
We accidently let the adjoining door close and Si was locked in! We went to get 
another card key from the desk. But we could not get into the room because of 
the security lock. We had to call maintance to come in and use a special tool 
to get the door open. The bad thing was that he was on a vent in the room by 
himself. We were terrified that he would pop off or need to be suctioned before 
we could get in. 
  You never know what can happen when you travel..make sure you have 2 days 
worth of supplies and at least 1 extra of any piece of equipment that you use 
at home. We just pack a bag with things we may need...just in case... and leave 
it in the van. A different bag has supplies and clothes for the day. 
  And no matter how well I plan, I always manage to forget something. You 
sometimes have to improvise. Go with a sense of humor and a lot of patience. 
Take your time and don't hesitate to ask for help if you need it. People 
generally are glad to lend a hand.
  Most of all HAVE FUN!

Eric W Rudd [EMAIL PROTECTED] wrote:
  www.expedia.com
   
   
  Eric W Rudd
  [EMAIL PROTECTED]
   

  -Original Message-
From: B. Kimberlin (Quadius) [mailto:[EMAIL PROTECTED] 
Sent: Monday, February 05, 2007 8:51 PM
To: quad-list@eskimo.com
Subject: ***Possible Spam*** Re: [QUAD-L] Who Do I Complain To?


Just curious if anybody would know if there is a list out there of hotels that 
have rooms in which one might use a lift (Hoyer) in order to transfer.  I have 
only traveled outside of my immediate area once since I was injured and 
thankfully I was able to call them in advance and make sure everything met my 
needs.  However, that was a government room.
Thanks,
Quadius



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Re: [QUAD-L] Quads and Hospitals that almost killed me!

2007-02-09 Thread B. Kimberlin \(Quadius\)
That is why I try my best to make sure that I only go to hospitals that are 
extraordinarily familiar with SCI.  I had some difficulty some years back and 
had to take an ambulance to the hospital.  My brother tried to hand them, the 
EMTs, a card on dysreflexia, but they had no idea what the hell it was.
Quadius

Derrick [EMAIL PROTECTED] wrote:  I was almost killed at our local 
hospital after recent sugery.
  I went in for sugery to remove 2 hemmhroid. 1 bleeding internal and 1 outside
  I printed out 5 pages of info on AD and took it with me to the hospiital 
because I knew that dysreflexia would happen.
  I was to stay overnight because they were to put packing in my rectum to stop 
any bleeding. Well when I awoke from the sugery and ate something, my blood 
pressure(bp) spiked to 190 over 130. it usually is around 90 over 70. 
  I showed the nurse the papers about AD and told her that I wanted to see a 
doctor. I told her to take the packing out and see if the blood pressure would 
drop. This was around 4pm. She called the doctor and he told her to put me on 
pills every 15 minutes and IV'ed another blood pressure medications every 1/2 
hour. Plus they gave me morphine and other pain meds for my headache. 
Well, this went on untill 9 pm. My b.p. finally lowered. An emergency room doc 
showed up at 9:30pm. [5.5 hours later] He asked, Why did I think I needed a 
doctor. I told him about AD and sked him if he ever treated it before. He said 
yes and that is all i remember because i was so drugged up.
  So, around 10pm, i felt funny and i asked the nurse to check my bp. She did 
and it was 60 over 30. So, they put me on drugs to raise my bp. Around 2:30am, 
my bp was around normal. They never removed the packing until sometime after 
this. Then my bp stayed normal and I went home at 11am.
   
  There is alot more to the story that blows me away on how healthcare 
officials do not listen to their patients and they think they know it all. I 
had the systoms and causes in black and white. Wow! 
   
  Please let me know of any good website links to info about AD. I am making it 
a mission that this does not happen to anyone else.
   
  Derrick Winegardner
  c/5 
   
   
   
- Original Message - 
  From: RONALD L PRACHT 
  To: quad-list@eskimo.com 
  Sent: Wednesday, February 07, 2007 3:36 PM
  Subject: [QUAD-L] Quads and Hospitals
  

  Hey yall,
   
  I was in the hospital getting my colonoscopy 2 years ago and the iv they put 
in me caused me to go into dysreflexia. I watched my blood pressure go up on 
the machine right b4 my eyes. I was scared as hell and neither the people 
prepping me for the colonoscopy or my mother believed anything was wrong. It 
was a very scary momment for me because they were putting me asleep. With the 
grace of god I made it through, but Im kinda bitter because noone ever believes 
anything I say when I go in the hospital. 
   
  Ron c7 St Louis 

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Re: [QUAD-L] Quads and Hospitals

2007-02-07 Thread B. Kimberlin \(Quadius\)
So far I have been through six colonoscopies and they haven't had to put me 
under for any of them.  I had a sensation in my bowels, but it isn't extreme 
enough to cause me to many problems.  I don't know what it would be like to go 
under knowing that my blood pressure was spiking just as they were about to put 
me under.  It must have been petrifying.  Thankfully everything turned out okay 
for you.
Quadius

RONALD L PRACHT [EMAIL PROTECTED] wrote:Hey yall,
   
  I was in the hospital getting my colonoscopy 2 years ago and the iv they put 
in me caused me to go into dysreflexia. I watched my blood pressure go up on 
the machine right b4 my eyes. I was scared as hell and neither the people 
prepping me for the colonoscopy or my mother believed anything was wrong. It 
was a very scary momment for me because they were putting me asleep. With the 
grace of god I made it through, but Im kinda bitter because noone ever believes 
anything I say when I go in the hospital. 
   
  Ron c7 St Louis 


 
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Re: [QUAD-L] Hotels (my horror story)

2007-02-06 Thread B. Kimberlin \(Quadius\)
I'll share with you my nightmare on my first overnight trip.
To keep it short, I ended up clogging a catheter late in the evening and of 
course I was thinking ahead, so I had packed a new catheter and catheter 
changing tray.  As I walked my PCA through each step, imagine my horror when I 
watched the tube, which fills up the balloon, in the catheter virtually explode 
just below the syringe insertion point.
  Knowing this catheter was completely useless, I almost in hysteria when I 
asked my sister-in-law where they had placed the clogged catheter and she 
revealed it had just been thrown away.  Not knowing what to do, I contemplated 
trying to get to the nearest hospital, but ended up pulling the old catheter 
out of the garbage, cleaning it as thoroughly as possible, irritating it like 
there was no tomorrow until it was finally cleared of the obstruction, and then 
we reinserted the catheter.
  Of course I ended up getting a UTI, however, at least I didn't have a stroke 
because of the dysreflexia.  Needless to say, now if I'm going to travel 
anywhere I have at least two backup catheters.  You just never know!  
Quadius


Amy Davis [EMAIL PROTECTED] wrote:
One more piece of advice. Once we stayed in a motel in adjoining rooms with 
some of his family. We locked the security lock on the inside of our room door. 
We accidently let the adjoining door close and Si was locked in! We went to get 
another card key from the desk. But we could not get into the room because of 
the security lock. We had to call maintance to come in and use a special tool 
to get the door open. The bad thing was that he was on a vent in the room by 
himself. We were terrified that he would pop off or need to be suctioned before 
we could get in. 
  You never know what can happen when you travel..make sure you have 2 days 
worth of supplies and at least 1 extra of any piece of equipment that you use 
at home. We just pack a bag with things we may need...just in case... and leave 
it in the van. A different bag has supplies and clothes for the day. 
  And no matter how well I plan, I always manage to forget something. You 
sometimes have to improvise. Go with a sense of humor and a lot of patience. 
Take your time and don't hesitate to ask for help if you need it. People 
generally are glad to lend a hand.
  Most of all HAVE FUN!

Eric W Rudd [EMAIL PROTECTED] wrote:
  www.expedia.com
   
   
  Eric W Rudd
  [EMAIL PROTECTED]
   

  -Original Message-
From: B. Kimberlin (Quadius) [mailto:[EMAIL PROTECTED] 
Sent: Monday, February 05, 2007 8:51 PM
To: quad-list@eskimo.com
Subject: ***Possible Spam*** Re: [QUAD-L] Who Do I Complain To?


Just curious if anybody would know if there is a list out there of hotels that 
have rooms in which one might use a lift (Hoyer) in order to transfer.  I have 
only traveled outside of my immediate area once since I was injured and 
thankfully I was able to call them in advance and make sure everything met my 
needs.  However, that was a government room.
Thanks,
Quadius



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Re: [QUAD-L] PLEASE HELP KYLE HEATHER WIN

2007-02-06 Thread B. Kimberlin \(Quadius\)
That is definitely in a very compelling engagement.
Quadius

[EMAIL PROTECTED] wrote: In a message dated 2/6/2007 4:03:02 P.M. 
Central Standard Time, [EMAIL PROTECTED] writes:
Done!  Wonderful story!
   
  Tim

  
  Me too!
  W


 
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[QUAD-L] Re: Hotels (my horror story)

2007-02-06 Thread B. Kimberlin \(Quadius\)


[EMAIL PROTECTED] wrote:In a message dated 2/6/2007 3:55:45 P.M. 
Central Standard Time, [EMAIL PROTECTED] writes:
  Of course I ended up getting a UTI, however, at least I didn't have a stroke 
because of the dysreflexia.  Needless to say, now if I'm going to travel 
anywhere I have at least two backup catheters.  You just never know!  
Quadius

  
  When traveling, you must have the aptitude of a McGuyver .  As each situation 
changes you have to be ready to make things happen.
  W


 
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Re: [QUAD-L] How Do You Read Books?

2007-02-05 Thread B. Kimberlin \(Quadius\)
Yes Naomi, the mouthstick I use for reading was designed with specialized bite 
grips, but this is because I started to suffer from TMJ (don't ask me what that 
stands for).  However, I had that problem prior to entry, so not everyone will 
need special mouthsticks.  I have more mouthsticks on my workstation and I will 
try to get more pictures of my workstation now that I use it even more 
extensively than previously.
  
For every day reading, I would not think one would need to have a specially 
made mouthstick.  My problem was that I was getting my degree in history and 
had to read a considerable amount every day as well as flip through multiple 
pages looking for specific information.  This is very hard on the jaws, so this 
is why I asked my occupational therapist to see if we could get a dentist to 
help me out.
Quadius
[EMAIL PROTECTED] wrote:
  Quadius,
   
  Thanks for those pictures.  That is a very nice workstation and book stand.  
Is your mouth stick custom made?
  Naomi
C-4 quad since July 2, 2005
Transverse Myelitis



 
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Re: [QUAD-L] How Do You Read Books?

2007-02-05 Thread B. Kimberlin \(Quadius\)
I finished that book about a month ago and even though Nelson DeMille has 
become my favorite author, I found this book to be a little less interesting 
than the previous three in this particular series.  However, that is possibly 
because the other three were so great that it was time for a letdown.  I do 
agree, nonetheless, that the book is a good read, it just wasn't up to the 
normal greatness which I attribute to DeMille.
  
Have you read the other novels in the series Dan?
  well, this is just my opinion.  Probably doesn't mean much anyway.
Quadius

Dans Tessiatore [EMAIL PROTECTED] wrote:
  No, the mouthstick does not have to be manufactured as specific as my mouth.  
I use a mouth stick that purchased through some medical equipment supplier.  I 
do enjoy reading print better but as I have been in bed healing a pressure sore 
the recorded books are better than nothing.  I just finished Wildfire by Nelson 
DeMille it's a good read.  Dan T.

[EMAIL PROTECTED] wrote:   Dan,
   
  Does a mouth stick have to be specially made to fit your mouth?  No, I 
haven't read any good books lately.  Actually I haven't read any books lately.  
As soon as I find out how to turn the page, I will be up and reading(hopefully).
   
 
  Naomi
C-4 quad since July 2, 2005
Transverse Myelitis



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Re: [QUAD-L] How Do You Read Books?

2007-02-05 Thread B. Kimberlin \(Quadius\)
That's one hell of a setup Dave.  Which one of those two large screens is your 
monitor?  I never thought about putting a television in my office.  If I did, I 
would never leave.  :-)
If you doubt this, just look at some of the things I write in my blog.
http://spaces.msn.com/quadius/
Quadius

[EMAIL PROTECTED] wrote:  My favorite table is a door to which I added 
legs - about 30 years ago.
  Here is my little work area. http://ocgrands.com/office/index.htm
  I enjoy seeing everyone's work-space.
  Dave
   
   
   
   
  In a message dated 2/4/2007 11:46:06 P.M. US Mountain Standard Time, [EMAIL 
PROTECTED] writes:
I am so glad you wrote back.  I really like making new friends on the quad 
list.  It is really great to exchange ideas.  It's too bad we all live so far 
away and cannot get together.  I would love to meet everyone on the list.  My 
present desk was made made by a friend that came to visit me in the nursing 
home after reading an article about me in the newspaper.  He recently died 
after being given too much radiation and scarring his lungs after beating lung 
cancer at 87.  My desk was made out of a door and was L-shaped, that was 30 
years ago.  My dad added a piece to this year to make it longer , so I could 
add my lecturn..  It still is not long enough.
   
  Dana
   
  http://www.workshopsolutions.com/index.htm
   
  http://www.gpk.com/qd.htm
   
   
   
   Dana,
   
  Pleased to meet you.  I've posted a few messages prior to this one.  I have 
enjoyed reading messages on the board for a while, but I don't post often.  I 
will try to stay more visible in the future.
  Naomi
C-4 quad since July 2, 2005
Transverse Myelitis
   
  PS.  I am interested in the link to the quad desk



  

   
  Dave Visit My Home Page



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Re: [QUAD-L] Superbowl

2007-02-05 Thread B. Kimberlin \(Quadius\)
Like you, I thought the halftime show was very good.  I was pleasantly 
surprised to see that the collegian band with him was FAMU (Florida AM 
University).  Even though I am not an alumnus, I had the pleasure of seeing 
them when their football team played the University of South Florida, my alma 
mater, the year before last.  They have to be the best, if not one of the best, 
collegian bands in the country.
Quadius

LINDA FERRELL [EMAIL PROTECTED] wrote:DIV {   MARGIN: 0px  }Mark,
  Sorry you lost $50. How did you guys like that game?  I thought it was a 
pretty good game, except for the mistakes. It wasn't a bad game under the rainy 
conditions. I loved Prince, he sure looks great! It was a fun nite!
  Lindaf



 
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Re: [QUAD-L] How Do You Read Books?

2007-02-05 Thread B. Kimberlin \(Quadius\)
Unfortunately I have no idea how much it cost, as it was able to get mine 
through the VA dentist.  The occupational therapist and dentist worked in 
tandem, but I do have an acquaintance of mine who is also a specialist in TMJ 
and volunteered to make me one of these mouthstick's previously.  If you're 
interested, I can contact him to determine the cost and see if he might 
recommend someone in your area.
Quadius

[EMAIL PROTECTED] wrote:  Have much does that cost to get a dentist to make 
a special mouth stick.  I have wanted to get one to use in bed.  My OT through 
VNA in Lawrence tried to make one but it hurt my mouth.  Does the OT have to 
provide a special kit for the dentist to use?
   
  Thank you for the information, Billy.
   
  Dana


 
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Re: [QUAD-L] How Do You Read Books?

2007-02-05 Thread B. Kimberlin \(Quadius\)
Naomi,
If you have any mobility in your hands, I would use the mouse stick as a last 
resort.  Maybe someone else on here and suggest where you might be able to get 
ideas for adaptive technology.  Here in Florida, you could contact the FAAST, 
but I am unsure where to direct you in your area.
Quadius

[EMAIL PROTECTED] wrote:  Quadius,
   
  Thanks for the information on the mouth stick.  My neighbor was suffering 
from TMJ.  Her dentist told her it was due to her grinding her teeth while 
she's asleep.  She has to wear a mouthpiece while she's sleeping, and yes it 
affected her jaw.  I will obtain a mouse stick from somewhere, don't know 
where, but I will get one.  I don't have any therapy right now, so I don't have 
an occupational therapists.  Maybe I'll just have to purchase one, but thanks 
for the info.
   
  Naomi
C-4 quad since July 2, 2005
Transverse Myelitis


 
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Re: [QUAD-L] How Do You Read Books?

2007-02-05 Thread B. Kimberlin \(Quadius\)
This is a very good suggestion.  I went through this process and ended up 
getting enrolled in the US government books on tape program.  While the 
equipment is archaic, to say the least, it does provide free books that are 
completely unabridged.  There is also quite a selection and here in Florida, 
they have a website where you can search for them and order them directly from 
your computer.
Quadius

[EMAIL PROTECTED] wrote:In a message dated 2/5/2007 6:57:21 P.M. 
Central Standard Time, [EMAIL PROTECTED] writes:
  No, this is the first book I have read in this series.  Which one is the best 
?  I have limited access to audio books as my library does not offer every book 
in audio.  Dan T.


  
  I would call the librarian and ask if they can get more audio books via the 
State Program.  Rarely are libraries private.  They usually correspond with 
other branches in your state.  Make sure they know what you want.
  Make them work for YOU.
   
  Best Wishes


 
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Re: [QUAD-L] Who Do I Complain To?

2007-02-05 Thread B. Kimberlin \(Quadius\)
Just curious if anybody would know if there is a list out there of hotels that 
have rooms in which one might use a lift (Hoyer) in order to transfer.  I have 
only traveled outside of my immediate area once since I was injured and 
thankfully I was able to call them in advance and make sure everything met my 
needs.  However, that was a government room.
Thanks,
Quadius

[EMAIL PROTECTED] wrote:Hi Naomi
   
  I'm truly sorry to read of your experience.
   
  I hope that you called and inquired about such a room that meets both/or ADA 
for Accessibility or ADAAG Guidelines for Access ability, before your arrival.
   
  For years we travel almost every other weekend around the Midwest and 
sometimes further.  Often we would make our reservations weeks in advance.  
When placing our reservations, we would advise reservation of our needs as ask 
those two important questions.  Then we would ask for a confirmation number and 
direct facsimile number of the hotel.  We would immediately fax the hotel with 
OUR Confirmation and say something like if your hotel does not meet the ADA or 
ADAAG Guidelines, please advise us within 24 hours.
   
  Upon arrival, we would take our room and start with a check list of 
acceptable standards established by the hospitality industry.  Once we found 4 
defects, we would call for the manager and the chief engineer of the property 
to join us in the room.  We would go over each defect and make sure they had a 
copy.  Then we would advise management that we were checking out of the hotel 
and into the closest hospital and charge the hotel for our stay.  In the early 
days, we would get the Presidential Suite or the Executive Suite, at the same 
price of the normal room rate.  We were always successful in our endeavor and 
taught the hospitality industry's members about the Americans with disAbilities 
Law.
  We did our homework and paperwork before departure, including our parking.  
We would not take no for an answer.
   
  We were most fortunate in our early endeavors.  Apparently, we didn't stay at 
the hotel you were at.
  Best Wishes
  W
   
   
   
   
  In a message dated 2/5/2007 7:56:58 P.M. Central Standard Time, [EMAIL 
PROTECTED] writes:
Can someone please tell me how to file a complaint for discrimination of 
the disable.
   
  Thanks in advance,
   
  Naomi
C-4 quad since July 2, 2005
Transverse Myelitis

  
   


 
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Re: [QUAD-L] Hotels

2007-02-05 Thread B. Kimberlin \(Quadius\)
Thanks for the info.  U2 wheelchair.
Quadius

Eric W Rudd [EMAIL PROTECTED] wrote:  www.expedia.com
   
   
  Eric W Rudd
  [EMAIL PROTECTED]
   

  -Original Message-
From: B. Kimberlin (Quadius) [mailto:[EMAIL PROTECTED] 
Sent: Monday, February 05, 2007 8:51 PM
To: quad-list@eskimo.com
Subject: ***Possible Spam*** Re: [QUAD-L] Who Do I Complain To?


Just curious if anybody would know if there is a list out there of hotels that 
have rooms in which one might use a lift (Hoyer) in order to transfer.  I have 
only traveled outside of my immediate area once since I was injured and 
thankfully I was able to call them in advance and make sure everything met my 
needs.  However, that was a government room.
Thanks,
Quadius



 
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Re: [QUAD-L] Home from Bladder Stone removal

2007-02-03 Thread B. Kimberlin \(Quadius\)
It is great to hear you are doing better Dan.  I had this procedure done on 
January 10 and I had pretty good sensation in my bladder.  I did have some 
abnormal pain in the bladder which persisted for about four days, but 
thankfully I did not need any of the pain pills they gave me.  I continued to 
have some difficulties with bladder spasms and pains later in the evening when 
I was up in my wheelchair, but this diminished after the second week.  However, 
everyone is different.  I definitely had a problem with urine coming out of my 
penis following the procedure and that was probably one of the more aggravating 
things to happen.
BTW, I bled significantly for about five days and then finally had no bleeding 
after seven days.  I had a virtual riverbed of stones, so they had to break up 
quite a few and this might explain why the bleeding lasted so long.
I did check in to make sure this was normal and everything has turned out great 
so far.
 Quadius

Danny Hearn [EMAIL PROTECTED] wrote:   Hello all, I came home Tuesday 
after having a golf ball sized bladder stone taken out, Now about 9 years post 
it was my 1st stone.-- Thanks for all the well wishes and prayers. My Doc was 
going to make an incission to get it out but decided to go with laser method. 
The Doc said he had to try and flush out the pieces because my ( urethra's ) 
were obliverated --- he could not get a wire thru there, and that was how he 
was gonna remove the pieces. Has anyone  had this happen to them ??   { I have 
had a supra-pubic catheter about 6 years now and not sure if that is a common 
occurance with having a supra-pubic.}  {  Also to MARK or others who may have 
had this same procedure done in recent past...did you keep having pain and 
some bleeding afterward ?  }  My bleeding has pretty much stopped now except a 
bit at times and mostly during the night., but i'm still having lots of pains 
like from bladder or lower gut area.hope that
 gets better, I have been taking a lot of vicadins.  (( Dan H.  c-6 ))

 
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Re: [QUAD-L] How Do You Read Books?

2007-02-03 Thread B. Kimberlin \(Quadius\)
Naomi,
I will try to put some pictures in this text, but if that fails, you can always 
go to a couple of my websites and look at some pictures.  I am planning on 
taking more in the future, but right now this is all I have.
  
I had some book stands built for me and I use a mouth stick to change the 
pages.  I have heard other individuals that have our movement do something 
similar to this, although they usually get some sort of device with an eraser 
tip on the end and turn the pages of the book that way.  I just found an 
individual who was able to modify some of the Plexiglas so I can now only novel 
up to around 1000 pages without too much difficulty.  It does, however, require 
an individual to change the Plexiglas out, but for the most part I am able to 
read the majority of the novels out right now without changing my normal 
plexiglass.
  
If this works.  Here is a picture of my book stand.

  
  Notice how the pages Stay in place without someone having to hold them.  I 
simply use my mouth stick to move the bottom right side of the right page under 
the Plexiglas and put it under the less I Plexiglas.
  
  This is a picture taken from one of my original workstations.  Notice the 
book stand is adjustable with the simple movement of Velcro in the back.  This 
usually requires somebody to set it up initially, but once it is set up it 
doesn't require anything else.
BTW, the Plexiglas can be moved with a mouth stick if you have the bolts 
holding it on the rear loosens sufficiently.

  The above picture depicts my workstation in 2000.  If you look at the left 
side of the table you will see a simple wire bookstand which might serve your 
purposes.  This thing cost me around four or five dollars at my university 
bookstore.  I did, however, see it on sale at Wal-Mart about three weeks ago 
for five or six dollars.
This is definitely a cheap option for individuals that have some arm movement 
and can possibly have an occupational therapist help them out designing some 
sort of mouth (hand) stick type page turner.
  I have tried the automatic page turners and I do not feel they are nearly as 
good as the good old-fashioned book stands.  However, that is my opinion and 
I'm sure there are others on here that think differently.
I hope this helps a little.
Quadius
  PS Here is the website where you can look at these pictures if they do not 
come across properly.
http://www.billy-paul.blinkz.com/albums/previews/68538.htm
  You can also go to my blog at:
http://spaces.msn.com/quadius/

 
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Re: [QUAD-L] How Do You Read Books?

2007-02-03 Thread B. Kimberlin \(Quadius\)
Regarding my previous e-mail with the book stands, I have considered doing some 
sort of manufacturing of this type of thing, but I am not sure if there is a 
market out there.  Of course, I really need to look into getting a patent, but 
in all honesty, this taken from some veteran volunteers which build one for my 
local VA back in the late 60s.
  
Quadius
[EMAIL PROTECTED] wrote:
  I am having a dilemma.  I was an avid book reader before I became a 
quadriplegic due to Transverse Myelitis.  Now I am in a dilemma as to how do I 
manage to read a book.  I have a book stand, but it is virtually impossible for 
me to turn the pages.  I have looked on the Internet for page turners, but I 
haven't found any that are suitable for my need.  This is really driving me 
crazy, especially since there are so many things I need to read.  I would like 
to know how anyone else manage to read a book.  For novels, I get books on 
tape, if they're available, but some things I need to read, do not come on a 
tape.  I would appreciate any suggestions.
   
  Naomi


  
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Re: [QUAD-L] How Do You Read Books?

2007-02-03 Thread B. Kimberlin \(Quadius\)
I just realized the website I gave you before is now a private, but if you 
would like it can individually send you pictures.  It looks as if the pictures 
went through okay on the e-mail, but I'm not sure if everyone else can view 
them.  Just let me know.
Quadius

B. Kimberlin (Quadius) [EMAIL PROTECTED] wrote:Regarding my previous 
e-mail with the book stands, I have considered doing some sort of manufacturing 
of this type of thing, but I am not sure if there is a market out there.  Of 
course, I really need to look into getting a patent, but in all honesty, this 
taken from some veteran volunteers which build one for my local VA back in the 
late 60s.
  
Quadius
[EMAIL PROTECTED] wrote:
  I am having a dilemma.  I was an avid book reader before I became a 
quadriplegic due to Transverse Myelitis.  Now I am in a dilemma as to how do I 
manage to read a book.  I have a book stand, but it is virtually impossible for 
me to turn the pages.  I have looked on the Internet for page turners, but I 
haven't found any that are suitable for my need.  This is really driving me 
crazy, especially since there are so many things I need to read.  I would like 
to know how anyone else manage to read a book.  For novels, I get books on 
tape, if they're available, but some things I need to read, do not come on a 
tape.  I would appreciate any suggestions.
   
  Naomi


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Re: [QUAD-L] How Do You Read Books?

2007-02-03 Thread B. Kimberlin \(Quadius\)
Actually Joan the workstation is enormous and I have not seen anyone that has a 
chair which couldn't get under it.  I guess the picture is a little deceptive.
Quadius

Joan Anglin [EMAIL PROTECTED] wrote:Hey Quadius
  
Nice workstation -- it wouldn't work for me because my chair is so long, but I 
like the way you have everything in one place. I like your book stand too. I 
like the fact that it is adjustable for thicker books.
  Joan
B. Kimberlin (Quadius) [EMAIL PROTECTED] wrote:
  I just realized the website I gave you before is now a private, but if you 
would like it can individually send you pictures.  It looks as if the pictures 
went through okay on the e-mail, but I'm not sure if everyone else can view 
them.  Just let me know.
Quadius

B. Kimberlin (Quadius) [EMAIL PROTECTED] wrote: Regarding my previous 
e-mail with the book stands, I have considered doing some sort of manufacturing 
of this type of thing, but I am not sure if there is a market out there.  Of 
course, I really need to look into getting a patent, but in all honesty, this 
taken from some veteran volunteers which build one for my local VA back in the 
late 60s.
  
Quadius
[EMAIL PROTECTED] wrote:
  I am having a dilemma.  I was an avid book reader before I became a 
quadriplegic due to Transverse Myelitis.  Now I am in a dilemma as to how do I 
manage to read a book.  I have a book stand, but it is virtually impossible for 
me to turn the pages.  I have looked on the Internet for page turners, but I 
haven't found any that are suitable for my need.  This is really driving me 
crazy, especially since there are so many things I need to read.  I would like 
to know how anyone else manage to read a book.  For novels, I get books on 
tape, if they're available, but some things I need to read, do not come on a 
tape.  I would appreciate any suggestions.
   
  Naomi


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RE: [QUAD-L] /cell phone Bluetooth

2007-02-01 Thread B. Kimberlin \(Quadius\)
Thanks for the information.  Maybe it's time I took the leap, especially given 
some of my escapades when I didn't have a cell phone.
Quadius

poajoan [EMAIL PROTECTED] wrote:  v\:* {   BEHAVIOR: url(#default#VML)  } 
 o\:* {   BEHAVIOR: url(#default#VML)  }  w\:* {   BEHAVIOR: url(#default#VML)  
}  .shape {   BEHAVIOR: url(#default#VML)  }  @font-face {   font-family: 
Tahoma;  }  @page Section1 {size: 8.5in 11.0in; margin: 1.0in 1.25in 1.0in 
1.25in; }  v\:* {   BEHAVIOR: url(#default#VML)  }  o\:* {   BEHAVIOR: 
url(#default#VML)  }  w\:* {   BEHAVIOR: url(#default#VML)  }  .SHAPE {   
BEHAVIOR: url(#default#VML)  }  P.MsoNormal {   FONT-SIZE: 12pt; MARGIN: 0in 
0in 0pt; FONT-FAMILY: Times New Roman  }  LI.MsoNormal {   FONT-SIZE: 12pt; 
MARGIN: 0in 0in 0pt; FONT-FAMILY: Times New Roman  }  DIV.MsoNormal {   
FONT-SIZE: 12pt; MARGIN: 0in 0in 0pt; FONT-FAMILY: Times New Roman  }  A:link 
{   COLOR: blue; TEXT-DECORATION: underline  }  SPAN.MsoHyperlink {   COLOR: 
blue; TEXT-DECORATION: underline  }  A:visited {   COLOR: purple; 
TEXT-DECORATION: underline  }  SPAN.MsoHyperlinkFollowed {   COLOR:
 purple; TEXT-DECORATION: underline  }  P {   FONT-SIZE: 12pt; MARGIN-LEFT: 
0in; MARGIN-RIGHT: 0in; FONT-FAMILY: Times New Roman; mso-margin-top-alt: 
auto; mso-margin-bottom-alt: auto  }  SPAN.EmailStyle17 {   COLOR: navy; 
FONT-FAMILY: Arial; mso-style-type: personal  }  SPAN.EmailStyle19 {   COLOR: 
navy; FONT-FAMILY: Arial; mso-style-type: personal-reply  }  DIV.Section1 {   
page: Section1  }Hey Quadius
   
  I am a C4 quad, can't move below my shoulders, and I make all the outgoing 
and answer all the in coming calls on my cell phone -- without pushing any 
buttons. I have a Sony Ericsson 600 I cell phone, a cobra adapter, which 
connects to the microphone end of the cable, the Plantronics Bluetooth voyager. 
To answer the phone. I just have to say answer. To make an outgoing call, I use 
my magic word, which in my case is expialadocious spelling?. I then choose 
to make a call to one of the voice-enabled numbers on my phone, i.e. call 
Taryn, or say voice connect, which connects me to voice dial with Cingular -- I 
can then choose from one of the stored numbers on voice dial or dial by number. 
When my call is finished, with Cingular voice connect, it asks me to make 
another choice -- if I say nothing. It tries two or three more times, and then 
hangs up. When my call is finished with one of the voice-enabled numbers on my 
phone, the phone hangs up by itself. If I have answered a
 call on my phone, when the other party hangs up my phone hangs itself up. Yes, 
there is a bug, and as I explained before. I utilize the bug to my advantage. 
If there is a missed call, I cannot call out. I can however answer the phone. 
So when I am going to be in a noisy environment, or with friends and I am not 
interested in making any calls out, I have somebody call me and I do not answer 
the phone. When I am ready to resume using the phone, I ask somebody to push 
the button to remove the missed calls.
   
  Like any voice-activated equipment -- an environmental control unit, Dragon 
NaturallySpeaking, they're all have and will continue to have problems with 
ambient noise. Using a unidirectional microphone helps to a great extent, but 
they still are affected by a noisy environment. I guess I have chosen to live 
with the bugs, because I have no other choice for telephone, my environment, 
and my computer, when I am not able to be sitting up in my wheelchair using a 
mouth stick.
   
  This system is quite reasonable, I thought, and I do love the privacy of 
conversations that other people do not hear and join me in my conversation. I 
do not remember the name of the motivational speaker that I heard over 20 years 
ago, but one phrase stands out in my mind -- if you wait for all the people To 
Be out of your way on the highway before you go to town, you will never leave 
home. So I guess I'm jumping in there with all of the people on the highway, 
and I'm loving it.
   
  Incidentally, this system became available last November of 2005, so it is 
relatively new. Have a great day Joan
  
-
  
  From: B. Kimberlin (Quadius) [mailto:[EMAIL PROTECTED] 
Sent: Monday, January 29, 2007 6:52 PM
okay: poajoan
Cc: quad-list@eskimo.com
Subject: RE: [QUAD-L] Pressure mapping/cell phone Bluetooth

   
  If I'm not mistaken, Bluetooth is not a completely hands-free microphone.  
Although, the last time I checked was quite some time ago. I'm still waiting on 
a system that will allow me to answer the telephone and call out a hands-free.  
I remember some people intimating there was a system available, but I would 
like to hear from people that don't have bugs with it before I actually go out 
and invest a significant amount of money into the product.
Quadius

poajoan [EMAIL PROTECTED] wrote: 
Hi Dan.

 

As I replied to Dana, I do use a Plantronics Bluetooth voyager

Re: [QUAD-L] min oil

2007-02-01 Thread B. Kimberlin \(Quadius\)
Jim,
I accidentally deleted the e-mail which said how much oatmeal you use.  I'd 
appreciate if you could give it once again.
  
I was told to start taking a Metamucil by my doctor quite some time ago in 
order to make sure that I kept regular and so the stool would maintain a 
certain consistency.  I occasionally have problems with loose stool and then 
inexplicably go to constipation without any change in diet.
  I have found over the last two years that I have had to do my bowel program 
every other day, as I was getting too much discomfort (it actually felt like I 
needed to go all of the time).  After consulting a dietitian, she told me based 
on my food diary that I was getting too much fiber and this was stimulating my 
bowels to move as if they were getting ready to void.  Now I have to watch how 
often I eat my garden burgers/sausages/chicken substitute and how much other 
fiber I take in.
  
If I can replace Metamucil with other fiber, that would be fine by me.  It 
would be really great if I could eat my garden accessories and a ton of salad 
everyday without discomfort.  I am just curious to hear what everyone on here 
thinks about this.
Well, perhaps not everyone.  :-)
Quadius
 [EMAIL PROTECTED] wrote:
   Metamucil is designed to make you go, I do not have that problem.  The 
bran forms everything up really nice so I do not wake up with a mess in my bed 
or have troubles during the day.
   
  Jim


 
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Re: [QUAD-L] Adaptive Driving

2007-02-01 Thread B. Kimberlin \(Quadius\)
I live in Florida and don't have a license, but was able to register my Van in 
my name and the insure it in my name.
Quadius

Dan [EMAIL PROTECTED] wrote:  I live in NH and own my van. I don't have a 
drivers licence but I have no problem registering it. 

Dan V  


At 10:25 AM 2/1/2007 -0800, Merrill Burghardt said something that elicited my 
response:
  

  When I purchased my van and equipment, the insurance company would not allow 
me to insure above the Blue Book price regardless of the new van now worth 
$35,000.  They said even restored vehicles could only be insured for the year s 
market price.  True or not, this was my experience.

 

Now, ten years latter I still use the van but no longer drive nor have a 
licenses.  Because I no longer poses a driver s license, California DMV will 
not register the van in my name!  Have any non-licensed people here been able 
to register their vehicle in their name?

 
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Re: [QUAD-L] min oil

2007-01-30 Thread B. Kimberlin \(Quadius\)
Generic Metamucil works wonders.
Quadius

[EMAIL PROTECTED] wrote:   I never had a need for mineral oil because my 
problem was always the opposite, everything would run out.  A friend of mine 
told me that he eats 1/4 cup of bran every day and he goes regularly.  I tried 
the quarter cup of bran each day and in only a few short days everything comes 
out regularly and formed.  I would suggest the bran to everybody to at least 
try to see if it helps like it has helped me.
   
  Jim


 
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RE: [QUAD-L] Supra Pubic problem question

2007-01-29 Thread B. Kimberlin \(Quadius\)
Are you wearing a condom catheter?  I can't remember how long ago you said you 
had the SP put in, but if it was not that long ago you might still be voiding 
through your urethra.  I did for quite some time and ended up having to wear 
two bags at the same time for a while.
  
How many total cc do you have in the balloon.  I usually use around 8 cc, but 
you can go to around 10 cc.  I also tried to make sure mine was taught during 
the initial adjustment, but you have to be careful, if you make it too taught 
it can have a damaging effect in the long run.
  Are you experiencing any swelling in your legs when you are up in the 
wheelchair?  If so, is it going down after spending time in bed?
I don't know if you have any extra chucks, but you might want to think about 
putting some around your stoma in an effort to prevent the urine from getting 
all over the bed.
  
I will post this to the Quad list as there is probably some other advice that 
others might be able to give that might benefit you.
   Quadius
Merrill Burghardt [EMAIL PROTECTED] wrote:
  v\:* {   BEHAVIOR: url(#default#VML)  }  o\:* {   BEHAVIOR: 
url(#default#VML)  }  w\:* {   BEHAVIOR: url(#default#VML)  }  .shape {   
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underline  } 
 SPAN.MsoHyperlink {   COLOR: blue; TEXT-DECORATION: underline  }  A:visited {  
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COLOR: purple; TEXT-DECORATION: underline  }  P {   FONT-SIZE: 12pt; 
MARGIN-LEFT: 0in; MARGIN-RIGHT: 0in; FONT-FAMILY: Times New Roman; 
mso-margin-top-alt: auto; mso-margin-bottom-alt: auto  }  SPAN.EmailStyle18 {   
COLOR: windowtext; FONT-FAMILY: Arial; mso-style-type: personal  }  
SPAN.EmailStyle20 {   COLOR: navy; FONT-FAMILY: Arial; mso-style-type: 
personal-reply  }  DIV.Section1 {   page: Section1  }Hello Quadius,
   
  Thank you for responding.  Excues the direct mail but I am not familiar to 
posting.
   
  Oh yes the bed is drenched in urine at night, nearly every last drop.  During 
the day not a drop gets out of bag.  True, most folks void in supine. My 
doctors are at a lost.  I take dettrapan to avoid bladder spasms, now I prop 
pillows under my blankets, and have added 5cc extra water to folly.  My best 
effort comes by pulling folly until snug.  The doctors say don’t but this works 
best.  When  I become disgusted, I also sleep at approximately 3o degrees which 
also works.  All the above together have best results.
   
  eRetriever
   
   
  
-
  
  From: B. Kimberlin (Quadius) [mailto:[EMAIL PROTECTED] 
Sent: Saturday, January 27, 2007 2:03 PM
To: Merrill Burghardt
Subject: Re: [QUAD-L] Supra Pubic problem  question

   
Are you actually wetting the bed when you void at night?  I also void 
considerably more in the evening than I do during the day.  I used to crimp my 
Foley, but stop doing that quite some time ago.  The urologist told me it 
really doesn't do much good any longer.  As for abdominal binders, I do wear 
them also, but I do not wear them low enough to affect the suprapubic.


Let me know you are actually avoiding into your bed or just more at bed time.  
My doctor was concerned with the amount that I was voiding and tried to have me 
sleep at a 30° angle, but I'm not able to sleep very well at this particular 
angle.  I can do it occasionally and he is right I do have much more strength 
the next day, but for the most part I sleep around 20°.


Quadius
Merrill Burghardt [EMAIL PROTECTED] wrote:

  Hope you do not mind my writing to you but you seem experienced with your 
supra pubic.  My problem is I void vary little during the day but mostly at 
night which totally voids in bed!  I wear an abdominal binder but I do not 
crimp the folly.  Any clues?

 

Merrill

[EMAIL PROTECTED]

   


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RE: [QUAD-L] Pressure mapping/cell phone Bluetooth

2007-01-29 Thread B. Kimberlin \(Quadius\)
If I'm not mistaken, Bluetooth is not a completely hands-free microphone.  
Although, the last time I checked was quite some time ago. I'm still waiting on 
a system that will allow me to answer the telephone and call out a hands-free.  
I remember some people intimating there was a system available, but I would 
like to hear from people that don't have bugs with it before I actually go out 
and invest a significant amount of money into the product.
Quadius

poajoan [EMAIL PROTECTED] wrote:  v\:* {   BEHAVIOR: url(#default#VML)  } 
 o\:* {   BEHAVIOR: url(#default#VML)  }  w\:* {   BEHAVIOR: url(#default#VML)  
}  .shape {   BEHAVIOR: url(#default#VML)  }  @font-face {   font-family: 
Tahoma;  }  @page Section1 {size: 8.5in 11.0in; margin: 1.0in 1.25in 1.0in 
1.25in; }  P.MsoNormal {   FONT-SIZE: 12pt; MARGIN: 0in 0in 0pt; FONT-FAMILY: 
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TEXT-DECORATION: underline  }  A:visited {   COLOR: purple; TEXT-DECORATION: 
underline  }  SPAN.MsoHyperlinkFollowed {   COLOR: purple; TEXT-DECORATION: 
underline  }  SPAN.EmailStyle17 {   COLOR: navy; FONT-FAMILY: Arial; 
mso-style-type: personal-reply  }  DIV.Section1 {   page: Section1  }   
 Hi Dan.
   
  As I replied to Dana, I do use a Plantronics Bluetooth voyager with my cell 
phone. I am very pleased with it, and I've actually ordered another one as this 
one fell on the floor and the insert into my ear broke off -- but my son-in-law 
was able to glue it back together. Voice connect is a service offered by 
Cingular, which is free to those with a disability, which enables me to say the 
magic word to my Sony Ericsson 600 I cell phone, say voice connect, and then be 
able to access my address book with Cingular or just say call 555 -- 555 -- 
555 and be connected. I absolutely love it. It gives me so much freedom. Hope 
that answers your questions.
   
  Have a great day. Joan
   
  
-
  
  From: Dan Tessiatore [mailto:[EMAIL PROTECTED] 
Sent: Saturday, January 27, 2007 1:36 PM
To: [EMAIL PROTECTED]
Cc: quad-list@eskimo.com
Subject: Fwd: [QUAD-L] Pressure mapping/cell phone Bluetooth

   
Hi Joan, it sounds like you've got a lot of technology working for you. Can 
you tell me, do you use a Bluetooth device with any of your phones? Also, what 
is voice connect? Thanks, Dan T.

  
Note: forwarded message attached.



 
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Re: [QUAD-L] dr.G (Friday night lights)

2007-01-28 Thread B. Kimberlin \(Quadius\)
I watched the first episode and saw where it was heading, so not wanting to 
rehash all of the things I went through when I was injured, I decided not to 
pursue the show.  I have, however, heard from other people it is quite good, 
but it is not my cup of tea any longer.
Quadius

Dan Tessiatore [EMAIL PROTECTED] wrote:  William, no I did not see the 
medical examiner but earlier this week I happened to turn on Friday Night 
Lights, never saw the show before.  One of the characters is a para who had a 
girlfriend whose father intimated that dating him and furthering his 
relationship would be the equivalent of going through hell.  I got such a warm 
and fuzzy feeling watching it.  It seems as though the para character  Agrees 
with the father and the next thing I know he's engaged to the girl.  Anybody 
else see it... Dan T.


William Willis [EMAIL PROTECTED] wrote:   Anybody watch Dr.G, Medical 
Examiner last night? It was about a para who had a 
died of decubiti on his butt/leg. The sore actually had maggots in it. He 
was 20 yrs. post gunshot wound. Since he died from that wound, the shooter 
was charged with murder - 20 yrs. after the fact!



.

 
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Re: [QUAD-L] My 50 year birthday

2007-01-27 Thread B. Kimberlin \(Quadius\)
Happy belated 50th birthday Danny.  And may you have 50 more, if you so desire.
Quadius

Danny Hearn [EMAIL PROTECTED] wrote:Hi all- Today i'm 50 years 
old..wow a half a century !  My family members are all calling today saying 
Happy Birthday , Old Man . LOL   I tell them...well I may be old but this old 
dude don't have any gray hair on his head yet !P.S,---I do have a few on my 
chin whiskers if I let them grow out tho  lol  --   Keep me in prayers or 
thoughts as I go Monday morning to get a golf ball sized bladder stone removed, 
And thanks for the imput by all and web site Dave provided on that subject. 
 Danny c-6   9 .5 years Post 

 
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Re: [QUAD-L] My 50 year birthday

2007-01-27 Thread B. Kimberlin \(Quadius\)
Hell, I already have a pretty good amount of gray hair at 42.  By the time I'm 
45 I will be probably half gray.
Quadius

Bill_J [EMAIL PROTECTED] wrote:  Happy Birthday, Danny.  I'll keep 
you in my prayers for the stone removal.  I have gray hair, but I figure at 56 
years old and 38.5 years post injury I've earned them.
   
  Bill age 56
C6 Incomplete since 7/20/68
Leesburg, FL
Out of my mind. Back in five minutes.
- Original Message - 
  From: Danny Hearn 
  To: quad-list@eskimo.com 
  Sent: Friday, January 26, 2007 10:00 AM
  Subject: [QUAD-L] My 50 year birthday
  

  Hi all- Today i'm 50 years old..wow a half a century !  My family 
members are all calling today saying Happy Birthday , Old Man . LOL   I tell 
them...well I may be old but this old dude don't have any gray hair on his head 
yet !P.S,---I do have a few on my chin whiskers if I let them grow out tho  
lol  --   Keep me in prayers or thoughts as I go Monday morning to get a golf 
ball sized bladder stone removed, And thanks for the imput by all and web site 
Dave provided on that subject.  Danny c-6   9 .5 years Post 

 
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Re: [QUAD-L] min oil

2007-01-27 Thread B. Kimberlin \(Quadius\)
Whenever I am having difficulty or think I am with constipation, I use mineral 
oil.  I have found no dependency whatsoever.
Quadius

William Willis [EMAIL PROTECTED] wrote:  
Anybody tried a daily dose of mineral oil to solve that old backup problem? 
Does it work? Does it cause dependency? Larry Willis





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RE: [QUAD-L] Omega Trac.

2007-01-25 Thread B. Kimberlin \(Quadius\)
As you are used to using the chin control, you will probably never be satisfied 
with the Peachtree.  However, here is some information on it.  I looked and 
this is one of the conversations I had with an individual about Peachtree.  It 
may explain some things, however, it may be lacking.
http://www.invacareboards.com/forums/showthread.php?t=263highlight=Peachtree
  
Quadius
Joan Anglin [EMAIL PROTECTED] wrote:
Hi Mike.
  
I use a chin controller, which is on a collar around my neck. I much prefer it 
to the rigid cin controller, because it is flexible, and adjusts as I go up and 
down and on an incline. The drawback to the chin control or collar is that it 
weighs 1 lb. 2 oz., which is very heavy by the end of the day. However, they 
are working on a much lighter controller, so I am hopeful that within a year, I 
will have a lighter collar. However, I have used this type of chin controller 
for 16 years and am very accurate and it is very responsive. My first chin 
controller was a Duit chin control, and it was very light weight, but required 
that you click a lever to the right to change modes, and it would sometimes 
rotate out of my way. Seven years later I got an Invacare storm and the chin 
controller was literally the hand controller which we mounted on a collar. 
Eight years later, without any insurance because my husband and I had divorced, 
I purchased the Omega Trac, and it is the hand
 controller, which however they mounted to a collar. I don't know anything 
about Peachtree, so I have no idea what you guys are talking about. When I get 
a chance I will Google it. Hope
  
Joan
  Mike Murach [EMAIL PROTECTED] wrote:
  @font-face {   font-family: Tahoma;  }  @page Section1 {size: 8.5in 
11.0in; margin: 1.0in 1.25in 1.0in 1.25in; }  P.MsoNormal {   FONT-SIZE: 12pt; 
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DIV.MsoAutoSig {   FONT-SIZE: 12pt; MARGIN: 0in 0in 0pt; FONT-FAMILY: Times 
New Roman  }  SPAN.EmailStyle17 {   COLOR: windowtext; FONT-FAMILY: Arial  } 
 SPAN.EmailStyle18 {   COLOR: navy; FONT-FAMILY: Arial  }  DIV.Section1 {   
page: Section1  }How do you control your Omega Trac (i.e. joystick, 
chin, etc.)?
  Mike~
   
www.MurGallery.com
   

   
  -Original Message-
From: poajoan [mailto:[EMAIL PROTECTED] 
Sent: Wednesday, January 24, 2007 1:23 PM
To: [EMAIL PROTECTED]; quad-list@eskimo.com
Subject: [QUAD-L] Pressure mapping
   
  Thank you all for the input on pressure mapping. I have been somewhat 
reluctant to go to a Roh0 cushion as I am afraid that I will lose the stability 
of my J. cushion. We live on the side of a hill/mountain, and nowhere do I have 
much level ground. I have an Omega Trac wheelchair which is absolutely awesome 
and I can get around everywhere safely.
   
  By the way, I brought my Omega Trac on eBay. It was in Hong Kong and I paid 
$2300., which included shipping to United States. I had it sent to Teftec in 
Texas for an overhaul. They went over the entire chair, painted, put the new 
electronic system on it, and then had it shipped up to me. Ironically, the 
shipping from Texas was more than the shipping from Hong Kong!
   
  So back to the Roho cushion, how stable is it going over bumps and curbs and 
things? If it does spring a leak, how quickly does it go flat? I have 
absolutely no control of my upper torso, and have a chest strap that goes under 
my clothes to hold me in the chair. That is why I am somewhat concerned about 
the stability in the chair with the Roho. I would notice if the air was leaking 
out on one side or the other, but I would not notice if it were leaking out 
evenly, unless it went down an inch or so, for then I would feel it with the 
added pressure on my shoulders. 
   
  Both arms are Velcroed to the armrests. Someone just brought up the problem 
of the vinyl cracking on the armrests -- I like to have my armrests covered in 
commercial velvet, we use spray adhesive and cut the velvet to fit. It makes 
them less slippery, and also not as hot in the summer.
   
  I am at least two months away from buying a new cushion, but I would like to 
explore my options now.
   
  Well, that's enough for this e-mail, I'll write more later.
   
  Joan, C4 1990.
   


. 

 
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Re: [QUAD-L] New 2006 medicare wheelchair codes

2007-01-25 Thread B. Kimberlin \(Quadius\)
Well-written Bill.  The only thing I might suggest is you send it to your 
Senators and your Representative.
Quadius

Bill_J [EMAIL PROTECTED] wrote:  Here's the letter I sent to my 
federal legislators, CMS, The Sectretary of Health  Human Services, Bush, 
Cheney, Nancy Pelosi and many others in Nov, 2006.
   
  To Whom It May Concern:
   
  I was recently made aware that Medicare will only provide powered wheelchairs 
which suit the person’s needs inside his/her home.  The phrase in the home 
was never intended to be defined as inside the person's house.  It was 
originally intended to mean not in a hospital, extended care facility or other 
health institution.  It was the CMS that interpretted it so narrowly that it 
has become their mantra when dissallowing power wheelchair requests.
   
  I am a double amputee quadriplegic and use a powered wheelchair.  To say that 
this mandate appalls me is an understatement.  Most powered wheelchairs that 
are only suited for indoor use are next to useless outside of the home.  Since 
going outside at some times is a necessary activity, doing so in an 
underpowered chair only suited for indoor use would be dangerous, it might end 
up costing Medicare far more money due to accidents caused by unsafe use of 
such wheelchairs.  Not to mention possible lawsuits that would eventually be 
filed.  Then there are the thousands of jobs that could be lost because 
wheelchair manufacturers and distributors would be put out of business, 
resulting in lost tax revenue and higher unemployment expenses.
   
  Does Medicare really want disabled people to stay inside all of the time?  
Isn’t that discrimination against people with disabilities and, therefore, in 
violation of the Americans with Disabilities Act (ADA)?  Are we not allowed to 
venture outside for doctor appointments (something required to remain living in 
many cases), grocery shopping (another activity necessary to live), or just to 
enjoy going outside for a social activity (a vital activity for our mental 
health)?  Are we to be condemned to a life inside our homes as if we were 
hermits?
   
  Back in the 1980’s, I was on several committees at my college that helped 
write the ADA and was proud to have been asked to participate in drafting that 
landmark legislation.  I had no idea that in the future the federal government 
would be the entity that violated that act.  It is unconscionable that a 
government agency that provides healthcare availability to the disabled would 
attempt to so blatantly violate an act of Congress.
   
  I’m requesting that this extreme restriction on the type of powered 
wheelchairs we can obtain through Medicare be changed.  Being disabled and on 
Medicare should not mean we are relegated to being “out of sight, out of mind” 
as it seems this agency (Medicare) desires.  I am only 56 years old and am not 
going to stay indoors the remainder of my life.  This “wheelchair edict,” as I 
call it, is far too limiting and needs to be changed.  That change needs to be 
made as soon as humanly possible.
   
  In an effort to extend Medicare coverage to wheelchairs that can go outside 
of the home, Senator Jeff Bingaman (D-NM) introduced the Medicare Independent 
Living Act of 2006 (S. 3677). This legislation would eliminate the “in the 
home” restriction of mobility devices for individuals with expected long-term 
needs. S. 3677 was referred to the Senate Committee on Finance. Unfortunately, 
due to time constraints and the large amount of legislation which came before 
Congress, this legislation was unable to receive further consideration before 
the end of the 109th Congress. Please see that Mr. Bingaman's proposed 
legislation is reintroduced to the 110th Congress.
   
  This is of utmost importance as it affects both the physical and mental 
health of all persons needing powered wheelchairs.  Please allow our doctors, 
Physical Therapists, Occupational Therapists and wheelchair seating specialists 
determine which wheelchairs best suit our needs as far as comfort, power, 
safety and health are concerned.  Don’t leave our ability to be mobile, safe 
and comfortable in the hands of a Medicare or Medicaid bureaucrat.  People with 
disabilities struggle with many things.  Don’t make them struggle to just move 
around.
   
   
  Respectfully,
  William Jenkins


   
   
- Original Message - 
  From: [EMAIL PROTECTED] 
  To: quad-list@eskimo.com 
  Sent: Wednesday, January 24, 2007 10:18 PM
  Subject: [QUAD-L] New 2006 medicare wheelchair codes
  

   No sense in getting upset about new wheelchairs. We aren't allowed by 
medicare to have a wheelchair that goes outside. If y'all get a chance to read 
the new codes you may want to write some letters. It seems we must be taking 
all the cool parking places.
   
  http://www.wheelchairjunkie.com/2006pwcpolicy.html
   
  john

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Re: [QUAD-L] Do you get the CBBC channel?

2007-01-25 Thread B. Kimberlin \(Quadius\)
Hey Smurf,
Let me know when it makes it to BBC America.  I try to keep up with all of the 
new shows, but they only send out e-mails occasionally to apprise us of what 
they are currently showing.
Quadius
PS I'll respond to you directly about my holiday, unless somebody else wants 
desperately wants to hear about my holiday.


[EMAIL PROTECTED] wrote:  Hey all,
   
  I thought I'd let you guys know just incase any of you get the CBBC channel, 
but the programme I'm in which is called Desperados is starting on the CBBC 
channel on Wednesday 31st January at 5:30pm, and will run over the course of 
10weeks!  And for anyone in the UK who has seen the trailers for it, you know 
the gothic girl with purple hair?  That's me!!!  So if you can watch it guys 
for 2 reasons - one because it's going to be awesome, and two if we get good 
ratings for it there will be a series 2 which we all really want
   
  If you do watch it, I really hope you enjoy it.  Let me know what you think, 
hearing peoples comments are always a great thing!
   
  Love Smurf xxx


 
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[QUAD-L] Still in my old chair

2007-01-24 Thread B. Kimberlin \(Quadius\)
 problem with me keeping the same one,
 especially since I have a backup.  Although, the backup is designed for 
another chair, which I have not received and really don't expect to any time 
soon (long story), so maybe I need to ask about getting a backup which will fit 
this chair.
Thanks for the heads up.
Quadius

Dan Tessiatore [EMAIL PROTECTED] wrote:   Dave, I have an Ortho Elite air 
diffuse mattress.  It is made by Sunrise Medical or a company affiliated with 
sunrise medical.  It has worked wonderfully.  It has started making a whistling 
sound every so often and someone suggested putting lambs will over it.
The only maintenance that it required is to clean the air filter once in 
awhile.  It's a simple process.  Also, if your area has a history of power 
outages you might want to get some type of backup for power because the 
mattress will deflate in the matter of seconds without electricity.  I recently 
purchased a Generac generator for backup that automatically starts when a power 
outage occurs.
I am also 30 years Post C 4-5 as a result of waterskiing accident.  This past 
six months I have been trying to heal pressure sores on my behind and it has 
been a challenge.  I think I am near the latter stages of healing as I have 
been spending a great deal of time in bed.  I was sitting on an Quattro from 
Roho and I didn't realize that it had an extremely small leak that was 
unnoticeable when sunk in water.  At one point it just more or less burst open. 
 The cushion was five years old and that is their expected life.  If anyone is 
using a Roho and you are approaching five years or later with the cushion 
please take notice that there could be problems.

David K. Kelmer [EMAIL PROTECTED] wrote: Hi Dan,
   
  I am looking for a good defusing mattress for the fist time as a Quad.  It 
will be my first air mattress so I'm taking the time to buy the right one for 
me.
   
  With Love,
  
CtrlAltDel aka Dave
C4/5 Complete - 30 Years Post
Texas, USA
   
   
   
  Dan Tessiatore [EMAIL PROTECTED] wrote:
  Thanks for the feedback.  I am going to try the sheepskin.  Dan

B. Kimberlin (Quadius) [EMAIL PROTECTED] wrote:   I had the same problem 
with mine, but I found if I covered my mattress with sheepskins it helped with 
the noise.  I used to own an alternating mattress, but I find the mattresses 
which diffuse here to be more effective in maintaining my skin integrity.
Quadius




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Re: [QUAD-L] Balloons

2007-01-24 Thread B. Kimberlin \(Quadius\)
11 years for me.  I use pretty much the same techniques as Dan described here, 
but I decided on me the suprapubic more for practicality.  Mainly I was not 
draining sufficiently when I had a Texas catheter and I consistently a problems 
with the aforementioned condom catheter leaking all over my pants.  I also 
wanted to keep my little Q open for other options, but haven't had much action 
lately.  :-)
Quadius

Dan [EMAIL PROTECTED] wrote:  2 years for me. I had a Foley for a year before 
that. I much prefer the SP - my Peter is much too good looking to have a tube 
stuck down his throat! My PCAs change the SP every 3 weeks and it's very easy. 
It's about as difficult as changing a belly button ring. The only cleaning I do 
is wipe around the opening once a day with an antibacterial wet one and put a 
dab of triple antibiotic cream on it. 

Dan V 


At 06:34 PM 1/22/2007 -0800, Dillon Ewa said something that elicited my 
response:
  
  Hello,

I am curious and would like to know how long you have had your suprapubic?  I 
may have to have one in the near future because of seven problems and want to 
know how difficult they are to maintain, keep clean and so on.  I hope your 
problems will resolve themselves and that your catheter performs well.  I now 
have an indwelling Foley and am just out of the hospital for a bladder 
infection, it was terrible.
 
Take care, Dillon
B. Kimberlin (Quadius) [EMAIL PROTECTED] wrote: 
   I usually use around 8 cc, however, I think this is more experimental and 
depends on every individual's needs.   
   Quadius

  
   Dan [EMAIL PROTECTED] wrote:   
   I have had periods of bleeding through my Supra Pubic. I decided to reduce 
the inflation of the balloon from 10ccs to 5ccs. Since then - so far - no 
bleeding and   
   it is more comfortable. Anyone else done this?

  
   Dan V





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Re: [QUAD-L] Hello everybody

2007-01-24 Thread B. Kimberlin \(Quadius\)
Welcome to the list Eddie.  Don't hesitate to chime in and let everybody know 
how you have been able to cope with things.  I also love reading all the 
different ways of handling situations and there is a wealth of knowledge on 
this list that you can't get anywhere else.
Quadius

[EMAIL PROTECTED] wrote:  Hello group

I have introduced move myself before, but I've kept quiet reading all 
the posts. It is very interesting to see how everybody in this group 
has accomplished to adapt to the new life styles.

It's been fourteen years since my car accident, I was a victim of a 
drunk driver at the age of 19. My injury is C6 level. I was a very 
active person I played sports All my middle school and highschool.
I am now 34 years old. I graduated from college and now live 
independently. My field is film industry. I have a crew of 
employees that go out to and do the filming for me. I use Macintosh 
computers to edit and produce
the final cut. I love what I do. Just recently for the first time I 
developed a pressure sore, it is definitely not a fun experience. I 
have been proud of myself for not having one for fourteen years, but 
there is always a first time for everything.

I have already taken the necessary steps for the healing process. I 
like this group very much, it is informative, constructive, 
inspiring, comforting and above all friendly. I want to address a few 
posts that I have been reading for a few weeks now.

Number one; I used a ROHO cushioned seating system (air cells) it 
works wonders, but five months ago I've changed seat cushions (bad 
choice) I wanted to see if there was Room for improvements, I believe 
that I should have followed the old saying if it ain't broke don't 
try to fix it
I went to another seating cushion that had parts that were made out 
of hard foam. that was a really bad choice. so now I am paying for 
it.


Number two; I drive a minivan for five years now, have not had any 
accidents, I am very very careful now more than before. I have driven 
six hours and that is the maximum I will drive per day at a time that 
way I would not get tired and risk it.
I do like the IDea of a new type of vehicle although they are very 
expensive specially the convertible that I want PT cruiser. 
hopefully business will pick up and might just be able to get it.

I would like to someday personally meet all of you. it is great to 
have many friends, I will continue this posts later on today. For 
now this is all I will write, I have a few things that take care of 
and I will be back, you guys rock!



Sincerely,

Eddie



 
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Re: [QUAD-L] Pressure mapping (armrests)

2007-01-24 Thread B. Kimberlin \(Quadius\)
Where'd you get the adhesive spray?  I have a problem with my armrests being a 
little slippery also and I would like to have something to prevent the sweat 
from my hands from getting directly on my armrests troughs.  This sounds 
interesting.
Quadius
poajoan [EMAIL PROTECTED] wrote:  st1\:* {   BEHAVIOR: 
url(#default#ieooui)  }  @page Section1 {size: 8.5in 11.0in; margin: 1.0in 
1.25in 1.0in 1.25in; }  P.MsoNormal {   FONT-SIZE: 12pt; MARGIN: 0in 0in 0pt; 
FONT-FAMILY: Times New Roman  }  LI.MsoNormal {   FONT-SIZE: 12pt; MARGIN: 
0in 0in 0pt; FONT-FAMILY: Times New Roman  }  DIV.MsoNormal {   FONT-SIZE: 
12pt; MARGIN: 0in 0in 0pt; FONT-FAMILY: Times New Roman  }  A:link {   COLOR: 
blue; TEXT-DECORATION: underline  }  SPAN.MsoHyperlink {   COLOR: blue; 
TEXT-DECORATION: underline  }  A:visited {   COLOR: purple; TEXT-DECORATION: 
underline  }  SPAN.MsoHyperlinkFollowed {   COLOR: purple; TEXT-DECORATION: 
underline  }  SPAN.EmailStyle17 {   COLOR: windowtext; FONT-FAMILY: Arial; 
mso-style-type: personal-compose  }  DIV.Section1 {   page: Section1  }
Thank you all for the input on pressure mapping. I have been somewhat reluctant 
to go to a Roh0 cushion as I am afraid that I will lose the stability of
 my J. cushion. We live on the side of a hill/mountain, and nowhere do I have 
much level ground. I have an Omega Trac wheelchair which is absolutely awesome 
and I can get around everywhere safely.
   
  By the way, I brought my Omega Trac on eBay. It was in Hong Kong and I paid 
$2300., which included shipping to United States. I had it sent to Teftec in 
Texas for an overhaul. They went over the entire chair, painted, put the new 
electronic system on it, and then had it shipped up to me. Ironically, the 
shipping from Texas was more than the shipping from Hong Kong!
   
  So back to the Roho cushion, how stable is it going over bumps and curbs and 
things? If it does spring a leak, how quickly does it go flat? I have 
absolutely no control of my upper torso, and have a chest strap that goes under 
my clothes to hold me in the chair. That is why I am somewhat concerned about 
the stability in the chair with the Roho. I would notice if the air was leaking 
out on one side or the other, but I would not notice if it were leaking out 
evenly, unless it went down an inch or so, for then I would feel it with the 
added pressure on my shoulders. 
   
  Both arms are Velcroed to the armrests. Someone just brought up the problem 
of the vinyl cracking on the armrests -- I like to have my armrests covered in 
commercial velvet, we use spray adhesive and cut the velvet to fit. It makes 
them less slippery, and also not as hot in the summer.
   
  I am at least two months away from buying a new cushion, but I would like to 
explore my options now.
   
  Well, that's enough for this e-mail, I'll write more later.
   
  Joan, C4 1990.
   



 
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RE: [QUAD-L] MurGallery.com update

2007-01-24 Thread B. Kimberlin \(Quadius\)
There are three of us in Tampa alone that are wondering the same thing.  Not 
really sure what I'm going to be able to do when this chair finally does give 
out.
Quadius
Mike Murach [EMAIL PROTECTED] wrote:  @font-face {   font-family: Tahoma; 
 }  @page Section1 {size: 8.5in 11.0in; margin: 1.0in 1.25in 1.0in 1.25in; }  
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 0in; MARGIN-RIGHT: 0in; FONT-FAMILY: Times New Roman  }  SPAN.EmailStyle18 { 
  COLOR: navy; FONT-FAMILY: Arial  }  DIV.Section1 {   page: Section1  }
Thanks for checking it out.  Yes, I have one of the old Peachtrees.  I don’t 
know what I’m going to do after this one pukes on me.
  Mike~
   
www.MurGallery.com
   

   
  -Original Message-
From: B. Kimberlin (Quadius) [mailto:[EMAIL PROTECTED] 
Sent: Wednesday, January 24, 2007 4:02 PM
To: Mike Murach
Subject: Re: [QUAD-L] MurGallery.com update
   
Mike,
I just got around to looking at your paintings and found them to be quite 
striking.  I wish I had half the skill you do.  I particularly liked walk  
roll.  When I looked at the about section I noticed in the picture it 
appears that you are utilizing a Peachtree.  Is this so?  If not, what drive 
mechanism are you using.


I would love to get one of your paintings, but right now my house is stacked 
with art.
Keep up the good work.
Quadius (Billy)
http://spaces.msn.com/quadius/
Mike Murach [EMAIL PROTECTED] wrote:

[EMAIL PROTECTED] has now been discontinued because of a proliferation of 
SPAM.  My new gallery email is: [EMAIL PROTECTED]  Please pass on this 
information to anyone that may be interested.
 

Sincerely,

Michael Murach

 

www.MurGallery.com

 

 

 

   


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Re: [QUAD-L] MurGallery.com update

2007-01-24 Thread B. Kimberlin \(Quadius\)
Know I haven't.  Is it anything like magic tech?
Quadius

[EMAIL PROTECTED] wrote:In a message dated 1/24/2007 4:44:06 P.M. 
Central Standard Time, [EMAIL PROTECTED] writes:
Thanks for checking it out.  Yes, I have one of the old Peachtrees.  I 
don’t know what I’m going to do after this one pukes on me.
  Mike~
   
www.MurGallery.com


  
  Have you seen the StarTech (I think) from Indianapolis).   The button sit on 
the top of your head and by moving your head, you control the action and 
direction of your chair.
  W


 
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RE: [QUAD-L] MurGallery.com update - Peachtree Head Control

2007-01-24 Thread B. Kimberlin \(Quadius\)
They, the current technicians in charge of Peachtree, say they have some things 
work out, but I am going to contact one individual that has been in a Peachtree 
for about as long as I have been (11 1/2 years) and see how his new system is 
faring.  I'll let you know.
Quadius

Steve Oldaker [EMAIL PROTECTED] wrote:   @font-face {   font-family: 
Tahoma;  }  @page Section1 {size: 8.5in 11.0in; margin: 1.0in 1.25in 1.0in 
1.25in; }  P.MsoNormal {   FONT-SIZE: 12pt; MARGIN: 0in 0in 0pt; FONT-FAMILY: 
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TEXT-DECORATION: underline  }  A:visited {   COLOR: blue; TEXT-DECORATION: 
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FONT-FAMILY: Times New Roman  }  LI.MsoAutoSig {   FONT-SIZE: 12pt; MARGIN: 
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12pt;
 MARGIN-LEFT: 0in; MARGIN-RIGHT: 0in; FONT-FAMILY: Times New Roman  }  
SPAN.EmailStyle18 {   COLOR: navy; FONT-FAMILY: Arial  }  DIV.Section1 {   
page: Section1  }  Mike...
   
  I, too, use one of the older Peachtree head controls and dread the day I will 
no longer be able to use it.  I was among the first users of the Peachtree head 
control.  My original head control was actually hand built by its inventor Bill 
Tuttle.  Unfortunately, even the later versions are not compatible with the 
newer power wheelchair controllers.  I will likely end up going with a sip and 
puff control sometime down the road, but not until there is no way for me to 
use the Peachtree controller any longer.
   
  Steve - C4, 18 years

  
-
  From: Mike Murach [mailto:[EMAIL PROTECTED] 
Sent: Wednesday, January 24, 2007 5:43 PM
To: 'B. Kimberlin (Quadius)'; quad-list@eskimo.com
Subject: RE: [QUAD-L] MurGallery.com update


  
Thanks for checking it out.  Yes, I have one of the old Peachtrees.  I 
don’t know what I’m going to do after this one pukes on me.
  Mike~
   
www.MurGallery.com
   

   
  -Original Message-
From: B. Kimberlin (Quadius) [mailto:[EMAIL PROTECTED] 
Sent: Wednesday, January 24, 2007 4:02 PM
To: Mike Murach
Subject: Re: [QUAD-L] MurGallery.com update
   
Mike,
I just got around to looking at your paintings and found them to be quite 
striking.  I wish I had half the skill you do.  I particularly liked walk  
roll.  When I looked at the about section I noticed in the picture it 
appears that you are utilizing a Peachtree.  Is this so?  If not, what drive 
mechanism are you using.


I would love to get one of your paintings, but right now my house is stacked 
with art.
Keep up the good work.
Quadius (Billy)
http://spaces.msn.com/quadius/
Mike Murach [EMAIL PROTECTED] wrote:

[EMAIL PROTECTED] has now been discontinued because of a proliferation of 
SPAM.  My new gallery email is: [EMAIL PROTECTED]  Please pass on this 
information to anyone that may be interested.
 

Sincerely,

Michael Murach

 

www.MurGallery.com

 

 

 

   


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Re: [QUAD-L] Superbowl Tickets

2007-01-24 Thread B. Kimberlin \(Quadius\)
I would follow the same avenue you did with your season tickets.  I have heard 
they use a lottery system, but I have no clue.  In which city are you located?
Quadius

Greg [EMAIL PROTECTED] wrote:  @page Section1 {size: 8.5in 11.0in; 
margin: 1.0in 1.25in 1.0in 1.25in; }  P.MsoNormal {   FONT-SIZE: 12pt; MARGIN: 
0in 0in 0pt; FONT-FAMILY: Times New Roman  }  LI.MsoNormal {   FONT-SIZE: 
12pt; MARGIN: 0in 0in 0pt; FONT-FAMILY: Times New Roman  }  DIV.MsoNormal {   
FONT-SIZE: 12pt; MARGIN: 0in 0in 0pt; FONT-FAMILY: Times New Roman  }  A:link 
{   COLOR: blue; TEXT-DECORATION: underline  }  SPAN.MsoHyperlink {   COLOR: 
blue; TEXT-DECORATION: underline  }  A:visited {   COLOR: purple; 
TEXT-DECORATION: underline  }  SPAN.MsoHyperlinkFollowed {   COLOR: purple; 
TEXT-DECORATION: underline  }  SPAN.EmailStyle17 {   COLOR: windowtext; 
FONT-FAMILY: Arial; mso-style-type: personal-compose  }  DIV.Section1 {   page: 
Section1  }Anyone ever buy Superbowl Tickets?
  I know when buying regular season tickets, I had to call the local team, 
because TicketMaster didn’t sell wheelchair seating. The Superbowl is in town 
next year and I’d love to try and go. Who do I go through?
  Thx, Greg



 
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[QUAD-L] Magictek

2007-01-24 Thread B. Kimberlin \(Quadius\)
  Magitek 
  The Lautzenhiser Drive Control is a small, proportional sensor that can be 
worn on the top of the head (i.e. on a headband) or placed elsewhere on the 
body. By moving the sensor out of it's neutral zone, the wheelchair moves. The 
distance and direction the sensor is moved out of it's neutral zone determines 
the direction and speed of the wheelchair. This system is designed for a client 
with good head control. 
  Pros: full directional and proportional speed control. The sensor can be 
calibrated for an individual, allowing the client to utilize available range of 
motion, even if this range is asymmetrical. No reset switch is required for 
reverse. 
  Cons: The client must be able to quickly and accurately return to the neutral 
zone to stop the power wheelchair. This neutral zone can be adjusted, but may 
still be difficult for some clients to find, especially as there is no physical 
template. This access method is rather abstract, which can be challenging for 
clients with cognitive limitations. Reverse is controlled by tilting the head 
back, which can elicit tonal changes or reflexes in some clients. The system 
automatically recalibrates each time the wheelchair is turned on. This can be a 
pro or a con. If the client happens to be looking down when the system is 
turned on, the control is calibrated with the head in a downward position. This 
system is not appropriate for a client who needs the support of a headrest. 

 
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[QUAD-L] Magictek

2007-01-24 Thread B. Kimberlin \(Quadius\)
http://www.magitek.com/
  they have some videos if anyone is interested.
Quadius

 
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Re: [QUAD-L] Supra Pubic problem question

2007-01-22 Thread B. Kimberlin \(Quadius\)
While I normally do not experience the blood, I have passed numerous stones and 
as Dan mentioned, it is usually accompanied with hyperflexia or dysreflexia.  
Thankfully I am have finally recuperated from my cisco- cystoscopy (spelling).  
So, it shouldn't be experiencing these problems for quite some time.  At least 
I'm keeping my fingers crossed.
Quadius
PS sorry I'm a little late, but I haven't been on the web too much lately.

Dan Tessiatore [EMAIL PROTECTED] wrote:  Danny, that also has happened to me 
a couple times.  Yes it possibly stones but then is usually accompanied by 
hypereflexia, elevated blood pressure, possible sweating etc.
it also could be imitation from the catheter.  Either way you're smart to get 
in touch with your urologist.  Hopefully he is familiar with SCI and neurogenic 
bladder.  Good luck... Dan

Danny Hearn [EMAIL PROTECTED] wrote:HI All, earlier tonight while 
eating diner I began to have some pain in my lower gut down by where my 
catheter is, then a while later we noticed the line had blood instead of urine. 
Then after a bit the blood stopped and became normal as usual urine only coming 
thru again.  I'm curious to know if it has happened to any of you before?  I 
was wondering if a small stone could of passed thru my kidney perhaps but i'm 
not sure if that even is possible? Thanks for any Ideas..I'll try to 
contact my urologist tomorrow and see what he say's about it.

 Dan H.



 
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Re: [QUAD-L] Environmental Control Units (mattress)

2007-01-22 Thread B. Kimberlin \(Quadius\)
I had no clue there was a limited life expectancy on the Roho cushion.  I went 
through an appointment in October and they were amazed that I am still sitting 
on the same one I was given when I initially rehabbed 11 1/2 years ago.  
However, they did not see any problem with me keeping the same one, especially 
since I have a backup.  Although, the backup is designed for another chair, 
which I have not received and really don't expect to any time soon (long 
story), so maybe I need to ask about getting a backup which will fit this chair.
Thanks for the heads up.
Quadius

Dan Tessiatore [EMAIL PROTECTED] wrote:  Dave, I have an Ortho Elite air 
diffuse mattress.  It is made by Sunrise Medical or a company affiliated with 
sunrise medical.  It has worked wonderfully.  It has started making a whistling 
sound every so often and someone suggested putting lambs will over it.
The only maintenance that it required is to clean the air filter once in 
awhile.  It's a simple process.  Also, if your area has a history of power 
outages you might want to get some type of backup for power because the 
mattress will deflate in the matter of seconds without electricity.  I recently 
purchased a Generac generator for backup that automatically starts when a power 
outage occurs.
I am also 30 years Post C 4-5 as a result of waterskiing accident.  This past 
six months I have been trying to heal pressure sores on my behind and it has 
been a challenge.  I think I am near the latter stages of healing as I have 
been spending a great deal of time in bed.  I was sitting on an Quattro from 
Roho and I didn't realize that it had an extremely small leak that was 
unnoticeable when sunk in water.  At one point it just more or less burst open. 
 The cushion was five years old and that is their expected life.  If anyone is 
using a Roho and you are approaching five years or later with the cushion 
please take notice that there could be problems.

David K. Kelmer [EMAIL PROTECTED] wrote: Hi Dan,
   
  I am looking for a good defusing mattress for the fist time as a Quad.  It 
will be my first air mattress so I'm taking the time to buy the right one for 
me.
   
  With Love,
  
CtrlAltDel aka Dave
C4/5 Complete - 30 Years Post
Texas, USA
   
   
   
  Dan Tessiatore [EMAIL PROTECTED] wrote:
  Thanks for the feedback.  I am going to try the sheepskin.  Dan

B. Kimberlin (Quadius) [EMAIL PROTECTED] wrote:   I had the same problem 
with mine, but I found if I covered my mattress with sheepskins it helped with 
the noise.  I used to own an alternating mattress, but I find the mattresses 
which diffuse here to be more effective in maintaining my skin integrity.
Quadius




 
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Re: [QUAD-L] capuchin monkey

2007-01-22 Thread B. Kimberlin \(Quadius\)
For those of you that didn't see the segment, it can still be viewed at the 
following website.
http://video.msn.com/v/us/msnbc.htm?f=00t=s51p=hotvideo_m_edpicksg=f4a9be50-e69c-4ed2-a5ce-edfbf0e62582
  
That is until about Thursday.  If that link doesn't work, just simply go to 
MSNBC, nightly news, and then look for the small section next to the daily 
nightly.  It is on Thursday's broadcast approximately 16 minutes 30 seconds 
into it.  You can put your cursor on a little portion where you see a bar 
moving to advance it quicker.
Quadius
[EMAIL PROTECTED] wrote:
In a message dated 1/18/2007 6:39:57 P.M. Central Standard Time, [EMAIL 
PROTECTED] writes:
  This evening NBC nightly news had a segment on monkeys assisting disabled 
individuals.  Does anybody have one of these monkeys? Dan T.
  
  Dan, this is nothing new, but if you want to watch the scare of your life, 
watch the movie
  MonkeyShine, (I think)
  W


 
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Re: [QUAD-L] internal hemroid sugery

2007-01-22 Thread B. Kimberlin \(Quadius\)
My ex-wife just had this procedure done in late November.  She is doing 
considerably better now and the only thing she complained about was the 
enormous pain during bowel movements.  She never lost bowel control, but had to 
eat a very strict diet in order to keep her stool very soft.
Quadius

Derrick [EMAIL PROTECTED] wrote:  Has anyone had hemroids sugery by 
cutting them out?
  I am told that it is often done sugery but i am worried about loosing bowel 
control.
  I've tried all kinds of remedy but it is not going away and bleeds 
occassionaly.
  Thanks,
  Derrick C-5


 
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Re: [QUAD-L] internal hemroid sugery

2007-01-22 Thread B. Kimberlin \(Quadius\)
My ex-wife just had this procedure done in late November.  She is doing 
considerably better now and the only thing she complained about was the 
enormous pain during bowel movements.  She never lost bowel control, but had to 
eat a very strict diet in order to keep her stool very soft.  
Quadius

Derrick [EMAIL PROTECTED] wrote:  Has anyone had hemroids sugery by 
cutting them out?
  I am told that it is often done sugery but i am worried about loosing bowel 
control.
  I've tried all kinds of remedy but it is not going away and bleeds 
occassionaly.
  Thanks,
  Derrick C-5


 
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Re: [QUAD-L] internal hemroid sugery

2007-01-22 Thread B. Kimberlin \(Quadius\)
My ex-wife just had this procedure done in late November.  She is doing 
considerably better now and the only thing she complained about was the 
enormous pain during bowel movements.  She never lost bowel control, but had to 
eat a very strict diet in order to keep her stool very soft. 
Quadius

Derrick [EMAIL PROTECTED] wrote:  Has anyone had hemroids sugery by 
cutting them out?
  I am told that it is often done sugery but i am worried about loosing bowel 
control.
  I've tried all kinds of remedy but it is not going away and bleeds 
occassionaly.
  Thanks,
  Derrick C-5


 
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Re: [QUAD-L] internal hemroid sugery

2007-01-22 Thread B. Kimberlin \(Quadius\)
My ex-wife just had this procedure done in late November.  She is doing 
considerably better now and the only thing she complained about was the 
enormous pain during bowel movements.  She never lost bowel control, but had to 
eat a very strict diet in order to keep her stool very soft.  It took her about 
five weeks to recover completely.  
Quadius

Derrick [EMAIL PROTECTED] wrote:   Has anyone had hemroids sugery by 
cutting them out?
  I am told that it is often done sugery but i am worried about loosing bowel 
control.
  I've tried all kinds of remedy but it is not going away and bleeds 
occassionaly.
  Thanks,
  Derrick C-5


 
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Re: [QUAD-L] My first Bladder Stone ;-(

2007-01-22 Thread B. Kimberlin \(Quadius\)
Danny,
I had multiple stones removed on January 10 and they did it with a laser light 
thing.  It was almost like Star Wars.  Unfortunately it required a spinal 
block, but it was much better than going under general anesthetic.  If they 
insist on doing an incision, I would definitely look for a second opinion.
Good luck.
BTW, make sure you check with your urologist prior to undertaking apple cider 
vinegar or eliminate in order to diminish bladder stones.  It is important to 
know what type of stones you are developing.  I am still waiting to hear what 
type I have so that I can figure out what to do, if anything.  My urologist 
informs me, when I inquired about apple cider vinegar, that in some cases it 
can exacerbate the situation and actually make the stones are much more 
rapidly.  Don't know if this is accurate, but that's what I was told.
Quadius
Danny Hearn [EMAIL PROTECTED] wrote:Thanks, Dan-Dave and Mark and any 
others for your info. about Stones.I have to call Monday about setting 
a date to get mine removed.  It's  funny how many of us go thru the same types 
of things as each other only at different times, that is why so many of the 
same subjects repeat but at various times.  Thanks again 
Dan-

Dan Tessiatore [EMAIL PROTECTED] wrote:   Danny, sorry to hear about your 
problems.  When I have had my stones my urologist was able to go into the 
bladder by way of urethra and break up the stones into smaller pieces to pass 
through the catheter.  It's hard to believe that it is the size of a golf ball.
It would probably be a good idea to talk to your doctor about prophylactic 
antibiotics and hypereflexia symptoms during and after the procedure.
Get it taken care of ASAP you don't want bigger problems.  What hospital where 
you at ?
best of luck, keep us posted... Dan T.

David K. Kelmer [EMAIL PROTECTED] wrote: Hi Danny,
   
  Sorry to hear about the stone.  I don't think they need to make an incision 
to remove it unless it is too hard to break-down.  Here is some good info on 
them.
  Bladder stones  Introduction  Bladder stones are small masses of minerals 
that form in your bladder, the balloon-shaped organ in your pelvis that stores 
urine. Bladder stones, also called bladder calculi, often form when 
concentrated urine sits in your bladder. As urine stagnates, minerals in the 
urine form various crystals that may combine to form stones. Bladder stones 
usually develop secondary to another condition, such as an enlarged prostate or 
a urinary tract infection.
  http://www.mayoclinic.com/health/bladder-stones/DS00904/DSECTION=1
  Treatment  Bladder stones usually need to be removed. If the stone is small, 
your doctor may recommend that you drink an increased amount of water each day 
to help the stone pass. If the stone is large or doesn't pass on its own, your 
doctor may need to remove the stone.
   
  Bladder stones are usually removed during a procedure called a 
cystolitholapaxy. During this procedure, your doctor inserts a small tube with 
a camera at the end (cystoscope) through your urethra and into your bladder to 
view the stone. Your doctor uses a laser, ultrasound or mechanical device to 
break the stone into small pieces and then flushes the pieces from your bladder.
   
  You'll likely have regional or general anesthesia prior to the procedure to 
make you comfortable. Complications from a cystolitholapaxy aren't common, but 
urinary tract infections, fever, a tear in your bladder and bleeding can occur. 
Your doctor may give you antibiotics before the procedure to reduce the risk of 
infections. About a month after the cystolitholapaxy, your doctor will likely 
check to make sure that no stone fragments remain in your bladder.
   
  Occasionally, bladder stones that are large or too hard to fragment are 
removed through open surgery. In these cases, your doctor makes an incision in 
your bladder and directly removes the stones. Any underlying condition causing 
the stones, such as an enlarged prostate, may be corrected at the same time the 
stones are removed.  
  http://www.mayoclinic.com/health/bladder-stones/DS00904/DSECTION=8
   
  I hope this helps.
   
  With Love,
  
CtrlAltDel aka Dave
C4/5 Complete - 30 Years Post
  Texas, USA
  

Danny Hearn [EMAIL PROTECTED] wrote:
   Hi all, I just got home from the hospital after a day  a half stay 
for Bleeding thru my supra pubic catheter . The bleeding has pretty much slowed 
down..it comes and goes. The ER did a CT scan and said I got a bladder stone 
the size of a golf ball. I'm supposed to set an appointment with my urologist 
to get it removed. My question is this..the doctor said they will 
probably make an inscission by surgury to get it out. .  I thought most 
stones were removed by laser or a ( cystomy ) not sure of spelling. A few here 
If i recall correctly, said they even removed them thru their supra pubic hole 
site ?  Anyone know more about how they are 

Re: [QUAD-L] Balloons

2007-01-22 Thread B. Kimberlin \(Quadius\)
I usually use around 8 cc, however, I think this is more experimental and 
depends on every individual's needs.
Quadius

Dan [EMAIL PROTECTED] wrote:  I have had periods of bleeding through my Supra 
Pubic. I decided to reduce the inflation of the balloon from 10ccs to 5ccs. 
Since then - so far - no bleeding and 
it is more comfortable. Anyone else done this?

Dan V




 
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Re: [QUAD-L] My first Bladder Stone ;-(

2007-01-22 Thread B. Kimberlin \(Quadius\)
This is excellent advice.  Thankfully I go to a hospital which is very familiar 
with quadriplegics and once they saw what my blood pressure was doing during 
the initial cystoscopy, they immediately stopped and scheduled me for a more 
in-depth procedure in the operating room.  I was also told the equipment they 
had in the operating room was a little more advanced.  When they busted up the 
stones they were able to get them to pass through my urethra, but I did have 
one log in my catheter the following evening.  The joy of dealing with 
dysreflexia.
Quadius

Dan Tessiatore [EMAIL PROTECTED] wrote:  Danny, sorry to hear about your 
problems.  When I have had my stones my urologist was able to go into the 
bladder by way of urethra and break up the stones into smaller pieces to pass 
through the catheter.  It's hard to believe that it is the size of a golf ball.
It would probably be a good idea to talk to your doctor about prophylactic 
antibiotics and hypereflexia symptoms during and after the procedure.
Get it taken care of ASAP you don't want bigger problems.  What hospital where 
you at ?
best of luck, keep us posted... Dan T.

David K. Kelmer [EMAIL PROTECTED] wrote: Hi Danny,
   
  Sorry to hear about the stone.  I don't think they need to make an incision 
to remove it unless it is too hard to break-down.  Here is some good info on 
them.
  Bladder stones  Introduction  Bladder stones are small masses of minerals 
that form in your bladder, the balloon-shaped organ in your pelvis that stores 
urine. Bladder stones, also called bladder calculi, often form when 
concentrated urine sits in your bladder. As urine stagnates, minerals in the 
urine form various crystals that may combine to form stones. Bladder stones 
usually develop secondary to another condition, such as an enlarged prostate or 
a urinary tract infection.
  http://www.mayoclinic.com/health/bladder-stones/DS00904/DSECTION=1
  Treatment  Bladder stones usually need to be removed. If the stone is small, 
your doctor may recommend that you drink an increased amount of water each day 
to help the stone pass. If the stone is large or doesn't pass on its own, your 
doctor may need to remove the stone.
   
  Bladder stones are usually removed during a procedure called a 
cystolitholapaxy. During this procedure, your doctor inserts a small tube with 
a camera at the end (cystoscope) through your urethra and into your bladder to 
view the stone. Your doctor uses a laser, ultrasound or mechanical device to 
break the stone into small pieces and then flushes the pieces from your bladder.
   
  You'll likely have regional or general anesthesia prior to the procedure to 
make you comfortable. Complications from a cystolitholapaxy aren't common, but 
urinary tract infections, fever, a tear in your bladder and bleeding can occur. 
Your doctor may give you antibiotics before the procedure to reduce the risk of 
infections. About a month after the cystolitholapaxy, your doctor will likely 
check to make sure that no stone fragments remain in your bladder.
   
  Occasionally, bladder stones that are large or too hard to fragment are 
removed through open surgery. In these cases, your doctor makes an incision in 
your bladder and directly removes the stones. Any underlying condition causing 
the stones, such as an enlarged prostate, may be corrected at the same time the 
stones are removed.  
  http://www.mayoclinic.com/health/bladder-stones/DS00904/DSECTION=8
   
  I hope this helps.
   
  With Love,
  
CtrlAltDel aka Dave
C4/5 Complete - 30 Years Post
  Texas, USA
  

Danny Hearn [EMAIL PROTECTED] wrote:
   Hi all, I just got home from the hospital after a day  a half stay 
for Bleeding thru my supra pubic catheter . The bleeding has pretty much slowed 
down..it comes and goes. The ER did a CT scan and said I got a bladder stone 
the size of a golf ball. I'm supposed to set an appointment with my urologist 
to get it removed. My question is this..the doctor said they will 
probably make an inscission by surgury to get it out. .  I thought most 
stones were removed by laser or a ( cystomy ) not sure of spelling. A few here 
If i recall correctly, said they even removed them thru their supra pubic hole 
site ?  Anyone know more about how they are usually took out???Dan H.
c-6   9 years post,1st time for a stone.



 
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Re: [QUAD-L] Hoyer Lift/Sling

2007-01-22 Thread B. Kimberlin \(Quadius\)
She uses the same method I do, but I also have the attendant tilt the chair 
slightly back so that my butt slides into the proper position.
It's also great for stretching the lower back and legs.
Quadius

~LittleQuad~ [EMAIL PROTECTED] wrote: if you have assistance- once in 
chair lean over to have chest on knees, have someone pull butt back as far as 
you want.
  i do it alone, unless my elbows miss the knees LOL

Dan Tessiatore [EMAIL PROTECTED] wrote:
I have been using a Hoyer lift to get into my chair with a sling that has a 
cut out for the behind. I am having trouble getting back far enough in the 
chair. Any suggestions for getting back far enough into my chair with the sling 
and Hoyer lift? I have tried adjusting the chains/straps to the sling but it 
hasn't helped a great deal. Any input would be appreciated. Thanks, Dan T.



 
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Re: [QUAD-L] My first Bladder Stone ;-(

2007-01-22 Thread B. Kimberlin \(Quadius\)
David,
It helped me.  I now know to check with my doctor to determine when they are 
going to give me a follow-up.
Quadius

David K. Kelmer [EMAIL PROTECTED] wrote:Hi Danny,
   
  Sorry to hear about the stone.  I don't think they need to make an incision 
to remove it unless it is too hard to break-down.  Here is some good info on 
them.
  Bladder stones  Introduction  Bladder stones are small masses of minerals 
that form in your bladder, the balloon-shaped organ in your pelvis that stores 
urine. Bladder stones, also called bladder calculi, often form when 
concentrated urine sits in your bladder. As urine stagnates, minerals in the 
urine form various crystals that may combine to form stones. Bladder stones 
usually develop secondary to another condition, such as an enlarged prostate or 
a urinary tract infection.
  http://www.mayoclinic.com/health/bladder-stones/DS00904/DSECTION=1
  Treatment  Bladder stones usually need to be removed. If the stone is small, 
your doctor may recommend that you drink an increased amount of water each day 
to help the stone pass. If the stone is large or doesn't pass on its own, your 
doctor may need to remove the stone.
   
  Bladder stones are usually removed during a procedure called a 
cystolitholapaxy. During this procedure, your doctor inserts a small tube with 
a camera at the end (cystoscope) through your urethra and into your bladder to 
view the stone. Your doctor uses a laser, ultrasound or mechanical device to 
break the stone into small pieces and then flushes the pieces from your bladder.
   
  You'll likely have regional or general anesthesia prior to the procedure to 
make you comfortable. Complications from a cystolitholapaxy aren't common, but 
urinary tract infections, fever, a tear in your bladder and bleeding can occur. 
Your doctor may give you antibiotics before the procedure to reduce the risk of 
infections. About a month after the cystolitholapaxy, your doctor will likely 
check to make sure that no stone fragments remain in your bladder.
   
  Occasionally, bladder stones that are large or too hard to fragment are 
removed through open surgery. In these cases, your doctor makes an incision in 
your bladder and directly removes the stones. Any underlying condition causing 
the stones, such as an enlarged prostate, may be corrected at the same time the 
stones are removed.  
  http://www.mayoclinic.com/health/bladder-stones/DS00904/DSECTION=8
   
  I hope this helps.
   
  With Love,
  
CtrlAltDel aka Dave
C4/5 Complete - 30 Years Post
  Texas, USA
  

Danny Hearn [EMAIL PROTECTED] wrote:
   Hi all, I just got home from the hospital after a day  a half stay 
for Bleeding thru my supra pubic catheter . The bleeding has pretty much slowed 
down..it comes and goes. The ER did a CT scan and said I got a bladder stone 
the size of a golf ball. I'm supposed to set an appointment with my urologist 
to get it removed. My question is this..the doctor said they will 
probably make an inscission by surgury to get it out. .  I thought most 
stones were removed by laser or a ( cystomy ) not sure of spelling. A few here 
If i recall correctly, said they even removed them thru their supra pubic hole 
site ?  Anyone know more about how they are usually took out???Dan H.
c-6   9 years post,1st time for a stone.


 
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Re: [QUAD-L] UPS and standby generators

2007-01-16 Thread B. Kimberlin \(Quadius\)
Thanks John for the info.  I will definitely look at this option as well as the 
standby generator.  It is difficult to know whether my house is able to 
withstand a category five, but I am doubtful it will.  Since I have moved I am 
no longer in the same county and unfortunately need to register with the new 
county I live in.  The sad part is I actually live closer to the special needs 
shelter than I did at my previous house.  However, that is in the other county 
and I am not sure if I am permitted to go there or not.  I have always planned 
on evacuating if a storm looks like it's going to approach category four 
status.  Thankfully my new house has a few rooms which can be hardened to 
relatively inexpensively.
  
My brother lives in a manufactured home which is hardened to withstand category 
five winds, but he will always evacuate in case a tree comes down on the house.
  
This subject has been extraordinarily enlightening and I had not even 
anticipated asking about standby generators.  Thanks everyone for the feedback.
Quadius
  [EMAIL PROTECTED] wrote:
There are some other options you might be interested in. First, if a 
hurricane is coming, leave! Second, only stay if you have a cat-5 house. You 
can have an electrical bank made from 12 volt deep cycle batteries that 
recharge from the normal power system and use a small generator to recharge 
them during and after a storm. Generators that use gasoline use a lot of 
gasoline. If you have an electrical power bank of batteries then you can 
recharge from solar or wind, as well as off the grid or a small gasoline 
generator. This way your home is half way off the grid. This can be expensive 
at first, but in the long run, you'll probably break even. Wood pellet heating 
and hot water systems can really rape the power company but you have to fill 
the hoppers.
  Ultimately, you can be pretty independant of the power company but it 
rerquires some effort and expense on your part.  By combining several power 
options you can create a home that is almost immune to hurricanes and your aids 
will want to stay with you during those events. 
  You should discuss what you want with some local electrical contractors. I've 
seen florida homes that actually create more energy than they use and sell the 
excess to the power company. Because they are Cat-5 houses, they incorporate 
several ways to get the energy needed to ride out the storm in comfort. This 
can look really good if you ever sell the place.
  If you could write it off as a medical expenditure, that would be the cherry 
on top. 
   
  john
   
 
-Original Message-
From: [EMAIL PROTECTED]
To: [EMAIL PROTECTED]; quad-list@eskimo.com
Sent: Mon, 15 Jan 2007 4:45 PM
Subject: Re: [QUAD-L] UPS and standby generators

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  What then would be the best source for alternative fuel for your application. 
 If fossil fuel, could you fill and refill the fuel tank when necessary?
  W
   
   
   
  In a message dated 1/15/2007 3:04:09 P.M. Central Standard Time, [EMAIL 
PROTECTED] writes:
  My only problem or better yet concern is that if it is powered by natural 
gas, this wouldn't help me very much if you the event of a hurricane, they shut 
off the natural gas supply.  They often do this to prevent disastrous leaks and 
if the natural gas company loses 

Re: [QUAD-L] UPS and standby generators

2007-01-15 Thread B. Kimberlin \(Quadius\)
My only problem or better yet concern is that if it is powered by natural gas, 
this wouldn't help me very much if you the event of a hurricane, they shut off 
the natural gas supply.  They often do this to prevent disastrous leaks and if 
the natural gas company loses power, no natural gas.
Quadius

Jim Lubin [EMAIL PROTECTED] wrote:  At 02:56 PM 1/14/2007, [EMAIL PROTECTED] 
wrote:
  Those units are sold by and installed by Home Depot
W
That's where we were planning on going to. They seem to have good prices and 
install it too.
http://tinyurl.com/swjqb

go to http://www.homedepot.com/ and search for Standby Generators

  
In a message dated 1/14/2007 2:47:52 P.M. Central Standard Time, [EMAIL 
PROTECTED] writes:

   Jim,
  
   Do me a favor and keep me updated if you do get this particular generator 
system.  Living here in Florida, having an uninterruptible power source is very 
valuable for people and our condition.  And the cold I am able to put on more 
blankets, but if it is too hot, there isn't much I am able to do other than 
have my PCA set up my generator so I can run some fans and odds and ends.
  
   Quadius 

   
Jim Lubin   
[EMAIL PROTECTED]
http://makoa.org/jim 
disAbility Resources: http://www.makoa.org






 
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Re: [QUAD-L] Environmental Control Units

2007-01-15 Thread B. Kimberlin \(Quadius\)
My previous entry was about household backup generators, I didn't click on the 
link.  This sounds very promising.  Thanks Jim
Quadius

Jim Lubin [EMAIL PROTECTED] wrote:  I got it at costco, looks like the price 
went up a bit since I got it, it's $417.38 with shipping
http://tinyurl.com/yzvpkl



At 12:25 PM 1/14/2007, B. Kimberlin \(Quadius\) wrote:
  Thanks Jim for the information.  How much did this particular device costs.  
Without giving away too many details, I have a sizable grant which I have not 
used and it must be used on items to make my house more accessible. 
  
  
   Jim Lubin [EMAIL PROTECTED] wrote: 

   I wonder if the XPower PowerSource 1800 would work for you? It doesn't have 
the surge protectors that most UPS systems have. I got one so we could operate 
my bed, suction machine and humidifier during a power outage.
  
   http://www.xantrex.com/web/id/218/p/1/pt/30/product.asp
  
Jim Lubin   
[EMAIL PROTECTED]
http://makoa.org/jim 
disAbility Resources: http://www.makoa.org






 
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 with theYahoo! Search movie showtime shortcut.

Re: [QUAD-L] Environmental Control Units (mattress)

2007-01-15 Thread B. Kimberlin \(Quadius\)
That's true, but my skin has been much better since I switched to the low air 
loss mattress from a rotational overlay.  My family tells me it's very seldom 
ever red at all and usually this is only caused by the sheepskin itself.  I am 
very fair skinned and turn red very easily.
Quadius

[EMAIL PROTECTED] wrote:  But be careful about putting too much between you 
and the mattress, it defeats the benefits of the mattress. 
Sandy 


 
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Re: [QUAD-L] UPS and standby generators

2007-01-15 Thread B. Kimberlin \(Quadius\)
Not quite sure myself.  I do have a small generator which could be used until 
they could restore the natural gas.  I also have people that could put fuel 
into the generator, but the same argument could apply in that particular case.  
It takes an enormous amount of fuel to generate a sufficient amount of power 
and given what happened in southern Florida last year (lack of electricity led 
to the inability of gas stations to pump gas out) (hopefully they will mandate 
that gas stations be required to have alternate power sources, even if the 
state has to subsidize this) I am not sure which is better.  Maybe natural gas 
is the best solution.
  
Perhaps someone else from the regions where hurricane strike can weigh in on 
this particular subject.
Quadius
[EMAIL PROTECTED] wrote:
 
  What then would be the best source for alternative fuel for your application. 
 If fossil fuel, could you fill and refill the fuel tank when necessary?
  W
   
   
   
  In a message dated 1/15/2007 3:04:09 P.M. Central Standard Time, [EMAIL 
PROTECTED] writes:
  My only problem or better yet concern is that if it is powered by natural 
gas, this wouldn't help me very much if you the event of a hurricane, they shut 
off the natural gas supply.  They often do this to prevent disastrous leaks and 
if the natural gas company loses power, no natural gas.
Quadius

  
   


 
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Re: [QUAD-L] Hey my friends!

2007-01-15 Thread B. Kimberlin \(Quadius\)
I had wondered what happened to you.  Haven't heard from you in quite some time.
Had an outstanding holiday season and I am hoping 2007 is even a little bit 
better than 2006.
Quadius (Billy from Tampa)

[EMAIL PROTECTED] wrote:  Hi All,
   
  It's Smurf here, although you probably already know that by my email addy!  
How are you all?  I've got to admit, I haven't had chance to read whats been 
going on with you guys, anyone like to update me if they have some spare time?  
Would be much appreciated!  And did you all have a good Christmas and New Year? 
 
   
 
   
  I've also got a question to ask you all?  Have any of you ever suffered a 
second SCI from a different accident?  I was in a car crash last Sunday and 
there's the chance that I've damaged my spinal cord more in a different place.  
To top that I ended up in a second car accident this morning, and I'm also sure 
that I have got more damage done.  Anyone ever been in my situation?  Coz to be 
honest I'm Sh*tting myself that I've screwed up my back for good...
   
  Take care all,
   
  Love Smurf xxx


 
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Re: [QUAD-L] Environmental Control Units

2007-01-15 Thread B. Kimberlin \(Quadius\)
I agree with you 100%.  I have a friend that thought this very same battle with 
the VA and I could not comprehend why he didn't go out and spend $150, 
especially since he definitely had the money.  Anyway, he felt he was entitled 
to medical equipment which was necessary to prevent pressure ulcers as well as 
maintain the help of his PCA (wife).  After a long battle, he did end up 
getting a pretty decent air mattress.
  
Even though I am in the same predicament as him, I have not wage this battle 
yet, but I am planning on it, considering I already have my own mattress.  
It'll be great to have a backup, in case my already used mattress developed a 
problem.

For those of you interested in this subject, here is a blog by a quadriplegic 
who is unbelievably talented at writing.  I think you'll be fascinated.
Quadius
http://smalls149.spaces.live.com/blog/cns!AF77847B2A3107BC!8701.entry
[EMAIL PROTECTED] wrote:
 
   Mines a TEMPEST. I don't think a lot of it. I've gotten great deals from 
ebay too. I hope you have great luck with yours. 
  I'm told that waiver will replace my mattress, but they will only get a piece 
of junk generic hospital bed mattress. I have to have two stage 4 decubitus 
ulcers to get a low air loss mattress which would heal the wound and keep me 
from getting other sores. They will gladly pay hundreds of thousands to doctors 
and nurses to heal wounds with expensive dressings that don't work at all, but 
they won't pay $2500 for a mattress that resolves the problem. 
  There are 3 university studies saying that low air loss mattresses are the 
only treatment for skin ulcers that has a positive effect in 100% of the cases 
where the patient doen't die before the wound heals. There were no dressings 
that had that sucess rate. No nursing tschniques have that success rate. 
  I suggested to the woman in columbus, Ohio that waiver doesn't believe in 
preventative medicine. She replied that the rules were made by lawyers. Why are 
lawyers running medical programs? Does this define malpractice?
   
  john
   
 
-Original Message-
From: [EMAIL PROTECTED]
To: [EMAIL PROTECTED]; [EMAIL PROTECTED]; quad-list@eskimo.com
Sent: Sun, 14 Jan 2007 3:40 PM
Subject: Re: [QUAD-L] Environmental Control Units

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What brand is your mattress?  I managed to get a Masonair for a little over 
$150 on eBay.  So far so good, but I'm keeping my fingers crossed.
Quadius

[EMAIL PROTECTED] wrote: Yes Dan, my air mattress is alternating preasure 
and low air loss. Its not very good at the air loss part but it will not 
completely deflate for a couple hours. It is one of those ebay specials a 
sister got me for $500. It draws about 250 watts (Maybe a little less.) and 
runs pretty good on a 12 volt battery for about 5 hours. It would probably run 
longer if I wouldn't move the bed so often.
   
   
  john  
   
 
-Original Message-
From: [EMAIL PROTECTED]
To: [EMAIL PROTECTED]; quad-list@eskimo.com
Sent: Sat, 13 Jan 2007 8:30 PM
Subject: Re: [QUAD-L] Environmental Control Units

  #AOLMsgPart_2_35e358cf-1aad-457b-b5ce-3ef33e58dab8 .AOLPlainTextBody {   
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RE: Re: [QUAD-L] Environmental Control Units and generators

2007-01-15 Thread B. Kimberlin \(Quadius\)
Thanks,
I am putting all of these in my files so that when I get ready to make this 
improvement, I will have all the information necessary.  I will probably get on 
here again and ask everyone what they think, but this is invaluable information 
to me.  I really appreciate it.
Quadius
Eric W Rudd [EMAIL PROTECTED] wrote:  http://www.norwall.com/qs_16.htm is 
the one I have.
   
   
  Eric W Rudd
  [EMAIL PROTECTED]
   

  -Original Message-
From: B. Kimberlin (Quadius) [mailto:[EMAIL PROTECTED] 
Sent: Sunday, January 14, 2007 2:26 PM
To: Jim Lubin
Cc: quad-list@eskimo.com
Subject: ***Possible Spam*** Re: [QUAD-L] Environmental Control Units


Thanks Jim for the information.  How much did this particular device costs.  
Without giving away too many details, I have a sizable grant which I have not 
used and it must be used on items to make my house more accessible.  Since my 
house is already accessible the only things I can think of are additional door 
openers, a device like you suggest here, widening my office door, and perhaps 
putting tinting on my windows so that my skin disorder (my knuckles get very 
hard and dark when exposed to too much sun) is not further exacerbated.
Quadius

Dan Tessiatore [EMAIL PROTECTED] wrote:   We just purchased a at Generac 
generator.  It is wired in to our electric system and when the power cuts out 
the generator starts up.  Although we initially had trouble with the system  It 
turns out that a clamp was installed incorrectly by the manufacturer.

Jim Lubin [EMAIL PROTECTED] wrote:   I wonder if the XPower PowerSource 1800 
would work for you? It doesn't have the surge protectors that most UPS systems 
have. I got one so we could operate my bed, suction machine and humidifier 
during a power outage.
http://www.xantrex.com/web/id/218/p/1/pt/30/product.asp

At 12:50 PM 1/13/2007, B. Kimberlin \(Quadius\) wrote:
  Quartet is much more stable and has a eight hour battery backup.  The only 
difficulty I have seen is that it requires a UPS in order to back up the remote 
transmitter.  This allows me to operate the ECU wirelessly from my wheelchair.  
I, however, I am unable to use a UPS near my ECU as it dampens out the X-10 
signals to the rest of the house.
Best of luck in your endeavors.  
Jim Lubin   
[EMAIL PROTECTED]
http://makoa.org/jim 
disAbility Resources: http://www.makoa.org





.

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See all the new 2007 cars at Yahoo! Autos.

 
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Re: [QUAD-L] UPS and standby generators

2007-01-15 Thread B. Kimberlin \(Quadius\)
I always hate to sound ignorant, but what is LP?  However, it would probably 
more ignorant if I didn't ask.
Quadius

[EMAIL PROTECTED] wrote:Is LP an option worth your consideration vs 
natural gas
  W
   
   
  In a message dated 1/15/2007 4:27:13 P.M. Central Standard Time, [EMAIL 
PROTECTED] writes:
Not quite sure myself.  I do have a small generator which could be used 
until they could restore the natural gas.  I also have people that could put 
fuel into the generator, but the same argument could apply in that particular 
case.  It takes an enormous amount of fuel to generate a sufficient amount of 
power and given what happened in southern Florida last year (lack of 
electricity led to the inability of gas stations to pump gas out) (hopefully 
they will mandate that gas stations be required to have alternate power 
sources, even if the state has to subsidize this) I am not sure which is 
better.  Maybe natural gas is the best solution.
  
Perhaps someone else from the regions where hurricane strike can weigh in on 
this particular subject.
Quadius


  
   


 
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Re: [QUAD-L] Environmental Control Units

2007-01-14 Thread B. Kimberlin \(Quadius\)
Thanks Jim for the information.  How much did this particular device costs.  
Without giving away too many details, I have a sizable grant which I have not 
used and it must be used on items to make my house more accessible.  Since my 
house is already accessible the only things I can think of are additional door 
openers, a device like you suggest here, widening my office door, and perhaps 
putting tinting on my windows so that my skin disorder (my knuckles get very 
hard and dark when exposed to too much sun) is not further exacerbated.
Quadius

Dan Tessiatore [EMAIL PROTECTED] wrote:  We just purchased a at Generac 
generator.  It is wired in to our electric system and when the power cuts out 
the generator starts up.  Although we initially had trouble with the system  It 
turns out that a clamp was installed incorrectly by the manufacturer.

Jim Lubin [EMAIL PROTECTED] wrote:   I wonder if the XPower PowerSource 1800 
would work for you? It doesn't have the surge protectors that most UPS systems 
have. I got one so we could operate my bed, suction machine and humidifier 
during a power outage.
http://www.xantrex.com/web/id/218/p/1/pt/30/product.asp

At 12:50 PM 1/13/2007, B. Kimberlin \(Quadius\) wrote:
  Quartet is much more stable and has a eight hour battery backup.  The only 
difficulty I have seen is that it requires a UPS in order to back up the remote 
transmitter.  This allows me to operate the ECU wirelessly from my wheelchair.  
I, however, I am unable to use a UPS near my ECU as it dampens out the X-10 
signals to the rest of the house.
Best of luck in your endeavors.  
Jim Lubin   
[EMAIL PROTECTED]
http://makoa.org/jim 
disAbility Resources: http://www.makoa.org





.

 
-
Don't pick lemons.
See all the new 2007 cars at Yahoo! Autos.

Re: [QUAD-L] Environmental Control Units

2007-01-14 Thread B. Kimberlin \(Quadius\)
What brand is your mattress?  I managed to get a Masonair for a little over 
$150 on eBay.  So far so good, but I'm keeping my fingers crossed.
Quadius

[EMAIL PROTECTED] wrote:Yes Dan, my air mattress is alternating preasure 
and low air loss. Its not very good at the air loss part but it will not 
completely deflate for a couple hours. It is one of those ebay specials a 
sister got me for $500. It draws about 250 watts (Maybe a little less.) and 
runs pretty good on a 12 volt battery for about 5 hours. It would probably run 
longer if I wouldn't move the bed so often.
   
   
  john  
   
 
-Original Message-
From: [EMAIL PROTECTED]
To: [EMAIL PROTECTED]; quad-list@eskimo.com
Sent: Sat, 13 Jan 2007 8:30 PM
Subject: Re: [QUAD-L] Environmental Control Units

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you use an air mattress that is constantly defusing air?  Does the inverter 
power the air mattress very long?  What do something like that cost?  Dan 
Tessiatore

[EMAIL PROTECTED] wrote: I sure feel silly. When power goes off here I have 
a flashlight I can shake and radio/cd player. When things get bad, I have a 
1000 watt power inverter for the wheelchair batteries to operate my bed and 
whatever else. (I know it doesn't add life to my batteries.) I try to be 
positive and name the mice that are wondering What did I do this time?  
   
  john
 
-Original Message-
From: [EMAIL PROTECTED]
To: [EMAIL PROTECTED]; [EMAIL PROTECTED]; [EMAIL PROTECTED]
Cc: quad-list@eskimo.com
Sent: Sat, 13 Jan 2007 7:57 PM
Subject: Re: [QUAD-L] Environmental Control Units

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Re: [QUAD-L] Environmental Control Units (mattress)

2007-01-14 Thread B. Kimberlin \(Quadius\)
I had the same problem with mine, but I found if I covered my mattress with 
sheepskins it helped with the noise.  I used to own an alternating mattress, 
but I find the mattresses which diffuse here to be more effective in 
maintaining my skin integrity.
Quadius

Dan Tessiatore [EMAIL PROTECTED] wrote:  My mattress is an ortho elite, it 
does not alternate but it diffuses air and lately I think it's defusing too 
much air and sometime whistles.  I am wondering if I should try to cover some 
of the holes in the mattress but I'm not sure what I would use.  When the power 
goes off the mattress will deflate in a matter of seconds so I am very happy we 
have a backup generator now.  Dan Tessiatore

[EMAIL PROTECTED] wrote: Yes Dan, my air mattress is alternating preasure 
and low air loss. Its not very good at the air loss part but it will not 
completely deflate for a couple hours. It is one of those ebay specials a 
sister got me for $500. It draws about 250 watts (Maybe a little less.) and 
runs pretty good on a 12 volt battery for about 5 hours. It would probably run 
longer if I wouldn't move the bed so often.
   
   
  john  
   
 
-Original Message-
From: [EMAIL PROTECTED]
To: [EMAIL PROTECTED]; quad-list@eskimo.com
Sent: Sat, 13 Jan 2007 8:30 PM
Subject: Re: [QUAD-L] Environmental Control Units

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solid; WIDTH: 275px; BORDER-BOTTOM: #dadad6 1px solid; HEIGHT: 206px  }  Do 
you use an air mattress that is constantly defusing air?  Does the inverter 
power the air mattress very long?  What do something like that cost?  Dan 
Tessiatore

[EMAIL PROTECTED] wrote: I sure feel silly. When power goes off here I have 
a flashlight I can shake and radio/cd player. When things get bad, I have a 
1000 watt power inverter for the wheelchair batteries to operate my bed and 
whatever else. (I know it doesn't add life to my batteries.) I try to be 
positive and name the mice that are wondering What did I do this time?  
   
  john
 
-Original Message-
From: [EMAIL PROTECTED]
To: [EMAIL PROTECTED]; [EMAIL PROTECTED]; [EMAIL PROTECTED]
Cc: quad-list@eskimo.com
Sent: Sat, 13 Jan 2007 7:57 PM
Subject: Re: [QUAD-L] Environmental Control Units

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Re: [QUAD-L] UPS and standby generators

2007-01-14 Thread B. Kimberlin \(Quadius\)
Jim,
Do me a favor and keep me updated if you do get this particular generator 
system.  Living here in Florida, having an uninterruptible power source is very 
valuable for people and our condition.  And the cold I am able to put on more 
blankets, but if it is too hot, there isn't much I am able to do other than 
have my PCA set up my generator so I can run some fans and odds and ends.
Quadius 

Jim Lubin [EMAIL PROTECTED] wrote:  Hi Belle,

UPS = uninterruptible power supply
http://en.wikipedia.org/wiki/Uninterruptible_power_supply

Generac generators are standby generators which automatically start up when 
power is lost.

We are considering getting a GUARDIAN Automatic Standby Generator, especially 
after the big storm and power outage we had last month. Our power was only out 
for 8 hrs, I have enough batteries to power the ventilator for at least 40 
hours. Some people were out of power for a week. 


At 06:17 PM 1/13/2007, LTeasley wrote:
  Hi, my name is Belle.  I'm fairly new here, I've only posted a couple of 
times before.  I am a C4--5 as a result of a motor vehicle accident.  I am only 
18 months out, so I realize I'm really new at this.  But boy I sure feel like I 
have a lot to learn.  I know what an environmental control unit is, but as far 
as the UPS, and other initials and such that are being used I have no clue how 
to follow them.  Can anyone help me?  By the way, I came to know of this site 
through Steve Oldaker; he is friends/acquaintances with my father's cousin.  I 
am very grateful for the connection.
Thanks,  
Jim Lubin   
[EMAIL PROTECTED]
http://makoa.org/jim 
disAbility Resources: http://www.makoa.org






 
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Re: [QUAD-L] Quad friends who live near by

2007-01-14 Thread B. Kimberlin \(Quadius\)
Man, I thought I had quite a few people that are disabled that live near me.  
While I know a few, I definitely do not know nearly that many.
Quadius

[EMAIL PROTECTED] wrote:  Hi All,
   I was emailing Dan from the q-list here regarding a quad friend who 
lives in the same town as me. Do you guys also have quad friends who live near 
by? 
I feel VERY lucky to have Maryann C 4,5 50 lives 10 miles away, John C 4,5 
51 lives 3 miles away, Dawn C 6,7 31 lives three floors up in our apartment 
building, Carrie C 3,5 45 lives 15 miles away, Tom C 4,5 47 lives 14 miles 
away, Diane T 12 55 lives 20 miles away, Karen C 2,3 40 lives 25 miles, Doug C 
6,7 42 lives 40 miles away, Ed C 4,5 58 lives 7 miles awasy, Missy C 6, 7 45 
lives 20 miles away, Andy C 4,5 50 lives 5 miles away, Booker C 6,7 72 lives 5 
miles away, Mike C 3,4 40 lives 10 miles away, Trish T 10 l,ives 30 miles away, 
Matt C 4,5 26 lives 5 miles away and Cameron stroke 45 lives 8 miles away.
OMG! I can't believe how many friends I have that are disabled AND live so 
very close by.
   Bobbie
   


 
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Re: [QUAD-L] Supra-pubic question

2007-01-14 Thread B. Kimberlin \(Quadius\)
I was planning on using the Apple cider and honey remedy which wheelchair 
mentioned, but my urologist thought I needed to wait until we determine which 
type of stones I have in my bladder, before I start this remedy.  She mentioned 
it could make the problem worse if it is a certain type.  I haven't had a 
chance to look at the website someone posted on here a while back, but I 
definitely am going to be checking it out soon.
Quadius

[EMAIL PROTECTED] wrote:I'm glad to  hear you have solved that problem. It 
must suck to have a sack of rocks where your suppose to have a water bag. It 
should be a headsup to the rest of us to get our bladders checked every year to 
18 months. We loose calcium at a remarkable rate compared to any other people 
beside astronauts. Calcium leaves via kidneys and bladder. When mixed with 
other solid particulates that kidneys extract, you get some rocks! I am sure 
you will feel much better. I haven't used any anisthesia for cysto yet. I heard 
the first doctor to do a cystoscopy did it on himself in the late 1700s. I 
figured it must not be that painfull. Now I know better. I don't let them use a 
general because if they break something I want to be able to yell.
  I had versid last time and was pretty wacked but able to speak. It wore off 
way too fast and by golly, I hadn't quite cleaned my bowel before surgery. 
Doctor earned his money. 
   
  john
  50, C-5, 31 years post
   
 
-Original Message-
From: [EMAIL PROTECTED]
To: [EMAIL PROTECTED]; quad-list@eskimo.com
Sent: Fri, 12 Jan 2007 7:20 PM
Subject: Re: [QUAD-L] Supra-pubic question

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Well, the only clear catheter I have used was a silicone product, so I have no 
idea how well the latex works. I myself am allergic to silicone catheters, but 
it seems as if the majority of people do not have this problem.
  I did, however, just get back up in my chair again after recuperating from 
cystoscopy - lithotripsy. Fortunately I only had to undergo a spinal block, so 
I was able to get home quite a bit quicker than I had originally anticipated. 
They removed a ton of stones from my bladder and right now my catheter seems to 
be going it much easier. When my urologist saw how many stones were in my 
bladder during the original cystoscopy, she said my problem putting in the 
catheter was most likely the result of too many stones. Thankfully she has been 
correct on this point.
  Quadius


Dan [EMAIL PROTECTED] wrote:   You guys are making me nervous! I've had a SP 
for 2 years now and only 1 or maybe 2 UTIs and no real problems changing it - 
every 3 weeks. From the beginning, I've used the brown rubber latex type. The 
new batch they just sent me are clear see through latex. Should I be concerned? 
How many of you all use these clear latex types?

Dan V   


At 12:57 PM 1/7/2007 -0800, B. Kimberlin \(Quadius\) said something that 
elicited my response:
  
  Dan,
Just curious, are you using a silicone catheter or latex.  I had an allergy to 
the silicone catheter and they cost me significant problems.  1.  The skin 
around my suprapubic light to adhere to my catheter as well as my bladder skin. 
 2.  I continuously felt as if I had a UTI.  3.  Had extraordinary difficulty 
getting new catheters in after removing the older ones.
Once I switched back
to latex, I had

Re: [QUAD-L] Environmental Control Units

2007-01-13 Thread B. Kimberlin \(Quadius\)
Dan,
I use the Quartet as my ECU.  My understanding that is quite pricey and since 
mine is well over 11 years old now, I really have no clue as to how much they 
cost.  Here is the website.
http://www.qtiusa.com/product_description.asp?ProdID=4

I definitely agree with wheelchair that you need to be able to test the 
equipment to see if it meets your specific needs.  The one ECU that somebody 
else posted appears to be comparable to Quartet, in that it controls infrared 
devices (six of them), fans, lights, electric blankets, door openers by using 
X-10 devices, it also has the capacity to attach up to two remotes to the back 
so it can open door openers without the use of X-10 (which can be a lifesaver 
if you have a UPS on those door openers), can interface with a computer, and as 
a telephone built in with 99 programmable positions for speed guile numbers.
  My particular model is a voice-activated as well as switch (sip-n-puff, 
headrest, or joystick).
  I have seen computer-based ECUs and if they are connected with Microsoft, I 
just don't trust them enough.  Quartet is much more stable and has a eight hour 
battery backup.  The only difficulty I have seen is that it requires a UPS in 
order to back up the remote transmitter.  This allows me to operate the ECU 
wirelessly from my wheelchair.  I, however, I am unable to use a UPS near my 
ECU as it dampens out the X-10 signals to the rest of the house.
  Best of luck in your endeavors.
Quadius

Dan Tessiatore [EMAIL PROTECTED] wrote:
  I am a quad and thinking about purchasing an environmental control unit.  Has 
anybody researched this topic or had good or bad experiences with these type of 
units?

 
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RE: [QUAD-L] Environmental Control Units

2007-01-13 Thread B. Kimberlin \(Quadius\)
Steve,
I don't know anything about your particular ECU, but I have found a way to 
enter three digits with my particular ECU, even though it was not originally 
designed to do so.  To do so, I simply activate the ECU, give the command for 
television, give the command for channel, and then give two quick numbers, 
followed up by the command Enter.  The enter command on my ECU has been 
programmed for the number 5.  I then scroll forward or backward to find the 
appropriate channel.  It is a pain in the butt, although it is considerably 
cheaper than buying an entirely new ECU.  Perhaps your system might have some 
similar workaround.
Quadius

Steve Oldaker [EMAIL PROTECTED] wrote:  @font-face {   font-family: 
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Mike...
   
  Will your SiCare allow you to operate your cable TV box and/or TV, 
specifically, can you access 3 digit channels directly?
   
  I still have and use the SiCare Lite 1 and it continues to work well, but 
while it will allow me to control my TV, it doesn't work with my specific cable 
box, and it will only allow me to go to a channel directly if it is 2 digits or 
less.  They don't make this model any more.  It cost $800 several years ago.  I 
consider it a bargain for the amount of time and utility I have gotten from it. 
 I have taken it with me to the hospital on several occasions and was able to 
program it to work with the hospital TVs.  Unfortunately, if your device isn't 
among the pre-programmed options for the respective devices, i.e. TV, VCR, CD 
player, and tuner, you are out of luck.  I even looked into getting my device 
programmed to work with other specific remote controls I use frequently, and 
Tash wanted $200 per remote and I would have had to send them my SiCare and the 
remote(s), since my unit is not programmable beyond what is already included.
   
  I am seriously considering the SiCare Lite 2, especially if the return policy 
allows me to send it back if it is not significantly better than my current 
SiCare device.
   
  I am wondering what additional features your SiCare unit has that the SiCare 
Lite 2 does not have.
   
  Steve

  
-
  From: Mike Murach [mailto:[EMAIL PROTECTED] 
Sent: Monday, January 08, 2007 2:53 PM
To: [EMAIL PROTECTED]; quad-list@eskimo.com; [EMAIL PROTECTED]
Subject: RE: [QUAD-L] Environmental Control Units


  
Here is a link to it: http://www.tashinc.com/catalog/env_sicare.html
  It’s certainly not cheap, but it’s a great product!  The Sicare operates my 
front door, camera, and intercom.  In my bedroom it operates my TV, stereo, CD 
player (books on CD), tape player (books on tape), and DVD player.  It 
operates, via X-10’s, my heater, heating blanket, fans, attendant beeper, and 
alternating air cushion.  Lastly it gives me access to a telephone.  All of the 
above is done through voice control.  Also, my insurance company (Travelers) 
paid for it all.
  Mike~ 
   
www.MurGallery.com
   

   
  -Original Message-
From: [EMAIL PROTECTED] [mailto:[EMAIL PROTECTED] 
Sent: Monday, January 08, 2007 3:04 AM
To: [EMAIL PROTECTED]; quad-list@eskimo.com; [EMAIL PROTECTED]
Subject: Re: [QUAD-L] Environmental Control Units
   
What is the price?  Do you know any web sites that tell about this?  What 
kinds of things does this device do for you? How long have you had the units?  
Longevity of unit?

 

Thank you,
Dana




 
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See all the new 2007 cars at Yahoo! Autos.

Re: [QUAD-L] Supra-pubic question

2007-01-12 Thread B. Kimberlin \(Quadius\)
Well, the only clear catheter I have used was a silicone product, so I have no 
idea how well the latex works. I myself am allergic to silicone catheters, but 
it seems as if the majority of people do not have this problem.
  I did, however, just get back up in my chair again after recuperating from 
cystoscopy - lithotripsy. Fortunately I only had to undergo a spinal block, so 
I was able to get home quite a bit quicker than I had originally anticipated. 
They removed a ton of stones from my bladder and right now my catheter seems to 
be going it much easier. When my urologist saw how many stones were in my 
bladder during the original cystoscopy, she said my problem putting in the 
catheter was most likely the result of too many stones. Thankfully she has been 
correct on this point.
  Quadius


Dan [EMAIL PROTECTED] wrote:  You guys are making me nervous! I've had a SP 
for 2 years now and only 1 or maybe 2 UTIs and no real problems changing it - 
every 3 weeks. From the beginning, I've used the brown rubber latex type. The 
new batch they just sent me are clear see through latex. Should I be concerned? 
How many of you all use these clear latex types?

Dan V   


At 12:57 PM 1/7/2007 -0800, B. Kimberlin \(Quadius\) said something that 
elicited my response:
  
  Dan,
Just curious, are you using a silicone catheter or latex.  I had an allergy to 
the silicone catheter and they cost me significant problems.  1.  The skin 
around my suprapubic light to adhere to my catheter as well as my bladder skin. 
 2.  I continuously felt as if I had a UTI.  3.  Had extraordinary difficulty 
getting new catheters in after removing the older ones.
Once I switched back
to latex, I had no difficulties, except the occasional stone.
Quadius
Danny Hearn [EMAIL PROTECTED] wrote: 
 Hi all, The last few months the tissue around my supra-pubic has 
been bleeding more than it used to. Has anyone else had that problem or know of 
a product that may help that?? It seems a while back I think someone said they 
spayed miricle mist on theirs and it seemed to help, if anyone knows -- please 
post.  Thanks ALL and hope we all have a good new year ahead of us !
Dan H. 


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RE: [QUAD-L] Passing of a good friend

2007-01-07 Thread B. Kimberlin \(Quadius\)
Well Dan, one of my friends was a ventilator patient that went home in perfect 
condition, following a year and a half in the hospital for his initial 
rehabilitation, only to return six months later with the back of his body 
covered in bed sores.  He died shortly after being admitted to the hospital and 
I was informed his weight was down about 40 pounds.  Somebody should have been 
held responsible for this hideous abuse.  Unfortunately, no one chose to 
prosecute, or at least as far as I know no one did.  
  
My other friend also died of complications from an infected bedsore.
  Billy

Dan Tessiatore [EMAIL PROTECTED] wrote:
  Sorry to hear about your losses.  I am 30 years post C4/5.  My health has 
been moderately okay until the last two years for which I was hospitalized a 
couple times for UTIs and hypereflexia.  Reoccurring pressure sores also have 
been a bigger problem of recent.  Of what kind of neglect did you lose your 
friends?  Dan in Illinois 

B. Kimberlin (Quadius) [EMAIL PROTECTED] wrote: I am approaching 12 
years post injury in April, and I am planning on trying to live until I am at 
least 80.  However, my doctor seemed to think 60s is a more attainable goal.  
Since I am now 42, that gives me around 18 years, however, I really think I'll 
last much longer.
  
I have also lost several quadriplegic friends way too early and a few of them 
have been due to neglect.  It is just a shame that our system does not take 
better care of each other.  It amazes me that a society as rich as ours is 
inordinately uncaring when it comes to making sure each citizen is given 
affordable housing, care, food, etc.
Quadius
Steve Oldaker [EMAIL PROTECTED] wrote:
  Passing away at 41 years old is far too young, with or without a SCI.  I 
hope Houston was not alone when he passed, and I hope he was not neglected 
beforehand.  I do not read every message posted on this list, but I always read 
Houston's. 
   
  Our local long time quad patriarch and one of my biggest quad mentors passed 
away at 45, and another local quad friend of mine passed away at 46.  They too 
were far too young to go so soon.  I miss them very much.
   
  May they all be at peace...
   
  Steve - C4, 18 years
   
   

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Re: [QUAD-L] Passing of a good friend

2007-01-07 Thread B. Kimberlin \(Quadius\)
Actually Paul I am in perfect health, other than suffering from bladder stones. 
 I am due to go in for a cystoscopy (although they say it's a cystoscopy with 
some extra letters at the end now because I had too many stones to be removed 
with just a local anesthetic).  For some reason the people down here seem to 
think we age much quicker and therefore are prone to die earlier than everyone 
else.  I don't buy into this crap.  I think if you take care of yourself and 
have some good luck, like everyone else, you can live a very long and 
fulfilling life.
  Yours,
  Billy
  PS I apologize if there are any errors in this e-mail, however, since I'm 
using voice-activated software there are occasional errors which I don't always 
catch in my quick perusal of this correspondence. I ask for your indulgence.
  It is not the length of life, but the depth of life.
  Ralph Waldo Emerson


Paul Jacobson [EMAIL PROTECTED] wrote:  Hi..I'm 42 
also..never had a sore..never had a uti.6ft 180 
lbsperfect health aside from being a c5/6 complete.  I plan to go way 
past 60.  Why would the doc say that.  How healthy are ya?
   
  I wish you well.
   
  Paul
  San Diego
  

B. Kimberlin (Quadius) [EMAIL PROTECTED] wrote: 
  I am approaching 12 years post injury in April, and I am planning on 
trying to live until I am at least 80.  However, my doctor seemed to think 60s 
is a more attainable goal.  Since I am now 42, that gives me around 18 years, 
however, I really think I'll last much longer.
  
I have also lost several quadriplegic friends way too early and a few of them 
have been due to neglect.  It is just a shame that our system does not take 
better care of each other.  It amazes me that a society as rich as ours is 
inordinately uncaring when it comes to making sure each citizen is given 
affordable housing, care, food, etc.
Quadius


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RE: [QUAD-L] Quad Longevity - Passing of a good friend

2007-01-07 Thread B. Kimberlin \(Quadius\)
Steve, 
I myself have looked into going back to work, especially after I finished 
school with a BA in history, but have decided that it is better off for me to 
remain retired at the ripe age of 42.  Ironically this is the age that I had 
planned on retiring at if I had been permitted to remain in the service.  Of 
course, my spinal cord injury precluded this, so I was granted a disability 
retirement.  Since I received a good pension, I don't really have to work, but 
I have decided to try to do as much volunteer work and activities with in my 
community to remain involved.
  
One of the volunteer things I am trying to become more involved in is disabled 
advocacy so that people that would be better off not working full time, will 
have the ability to do this.  Unfortunately, have not figured out how best to 
achieve this goal, but it is worth working for.
I apologize for the rather rambled nature of this, but I am trying to get 
through a bunch of these.  Right now I have 103 messages stacked up.
  Yours,
  Billy (Quadius)
  PS I apologize if there are any errors in this e-mail, however, since I'm 
using voice-activated software there are occasional errors which I don't always 
catch in my quick perusal of this correspondence. I ask for your indulgence.
  It is not the length of life, but the depth of life.
  Ralph Waldo Emerson

Steve Oldaker [EMAIL PROTECTED] wrote:
  I will be 19 years post injury in May and share your goal of living to at 
least 80, however, as you pointed out, statistically, a C4 quad's  average life 
span is roughly 10-15 years less than someone without a SCI.  I am 45 now, so I 
hope I can reasonably count on another 15-20 years, hopefully more.
   
  Chronic pain, UTIs, periodic skin trouble, and working full time in spite of 
it has taken its toll over the past 18 years.  I have never really felt good 
since being injured, but I have really felt lousy for the last year.  I am 
seriously considering a disability retirement.  I hate to think I may be 
squandering future years just for the sake of working, but I don't want to stop 
working prematurely.  It's a tough call.
   
  Steve - C4, 18 years

  
-
  From: B. Kimberlin (Quadius) [mailto:[EMAIL PROTECTED] 
Sent: Monday, January 01, 2007 8:31 PM
To: Steve Oldaker
Cc: quad-list@eskimo.com
Subject: RE: [QUAD-L] Passing of a good friend


  
  I am approaching 12 years post injury in April, and I am planning on trying 
to live until I am at least 80.  However, my doctor seemed to think 60s is a 
more attainable goal.  Since I am now 42, that gives me around 18 years, 
however, I really think I'll last much longer.
  
I have also lost several quadriplegic friends way too early and a few of them 
have been due to neglect.  It is just a shame that our system does not take 
better care of each other.  It amazes me that a society as rich as ours is 
inordinately uncaring when it comes to making sure each citizen is given 
affordable housing, care, food, etc.
Quadius
Steve Oldaker [EMAIL PROTECTED] wrote:
  Passing away at 41 years old is far too young, with or without a SCI.  I 
hope Houston was not alone when he passed, and I hope he was not neglected 
beforehand.  I do not read every message posted on this list, but I always read 
Houston's. 
   
  Our local long time quad patriarch and one of my biggest quad mentors passed 
away at 45, and another local quad friend of mine passed away at 46.  They too 
were far too young to go so soon.  I miss them very much.
   
  May they all be at peace...
   
  Steve - C4, 18 years
   
   

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Re: [QUAD-L] Supra-pubic question

2007-01-07 Thread B. Kimberlin \(Quadius\)
Dan,
Just curious, are you using a silicone catheter or latex.  I had an allergy to 
the silicone catheter and they cost me significant problems.  1.  The skin 
around my suprapubic light to adhere to my catheter as well as my bladder skin. 
 2.  I continuously felt as if I had a UTI.  3.  Had extraordinary difficulty 
getting new catheters in after removing the older ones.
  Once I switched back
to latex, I had no difficulties, except the occasional stone.
Quadius
Danny Hearn [EMAIL PROTECTED] wrote:
Hi all, The last few months the tissue around my supra-pubic has 
been bleeding more than it used to. Has anyone else had that problem or know of 
a product that may help that?? It seems a while back I think someone said they 
spayed miricle mist on theirs and it seemed to help, if anyone knows -- please 
post.  Thanks ALL and hope we all have a good new year ahead of us !
Dan H. 

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RE: [QUAD-L] hey Linda

2007-01-07 Thread B. Kimberlin \(Quadius\)
What type of heating blanket are you using?  I am using a Sunbeam and when I 
shut it off with my X 10 appliance module, I am unable to turn it back on.
Quadius

Mike Murach [EMAIL PROTECTED] wrote:  @font-face {   font-family: Tahoma; 
 }  @page Section1 {size: 8.5in 11.0in; margin: 1.0in 1.25in 1.0in 1.25in; }  
P.MsoNormal {   FONT-SIZE: 12pt; MARGIN: 0in 0in 0pt; FONT-FAMILY: Times New 
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Times New Roman  }  DIV.MsoAutoSig {   FONT-SIZE: 12pt; MARGIN: 0in 0in 0pt; 
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 MARGIN-LEFT: 0in; MARGIN-RIGHT: 0in; FONT-FAMILY: Times New Roman  }  
SPAN.EmailStyle18 {   COLOR: navy; FONT-FAMILY: Arial  }  DIV.Section1 {   
page: Section1  }Lindaf,
  What I use at night is the voice activated Sicare pilot ECU.  I totally 
recommend it.  I’m continually switching back and forth between my heating 
blanket and fan.  Plus, it operates any IR remotes, X-10’s, etc.
  Mike~
   
www.MurGallery.com
   

   
  -Original Message-
From: LINDA FERRELL [mailto:[EMAIL PROTECTED] 
Sent: Saturday, January 06, 2007 3:05 PM
To: [EMAIL PROTECTED]; [EMAIL PROTECTED]; quad-list@eskimo.com
Subject: Re: [QUAD-L] hey Linda
   
Larry, I lived in a Nursing Home for 5-1/2yrs.  hated every minute of it. 
I got very depressed. Wheelchair would come by to see me  give all the Quad 
news. He kept asking me what I was doing there, to get out. Finally I got a 
power chair, then a computer. I joined Partners in Policymaking  learned so 
much, then found the avenue out of the Nursing Home, Hallelujah!
  It was the best move that I ever made!!!  I figured if I didn't try it on my 
own, I would never know. I love living alone  things have worked pretty well 
for me. The one problem I have is nite time, I loose my mouthstick  I get too 
hot. Other than that, I get along just fine! I moved out of the NH in 99'.
  Lindaf




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Re: [QUAD-L] Passing of a good friend

2007-01-01 Thread B. Kimberlin \(Quadius\)
Please except my condolences.  Houston will definitely be missed by myself and 
a multitude of others.
Quadius

andrea murray [EMAIL PROTECTED] wrote:I'm taking the news worse of 
all.Houston and I want out together every time I want to INDY. Our place was 
Joe's Crab Shack. We had many a good time! I loved Houston! My church Lady and 
a group of students from Purdue Calumet that our my friends said the Rosie( 
Hell Mary). May God find peace in Haven for Houston. I wanted to show you the 
last picture of Houston and I, that was a year ago. Please pray he is at peace.
  Wheelchair Warrior
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RE: [QUAD-L] Passing of a good friend

2007-01-01 Thread B. Kimberlin \(Quadius\)
I am approaching 12 years post injury in April, and I am planning on trying to 
live until I am at least 80.  However, my doctor seemed to think 60s is a more 
attainable goal.  Since I am now 42, that gives me around 18 years, however, I 
really think I'll last much longer.
  
I have also lost several quadriplegic friends way too early and a few of them 
have been due to neglect.  It is just a shame that our system does not take 
better care of each other.  It amazes me that a society as rich as ours is 
inordinately uncaring when it comes to making sure each citizen is given 
affordable housing, care, food, etc.
Quadius
Steve Oldaker [EMAIL PROTECTED] wrote:
  Passing away at 41 years old is far too young, with or without a SCI.  I 
hope Houston was not alone when he passed, and I hope he was not neglected 
beforehand.  I do not read every message posted on this list, but I always read 
Houston's. 
   
  Our local long time quad patriarch and one of my biggest quad mentors passed 
away at 45, and another local quad friend of mine passed away at 46.  They too 
were far too young to go so soon.  I miss them very much.
   
  May they all be at peace...
   
  Steve - C4, 18 years
   
   


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Re: [QUAD-L] I Regret The Passing Of........

2006-12-30 Thread B. Kimberlin \(Quadius\)
Ditto.  I had wondered what happened to him.  May finally rest in peace.
Quadius

David K. Kelmer [EMAIL PROTECTED] wrote:Hi Wheels,
   
  Thanks for sharing the news of Houston's passing with the Q-List.  He was a 
good man, and will be missed.
   
  With Love,
  
CtrlAltDel aka Dave
C4/5 Complete - 30 Years Post
Texas, USA
  

[EMAIL PROTECTED] wrote:
  This morning in the newspaper:  wwwnwitimes.com   in the obits is a 
notice for one of our friends and quad member, Houston A Leek-41, formerly of 
Gary, living in Indianapolis, IN who passed on December 25th.
  No further details are available at this time other than, Guy and Allen were 
in charge of his service.
  May He Finally Rest In Peace..
   
  W
   
   



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Re: [QUAD-L] Fwd: CAMR December Update

2006-12-30 Thread B. Kimberlin \(Quadius\)
Is somebody going to let us know what the new bill bill number is going to 
become?  If so, I will start contacting my Representative and Senators.
Quadius

[EMAIL PROTECTED] wrote:  FYI: Re: stem cell
From: CAMR [EMAIL PROTECTED]
To: Dana Wray [EMAIL PROTECTED]
Subject: CAMR December Update
Date: Thu, 21 Dec 2006 15:07:29 GMT



  December 21, 2006

Dear CAMR Members:
  
  First, let me wish you and your family a joyful holiday season and a Happy 
New Year. Now is the time to look back on the incredible progress that has been 
made and ready ourselves for important stem cell work in 2007. We all will need 
to roll up our sleeves in January and get right to work because we have a lot 
to accomplish in a very short timeframe next year.
  
  In January, the 110th Congress will be sworn into office. The Stem Cell 
Research Enhancement Act (what we knew as HR 810 for the past two years) will 
be reintroduced by our Congressional champions in January with identical 
language and a new bill number. 
  
  Getting this bipartisan bill passed and enacted has been identified as a top 
priority by the new leadership in both the Senate and the House of 
Representatives. A vote on the bill is expected in both chambers in January. 
That means we need to reach out to everyone we can as soon as possible. 
  
  Now is the time for you to use your local contacts and reach out to your new 
Representatives and Senators before they are even sworn in. Before they come to 
Washington, DC they need to know that you expect them to vote in favor of the 
Stem Cell Research Enhancement Act. You will need to be creative, as these new 
Members might be difficult to locate before January. Perhaps they will be 
attending local events in your community or opening up a district office. Use 
every resource you can think of to track them down.
  
  You should also use this time to contact returning Representatives and 
Senators who may have voted no in the past to convince them now is the time to 
vote in favor of federal funding for embryonic stem cell research.
  
  The message for all Members of Congress is this:
  
  Now is the time to pass and enact meaningful stem cell legislation! The Stem 
Cell Research Enhancement Act will be one of the first bills presented to you 
for a vote in the 110th Congress and I urge you to vote yes.
  
  You will hear from us as soon as the bill is reintroduced and we will be 
asking for a huge push in early January to get the word out on the Stem Cell 
Research Enhancement Act before the votes.
  
  Thank you,
  
  Sean Tipton
President

Click here to unsubscribe.








 

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Re: [QUAD-L] Rollin Stone

2006-12-30 Thread B. Kimberlin \(Quadius\)
Thanks again for the information W.  I haven't been on here lately as I have 
been taking care of other issues and had computer-related problems 
simultaneously.  Anyway, I had a chance to talk about this remedy with my 
doctor and he seemed to think it might work in the short term, but felt my 
body's normal mechanisms would adjust to the increased acidity and therefore it 
would become only a short-term fix.  I, however, thought about doing this for a 
few months and then stopping for a few and going back and forth.  Perhaps then 
I can eliminate some of the stones that have continuously developed in my 
bladder.
  
I am scheduled for another cystoscopy on January 10.  This particular one is 
going to be performed in the operating room and will require some sort of 
anesthesiology.  I had too many stones to be removed without being completely 
anesthetized, so now I am waiting on my preop appointment.  Although, last 
night I learned that January 2, the day I had my preop scheduled, is now a 
federal day of mourning for the late President Ford.  Therefore, the VA will 
not be doing normal outpatient procedures.  Of course, now will be a scramble 
to find out what the heck I can do, but we do have a good team here.
Quadius
[EMAIL PROTECTED] wrote:
The entire mixture takes up less volume than a shot glass.  I heard 
about it years ago in a paperback book called New England Folk Medicine.  I 
also heard that a couple of leading Universities are also conducting their 
testing of the mix as well as the results.
   
  I believe the portions are equal or are 2-1 or 3-1 measured in spoon fulls.
   
  New England Folk Medicine was written by a licensed medical doctor who 
practiced
  in the rural area of the North East.
  W
   
   
  In a message dated 12/16/2006 12:25:06 P.M. Central Standard Time, [EMAIL 
PROTECTED] writes:
  I may have to try that, I actually have apple cider vinegar on hand for my 
pulled pork recipe.  What type of mixture do they usually do and how much do 
they drink?  That is assuming, you know.
Thanks W.
Quadius

  
   


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Re: [QUAD-L] Bladder Control News!- Print Save

2006-12-20 Thread B. Kimberlin \(Quadius\)
Great news for those of us that have the ability to scratch the inside of their 
thigh.  Maybe one day they'll figure out how to make something like this work 
so we can reconstitute all of our nerve damage.
Quadius

[EMAIL PROTECTED] wrote:  Surgery Seen As Aid To Bladder Control For 
Paralyzed People
  Dateline- Washington
   
  Needing a wheelchair isn't always the biggest complaint of people left 
paralyzed by spinal cord injury.  Its also the loss of bladder control.  On 
Monday, Michigan doctors began a unique experiment to see if rerouting patients 
nerves just might fix the problems.
  Its a delicate operation. Surgeons cut open a spot on the spine and sew two 
normally unrelated nerves together-one from the thigh- with a single hair thin 
stitch.  It will take several
  months for this new nerve bridge to heal, an anxious waiting period for the 
first volunteers.
  But if it works, merely scratching the thigh should signal the bladder to 
empty, allowing patients to ditch their despised catheters and restore a 
longed-for degree of freedom, as well as fewer bladder infections and other 
serious complications.
  Its a technique pioneered in China that is starting to garner international 
attention and surgeons at William Beaumont Hospital in Royal Oaks, Michigan, 
hope their new US study  will prove if the approach really is a solution for at 
least some patients.
   
  w


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Re: [QUAD-L] Rollin Stone

2006-12-16 Thread B. Kimberlin \(Quadius\)
Fascinating insight.  Never made a correlation myself, but I had never had a 
stone until they discovered I had a mild case of osteoporosis and of course 
they (the doctors) told me to start taking calcium supplements.  Now I have 
stones every year, but this year has to be the worst.
I'll be posting more on this issue when I respond to Mark in a few minutes.
Quadius

Dan Tessiatore [EMAIL PROTECTED] wrote:  Mark, it sounds like a nightmare.  A 
typical situation for a quad though.  I try to stay away from any dairy 
products that contain calcium to avoid stones.  Even though my urologist says 
there is no proof of a correlation between calcium intake and stones it seems 
very consistent when I eat a little too much dairy with calcium I start to have 
stones again.
When you say you are sweating, did they monitor you for hypereflexia?

RollinOn [EMAIL PROTECTED] wrote: Hey People,
  Well Monday I went in for my laser procedure and my doc couldn't get it in 
one shot so I went home with an indwelling cath for some reason and of course 
it clogged up during the night making me sweat like crazy.
  I was laying in a pool of sweat and he told me to keep it in for 48 hours but 
I was passing stones around the cath which hurts even worse than it sounds.
  He told me to come back Wednesday to do it all over and I about fell out, I 
gotta do this again?!
  Well Wednesday I wentv in and did it again and again he put a cath in me 
telling me to leave it for 48 hoursbut once again I was laying in a pool of 
sweat and passing stones around the cath so we took it out and I passed several 
more stones.
  I never want to get another stone!
  I'm recovering slowly it still hurts like hell and blood red urine just sucks.
  I'll keep you posted and thanks for the card Dave!
   
   
  Mark Jackson
   
  




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Re: [QUAD-L] Rollin Stone

2006-12-16 Thread B. Kimberlin \(Quadius\)
I may have to try that, I actually have apple cider vinegar on hand for my 
pulled pork recipe.  What type of mixture do they usually do and how much do 
they drink?  That is assuming, you know.
Thanks W.
Quadius

[EMAIL PROTECTED] wrote:When taking supplements in your diet, you 
should also consider taking a daily cocktail of
  apple cider vinegar and honey.  Some have 2-3 cocktails a day, and swear that 
it prevents the buildup of minerals in your bladder.  Anyone else heard of this 
cocktail?
  W
   
   
   
   
  In a message dated 12/16/2006 12:10:12 P.M. Central Standard Time, [EMAIL 
PROTECTED] writes:
  Fascinating insight.  Never made a correlation myself, but I had never had a 
stone until they discovered I had a mild case of osteoporosis and of course 
they (the doctors) told me to start taking calcium supplements.  Now I have 
stones every year, but this year has to be the worst.
I'll be posting more on this issue when I respond to Mark in a few minutes.
Quadius

  
   


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Re: [QUAD-L] subscribe

2006-12-11 Thread B. Kimberlin \(Quadius\)
Not sure what is going on.  The only thing I have been receiving is something 
sent directly to me from individuals.  I have not received any of the messages 
which I sent to the list.  Now I'm starting to wonder if the list is working 
properly.
Quadius

[EMAIL PROTECTED] wrote:  I haven't been getting posts, everybody sleeping?
   
  GA


 
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Re: [QUAD-L] subscribe

2006-12-11 Thread B. Kimberlin \(Quadius\)
Now it's working!  Go figure.

B. Kimberlin (Quadius) [EMAIL PROTECTED] wrote:  Not sure what is going on. 
 The only thing I have been receiving is something sent directly to me from 
individuals.  I have not received any of the messages which I sent to the list. 
 Now I'm starting to wonder if the list is working properly.
Quadius

[EMAIL PROTECTED] wrote:   I haven't been getting posts, everybody sleeping?
   
  GA


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