hi
i am doing pretty darn well taking cs and msm in doses like 1tbsn msm
and 1 ounce 6ppm
ionic silver daily. this stuff seems to be, along with crushed raw
garlic or my special zhang
garlic capsules, helping me with lymes.
i have copied a "lyme story" below from net. quite a few testimonials
out there regarding
cs and lyme. i am also sending this to my lyme list.
--------------------------------
My Detailed Lyme Story
My story is a detailed story. I've been
co-existing with Lyme disease for a long
time.
The years that led up to my diagnosis are
quite detailed below. If you'd rather
read a cut and dry version of my Lyme
history-- what I faxed to Dr. Sam Donta
in the midst of my frustrations post-initial
treatment, click here. Otherwise, you
may read the embellished version below.
Life with Lyme: No Clear Beginning or Clear End in Sight...
I've come the farthest of all. I think I was
infected during childhood as I often had stiff necks
and strep throat several times a year. My favorite
activity was cleaning a stream in the woods
behind our yard in Shelton (CT).
I started to go downhill in the 1980s when I started
having kids. I was exhausted and got a
systemic rash from ampicillin given to me for an ear
infection during my first pregnancy
(1982). I was questioned, "Are you sure you are
pregnant? People often get a rash like this
when they have mono and take antibiotics." Had it
been ten years later, a good doctor would
have asked if it could be Lyme!
I developed bad allergies that I thought was the
main cause of my fatigue (besides the kids!)
By the early 90's, I had 3 tick bites below the
waist and in the groin area but no flu-like illness
followed. However, by 1991, my naturally thick hair
had thinned noticeably to family; I could
run my fingers through my hair all day long and find
them full of hair. My teeth were sensitive
to hot and cold, yet I had no dental problems. I had
had swollen glands the size of "dodo
marbles" and aches coming and going in my neck,
shoulders, and back. I always sounded
absolutely exhausted and out of breath although I
didn't have asthma. I also found I had mitral
valve prolapse. It eventually became so loud that my
husband could hear my heart beating
through the mattress at night.
Eventually I developed menstrual irregularities and
had a miscarriage (both may be from
fibroids I'm now finding out) and cervical cell
changes which reversed with cryosurgery. Also,
neurological symptoms such as constant tinnitus,
non-stop headache and occasional optical
migraines typical of neurological Lyme (fall, 1992).
And I was ALWAYS cold!
I sought treatment for candida and allergies and was
able to get back some stamina, though I
now have to admit I didn't realize how bad off I was
so this small improvement seemed far
greater than it was. Never was I questioned about
possibly having Lyme disease.
In the meantime, a friend of mine was diagnosed with
Lyme after she got the flu-like illness
and had a huge rash on her back side. The treatment
made her very ill with anxiety and
suicidal thoughts. I started to think she may have
had it a long time because she had terrible
back and neck problems for at least a year.
Finally I was desperate myself to overcome the
fatigue and pulled out the Nordic TracĀ in
July, 1994 to begin conditioning myself to get back
in shape, no matter how tired I was. Earlier
that mo. my mother told me my head was shaking just
like my dad's (he has Parkinson's and so
does his mom. And now we know they both have had Lyme too!)
Anyway, after 2 days of getting back on the "Trac",
I ached unbelievably! I'd done more in the
past and never felt this way. I noticed a slight
elongated rash on my lower left thigh above the
knee. I wouldn't have noticed it but it had a slight
itch. By the end of the week, numerous
patches were waxing and waning all over me. But
worse, my bones began to ache
incredulously as though I were soaking in a barrel
of ice water. I had an unbelievable
headache, but that was nothing new, especially in
July/Aug. humidity.
I strongly suspected I had Lyme disease, but despite
the fact I'm a nurse, it wasn't until several
weeks later I concluded that I must have had it a
very long time. I sought treatment
immediately, tested strongly positive (too strongly
to be an early diagnosis but my MD was too
ignorant to realize it!) Then two weeks after the
treatment was over, I developed a swollen
knee and lots of cognitive symptoms. I was put back
on orals (amoxicillin sometimes,
doxycycline other times) but kept backsliding.
Finally in Nov. I was granted 3 weeks rocephin
IV. My headaches and low grade fever were just
beginning to diminish after all that. I begged
for more and was only given 1 more week. At the end
of the last week I was pronounced
cured, despite countless symptoms I haven't even
recorded here. (Largely cognitive, but also
physical). I tried to work with her, having her
consult Dr. Sam Donta, but her heart just wasn't
with it. She was practicing cookbook medicine and I
knew I had to find a better doctor. This
same doctor couldn't even diagnose my friend's
suicide threats when they were point blank. (I
had to bring her to another doctor to get her into a
mental hospital at the same time I my
illness was peaking.) I was clearly relapsing every
4 weeks with my cycle, despite taking
doxycycline faithfully.
My new doctor followed Dr. Joseph Burrascano's
protocol of switching antibiotics every so
many weeks. I made such terrific progress over the
next several months. I had some very
terrible herxes most notably while on doxycycline
that never occurred in earlier treatment.
My right shoulder was in bad shape, and I finally
chose to have physical therapy to restore it
(1997). By Oct. 1996, 26 mo. after initial
diagnosis, I finally plateaued in healing. My relapses
were vague, mild, and not occurring more than every
7 weeks, and I was willing to stop
antibiotics on a trial basis despite some tolerable,
persistent symptoms. (Two earlier attempts
had failed.) This decision came after months of
prayer and research for non-prescription
treatment of Lyme disease, one treatment in
particular. I really wanted to break away from
being dependent on a doctor and antibiotics to treat Lyme.
I would have been very concerned about failure &
relapse again, but this time I had something
else to try out that didn't require a prescription.
My doctor had "off the record" told me about
colloidal silver. He couldn't recommend it but had
received good reports about it from other
patients of his. So I decided to give that a try,
investing in some Futurebiotics CS (5 ppm). I
tried it for a couple weeks, and the aches in my
hands and feet, and the tinnitus (which I
thought were permanent) went away. I started making
my own with a home made generator
that costs about $30 to make.
I had a bad relapse in Feb. during a cold spell. My
bones ached badly for a few days. But after
that, I was nearly completely asymptotic while
taking the CS. I eventually started skipping the
CS for weeks at a time, up to 3 months abstention.
If a relapse came back (any triad of
physical & neurological symptoms) I would resume the
CS for a minimum of 5 days for up to 2
months. The CS has kept me going ever since fall,
1996. I also noticed I could keep colds from
turning into sinus infections which I used to get at
least 3 or 4 times a year. The only
antibiotics I've taken since then have been for
dental work, required due to my MVP.
Incidentally, the MVP symptoms are a rare occurrence
now; they usually peak during allergy
season or times of high level of stress or exertion.
Now I get a better quality (longer shelf life)
CS from a friend who invested in an expensive
commercial CS generator for her personal use.
Although I seldom use it, I keep it on hand.
I also have not ever used it regularly with my kids
because there is not enough documented
scientific evidence of it's safety. So I don't
recommend CS in that sense. What I recommend is
that people research as best they can so they can
make an informed decision whether or not
to try CS themselves. Based on the scientific
studies I've found, it is not CS but over use of
prescription silver salts and accidental industrial
exposure to elemental silver (which are of a
much larger particle size and concentration than CS)
that are not safe to take long term or in
high doses. The CS is a far less amt. due to it's
smaller size and concentration, so it stands to
reason that the risk is far less. I am unable to
find any case of silver poisoning (argyria) due to
colloidal silver to date. However, one former user
of prescription silver medication, "the blue
lady" is known to "bash" CS, surmising that what she
took (that turned her blue after years of
use) is the same stuff as CS. It is not, but you
really have to study about CS and her case to be
assured for yourself.
Since I began the CS, I found I had far more energy
than I ever remember having, and this has
restored my inner creative nature. Extended family
really noticed this at Christmas, 1996,
when I was energetic and excited about living once
again. (On a private note, my husband also
appreciated my substantially improved libido.)
So what symptoms do I have now? Once in a while, a
bone will ache or my hip or shoulder may
feel weak. Or once in a great while (not more than
once in 4-6 months now) I get tinnitus,
headache, fatigue and bone aches or some other
symptom such as cognitive - difficulty
spelling or typing. I take the CS and within a
couple days, I feel like I'm back on course.
My big problem (aside from not enough hours in the
day to do all I want to do!) now are a
couple problems secondary to Lyme and menstrual
problems. I need to lose about 35 lbs. I'm
hoping this fall to do something about the fibroids
so my menstrual cycles won't dictate my
level of activity any longer.
No longer is Lyme calling the shots in my life. I
sincerely and humbly thank my God for bringing
me through battle after battle, mental, physical,
spiritual and with the medical community.
And for leading my path to colloidal silver, which
in my case has not cured me but has restored
to me the independence and life I was longing for.
--
best
william meyer
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