Jason,
I was on a quest similar to yours. After many years of continued decline in
my health, many of the same symptoms you have and more, I was finally
diagnosed with MS, this was after interstitial cystitis, chronic fatigue,
fibromyalgia, hypothyroidism, chronic yeast, asthma, etc. BUT, I now find
out I have chronic late stage lyme disease. It can mimic so many things,
there are also many other co-infections that go along with lyme. As someone
else mentioned to you, there are treatments. If you have had lyme for a
long time, it usually requires very aggressive treatment. It does take
someone who understands and treats lyme regularly to properly diagnose and
treat.
When you have multi-system health problems involving your immune system,
most often there is one major culprit, but the primary problem can cause and
mimic so many other illnesses. Keep searching until you find a doctor that
is capable and will listen and be your own advocate.
joni
Greetings...
I am on what appears to be an eternal quest to figure out what exactly is
going on in my body, and how to fix it. For 7 years I have bobbed around
from Dr. to Dr. and from diagnosis to diagnosis (all of which ended up being
incomplete), ultimately leaving me on my own to figure things out.
The closest thing I can come to is either Fibromyalgia / Chronic Fatigue, or
Myofascial Pain Syndrome, Candida, and ??? Seems like I may have a lot of
different things going on, but I DON'T UNDERSTAND WHY MY BODY JUST WONT
**HEAL** LIKE IT IS SUPPOSED TO!!!! :-(
Can anyone please help to cut through the fog of confusion and suffering? I
am only 30 years old, and have been suffering for too long!! I am SO TIRED
of Drs not knowing what to tell me, cramming a million pills in my face, and
taking all my money and in return getting nothing besides frustration and
side effects.
Overall it seems as if my immune system is essentially just not functioning.
My body should have healed by now. I am only 30. It feels like something
SYSTEMIC is sapping my energy and hampering my immune system... BUT WHAT IS
IT!?!?!?!?!?
Here's what is going on with me:
MUSCLE PAIN / WEAKNESS:
My muscles hurt when I use them, specifically my shoulders, neck and arms.
And I am talking about light use - like reading some magazines or driving
for 30 min. I was in some fairly severe rear-ending car accidents in my
earlier years, so theoretically this could be causing some of my muscle
pain/weakness all these years later? Myofascial Pain Syndrome?
Fibromyalgia?
ENERGY:
My energy levels are also at an all time low - it is as if my "chi" or life
force is just COMPLETELY DRAINED. Hard to describe, but my "life energy"
feels like it is not even there at all. No excitement, no happiness, no
creative drive, no ANYTHING. I feel like a walking husk, like everything has
just gone flat line. Is this what Chronic Fatigue feels like?
ANXIETY:
I have a LOT of anxiety that appears to come from a biochemical / biological
level. In other words, I don't get all worked up about something and thus
experience anxiety. Quite the opposite: it's a nice day, I am in a good
mood, yet I have twisting, nervous anxiety running through my system.
Frustrating and hard to deal with to say the least.
LIBIDO:
My libido has never been so low in my life - it as if it is non-existent.
BRAIN FOG:
When I eat sugars or alcohol, I get the dreaded brain fog that Candida and
Fibromyalgia sufferers experience. This leads me to think that I have
Candida at a bare minimum.
DARK CIRCLES UNDER EYES:
These vary in intensity, but are always there to the point that people often
comment with things like "wow, you look tired!" or "wow, you look terrible!
Get some sleep!" etc etc etc. and it is not only very frustrating, but also
very embarrassing and self-esteem sapping.
WHEAT SENSITIVITY:
When I eat wheat (like the amount in an order of tempura shrimp), I get
upper extremity muscle pain, and very uncomfortable anxiety that almost
seems to come from a nervous system level. Hard to explain but it as if
someone is sticking a fork in my whole nervous system and just twisting.
Very uncomfortable, and usually is accompanied by stomach upset/nausea.
ALLERGIES / CHEMICAL SENSITIVITIES:
I am sensitive to many fragrances, detergents, etc so avoid all those, but
also have problems with dust mites, diesel smoke, etc. If I eat food that
was wrapped in certain types of Saran (PVC) wrap, I break out in hives. This
was recently discovered to be a sensitivity to phthalates which are
chemicals put into some plastics to soften them. See
http://www.calisafe.org/_disc1/00000066.htm and
http://www.jobwerx.com/news/Archives/plastics_biz-id=947140_529.html for
more info on phthalates.
_jason_
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