[QUAD-L] dog training

[diannal767]

Does anyone have a dog for help with light switches, etc.  When traveling or 
taking your dog to the park, what do you do if your dog poops? And you are 
alone. Like when I stop for gas & want to take her in the grass.Dianna

[QUAD-L] from diannal767

[diannal767]

Hi! 

Have you already seen it? http://fossaolimpica.ch/kwqxmkn.php?diannal767

 

 

diannal767

[QUAD-L] Fw (2): diannal767

[diannal767]

Unable to display full message.
Please click here to view this message



Mon, 13 Feb 2017 09:24:09 -0400
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Re: [QUAD-L] ? about Irrigating Catheter

[diannal767]

I use 3/4 cup white distilled vinegar to a gallon of distilled water.




Wed, Feb 8, 2017 at 2:25 PM, Nichole Rohling
>  wrote:
>
> I am going to make urology appt but I the meantime I'm going to up
> irrigation to twice a day instead of just nights.
>
> Do you happen to know ratio of vinegar to sterile water? I can
> google it too.





-Original Message-
From: greg 
To: quad-list 
Sent: Thu, Feb 9, 2017 6:54 pm
Subject: RE: [QUAD-L] ? about Irrigating Catheter



Have you ladies thought of a Supra Pubic cath through the tummy area. I would 
think safer, cleaner, easier, faster, and a bunch of other ...ers.


 
> This new urologist of mine is so booked up that I cannot get
> received your down until June 13 - 4 MONTHS later unless they get a
> cancellation!  Because of the constant urine leaking around my
> catheter... it has caused skin breakdown. 
>
>
> Last summer I was in bed for 2 1/2 months from skin breakdown and
> now I have started again but in the worst possible place... in
> between my left labia at my left thigh and in between my right
> labia and my right thigh... which is where the urine likes to
> drool. 
>
>
> The skin breakdown that began in between my right labia and my
> right thigh started Friday morning and the one on the left started
> this morning!
>
>
> We are doing our best with folding 4x4 gauze pads in there during
> the day when I am up in the chair  and it is best to leave them
> open when in bed overnight and sleeping on my side. Otherwise the
> gauze pads just add problems.
>
>
> Thoughts are with you!
>
>
> On Wed, Feb 8, 2017 at 4:47 PM, Nichole Rohling
>  wrote:
>
> Thanks Lori,
>
>
> Prayers for you and your procedure. I was able to get in with
> urologist next Wednesday.
>
>
> Nicki
>
>
> From: Lori Michaelson [mailto:lorilivin...@gmail.com] Sent:
> Wednesday, February 8, 2017 4:30 PM To: Nichole Rohling Subject:
> Re: [QUAD-L] ? about Irrigating Catheter
>
>
> I know that the urologist gave me a ratio of white vinegar/sterile
> water or saline but it was too strong and caused bladder pain so I
> had to lower the quantity of vinegar. I remember now then it was
> one cup of sterile water to 2 tablespoons of white vinegar that we
> would make up before hand and then pour them into individual little
> cups that the home health agency provided to bring the sterile
> water or saline.
>
>
> When I just went through is a total nightmare. I have now lost my
> urethra thanks to what that nurse did to me at the end of January
> 2016. I had urodynamics done yesterday and I am going to have to
> have a bladder neck closure and a suprapubic catheter.
>
>
> I was fine and dandy when I first moved here but it only takes one
> insect to damage so much grain (as Elton John stated in his
> song/tribute to John Lennon called "Empty Garden" or also known as
> "Hey Hey Johnny").
>
>
> On Wed, Feb 8, 2017 at 2:25 PM, Nichole Rohling
>  wrote:
>
> I am going to make urology appt but I the meantime I'm going to up
> irrigation to twice a day instead of just nights.
>
> Do you happen to know ratio of vinegar to sterile water? I can
> google it too.
>
>
> Thanks
>
> Nicki
>
>
> From: wheelch...@aol.com [mailto:wheelch...@aol.com] Sent:
> Wednesday, February 8, 2017 1:34 PM To: zoocr...@windstream.net;
> quad-list@eskimo.com Subject: Re: [QUAD-L] ? about Irrigating
> Catheter
>
>
> Have you considered that most doctors, nurses and medical staff,
> have never been cath'ed.  Sterile Conditions, sterile water, a
> teaspoon of white vinegar.   Deep Breaths help relax the control
> muscle and 2% zilocaine is recommended when pain is involved.
>
>
> Best Wishes
>
>
> In a message dated 2/8/2017 11:00:58 A.M. Central Standard Time,
> zoocr...@windstream.net writes:
>
>>
>> sterile water.
>
>
> --
>
> "Petting, scratching and cuddling a dog could be soothing to the
> mind and heart and deep meditation and almost as good for the soul
> as prayer." ~Dean Koontz

Re: [QUAD-L] testing

[diannal767]

yes. quad-list archives. I used it for topics a couple times. doesn't matter 
because it could be found in other places too.
dianna


I made the mistake of using my real name for the list. Somebody I know was 
searching my name via google and found some info they didn't like and it was 
bad. I didn't realize years ago there was the ability to look at all previous 
quad posts. Now I watch what I post.




-Original Message-
From: RONALD L PRACHT <r.pra...@sbcglobal.net>
To: Quad-list Post <quad-list@eskimo.com>
Sent: Mon, Jan 16, 2017 8:47 pm
Subject: Re: [QUAD-L] testing



I made the mistake of using my real name for the list. Somebody I know was 
searching my name via google and found some info they didn't like and it was 
bad. I didn't realize years ago there was the ability to look at all previous 
quad posts. Now I watch what I post.


Ron 
 



 
 
 
 On Monday, January 16, 2017 7:32 PM, "diannal...@aol.com" <diannal...@aol.com> 
wrote:

  

 

yes, I already have g-mail. I may have to just change for the list  only.



-Original Message-
From: Danny Hearn <ddh...@sbcglobal.net>
To: Jim Lubin <jlu...@eskimo.com>; diannal767 <diannal...@aol.com>
Cc: quad-list <quad-list@eskimo.com>
Sent: Mon, Jan 16, 2017 4:19 pm
Subject: Re: [QUAD-L] testing



I used to use AOL years ago and would get kicked off from time to time and 
would sign up again but now I have yahoo and seldom have a problem anymore . 
Dan H**
 



 
 
 
 On Monday, January 16, 2017 1:26 PM, Jim Lubin <jlu...@eskimo.com> wrote:

  

 

you could get a free gmail account and either:

forward your gmail to your aol email
use gmail to retrieve your aol email.

I use gmail as my main email and have it setup to get my mail from aol, 
hotmail, msn and comcast accounts via pop3. I found gmail has better spam 
filters. 



On Mon, Jan 16, 2017 at 9:44 AM,  <diannal...@aol.com> wrote:

I use AOL so get kicked off all the time.





  
 
  






  
 
  

Re: [QUAD-L] testing

[diannal767]

yes, I already have g-mail. I may have to just change for the list  only.



-Original Message-
From: Danny Hearn <ddh...@sbcglobal.net>
To: Jim Lubin <jlu...@eskimo.com>; diannal767 <diannal...@aol.com>
Cc: quad-list <quad-list@eskimo.com>
Sent: Mon, Jan 16, 2017 4:19 pm
Subject: Re: [QUAD-L] testing



I used to use AOL years ago and would get kicked off from time to time and 
would sign up again but now I have yahoo and seldom have a problem anymore . 
Dan H**
 



 
 
 
 On Monday, January 16, 2017 1:26 PM, Jim Lubin <jlu...@eskimo.com> wrote:

  

 

you could get a free gmail account and either:

forward your gmail to your aol email
use gmail to retrieve your aol email.

I use gmail as my main email and have it setup to get my mail from aol, 
hotmail, msn and comcast accounts via pop3. I found gmail has better spam 
filters. 



On Mon, Jan 16, 2017 at 9:44 AM,  <diannal...@aol.com> wrote:

I use AOL so get kicked off all the time.





  
 
  

Re: [QUAD-L] Electric ⚡️ toothbrush question

[diannal767]

put it on before and yes turn it off before you take it out.. I do anyway.

> For those of you who use an electric ⚡️ toothbrush, how, and when, do you put 
> the toothpaste on?
> Also, when you take the toothbrush out of your mouth  dose the toothbrush 
> have to be turned off so the toothpaste doesn't fly everywhere?
> Bobbie




-Original Message-
From: Derrick 
To: Bobbie Humphreys ; quad-list 

Sent: Mon, Jan 16, 2017 4:32 pm
Subject: Re: [QUAD-L] Electric ⚡️ toothbrush question

MY caregiver puts it on before leaving. And/or put in on right before I 
brush them.
I even have tooth paste lid barely on to were I can use my mouth to 
untwist lid & squirt ity in my mouth.

Yes, you will want the brush to shut off before removing from mouth. You 
can push button to shut it off or wait for it to shut off after running 
for 2 minutes. Mine shuts off after 2 minutes.
You will need to put toothbrush in your mouth before turning on.

derrick

On 1/15/2017 3:09 PM, Bobbie Humphreys wrote:
> For those of you who use an electric ⚡️ toothbrush, how, and when, do you put 
> the toothpaste on?
> Also, when you take the toothbrush out of your mouth  dose the toothbrush 
> have to be turned off so the toothpaste doesn't fly everywhere?
> Bobbie
>
> "You must fail in order to succeed"
>

[QUAD-L] testing

[diannal767]

I use AOL so get kicked off all the time.

[QUAD-L] testing

[diannal767]

i received an email stating i was removed from list due to returned posts to 
list.

Re: Is this real? Thoughts? and Re: [QUAD-L] Pressure mapping

[diannal767]

let it be researched. perhaps it will save someone's great great grandchild!



-Original Message-
From: Lori Michaelson 
To: quad-list 
Sent: Tue, Nov 29, 2016 1:21 pm
Subject: Is this real? Thoughts? and Re: [QUAD-L] Pressure mapping



Please don't think of me as a bad person simply because I have paid attention 
and observed so many things about spinal cord injury research and breakthroughs 
and always have to question whether it is real or not. I think it is a little 
bit of both.


When Paul and Carolyn just posted about amazing breakthroughs... I'm sure there 
has been many of them  but with a catch. Just like the liberal media hide 
things from us because they are always on the liberal side and always have been.


Anyway, back when Glenn Henry made a post about pressure mapping I wrote the 
following (below) but then decided not to send it simply because I felt that 
everyone would think that I am just looking at things negatively and that, no 
matter what, we all have to hope for hope in the future and not give up the 
quest for the generation of cells for any of this to regain more movement.


Christopher Reeve could have done so much more but he was so gung ho and 
adamant that he was going to walk 5 years after his injury that he was getting 
desperate. After he was unable to walk after the first 5 years went by ... do 
any of you remember what I wrote many many years ago regarding what he probably 
did out of desperation? 


We were all "told" that he passed away from a bed sore or a UTI or a 
combination of things when the hospital. If he was so bad off... what was his 
wife doing in California having a good time I had to ask myself. But even more 
importantly he looked like Christopher Reeve practically one day and the next 
time we saw him he looked like a 90-year-old man. That speaks volumes to me 
that he was letting the so-called "experts" experiment on him and it cost him 
losing his hair and probably his life with that research that surely did not 
get him to walk but into a grave. So many of us on the quad list have been 
injured 20, 30, 40 or more years and still do not look like 90-year-old men or 
women. We all might look a little bit older like everyone else does but surely 
not like what Christopher Reeve did practically overnight.


I also agree with Steve on this (pressure mapping). Ironically, I never had any 
problems with "pressure" believe it or not. 


"Shearing" became my nemesis after having my Stage III wound over my left 
iscial tuberocity in 2010. Which brought me, for the first time, to use a Roho 
cushion. So, it took 30 years for me to have any real issues with my buttocks 
as, before that, I did not sit on anything but a bucket seat and a super 
comfortable one using my Fortress Scientific wheelchair which, of course, they 
do not make any more. It had a super comfortable air filled back and the same 
part of the bucket seat I sat on which was all air for about 4 inches.


When I got my first Permobil (Chairman) I sat on a blowup waffle like cushion 
which was certainly no "special" cushion. There was a one time event  in 2004 
which gave me a Stage III wound that lasted only 6 months and then I was in tip 
top shape. But both Permobil chairs (the one I have now what is September 2011) 
came with metal bottoms (UNLIKE my Fortress Scientific) and that was the 
beginning of having any type of wound issues.


Call me a cynic (Cynicism is an unpleasant way of saying the truth) but it 
wouldn't surprise me if all of this "SCI research" for a cure or to repair 
severed spinal cord or nerves, etc." is not doing much more than bringing in 
trillions of dollars that benefit a lot of able-bodied people and corporations 
and therefore making a lot of people very very very wealthy.


With the cost of Power Rehab Chairs now costing as much as a car, the ongoing 
maintenance of each and every chair, the adaptations to them, "special made" 
cushions and with hundreds of different types of them, and so many other 
examples with only, overall, ending up with very very little progress toward a 
cure.


Then all of the money corporations make from us whether it be from 
suppositories, wound care products, rotating air mattresses or mattresses 
specially made for those with an SCI, hospital beds, and the list is just 
endless.


If you think of the extreme debt the United States of America is in, do the 
math and statistics of money being made off of people with Cancer & the money 
being made off of people with SCI individuals brings more money then we could 
ever explain in words. This includes:


* Personnel - Neurologists and Neurosurgeons, pain medication for SCIs, wound 
care for individuals with SCIs, etc. etc. etc.
* Supplies (everything from suppositories to tracheotomys and ventilators and 
everything in between)
* Medications for spasticity, bladder spasms, etc. etc. etc.
* Institutions 
* The Christopher Reeve 

[QUAD-L] Jerry Moore

[diannal767]

Has anyone heard from Jerry? Last I knew he was in a nursing home in Ohio. He 
also was on FB. After his mother died, it hit him hard. She took care of him 
until her health failed. After that he didn't post much.
Dianna

Re: [QUAD-L] Cushion question

[diannal767]

I s agree as well. I have mantle cell lymphoma, a cousin to leukemia. 
Diagnosed in 2013. By all studies, it could return in 3 yrs in which chemo will 
have no effect. There has been a pill that came out in 2014. If my body can't 
tolerate it, I'm done! So there comes a time in which we have to look at the 
quality of life!!!
Dianna (still dealing with a stage 4 wound since last summer)


I sooo agree with you Larry
Bobbie

Smile Everyday

On Jul 31, 2016, at 4:32 PM, Larry Willis  wrote:



I know relieving all pressure is absolutely essential to healing a pressure 
sore. But I simply refuse to stay in bed for six months. I know it sounds awful 
negative, but I refuse to waste six months of life on a miserable bed stay. 
I'll soon be 65, and will be 45 years post next Sunday, Aug 7. Like Joan, I 
choose to roll the dice. Whatever the outcome, I'll live with it.or die 
with it. Regardless, I'll face this world with my ass in the saddle. Larry 
Willis






-Original Message-
From: Bobbie Humphreys 
To: Larry Willis 
Cc: quad-list 
Sent: Sun, Jul 31, 2016 8:33 pm
Subject: Re: [QUAD-L] Cushion question



I sooo agree with you Larry
Bobbie

Smile Everyday

On Jul 31, 2016, at 4:32 PM, Larry Willis  wrote:



I know relieving all pressure is absolutely essential to healing a pressure 
sore. But I simply refuse to stay in bed for six months. I know it sounds awful 
negative, but I refuse to waste six months of life on a miserable bed stay. 
I'll soon be 65, and will be 45 years post next Sunday, Aug 7. Like Joan, I 
choose to roll the dice. Whatever the outcome, I'll live with it.or die 
with it. Regardless, I'll face this world with my ass in the saddle. Larry 
Willis

Larry Willis
Retired and proud of it




Begin forwarded message:



From: Bobbie Humphreys 
Date: July 31, 2016 at 3:56:55 PM EDT
To: cviewe...@aol.com
Cc: lwillis82...@gmail.com, quad-list@eskimo.com
Subject: Re: [QUAD-L] Cushion question




I got a band new Hill Rom hospital bed AND a Hill Rom hi tec alternating 
pressure mattress, the VERY best they have just this year.
I've been having sores on my butt for 25 years or more.
I've been in bed since Christmas and my wound is healed ... almost.
But, I got 2 different sores since I've been in bed turning and on the supper 
duper mattress.
I'm so ready to just get up and live. But I'm talking about getting up 3 
days a week for just 7-8 hours per day.
Bobbie

Smile Everyday

On Jul 30, 2016, at 10:03 PM, cviewe...@aol.com wrote:



With pressure sores...you have to keep off it. Yes, stay in bed 24/7.  I have 
been there, done that. It took 6 months to clear.  I use a Roho and am pressure 
sore free now.
Have someone check your bottom often. I used to have to go to the wound center 
every week until it cleared.For 6 months the only time I was off my butt was 
the day I went to the wound center. Never want to do that again.   Rose
 

In a message dated 7/30/2016 9:17:58 P.M. Eastern Daylight Time, 
lwillis82...@gmail.com writes:
I have   had a pressure sore on my bottom for over ten years now. It refuses to 
heal. I   got it during a hospital stay for an infection. I got a roho shortly  
 thereafter. It healed other sores but not this one. I thought I would give   
this one a try.

-- Forwarded message --
From:   
Date: Saturday,   July 30, 2016
Subject: Re: [QUAD-L] Cushion question
To: lwillis82...@gmail.com


  
  
Is your current Roho not working? I have used a Roho for more than 30   years 
and would be afraid to go to something else and possibly get a pressure   sore. 
Rose
  
 
  
  
In a message dated 7/29/2016 9:42:50 P.M. Eastern Daylight Time, 
lwillis82...@gmail.com writes:
  

Hey guys. I am trying to get a new chair and cushion. My advisor wants me 
to get a new style cushion by Ride Designs. Any of you familiar with it? 
Take a look at ridedesigns.com and tell me what you think. I value your 
opinion. I currently use a roho. Thanks, Larry WILLIS

Larry Willis 
Retired and proud of it





Begin forwarded message:



  
Resent-From: quad-list@eskimo.com
From: Bobbie Humphreys   
Date: July 27,   2016 at 2:39:21 PM EDT
To: quad-list@eskimo.com
Subject: [QUAD-L]   Pens?



  
I wanted to ask what kind of pens dose everybody use to write   with?
I'm looking for a retractable pen that I don't need   to apply much or any  
 pressure.
Bobbie

Smile   Everyday

=

Re: [QUAD-L] everything is possible

[diannal767]

I use nystaintin cream for that. I didn't have the problem until chemo 
treatments. after it was under control, I use nystatin powder everyday to keep 
it at bay. you'll need a script.
dianna


I have been in bed for the last 3 weeks with a wound in an area that I have 
never had a wound before (I guess you would call it my groin area in between my 
upper left thigh and my upper left labia -- DEEP in the crease).  I wouldn't 
doubt it that it has all been from stress since physicians, nurses and home 
health care agencies have done nothing but hurt me and caused me irrecoverable 
problems that continue to this day. 




-Original Message-
From: Lori Michaelson 
To: Larry Willis ; quad-list 
Sent: Sun, Jul 31, 2016 5:14 pm
Subject: Re: [QUAD-L] everything is possible




I was just about to say the same thing as Larry. So I will just say ditto to 
Jim and Ismael even though some many of us are going through our own personal 
hell. I have been through the absolute worst circumstances I have ever been 
since my injury but the story is too long to tell and it continues every week 
but somehow find the strength to go on.


I have been in bed for the last 3 weeks with a wound in an area that I have 
never had a wound before (I guess you would call it my groin area in between my 
upper left thigh and my upper left labia -- DEEP in the crease).  I wouldn't 
doubt it that it has all been from stress since physicians, nurses and home 
health care agencies have done nothing but hurt me and caused me irrecoverable 
problems that continue to this day. 


It all began at the beginning of this year after being forced by my family to 
go out on my own with nowhere to go after losing my husband in June 2012, which 
almost killed me with that happening. My family didn't even think twice about 
considering putting me in a nursing home and that was not going to happen to me 
after living such an active life, having a wonderful United States Certified 
Support/Companion Dog who has been with me since my husband and I adopted her 
in November 2009 and has been with me through her daddy's death, my family 
abandoning me, and right to this day. She is the most intelligent, perceptive 
and intuitive dog I have ever had and never leaves my side.


Between 2009 and early 2012 I was, statistically speaking, in bed 99% of the 
time with a wound over my left ischial tuberousity (left butt bone) . That was 
also originally cost from two medical "professionals." With the latter word, 
used very very loosely. 


I don't know how I keep being the victim of people doing things to me but that 
can't be "proven" for one reason or another but I have been time and time and 
time again, which cost me my first 13 year relationship.


I had everything one day (with me and my husband and the wonderful life we were 
living and the wonderful person he was to be there for me whenever I needed him 
in any capacity), and it was all gone the next. That was when I first learned 
what stress can do. It was just 2 months or less after losing my husband and I 
had my first seizure, and I had never had a seizure before in my entire life. I 
thought it was a one time thing until they continued after a full day of stress 
or pain or exhaustion or all three of them together. It took me a good year and 
a half to find out that they are not your typical seizure but something called 
"Psychogenic Non-Epileptic Seizures."  Just do a Google search on those words 
to see a quick explanation of what they are.


I sometimes get weary of the platitudes that ~life is so fragile~, but it is.


Best to you all!
~Lori


PS -- I would still like to start a thread for those people I can't remember 
where they are living, how old they are, how many years post they are, and 
they're living circumstances or primary caregivers. However, I know this is a 
public forum, whereby anybody out there can view the archives . So I understand 
why people are hesitant to do that also.



On Sun, Jul 31, 2016 at 4:39 PM, Larry Willis  wrote:


Ismael, you make me ashamed of my puny complaining. You and Jim Lubin are two 
of the most remarkable men I have ever met. I wish I had half your strength and 
courage. You deserve a special place in heaven, my friend. God bless the both 
of you. Larry Willis 

Larry Willis
Retired and proud of it




Begin forwarded message:



Resent-From: quad-list@eskimo.com
From: "Ismael Cavazos" 
Date: July 31, 2016 at 2:59:36 PM EDT
To: "Blue" 
Subject: [QUAD-L] everything is possible




Hello my friends today is 15 years that I've been out of the nursing home I 
don't know if you guys ever been in a nursing home but a nursing home is not a 
good place for nobody most of my life I was in the nursing home I was 18 years 
old when I went to a nursing home 36 years that I've been a quadriplegic and 
all my life I've 

Re: [QUAD-L] Cushion question

[diannal767]

I sit in the foam/air combo which keeps me more stable. the air is only in the 
back. this cushion is meant for people with or has had skin breakdown. I sat in 
a gel for 25 yrs with no problems and like you lori, was up for the whole day 
and yes, I had no problems until I got my new quatrum. the rep did not adjust 
the cushion flush to the back which allowed my cheeks to hang over the edge of 
the back of the cushion. I drive and yes I sit much higher. it's strange but I 
got use to it. my head is very close to the door post. i'm 5'2 with short arms 
and sit close to the steering wheel. had to be that way so I could reach 
everything! Happy Birthday Lori!!!




I would love to sit more "stable" as well as keeping my ischial tuberousities 
safe from further breakdown... especially having old battle wound on both of 
them. The Ride Design cushions seem to offer that. Along with breathing room 
down there.





-Original Message-
From: Lori Michaelson 
To: quad-list 
Sent: Sat, Jul 30, 2016 3:30 pm
Subject: Re: [QUAD-L] Cushion question




I have never had a problem with "pressure" no matter what Cushion I have used. 
Further, I never needed a "special" cushion until all of these rehab chairs 
that began to come out around 1999 came with seat plates rather than bucket 
seats. I digress, when I came home from rehab in 1980 in first Wheelchair 
[Everest and Jennings] it had a seat plate I sat up on a foam/gel cushion 
whereby I got a little sore on my tailbone.


I did not have any problem with any wounds until they came out with these 
latest chairs. After my Everest and Jennings [of which I sat in for only 4 or 5 
years) I had a wheelchair called a Fortress Scientific that I sat in for 14 
years, 14 hours a day without shifting my weight, and it was just a very 
comfortable bucket seat with nothing underneath my butt except for a thick area 
of air which was below the seat part of the bucket seat. I never had one... 
single... skin breakdown over those 14 years.


However, it is just another way for the people who come out with wheelchairs 
and cushions and all of that stuff to keep the money rolling in. Sorry to sound 
so cynical, but it is true.


I was just encouraged [by someone on this list fairly recently] to try it since 
the Roho cushions have always had me weeble wobbling all over the place. I 
began using the Roho cushions after having a Stage III wound. I have not been 
able to try another kind [like the ride design cushions] but being held more 
stable and sitting lower to the ground. Instead of buying high-profile Roho 
question that always has to be "maintained" when I now do not have someone to 
maintain it. Except for faithful Tom Borcherding... the president of Roho. 
Which I can't thank him enough for!


For the longest time I have been wanting to ask people on the list how they are 
able to see out of there van windows??? 


This is simply because ever since I have gotten one of the latest rehab power 
chairs (whether it be Permobil or Quantum which basically all sit at a high 
level because of the tilt features) and then have had to put a Roho Cushion on 
top of such a high sitting chair... I sit so high in my conversion vehicles 
(even with a 10 inch drop floor!) that I can't see anything except the road in 
front of me. I can't even see road signs. 


I am the passenger and no matter who my driver is... my chin is level with 
their forehead! 


I would love to sit more "stable" as well as keeping my ischial tuberousities 
safe from further breakdown... especially having old battle wound on both of 
them. The Ride Design cushions seem to offer that. Along with breathing room 
down there.


~Lori 





On Fri, Jul 29, 2016 at 9:42 PM, Larry Willis  wrote:


Hey guys. I am trying to get a new chair and cushion. My advisor wants me to 
get a new style cushion by Ride Designs. Any of you familiar with it? Take a 
look at ridedesigns.com and tell me what you think. I value your opinion. I 
currently use a roho. Thanks, Larry WILLIS

Larry Willis
Retired and proud of it




Begin forwarded message:



Resent-From: quad-list@eskimo.com
From: Bobbie Humphreys 
Date: July 27, 2016 at 2:39:21 PM EDT
To: quad-list@eskimo.com
Subject: [QUAD-L] Pens?



I wanted to ask what kind of pens dose everybody use to write with?
I'm looking for a retractable pen that I don't need to apply much or any 
pressure.
Bobbie

Smile Everyday








-- 


"Petting, scratching and cuddling a dog could be soothing to the mind and heart 
and deep meditation and almost as good for the soul as prayer." ~Dean Koontz

Re: [QUAD-L] Cushion question

[diannal767]

I currently have a stage 4 wound and NSN (national seating & mobility) put me 
on a Roho Hybrid Elite which is foam/air combo but they suggested otherwise, 
try the Ride Designs by Java. So it must be a good cushion.
Dianna


I don't know much about any other seating other than ROHOI have been on 
them for 19 years now, when there has ever been a problem the team at Roho work 
with me to try and get it right.  Dan H**
 



 
 
 
 On Saturday, July 30, 2016 11:04 AM, greg  wrote:

  

 

I have always gone back to Roho after trying a new cushion. I'm sure there will 
be a better one sometime. I like the contour part. But, I worry every butt is a 
different shape and size. If it curves where you don't, could cause an issue. 
though if it fits good, might as well try it.
Greg




> Hey guys. I am trying to get a new chair and cushion. My advisor
> wants me to get a new style cushion by Ride Designs. Any of you
> familiar with it? Take a look at ridedesigns.com and tell me what
> you think. I value your opinion. I currently use a roho. Thanks,
> Larry WILLIS
>
> Larry WillisRetired and proud of it








-Original Message-
From: Danny Hearn 
To: greg ; quad-list 
Sent: Sat, Jul 30, 2016 12:39 pm
Subject: Re: [QUAD-L] Cushion question



I don't know much about any other seating other than ROHOI have been on 
them for 19 years now, when there has ever been a problem the team at Roho work 
with me to try and get it right.  Dan H**
 



 
 
 
 On Saturday, July 30, 2016 11:04 AM, greg  wrote:

  

 

I have always gone back to Roho after trying a new cushion. I'm sure there will 
be a better one sometime. I like the contour part. But, I worry every butt is a 
different shape and size. If it curves where you don't, could cause an issue. 
though if it fits good, might as well try it.
Greg




> Hey guys. I am trying to get a new chair and cushion. My advisor
> wants me to get a new style cushion by Ride Designs. Any of you
> familiar with it? Take a look at ridedesigns.com and tell me what
> you think. I value your opinion. I currently use a roho. Thanks,
> Larry WILLIS
>
> Larry WillisRetired and proud of it
>
>
> Begin forwarded message:
>
>
>> Resent-From: quad-list@eskimo.com
>> From: Bobbie Humphreys  Date: July
>> 27, 2016 at 2:39:21 PM EDT To: quad-list@eskimo.com Subject:
>> [QUAD-L] Pens?
>>
>>
>> I wanted to ask what kind of pens dose everybody use to write
>> with? I'm looking for a retractable pen that I don't need to
>> apply much or any pressure. Bobbie
>>
>> Smile Everyday




  
 
  

Re: [QUAD-L] Going out

[diannal767]

I couldn't get that game to do anything either. my sister-in-law complains ALL 
the time. we went to a very fancy place downtown Cleveland a few years back and 
one of my brothers was so humiliated, he said he'd go with her again. it was 
over a discount she didn't get credit for. the whole family went because my 
sister was home from California. just one of those places you go to and you 
know it's going to be expensive, and she held up everyone paying their bill 
over a few bucks!
hey bobbie, I took some videos of metro park for you. I couldn't send them, 
said the file was to big. i'll try next time. I took several different ones so 
they would be shorto'well
diane


On Wed, Jul 13, 2016 at 6:22 PM, Bobbie Humphreys  
wrote:

Pete & I went out to Applebee's for dinner.
We had to wait a long time for out meal (witch was terrible) so I grabbed a 
game that was sitting on the table.
I could not figure out how to play so I pushed it aside.

When we got the check Pete noticed we were charged $2 for playing the game at 
the table.
There was nothing on the screen that indicated that there would be a charge.

I've been to Red Robin and played a game easily and was not charged.

Has anyone ever come across this?

I wanted to talk to the manager but Pete dose not like to complain about 
anything.
Bobbie

Smile Everyday





-Original Message-
From: Lori Michaelson 
To: Don Price ; Bobbie Humphreys 
; quad-list 
Sent: Thu, Jul 14, 2016 9:42 pm
Subject: Re: [QUAD-L] Going out



​
I agree with Don 100%. Especially about a good manager compensating for the 
meal. My husband never put up with anything like that. In fact, if we started 
to get poor service and meals at a particular restaurant we just stopped going 
to that particular branch. 
Our favorite place to go was The Outback but the one closest to us was doing 
good, but after we had not been there for while (with my wound of the century) 
we had not so good of meals and service so we decided to go to another similar 
restaurant nearby. By not going back-- that speaks volumes in itself. They 
simply did not get our business anymore. 
When we got the good service at The Outback we were good tippers and they 
remembered that so when we came back they recognized us right away and this 
went on for years. And we were seated right away and treated very well. Also, 
we rarely had to wait long for a meal and if we did, we said something. 
Otherwise, we just each other's company and not playing games when enjoying any 
of our outings together. But that was just us and our preference of doing or 
not doing whatever went out and about together. The proverbial ~Different 
strokes for different folks~ :-)
~Lori



On Thu, Jul 14, 2016 at 7:10 PM, Don Price  wrote:


Bobbie,


You should contact the restaurant and let them know of your experience. If it 
happened to you it will happen to others. Any good business would want to know 
about issues that could be fixed. At the VERY LEAST they should credit the $2 
back to your account. A good manager would comp your whole meal.


Best of luck,
Don.



  
 
 
  
 From: Bobbie Humphreys 
 To: Jim Lubin  
Cc: quad-list@eskimo.com
 Sent: Thursday, July 14, 2016 3:26 PM
 Subject: Re: [QUAD-L] Going out
  

 



I've been in bed since December but get up once a week for Doctors 
appointments, then I take the opportunity to get a bite out.
Bobbie 

Smile Everyday


On Jul 14, 2016, at 5:11 PM, Jim Lubin  wrote:



Since I am in bed and don't go out, my mom and I have been treating ourselves 
to restaurant meal deliver via DoorDash.


Use my referral link and you get $7 off your first delivery. I get $5 off.


 http://drd.sh/NIMmCT/







On Wed, Jul 13, 2016 at 6:22 PM, Bobbie Humphreys  
wrote:

Pete & I went out to Applebee's for dinner.
We had to wait a long time for out meal (witch was terrible) so I grabbed a 
game that was sitting on the table.
I could not figure out how to play so I pushed it aside.

When we got the check Pete noticed we were charged $2 for playing the game at 
the table.
There was nothing on the screen that indicated that there would be a charge.

I've been to Red Robin and played a game easily and was not charged.

Has anyone ever come across this?

I wanted to talk to the manager but Pete dose not like to complain about 
anything.
Bobbie

Smile Everyday







 

 
  





-- 


"Petting, scratching and cuddling a dog could be soothing to the mind and heart 
and deep meditation and almost as good for the soul as prayer." ~Dean Koontz

Re: [QUAD-L] America Online

[diannal767]

YES, all the time, constantly needing to re-subscribe and mail I send to it, 
gets returned. I have other mail accts, just need to start using them I guess.
Dianna



-Original Message-
From: glenn henry 
To: quad-list 
Sent: Wed, Jul 13, 2016 7:17 pm
Subject: [QUAD-L] America Online



Hello,

Does anyone have trouble with America Online and being kicked off of the quad 
site?

I have been kicked off several times, have contacted AOL, but they never seem 
to get the issue resolved.

Any advice?

Glenn

Re: [QUAD-L] 50 years

[diannal767]

Your story is inspirational!! Congrats on surviving those 50 years! I'm a quad 
as a result of a boating accident. I went in to the cuddy to sleep and woke up 
as a quad. All above were fine. We hit a breakwall at night. It was a brand new 
boat without a spot light yet installed.The breakwall wasn't lit either. I 
think I was in the wrong place at the wrong time.
This being 26 years ago, boats still are still not being sold with spot lights. 
The breakwall is WELL lit now. I think my lawsuit and accident helped others 
from being hurt in the same way in that area, (well traveled/entrance to Lake 
Erie) due to the now lit breakwall.
 Maybe the lord used me for that purpose. 
My husband and attorney went to a boat show and was told the cuddy was 
completely safe while moving...well folks, it's not! it also is the crush zone. 
If you have loved ones whom own a pleasure boat, never let them down there 
while in motion. It could be something as simple as a sand bar! 
Dianna


The Lord always put  you in the right place at exactly the right 
time. In the  1970s and early 1980s our country had a gas crisis. 
One of  the things jumping in popularity was the citizens band  
radio. This was the start of my journey into the  
electronics field. The Lord guided me to treat my  customers with 
respect and honesty. I definitely followed  his lead. We migrated 
from consumer electronics into  business communications, then into 
the public service. In  1998, when we sold the business, we had 
serviced fire  equipment through our mail in division to 49
  
States.





-Original Message-
From: Bryce Willis 
To: quad-list 
Sent: Fri, Jul 8, 2016 10:44 pm
Subject: Fwd: [QUAD-L] 50 years



Keep on chooglin' Glenn! You really are an inspiration, my friend. Better not 
slow down though. Bobbie and I are right behind you at 45 years post!

Sent from my iPad

Begin forwarded message:



Resent-From: quad-list@eskimo.com
From: Bobbie Humphreys 
Date: July 8, 2016 at 6:34:00 PM EDT
To: Eric Olson 
Cc: quad-list@eskimo.com
Subject: Re: [QUAD-L] 50 years




We're all standing on your shoulders 
Thank you
Bobbie 

Smile Everyday

On Jul 8, 2016, at 2:14 PM, Eric Olson  wrote:



  
Nicely done.  What level are you?



On 7/8/2016 12:29 PM, gah17...@aol.com  wrote:


  
  
On Sunday, July 10, I  will have reached a milestone. I have not 
known many  people with severe spinal cord injuries reaching this   
   milestone. On July 10 it will be 50 years post spinal cord   
   injury. In the past, those on the world of  quadriplegics were not   
   expected to reach this milestone. In fact, in 1968 after 2  ½ 
years post injury, my parents made the decision to bring  me home 
from the Elizabethtown Cripple Children’s  Hospital.  The   
   head nurse took my father aside and gave him some advice.  Her advice, take 
him  home, buy him a television and wait for him to die. It 
 sounds cruel, but the thinking in the 1960s was  quadriplegics 
do not survive a long life.
  
 
  
There are several  reasons I have reached this milestone, the first 
is by the  grace of God and second is the Vietnam War. During the   
   Vietnam War the MASH units were advanced  resulting in 
many soldiers returning home severely wounded  with many spinal 
cord injuries and our government pushed  research on how to better 
their lives.
  
 
  
Throughout the years  after 1966, many trials, tragedies, blessings 
and lessons  were learned. The 2 ½ years I spent in Elizabethtown   
   Hospital helped prepare me for these 50 years. Being  
exposed to all kinds of children with illnesses, injuries  and 
birth defects helped prepare me for a life much  different than I 
would’ve ever dreamed.
  
 
  
Starting a small  business in the early 1970s seem to reinforce the 
fact  that with God’s help I could do anything. I believe that  
physical issues or injuries to a person when they are  
young gives them the stamina and drive to succeed.
  
 
  
I wanted to work in  electronics, but was encouraged by OVR (Office 
of  vocational rehabilitation) not to go into this field.  I always 
was  interested in electronics and enjoyed making things spark. 
 I told my OVR counselor, if you were not helping me to  
take a correspondence course, I 

Re: [QUAD-L] Lower extremity edema in feet and ankles

[diannal767]

always, more so in the summer. I found some foot jewelry online that gives the 
appearance of sandalsbetter than bare feet. now for the medical advice. my 
wound doctor had me approved for special compression pumps. I will have to 
research the name of these but an hour in the morning and night you zip them on 
your legs. from ankle to above the knee. it reduces by pumping air in and out. 
i'll get back with you.
dianna



-Original Message-
From: Lori Michaelson 
To: quad-list 
Sent: Sun, Apr 17, 2016 2:08 pm
Subject: [QUAD-L] Lower extremity edema in feet and ankles



I was wondering if any of you have had to deal with lower extremity edema 
whereby you can't even wear tennis shoes/sneakers or anything but sandals that 
stay open and there is only a Velcro strap that allows the top of the sandals 
to close or buckled straps to allow for the stretching/lower extremity edema in 
my feet?


This began with me probably 3-4 years after I began to work and was in the 
chair by 8 AM and did not lay down until 8 PM or 9 PM on weekdays.


But it has gotten much worse since then and then in 1998 I had to stop wearing 
shoes or tennis shoes/sneakers and resort to what I spoke about above.


The only thing that helps it is me laying flat with my feet straight up and 
down against a pillow whereby my lower extremities are equal to my heart. In 
other words, they go down overnight but not always.


Yes, I will wear compression stockings and did so before moving to Arizona in 
the summer of 2001. I wore Jobst stockings for the first couple of years after 
moving away from the humidity of the Northeast but I eventually did not need 
them. When I moved back to the Northeast to be with family after losing my 
husband my lower extremities became worse so I thought when I moved back here 
they would get better but nope!


Yes, I tilt back my chair several times a day because that is all I have time 
for and I am not up in my chair all that long anyway.


Now, I do not have any heart problems or anything. It is all because of gravity.


I very much wish I could go back to wearing sneakers but even with my 
compression stockings... my feet and ankles swell and I can't risk any skin 
breakdown.


Best,


~Lori
C4/5 complete quad, 36 1/2 years post
Tucson Arizona




-- 


"Petting, scratching and cuddling a dog could be soothing to the mind and heart 
and deep meditation and almost as good for the soul as prayer." ~Dean Koontz

Re: [QUAD-L] a question

[diannal767]

DaveOc once told us about "wheelchair want to be's" I quess they fake their 
injuries and used wheelchairs. they have a website but if you googled it, i'm 
sure you'll find it. I don't have the link. he posted it years ago.
dianna
wheelchair wanna be'ssomething to that sort.



-Original Message-
From: Robert Vogel 
To: Larry Willis 
Cc: quad-list 
Sent: Wed, Apr 6, 2016 1:59 pm
Subject: Re: [QUAD-L] a question


Hi Larry,


To answer your question, Yes.  A devotee is a person that gets sexually turned 
on by people with 
disabilities, wheelchair users, amputees etc.


Not sure about devotees interest in para’s vs. quads.


Bob V




On Apr 6, 2016, at 8:15 AM, Larry Willis  wrote:


Good question, Danny. Quad devotee? We are not talking fetish here, are we?

Sent from my iPad

Begin forwarded message:



Resent-From: quad-list@eskimo.com
From: "Danny Espinoza" 
Date: April 6, 2016 at 9:43:35 AM EDT
To: "'john owens'" , "'Quad-list Post'" 

Subject: RE: [QUAD-L] a question
Reply-To: 




Quadriplegic devotee? What’s that?
-Danny
 

From: john owens [mailto:jrowen...@yahoo.com] 
Sent: Wednesday, April 6, 2016 5:52 AM
To: Quad-list Post 
Subject: [QUAD-L] a question

 

  

Are there any quadriplegic devotees on here?

[QUAD-L] foleys

[diannal767]

i'm going to a urologist in april to discuss getting a suprapubic foley. I've 
been a quad for 25 yrs. can I get some feedback on pros and cons before I go?
dianna

Re: [QUAD-L] Protein

[diannal767]

Prostat is what the nurse practitioner put me on. Becareful with many of them 
such as Boost will cause weight gain. They had me on Vitamin K and D as well. 
When I got home I just bought a womans mult-vitamin. 


-Original Message-
From: Jim Lubin 
To: Gmail 
Cc: quad-list 
Sent: Thu, Jan 28, 2016 10:05 pm
Subject: Re: [QUAD-L] Protein



My wounds have healed but I have still been drinking a protein drink daily. 
This is what I have been getting
http://www.costco.com/Premier-Protein%C2%AE-Chocolate-Shakes-18-11oz-Shakes.product.100101297.html



I have been taking 3000mg of vitamin C daily (1000mg x3 daily) for at least the 
past 15 years, at my doctor's recommendation. 



On Thu, Jan 28, 2016 at 6:01 PM, Gmail  wrote:

What do you guys eat for protein when you have a wound?

I have a stage 3 between my A-hole and  vagina ... strange place. On me it's 
very bony.

Just got back from the wound center. My Doc wants me on vitamin C and zinc but 
I don't know how many mgs.
How many have you guys taken?
Bobbie

Smile Everyday

Re: [QUAD-L] My meds

[diannal767]

it's helped many in my family. especially with meds they can now afford, 
otherwise did without.



-Original Message-
From: wheelchair 
To: gah17582 ; quad-list 
Sent: Mon, Jan 18, 2016 2:30 pm
Subject: Re: [QUAD-L] My meds



Insurance can set the prices for everything and that is sad.  Its not OBama, 
Hillary or Bernie fault.   It is the fault of the insurance industry. Have you 
considered going directly to the manufacturer of the drugs for no pay relief?
 
I wish you the best.
Best Wishes
 

In a message dated 1/18/2016 1:20:30 P.M. Central Standard Time, 
gah17...@gmail.com writes:
  
  
Wow!

I'm a fan of Obama care. To all those people that thought   Obama care was 
going to fix the world and make everything affordable and   better for our 
world: Amishit!
  
 
  
Did anybody get any medications in 2016? I used a cream for pressure   sores, 
Xenaderm, and a powder medication Prevalite. I also use Ditropan and a   dozen 
other medications including Valium for spasms.

Well, thanks to   our illustrious leader Xeanderm went from $14 to$75, the 
Prevalite has   gone from $18 all the way up to $84 and my Ditropan
  
has increased from eight dollars to $14. Who knows what the other   medications 
will be.

If you hear of someone declaring war against the   United States, it will be 
me.  They can defeat me, then they have to   rebuild my world. When they 
rebuild my world, I will be the dictator, I can   keep all the oil that I pump, 
I can say whatever I want to say, and if   somebody else says something that is 
offensive to me like crippled, I can   apply for government assistance.

Where that hell has common sense   gone?

Oh yeah, I forgot to mention, I'm from Lancaster County   Pennsylvania, Amish 
country and we call it plain shit.
  
 
  
Goodbye and welcome to the world of the Liberal.

Re: [QUAD-L] New wound

[diannal767]

forgot to mention, they were using dankins solution to pack my wound and 
anacept. both fought infection and smelled like bleach. the anacept was used 
because my body couldn't tolerate the dankns very expensive and not covered by 
medicaid.
dianna



-Original Message-
From: Quad Dude <thequadd...@gmail.com>
To: diannal767 <diannal...@aol.com>
Cc: Quad-list@eskimo.com <quad-list@eskimo.com>
Sent: Fri, Jan 8, 2016 12:11 pm
Subject: Re: [QUAD-L] New wound



My wound is only stage 2 at worst. I think wound VACs are used on wounds that 
are at least stage 3 or worse. Even though my wound is only stage 2, it just 
won't completely heal. I have discussed the possibility of surgery, i.e. skin 
flap, to repair the affected area, but he thinks any risk of the surgery not 
healing properly outweighs just living with the problem I have now.


It gets so old staying out of my chair for extended days at a time, but staying 
in it long-term definitely makes matters worse.


Steve - C4, 27 years



On Fri, Jan 8, 2016 at 11:55 AM,  <diannal...@aol.com> wrote:

try a wound vac yet?




-Original Message-
From: Quad Dude <thequadd...@gmail.com>
To: Gmail <bobbiehumphre...@gmail.com>
Cc: Quad-list@eskimo.com <quad-list@eskimo.com>
Sent: Fri, Jan 8, 2016 10:08 am
Subject: Re: [QUAD-L] New wound



Bobbie,


My wound Dr. has been treating my wound with Aquacel AG for more than a year 
now. I wish I could say it was the magic bullet that worked for me, but I can't 
and it appears my wound is not nearly as deep as yours. In fact, he just 
recently switched me to a different type of bandage called Endoform dermal 
template which is supposed to help build a framework for new skin to heal the 
wound. So far, it hasn't done much better. Keep in mind that this is in spite 
of spending lots of time out of my chair and doing frequent pressure relief 
when I am in the chair. It's very frustrating…


Steve - C4, 27 years



On Thu, Jan 7, 2016 at 10:19 PM, Gmail <bobbiehumphre...@gmail.com> wrote:

I got a new wound, over night.
Bamb! Just like that.
It's the size of a nickel and the depth in a female thumb deep.

My wound Doc is packing it with Aquacel AG
Has anybody ever used this stuff?

It has silver in it. It's about 1/4" wide and comes in a roll and you cut as 
much as you need.

I found spray normal saline to clean the wound.

I'm going to get a alternating pressure mattress topper for my bed. I want 4" 
or more.
Anybody know of a good one?

Help! I need you guys on this one.
Bobbie

Smile Everyday

Re: [QUAD-L] New wound

[diannal767]

i had/have a stage 4 since aug. was hooked to the vac. it started as small as 
the size of a pencil.got infected, went for surgery to have the wound cleaned 
out, came home with a crater, 4 in by 4 inches, 3/4 in deep. vac didn't help, 
got a bone infection. went back in to surgery the 23rd for plastic surgery, 
bone cut out. came out ofsurgery with skin flap and 40 staples up to my knee on 
the back of my leg. staples and stitches are coming out wednesday...6 weeks 
bedrest. then hopefully all this will be over. before surgery they also 
suggested  oxygen chamber treatments. i think that may help with small wounds. 
i was exhausted trying to get it healed, the spongy dead piece of bone had to 
come out anyway, so they closed it.
dianna


My wound is only stage 2 at worst. I think wound VACs are used on wounds that 
are at least stage 3 or worse. Even though my wound is only stage 2, it just 
won't completely heal. I have discussed the possibility of surgery, i.e. skin 
flap, to repair the affected area, but he thinks any risk of the surgery not 
healing properly outweighs just living with the problem I have now.


It gets so old staying out of my chair for extended days at a time, but staying 
in it long-term definitely makes matters worse.


Steve - C4, 27 years



On Fri, Jan 8, 2016 at 11:55 AM,  <diannal...@aol.com> wrote:

try a wound vac yet?






-Original Message-
From: Quad Dude <thequadd...@gmail.com>
To: diannal767 <diannal...@aol.com>
Cc: Quad-list@eskimo.com <quad-list@eskimo.com>
Sent: Fri, Jan 8, 2016 12:11 pm
Subject: Re: [QUAD-L] New wound



My wound is only stage 2 at worst. I think wound VACs are used on wounds that 
are at least stage 3 or worse. Even though my wound is only stage 2, it just 
won't completely heal. I have discussed the possibility of surgery, i.e. skin 
flap, to repair the affected area, but he thinks any risk of the surgery not 
healing properly outweighs just living with the problem I have now.


It gets so old staying out of my chair for extended days at a time, but staying 
in it long-term definitely makes matters worse.


Steve - C4, 27 years



On Fri, Jan 8, 2016 at 11:55 AM,  <diannal...@aol.com> wrote:

try a wound vac yet?




-Original Message-
From: Quad Dude <thequadd...@gmail.com>
To: Gmail <bobbiehumphre...@gmail.com>
Cc: Quad-list@eskimo.com <quad-list@eskimo.com>
Sent: Fri, Jan 8, 2016 10:08 am
Subject: Re: [QUAD-L] New wound



Bobbie,


My wound Dr. has been treating my wound with Aquacel AG for more than a year 
now. I wish I could say it was the magic bullet that worked for me, but I can't 
and it appears my wound is not nearly as deep as yours. In fact, he just 
recently switched me to a different type of bandage called Endoform dermal 
template which is supposed to help build a framework for new skin to heal the 
wound. So far, it hasn't done much better. Keep in mind that this is in spite 
of spending lots of time out of my chair and doing frequent pressure relief 
when I am in the chair. It's very frustrating…


Steve - C4, 27 years



On Thu, Jan 7, 2016 at 10:19 PM, Gmail <bobbiehumphre...@gmail.com> wrote:

I got a new wound, over night.
Bamb! Just like that.
It's the size of a nickel and the depth in a female thumb deep.

My wound Doc is packing it with Aquacel AG
Has anybody ever used this stuff?

It has silver in it. It's about 1/4" wide and comes in a roll and you cut as 
much as you need.

I found spray normal saline to clean the wound.

I'm going to get a alternating pressure mattress topper for my bed. I want 4" 
or more.
Anybody know of a good one?

Help! I need you guys on this one.
Bobbie

Smile Everyday

Re: [QUAD-L] New wound

[diannal767]

healing. going home thursday


No, they didn't put me on one.
Bobbie 
How are you doing?





-Original Message-
From: Gmail <bobbiehumphre...@gmail.com>
To: diannal767 <diannal...@aol.com>
Sent: Fri, Jan 8, 2016 3:28 pm
Subject: Re: [QUAD-L] New wound



No, they didn't put me on one.
Bobbie 
How are you doing?


Smile Everyday

On Jan 8, 2016, at 11:55 AM, diannal...@aol.com wrote:



try a wound vac yet?



-Original Message-
From: Quad Dude <thequadd...@gmail.com>
To: Gmail <bobbiehumphre...@gmail.com>
Cc: Quad-list@eskimo.com <quad-list@eskimo.com>
Sent: Fri, Jan 8, 2016 10:08 am
Subject: Re: [QUAD-L] New wound



Bobbie,


My wound Dr. has been treating my wound with Aquacel AG for more than a year 
now. I wish I could say it was the magic bullet that worked for me, but I can't 
and it appears my wound is not nearly as deep as yours. In fact, he just 
recently switched me to a different type of bandage called Endoform dermal 
template which is supposed to help build a framework for new skin to heal the 
wound. So far, it hasn't done much better. Keep in mind that this is in spite 
of spending lots of time out of my chair and doing frequent pressure relief 
when I am in the chair. It's very frustrating…


Steve - C4, 27 years



On Thu, Jan 7, 2016 at 10:19 PM, Gmail <bobbiehumphre...@gmail.com> wrote:

I got a new wound, over night.
Bamb! Just like that.
It's the size of a nickel and the depth in a female thumb deep.

My wound Doc is packing it with Aquacel AG
Has anybody ever used this stuff?

It has silver in it. It's about 1/4" wide and comes in a roll and you cut as 
much as you need.

I found spray normal saline to clean the wound.

I'm going to get a alternating pressure mattress topper for my bed. I want 4" 
or more.
Anybody know of a good one?

Help! I need you guys on this one.
Bobbie

Smile Everyday

Re: [QUAD-L] New wound

[diannal767]

it isn't proven but is covered by medicaid. i just didn't want to invest time.


I asked about the oxygen chamber.
They said "...it hasn't been proven."


I think my insurance won't pay.


Bobbie 





-Original Message-
From: Gmail <bobbiehumphre...@gmail.com>
To: diannal767 <diannal...@aol.com>
Sent: Fri, Jan 8, 2016 3:32 pm
Subject: Re: [QUAD-L] New wound



I asked about the oxygen chamber.
They said "...it hasn't been proven."


I think my insurance won't pay.


Bobbie 

Smile Everyday

On Jan 8, 2016, at 1:33 PM, diannal...@aol.com wrote:



i had/have a stage 4 since aug. was hooked to the vac. it started as small as 
the size of a pencil.got infected, went for surgery to have the wound cleaned 
out, came home with a crater, 4 in by 4 inches, 3/4 in deep. vac didn't help, 
got a bone infection. went back in to surgery the 23rd for plastic surgery, 
bone cut out. came out ofsurgery with skin flap and 40 staples up to my knee on 
the back of my leg. staples and stitches are coming out wednesday...6 weeks 
bedrest. then hopefully all this will be over. before surgery they also 
suggested  oxygen chamber treatments. i think that may help with small wounds. 
i was exhausted trying to get it healed, the spongy dead piece of bone had to 
come out anyway, so they closed it.
dianna


My wound is only stage 2 at worst. I think wound VACs are used on wounds that 
are at least stage 3 or worse. Even though my wound is only stage 2, it just 
won't completely heal. I have discussed the possibility of surgery, i.e. skin 
flap, to repair the affected area, but he thinks any risk of the surgery not 
healing properly outweighs just living with the problem I have now.


It gets so old staying out of my chair for extended days at a time, but staying 
in it long-term definitely makes matters worse.


Steve - C4, 27 years



On Fri, Jan 8, 2016 at 11:55 AM,  <diannal...@aol.com> wrote:

try a wound vac yet?






-Original Message-
From: Quad Dude <thequadd...@gmail.com>
To: diannal767 <diannal...@aol.com>
Cc: Quad-list@eskimo.com <quad-list@eskimo.com>
Sent: Fri, Jan 8, 2016 12:11 pm
Subject: Re: [QUAD-L] New wound



My wound is only stage 2 at worst. I think wound VACs are used on wounds that 
are at least stage 3 or worse. Even though my wound is only stage 2, it just 
won't completely heal. I have discussed the possibility of surgery, i.e. skin 
flap, to repair the affected area, but he thinks any risk of the surgery not 
healing properly outweighs just living with the problem I have now.


It gets so old staying out of my chair for extended days at a time, but staying 
in it long-term definitely makes matters worse.


Steve - C4, 27 years



On Fri, Jan 8, 2016 at 11:55 AM,  <diannal...@aol.com> wrote:

try a wound vac yet?




-Original Message-
From: Quad Dude <thequadd...@gmail.com>
To: Gmail <bobbiehumphre...@gmail.com>
Cc: Quad-list@eskimo.com <quad-list@eskimo.com>
Sent: Fri, Jan 8, 2016 10:08 am
Subject: Re: [QUAD-L] New wound



Bobbie,


My wound Dr. has been treating my wound with Aquacel AG for more than a year 
now. I wish I could say it was the magic bullet that worked for me, but I can't 
and it appears my wound is not nearly as deep as yours. In fact, he just 
recently switched me to a different type of bandage called Endoform dermal 
template which is supposed to help build a framework for new skin to heal the 
wound. So far, it hasn't done much better. Keep in mind that this is in spite 
of spending lots of time out of my chair and doing frequent pressure relief 
when I am in the chair. It's very frustrating…


Steve - C4, 27 years



On Thu, Jan 7, 2016 at 10:19 PM, Gmail <bobbiehumphre...@gmail.com> wrote:

I got a new wound, over night.
Bamb! Just like that.
It's the size of a nickel and the depth in a female thumb deep.

My wound Doc is packing it with Aquacel AG
Has anybody ever used this stuff?

It has silver in it. It's about 1/4" wide and comes in a roll and you cut as 
much as you need.

I found spray normal saline to clean the wound.

I'm going to get a alternating pressure mattress topper for my bed. I want 4" 
or more.
Anybody know of a good one?

Help! I need you guys on this one.
Bobbie

Smile Everyday

Re: [QUAD-L] New wound

[diannal767]

it is the anacet not covered. 75 bucks per tube. don't know ounces...not home 
yet.

Here's what I know about treating small wounds. Start by treating with Dakin's 
solution, you can make it yourself. It consists of 21 parts sterile water one 
part Clorox bleach and a pinch of baking soda. This is much cheaper than buying 
it and it is the actual solution. Since you already have aQUACEL, be sure that 
they just lay it in the world and not pack the wound. It should be very fluffy 
and not tightly packed. Over packing wounds delays healing and often causes 
more damage. Cover the wound and try to stay off it as much as possible.


True Dakin's solution is 7 parts water to one part bleach with a pinch of 
baking soda. This is often too strong to be used at home. Medicaid won't cover 
it because it is easy to make.
Best Wishes, 
John s. 





-Original Message-
From: alcibiates2 <alcibiat...@yahoo.com>
To: diannal767 <diannal...@aol.com>; thequaddude <thequadd...@gmail.com>; 
quad-list <quad-list@eskimo.com>
Sent: Fri, Jan 8, 2016 2:09 pm
Subject: Re: [QUAD-L] New wound


Here's what I know about treating small wounds. Start by treating with Dakin's 
solution, you can make it yourself. It consists of 21 parts sterile water one 
part Clorox bleach and a pinch of baking soda. This is much cheaper than buying 
it and it is the actual solution. Since you already have aQUACEL, be sure that 
they just lay it in the world and not pack the wound. It should be very fluffy 
and not tightly packed. Over packing wounds delays healing and often causes 
more damage. Cover the wound and try to stay off it as much as possible.


True Dakin's solution is 7 parts water to one part bleach with a pinch of 
baking soda. This is often too strong to be used at home. Medicaid won't cover 
it because it is easy to make.
Best Wishes, 
John s. 


 Original message 
From: diannal...@aol.com 
Date: 01/08/2016  1:45 PM  (GMT-05:00) 
To: thequadd...@gmail.com, quad-list@eskimo.com 
Subject: Re: [QUAD-L] New wound 

forgot to mention, they were using dankins solution to pack my wound and 
anacept. both fought infection and smelled like bleach. the anacept was used 
because my body couldn't tolerate the dankns very expensive and not covered by 
medicaid.
dianna



-Original Message-
From: Quad Dude <thequadd...@gmail.com>
To: diannal767 <diannal...@aol.com>
Cc: Quad-list@eskimo.com <quad-list@eskimo.com>
Sent: Fri, Jan 8, 2016 12:11 pm
Subject: Re: [QUAD-L] New wound



My wound is only stage 2 at worst. I think wound VACs are used on wounds that 
are at least stage 3 or worse. Even though my wound is only stage 2, it just 
won't completely heal. I have discussed the possibility of surgery, i.e. skin 
flap, to repair the affected area, but he thinks any risk of the surgery not 
healing properly outweighs just living with the problem I have now.


It gets so old staying out of my chair for extended days at a time, but staying 
in it long-term definitely makes matters worse.


Steve - C4, 27 years



On Fri, Jan 8, 2016 at 11:55 AM,  <diannal...@aol.com> wrote:

try a wound vac yet?




-Original Message-
From: Quad Dude <thequadd...@gmail.com>
To: Gmail <bobbiehumphre...@gmail.com>
Cc: Quad-list@eskimo.com <quad-list@eskimo.com>
Sent: Fri, Jan 8, 2016 10:08 am
Subject: Re: [QUAD-L] New wound



Bobbie,


My wound Dr. has been treating my wound with Aquacel AG for more than a year 
now. I wish I could say it was the magic bullet that worked for me, but I can't 
and it appears my wound is not nearly as deep as yours. In fact, he just 
recently switched me to a different type of bandage called Endoform dermal 
template which is supposed to help build a framework for new skin to heal the 
wound. So far, it hasn't done much better. Keep in mind that this is in spite 
of spending lots of time out of my chair and doing frequent pressure relief 
when I am in the chair. It's very frustrating…


Steve - C4, 27 years



On Thu, Jan 7, 2016 at 10:19 PM, Gmail <bobbiehumphre...@gmail.com> wrote:

I got a new wound, over night.
Bamb! Just like that.
It's the size of a nickel and the depth in a female thumb deep.

My wound Doc is packing it with Aquacel AG
Has anybody ever used this stuff?

It has silver in it. It's about 1/4" wide and comes in a roll and you cut as 
much as you need.

I found spray normal saline to clean the wound.

I'm going to get a alternating pressure mattress topper for my bed. I want 4" 
or more.
Anybody know of a good one?

Help! I need you guys on this one.
Bobbie

Smile Everyday

Re: [QUAD-L] New wound

[diannal767]

try a wound vac yet?



-Original Message-
From: Quad Dude 
To: Gmail 
Cc: Quad-list@eskimo.com 
Sent: Fri, Jan 8, 2016 10:08 am
Subject: Re: [QUAD-L] New wound



Bobbie,


My wound Dr. has been treating my wound with Aquacel AG for more than a year 
now. I wish I could say it was the magic bullet that worked for me, but I can't 
and it appears my wound is not nearly as deep as yours. In fact, he just 
recently switched me to a different type of bandage called Endoform dermal 
template which is supposed to help build a framework for new skin to heal the 
wound. So far, it hasn't done much better. Keep in mind that this is in spite 
of spending lots of time out of my chair and doing frequent pressure relief 
when I am in the chair. It's very frustrating…


Steve - C4, 27 years



On Thu, Jan 7, 2016 at 10:19 PM, Gmail  wrote:

I got a new wound, over night.
Bamb! Just like that.
It's the size of a nickel and the depth in a female thumb deep.

My wound Doc is packing it with Aquacel AG
Has anybody ever used this stuff?

It has silver in it. It's about 1/4" wide and comes in a roll and you cut as 
much as you need.

I found spray normal saline to clean the wound.

I'm going to get a alternating pressure mattress topper for my bed. I want 4" 
or more.
Anybody know of a good one?

Help! I need you guys on this one.
Bobbie

Smile Everyday

Re: [QUAD-L] Ryzodomy

[diannal767]

I use lyrica for stiffness...works great! 100 mg a day.


On Nov 23, 2015, at 9:52 PM, jume9...@comcast.net wrote:





Hi guys,



Those of you who have had a ryzodomy, can you tell me does it just help with 
spasms?  I guess it doesn't help with pain but what about stiffness? I really 
would love some details??? Thanks



Meredith






-Original Message-
From: jume 
To: Gmail ; quad-list 
Sent: Tue, Nov 24, 2015 3:53 pm
Subject: Re: [QUAD-L] Ryzodomy



Thank you Bobbie, Two other questions, was it permanent? Was it like an office 
visit where you left the same day?




From: "Gmail" 
To: jume9...@comcast.net
Cc: "quad-list" 
Sent: Tuesday, November 24, 2015 11:13:59 AM
Subject: Re: [QUAD-L] Ryzodomy



I got the ryzodomy in 1988 because of spazams and the surgery stopped the 
spazams completely.
Bobbie



Smile Everyday

On Nov 23, 2015, at 9:52 PM, jume9...@comcast.net wrote:





Hi guys,



Those of you who have had a ryzodomy, can you tell me does it just help with 
spasms?  I guess it doesn't help with pain but what about stiffness? I really 
would love some details??? Thanks



Meredith

Re: [QUAD-L] More Issues Today

[diannal767]

sounds to me like she'll need to be tested for C-diff after antibotics, caused 
by them. she also needs to eat yogurt. i'm on my 2nd IV and this time they gave 
me a prescription to counter act C-diff. still have the bone infection, bobbie. 
didn't get hyperbaric started, insurance papers for approval went to the wrong 
hospital. and that's about a 45 day correction. my sore is still 4 cm both ways 
but filling/closing in on the inside.
dianna



My neighbor Dawn (a Quad 25 years post) who lives in my building has Mesa, more 
toes are infected and might need to be amputated. The wound center put her on 2 
super antibiotics which is reiki havoc with her intestines and she is getting 
diarrhea multiple times after transferring into bed ALONE. 
She told me she had to clean herself up each time all by herself. 
She called the VNA at 5:00am but they didn't get to her till 9:00am




-Original Message-
From: RONALD L PRACHT 
To: Quad-list Post 
Sent: Tue, Nov 17, 2015 1:49 am
Subject: Re: [QUAD-L] More Issues Today



Sorry for all your challenges greg. All I can say is if you keep fighting each 
problem as they come, most of the time you can stay healthy in the long run. 
The quads that I have seen die very quickly are the ones that let everything 
build up to a point where its unmanageable


Dawn is an interesting gal. Shes got some fight in her to be able to deal with 
the bullshit she does. When it comes to cleaning shit yourself, I move the 
trash can by my bed and keep a bin of wet wipes on my table. If the accident is 
so large that its beyond the wipes I make an emergency call to seal team 
3(mother) and hope shes close enough to come in under an hour.


Ron





 
 
 
  On Monday, November 16, 2015 8:20 PM, Gmail  
wrote:
  
  

 
Sorry Greg. As you know somebody always is worse off.

My neighbor Dawn (a Quad 25 years post) who lives in my building has Mesa, more 
toes are infected and might need to be amputated. The wound center put her on 2 
super antibiotics which is reiki havoc with her intestines and she is getting 
diarrhea multiple times after transferring into bed ALONE. 
She told me she had to clean herself up each time all by herself. 
She called the VNA at 5:00am but they didn't get to her till 9:00am

Bobbie

Smile Everyday


> On Nov 16, 2015, at 7:29 PM, greg  wrote:
> 
> 
> Now I have 2 more issues to deal with. I burned the back of a couple fingers. 
> Putting my fingers through the handle of a cup of hot cider. It must have 
> gotten too hot. Plus, my crotch is inflamed. My pants were wet, but nothing 
> leaked, so I assume I spilled said hot drink in my crotch too. It looks bad. 
> I'll have to get it looked at.
> Greg
> 




  
 
  

Re: [QUAD-L] Look out! An idea!

[diannal767]

Dianna Lawson, Berea, Ohio



-Original Message-
From: RONALD L PRACHT 
To: Quad-list Post 
Sent: Sat, Nov 14, 2015 9:48 pm
Subject: Re: [QUAD-L] Look out! An idea!



Im Ron M Pracht in St. Louis..add away, but no refunds.
  




 
 
 
  On Saturday, November 14, 2015 8:32 PM, Gmail  
wrote:
  
  

 
I'm Bobbie Humphreys in Parsippany, New Jersey 

Smile Everyday


> On Nov 14, 2015, at 3:52 PM, Larry Willis  wrote:
> 
> Who on the ol' list has a Facebook page? How about we share addresses etc so 
> we can share pics etc. I assume name and address are all that is needed. Here 
> is mine. William Larry Willis, Campbellsville, KY. If this is a bogus idea, 
> say forget it Willis.
> 
> Larry Willis
> Retired and proud of it
> 




  
 
  

Re: [QUAD-L] Lift repair

[diannal767]

if my van is in need of repairs, it's covered by Medicaid up to the age of 10 
years of the vehicle. but that's only mobility issues not engine, etc.




-Original Message-
From: Gmail 
To: quad-list 
Sent: Thu, Oct 29, 2015 5:17 pm
Subject: [QUAD-L] Lift repair


Today I had my 2001 ford E-150 van dual doors checked out because the first one
that opens started opening more slowly than usual and slower that the
other.
Labor at my conversion company is $110 per hour
On the bill was
written;

2.25. Labor. $220
1
shop supplies.  $10

  "Check
power - "working slowly" . Open door & disconnect operator arms-found hinges of
right door had been "drilled" previously for applying lube. (Could not swing
door easily) 
Apply penetrating lube (PB Blaster) to hinges . Lube lift at all
moving location-platform pivots, hinges, pins, connecting joints, etc.

Observed lift oil leaking from rubber plug a of side access plate. 
Remove
rubber plug and tap & install threaded  plug. 
Check oil level and add 1 pint
of gear oil. Check EZ locks-lube jaws & check operation. 
Glue & ty-wrap
passenger EZ-lock dash switch (hanging off bracket) Chech hand control & hard
wear -ok
Check power park break-ok
Check back-up steering operation, lines
hoses, fittings & liquid level
Advise customer of maintenance required on power
door hinge-monthly.

Total.   
$247.50

It took them 2 1/2 hours to do the work and 1/2 hour to type up
bill

To me it seamed like it took a LOT longer then need be. But am greatfull
to have a van to repair.
Bobbie

Smile Everyday

 

Re: [QUAD-L] Drive From Chair?

[diannal767]

that's awesome! I love the pick ups but they're pricey! 


About any truck type vehicle can be adapted for a wheelchair driver. Some
require more modification than others, so the cost can vary. I drive from my
chair and i have a Ford E150. Back in the 90's I had a Dodge Caravan. For me,
the big issues are cost and maintenance. I buy everything used.on eBay. Good
luck, my friend.

Larry Willis





-Original Message-
From: Larry Willis 
To: greg ; quad-list 
Sent: Sat, Oct 24, 2015 10:21 am
Subject: Re: [QUAD-L] Drive From Chair?


About any truck type vehicle can be adapted for a wheelchair driver. Some
require more modification than others, so the cost can vary. I drive from my
chair and i have a Ford E150. Back in the 90's I had a Dodge Caravan. For me,
the big issues are cost and maintenance. I buy everything used.on eBay. Good
luck, my friend.

Larry Willis
Retired and proud of it


> On Oct 23,
2015, at 11:22 PM, greg  wrote:
> 
> Other than a mini van or
Honda Element, what other cars/trucks can you drive from a power chair?
> 
> I
saw a big 4x4 pickup, but it had a big lift system, instead of a drive-up ramp
that I'd prefer. Are there any SUVs?
> 
> Thanks, Greg
> 


 

Re: [QUAD-L] 25 years October 15

[diannal767]

Congrats!, I passed my 25th June 17.
Dianna


25 years, a quarter of the century, almost one third of my life.  Where did the 
time go from that moment when I fell off the scaffolding and tried to move my 
arm and realized it did not respond?  That was the start of my new life, and 
although it is not always a home run, it certainly is not a strikeout either.




-Original Message-
From: Joan Anglin 
To: quad-list 
Sent: Wed, Oct 14, 2015 11:28 pm
Subject: [QUAD-L] 25 years October 15



25 years, a quarter of the century, almost one third of my life.  Where did the 
time go from that moment when I fell off the scaffolding and tried to move my 
arm and realized it did not respond?  That was the start of my new life, and 
although it is not always a home run, it certainly is not a strikeout either.
So many people who have helped me, encouraged me, devised a little something 
that made my life better, cuddled me when I needed it, scolded me when I needed 
it, and just simply told me to buckle down and get on with life.  Thanks to 
each and every one and you know who you are.  Family, friends, therapists, 
doctors, and yes many strangers.
To every little kid (some of them not so little but just as curious) who asked 
me why I was in a wheelchair, how did I drive my chair without my hands or 
arms, who offered to help me, I say thank you and bless you that you accepted 
me for the person I am, especially the young one who wanted to race me and when 
I won told me to get out of my chair and he would drive it and win!  I love you 
all.
I appreciate all of the strangers who are so helpful and kind and open doors 
for me without my asking, offer to carry my packages out to my car, ask me if I 
would like a drink from my cup on my wheelchair, or would I like something to 
eat while I am waiting for someone at the food court to pick up our orders.  I 
don't believe for a minute that the majority of people do not want to help or 
look down upon me in the wheelchair.  Conversely, I love the smiles, the how 
are you doings, and the people who say- isn't it a great day to be outdoors or 
shopping or whatever.
To the very few and far between people who say or imply something such as " my 
you really know how to use the wheelchair" I try to smile and reply " you do 
really well on your feet also" and make them laugh.  They probably will think 
twice the next time.
Being a total C4 quadriplegic was definitely not my game plan for my life, but 
honestly things could have been worse and I am looking forward to what the 
future holds.  I have already outlived by 10 years what they told me at rehab 
in 1990, so hopefully the rest will be a piece of cake!  Thanks for letting me 
celebrate 25 years.

Re: [QUAD-L] new chair

[diannal767]

Ask Wally, aka Wheelchair.
dianna


I had a varalight on my previous chair, really miss it.

On 10/11/15, shirley
bell <sbell...@cox.net> wrote:
> Hi all, I am going for a new chair and seating
system to sit better. I have
> been looking at the utube video on the Java ride
design cushion and back and
> it looks great. They seem to know what they are
doing. I am in RI however.
> has anyone used this product and are the other
jayback or varalight products
> as good? I Don't need the custom cushion. any
thoughts? my posture is bad
> and uncomfortable and these rohos don't
support.
> Kind regards,
> Shirley Bell





-Original Message-
From: Fragile <swl...@gmail.com>
To: shirley bell <sbell...@cox.net>
Cc: diannal767 <diannal...@aol.com>; quad-list <quad-list@eskimo.com>
Sent: Mon, Oct 12, 2015 8:35 am
Subject: Re: [QUAD-L] new chair


I had a varalight on my previous chair, really miss it.

On 10/11/15, shirley
bell <sbell...@cox.net> wrote:
> Hi all, I am going for a new chair and seating
system to sit better. I have
> been looking at the utube video on the Java ride
design cushion and back and
> it looks great. They seem to know what they are
doing. I am in RI however.
> has anyone used this product and are the other
jayback or varalight products
> as good? I Don't need the custom cushion. any
thoughts? my posture is bad
> and uncomfortable and these rohos don't
support.
> Kind regards,
> Shirley Bell
>
> www.ShirleyBellDesigns.com
>  
- Original Message -
>   From: diannal...@aol.com
>   To:
wheel...@centurylink.net ; quad-list@eskimo.com
>   Sent: Thursday, July 02,
2015 9:02 PM
>   Subject: Re: [QUAD-L] new chair
>
>
>   my wheelchair rep
came out today and changed the back on my chair. i'm so
> happy, feels great.
it's not a jay3 but a veralite icon air back. it also
> has little lateral
support. the other had way too much.  she was familiar
> with the jay3 website
you showed me but my computer was malfunctioning and I
> couldn't get aol up
running to get to your links for you tube but i'm going
> to send them to her
later. thank you sooo much for feedback. she's also
> coming back out to change
my legs/foot rests as they are still too long
> after changing the back.
>  
dianna
>
>   -Original Message-
>   From: Derrick
<wheel...@centurylink.net>
>   To: diannal767 <diannal...@aol.com>
>   Sent:
Tue, Jun 30, 2015 1:49 pm
>   Subject: Re: [QUAD-L] new chair
>
>
>   i;ve
been researching backs and cushions. do u want me to email u my
> notes, links,
reviews of them? it's in word doc.
>
>   maybe u can get another adjustable
back and/or cushion to help fit u to
> chair better
>   check out the Jay3
back. it has videos about fitting the back to your back
> issue" scoliosis "
>
follow link, then click on "documents, images,videos"
>
http://www.sunrisemedical.com/products/jay/backs/jayj3back.aspx?tab=Media
>
> 
other backs with videos ..
>
>
>  
https://www.comfortcompany.com/category/Comfort Rehab/Back Care
>   JAVA
Back
>   http://www.ridedesigns.com/configured-cushions.html
>  
https://www.youtube.com/user/RideDesigns/videos?view=0
>   Java back fitting.
https://www.youtube.com/watch?v=bA4eN-aLbqQ
>
>   my buddy just got jay3 back.
he really like it.
>   derrick
>
>   On 6/30/2015 10:24 AM,
diannal...@aol.com wrote:
>
> my wheelchair rep has been back and says
she'll be back with a different
> back. and back until i'm comfortable with my
chair. but it's just so far off
> her "measurements", i don't think this is
right. i guess i'll be finding
> out. it's only my 2nd chair through medicaid
in 25 yrs. but now, 25 yrs
> later, scoliosis has developed from not sitting
correctly and i'm finding
> these chairs very uncomfortable. just venting
because i think i'm going to
> be stuck with something i don't like. to get the
back close to right, the
> legs are too long, etc. it is however my first
recline, i had hoped a
> smoother transfer of chairs.
> dianna
>
>  
I beg to differ. Knowledge is Power and you have every right to say NO
> and
not sign the required paperwork until you get exactly what you need.
> Remember
that providers are guided by you requirements and needs.  They must
> comply
with insurance perimeters and CMS codes.  Learn as much about the
>
manufacturer via the internet.  You can try out anything you want.
>
Manufacture Reps are more than willing. Take Charge of YOUR Life.  Otherwise
>
others will.
>
>
>
>
> -Original Message-
> From:
wheelchair <wheelch...@aol.com>
> To: wheelsdw <wheel...@centurylink.net>;
quad-list
> <quad-list@eskimo.com>
>

Re: [QUAD-L] Sitting wrong/Pressure sore

[diannal767]

I'm all to familiar with exactly what a P.T. does and an O.T. does W, unlike 
you, I was a patient on an SCI floor for 4 months. I haven't seen a Rehab 
doctor for 25 years. Medicaid will not cover the care of such a specialist 
after discharge. I was due for a new chair and went thru all the proper 
channels Medicaid will pay for. That being my Primary, a P.T. to eval the 
approval of a reclining chair and special seating for my scoliosis. After doing 
so, I then called the company who provided my prior chair. Who then sent out a  
sales rep to measure me for this new chair. If you read my story, it was not a 
seating problem. I sit in the same chair, the same cushion, all is fine now. 
What you missed in the story was while she was so concerned about the back, the 
plate under the cushion was not adjusted. "Dave" moved it three inches forward. 
I remember now why I lost interest in this list as did most others. And yes, I 
live close to Metro hospital in Cleveland that has an SCI floor  but again, 
Medicaid doesn't cover those channels. Yes, I'm seeing a well known wound 
specialist at the Cleveland Clinic
Dianna


I hope you are working with a certified wound specialist and wound medical 
doctor.  A wound nurse with updated training every year is a great asset.  
Wounds fail to heal for a number of reasons. Age, Diet, Tangible tissue, Bad 
Habits (smoking) and how much you lay on the wound.  I'm sure there are other 
factors.  Skin Flap Procedure is available only when a wound has been the 
healing process 90%.  
   
Best Wishes





-Original Message-
From: wheelchair <wheelch...@aol.com>
To: lwillis82153 <lwillis82...@msn.com>; quad-list <quad-list@eskimo.com>
Sent: Fri, Sep 4, 2015 10:25 pm
Subject: Re: [QUAD-L] Sitting wrong/Pressure sore



I hope you are working with a certified wound specialist and wound medical 
doctor.  A wound nurse with updated training every year is a great asset.  
Wounds fail to heal for a number of reasons. Age, Diet, Tangible tissue, Bad 
Habits (smoking) and how much you lay on the wound.  I'm sure there are other 
factors.  Skin Flap Procedure is available only when a wound has been the 
healing process 90%.  
   
Best Wishes  
   
   
   

In a message dated 9/4/2015 6:36:07 P.M. Central Daylight Time, 
lwillis82...@msn.com writes:   

  
How easily something simple can become tragic! I have been battling a butt sore 
for over ten years now. It is about 3x4 in. and just will not heal. Not much 
depth but wide open and raw. (When my daughter was small she asked why I had 
Bologna on my butt.) I imagine I will take it to the grave.  
  
Sent from my iPad 
  
  
Begin forwarded message:  
  
 
  
   
   Resent-From:quad-list@eskimo.com   
   From:wheelch...@aol.com   
   Date: September 4, 2015 at 5:08:23 PM EDT   
   To:diannal...@aol.com,sbell...@cox.net,
quad-list@eskimo.com   
   Subject:Re: [QUAD-L] Sitting wrong/Pressure sore   
   
  
 
  
   
 
Did you actually go to a clinic that specialize in seating and positioning or 
did someone hold their thumb up to your profile?  Positioning is so important, 
especially today.   Do you have a Comfort Company set up?
 
 
 
Best Wishes
 
 
 
  
In a message dated 9/4/2015 3:37:58 P.M. Central Daylight Time,   
diannal...@aol.com writes: 
  
  funny you should ask that. no, but I sure am sweating now! or clammy 
I should say. first thing in the morning and after wound changes...I hate the 
feeling. feels like my blood pressure raises too & I feel mean...actually I am 
after wound changes that is! my doc has ordered the wound cleaned with a 
solution that smells like bleach. I know i'm having a reaction to it cause I 
feel sweaty. I didn't mention I've gone 25 years without a problem on my butt 
until now.
 
  
   
   Dianna, what a drag. thanks for sharing this important info. Did 
you not feel sweaty or anything as the  sore was coming on? that's the scariest 
for us, not to feel it until it's to late.   
   
Kind regards,
Shirley Bell   
 




 
-Original Message- 
From: shirley bell < sbell...@cox.net> 
To: diannal767 < diannal...@aol.com> 
Cc: quad-list < quad-list@eskimo.com> 
Sent: Fri, Sep 4, 2015 2:51 pm 
Subject: Re: [QUAD-L] Sitting wrong/Pressure sore 
 
  
   

Dianna, what a drag. thanks for sharing this important info. 
Did you not feel sweaty or anythin

Re: [QUAD-L] Sitting wrong/Pressure sore

[diannal767]

No. it was time for a new chair so I called the company who provided me a chair 
5 years ago. SAW a PHYSICAL THERAPIST, was MEASURED for this particular chair 
and that was it. Thus put my faith in their reputable positions. Just who 
should of suggested I go to such a clinic W?? Perhaps that's exactly what she 
did! No, I've never heard of such a company nor directed.
Dianna


Did you actually go to a clinic that specialize in seating and positioning or 
did someone hold their thumb up to your profile?  Positioning is so important, 
especially today.   Do you have a Comfort Company set up?




-Original Message-
From: wheelchair <wheelch...@aol.com>
To: diannal767 <diannal...@aol.com>; sbell137 <sbell...@cox.net>; quad-list 
<quad-list@eskimo.com>
Sent: Fri, Sep 4, 2015 5:08 pm
Subject: Re: [QUAD-L] Sitting wrong/Pressure sore



Did you actually go to a clinic that specialize in seating and positioning or 
did someone hold their thumb up to your profile?  Positioning is so important, 
especially today.   Do you have a Comfort Company set up?  
   
   
   
Best Wishes  
   
   
   

In a message dated 9/4/2015 3:37:58 P.M. Central Daylight Time, 
diannal...@aol.com writes:   

funny you should ask that. no, but I sure am sweating now! or clammy I 
should say. first thing in the morning and after wound changes...I hate the 
feeling. feels like my blood pressure raises too & I feel mean...actually I am 
after wound changes that is! my doc has ordered the wound cleaned with a 
solution that smells like bleach. I know i'm having a reaction to it cause I 
feel sweaty. I didn't mention I've gone 25 years without a problem on my butt 
until now.
   

 
 Dianna, what a drag. thanks for sharing this important info. Did you 
not feel sweaty or anything as the  sore was coming on? that's the scariest for 
us, not to feel it until it's to late. 
 
Kind regards,  
Shirley Bell 
   
  



   
-Original Message-   
From: shirley bell <sbell...@cox.net>   
To: diannal767 <diannal...@aol.com>   
Cc: quad-list <quad-list@eskimo.com>   
Sent: Fri, Sep 4, 2015 2:51 pm   
Subject: Re: [QUAD-L] Sitting wrong/Pressure sore   
   

 
  
  Dianna, what a drag. thanks for sharing this important info. Did you 
not feel sweaty or anything as the  sore was coming on? that's the scariest for 
us, not to feel it until it's to late.  
  
Kind regards,   
Shirley Bell  
  
  
  www.ShirleyBellDesigns.com  
  
   
- Original Message -   
   
   From:diannal...@aol.com   
   
   To:quad-list@eskimo.com   
   
   Sent: Friday, September 04, 2015 12:27 PM   
   
   Subject: [QUAD-L] Sitting wrong/Pressure sore   
   
   
  
  
~Thought I'd share my story with everyone in hopes of preventing 
this of happening to anyone else!! Finally got in my new chair July 1. By 
August 14th, I was in the hospital getting surgery on a sore on my butt. I'm 
home now with a sore the size of a 50 cent piece and 3/4 of an inch deep. 
Hooked up to a Wound vac and hopefully next week, I'll get this pic line out.   
 

~The wheelchair rep made countless visits to my home to adjust the back, then 
finally changed it to a air back cushion. Worked on programming the controls 
that still are 'crazy'. Through the month, Dave said "Your butts hanging out 
the back". I thought he meant to say, it was big because that's how it felt to 
me reaching back. What he should have said was, "Your cheeks are hanging over 
the back of the cushion" ! I was sitting out on my patio & looked in my bay 
window to actually look and see from the suns reflection, what my butt looked 
like in this chair. This was a Saturday. I was feeling chilled that weekend, 
wearing a sweater while it's 80 degrees out. Anyway, I immediately said to 
Dave, "My butts hanging over the cushion, my butt looks huge"!  Dave:, "I told 
you"  Saturday night, he noticed a pencil size sore on my butt, by `Monday 
morning, it broke open a little with bleeding. I had already had an appointment 
Monday with my wound doctor for a healing sore on my ankle. She sent me to the 
E.R with a letter requesting a plastic surgeon, Dr Raj. I also encountered two  
  

infections from the wound, one being staff A and another letter to go with 
it...couldn't care less at this point. Eight days in the hospital, I just 
wanted to go home.

~That Monday morning, Dave announced he could fix this, (6 weeks too late) 
Moved the plate under the cushi

Re: [QUAD-L] Sitting wrong/Pressure sore

[diannal767]

No. it was time for a new chair so I called the company who provided me a chair 
5 years ago. SAW a PHYSICAL THERAPIST, was MEASURED for this particular chair 
and that was it. Thus put my faith in their reputable positions. Just who 
should of suggested I go to such a clinic W?? Perhaps that's exactly what she 
did! No, I've never heard of such a company nor directed.
Dianna


Did you actually go to a clinic that specialize in seating and positioning or 
did someone hold their thumb up to your profile?  Positioning is so important, 
especially today.   Do you have a Comfort Company set up?




-Original Message-
From: wheelchair <wheelch...@aol.com>
To: diannal767 <diannal...@aol.com>; sbell137 <sbell...@cox.net>; quad-list 
<quad-list@eskimo.com>
Sent: Fri, Sep 4, 2015 5:08 pm
Subject: Re: [QUAD-L] Sitting wrong/Pressure sore



Did you actually go to a clinic that specialize in seating and positioning or 
did someone hold their thumb up to your profile?  Positioning is so important, 
especially today.   Do you have a Comfort Company set up?  
   
   
   
Best Wishes  
   
   
   

In a message dated 9/4/2015 3:37:58 P.M. Central Daylight Time, 
diannal...@aol.com writes:   

funny you should ask that. no, but I sure am sweating now! or clammy I 
should say. first thing in the morning and after wound changes...I hate the 
feeling. feels like my blood pressure raises too & I feel mean...actually I am 
after wound changes that is! my doc has ordered the wound cleaned with a 
solution that smells like bleach. I know i'm having a reaction to it cause I 
feel sweaty. I didn't mention I've gone 25 years without a problem on my butt 
until now.
   

 
 Dianna, what a drag. thanks for sharing this important info. Did you 
not feel sweaty or anything as the  sore was coming on? that's the scariest for 
us, not to feel it until it's to late. 
 
Kind regards,  
Shirley Bell 
   
  



   
-Original Message-   
From: shirley bell <sbell...@cox.net>   
To: diannal767 <diannal...@aol.com>   
Cc: quad-list <quad-list@eskimo.com>   
Sent: Fri, Sep 4, 2015 2:51 pm   
Subject: Re: [QUAD-L] Sitting wrong/Pressure sore   
   

 
  
  Dianna, what a drag. thanks for sharing this important info. Did you 
not feel sweaty or anything as the  sore was coming on? that's the scariest for 
us, not to feel it until it's to late.  
  
Kind regards,   
Shirley Bell  
  
  
  www.ShirleyBellDesigns.com  
  
   
- Original Message -   
   
   From:diannal...@aol.com   
   
   To:quad-list@eskimo.com   
   
   Sent: Friday, September 04, 2015 12:27 PM   
   
   Subject: [QUAD-L] Sitting wrong/Pressure sore   
   
   
  
  
~Thought I'd share my story with everyone in hopes of preventing 
this of happening to anyone else!! Finally got in my new chair July 1. By 
August 14th, I was in the hospital getting surgery on a sore on my butt. I'm 
home now with a sore the size of a 50 cent piece and 3/4 of an inch deep. 
Hooked up to a Wound vac and hopefully next week, I'll get this pic line out.   
 

~The wheelchair rep made countless visits to my home to adjust the back, then 
finally changed it to a air back cushion. Worked on programming the controls 
that still are 'crazy'. Through the month, Dave said "Your butts hanging out 
the back". I thought he meant to say, it was big because that's how it felt to 
me reaching back. What he should have said was, "Your cheeks are hanging over 
the back of the cushion" ! I was sitting out on my patio & looked in my bay 
window to actually look and see from the suns reflection, what my butt looked 
like in this chair. This was a Saturday. I was feeling chilled that weekend, 
wearing a sweater while it's 80 degrees out. Anyway, I immediately said to 
Dave, "My butts hanging over the cushion, my butt looks huge"!  Dave:, "I told 
you"  Saturday night, he noticed a pencil size sore on my butt, by `Monday 
morning, it broke open a little with bleeding. I had already had an appointment 
Monday with my wound doctor for a healing sore on my ankle. She sent me to the 
E.R with a letter requesting a plastic surgeon, Dr Raj. I also encountered two  
  

infections from the wound, one being staff A and another letter to go with 
it...couldn't care less at this point. Eight days in the hospital, I just 
wanted to go home.

~That Monday morning, Dave announced he could fix this, (6 weeks too late) 
Moved the plate under the cushi

Re: [QUAD-L] Sitting wrong/Pressure sore

[diannal767]

i'm sorry, didn't make myself clear. perhaps that is what she did...hold her 
thumb up to my profile. after all she did do, I feel she failed at her job 
immensely!!


No. it was time for a new chair so I called the company who provided me a chair 
5 years ago. SAW a PHYSICAL THERAPIST, was MEASURED for this particular chair 
and that was it. Thus put my faith in their reputable positions. Just who 
should of suggested I go to such a clinic W?? Perhaps that's exactly what she 
did! No, I've never heard of such a company nor directed.  
   
Dianna   
   
   
   
Did you actually go to a clinic that specialize in seating and positioning or 
did someone hold their thumb up to your profile?  Positioning is so important, 
especially today.   Do you have a Comfort Company set up? 





-Original Message-
From: diannal767 <diannal...@aol.com>
To: wheelchair <wheelch...@aol.com>; quad-list <quad-list@eskimo.com>
Sent: Fri, Sep 4, 2015 7:26 pm
Subject: Re: [QUAD-L] Sitting wrong/Pressure sore



No. it was time for a new chair so I called the company who provided me a chair 
5 years ago. SAW a PHYSICAL THERAPIST, was MEASURED for this particular chair 
and that was it. Thus put my faith in their reputable positions. Just who 
should of suggested I go to such a clinic W?? Perhaps that's exactly what she 
did! No, I've never heard of such a company nor directed.  
   
Dianna   
   
   
   
Did you actually go to a clinic that specialize in seating and positioning or 
did someone hold their thumb up to your profile?  Positioning is so important, 
especially today.   Do you have a Comfort Company set up?
  
 
 
 
   
-Original Message-   
 From: wheelchair <wheelch...@aol.com>   
 To: diannal767 <diannal...@aol.com>; sbell137 <sbell...@cox.net>; quad-list 
<quad-list@eskimo.com>   
 Sent: Fri, Sep 4, 2015 5:08 pm   
 Subject: Re: [QUAD-L] Sitting wrong/Pressure sore   


 
 
 Did you actually go to a clinic that specialize in seating and positioning or 
did someone hold their thumb up to your profile?  Positioning is so important, 
especially today.   Do you have a Comfort Company set up?   
   
 
   
 Best Wishes   
   
 
   

 In a message dated 9/4/2015 3:37:58 P.M. Central Daylight Time, 
diannal...@aol.com writes:

 funny you should ask that. no, but I sure am sweating now! or clammy I 
should say. first thing in the morning and after wound changes...I hate the 
feeling. feels like my blood pressure raises too & I feel mean...actually I am 
after wound changes that is! my doc has ordered the wound cleaned with a 
solution that smells like bleach. I know i'm having a reaction to it cause I 
feel sweaty. I didn't mention I've gone 25 years without a problem on my butt 
until now.
   

 
  Dianna, what a drag. thanks for sharing this important info. Did 
you not feel sweaty or anything as the  sore was coming on? that's the scariest 
for us, not to feel it until it's to late. 
 
 Kind regards,  
 Shirley Bell 

   
 
 
 
   
 -Original Message-
 From: shirley bell <   sbell...@cox.net>
 To: diannal767 <   diannal...@aol.com>
 Cc: quad-list <   quad-list@eskimo.com>
 Sent: Fri, Sep 4, 2015 2:51 pm
 Subject: Re: [QUAD-L] Sitting wrong/Pressure sore


 
   
   Dianna, what a drag. thanks for sharing this important info. Did 
you not feel sweaty or anything as the  sore was coming on? that's the scariest 
for us, not to feel it until it's to late.  
  
 Kind regards,   
 Shirley Bell  
  
  
   www.ShirleyBellDesigns.com  
  
   
 - Original Message -   
   
From:diannal...@aol.com   
   
To:quad-list@eskimo.com   
   
Sent: Friday, September 04, 2015 12:27 PM   
   
Subject: [QUAD-L] Sitting wrong/Pressure sore   
   

   
   
 ~Thought I'd share my story with everyone in hopes of 
preventing this of happening to anyone else!! Finally got in my new chair July 
1. By August 14th, I was in the hospital getting surgery on a sore on my butt. 
I'm home now with a sore the size of a 50 cent piece and 3/4 of an inch deep. 
Hooked up to a Wound vac and hopefully next week, I'll get this pic line out.   
 

 ~The wh

[QUAD-L] Sitting wrong/Pressure sore

[diannal767]

~Thought I'd share my story with everyone in hopes of preventing this of 
happening to anyone else!! Finally got in my new chair July 1. By August 14th, 
I was in the hospital getting surgery on a sore on my butt. I'm home now with a 
sore the size of a 50 cent piece and 3/4 of an inch deep. Hooked up to a Wound 
vac and hopefully next week, I'll get this pic line out.
~The wheelchair rep made countless visits to my home to adjust the back, then 
finally changed it to a air back cushion. Worked on programming the controls 
that still are 'crazy'. Through the month, Dave said "Your butts hanging out 
the back". I thought he meant to say, it was big because that's how it felt to 
me reaching back. What he should have said was, "Your cheeks are hanging over 
the back of the cushion" ! I was sitting out on my patio & looked in my bay 
window to actually look and see from the suns reflection, what my butt looked 
like in this chair. This was a Saturday. I was feeling chilled that weekend, 
wearing a sweater while it's 80 degrees out. Anyway, I immediately said to 
Dave, "My butts hanging over the cushion, my butt looks huge"!  Dave:, "I told 
you"  Saturday night, he noticed a pencil size sore on my butt, by `Monday 
morning, it broke open a little with bleeding. I had already had an appointment 
Monday with my wound doctor for a healing sore on my ankle. She sent me to the 
E.R with a letter requesting a plastic surgeon, Dr Raj. I also encountered two
infections from the wound, one being staff A and another letter to go with 
it...couldn't care less at this point. Eight days in the hospital, I just 
wanted to go home.
~That Monday morning, Dave announced he could fix this, (6 weeks too late) 
Moved the plate under the cushion 3 inches, now the cushion is correct and so 
is my butt. The wheelchair rep should have checked and caught my seating in 
corrections!!
~Not finished. I had waited about 2 months for a prior authorization from 
Medicaid to get the driving equipment installed on my chair. Three inches now 
has my head about an inch from the door post in my car. Driving it now slightly 
reclined but it throws everything off, steering wheel, brakes. I had to 
resubmit another prior to adjust either EZ-Lock or bolt on my chair from the 
adjustment on chair.
Quantum 6000, I do not like it. The ONLY feature I like about this chair is 
recline.
Dianna
If you think your butts bigger than you think,  in a new chaircheck it out

Re: [QUAD-L] Quad codger

[diannal767]

mine was 25 yrs in june. i fought the lake too, but in a boat.



-Original Message-
From: Larry Willis lwillis82...@gmail.com
To: quad-list quad-list@eskimo.com
Sent: Fri, Aug 7, 2015 12:16 pm
Subject: [QUAD-L] Quad codger


Well..Saturday, Aug 7, 1971, about one pm, I fought the lake and the lake
won. In other words, today is my 44th year of quadom. I wish I had a way-back
machine to see what my alternate life might have been. Alas. Sigh. Drop a tear
for what might have been. And keep on rolling.

Larry Willis
Retired and
proud of it


 

Re: [QUAD-L] Old Quad/Osteomyelitis

[diannal767]

if your getting poked and need pic lines often, ask your doctor if he'll 
precribe a port. i have one for cancer. i get blood taken often and received 
chemo through it plus rituxan infusion maintenance through them. medical 
personal seem to prefer them too.
dianna


As I wrote earlier this summer, ...another year down.  The last 6 months have 
been fraught with medical problems ... 3+ weeks in ICU in December. Spiraled 
downhill after putting my dog down.  Didn't eat or drink - ended up septic ... 
vent, pic line, feeding tube, pull the plug discussions - the whole 9 yards.  
Don't remember much which I am very thankful for. Another week in the hospital 
in March - my potassium skyrocketed and they called me at 10PM to tell me to go 
to ED.   Got that under control.  Nurse smashed my knee while in during March, 
nice sore there now.  My legs got so thin from being in bed, so now I have 3 
sores on my left leg, one is down to the bone. The Wound Care Clinic is 
beginning to feel like home!  Feeling much better now.  Hopefully things wi 
   

Things are not looking better...  I now have Osteomyelitis - my left leg where 
the sores are.  All are deep and look horrendous. I've done everything the 
Wound Care Clinic has told me to do, but they just keep getting worse.  
Tomorrow I get a PICC line and antibiotics ... the waiting and anticipation is 
horrible.  I'm scared because PICC lines never go easy for me.  I just want to 
run away.





-Original Message-
From: lindakrn linda...@comcast.net
To: Nan nlg52...@yahoo.com
Cc: quad-list quad-list@eskimo.com
Sent: Wed, Jul 15, 2015 4:37 pm
Subject: Re: [QUAD-L] Old Quad/Osteomyelitis


 
  
   
  
  
Nan sounds like you are tired of fighting  
  
  
   From: Nan nlg52...@yahoo.com   
   To: quad-list quad-list@eskimo.com   
   Sent: Tuesday, July 14, 2015 7:10:29 PM   
   Subject: Re: [QUAD-L] Old Quad/Osteomyelitis   
   

   
   

 Thank you Shirley, Nicki and W.  It really helps to know that others 
understand what I'm going through.  My family just doesn't get it.

 



 
 
  
 


 
  
   
 On Tuesday, July 14, 2015 7:08 PM, shirley bell sbell...@cox.net 
wrote:

   
   

   
   

 
  
   Oh Nan, I don't know what to say. Sounds beyond difficult. Please 
know I am pulling for you with prayer. It is SO hard, shirley  
  
Best,   
Shirley Bell  
  
   
  
   www.ShirleyBellDesigns.com  
  
   
- Original Message -   
   
From: Nan   
   
To: Quad-list Post   
   
Sent: Tuesday, July 14, 2015 5:20 PM   
   
Subject: [QUAD-L] Old Quad/Osteomyelitis   
   

   
   

Yup ... getting old is no fun.

 


As I wrote earlier this summer, ...another year down.  The last 6 months have 
been fraught with medical problems ... 3+ weeks in ICU in December. Spiraled 
downhill after putting my dog down.  Didn't eat or drink - ended up septic ... 
vent, pic line, feeding tube, pull the plug discussions - the whole 9 yards.  
Don't remember much which I am very thankful for. Another week in the hospital 
in March - my potassium skyrocketed and they called me at 10PM to tell me to go 
to ED.   Got that under control.  Nurse smashed my knee while in during March, 
nice sore there now.  My legs got so thin from being in bed, so now I have 3 
sores on my left leg, one is down to the bone. The Wound Care Clinic is 
beginning to feel like home!  Feeling much better now.  Hopefully things wi 
   

Things are not looking better...  I now have Osteomyelitis - my left leg where 
the sores are.  All are deep and look horrendous. I've done everything the 
Wound Care Clinic has told me to do, but they just keep getting worse.  
Tomorrow I get a PICC line and antibiotics ... the waiting and anticipation is 
horrible.  I'm scared because PICC lines never go easy for me.  I just want to 
run away.

 


I'm tired of fighting, of being hurt, of being patient.  My optimism is nearly 
a thing of the past.  I feel like I am hanging on by a thread...

 


So far, getting to be an old quad sucks ...

 

   
  
 



 

   
  
 

   
  
  
   
  
 

Re: [QUAD-L] Old Quad/Osteomyelitis

[diannal767]

i forgot to add, pray, pray, pray for strength and comfort...it works! i'm 
still in remission, he'll help you too 3


-Original Message-
From: diannal767 diannal...@aol.com
To: nig52352 nig52...@yahoo.com; quad-list quad-list@eskimo.com
Sent: Wed, Jul 15, 2015 10:02 pm
Subject: Re: [QUAD-L] Old Quad/Osteomyelitis


 if your getting poked and need pic lines often, ask your doctor if he'll 
precribe a port. i have one for cancer. i get blood taken often and received 
chemo through it plus rituxan infusion maintenance through them. medical 
personal seem to prefer them too.   
dianna   


  
As I wrote earlier this summer, ...another year down.  The last 6 months have 
been fraught with medical problems ... 3+ weeks in ICU in December. Spiraled 
downhill after putting my dog down.  Didn't eat or drink - ended up septic ... 
vent, pic line, feeding tube, pull the plug discussions - the whole 9 yards.  
Don't remember much which I am very thankful for. Another week in the hospital 
in March - my potassium skyrocketed and they called me at 10PM to tell me to go 
to ED.   Got that under control.  Nurse smashed my knee while in during March, 
nice sore there now.  My legs got so thin from being in bed, so now I have 3 
sores on my left leg, one is down to the bone. The Wound Care Clinic is 
beginning to feel like home!  Feeling much better now.  Hopefully things wi 
 
  
 Things are not looking better...  I now have Osteomyelitis - my left leg where 
the sores are.  All are deep and look horrendous. I've done everything the 
Wound Care Clinic has told me to do, but they just keep getting worse.  
Tomorrow I get a PICC line and antibiotics ... the waiting and anticipation is 
horrible.  I'm scared because PICC lines never go easy for me.  I just want to 
run away. 
 
   




-Original Message-
 From: lindakrn linda...@comcast.net
 To: Nan nlg52...@yahoo.com
 Cc: quad-list quad-list@eskimo.com
 Sent: Wed, Jul 15, 2015 4:37 pm
 Subject: Re: [QUAD-L] Old Quad/Osteomyelitis
 
 
  
   

 


 Nan sounds like you are tired of fighting


 From: Nan nlg52...@yahoo.com 
 To: quad-list quad-list@eskimo.com 
 Sent: Tuesday, July 14, 2015 7:10:29 PM 
 Subject: Re: [QUAD-L] Old Quad/Osteomyelitis 
 
  
 
 
  
   Thank you Shirley, Nicki and W.  It really helps to know that others 
understand what I'm going through.  My family just doesn't get it.  
  
   
   
  
  
   
   

   
  
  
   

 
   On Tuesday, July 14, 2015 7:08 PM, shirley bell 
sbell...@cox.net wrote:
  
 
 
  
 
 
  
   

 Oh Nan, I don't know what to say. Sounds beyond difficult. 
Please know I am pulling for you with prayer. It is SO hard, shirley


 Best, 
 Shirley Bell

  

 www.ShirleyBellDesigns.com

 
 - Original Message - 
 
  From:  Nan 
 
  To:  Quad-list Post 
 
  Sent: Tuesday, July 14, 2015 5:20 PM 
 
  Subject: [QUAD-L] Old Quad/Osteomyelitis 
 
  
 
 
  
 Yup ... getting old is no fun.  
  
   
  
  
 As I wrote earlier this summer, ...another year down.  The last 6 months have 
been fraught with medical problems ... 3+ weeks in ICU in December. Spiraled 
downhill after putting my dog down.  Didn't eat or drink - ended up septic ... 
vent, pic line, feeding tube, pull the plug discussions - the whole 9 yards.  
Don't remember much which I am very thankful for. Another week in the hospital 
in March - my potassium skyrocketed and they called me at 10PM to tell me to go 
to ED.   Got that under control.  Nurse smashed my knee while in during March, 
nice sore there now.  My legs got so thin from being in bed, so now I have 3 
sores on my left leg, one is down to the bone. The Wound Care Clinic is 
beginning to feel like home!  Feeling much better now.  Hopefully things wi 
 
  
 Things are not looking better...  I now have Osteomyelitis - my left leg where 
the sores are.  All are deep and look

Re: [QUAD-L] Old Quad/Osteomyelitis

[diannal767]

my first email was returned but in it was a suggestion to ask your doctor to 
prescribe for you to have a port inserted. if your having a lot of pic lines. i 
have one for cancer. had chemo through it. rituxan infusion maintenance 
treatments.medical personal prefer them too.


-Original Message-
From: diannal767 diannal...@aol.com
To: nlg52352 nlg52...@yahoo.com; quad-list quad-list@eskimo.com
Sent: Wed, Jul 15, 2015 10:09 pm
Subject: Re: [QUAD-L] Old Quad/Osteomyelitis


 
 i forgot to add, pray, pray, pray for strength and comfort...it works! i'm 
still in remission, he'll help you too 3
 
   
-Original Message-   
 From: diannal767 diannal...@aol.com   
 To: nig52352 nig52...@yahoo.com; quad-list quad-list@eskimo.com   
 Sent: Wed, Jul 15, 2015 10:02 pm   
 Subject: Re: [QUAD-L] Old Quad/Osteomyelitis   


 if your getting poked and need pic lines often, ask your doctor if he'll 
precribe a port. i have one for cancer. i get blood taken often and received 
chemo through it plus rituxan infusion maintenance through them. medical 
personal seem to prefer them too.  
 dianna   
   

 
 As I wrote earlier this summer, ...another year down.  The last 6 months have 
been fraught with medical problems ... 3+ weeks in ICU in December. Spiraled 
downhill after putting my dog down.  Didn't eat or drink - ended up septic ... 
vent, pic line, feeding tube, pull the plug discussions - the whole 9 yards.  
Don't remember much which I am very thankful for. Another week in the hospital 
in March - my potassium skyrocketed and they called me at 10PM to tell me to go 
to ED.   Got that under control.  Nurse smashed my knee while in during March, 
nice sore there now.  My legs got so thin from being in bed, so now I have 3 
sores on my left leg, one is down to the bone. The Wound Care Clinic is 
beginning to feel like home!  Feeling much better now.  Hopefully things wi 

 
 Things are not looking better...  I now have Osteomyelitis - my left leg where 
the sores are.  All are deep and look horrendous. I've done everything the 
Wound Care Clinic has told me to do, but they just keep getting worse.  
Tomorrow I get a PICC line and antibiotics ... the waiting and anticipation is 
horrible.  I'm scared because PICC lines never go easy for me.  I just want to 
run away. 

   
   
   
   
   
 -Original Message-
 From: lindakrnlinda...@comcast.net
 To: Nannlg52...@yahoo.com
 Cc: quad-listquad-list@eskimo.com
 Sent: Wed, Jul 15, 2015 4:37 pm
 Subject: Re: [QUAD-L] Old Quad/Osteomyelitis


 
  
   

   
   
 Nan sounds like you are tired of fighting   
   
   
From: Nan nlg52...@yahoo.com
To: quad-list quad-list@eskimo.com
Sent: Tuesday, July 14, 2015 7:10:29 PM
Subject: Re: [QUAD-L] Old Quad/Osteomyelitis

 


 
  Thank you Shirley, Nicki and W.  It really helps to know that 
others understand what I'm going through.  My family just doesn't get it.   
  
 
  
  
 
 
  
  
   
  
 
 
  
   

  On Tuesday, July 14, 2015 7:08 PM, shirley bell 
sbell...@cox.net wrote:
 


 


 
  
   
Oh Nan, I don't know what to say. Sounds beyond difficult. 
Please know I am pulling for you with prayer. It is SO hard, shirley
   
   
 Best,
 Shirley Bell   
   
 
   
www.ShirleyBellDesigns.com   
   

 - Original Message -

 From: Nan

 To: Quad-list Post

 Sent: Tuesday, July 14, 2015 5:20 PM

 Subject: [QUAD-L] Old Quad/Osteomyelitis   
 

 


 
 Yup ... getting old is no fun. 
 
  
 
 
 As I wrote earlier this summer, ...another year down

Re: [QUAD-L] doctors

[diannal767]

how do you get doctors to make home visits?

Now I’ve only got 1 doctor I see and he does a visit to my house once a month.




-Original Message-
From: Danny da...@immortaldesigns.co
To: diannal767 diannal...@aol.com; jlubin jlu...@eskimo.com; quad-list 
quad-list@eskimo.com
Sent: Wed, Jul 8, 2015 4:40 am
Subject: RE: [QUAD-L] doctors


 
  
Now I’ve only got 1 doctor I see and he does a visit to my house once a month.
  

-Danny
  
 
  
From: diannal...@aol.com [mailto:diannal...@aol.com] 
Sent: Tuesday, July 07, 2015 9:41 PM
To: jlu...@eskimo.com; quad-list@eskimo.com
Subject: Re: [QUAD-L] doctors
  
 
  
gp, rarely. pain management every 6 mos. wound doc is new due to pressure sore 
on my elbow and oncologist every 3 mos. cat scan every 6 mos. i'm tired of 
doctors. too many visits to the cleveland clinics!! on the other hand, i'm 
grateful for free health care when needed. 
  
   
dianna
   

 
quads, do you see a doctor on a regular bases? 
 
  
 
 
 
  
I'm in good health so I don't see a need to a doctor, and it is difficult to go 
to out. 
 

   
   



   

-Original Message-
From: Jim Lubin jlu...@eskimo.com
To: quad-list quad-list@eskimo.com
Sent: Tue, Jul 7, 2015 3:14 pm
Subject: [QUAD-L] doctors

 
  
quads, do you see a doctor on a regular bases? 
  
   
 
  
  
   
I'm in good health so I don't see a need to a doctor, and it is difficult to go 
to out.  
  
 

   
  
 

Re: [QUAD-L] new chair

[diannal767]

yes, bobbie sent me a video where her chair comes with a power headrest.(same 
chair) the rep said it wasn't available nor a medical necessity. that medicaid 
wouldn't permit it. i proceeded to tell her i couldn't unbolt it. it's a 
cosmetic issue, but sometimes it would be nice to take it off. or should i say, 
hit a button to put it down. it falls in the category of a para not wanting a 
power chair. but NONE of the options were discussed with me except lateral 
support that HAD to be changed.  yes, derrick did a lot of research, it really 
isn't our responsibilitythey should know but we're the ones getting the 
chairs. in all respect, my rep said she'd come out until it's right.
dianna (still need shorter legs or foot rests on mine. using dish towels to get 
my legs higher...not cool)

Well I don't really doubt what dianna said because wheelchair companies are 
supposed to know when a person in your shape needs and work your insurance 
company will pay for it shouldn't be our job to know what we need I mean we 
wouldn't even know if our chairs could have certain things done to them




-Original Message-
From: john owens jrowen...@yahoo.com
To: diannal767 diannal...@aol.com
Sent: Mon, Jul 6, 2015 12:56 pm
Subject: Re: [QUAD-L] new chair


 
  
Well I don't really doubt what dianna said because wheelchair companies are 
supposed to know when a person in your shape needs and work your insurance 
company will pay for it shouldn't be our job to know what we need I mean we 
wouldn't even know if our chairs could have certain things done to them

 

   
  

  
  
   
   
  
  

 
  
On Monday, July 6, 2015 10:12 AM, diannal...@aol.com 
diannal...@aol.com wrote:
   
  
 
  
  
   can't thank you enough for this info derrick. hope others might find it 
useful. i have a veralite icon (air) cushion and back but the jay3 would've 
been my next step. love the you tube videos. sent them to my rep. 
dianna 
  
  

Yes, DeeDee that would be great.  Bobbie 
 
 Smile Everyday

 
 On Jul 4, 2015, at 3:52 PM, diannal...@aol.com wrote: 
 


 
 
 
   
 
   
 
   
 -Original Message-
 From: Derrick wheel...@centurylink.net
 To: diannal767 diannal...@aol.com
 Sent: Tue, Jun 30, 2015 1:49 pm
 Subject: Re: [QUAD-L] new chair


 
  
 i;ve been researching backs and cushions. do u want me to email u my notes, 
links, reviews of them? it's in word doc.   
   
 maybe u can get another adjustable back and/or cushion to help fit u to chair 
better   
 check out the Jay3 back. it has videos about fitting the back to your back 
issue   scoliosis 
 follow link, then click on documents, images,videos   
http://www.sunrisemedical.com/products/jay/backs/jayj3back.aspx?tab=Media   

   
 other backs with videos ..
 

https://www.comfortcompany.com/category/Comfort Rehab/Back 
Care   
   
JAVA Back
  
http://www.ridedesigns.com/configured-cushions.html
  
https://www.youtube.com/user/RideDesigns/videos?view=0
  Java back fitting.
https://www.youtube.com/watch?v=bA4eN-aLbqQ  
  
 

   
 

  
 
  
  
  
  
-Original Message-  
 From: Bobbie Humphreys bobbie...@aol.com  
 To: diannal767 diannal...@aol.com  
 Sent: Sat, Jul 4, 2015 3:55 pm  
 Subject: Re: [QUAD-L] new chair  
   
   

 
 Yes, DeeDee that would be great.  Bobbie  
  
 Smile Everyday 
 
  
 On Jul 4, 2015, at 3:52 PM,  diannal...@aol.com wrote: 
 
  
 
 
  
   
  

  

  

 -Original Message- 
 From: Derrick  wheel...@centurylink.net 
 To: diannal767  diannal...@aol.com 
 Sent: Tue, Jun 30, 2015 1:49 pm 
 Subject: Re: [QUAD-L

Re: [QUAD-L] doctors

[diannal767]

i hate going to the doctors. i see a primary, a pain management, oncologist and 
now a wound specialist. i'd like to drop two but i guess i have to see my 
oncologist.

quads, do you see a doctor on a regular bases?  
   
  
  
I'm in good health so I don't see a need to a doctor, and it is difficult to go 
to out. 





-Original Message-
From: Jim Lubin jlu...@eskimo.com
To: quad-list quad-list@eskimo.com
Sent: Tue, Jul 7, 2015 3:14 pm
Subject: [QUAD-L] doctors


 
quads, do you see a doctor on a regular bases?  
   
  
  
I'm in good health so I don't see a need to a doctor, and it is difficult to go 
to out.   
 
 

Re: [QUAD-L] doctors

[diannal767]

gp, rarely. pain management every 6 mos. wound doc is new due to pressure sore 
on my elbow and oncologist every 3 mos. cat scan every 6 mos. i'm tired of 
doctors. too many visits to the cleveland clinics!! on the other hand, i'm 
grateful for free health care when needed.
dianna

quads, do you see a doctor on a regular bases?  
   
  
  
I'm in good health so I don't see a need to a doctor, and it is difficult to go 
to out. 





-Original Message-
From: Jim Lubin jlu...@eskimo.com
To: quad-list quad-list@eskimo.com
Sent: Tue, Jul 7, 2015 3:14 pm
Subject: [QUAD-L] doctors


 
quads, do you see a doctor on a regular bases?  
   
  
  
I'm in good health so I don't see a need to a doctor, and it is difficult to go 
to out.   
 
 

Re: [QUAD-L] For the ladies (Sex with a foley catheter)

[diannal767]

Amen 3 don't worry...have fun!


Congratulations on you're lucky in love!! I wish you much happiness.  
  
Lindaf





-Original Message-
From: lindakrn linda...@comcast.net
To: Lissette Whitehead lissw...@hotmail.com
Cc: quad-list quad-list@eskimo.com
Sent: Mon, Jul 6, 2015 4:17 pm
Subject: Re: [QUAD-L] For the ladies (Sex with a foley catheter)


 
  
   
  
  
Congratulations on you're lucky in love!! I wish you much happiness.  
  
Lindaf  
  
  
   From: Lissette Whitehead lissw...@hotmail.com   
   To: quad-list quad-list@eskimo.com   
   Sent: Sunday, July 5, 2015 8:06:56 PM   
   Subject: [QUAD-L] For the ladies (Sex with a foley catheter)   
   

   
  
Hello ladies. I need some sexual advice. I just recently started my 1st 
relationship after 9 years of being injured. We've been together about 7 months 
but we haven't had actual sex. Our main concern is the catheter, I've seen 
information that says you cannot have sex with a foley and other that says you 
can. I have had issues before when the catheter has come out (without even 
doing anything), so I wonder if that could happen during sex? Any advice you 
can give me wold be greatly appreciated.
 


 Thanks in advance.
 
  
  
  
   
  
  
   
Lissette Whitehead

   
416 W. San Ysidro Blvd.
   
San Ysidro, CA 92173
   
www.lwgripgloves.com

  
  
  
   


  
 

   
  
  
   
  
 

Re: [QUAD-L] For the ladies (Sex with a foley catheter)

[diannal767]

yeah, i was 33 with 2 preteens. mine asked me if i wanted to consider a 
hysterectomy. with my husband having a vasectomyi told him no. i later had 
a an ablation. what a blessing that was. something some young females might 
want to consider if you don't want children. no more periods!!! excuse my 
mis-spellings. i wouldn't blow up the baloon though any further...just my 
opinion. mine never fell out.
dianna


You could put a little more in water in the ballon to make the cath more Secure 
and tape the cath to your thigh if you'd like for even more security. Depends 
on how active you plan on getting. 
 
THE MOST Important thing to do is ... TO HAVE FUN AND LAUGH A LOT!!! 
 
FYI ~ I had a small bowl movement one time. 
 
  
 
 
When I asked my Physiatrist, when I was first injured at 17 and a Virgin, Can 
I still have sex? His answer, back in 1973,was Yes, but you might get 
pregnant or had a bowel movement. As he ran away. I yelled back to him What 
if I don't want either? He never answered me. 
 
  
 
 
Just have fun and laugh at whatever happens. 
 
Bobbie.  C-4,5,6,7.  1973. Motor cycle accident 





-Original Message-
From: Gmail bobbiehumphre...@gmail.com
To: Lissette Whitehead lissw...@hotmail.com
Cc: quad-list quad-list@eskimo.com
Sent: Mon, Jul 6, 2015 4:26 pm
Subject: Re: [QUAD-L] For the ladies (Sex with a foley catheter)


 
You could put a little more in water in the ballon to make the cath more Secure 
and tape the cath to your thigh if you'd like for even more security. Depends 
on how active you plan on getting. 
 
THE MOST Important thing to do is ... TO HAVE FUN AND LAUGH A LOT!!! 
 
FYI ~ I had a small bowl movement one time. 
 
  
 
 
When I asked my Physiatrist, when I was first injured at 17 and a Virgin, Can 
I still have sex? His answer, back in 1973,was Yes, but you might get 
pregnant or had a bowel movement. As he ran away. I yelled back to him What 
if I don't want either? He never answered me. 
 
  
 
 
Just have fun and laugh at whatever happens. 
 
Bobbie.  C-4,5,6,7.  1973. Motor cycle accident   
  
Smile Everyday 
 
  
On Jul 5, 2015, at 9:06 PM, Lissette Whitehead   lissw...@hotmail.com wrote:  
  
 
 
  

Hello ladies. I need some sexual advice. I just recently started my 1st 
relationship after 9 years of being injured. We've been together about 7 months 
but we haven't had actual sex. Our main concern is the catheter, I've seen 
information that says you cannot have sex with a foley and other that says you 
can. I have had issues before when the catheter has come out (without even 
doing anything), so I wonder if that could happen during sex? Any advice you 
can give me wold be greatly appreciated.
 


 Thanks in advance.
 
  
  
  
  

Lissette Whitehead

   
416 W. San Ysidro Blvd.
   
San Ysidro, CA 92173
   
www.lwgripgloves.com

  
  
  
   


  
 


   
 

Re: [QUAD-L] new chair

[diannal767]

yes, i got the veralite icon (air) back. it's high and only about 2 inches from 
my lower back to my butt. it looks like an office chair. if it didn't work, i 
was going to ask for the jay 3.  my cushion is a veralite too. i like the 
backmy butt doesn't stick out either. that was not cool.
dianna

You try any of these?  
 You get Icon back? tall,med.low?  
 Derrick




-Original Message-
From: Derrick wheel...@centurylink.net
To: diannal767 diannal...@aol.com
Sent: Mon, Jul 6, 2015 3:57 pm
Subject: Re: [QUAD-L] new chair


  
i've been researching new cushions  backs.  
 The Evolution got 4.3 out of 5 stars and 91% recommend it. But I like the 
Meridian due to better pressure map and dual chamber to keep you from sliding 
out  sit on tail bone.  
 I drive my own van and need good balance. I never had air cushion before. I am 
wondering if the Wave design would help stability?  
 Did you try the Evolution Wave?   
http://www.varilite.com/products_detail.aspx?prodID=3  
 Did you try Meridian? likes,dislikes?  
   
 I was going to request the Meridian Wave from dealer to check out .  
   
 Here is my list iof cushions:  
   Cushion that I have been reviewing  
 Comfort Company-Vector X...what difference between Vector X  Adjuster X  
 Comfort Company Adjuster X..more options than regular Adjuster??  
 Varilite- Meridian.maybe Meridian Wave if better stability  
 Jay-Fusion  
 Jay2 Deep Contour  
 Roho-Hybird Elite  
 Ride Design Java  
   
 You try any of these?  
 You get Icon back? tall,med.low?  
 Derrick  
   
 On 7/6/2015 11:12 AM,   diannal...@aol.com wrote:  
  
  
  can't thank you enough for this info derrick. hope others might find it 
useful. i have a veralite icon (air) cushion and back but the jay3 would've 
been my next step. love the you tube videos. sent them to my rep.
dianna
 
  
   
Yes, DeeDee that would be great.  Bobbie

 Smile Everyday   
   

 On Jul 4, 2015, at 3:52 PM,diannal...@aol.com wrote:

   
   

   

  

  

  
 -Original Message-   
 From: Derrickwheel...@centurylink.net   
 To: diannal767diannal...@aol.com   
 Sent: Tue, Jun 30, 2015 1:49 pm   
 Subject: Re: [QUAD-L] new chair   
   
   

 
 i;ve been researching backs and cushions. do u want me to email u my notes, 
links, reviews of them? it's in word doc.  
  
 maybe u can get another adjustable back and/or cushion to help fit u to chair 
better  
 check out the Jay3 back. it has videos about fitting the back to your back 
issue  scoliosis 
 follow link, then click on documents, images,videos  
http://www.sunrisemedical.com/products/jay/backs/jayj3back.aspx?tab=Media   
   
  
 other backs with videos ..
 
   
   https://www.comfortcompany.com/category/Comfort Rehab/Back Care  

  
   JAVA Back

http://www.ridedesigns.com/configured-cushions.html

https://www.youtube.com/user/RideDesigns/videos?view=0
 Java back fitting.   
https://www.youtube.com/watch?v=bA4eN-aLbqQ 
 

   
  

   
  
 
 
 
 
 
-Original Message- 
 From: Bobbie Humphreys  bobbie...@aol.com 
 To: diannal767  diannal...@aol.com 
 Sent: Sat, Jul 4, 2015 3:55 pm 
 Subject: Re: [QUAD-L] new chair 
  
  
   

 Yes, DeeDee that would be great.  Bobbie 
 
 Smile Everyday

 
 On Jul 4, 2015, at 3:52 PM, diannal...@aol.com wrote: 
 


 
 
 
   
 
   
 
   
 -Original Message-
 From: Derrick wheel...@centurylink.net
 To: diannal767 diannal...@aol.com
 Sent: Tue, Jun 30, 2015 1:49 pm
 Subject: Re: [QUAD-L] new chair


 
  
 i;ve been researching backs and cushions. do u want me to email u my notes, 
links, reviews of them? it's in word doc.   
   
 maybe u can get another adjustable back and/or cushion to help fit u to chair 
better   
 check out the Jay3 back. it has videos about fitting the back to your back 
issue   scoliosis 
 follow link, then click on documents, images,videos   
http://www.sunrisemedical.com/products/jay/backs/jayj3back.aspx?tab=Media   

   
 other backs with videos

Re: [QUAD-L] new chair

[diannal767]

can't thank you enough for this info derrick. hope others might find it useful. 
i have a veralite icon (air) cushion and back but the jay3 would've been my 
next step. love the you tube videos. sent them to my rep.
dianna


Yes, DeeDee that would be great.  Bobbie  
  
Smile Everyday 
 
  
On Jul 4, 2015, at 3:52 PM,   diannal...@aol.com wrote:  
  
 
 
  

 
 
 
 
 
 
-Original Message- 
 From: Derrick  wheel...@centurylink.net 
 To: diannal767  diannal...@aol.com 
 Sent: Tue, Jun 30, 2015 1:49 pm 
 Subject: Re: [QUAD-L] new chair 
  
  
   

 i;ve been researching backs and cushions. do u want me to email u my notes, 
links, reviews of them? it's in word doc. 
 
 maybe u can get another adjustable back and/or cushion to help fit u to chair 
better 
 check out the Jay3 back. it has videos about fitting the back to your back 
issue scoliosis 
 follow link, then click on documents, images,videos 
http://www.sunrisemedical.com/products/jay/backs/jayj3back.aspx?tab=Media   
  
 
 other backs with videos ..
 
  
 https://www.comfortcompany.com/category/Comfort Rehab/Back Care
 
 JAVA Back
http://www.ridedesigns.com/configured-cushions.html
https://www.youtube.com/user/RideDesigns/videos?view=0
   Java back fitting.  
https://www.youtube.com/watch?v=bA4eN-aLbqQ








-Original Message-
From: Bobbie Humphreys bobbie...@aol.com
To: diannal767 diannal...@aol.com
Sent: Sat, Jul 4, 2015 3:55 pm
Subject: Re: [QUAD-L] new chair


 
Yes, DeeDee that would be great.  Bobbie  
  
Smile Everyday 
 
  
On Jul 4, 2015, at 3:52 PM,   diannal...@aol.com wrote:  
  
 
 
  

 
 
 
 
 
 
-Original Message- 
 From: Derrick  wheel...@centurylink.net 
 To: diannal767  diannal...@aol.com 
 Sent: Tue, Jun 30, 2015 1:49 pm 
 Subject: Re: [QUAD-L] new chair 
  
  
   

 i;ve been researching backs and cushions. do u want me to email u my notes, 
links, reviews of them? it's in word doc. 
 
 maybe u can get another adjustable back and/or cushion to help fit u to chair 
better 
 check out the Jay3 back. it has videos about fitting the back to your back 
issue scoliosis 
 follow link, then click on documents, images,videos 
http://www.sunrisemedical.com/products/jay/backs/jayj3back.aspx?tab=Media   
  
 
 other backs with videos ..
 
  
 https://www.comfortcompany.com/category/Comfort Rehab/Back Care
 
 JAVA Back
http://www.ridedesigns.com/configured-cushions.html
https://www.youtube.com/user/RideDesigns/videos?view=0
   Java back fitting.  
https://www.youtube.com/watch?v=bA4eN-aLbqQ
   
 my buddy just got jay3 back. he really like it. 
 derrick 
 
 On 6/30/2015 10:24 AM, diannal...@aol.com wrote: 


 my wheelchair rep has been back and says she'll be back with a 
different back. and back until i'm comfortable with my chair. but it's just so 
far off her measurements, i don't think this is right. i guess i'll be 
finding out. it's only my 2nd chair through medicaid in 25 yrs. but now, 25 yrs 
later, scoliosis has developed from not sitting correctly and i'm finding these 
chairs very uncomfortable. just venting because i think i'm going to be stuck 
with something i don't like. to get the back close to right, the legs are too 
long, etc. it is however my first recline, i had hoped a smoother transfer of 
chairs.  
 dianna   
   

 I beg to differ. Knowledge is Power and you have every right to say NO and not 
sign the required paperwork until you get exactly what you need. Remember that 
providers are guided by you requirements and needs.  They must comply with 
insurance perimeters and CMS codes.  Learn as much about the manufacturer via 
the internet.  You can try out anything you want. Manufacture Reps are more 
than willing. Take Charge of YOUR Life.  Otherwise others will.
   
   
   
   
   
 -Original Message-
 From: wheelchairwheelch...@aol.com
 To: wheelsdwwheel...@centurylink.net; quad-list
quad-list@eskimo.com
 Sent: Mon, Jun 29, 2015 10:11 pm
 Subject: Re: [QUAD-L] new chair


 
 
 I beg to differ. Knowledge is Power and you have every right to say NO and not 
sign the required paperwork until you get exactly what you need. Remember that 
providers are guided by you requirements and needs

Re: [QUAD-L] For the ladies (Sex with a foley catheter)

[diannal767]

oh hush w...enjoy liz, you'll be just fine!


On the male side, it can be done safely.  Remember that irritation can cause 
other issues.  Bacteria in the urine can cause other types of issues.  Hope 
your new relationship understands, takes their time and has patience.
 
Good Luck to both of you.
 
Best Wishes





-Original Message-
From: Lissette Whitehead lissw...@hotmail.com
To: wheelchair wheelch...@aol.com; quad-list quad-list@eskimo.com
Sent: Sun, Jul 5, 2015 10:04 pm
Subject: RE: [QUAD-L] For the ladies (Sex with a foley catheter)


 
  
  
  
  

Lissette Whitehead

   
416 W. San Ysidro Blvd.
   
San Ysidro, CA 92173
   
www.lwgripgloves.com

  
  
  
   
   
  
  
  
  
   
From: wheelch...@aol.com   
Date: Sun, 5 Jul 2015 21:25:48 -0400   
Subject: Re: [QUAD-L] For the ladies (Sex with a foley catheter)   
To: lissw...@hotmail.com; quad-list@eskimo.com   
   
 
On the male side, it can be done safely.  Remember that irritation can cause 
other issues.  Bacteria in the urine can cause other types of issues.  Hope 
your new relationship understands, takes their time and has patience.
 
Good Luck to both of you.
 
Best Wishes
 
 
 
  
In a message dated 7/5/2015 8:07:06 P.M. Central Daylight Time, 
lissw...@hotmail.com writes: 
  
  
Hello ladies. I need some sexual advice. I just recently started my 1st 
relationship after 9 years of being injured. We've been together about 7 months 
but we haven't had actual sex. Our main concern is the catheter, I've seen 
information that says you cannot have sex with a foley and other that says you 
can. I have had issues before when the catheter has come out (without even 
doing anything), so I wonder if that could happen during sex? Any advice you 
can give me wold be greatly appreciated. 
 

 
 Thanks in advance.
  
  
  
  
   

Lissette Whitehead


416 W. San Ysidro Blvd.

San Ysidro, CA 92173

www.lwgripgloves.com

  
   
   



  
 

   
= 

  
  
 

Re: [QUAD-L] For the ladies (Sex with a foley catheter)

[diannal767]

liz,
i'm 25 years post and have been married almost 40 years. we've never 
experienced a foley coming out. (being that your a quad, i'm going to assume 
he'll be some what gentle) at any rate my husband changes my foley every 2 
weeks. it can be taught. it's not difficult. it shouldn't happen. enjoy!
dianna





 
  
In a message dated 7/5/2015 8:07:06 P.M. Central Daylight Time, 
lissw...@hotmail.com writes:
 
 
  
   
Hello ladies. I need some sexual advice. I just recently started my 1st 
relationship after 9 years of being injured. We've been together about 7 months 
but we haven't had actual sex. Our main concern is the catheter, I've seen 
information that says you cannot have sex with a foley and other that says you 
can. I have had issues before when the catheter has come out (without even 
doing anything), so I wonder if that could happen during sex? Any advice you 
can give me wold be greatly appreciated. 
   

 
   
   

Thanks in advance.







-Original Message-
From: Danny da...@immortaldesigns.co
To: 'Lissette Whitehead' lissw...@hotmail.com; wheelchair 
wheelch...@aol.com; quad-list quad-list@eskimo.com
Sent: Mon, Jul 6, 2015 12:27 am
Subject: RE: [QUAD-L] For the ladies (Sex with a foley catheter)


 
  
Are you sure its male?
JKJK I’m happy to hear you’re lucky =]
  
-Danny
  
 
  
   

From: Lissette Whitehead [mailto:lissw...@hotmail.com] 
Sent: Sunday, July 05, 2015 7:04 PM
To: wheelch...@aol.com; quad-list@eskimo.com
Subject: RE: [QUAD-L] For the ladies (Sex with a foley catheter)
   
  
  
 
  
   
 Thanks for the tips Wheelchair! And he is super patient with me. I'm a very 
lucky gal. 
   

 

Lissette Whitehead

416 W. San Ysidro Blvd.

San Ysidro, CA 92173

www.lwgripgloves.com


   


 
   
   
 
   

   


From: wheelch...@aol.com
Date: Sun, 5 Jul 2015 21:25:48 -0400
Subject: Re: [QUAD-L] For the ladies (Sex with a foley catheter)
To: lissw...@hotmail.com; quad-list@eskimo.com




 
On the male side, it can be done safely.  Remember that irritation can cause 
other issues.  Bacteria in the urine can cause other types of issues.  Hope 
your new relationship understands, takes their time and has patience.


 
Good Luck to both of you.


 
Best Wishes


 
 


 
  
In a message dated 7/5/2015 8:07:06 P.M. Central Daylight Time, 
lissw...@hotmail.com writes:
 
 
  
   
Hello ladies. I need some sexual advice. I just recently started my 1st 
relationship after 9 years of being injured. We've been together about 7 months 
but we haven't had actual sex. Our main concern is the catheter, I've seen 
information that says you cannot have sex with a foley and other that says you 
can. I have had issues before when the catheter has come out (without even 
doing anything), so I wonder if that could happen during sex? Any advice you 
can give me wold be greatly appreciated. 
   

 
   
   

Thanks in advance.

 



 
Lissette Whitehead
 
416 W. San Ysidro Blvd.
 
San Ysidro, CA 92173
 
www.lwgripgloves.com

 
 
 
 
 

   
  
  
=
 

   
  
 

Re: [QUAD-L] new chair

[diannal767]

my wheelchair rep came out today and changed the back on my chair. i'm so 
happy, feels great. it's not a jay3 but a veralite icon air back. it also has 
little lateral support. the other had way too much.  she was familiar with the 
jay3 website you showed me but my computer was malfunctioning and I couldn't 
get aol up running to get to your links for you tube but i'm going to send them 
to her later. thank you sooo much for feedback. she's also coming back out to 
change my legs/foot rests as they are still too long after changing the back.
dianna
 
-Original Message-
From: Derrick wheel...@centurylink.net
To: diannal767 diannal...@aol.com
Sent: Tue, Jun 30, 2015 1:49 pm
Subject: Re: [QUAD-L] new chair


  
i;ve been researching backs and cushions. do u want me to email u my notes, 
links, reviews of them? it's in word doc.  
   
 maybe u can get another adjustable back and/or cushion to help fit u to chair 
better  
 check out the Jay3 back. it has videos about fitting the back to your back 
issue  scoliosis 
 follow link, then click on documents, images,videos   
http://www.sunrisemedical.com/products/jay/backs/jayj3back.aspx?tab=Media  
   
 other backs with videos ..
 

https://www.comfortcompany.com/category/Comfort Rehab/Back Care
   
JAVA Back
  http://www.ridedesigns.com/configured-cushions.html
  https://www.youtube.com/user/RideDesigns/videos?view=0
  Java back fitting. https://www.youtube.com/watch?v=bA4eN-aLbqQ

 my buddy just got jay3 back. he really like it.  
 derrick  
   
 On 6/30/2015 10:24 AM,   diannal...@aol.com wrote:  
  
  
  my wheelchair rep has been back and says she'll be back with a different 
back. and back until i'm comfortable with my chair. but it's just so far off 
her measurements, i don't think this is right. i guess i'll be finding out. 
it's only my 2nd chair through medicaid in 25 yrs. but now, 25 yrs later, 
scoliosis has developed from not sitting correctly and i'm finding these chairs 
very uncomfortable. just venting because i think i'm going to be stuck with 
something i don't like. to get the back close to right, the legs are too long, 
etc. it is however my first recline, i had hoped a smoother transfer of chairs. 
   
dianna
 
  
I beg to differ. Knowledge is Power and you have every right to say NO and not 
sign the required paperwork until you get exactly what you need. Remember that 
providers are guided by you requirements and needs.  They must comply with 
insurance perimeters and CMS codes.  Learn as much about the manufacturer via 
the internet.  You can try out anything you want. Manufacture Reps are more 
than willing. Take Charge of YOUR Life.  Otherwise others will. 
 
 
 
 
 
-Original Message- 
 From: wheelchair  wheelch...@aol.com 
 To: wheelsdw  wheel...@centurylink.net; quad-list  
quad-list@eskimo.com 
 Sent: Mon, Jun 29, 2015 10:11 pm 
 Subject: Re: [QUAD-L] new chair 
  
  
   
 
 I beg to differ. Knowledge is Power and you have every right to say NO and not 
sign the required paperwork until you get exactly what you need. Remember that 
providers are guided by you requirements and needs.  They must comply with 
insurance perimeters and CMS codes.  Learn as much about the manufacturer via 
the internet.  You can try out anything you want. Manufacture Reps are more 
than willing. Take Charge of YOUR Life.  Otherwise others will. 
 
   
 
 Best Wishe 
 
   
 
  
 In a message dated 6/29/2015 1:23:16 P.M. Central Daylight Time,   
wheel...@centurylink.net writes:  
  
   All companies the same. They do not give a crap about fitting the 
best 
 chair. They should not get away with this.
 Until you find a company that really cares and takes the time to 
 evaluate you, You have to really spend the time to research your self. 
 Then ask for a demo to try for a few weeks. Read reviews, ask other 
 users and give it time to adjust for the change. A new different chair 
 takes time to adjust to.
 
 I do not think wheelchair manufactures and DME dealers consider people 
 sitting in wheelchairs for 12 hours a day. They should spend the time in 
 customers shoes and ride around town and into stores to see what its like.
 
 DME are sparse in rural areas like I live in so there is not many 
 choices. My friend down the road was just told to find another dealer 
 after getting his new wheelchair just because he told them and argued 
 that he never got a chest strap. A chest strap is not much $ but they 
 could care less.
 
 Its just another hosing that the disabled get. Here's your wheelchair, 
 cushion or van, now go away until you can order a new one. Plus, I blame 
 Med-i-dont-care for not paying for pressure mapping and for better 
 equipment.
 Derrick
 
 
 On 6/29/2015 1:47 PM, Fragile wrote:
  I had similar

Re: [QUAD-L] new chair

[diannal767]

my wheelchair rep has been back and says she'll be back with a different back. 
and back until i'm comfortable with my chair. but it's just so far off her 
measurements, i don't think this is right. i guess i'll be finding out. it's 
only my 2nd chair through medicaid in 25 yrs. but now, 25 yrs later, scoliosis 
has developed from not sitting correctly and i'm finding these chairs very 
uncomfortable. just venting because i think i'm going to be stuck with 
something i don't like. to get the back close to right, the legs are too long, 
etc. it is however my first recline, i had hoped a smoother transfer of chairs.
dianna

I beg to differ. Knowledge is Power and you have every right to say NO and not 
sign the required paperwork until you get exactly what you need. Remember that 
providers are guided by you requirements and needs.  They must comply with 
insurance perimeters and CMS codes.  Learn as much about the manufacturer via 
the internet.  You can try out anything you want. Manufacture Reps are more 
than willing. Take Charge of YOUR Life.  Otherwise others will.




-Original Message-
From: wheelchair wheelch...@aol.com
To: wheelsdw wheel...@centurylink.net; quad-list quad-list@eskimo.com
Sent: Mon, Jun 29, 2015 10:11 pm
Subject: Re: [QUAD-L] new chair



I beg to differ. Knowledge is Power and you have every right to say NO and not 
sign the required paperwork until you get exactly what you need. Remember that 
providers are guided by you requirements and needs.  They must comply with 
insurance perimeters and CMS codes.  Learn as much about the manufacturer via 
the internet.  You can try out anything you want. Manufacture Reps are more 
than willing. Take Charge of YOUR Life.  Otherwise others will.   
   
   
   
Best Wishe  
   
   
   

In a message dated 6/29/2015 1:23:16 P.M. Central Daylight Time, 
wheel...@centurylink.net writes:   

All companies the same. They do not give a crap about fitting the best 
chair. They should not get away with this.
Until you find a company that really cares and takes the time to 
evaluate you, You have to really spend the time to research your self. 
Then ask for a demo to try for a few weeks. Read reviews, ask other 
users and give it time to adjust for the change. A new different chair 
takes time to adjust to.

I do not think wheelchair manufactures and DME dealers consider people 
sitting in wheelchairs for 12 hours a day. They should spend the time in 
customers shoes and ride around town and into stores to see what its like.

DME are sparse in rural areas like I live in so there is not many 
choices. My friend down the road was just told to find another dealer 
after getting his new wheelchair just because he told them and argued 
that he never got a chest strap. A chest strap is not much $ but they 
could care less.

Its just another hosing that the disabled get. Here's your wheelchair, 
cushion or van, now go away until you can order a new one. Plus, I blame 
Med-i-dont-care for not paying for pressure mapping and for better 
equipment.
Derrick


On 6/29/2015 1:47 PM, Fragile wrote:
 I had similar problems with a quantum 600. When I complained to the
 company that sold me the chair, I was told, you got what you
 ordered. It was too wide. It was between 18 and 19 inches wide,
 ordered between 16 and 17. Come to find out later, 17 inches wasn't an
 option, so they went to 18. I just dealt with it for about 5 years,
 when I was eligible for a new chair I went to a different company.
 They sent somebody out to take measurements and whatnot. Showed up at
 my front door about a month later with a new wheelchair (permobil),
 without any warning. I wasn't ready to take the new chair, I was home
 alone, nobody to transfer me into the new wheelchair so adjustments
 could be made. Luckily, they sent somebody out a few weeks later and
 took care of it.

 On 6/29/15, diannal...@aol.com diannal...@aol.com wrote:
 my new chair was delivered in april. i.m going from an invacare tdx 5 to a
 quatrum 6000 recline chair. my question to all who all who received their
 new chair and had so many adjustments .being fitted and measured found they
 just hate the new chair. she told me the new chair would be a 1/2 difference
 in height, no so true. ( i don;t clear my kitchen table, my computer desk is
 now way to low) the back has been adjusted numerous times, i feel like i'm
 falling out of it. i have to put towels under my feet to prevent the drop
 look, they can't be adjusted up any further. this just isn't right is it? so
 not happy.
 dianna



   
  

Re: [QUAD-L] new chair

[diannal767]

no I wasn't, just a pt to okay chair. or should I say, no, I didn't.

I hope you are working with a seating and positioning specialist. Chair bases 
are all similar, but the seating and positioning is paramount.  Wheelchair Reps 
are not seating and positioning experts.  A bad seat will cost you and the 
payee lots of money over the next decade, if not done properly.

 
 
 
-Original Message-
From: wheelchair wheelch...@aol.com
To: diannal767 diannal...@aol.com; quad-list quad-list@eskimo.com
Sent: Tue, Jun 30, 2015 10:49 am
Subject: Re: [QUAD-L] new chair



I hope you are working with a seating and positioning specialist. Chair bases 
are all similar, but the seating and positioning is paramount.  Wheelchair Reps 
are not seating and positioning experts.  A bad seat will cost you and the 
payee lots of money over the next decade, if not done properly.  
   
   
   
Best Wishes  
   
   
   

In a message dated 6/30/2015 9:24:45 A.M. Central Daylight Time, 
diannal...@aol.com writes:   

my wheelchair rep has been back and says she'll be back with a different 
back. and back until i'm comfortable with my chair. but it's just so far off 
her measurements, i don't think this is right. i guess i'll be finding out. 
it's only my 2nd chair through medicaid in 25 yrs. but now, 25 yrs later, 
scoliosis has developed from not sitting correctly and i'm finding these chairs 
very uncomfortable. just venting because i think i'm going to be stuck with 
something i don't like. to get the back close to right, the legs are too long, 
etc. it is however my first recline, i had hoped a smoother transfer of chairs. 
  
dianna   

 
I beg to differ. Knowledge is Power and you have every right to say NO and not 
sign the required paperwork until you get exactly what you need. Remember that 
providers are guided by you requirements and needs.  They must comply with 
insurance perimeters and CMS codes.  Learn as much about the manufacturer via 
the internet.  You can try out anything you want. Manufacture Reps are more 
than willing. Take Charge of YOUR Life.  Otherwise others will.
   
   
   
   

-Original Message-
From: wheelchair wheelch...@aol.com
To: wheelsdw wheel...@centurylink.net; quad-list quad-list@eskimo.com   
 
Sent: Mon, Jun 29, 2015 10:11 pm
Subject: Re: [QUAD-L] new chair

 
  
  
I beg to differ. Knowledge is Power and you have every right to say NO and not 
sign the required paperwork until you get exactly what you need. Remember that 
providers are guided by you requirements and needs.  They must comply with 
insurance perimeters and CMS codes.  Learn as much about the manufacturer via 
the internet.  You can try out anything you want. Manufacture Reps are more 
than willing. Take Charge of YOUR Life.  Otherwise others will.


Best Wishe


 
In a message dated 6/29/2015 1:23:16 P.M. Central Daylight Time,  
wheel...@centurylink.net writes: 
 
 All companies the same. They do not give a crap about fitting the 
best 
chair. They should not get away with this.
Until you find a company that really cares and takes the time to 
evaluate you, You have to really spend the time to research your self. 
Then ask for a demo to try for a few weeks. Read reviews, ask other 
users and give it time to adjust for the change. A new different chair 
takes time to adjust to.

I do not think wheelchair manufactures and DME dealers consider people 
sitting in wheelchairs for 12 hours a day. They should spend the time in 
customers shoes and ride around town and into stores to see what its like.

DME are sparse in rural areas like I live in so there is not many 
choices. My friend down the road was just told to find another dealer 
after getting his new wheelchair just because he told them and argued 
that he never got a chest strap. A chest strap is not much $ but they 
could care less.

Its just another hosing that the disabled get. Here's your wheelchair, 
cushion or van, now go away until you can order a new one. Plus, I blame 
Med-i-dont-care for not paying for pressure mapping and for better 
equipment.
Derrick


On 6/29/2015 1:47 PM, Fragile wrote:
 I had similar problems with a quantum 600. When I complained to the
 company that sold me the chair, I was told, you got what you
 ordered. It was too wide. It was between 18 and 19 inches wide,
 ordered between 16 and 17. Come to find out later, 17 inches wasn't an
 option, so they went to 18. I just dealt with it for about 5 years,
 when I was eligible for a new chair I went to a different company.
 They sent somebody out to take measurements and whatnot. Showed up at
 my front door about a month later with a new wheelchair (permobil),
 without any warning. I wasn't ready

[QUAD-L] new chair

[diannal767]

my new chair was delivered in april. i.m going from an invacare tdx 5 to a 
quatrum 6000 recline chair. my question to all who all who received their new 
chair and had so many adjustments .being fitted and measured found they just 
hate the new chair. she told me the new chair would be a 1/2 difference in 
height, no so true. ( i don;t clear my kitchen table, my computer desk is now 
way to low) the back has been adjusted numerous times, i feel like i'm falling 
out of it. i have to put towels under my feet to prevent the drop look, they 
can't be adjusted up any further. this just isn't right is it? so not happy.
dianna

Re: [QUAD-L] new chair

[diannal767]

yeah, 17 is not an option. mine is 16 but 'suppose to be adjustable to 17 for 
coats in winterhaven't got to that adjustment! one would think a chair 
should NOT be such a HUGE transfer.
Dianna


I had similar problems with a quantum 600. When I complained to the
company
that sold me the chair, I was told, you got what you
ordered. It was too
wide. It was between 18 and 19 inches wide,
ordered between 16 and 17. Come to
find out later, 17 inches wasn't an
option, so they went to 18. I just dealt
with it for about 5 years,
when I was eligible for a new chair I went to a
different company.
They sent somebody out to take measurements and whatnot.
Showed up at
my front door about a month later with a new wheelchair
(permobil),
without any warning. I wasn't ready to take the new chair, I was
home
alone, nobody to transfer me into the new wheelchair so adjustments
could
be made. Luckily, they sent somebody out a few weeks later and
took care of
it.






-Original Message-
From: Fragile swl...@gmail.com
To: quad-list quad-list@eskimo.com
Sent: Mon, Jun 29, 2015 1:47 pm
Subject: Re: [QUAD-L] new chair


I had similar problems with a quantum 600. When I complained to the
company
that sold me the chair, I was told, you got what you
ordered. It was too
wide. It was between 18 and 19 inches wide,
ordered between 16 and 17. Come to
find out later, 17 inches wasn't an
option, so they went to 18. I just dealt
with it for about 5 years,
when I was eligible for a new chair I went to a
different company.
They sent somebody out to take measurements and whatnot.
Showed up at
my front door about a month later with a new wheelchair
(permobil),
without any warning. I wasn't ready to take the new chair, I was
home
alone, nobody to transfer me into the new wheelchair so adjustments
could
be made. Luckily, they sent somebody out a few weeks later and
took care of
it.

On 6/29/15, diannal...@aol.com diannal...@aol.com wrote:
 my new
chair was delivered in april. i.m going from an invacare tdx 5 to a
 quatrum
6000 recline chair. my question to all who all who received their
 new chair
and had so many adjustments .being fitted and measured found they
 just hate
the new chair. she told me the new chair would be a 1/2 difference
 in height,
no so true. ( i don;t clear my kitchen table, my computer desk is
 now way to
low) the back has been adjusted numerous times, i feel like i'm
 falling out
of it. i have to put towels under my feet to prevent the drop
 look, they
can't be adjusted up any further. this just isn't right is it? so
 not
happy.
 dianna



 

[QUAD-L] anniversary

[diannal767]

Hello all,
Today, 25 years ago, my brother, husband and I decided to go out for a ride on 
a beautiful, moonless June night on Lake Erie. The lake was smooth as glass. 
Going out they couldn't spot the steel breakwall and hit it. During this crash 
I was sleeping in the cuddy. My head was no competition to 1/4 inch of 
fiberglass and steel. It left me a C6/7 Quadriplegic. My husband's (Dave) got a 
broken shoulder as he was standing, looking for the breakwall and went through 
the steering wheel. My brother had stitches on his knee. My 3 yr old niece, 
also on board was thankfully not hurt! We took on no water and was able to 
drive the boat back to the coast guard station where I was lifeflighted to 
Cleveland. Man, I hate this story. Oh well, I'm still here!
Dianna
p.s. i don't post my years but this one marks 25 yrs!!

Re: [QUAD-L] Live in Aide

[diannal767]

no one can answer this question. it has a realm of questions in itself and the 
individual your hiring. will they have a $400.00 car paymnt, insurance, other 
expenses such as clothing. are you paying them under the table or will they 
need to pay taxes? i'm going to chime in at $2,000 a month. now anyone NEEDING 
a place to stay just might be the one you can't depend on.  could also depend 
on where you live.
dianna


   -Original Message-   
   From: memys...@cox.net [mailto:memys...@cox.net]
   Sent: Monday, June 15, 2015 9:25 AM   
   To: quad-list@eskimo.com   
   Subject: [QUAD-L] Live in Aide   
  
  
   Those with live-in attendants, other than room and board, how much do you 
pay them?
  
   And what is asking too much for them to do?
   If they work weekdays, when food shopping, is asking them to get groceries 
for weekend too much?
   Or when making dinner, adding more for a live-in failmy member too much?
   As far as cleaning, what's too much? Keeping cupboards and frig cleaned out? 
   
   Wiping floors off,   
   Things have changed over the years, I need more, but can't afford to pay 
more.
   But I've ask for so little over the years, asking for more now is like askig 
for a lot more, even though it still seems less than other quads probably ask 
for.
  
   I'd like to find out what others pay for live-in help. Not hourly, just 
monthly. 




-Original Message-
From: Larry Willis lwillis82...@gmail.com
To: quad-list quad-list@eskimo.com
Sent: Mon, Jun 15, 2015 4:24 pm
Subject: Fwd: [QUAD-L] Live in Aide


 
Don't know. But I do know it's considerably more than I could possibly afford. 
Don't want to be a downer, but there is no easy answer to quad life, unless you 
are wealthy. Would all the quad millionaires please raise your hand! Not all at 
once now! Might overload the net!  
  
Larry Willis  
Retired and proud of it  
  
   
  
 
 
  
Begin forwarded message:  
  
 
 
  
   Resent-From:quad-list@eskimo.com   
   From: Gail Overtonga...@pennwell.com   
   Date: June 15, 2015 at 12:33:56 PM EDT   
   To:memys...@cox.netmemys...@cox.net,quad-list@eskimo.com  
  quad-list@eskimo.com   
   Subject:RE: [QUAD-L] Live in Aide   
   
  
 
 
  
   I'd like to know as well, having been paying $13 an hour for caregivers but 
thinking of moving back home and hiring live-in help. Will not ask them to pay 
room and board and will buy all groceries, but would be curious to know what 
someone would need to be paid monthly if housing and meals are taken care of. 
ROGER   
  
  
   -Original Message-   
   From: memys...@cox.net [mailto:memys...@cox.net]
   Sent: Monday, June 15, 2015 9:25 AM   
   To: quad-list@eskimo.com   
   Subject: [QUAD-L] Live in Aide   
  
  
   Those with live-in attendants, other than room and board, how much do you 
pay them?
  
   And what is asking too much for them to do?
   If they work weekdays, when food shopping, is asking them to get groceries 
for weekend too much?
   Or when making dinner, adding more for a live-in failmy member too much?
   As far as cleaning, what's too much? Keeping cupboards and frig cleaned out? 
   
   Wiping floors off,   
   Things have changed over the years, I need more, but can't afford to pay 
more.
   But I've ask for so little over the years, asking for more now is like askig 
for a lot more, even though it still seems less than other quads probably ask 
for.
  
   I'd like to find out what others pay for live-in help. Not hourly, just 
monthly.
  
  
  
 

Re: [QUAD-L] Live in Aide

[diannal767]

one more bit advice that i forgot in my reply, write a CONTRACT or you might 
get stuck with a squatter who dooes the very least!!



-Original Message-
From: Danny Hearn ddh...@sbcglobal.net
To: diannal767 diannal...@aol.com; lwillis82153 lwillis82...@gmail.com; 
memyself memys...@cox.net; quad-list quad-list@eskimo.com
Sent: Tue, Jun 16, 2015 11:34 am
Subject: Re: [QUAD-L] Live in Aide


 
  
   True, Like Dianna and others said, It depends on whom you hire and what they 
are willing to do as a live in caregiver.In my area sleeping rooms alone go 
for an average of $100-$150 each week, So you figure that person can save at 
least $600 per month on rent, Plus they will not need to pay utility bills if 
you do, so they save that way also,After figuring that stuff in, then you need 
to write a list of all you want done and see how much cash they want on top of 
the free live in home, Like Dianna said if they just want pay under the table, 
they usually take a bit less, but you need to work out a monthly pay for them 
that you can both be happy with. Good luck, let us know how it works out when 
you get it all set up down the road.  Dan H.***  
   
  
   
   
  
  

 
  
On Tuesday, June 16, 2015 10:02 AM, diannal...@aol.com 
diannal...@aol.com wrote:
   
  
 
  
  
   no one can answer this question. it has a realm of questions in itself 
and the individual your hiring. will they have a $400.00 car paymnt, insurance, 
other expenses such as clothing. are you paying them under the table or will 
they need to pay taxes? i'm going to chime in at $2,000 a month. now anyone 
NEEDING a place to stay just might be the one you can't depend on.  could also 
depend on where you live. 
dianna 
  
  
   
-Original Message-
From: memys...@cox.net [mailto:memys...@cox.net] 
Sent: Monday, June 15, 2015 9:25 AM
To: quad-list@eskimo.com
Subject: [QUAD-L] Live in Aide


Those with live-in attendants, other than room and board, how much 
do you pay them? 

And what is asking too much for them to do? 
If they work weekdays, when food shopping, is asking them to get 
groceries for weekend too much? 
Or when making dinner, adding more for a live-in failmy member too 
much? 
As far as cleaning, what's too much? Keeping cupboards and frig 
cleaned out? 
Wiping floors off,
Things have changed over the years, I need more, but can't afford 
to pay more. 
But I've ask for so little over the years, asking for more now is 
like askig for a lot more, even though it still seems less than other quads 
probably ask for. 

I'd like to find out what others pay for live-in help. Not hourly, 
just monthly.   
 
  
  
  
  
-Original Message-  
 From: Larry Willis lwillis82...@gmail.com  
 To: quad-list quad-list@eskimo.com  
 Sent: Mon, Jun 15, 2015 4:24 pm  
 Subject: Fwd: [QUAD-L] Live in Aide  
   
   

 
 Don't know. But I do know it's considerably more than I could possibly afford. 
Don't want to be a downer, but there is no easy answer to quad life, unless you 
are wealthy. Would all the quad millionaires please raise your hand! Not all at 
once now! Might overload the net!  
  
 Larry Willis  
 Retired and proud of it  
  
   
  
 
 
  
 Begin forwarded message:  
  
 
 
  
   Resent-From:   quad-list@eskimo.com   
   From: Gail Overtonga...@pennwell.com   

   Date: June 15, 2015 at 12:33:56 PM EDT   
   To:memys...@cox.net
memys...@cox.net,quad-list@eskimo.com
quad-list@eskimo.com   
   Subject:   RE: [QUAD-L] Live in Aide   
   
  
 
 
  
   I'd like to know as well, having been paying $13 an hour for 
caregivers but thinking of moving back home and hiring live-in help. Will not 
ask them to pay room and board and will buy all groceries, but would be curious 
to know what someone would need to be paid monthly if housing and meals are 
taken care of. ROGER

Re: [QUAD-L] lyrica/scoilisos

[diannal767]

do you remember your dosage? i got up to 150mg 3xa day. i was having too many 
side effects, one being i was awake all night. i just went down to 150mg twice 
a day but i'm considering lowering even more. maybe 100mg twice a day. it's 
really helped me. i'm also in remission for cancer so i'm really not thinking 
about going off it completely. at this point, i'm looking for quality of life. 
(started lyrica 3 mos ago0
dianna


I was on lyrica for nerve pain right after my injury occurred. It worked well
for me, but I wanted to stop as many medications as possible. I remember lyrica
being one of the hardest meds to stop. It took a couple of tries. I reduced the
dose slowly. A few times I needed to increase the dose because the pain would
return. So I stayed at the higher dose for about a month, then reduced the dose
again. It took time, but eventually I stopped taking it and I haven't needed it
since then. 

Michelle 





-Original Message-
From: Michelle michelle.keph...@gmail.com
To: John S. alcibiat...@yahoo.com
Cc: Fragile swl...@gmail.com; diannal767 diannal...@aol.com; quad-list 
quad-list@eskimo.com
Sent: Mon, Jun 15, 2015 2:51 pm
Subject: Re: [QUAD-L] lyrica/scoilisos


I was on lyrica for nerve pain right after my injury occurred. It worked well
for me, but I wanted to stop as many medications as possible. I remember lyrica
being one of the hardest meds to stop. It took a couple of tries. I reduced the
dose slowly. A few times I needed to increase the dose because the pain would
return. So I stayed at the higher dose for about a month, then reduced the dose
again. It took time, but eventually I stopped taking it and I haven't needed it
since then. 

Michelle 



 On Jun 15, 2015, at 2:32 PM, John S.
alcibiat...@yahoo.com wrote:
 
 The doctor should tell you how to get off
Lyrica.  Cut your  dosage every 21 days until your off. After  another 21 days 
you're clean. Determination and self discipline are the keys. 
 Good Luck and
Best wishes, 
 John s.
 
 
  Original message 
 From:
Fragile swl...@gmail.com 
 Date: 06/15/2015 8:34 AM (GMT-05:00) 
 To:
diannal...@aol.com 
 Cc: quad-list@eskimo.com 
 Subject: Re: [QUAD-L]
lyrica/scoilisos 
 
 I've been on Lyrica for several years.  Started taking
it to try and
 relieve spinal cord injury related nerve pain.  It didn't help.
But,
 it did help with nausea.  It's caused weight gain, dry mouth and

lethargic.  I've tried to stop taking it a few times, but the
 withdrawal is
pretty bad.
 
 On 6/14/15, diannal...@aol.com diannal...@aol.com wrote:

 Has anyone tried Lyrica for SCI pain? It really helped my stiffness and
 
tightness in my back/chest. Dealing with scoliosis now. It sure is getting
 
hard to deal with. Constantly getting my position changed. Pain in my spine.

 Anyone else having this problem? (developed from 25 yrs in this chair)
 
Dianna
 
 

 

[QUAD-L] lyrica/scoilisos

[diannal767]

Has anyone tried Lyrica for SCI pain? It really helped my stiffness and 
tightness in my back/chest. Dealing with scoliosis now. It sure is getting hard 
to deal with. Constantly getting my position changed. Pain in my spine. Anyone 
else having this problem? (developed from 25 yrs in this chair)
Dianna

Re: [QUAD-L] Question

[diannal767]

we were considering a cruise to mexico, via miami. we looked at the rooms on a 
norwegian cruise line with a balcony and i saw nowhere that there was room to 
fit a wheelchair through. a regular room offered much less of course. it looked 
like once transferred. turn around, sit in one spot for grooming. we didn't 
check any further on accessible rooms when we found a round trip airline fare 
was $600.00 ea (bulk-head, coach) from cleveland to miami. round trip so we 
wouldn't have to worry about the chair on connecting flights. plus extra 
transfers as my husband is getting older and i no lighter in weight. i used an 
aisle chair to the bahamas 20 yrs ago. they insisted they had to maneuver me. 
they lost me going down the stairs.
dianna c6/7  not going.


   

Cruise ships especially the new ones, are wonderful in handicap accommodations. 
Handicapped rooms are half again the size of a regular room allowing for room 
to maneuver the wheelchair. Get a room with a balcony. The newer ships allow 
you access to a balcony so you can actually look at the flying Fish. Elevators 
are large enough for a power chair to enter and turn around to exit.





-Original Message-
From: Nan nlg52...@yahoo.com
To: Quad-list Post quad-list@eskimo.com; Larry Willis lwillis82...@gmail.com
Sent: Sun, Jun 7, 2015 10:28 pm
Subject: Re: [QUAD-L] Question


 
  
   I'd go for it in a heartbeat!!!  Have FUN!  
   
  
   
   
  
  

 
  
On Saturday, June 6, 2015 10:55 PM, Gail Holmes fgdhol...@cox.net 
wrote:
   
  
 
  
  
   

Also detailed  written   instructions attached to the chair.
 

 


 


 
 
Sent from my iPhone

 
On Jun 6, 2015, at 8:21 PM, Don Smith  scamper2...@gmail.com wrote:   
  
 


 
  
Show them how to lower the backrest and take your cushion, headrest, joystick 
and footrest and put them in overhead storage.  Tell them not to put the chair 
on it's side,the batteries may move and create issues you don't want or need.   
Also be at the boarding gate 45 minutes before boarding time, you well be first 
on and last off.  Enjoy the flight, look out the windows when you can.  
 
  
  
   
   
On Sat, Jun 6, 2015 at 5:02 PM, wheelch...@aol.com wrote: 
   

   
  
Wheelchair passengers transfer out of their chair at the boarding gate, into an 
aisle chair and transferred to their seat in the Jet.  Your chair should be 
in free wheel as it is loaded into the belly of the jet and may be set on its 
side.  Once you arrive at your destination, the aisle chair will be used 
again, from the jet to the arrival gate, where your chair should be.
   

Best Wishes   



 
In a message dated 6/6/2015 2:59:43 P.M. Central Daylight Time, 
 lwillis82...@gmail.com writes:
 
 Billy, great info, my friend. I appreciate you taking the time 
and effort to enlighten me. Very helpful! And how did you get off that plane?

-- Forwarded message --
From: William Lang III blan...@icloud.com
Date: Saturday, June 6, 2015
Subject: Re: [QUAD-L] Question
To: Larry Willis lwillis82...@gmail.com
Cc: quad-list quad-list@eskimo.com


   
Larry,

   

I am my C5 25 years post, and I been on cruises many times. I would like to 
think that the airlines have gotten better in caring for power chairs and their 
passengers. Sadly, it is an adventure in and of itself.   


   

Cruise ships especially the new ones, are wonderful in handicap accommodations. 
Handicapped rooms are half again the size of a regular room allowing for room 
to maneuver the wheelchair. Get a room with a balcony. The newer ships allow 
you access to a balcony so you can actually look at the flying Fish. Elevators 
are large enough for a power chair to enter and turn around to exit.
   


   

I recommend you Google to find instructions on how to get the most out of 
flying. Do not read posts older than two years because I don’t think they’ll be 
relevant.   


   

A caveat: I have had nightmarish experiences with airlines. Breaking chairs, 
leaving chairs at places of embarkation (I once flew from Vancouver to 

[QUAD-L] hello

[diannal767]

hi sonny! i'm dianna from ohio. c6/7 quad from a boating accident 25 yrs ago 
this june. if i knew then what i know now, i would never have gone out at night 
without spot lights. but i didn't and so here i am. i think you'll find this a 
very informative room on just about everything. anything on your mind, don't be 
afraid to ask, lol. again, welcome.
dianna
p.s. i play spades on facebook alot, if you like cards...check that out. spades 
plus i'm up to 3.8 million. was as high as 4.8. when i cash out, i'll get 
everyone together. oh...virtual money, would be nice though.

Re: [QUAD-L] interesting crime committed by quad

[diannal767]

Well that was interesting reading.



-Original Message-
From: RONALD L PRACHT r.pra...@sbcglobal.net
To: Quad-list Post quad-list@eskimo.com
Sent: Thu, May 21, 2015 2:57 am
Subject: [QUAD-L] interesting crime committed by quad


 

Quadriplegic Accused as Killer
  
 
  


  
   

 

   
  
   
   
  
   HOUSTON, Sept. 9—  A quadriplegic has been charged here with murdering his 
wife of two weeks by using his mouth to yank a string that was attached to the 
trigger of a handgun. Witnesses told the police that his wife had placed the 
string in his mouth just moments before.   
  
 The 37-year-old victim, Bertha Mae Burns, was slain Monday night at a bar 
where she and her wheelchair-bound husband, James B. Burns, 40, had been 
talking. The police described the weapon that killed her as a 9-millimeter 
pistol mounted on a small board that Mr. Burns had across his lap. A string ran 
around two small screws in the board, they said, with one end of the string 
running to the trigger. A shoebox that had covered the entire apparatus was 
removed before the shooting.   
  
 Mr. Burns was upset because his wife was planning to live in California and 
also because he suspected her of infidelity, the police said.   
  
 ''According to witnesses, they were sitting there talking in quiet tones,'' 
said a police detective, A. J. Toepel. ''She then got up and put a string in 
his mouth, and he jerked his head back once and the gun went off.'' 'Talked Me 
Into Killing Her'   
  
 A police sergeant, J C. Mosier, said Mrs. Burns must have placed the string in 
her husband's mouth, ''because he couldn't have done it.'' Sergeant Mosier said 
Mr. Burns, who was left a quadriplegic when shot several years ago by a 
previous wife, had told the police that he had wanted his wife to kill him but 
that ''she talked me into killing her.''   
  
 However, the sergeant said, Mr. Burns also told the police that he had jerked 
his head back only by accident. And in an interview Tuesday with The Houston 
Chronicle, Mr. Burns said: ''Somehow the string got pulled. Somehow she pushed 
my head back.''   
  
 In the interview, Mr. Burns could not explain why three bullets had hit his 
wife.   
  
 The police have filed a murder charge against Mr. Burns but have not taken him 
into custody. Instead, he has been allowed to remain home pending a review of 
the case by a judge and is expected to appear in court Thursday.   
  
   
  
  
Ron  
 

Re: [QUAD-L] Strange experience

[diannal767]

No, that's cool. May be something from heaven. I was sitting out reading my 
Bible about 10 yrs ago. Being very still for about 20 minutes. A squirrel 
jumped in my lap, on the Bible, looked up at me and left. But he (it) didn't 
seem alarmed at all. My Dad use to sit on his back porch just about everyday. 
Put a pile of birdseed out for the chipmunks. They use to walk up to him and 
stay there,
Dianna



-Original Message-
From: Larry Willis lwillis82...@gmail.com
To: quad-list quad-list@eskimo.com
Sent: Fri, May 15, 2015 9:32 pm
Subject: [QUAD-L] Strange experience


Peeps, I had a very strange experience today. I was sitting in my van to escape
the wind and read a book. My lil dog was in my lap and my desktop held my iPad.
It was all quiet and peaceful. My lift door was open. Suddenly a fluttering
sound filled the van. A brown bird with a long beak was sitting on the seat just
a foot away from me. I talked to him and he tilted his head sideways like he
understood. After a couple of minutes he jumped over on my arm, not ten inches
from my face. I continued to talk and he acted like he understood every word,
cocked his head sideways just like a dog. He was not the least bid afraid. I put
my face near him and he pecked me on the cheek. This went on for about twenty
minutes. Then he flew out the door, perched on a bush and looked at me, and then
flew away. I honestly felt like I had had a spiritual experience! And my
bark-a-lot chihuahua watched but never made a sound. Am I nuts? Or have I been
reading too much Edgar Allen Poe? It was a neat experience anyway.

Larry
Willis
Retired and proud of it


 

Re: [QUAD-L] New Chair

[diannal767]

I asked the rep about 7mph and that's what she told me. I did have the 
experience of taking it as fast as it could go on my neighborhood streets and 
it seems as fast as my Invacare TDX5sp. It goes 7mph. My new chair actually 
tells me how fast I'm going but I can't look down and see as my neighborhood 
streets are being completely redone this summer and seeing how fast I was going 
was not as important to me as crashing. I'll save that for our Metro Parks. I 
haven't been sitting in it because I'm waiting for prior authorization to have 
it modified for driving. Then I'll be able to take it to the park. Oh, but 
Greg, it's not even close to 8mph!
Dianna

Hmm, the Q600Z web page lists 8mph. Could 5mph be a Medicare rule, not FDA?
 I know if there were things uncovered before, that I could pay the difference. 
   
 My TDX5 clocks in at 6.5mph, but was listed at 7.5mph. Never as fast as listed 
though.
 Thanks, Greg




-Original Message-
From: Don Smith scamper2...@gmail.com
To: greg g...@eskimo.com
Cc: quad-list quad-list@eskimo.com
Sent: Thu, May 14, 2015 9:04 pm
Subject: Re: [QUAD-L] New Chair


 
Last year I got a permobil m300, with full tilt and legs can elevate.  My 20 % 
co-pay was $3400,on 19,000 plus cost.  It goes 6mph, but for an extra $1000.00 
out of pocket I could get faster motors that did 7mph.  That $1000.00 bought 
alot of food, and  I'm never late to eat.  
 
 
  
  
On Tue, May 12, 2015 at 5:29 PM, gregg...@eskimo.com wrote:   
   
Hmm, the Q600Z web page lists 8mph. Could 5mph be a Medicare rule, not FDA?
 I know if there were things uncovered before, that I could pay the difference. 
   
 My TDX5 clocks in at 6.5mph, but was listed at 7.5mph. Never as fast as listed 
though.
 Thanks, Greg
 
 
  hi greg,
  i don't know about insurance but i just got my new chair. it's a
  quantum 6000z. i really like it. going over bumps are nice. smooth
  ride. my rep told me 5mph was the max because of fda rules. still
  fast though!
 
 
  -Original Message-
  From: greg g...@eskimo.com
  To: quad-list quad-list@eskimo.com
  Sent: Tue, May 12, 2015 4:13 pm
  Subject: [QUAD-L] New Chair
 
 
  I need a new chair pretty soon. This one is falling apart. The
  repair shop said it's at the point it's costing more to keep it
  going. It needs motors, batteries, recline actuators. they all
  still work, just not great. My insurance covers 80%, but my 20% is
  still a big expense. The chair shop use to help out with co-pays,
  but now they have contracts with the insurance companies that say
  they wont do that anymore. I guess that prevents more people from
  getting chairs, keeps their costs down. I'm on a Medicare
  replacement program United
  Healthcare. I do not qualify for Medicaid. Anyone know of any type
  of  secondary insurance that would help? I'm liking the Quantum
  6000Z, 8mph. Greg
 

  
  
 
 

Re: [QUAD-L] Bras

[diannal767]

not shouting dear, that was friendly advice. if i need to shout about 
something, i will call you 3


-Original Message-
From: Gmail bobbiehumphre...@gmail.com
To: diannal767 diannal...@aol.com
Cc: quad-list quad-list@eskimo.com
Sent: Tue, May 12, 2015 10:40 pm
Subject: Re: [QUAD-L] Bras


 
Ok, ok you don't need to shout! LOL  
  
Smile Everyday 
 
  
On May 12, 2015, at 4:53 PM,   diannal...@aol.com wrote:  
  
 
 
  
   i quit buying those. i wear sports bras. i like the cheap ones at wal-mart 
with the spaghetti straps. bobbie...throw those wire ones away!! it's 2015. lol 
seriously though, look at sports bras, they have support. 
dianna 
  
  
  
-Original Message-  
 From: Gmail   bobbiehumphre...@gmail.com  
 To: quad-list   quad-list@eskimo.com  
 Sent: Tue, May 12, 2015 3:42 pm  
 Subject: [QUAD-L] Bras  
   
   

Ladies, what brand bras do find most comfortable in out situation?
I've been
wearing an underwire but need to get away from them but have no idea what brands
a good.Bobbie

Smile Everyday

   
  
 
   
 

Re: [QUAD-L] Quad accident- flip overs

[diannal767]

I have a lot of crazy stories but I'll share one real quick. I went drag racing 
with Dave to a local strip on a Wednesday night (passenger night).
The car broke down that night and there was no way he could make it home. Had 
to call a tow truck. We waited until mid-night and the track offered their 
hospitality of waiting with us inside the gates. Waited  waited. We see the 
lights show up at the entry gates. It gets closer and our jaws drop. It's a cab 
over, not a one-ton flat bed. He, by himself, got me up there. I had not been 
so high in a long time. Of course they couldn't leave me in the car which I 
begged for. Got home. The guy unloads the car. I gotta get out of this monster. 
Dave swings my legs around. I'm in a sitting position facing out the door 
holding on to a handle for pulling yourself up there. He's wayyy down there 
with my manual chair next to him. I'm crying, scared shitless (i'm sorry) he 
said You have to trust me, Diane, when I say let go, let go of it He yelled, 
 Let go.  God must've pushed me because I let go, made a Perfect landing to 
his arms, his arms to my chair like we did it a 100 times in practice. I just 
to this day, can't believe he did that! We were not drinking in this story, to 
the best of my recollection.
Dianna



-Original Message-
From: Gmail bobbiehumphre...@gmail.com
To: RONALD L PRACHT r.pra...@sbcglobal.net
Cc: Quad-list Post quad-list@eskimo.com
Sent: Wed, May 13, 2015 12:07 pm
Subject: Re: [QUAD-L] Quad accident- flip overs


 
This story Ron sounds like something I would have done. Love it!  Bobbie  
  
Smile Everyday 
 
  
On May 13, 2015, at 6:03 AM, RONALD L PRACHT   r.pra...@sbcglobal.net wrote:  
  
 
 
  
   

 I had a crazy deal at a friends trailer one night. I got intoxicated and had 
to try to get out the door to catherize off the deck. I did a wheelie to get 
over the threshold and flipped back, hit my head on the wooden coach arm them 
broke all four brackets off the back of my chair. Someone flipped me back over 
but I had to lean forward because the back was gone. The girl that brought me 
to the party said it was her perrogative not to take me home. Eventually an 
indian guy got me down the stairs into his car and home. My dad was so pissed 
off, he had to rebuild the chair that night. 

 


Ron
   
  
 

Re: [QUAD-L] Bras

[diannal767]

-Original Message-
From: Gmail bobbiehumphre...@gmail.com
To: diannal767 diannal...@aol.com
Sent: Thu, May 14, 2015 2:22 pm
Subject: Re: [QUAD-L] Bras


 
Just busting chops my friend.   \uD83C\uDF7B  
  
Smile Everyday 
 
  
On May 14, 2015, at 12:43 PM,   diannal...@aol.com wrote:  
  
 
 
  
   
 not shouting dear, that was friendly advice. if i need to shout about 
something, i will call you 3
 
 
-Original Message- 
 From: Gmail  bobbiehumphre...@gmail.com 
 To: diannal767  diannal...@aol.com 
 Cc: quad-list  quad-list@eskimo.com 
 Sent: Tue, May 12, 2015 10:40 pm 
 Subject: Re: [QUAD-L] Bras 
  
  
   

 Ok, ok you don't need to shout! LOL 
 
 Smile Everyday

 
 On May 12, 2015, at 4:53 PM, diannal...@aol.com wrote: 
 


 
  i quit buying those. i wear sports bras. i like the cheap ones at 
wal-mart with the spaghetti straps. bobbie...throw those wire ones away!! it's 
2015. lol seriously though, look at sports bras, they have support.   
 dianna



 -Original Message- 
 From: Gmail  bobbiehumphre...@gmail.com 
 To: quad-list  quad-list@eskimo.com 
 Sent: Tue, May 12, 2015 3:42 pm 
 Subject: [QUAD-L] Bras 
 
 
  
Ladies, what brand bras do find most comfortable in out situation?
I've been
wearing an underwire but need to get away from them but have no idea what brands
a good.Bobbie

Smile Everyday

 

   
  

   
  
 
   
 

Re: [QUAD-L] Quad accident- flip overs

[diannal767]

I have a lot of crazy stories but I'll share one real quick. I went drag racing 
with Dave to a local strip on a Wednesday night (passenger night).
The car broke down that night and there was no way he could make it home. Had 
to call a tow truck. We waited until mid-night and the track offered their 
hospitality of waiting with us inside the gates. Waited  waited. We see the 
lights show up at the entry gates. It gets closer and our jaws drop. It's a cab 
over, not a one-ton flat bed. He, by himself, got me up there. I had not been 
so high in a long time. Of course they couldn't leave me in the car which I 
begged for. Got home. The guy unloads the car. I gotta get out of this monster. 
Dave swings my legs around. I'm in a sitting position facing out the door 
holding on to a handle for pulling yourself up there. He's wayyy down there 
with my manual chair next to him. I'm crying, scared shitless (i'm sorry) he 
said You have to trust me, Diane, when I say let go, let go of it He yelled, 
 Let go.  God must've pushed me because I let go, made a Perfect landing to 
his arms, his arms to my chair like we did it a 100 times in practice. I just 
to this day, can't believe he did that! We were not drinking in this story, to 
the best of my recollection.
Dianna



-Original Message-
From: Gmail bobbiehumphre...@gmail.com
To: RONALD L PRACHT r.pra...@sbcglobal.net
Cc: Quad-list Post quad-list@eskimo.com
Sent: Wed, May 13, 2015 12:07 pm
Subject: Re: [QUAD-L] Quad accident- flip overs


 
This story Ron sounds like something I would have done. Love it!  Bobbie  
  
Smile Everyday 
 
  
On May 13, 2015, at 6:03 AM, RONALD L PRACHT   r.pra...@sbcglobal.net wrote:  
  
 
 
  
   

 I had a crazy deal at a friends trailer one night. I got intoxicated and had 
to try to get out the door to catherize off the deck. I did a wheelie to get 
over the threshold and flipped back, hit my head on the wooden coach arm them 
broke all four brackets off the back of my chair. Someone flipped me back over 
but I had to lean forward because the back was gone. The girl that brought me 
to the party said it was her perrogative not to take me home. Eventually an 
indian guy got me down the stairs into his car and home. My dad was so pissed 
off, he had to rebuild the chair that night. 

 


Ron
   
  
 

Re: [QUAD-L] New Chair

[diannal767]

hi greg,
i don't know about insurance but i just got my new chair. it's a quantum 6000z. 
i really like it. going over bumps are nice. smooth ride. my rep told me 5mph 
was the max because of fda rules. still fast though! 



-Original Message-
From: greg g...@eskimo.com
To: quad-list quad-list@eskimo.com
Sent: Tue, May 12, 2015 4:13 pm
Subject: [QUAD-L] New Chair


I need a new chair pretty soon. This one is falling apart. The repair shop said
it's at the point it's costing more to keep it going. It needs motors,
batteries, recline actuators. they all still work, just not great. My insurance
covers 80%, but my 20% is still a big expense. The chair shop use to help out
with co-pays, but now they have contracts with the insurance companies that say
they wont do that anymore. I guess that prevents more people from getting
chairs, keeps their costs down.

I'm on a Medicare replacement program United
Healthcare. I do not qualify for Medicaid. Anyone know of any type of  secondary
insurance that would help?

I'm liking the Quantum 6000Z, 8mph.

Greg


 

Re: [QUAD-L] Bras

[diannal767]

i quit buying those. i wear sports bras. i like the cheap ones at wal-mart with 
the spaghetti straps. bobbie...throw those wire ones away!! it's 2015. lol 
seriously though, look at sports bras, they have support.
dianna



-Original Message-
From: Gmail bobbiehumphre...@gmail.com
To: quad-list quad-list@eskimo.com
Sent: Tue, May 12, 2015 3:42 pm
Subject: [QUAD-L] Bras


Ladies, what brand bras do find most comfortable in out situation?
I've been
wearing an underwire but need to get away from them but have no idea what brands
a good.Bobbie

Smile Everyday

 

Re: [QUAD-L] Low sodium in blood

[diannal767]

That was my first thought. I'm obviously not a doctor but my blood pressure is 
usually low. I don't add salt to my food, just tons of pepper. When I eat 
french fries or popcorn I add enough salt that my family says, Gross. or they 
just shake their heads. So! ?? Is there any other way to add sodium to our 
blood? What happens if we don't have enough?
Dianna ~ -- curious


-Original Message-
From: Larry Willis lwillis82...@gmail.com
To: quad-list quad-list@eskimo.com
Sent: Mon, May 4, 2015 11:44 am
Subject: Fwd: [QUAD-L] Low sodium in blood


 
Dave, does that mean you need to eat more salt?  
  
Larry Willis  
Retired and proud of it  
  
   
  
 
 
  
Begin forwarded message:  
  
 
 
  
   Resent-From:quad-list@eskimo.com   
   From: DAVID LEWIScurlyle...@verizon.net   
   Date: May 4, 2015 at 11:40:15 AM EDT   
   To: Quad-list Postquad-list@eskimo.com   
   Subject:[QUAD-L] Low sodium in blood   
   Reply-To: DAVID LEWIScurlyle...@verizon.net   
   
  
 
 
  
   

I have been sick last 2 weeks with pneumonia.

I feel way better now. But i have low sodium from my blood work. Has anyone 
else had this.?

Thanks
   
  
 

Re: [QUAD-L] Weakness

[diannal767]

I use to get so dizzy after eating. It went away on it's on but it was so bad, 
it only happened if i hate before about 5.p.m. I went to lunch with my mother 
once close to home. On the way home I had one traffic light. I could feel it 
coming on, I couldn't really see what color the light was. Had to pull over for 
awhile. Blood does rush from the brain to the stomach to help in digestion. 
Someone told me this, not a doctor.But my issues quit. It lasted about 6 mos
Dianna p.s. might want to wear a binder.


On 5/1/2015 10:04 PM, Larry Willis wrote:  
  
  
   
On these weak days I am afraid to drive. I get dizzy when I eat. Eyes get 
blurry. Wear out brushing my teeth.





-Original Message-
From: Derrick wheel...@centurylink.net
To: quad-list quad-list@eskimo.com
Sent: Sat, May 2, 2015 4:12 pm
Subject: Re: Fwd: [QUAD-L] Weakness


  
ever get your thyroid checked? does it run in family?  
 my friend has had lot of issues with hers(able body), my sister had to have 
hers burned out whereas i'm opposite and take synthroid daily.  
 could be many of things but doc usually runs full blood test to look for 
deficiency's   
   
 On 5/1/2015 10:04 PM, Larry Willis wrote:  
  
  
   
On these weak days I am afraid to drive. I get dizzy when I eat. Eyes get 
blurry. Wear out brushing my teeth.   

 Larry Willis
Retired and proud of it   



   
   
   
 Begin forwarded message:   

   
   

From: greg g...@eskimo.com
 Date: May 1, 2015 at 9:33:06 PM EDT
 To: lwillis82...@gmail.com
 Subject: Re: [QUAD-L] Weakness
 

   
   

Happens a lot to me. Especially days when I leave my binder off.
 I get lightheaded a lot and it gets bad then.
 But it can happen any time. Usually when I'm tired.
 Greg
 
 
 You guys ever have days that you feel unusually weak? I have days, 
 
 
 like today, that I can barely hold my arms up. Don't know why. 
 
 
  
 
 
  
 
 
 Sent from Surface 
 

   
  
  
 

Re: [QUAD-L] new chair

[diannal767]

i sure will! my problem is i ALWAYS gotta watch sidewalks or uneven terrain 
because my driving bolt gets stuck. :-(
i'll let you know about gravel though because my other chair got stuck in deep 
grade gravel. this one has wider wheels.


If you're ever forced to use it outside in uneven terrain (sand or
gravel)
would you let me know how well it does?

On 4/30/15, diannal...@aol.com
diannal...@aol.com wrote:
 Hi,
 I got my new chair yesterday. It's a
Quatrum Q6Edge series. I really *will*
 like it. Having trouble getting the
back adjusted correctly. I feel like its
 trying to push me forward. My peeps
can see it do so. between the wheelchair
 tech and my Dave, they think a wedge
under the cushion will help. I recline
 it back a tiny bit and use it like
that for now. can't stay this way because
 I can't get under things. and I'll
be driving in it. 25 yrs in a chair in
 june. My first tilt, my first with
lateral support and no canvas back. I
 chose silver and the wider wheels so I
could get the *chrome* wheels i
 wanted. not worried about terrain so much
because my driving bolt for the
 E-Z lock catches everything.
 Dianna





-Original Message-
From: Fragile swl...@gmail.com
To: diannal767 diannal...@aol.com
Sent: Sat, May 2, 2015 2:32 pm
Subject: Re: [QUAD-L] new chair


If you're ever forced to use it outside in uneven terrain (sand or
gravel)
would you let me know how well it does?

On 4/30/15, diannal...@aol.com
diannal...@aol.com wrote:
 Hi,
 I got my new chair yesterday. It's a
Quatrum Q6Edge series. I really *will*
 like it. Having trouble getting the
back adjusted correctly. I feel like its
 trying to push me forward. My peeps
can see it do so. between the wheelchair
 tech and my Dave, they think a wedge
under the cushion will help. I recline
 it back a tiny bit and use it like
that for now. can't stay this way because
 I can't get under things. and I'll
be driving in it. 25 yrs in a chair in
 june. My first tilt, my first with
lateral support and no canvas back. I
 chose silver and the wider wheels so I
could get the *chrome* wheels i
 wanted. not worried about terrain so much
because my driving bolt for the
 E-Z lock catches everything.
 Dianna


 

[QUAD-L] new chair

[diannal767]

Hi,
I got my new chair yesterday. It's a Quatrum Q6Edge series. I really *will* 
like it. Having trouble getting the back adjusted correctly. I feel like its 
trying to push me forward. My peeps can see it do so. between the wheelchair 
tech and my Dave, they think a wedge under the cushion will help. I recline it 
back a tiny bit and use it like that for now. can't stay this way because I 
can't get under things. and I'll be driving in it. 25 yrs in a chair in june. 
My first tilt, my first with lateral support and no canvas back. I chose silver 
and the wider wheels so I could get the *chrome* wheels i wanted. not worried 
about terrain so much because my driving bolt for the E-Z lock catches 
everything.
Dianna

Re: [QUAD-L] That dreaded bowel routeen question

[diannal767]

 In Ohio, an aid can't do leg bags or bowel care anyway. But an agency should 
steer you towards a nursing agency. I have an Independant care provider for my 
help who does all that on *his personal time*. But I did talk to a woman who 
was a nurse that lives not far from me. I was looking for an independent care 
provider back-up besides family and found her care through state lists. I'm on 
Medicaid. Some states may not have independants. I know California does. Keeps 
you away from agency aides. God Bless all of you who has a good onethey're 
out there.
dianna


 Original message   
   
From: DAVID LEWIScurlyle...@verizon.net   
   
Date:04/28/2015 8:29 PM (GMT-05:00)   
   
To: Quad-list Postquad-list@eskimo.com   
   
Cc:   
   
Subject: [QUAD-L] That dreaded bowel routeen question   
   
   
   
   

My brother helps me with my bowel care.

But he has to go on a trip. Is there a service or anything that you can get 
help with.
 how does others do it when they are all alone? There has to be something.   




pease give me help.   

Johnny





-Original Message-
From: Derrick wheel...@centurylink.net
To: quad-list quad-list@eskimo.com
Sent: Tue, Apr 28, 2015 9:44 pm
Subject: Re: [QUAD-L] That dreaded bowel routeen  question


  
I had family for 1st year of sci. I then moved into a house by myself and got 
services through home agency. It was scary at first. But I have done it now for 
15 years. I hire, fire  do schedule.I've had good and bad. I live in rural 
area so everybody knows everyone. I can weed out the bads before hiring. You 
have to bite your tongue sometimes but be honest upfront what you need done and 
how. You have to be flexible.   
 No one likes to work for an ahole. I have had dozens of workers and I only 
needed to fire one for stealing and another few from not showing up. I put up 
cameras now. I tell them up front that I need you to show up no matter what if 
another caregiver cannot cover. I live by myself. You treat them with respect 
they usually do same.  
 Maybe it different for big city people  
 Derrick W  
   
 On 4/28/2015 9:10 PM, John S. wrote:  
  
  
 Personally, I am big on aids and nursing agencies. Everyone burns out. It's 
better if it isn't family members. You can replace aides and nurses but family 
should be the last option. Keep your family close by giving them space.   
Hiring and firing is hard to do but if you're going to control your life it's 
something you have to learn. I know how it seems like an intimate job but it's 
just a job that needs to be done right and timely. IMHO  
   
BEST WISHES,  
   
John   
   
   
   
 Original message   
   
From: DAVID LEWIScurlyle...@verizon.net   
   
Date:04/28/2015 8:29 PM (GMT-05:00)   
   
To: Quad-list Postquad-list@eskimo.com   
   
Cc:   
   
Subject: [QUAD-L] That dreaded bowel routeen question   
   
   
   
   

My brother helps me with my bowel care.

But he has to go on a trip. Is there a service or anything that you can get 
help with.
 how does others do it when they are all alone? There has to be something.   




pease give me help.   

Johnny   
   
  
  
 

Re: [QUAD-L] That dreaded bowel routeen question

[diannal767]

Gene,
Being a C5 complete quad to do all that, I applaud you. And transfers? Your 
doing super! I'm a C6/7 complete, 25 yrs in June
Dianna


Hello Johnny-  
  
   
  
  
(This is my 1st reply so pardon the cross posting if it occurs)   
  
   
  
  
I have been a c5 complete quad for 22 years. About 5 years into this new 
lifestyle I needed to travel for my job. A caregiver was going with me but she 
had never helped me with my bowel care before. So about 6 months before the 
trip I started trying everything I could to do as much of it myself as 
;possible. It wasn't long before I taught myself to be independent with my own 
bowel care. This is how I still do it.  
  
   
  
  
I use an EJ shower/commode chair. Stainless steel w/ gray upholstery. They 
stopped making these but you can still find some new or gently used ones on 
Craigslist and such. This chair has enough space below the cushion and the 
frame (on either side) to reach below your bottom.  
  
   
  
  
I use both a (1) suppository inserter and (2) dilly stick. I have my caregiver 
put a magic bullet in the suppository inserter once I have it on my hand.   
  
   
  
  
I have used a variety of mirrors over the years. I finally settled on a common 
bicycle mount (round) mirror that attaches to the frame, by the front castor. I 
lean to my left side with my right arm wrapped around the push handle. I insert 
the suppository and wait. I do the same with the dilly stick.   
  
   
  
  
The only thing I need help with is cleaning the 2 instruments and throwing out 
the trash. You see, I position a garbage can below my chair when I do my bowel 
program. That's it!  
  
   
  
  
Hope this helps you!   
  
  
Cheers,  
  
Gene  
  
   
  
  
   
Growing old is mandatory...
Growing wise is optional...





-Original Message-
From: Gene Heppard ginowhee...@yahoo.com
To: diannal767 diannal...@aol.com; wheelsdw wheel...@centurylink.net; 
quad-list quad-list@eskimo.com
Sent: Tue, Apr 28, 2015 11:10 pm
Subject: Re: [QUAD-L] That dreaded bowel routeen  question


 
  
 
  
  
Hello Johnny-  
  
   
  
  
(This is my 1st reply so pardon the cross posting if it occurs)   
  
   
  
  
I have been a c5 complete quad for 22 years. About 5 years into this new 
lifestyle I needed to travel for my job. A caregiver was going with me but she 
had never helped me with my bowel care before. So about 6 months before the 
trip I started trying everything I could to do as much of it myself as 
;possible. It wasn't long before I taught myself to be independent with my own 
bowel care. This is how I still do it.  
  
   
  
  
I use an EJ shower/commode chair. Stainless steel w/ gray upholstery. They 
stopped making these but you can still find some new or gently used ones on 
Craigslist and such. This chair has enough space below the cushion and the 
frame (on either side) to reach below your bottom.  
  
   
  
  
I use both a (1) suppository inserter and (2) dilly stick. I have my caregiver 
put a magic bullet in the suppository inserter once I have it on my hand.   
  
   
  
  
I have used a variety of mirrors over the years. I finally settled on a common 
bicycle mount (round) mirror that attaches to the frame, by the front castor. I 
lean to my left side with my right arm wrapped around the push handle. I insert 
the suppository and wait. I do the same with the dilly stick.   
  
   
  
  
The only thing I need help with is cleaning the 2 instruments and throwing out 
the trash. You see, I position a garbage can below my chair when I do my bowel 
program. That's it!  
  
   
  
  
Hope this helps you!   
  
  
Cheers,  
  
Gene  
  
   
  
  
   
Growing old is mandatory...
Growing wise is optional...   
  
   
  
   
   
  
  

 
  
On Tuesday, April 28, 2015 7:00 PM, diannal...@aol.com 
diannal...@aol.com wrote:
   
  
 
  
  
   
 In Ohio, an aid can't do leg bags or bowel care anyway. But an agency 
should steer you towards a nursing agency. I have an Independant care provider 
for my help who does all that on *his personal time*. But I did talk to a woman 
who was a nurse that lives not far from me. I was looking for an independent 
care provider back-up besides family and found her care through state lists. 
I'm on Medicaid. Some states may not have independants. I know California does. 
Keeps you away from agency aides. God Bless all of you who has a good 
onethey're out there. 
dianna 
  
  

 Original message 

 From: DAVID LEWIS curlyle...@verizon.net

 Date:04/28/2015 8:29 PM (GMT-05:00)

 To: Quad-list Post quad-list@eskimo.com

 Cc:

 Subject: [QUAD-L] That dreaded bowel routeen question

 


 
 My

Re: [QUAD-L] Showers

[diannal767]

me too linda! i only have isabella though. she sure lightened my moods many, 
many times over 3 i'm waiting for her to bike her butt over as i write. she's 
gonna help walk the dogs with me.
dianna


I try to stay positive most of the time, I feel lucky to have 4 grandchildren 
born since my injury. I spend time with them  now watching them grow into 
teenagers!  
  
Lindaf





-Original Message-
From: lindakrn linda...@comcast.net
To: Gmail bobbiehumphre...@gmail.com
Cc: quad-list quad-list@eskimo.com
Sent: Fri, Apr 17, 2015 2:28 pm
Subject: Re: [QUAD-L] Showers


 
  
I try to stay positive most of the time, I feel lucky to have 4 grandchildren 
born since my injury. I spend time with them  now watching them grow into 
teenagers!  
  
Lindaf  
  
   
  
  
  
   From: Gmail bobbiehumphre...@gmail.com   
   To: Joan Anglin poaj...@sbcglobal.net   
   Cc: Danny Hearn ddh...@sbcglobal.net, shirley bell sbell...@cox.net, 
Larry Willis lwillis82...@gmail.com, quad-list@eskimo.com 
quad-list@eskimo.com   
   Sent: Thursday, April 16, 2015 1:19:33 PM   
   Subject: Re: [QUAD-L] Showers   
   

   
   
Joan, when my sister and I drove cross country we stayed in Lake Tahoe for few 
days on the north west end, WOW was it extraordinarily beautiful ... we didn't 
want to leave.   Bobbie 

 

Smile Everyday   
   

On Apr 16, 2015, at 11:54 AM, Joan Anglin poaj...@sbcglobal.net wrote:

 

   
   

 
  
Thanks for sharing Bobbie
  
I grew up in Reno Nevada, hunting, fishing. We have one of the most beautiful 
lakes in the world nearby, Lake Tahoe and one of the most unique lakes, salt 
water Pyramid lake with its own landlocked flock of pelicans, places where you 
can stand on the pony express trail and imagine what it was like, and mountains 
where as a child I believed no one else had ever seen that particular view.
  
When I returned from 10 years in Europe I wanted to return here so that my 
children would have the same opportunity’s. I have never regretted it, although 
I would’ve made much more money working for Purina in St. Louis. J
  
I can sit in my backyard and remember what it was like 26 years ago to ride one 
of our horses through the mine tailings on the side of the mountain right above 
me, laughing at my city slicker friends who were very nervous riding a horse on 
an incline so steep that you could reach out and touch the ground on the uphill 
side. Or sliding down the hillside with the horses hind leg tucked under them 
and wondering who was enjoying it more, me or the horses!
  
Memories.
  
Joan
  
 
  
   

From: Gmail [mailto:bobbiehumphre...@gmail.com] 
Sent: Wednesday, April 15, 2015 5:58 PM
To: Danny Hearn
Cc: shirley bell; Larry Willis; quad-list@eskimo.com
Subject: Re: [QUAD-L] Showers
   
  
  
 
  
   

 
  
   
Dan, I think you can relate to this incredible true story ... and few others of 
you as well.
  
  
   
 
  
  
   
I was 16, 1 year before my accident, camping in the adirondack mountains, 
(specifically Saranac Lake) it was 1972.
  
  
   
 
  
  
   
I woke up in my sleeping bag snuggled warm inside a half wood half canvas cabin 
with no running water or electricity. It was just bearly starting to get light 
out at 5:35am with my sister's and a friend still sleeping near by.
  
  
   
I pulled my legs out of the flannel bag and put my bare feet on the sandy 
wooden floor to search for my sneakers. As I tip toed to the screen door, I 
took my time to open it as to not wake anybody so I can have this precious time 
to myself.
  
  
   
It was just light enough that I needn't light the Lantrens to find my way to 
the lake at the bottom of the sandy trail cut through wild blueberries bushes.
  
  
   
I finally came upon my destination, an old green wooden canoe that had been 
pulled up upon the shore. I got in as quietly as possible and picked up an oar 
without making a sound.
  
  
   
My father had taught me how to Indian paddle many years ago, a technique that 
was virtually silent. Once the paddle is in the water it never comes out. With 
some clever turns of the oar I had mastered the technique.
  
  
   
I'm now right where I want to be ... in the middle of the Placid lake with fog 
hanging over the water not yet burned off. I just sat there, then finally I 
start to hear one bird start to waken with a chirp here and there. Then another 
bird returns his call.   It's now getting brighter and the fog is starting 
to burn off the calm water.
I laid back against the back of the canoe and watched my little part of the 
world wake up.
  
  
   
It was one of the most exhilarating 

Re: [QUAD-L] Showers

[diannal767]

i do miss just getting up WHEN i wake up and not have to wait. my g-daughter 
just turned 12. she comes over often (same neighborhood) we listen to music 
alot and you tube in my room. i have an awesome speaker system on my pc. she 
dances. i sooo wish i could dance with her.it takes me back to being 12-13, 
listening to 45's with my friends. just last night, she did the shimmy to a 
song and i said o' my gosh, i could never do that! my friends use to do it to 
wipe-out. as far as showers, i have a wonderful handicap accessible home but 
you couldn't pay me to take a shower in the morning. i hurt too much. most of 
all, i'd like to do more with isabella. i would love to go on a hike and go 
swimming with her. o'well, at least i have what i have with her and we do 
plenty. god has surely blessed me with her her presence. she's my soul-shine 3



-Original Message-
From: lindakrn linda...@comcast.net
To: Gmail bobbiehumphre...@gmail.com
Cc: quad-list quad-list@eskimo.com
Sent: Wed, Apr 15, 2015 2:14 pm
Subject: Re: [QUAD-L] Showers


 
  
I feel like you do about the showers being able to jump in anytime. Same thing 
about not doing fun things  trips with my grandkids. I cry too!  
  
lindaf  
  
   
  
  
  
   From: Gmail bobbiehumphre...@gmail.com   
   To: quad-list quad-list@eskimo.com   
   Sent: Tuesday, April 14, 2015 8:08:04 PM   
   Subject: [QUAD-L] Showers   
   

   
I was watching a movie and the actor in the scene woke up, pushed the covers 
off, sat up, put her feet on the floor, stood up and walked in to the shower 
right after dropping off her PJ's.   
It took about 1 minute.
I turned off the TV and tried to remember how that felt ... but I can't.
I couldn't stop crying.   
I can't tell you how many times I've heard family or friends say
I'm going to jump in the shower.
Or
I got home,  I was so dirty I had to jump in the shower.   
   

   
I know, I know I should be over feeling like this and it not make me cry after 
ALL these years.   
So I'm asking;   
   Does anybody else still get up set or bothered by what I described 
above?   
   

   
Smile Everyday   
  
  
   
  
 

Re: [QUAD-L] Showers

[diannal767]

ohh, i forgot to mention the grass and beach. the day of my accident we were 
playing volleyball on fresh cut grass. later went on the boat  crashed. never 
had shoes on the whole day. it was one of those summer days when ya needed to 
take a scrub brush to your feet. well, i didn't get that far. what the doc's 
and nurses musta thought of those dirty dark green feet, lol
dianna

Beautifully said, Danny. I can identify with every word you said. Waking up to 
renewed realization is the worst part of my day. My wife is my helper and she 
has developed heart problems..and all I can do is be a burden. Guilt, 
anger, and depression are eating me alive. 
 
-- Forwarded message -- 
From:  Danny Hearn  ddh...@sbcglobal.net 
Date: Wednesday, April 15, 2015 
Subject: [QUAD-L] Showers 
To: shirley bell  sbell...@cox.net, Larry Willis  lwillis82...@gmail.com 
Cc:  quad-list@eskimo.com  quad-list@eskimo.com 
 
 
 
  
   
I hear you all and can relate, Bobbie,Larry and Shirley-- I woke up like 
you said today Larry.Oh lord another feeling bad day but gotta get up and 
make doIt don't help that my wife and only caregiver suffers from awful 
migraine headaches for days at a time and is now had one again for 2 straight 
days, wish I could help her at times but I can't.  Yes Bobbie, like you I 
sometimes think of things we used to do but can't now...like you said, walking 
into a shower on your own when you want too, walking and feeling the sand on a 
beach or the cool grass under your bare feet, I used to get in a boat and go to 
out to far isolated places of beauty on a lake to fish and enjoy nature, used 
to love long hikes deep into wooded forestsI think of these things at times 
but then get back into present reality and try to enjoy what simple things in 
life I still can, I guess we all do.  Dan H*






-Original Message-
From: Larry Willis lwillis82...@gmail.com
To: quad-list quad-list@eskimo.com
Sent: Wed, Apr 15, 2015 12:37 pm
Subject: Fwd: [QUAD-L] Showers


Beautifully said, Danny. I can identify with every word you said. Waking up to 
renewed realization is the worst part of my day. My wife is my helper and she 
has developed heart problems..and all I can do is be a burden. Guilt, 
anger, and depression are eating me alive. 
 
-- Forwarded message -- 
From:  Danny Hearn  ddh...@sbcglobal.net 
Date: Wednesday, April 15, 2015 
Subject: [QUAD-L] Showers 
To: shirley bell  sbell...@cox.net, Larry Willis  lwillis82...@gmail.com 
Cc:  quad-list@eskimo.com  quad-list@eskimo.com 
 
 
 
  
   
I hear you all and can relate, Bobbie,Larry and Shirley-- I woke up like 
you said today Larry.Oh lord another feeling bad day but gotta get up and 
make doIt don't help that my wife and only caregiver suffers from awful 
migraine headaches for days at a time and is now had one again for 2 straight 
days, wish I could help her at times but I can't.  Yes Bobbie, like you I 
sometimes think of things we used to do but can't now...like you said, walking 
into a shower on your own when you want too, walking and feeling the sand on a 
beach or the cool grass under your bare feet, I used to get in a boat and go to 
out to far isolated places of beauty on a lake to fish and enjoy nature, used 
to love long hikes deep into wooded forestsI think of these things at times 
but then get back into present reality and try to enjoy what simple things in 
life I still can, I guess we all do.  Dan H*   

   


   
   
 
  
   
 On Wednesday, April 15, 2015 10:21 AM, shirley bell sbell...@cox.net 
wrote:

   
  
   
   
 
  
  same here, sometimes it takes all I have not to scream at people who 
complain about the stupidest stuff or feel so sad seeing friends and strangers 
do things I can't. I seems to have gotten worse for me as all these yrs have 
passed. I thought things got easier??? Oh well, we all seem to struggle with it 
so at least we are not alone. I TRY everyday to keep positive and look at what 
I have and not what I don't, which is allot. But it is a challenge. hang in all 
of us. 
  
Best,  
Shirley Bell 
  
   
- Original Message -   
   
   From:Larry Willis   
   
   To:quad-list@eskimo.com   
   
   Sent: Wednesday, April 15, 2015 7:04 AM  
   
   Subject: Fwd: [QUAD-L] Showers  
   
   
  
Everyday. Every damn stinking crippled ass day. Soon as my eyes open in the 
morning. Pardon my French.  
  
-- Forwarded message --  
From:   Gmail   bobbiehumphre...@gmail.com  
Date: Tuesday, April 14, 2015  
Subject: [QUAD-L] Showers  
To:   quad-list@eskimo.com  
  

Re: [QUAD-L] Scoliosis

[diannal767]

Wow, best wishes Bobbie. Keep us informed. Scoliosis showed up on my cat scan 
for from testing for cancer. My back hurts alot but not like you describe.
Dianna


I was diognosis with scoliosis about 15+ years ago. Now it's gotten much
worse. Mine is in the shape of a C and it is starting to push my hip out.
On my
left hip, if I'm lying down, and put my hand ther and feel around, I can feel my
hip bone poking out about 1 from my hand!
It has gotten me so concerned that
I'm going to see a orthopedic Sergon after I get an MRI of my spine. I have no
idea what can be done.

Anybody have problems with their hips? 





-Original Message-
From: Gmail bobbiehumphre...@gmail.com
To: quad-list quad-list@eskimo.com
Sent: Wed, Apr 8, 2015 4:40 pm
Subject: [QUAD-L] Scoliosis



I was diognosis with scoliosis about 15+ years ago. Now it's gotten much
worse. Mine is in the shape of a C and it is starting to push my hip out.
On my
left hip, if I'm lying down, and put my hand ther and feel around, I can feel my
hip bone poking out about 1 from my hand!
It has gotten me so concerned that
I'm going to see a orthopedic Sergon after I get an MRI of my spine. I have no
idea what can be done.

Anybody have problems with their hips? 


Bobbie
.

Smile Everyday

 

[QUAD-L] van parking

[diannal767]

I took Dave to the VA hospital today (in Cleveland).In the parking garage they 
have a row of van parking for spinal cord injuries. All others will be towed. 
Had a sign  towing a car. Awesome. Wished Wal-mart would do 1 or 2.
Dianna

Re: [QUAD-L] Quad Belly

[diannal767]

How in the world do you get a girdle on? That's gotta take a lot of turning  
tugging. What do you women think of Spanx? Just as hard?
dianna


I am definitely happy that I’m a female if I have to be a quad! That is why I 
wear “a girdle”, so I don’t have to have an apparent quad gut. J. I was not 
happy with binders as they would roll and pinch and cause more problems than it 
cured, and the body suit that I wear is smooth and doesn’t hurt my skin.
  
We can’t really Eliminate our bellies, because it is just those darned 
intestines refusing to stay in place inside our bodies when we sit up. But we 
can force them back inside. LOL
  
Joan
  
 





-Original Message-
From: Joan Anglin poaj...@sbcglobal.net
To: 'Larry Willis' lwillis82...@gmail.com; quad-list quad-list@eskimo.com
Sent: Mon, Apr 6, 2015 12:23 pm
Subject: RE: [QUAD-L] Quad Belly


 
  
I am definitely happy that I’m a female if I have to be a quad! That is why I 
wear “a girdle”, so I don’t have to have an apparent quad gut. J. I was not 
happy with binders as they would roll and pinch and cause more problems than it 
cured, and the body suit that I wear is smooth and doesn’t hurt my skin.
  
We can’t really Eliminate our bellies, because it is just those darned 
intestines refusing to stay in place inside our bodies when we sit up. But we 
can force them back inside. LOL
  
Joan
  
 
  
   

From: Larry Willis [mailto:lwillis82...@gmail.com] 
Sent: Monday, April 06, 2015 7:01 AM
To: quad-list@eskimo.com
Subject: Fwd: [QUAD-L] Quad Belly
   
  
  
 
  
   
Same here, Greg. It makes me miserable and even hard to breathe. It feels like 
my food sticks where my gut folds. I hate it but don't know how to eliminate 
it, other than starvation.

Larry Willis
   

Retired and proud of it
   
   

 
   
  
  
   

Begin forwarded message:
  
  
   

Resent-From: quad-list@eskimo.com
From: greg g...@eskimo.com
Date: April 5, 2015 at 11:09:34 PM EDT
To: quad-list@eskimo.com
Subject: [QUAD-L] Quad Belly
   
  
  
   

After my stoma my quad belly went down a lot, but it sure came back. Bigger 
than ever.
Even a binder does nothing for it.
When laying on my back, my stomach looks pretty flat. But once I sit up... it 
just flop out.
It actually gets uncomfortable.
Exercising really does nothing for that area, since I have no muscle control 
there.
I am trying to twist and do what bending forward that I can. Diet does not seem 
to help, the rest of my body it average.
Greg
   
  
 

Re: [QUAD-L] MRI's

[diannal767]

depends. with dye about an hour. drink. wait 45 minutes then another 20 minutes 
under machine. otherwise about 20 minutes. cat scan goes quick. depends if it's 
with contrast.


I need to go for an MRI of my entire spine because of my scoliosis getting much
worse. 

Does anybody have any idea how long the MRI would take?

Bobbie





-Original Message-
From: Gmail bobbiehumphre...@gmail.com
To: quad-list quad-list@eskimo.com
Sent: Thu, Apr 2, 2015 8:42 pm
Subject: [QUAD-L] MRI's


I need to go for an MRI of my entire spine because of my scoliosis getting much
worse. 

Does anybody have any idea how long the MRI would take?

Bobbie


Smile Everyday

 

[QUAD-L] braun suspension

[diannal767]

anyone know if they used heavy duty shocks on 07 dodge braun caravan~?

[QUAD-L] Braun suspension

[diannal767]

Hello,
There was a guy on the list that worked for Braun. I'm currently waiting on a 
response from MobilityWorks who didn't know the answer to my question. I want 
to replace anything my van might need while I have the money. I know I need a 
control arm  tie-rods ( sp?) On the back, are the shocks OEM?
I don't want to buy something that won't last. Good news is I located a hatch  
passenger door for $100 ea in Fla that my brother is bringing up. This is it's 
last shot being worked on. (from me) I have cancer  I just want it to last 
longer than me.2007 Caravan SXT.
Dianna

Re: [QUAD-L] Cushions

[diannal767]

y'all are scaring me! the only back-up i have on my van is for the 0-effort 
steering. it has a button to push should something happen to that for whatever 
reason. should i have a back up system on hand controls or check the brand? 
other than that, it's a 07 caravan with EZ-locks.


Ive had two situations in my van that were crazy.One time I pressed down on the 
monarch hand control from a stop light and the accelerator got stuck at 85 
percent throttle. The other time I was coming down a hill and the engine died, 
the people that installed my hand controls never accounted for the engine being 
off when you apply the brake using the hand control. Because I had to press 
much harder because the engine died there wasn't enough travel for the control 
and the control was hitting the dashboard and I couldn't stop. I quickly put 
the emergency brake on, then pressed as hard as I could on the hand control 
bending the plastic on the dash. I was able to get about 60 percent brake 
control and the added help from the emergency brake to be able to top just 
short of a pole. I mean only 20 feet to spare.  
  
  
  
  
   Ron





-Original Message-
From: RONALD L PRACHT r.pra...@sbcglobal.net
To: Quad-list Post quad-list@eskimo.com
Sent: Sun, Mar 29, 2015 8:15 pm
Subject: Re: [QUAD-L] Cushions


 
  
   Ive had two situations in my van that were crazy.One time I pressed down on 
the monarch hand control from a stop light and the accelerator got stuck at 85 
percent throttle. The other time I was coming down a hill and the engine died, 
the people that installed my hand controls never accounted for the engine being 
off when you apply the brake using the hand control. Because I had to press 
much harder because the engine died there wasn't enough travel for the control 
and the control was hitting the dashboard and I couldn't stop. I quickly put 
the emergency brake on, then pressed as hard as I could on the hand control 
bending the plastic on the dash. I was able to get about 60 percent brake 
control and the added help from the emergency brake to be able to top just 
short of a pole. I mean only 20 feet to spare.  
  
  
  
  
   Ron  
   
  
   
   
  
  

 
  
On Sunday, March 29, 2015 2:47 PM, Joan Anglin poaj...@sbcglobal.net 
wrote:
   
  
 
  
  
  

 
  WOW, and I thought that breaking my leg when my chair brakes failed 
was traumatic! But here you are still contributing to this group, thank 
goodness. 
 
  Glad that you made it through what had to have been a miserable time 
of your life. Joan 
 
 
 
  
   

 From:  lwillis...@yahoo.com 
[mailto:lwillis...@yahoo.com] 
Sent: Sunday, March 29, 2015 10:17 AM
To: quad-list@eskimo.com
Subject: Fwd: [QUAD-L] Cushions
   
  
  

  
   
Back in the nineties I bought a brand new Caravan, an IMS conversion. The 
tie-down was a floor-post with the latch on the chair. In the first month it 
released me twice without cause. Fortunately I was going slow and able to stop 
both times. Until On July 14 I backed out of my parents drive. I pulled it 
into drive and pulled back on the accelerator. The van lurched forwardand 
my tie-down released. The van picked up speed and I went rolling helplessly to 
the back of the van. I left the road, jumped a ditch, and hit a large tree 
head-on at 45 mph. I was thrown forward violently and jammed under the 
dashboard. The van was totaled. It took EMT nearly three hours to get me out. 
My chair was bent like a pretzel, my legs broke and knees shattered, concussion 
and internal bleeding. The docs wanted to amputate my legs but I refused. Today 
they stay bent and spastic and make me miserable. I should have let them cut. 
Anyway, that's how I broke my legs.

Sent from my iPad   
  
  
   

Begin forwarded message:   
  
  
   

 Resent-From:  quad-list@eskimo.com 
 From: Larry Willis  lwillis82...@gmail.com   
  
 Date: March 28, 2015 at 10:34:02 PM EDT 
 To:  quad-list@eskimo.com 
 Subject:  Fwd: [QUAD-L] Cushions
   
  
  
   

 
Hit a tree in my van. I'll fill in the details tomorrow.  
  
Larry Willis 
 
  
Retired and proud of it  
 
 
  

 


 
  
Begin forwarded message: 


 
  

Re: [QUAD-L] AOL problem

[diannal767]

-Original Message-
From: diannal767 diannal...@aol.com
To: Danny da...@immortaldesigns.co
Sent: Thu, Mar 5, 2015 6:06 pm
Subject: Re: [QUAD-L] AOL problem


 i have aol. every once in awhile i don't get mail and just sign back up under 
quad-request. i've had aol for regular mail for as long as we've had the 
internet, works fine for me. ron has globalnet and he gets bumped off too.   
dianna   


  
eww AOL  
  
 -Danny   
  
  
   
  Original Message 
 Subject: [QUAD-L] AOL problem
 From:gah17...@aol.com
 Date: Wed, March 04, 2015 10:36 am
 To:quad-list@eskimo.com

 
 Has anyone had trouble with AOL?  I haven't received a post 
 
 in weeks.  Everybody die? 
 
   
 
 I hope not. 
 
   
 
 Glenn
   
  

   




-Original Message-
 From: Danny Espinoza da...@immortaldesigns.co
 To: Gah17582 gah17...@aol.com; quad-list quad-list@eskimo.com
 Sent: Thu, Mar 5, 2015 12:33 pm
 Subject: RE: [QUAD-L] AOL problem
 
 
  
   
 eww AOL

 -Danny 


 
  Original Message   
 Subject: [QUAD-L] AOL problem  
 From:  gah17...@aol.com  
 Date: Wed, March 04, 2015 10:36 am  
 To:  quad-list@eskimo.com  
  
 
 Has anyone had trouble with AOL?  I haven't received a post   
   
 in weeks.  Everybody die?   
   
 
   
 I hope not.   
   
 
   
 Glenn   
  

  
 

   
 

Re: [QUAD-L] Weather

[diannal767]

same here bobbie. -20 here at night wind chill factor. 0 or single digits here. 
no school days, not because of snow but frigid temps. i've been out once in 2 
weeks. only because i had to go to the doctor. sunday is going to be 35-40 
degrees. you know i'm going to be out of this house! LAKE ERIE is FROZEN THUS 
NO LAKE EFFECT WEATHER. coldest feb on record.
dianna


Last night was -8° with out the wind chill today is 18° tonight and the next 4
nights will also be below zero.
Northren New Jersey





-Original Message-
From: Gmail bobbiehumphre...@gmail.com
To: greg g...@eskimo.com
Cc: quad-list@eskimo.com quad-list@eskimo.com
Sent: Tue, Feb 24, 2015 3:33 pm
Subject: Re: [QUAD-L] Weather


Last night was -8° with out the wind chill today is 18° tonight and the next 4
nights will also be below zero.
Northren New Jersey

Smile Everyday

 On
Feb 24, 2015, at 11:43 AM, greg g...@eskimo.com wrote:
 
 I see the
weather report on the news and think, man all those poor quads in those cold
areas. Like half the states under 32 degrees. We in the Phx area are about 65
and cloudy this last week. A few days of 70s coming up, then more clouds. At t
least we are above freezing. Even at 67 yesterday, I was so cold, then that
makes me so stiff and sore. I have to go out today and I'm not looking forward
to it. I know this is a common topic, but this is such a cold winter across the
country. You guys below zero, wow.
 Stay warm, Greg
 


 

Re: [QUAD-L] Weather

[diannal767]

if i didn't have family here, i'd love to move to san diego. my sister lives in 
sacramento but my daughter and especially, my granddaughter is here so i can't 
do it. this is rather personal so i'll leave out all the details but my 
daughter's marriage was shaky for awhile. she was thinking of leaving state. 
she told her dad if she did, she was taking me with her. sweet but hey...i have 
a say in this and i did. i told her she wasn't taking my granddaughter 
anywhere, were all still here.


You do what you have to. I wear a sweater, and a hoody with the hood pulled up 
in the house. I have an oil filled heater in my room. At night sometimes I do 
little pushups to get blood circulating more. I would like to be in Arizona , 
but don't know anybody there.  
  
   
  
  
   Ron  
   
   
   
  
  

 
  
On Tuesday, February 24, 2015 10:43 AM, greg g...@eskimo.com wrote:
   
  
 
  
I see the weather report on the news and think, man all those poor quads in 
those cold areas. Like half the states under 32 degrees. We in the Phx area are 
about 65 and cloudy this last week. A few days of 70s coming up, then more 
clouds. At t least we are above freezing. Even at 67 yesterday, I was so cold, 
then that makes me so stiff and sore. I have to go out today and I'm not 
looking forward to it. I know this is a common topic, but this is such a cold 
winter across the country. You guys below zero, wow.  
Stay warm, Greg






-Original Message-
From: RONALD L PRACHT r.pra...@sbcglobal.net
To: Quad-list Post quad-list@eskimo.com
Sent: Tue, Feb 24, 2015 12:03 pm
Subject: Re: [QUAD-L] Weather


 
  
   You do what you have to. I wear a sweater, and a hoody with the hood pulled 
up in the house. I have an oil filled heater in my room. At night sometimes I 
do little pushups to get blood circulating more. I would like to be in Arizona 
, but don't know anybody there.  
  
   
  
  
   Ron  
   
   
   
  
  

 
  
On Tuesday, February 24, 2015 10:43 AM, greg g...@eskimo.com wrote:
   
  
 
  
I see the weather report on the news and think, man all those poor quads in 
those cold areas. Like half the states under 32 degrees. We in the Phx area are 
about 65 and cloudy this last week. A few days of 70s coming up, then more 
clouds. At t least we are above freezing. Even at 67 yesterday, I was so cold, 
then that makes me so stiff and sore. I have to go out today and I'm not 
looking forward to it. I know this is a common topic, but this is such a cold 
winter across the country. You guys below zero, wow.  
Stay warm, Greg  
  
  
 
 

   
  

Re: [QUAD-L] Weather

[diannal767]

me too. cleveland ohio. coldest feb on record. another no school day. not 
because of snow...the temps.

I am here in Kentucky, a good old SOUTHERN state. We have had over 15 inches of 
snow on the ground for ten days now with single digit temps almost every night. 
Not supposed to get above freezing until next Saturday. I have cabin fever 
something fierce!  
  
Larry Willis  
Retired and proud of it  
  





-Original Message-
From: Larry Willis lwillis82...@gmail.com
To: quad-list quad-list@eskimo.com
Sent: Tue, Feb 24, 2015 1:47 pm
Subject: Fwd: [QUAD-L] Weather


 
I am here in Kentucky, a good old SOUTHERN state. We have had over 15 inches of 
snow on the ground for ten days now with single digit temps almost every night. 
Not supposed to get above freezing until next Saturday. I have cabin fever 
something fierce!  
  
Larry Willis  
Retired and proud of it  
  
   
  
 
 
  
Begin forwarded message:  
  
 
 
  
   Resent-From:quad-list@eskimo.com   
   From: RONALD L PRACHTr.pra...@sbcglobal.net   
   Date: February 24, 2015 at 12:03:03 PM EST   
   To: Quad-list Postquad-list@eskimo.com   
   Subject:Re: [QUAD-L] Weather   
   Reply-To: RONALD L PRACHTr.pra...@sbcglobal.net   
   
  
 
 
  
   

 You do what you have to. I wear a sweater, and a hoody with the hood 
pulled up in the house. I have an oil filled heater in my room. At night 
sometimes I do little pushups to get blood circulating more. I would like to be 
in Arizona , but don't know anybody there.

 


 Ron
 
 
 


  
   

  On Tuesday, February 24, 2015 10:43 AM, greg g...@eskimo.com wrote:
 

   

I see the weather report on the news and think, man all those poor quads in 
those cold areas. Like half the states under 32 degrees. We in the Phx area are 
about 65 and cloudy this last week. A few days of 70s coming up, then more 
clouds. At t least we are above freezing. Even at 67 yesterday, I was so cold, 
then that makes me so stiff and sore. I have to go out today and I'm not 
looking forward to it. I know this is a common topic, but this is such a cold 
winter across the country. You guys below zero, wow.
Stay warm, Greg


   
   
  
 

  
 

Re: [QUAD-L] Weather

[diannal767]

i wear 2 sweaters, a scarf and a blanket watching tv at night. my house is 
tiny, 1,200 sq ft. 74 degrees. other ppl are down to t-shirts. when i get 
cold...can't get warm.
dianna p.s another no school day.


You do what you have to. I wear a sweater, and a hoody with the hood pulled up 
in the house. I have an oil filled heater in my room. At night sometimes I do 
little pushups to get blood circulating more. I would like to be in Arizona , 
but don't know anybody there.  
  





-Original Message-
From: RONALD L PRACHT r.pra...@sbcglobal.net
To: Quad-list Post quad-list@eskimo.com
Sent: Tue, Feb 24, 2015 12:03 pm
Subject: Re: [QUAD-L] Weather


 
  
   You do what you have to. I wear a sweater, and a hoody with the hood pulled 
up in the house. I have an oil filled heater in my room. At night sometimes I 
do little pushups to get blood circulating more. I would like to be in Arizona 
, but don't know anybody there.  
  
   
  
  
   Ron  
   
   
   
  
  

 
  
On Tuesday, February 24, 2015 10:43 AM, greg g...@eskimo.com wrote:
   
  
 
  
I see the weather report on the news and think, man all those poor quads in 
those cold areas. Like half the states under 32 degrees. We in the Phx area are 
about 65 and cloudy this last week. A few days of 70s coming up, then more 
clouds. At t least we are above freezing. Even at 67 yesterday, I was so cold, 
then that makes me so stiff and sore. I have to go out today and I'm not 
looking forward to it. I know this is a common topic, but this is such a cold 
winter across the country. You guys below zero, wow.  
Stay warm, Greg  
  
  
 
 

   
  

Re: [QUAD-L] Interview request for a student project

[diannal767]

I agree.


I did about 6 of these until I realized I was being viewed as a guinea pig. 
Money needs to be offered.
 
 

 
 Ron 





-Original Message-
From: wheelchair wheelch...@aol.com
To: gentrier gentr...@yahoo.com
Cc: r.pracht r.pra...@sbcglobal.net; quad-list quad-list@eskimo.com
Sent: Sun, Feb 22, 2015 9:16 pm
Subject: Re: [QUAD-L] Interview request for a student project



Thank You.  Thank You very much for your reply.  I truly hope your husband 
joins us as a world recognized group and shares his info.  I'm looking forward 
to reading your published results, once my refund check arrives. And to you 
both I wish the best.  
   
   
   
Best Wishes  
   
   
   

In a message dated 2/22/2015 8:09:34 P.M. Central Standard Time, 
gentr...@yahoo.com writes:   

  
I did my research, my results were published, and each study is like a grain of 
sand that goes toward building a bridge. Not one study in and of itself amounts 
to much unfortunately. I can see how that can be a turn off. That said, without 
willing for disciplines, no advances would be made. Anytime you've experienced 
an improvement to a medication, and mobility device, etc. That all started with 
the studies. You just cannot look at an immediate gratification from one study 
you may participate in. I think we should all feel fortunate that people are 
interested in doing the studies. My husband has been in a chair for 22 1/2 
years. That said, we are all entitled to our opinions and all come at it with 
different experiences which I respect.  
  
   
Please excuse any typos or brevity of tone as this was typed using an iPhone 
(and possibly Siri, in an effort to be as safe as possible while en route.)
   


   
G
 
  
  
On Feb 22, 2015, at 6:49 PM,   wheelch...@aol.com wrote:  
  
 
  
   
Perhaps, it is just me but after a couple of decades of receiving solicitations 
from higher education studies, I haven't seen any written results in any 
reports from the Natl Spinal Injury Assoc.  So who actually benefits from the 
interviews. I know that Ron hasn't. I'm sure there are dozens more. 
  

I like the corporate interview requests.  The offer a cup of coffee and a sweet 
roll.  I also support national hospitals and rehab centers that pay for time 
and transportation to those that personally do interviews.  That being said, I 
encourage anyone with extra time on their hands to offer their perspective and 
expect nothing in return. If Cornell chooses to share their results with the 
world, it is their choice and not an obligation to do so.  I'm still waiting to 
read some results of solicitations from nearly a decade ago from another well 
known university.  Good Luck with your project.   



Best Wishes   



 
In a message dated 2/22/2015 5:52:49 P.M. Central Standard Time,  
gentr...@yahoo.com writes:
 

Most students are not given grant money for their research to hand out to those 
who participate in the study. Since it is intended to benefit those with the 
disability, that should be reward enough.   
   

Please excuse any typos or brevity of tone as this was typed using an iPhone 
(and possibly Siri, in an effort to be as safe as possible while en route.)




G
  
   
   
On Feb 22, 2015, at 3:17 PM, RONALD L PRACHT
r.pra...@sbcglobal.net wrote:   
   
  
   

 
 I did about 6 of these until I realized I was being viewed as a 
guinea pig. Money needs to be offered.
 
 

 
 Ron 
 
 
 

 
  
   

On Sunday, February 22, 2015 4:11 PM, wheelch...@aol.com 
wheelch...@aol.com wrote:
   
   
   

 
  
 
Just remember that long after the interviews are completed and you have 
graduated... that so many will have to live their lives, in a manner much 
different than yours. A nice stipend would be most appreciated for all those 
who chose to participate in being interviewed.  
   
   
   
Best Wishes  
   
   
   

In a message dated 2/22/2015 3:00:41 P.M. Central Standard Time,
 oj...@cornell.edu writes:   

 
   
  

Re: [QUAD-L] Ismael

[diannal767]

I also was diagnosed with Mantle Cell Lymphoma in 2013.  Life expectancy 2 yrs. 
I should say 2 yrs of it coming back. Much like Leukemia. Still in remission 
but they have pills for when it returns. Don't know if they'll work. Like Ron 
said, basically, all we can do is keep on rollin.
Dianna - cancer on top of quadriplegia, what a rip! I was dealt the wrong 
card twice in life. But I have my loved ones. 3





 
  On Friday, February 20, 2015 11:12 PM, Thomas E. Cusack 
tecn...@sbcglobal.net wrote:
  
 
  

   


 
  
   
Quad living is so, so much What if this and What if that that 
one has to plan on those things occurring. Who thought they'd wind up in a 
'chair from a broken neck-hell, that was never part of life's equation. I go 
thru the many what if's alot and hopefully develop a mental plan. For example, 
I was diagnosed with brain cancer (wouldn't ya' know!)two plus years ago-the 
dr.'s gave me a year to year and a half   
   
to live so my what if's are the last few months that i have to 
live. so do some planning and thinking about 'what ifs' cuz the luck we quads 
have ain't so good.   
   
Tom C. c6/7 incomplete 45 years ago mva








-Original Message-
From: Larry Willis lwillis82...@gmail.com
To: quad-list quad-list@eskimo.com
Sent: Sat, Feb 21, 2015 1:26 pm
Subject: [QUAD-L] Ismael


 
Ismael, thank you so much for that thoughtful and inspiring story. You have 
lived an amazing life. I don't think I could have lasted like you have. How do 
you do it? How do you stay optimistic in spite of everything? I pray that you 
continue to prosper and that you keep kicking ass for many more years. God 
bless you, my friend.  
  
Larry Willis  
Retired and proud of it  
  
   
  
 
 
  
Begin forwarded message:  
  
 
 
  
   Resent-From:quad-list@eskimo.com   
   From: RONALD L PRACHTr.pra...@sbcglobal.net   
   Date: February 21, 2015 at 12:56:22 AM EST   
   To: Quad-list Postquad-list@eskimo.com   
   Subject:Re: Fwd: [QUAD-L] Rough days   
   Reply-To: RONALD L PRACHTr.pra...@sbcglobal.net   
   
  
 
 
  
   

 
 


 
  On Friday, February 20, 2015 11:12 PM, Thomas E. Cusack 
tecn...@sbcglobal.net wrote:
  
 
  

   


 
  
   
Quad living is so, so much What if this and What if that that 
one has to plan on those things occurring. Who thought they'd wind up in a 
'chair from a broken neck-hell, that was never part of life's equation. I go 
thru the many what if's alot and hopefully develop a mental plan. For example, 
I was diagnosed with brain cancer (wouldn't ya' know!)two plus years ago-the 
dr.'s gave me a year to year and a half   
   
to live so my what if's are the last few months that i have to 
live. so do some planning and thinking about 'what ifs' cuz the luck we quads 
have ain't so good.   
   
Tom C. c6/7 incomplete 45 years ago mva   



   
   

  
   

  On Friday, February 20, 2015 9:15 PM, Larry Willis 
lwillis82...@gmail.com wrote:
 

   


 
  
Well said Ron.and very true.   
   
Larry Willis   
Retired and proud of it   
   

   
  
  
   
Begin forwarded message:   
   
  
  
   
Resent-From: quad-list@eskimo.com   
 
From: RONALD L PRACHT 
r.pra...@sbcglobal.net
Date: February 20, 2015 at 9:29:12 PM EST   
 
To: Quad-list Post 
quad-list@eskimo.com
Subject: Re: [QUAD-L] Rough days

Reply-To: RONALD L PRACHT 
r.pra...@sbcglobal.net

   
  
  
   

 
  
   Well my dad just had his third heart surgery in 15 years 
and they added more stents again. He was in the hospital and I was home alone. 
Im able to get in and out of bed and make basic microwave meals and sandwiches, 
so I can survive short of a large bowell accident or falling out of the chair. 
It made me think 

Re: [QUAD-L] Rough days

[diannal767]

I'm so sorry your going thru this. I hope your wife gets well. My ex takes care 
of me too  his health is failing. You NEED a back-up caregiver some how. She 
needs you so don't do anything selfish.


On Friday, February 20, 2015 8:00 PM, Larry Willis lwillis82...@gmail.com 
wrote:
 

   


Peeps, it has been a rough time around the Willis homestead. My wife Melissa 
has been very weak and short of breath the last two weeks. She wound up in icu 
three days ago with heart failure. She is my love and my caregiver. I have 
slept in my chair the last two nights. My body hurts all over. She came home 
today but is under strict orders not to lift. She is still very weak and short 
of breath. We are having a very hard, stressful time. If you have an extra 
prayer in your pocket, toss it toward heaven for me. Life is too hard guys. I 
wish I knew a way out. I do, but I am too cowardly.





-Original Message-
From: Larry Willis lwillis82...@gmail.com
To: quad-list quad-list@eskimo.com
Sent: Fri, Feb 20, 2015 10:15 pm
Subject: Fwd: [QUAD-L] Rough days


 
Well said Ron.and very true.  
  
Larry Willis  
Retired and proud of it  
  
   
  
 
 
  
Begin forwarded message:  
  
 
 
  
   Resent-From:quad-list@eskimo.com   
   From: RONALD L PRACHTr.pra...@sbcglobal.net   
   Date: February 20, 2015 at 9:29:12 PM EST   
   To: Quad-list Postquad-list@eskimo.com   
   Subject:Re: [QUAD-L] Rough days   
   Reply-To: RONALD L PRACHTr.pra...@sbcglobal.net   
   
  
 
 
  
   

 Well my dad just had his third heart surgery in 15 years and they added 
more stents again. He was in the hospital and I was home alone. Im able to get 
in and out of bed and make basic microwave meals and sandwiches, so I can 
survive short of a large bowell accident or falling out of the chair. It made 
me think ..what the hell am I going to do in the future? I came to the 
conclusion if I try everyday and accomplish a little bit, by the time that day 
comes I can be a whole lot more prepared to do or hire all the things Im going 
to need. All we really have in life is the here and now, the past is gone and 
the future isn't guaranteed. The winners in life are the ones that can enjoy 
the minute they are in. 

 


 Ron
 
 
 


  
   

  On Friday, February 20, 2015 8:00 PM, Larry Willis 
lwillis82...@gmail.com wrote:
 

   


Peeps, it has been a rough time around the Willis homestead. My wife Melissa 
has been very weak and short of breath the last two weeks. She wound up in icu 
three days ago with heart failure. She is my love and my caregiver. I have 
slept in my chair the last two nights. My body hurts all over. She came home 
today but is under strict orders not to lift. She is still very weak and short 
of breath. We are having a very hard, stressful time. If you have an extra 
prayer in your pocket, toss it toward heaven for me. Life is too hard guys. I 
wish I knew a way out. I do, but I am too cowardly.