Long time Silverlister Garnet has a discussion group at

http://health.groups.yahoo.com/group/Pyrroluria/

which would likely be of interest, help and support.
R

On 5/12/2010 12:04 AM, Deborah Gerard wrote:

        

Good morning all you great brains :) Can I please get your input and advice on Porphyria disease please. Any chance there is hope of curing this disease?
Thanks to all in advance,
Debbie

        




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