Mike Palij has drawn attention to >some really bad medical science being conducted in >Guatemala where people had been infected with syphilis >and other STDs in a effort to see how it spreads and >whether it could be treated. [See Mike's post below for citations.]
Mike writes: >Well, the commission has finished it's work and has released >its report which is now being picked up by the popular media. >Here's one example of the popular media's presentation of the report: http://www.guardian.co.uk/world/2011/aug/30/guatemala-experiments >The journal "Science" has a short article about the report: http://news.sciencemag.org/scienceinsider/2011/08/panel-blasts-ethics-science-of.html?ref=ra >Here is a link to the commission's report in PDF format: http://www.bioethics.gov/cms/sites/default/files/IRP-Proceedings%20and%20Recommendations_0.pdf Just one (minor) point. The latter link is to a preliminary general report on international medical ethics, not their report specifically on the Guatemala experiments. [Quote: "Commission staff is conducting the investigation of the Guatemala experiments."] The newspaper articles evidently relate to information reported prior to the release of the official report on the experiments: "The commission discussed several of its findings at its public quarterly meeting on Monday in Washington. It expects to provide a report to President Obama next month. http://www.pittsburghlive.com/x/pittsburghtrib/news/s_754075.html?_s_icmp=NetworkHeadlines Allen Esterson Former lecturer, Science Department Southwark College, London allenester...@compuserve.com http://www.esterson.org --------------------------------------------- From: Mike Palij <m...@nyu.edu> Subject: Research Ethics: Bad Science in Guatemala Date: Tue, 30 Aug 2011 20:39:45 -0400 You may recall that a while back there was the discovery of some really bad medical science being conducted in Guatemala where people had been infected with syphilis and other STDs in a effort to see how it spreads and whether it could be treated. This research had been conducted by U.S. public health researchers and, upon learning about the research, President Obama formed a commission that was to (a) collect detailed information about what had happened and (b) whether the research safeguards in place now would prevent such research from being conducted now or in the future. Here is a news article that appeared in Science when the Guatemala study was made public: http://news.sciencemag.org/scienceinsider/2010/10/us-officials-apologize-for-appalling.html Well, the commission has finished it's work and has released it's report which is now being picked up by the popular media. Here's one example of the popular media's presentation of the report: http://www.guardian.co.uk/world/2011/aug/30/guatemala-experiments The journal "Science" has a short article about the report: http://news.sciencemag.org/scienceinsider/2011/08/panel-blasts-ethics-science-of.html?ref=ra Here is the website for the Commission: http://www.bioethics.gov/cms/node/282 Here is a link to the commission's report in PDF format: http://www.bioethics.gov/cms/sites/default/files/IRP-Proceedings%20and%20Recommendations_0.pdf One of the novel recommendations of the commission is that a plan should be put into place to compensate the research participants for what they had experienced in the bad/unethical science. One popular media article on this point is available here: http://www.medpagetoday.com/PublicHealthPolicy/Ethics/28283 It should be noted that the person who found out about the Guatemala study was a historian at Wellesley College, Susan Reverby, who was doing research on the Tuskegee syphilis study. Here is a popular media article on the connection; http://www.pittsburghlive.com/x/pittsburghtrib/news/s_754075.html?_s_icmp=NetworkHeadlines Reverby's journal article on her discovery is available in a PDF here: http://www.wellesley.edu/WomenSt/Reverby%20Normal%20Exposure.pdf I suspect that students might be familiar with this and may ask questions in research methods and other courses. Some of the "research", however, is pretty gross. -Mike Palij New York University m...@nyu.edu --- You are currently subscribed to tips as: arch...@jab.org. To unsubscribe click here: http://fsulist.frostburg.edu/u?id=13090.68da6e6e5325aa33287ff385b70df5d5&n=T&l=tips&o=12342 or send a blank email to leave-12342-13090.68da6e6e5325aa33287ff385b70df...@fsulist.frostburg.edu
