Mike Thank You,  That is a wonderful Christmas message Tom thank You

On Sat, Dec 17, 2011 at 2:41 PM, M. G. Devour <[email protected]> wrote:

> I'm forwarding this for Tom, stripping HTML formatting that made it too
> big for the message size limit of the list. It is an intriguing
> message.
>
> Peace,
>
> Mike D.
>
> ------- Forwarded message follows -------
> Date sent:              Sat, 17 Dec 2011 14:17:26 -0800
> From:                   "Tom Poast" <[email protected]>
> To:                     <[email protected]>
> Subject:                A glimmer of hope
>
>
>
> Over the past six months I have been working with a group of terminally
> ill people.  I was asked to provide some help when a drug, currently in
> Phase II clinical trials, provided not only a stop of the progression
> of this disease, but some people were actually regaining function that
> they had previously lost as a result of the disease.
>
>
> The drug is NP001.  It is made from a chemical that many may be
> familiar with, sodium chlorite.
>
>
> The problem with a drug trial is that they exclude people from the
> trial. Efforts were made to broaden the acceptance criteria, some
> progress was made, but still many were left out of the trial.  While
> the main reason was that they lived in an area that was outside the
> trial locations, another reason was the progression of the disease in
> their bodies.
>
>
> NP001 is administered via IV injection.  I explained that there is more
> than one way to get chlorite into the body and that while it is not as
> efficient as IV injection, drinking a solution of chlorite will result
> in some chlorite getting into the blood stream.
>
>
> A group of these people suffering from this disease decided to run an
> experiment on themselves.  Efforts have been made to get the medical
> community involved and these have not been totally successful, so far.
> They have provided support in the form of check ups and blood work
> designed to monitor for any adverse effects of participating in the
> experiment, but ethics and legal ramifications prevent them from
> getting too involved with this.
>
>
> A research neurologist was kind enough to explain to me that anecdotal
> evidence over a period of days to weeks is usually thought of as being
> the result of the placebo effect.  However, anecdotal evidence that
> continues to show positive results with the same people over a period
> of months to years is much harder to dismiss as placebo.  Testing done
> that supports the positive effect also helps.  I was also informed that
> when the results are spectacular the general bias is to question the
> original diagnosis.
>
>
> This experiment is coming up on six months now.  The positive benefits
> seem to be holding on, so I think there is now a glimmer of hope.
>
>
> Keep in mind that the group involved in this experiment is small.
> There are about 35 people that are openly vocal about it, and about
> that number again that are quietly participating.  Also, not everyone
> is showing improvement.
>
>
> Not knowing a lot about this disease I asked the group this question.
>
>
> Chlorite is a free radical oxidizer.  It does nothing to rebuild the
> body. What are you going to do to rebuild your bodies after the
> progression of this disease is slowed down or stopped?
>
>
> The answer I received was............. Well, the question was not
> answered.
>
>
> I asked again.
>
>
> This time I was informed that nothing had ever been successful in
> stopping the progression of this disease, so this question had never
> come up.
>
>
> During this holiday time it is very exciting to see this glimmer of
> hope permeate the group, and to see some of their focus change to how
> to rebuild the body.
>
>
> The changes are not drastic, but incremental.  No one has jumped out of
> a wheel chair and started running down the street.  However, to someone
> who has lost function in their hands or arms or legs, suddenly having
> some function restored and seeing this restored function continue over
> time is remarkable.
>
>
> On May  2 1939 Lou Gehrig benched himself after playing 2130
> consecutive baseball games with the NY Yankees.  His health had
> deteriorated to the point where he was no longer able to play well.
> Addressing the crowd before a July 4 1939 game, Lou Gehrig told people
> that he was the "Luckiest Man on the Face of the Earth."  Two years
> later on June 2 1941 Lou Gehrig died of amyotrophic lateral sclerosis.
>
>
> ALS is the illness that the people involved with this experiment are
> suffering from.
>
>
> This glimmer of hope started with the drug trial that lead to the oral
> experiment.  The purpose of the experiment is to help people live long
> enough to be able to use the drug.  There appears to be a willingness
> of the FDA to speed things along, but the process will most likely take
> a few years and people who are diagnosed with ALS have an average
> expected life span of three years.  I don't think the FDA can speed
> things along that fast.
>
>
> In loose side to side comparisons it appears that the drug is far more
> effective.  The oral solution helps and seems to be able to halt or
> radically slow down the progression of ALS, but the results from the
> drug trial seem to be better.
>
>
> Six months is not a year, but it is more than a day or a week.  Making
> assumptions on the outcome of a clinical trial in the middle of the
> trial is not the best thing to do.  Extrapolating from the observations
> of a small group of people is also not the best thing to do.  Still, I
> think there is a glimmer of hope.
>
>
> Chlorite is not a cure for ALS, but it does seem to provide something
> that people suffering from ALS have in very limited supply - additional
> time.
>
>
> If you know of someone that is has ALS, I invite you to cautiously
> share this glimmer of hope and have them watch the progress of the
> NP001 trial.
>
>
> Tom
>
>
> ------- End of forwarded message -------
>
>
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