At 10:07 PM 7/3/2011, you wrote:
From: "PTF" <[email protected]>
Date: 3 July 2011 9:30:59 PM
To: <[email protected]>
Subject: Re: CS>Will someone ask NCCAM a question for me?


I for one would not like this research done.  I don't like to call 
the attention of the government to anything alternative that 
works.  Before long it will be harder to find or use.  Better to 
fly under the radar.
PT

Very wise, PT!  The Feds have a long and disreputable history regarding "trials" of alternative health strategies and materials.  In short, they cheat.

A perfect example was Dr. Wm. Lane, who wrote the book "Sharks Don't Get Cancer" and who sold his specially purified shark cartilage  called Benefin with the proud claim (and proof, which he had to go to Cuban hospitals to prove, publicized on the TV show, 60 Minutes) that it stopped cancer by antiangiogenesis, basically drying up the tumors' blood supply.  He had a thriving forum like this one, which was read by many and postings were often sheer gratitude, other times less so, as you would expect.   I was an avid reader of his forum in the nineties, being a cancer patient at that time. 

The FDA told him in no uncertain terms that he could not claim that Benefin cured cancer, I think.  Meanwhile, he pleaded for legitimate clinical trials to show that it could do so.  So they outfoxed him.  THEY set up the parameters of the test, defined the conditions, picked the patients, and generally did everything opposite to what Dr. Lane told them would be needed for an adequate test.  You can probably find the story if you research it.  Anyway, having sabotaged "his" study, they then did a "gotcha" on him and got ready to sue him out of existence.  (No wonder you see disclaimers everywhere you look about anything that even is related remotely to illness or conditions needing a cure!)  The suit was "settled" out of court and I think Dr. Lane was fined 2 million dollars (maybe, three -- my memory is sketchy) and he was forced to take down all mention of therapeutic claims for Benefin  from his website.  The forum disappeared.  His people, who had been very helpful, were forbidden to talk to callers who wished advice -- it was like Benefin did not exist and had never cured a cancer patient.  He has a very nice website now, years later, but you find no mention of anything remotely like a cancer cure claim for his Benefin there. I personally know one woman who was cured of terminal ovarian cancer by Benefin back in the early nineties, and I still correspond with her occasionally.  I met her as a result of Dr. Lane's forum.  She wrote a book about her experience, and gives away copies of it, even now, years later, although the Feds called her and told her she could not talk about Benefin on her website, nor claim that it had cured her, not long after the Dr. Lane kerfluffle.  I had another friend who had breast cancer metastasized to her liver who pulled herself back from the grave with it and achieved what looked like perfect health within a few months -- unfortunately, she listened to her dim witted son who read the Fed's propaganda and told her she was stupid and being scammed and should go back to chemo.  She listened to him, and died not long afterwards of a "common cold" infection which overpowered her immune system, destroyed by the chemo.

I know there are many stories like Dr. Lane's and whole books have been written on the tyranny of the FDA, the AMA, and other agencies.   I think our only recourse is to frequent forums like this, and share with one another.  I will believe anecdotal information from an honest man any day of the week before I will fully trust a bureaucrat with an axe to grind which will keep potentially useful things from our knowledge by squelching research or sabotaging it.    Besides, when Obamacare becomes fully implemented, we are going to need everything we can get our hands on to try to stay healthy -- but don't get me started! 
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