Hi
rekan-rekan semuanya,
Ini
ada kisah seorang bayi bernama Samuel Ryan Raozen (anak dari Richard and
Hellen Raozen ), berusia 6 bulan dan lahir pada tanggal 28 Juni 2008
di Bandung, Indonesia.
Dia didiagnosa menderita penyakit yang aneh, namanya Hepatic
Hemangioendothelioma. Singkatnya, penyakit ini adalah tumor pembuluh darah yang
membuat hati membengkak, nyaris menyamai ukuran hati orang dewasa. Hati yang
besar ini membuat kerja jantung sangat berat sehingga jantungnya juga
membengkak.
Sampai
saat ini Samuel masih dirawat di rumah sakit Singapore, dan orang tuanya
memerlukan banayk uang untuk biaya rs tersebut…
Mereka
berharap sumbangan untuk biaya rs Samuel meskipun jumlahnya kecil tapi itu akan
sangat membantu Samuel.
Sumbangan
dapat disetor ke HSBCBandung, rekening 005-010012-086
BAN Charity. Kami
percaya tidak ada yang terlalu kecil ataupun terlambat untuk menolong orang
yang membutuhkan.
Tanto
Mariono
Rekan
rekan semua,
Inilah
kisah memilukan tentang anak ex rekan kita Hellen (ex RM HP), yang sudah
mendunia…. Beban hellen dan keluarga sangat berat…. Dan akhirnya mereka pun
hanya dapat menulis email ini (terlampir) dan menharapkan uluran tangan dari
rekan yg terbeban.
Saya
mengerti, setiap orang mempunyai kesulitan masing2 dam alokasi dana masing2….
Namun demikian, jika hati Anda tergerak, saya akan sangat berterima kasih jika
Anda bisa menyisihkan sebagian dari dana Anda untuk meringankan beban Hellen
dan keluarga. Sebelumnya saya pernah mengirim email dengan mengirimkannya pada
kalangan terbatas (hanya orang yang mengenal Hellen). Namun setelah saya pikir
lebih lanjut, kali ini saya akan mengirimkannya pada semua orang yang saya
kenal krn mungkin saja diantara Anda yang tidak mengenal Hellen, ada yang
sebetulnya sedang dalam kondisi berlebih dan sangat ingin membagikan berkat
Anda kepada orang yang membutuhkan. Saya sangat akan berterimakasih jika Anda
juga dapat membantu saya dalam menyebarluaskan email ini. Jika Anda memang
dalam keadaaan yang tidak memungkinkan untuk partisipasim jangan memaksakan
diri, saya tidak bermaksud untuk “menodong” Anda, saya pun tidak dapat ngingat
siapa saja yang saya kirimin email ini. Saya hanya merasa, semakin banyak saya
mengirimkan email ini, semakin besar kemungkinan kami (rekan2 hellen) dapat
menghimpun jumlah yang lebih besar untuk hellen.
Sumbangan
dapat disetor ke HSBC Bandung, rekening 005-010012-086 BAN Charity.
Kami percaya tidak ada yang terlalu kecil ataupun terlambat untuk
menolong orang yang membutuhkan.
Terima kasih atas kesedian Anda membaca email ini. Tuhan memberkati tangan
tangan yang
memberi dengan rela hati.
Ratna
K
ONGKOWIDJAJA
Branch
Operations (BOP) Bandung
| The Hongkong and Shanghai Banking Corporation
Limited
Office: Wisma HSBC GF, Jl. Asia Afrika
116, Bandung, 40261, Indonesia
---On Fri, 1/9/09, cubus ong < [email protected] > wrote:
From:
Cubus ong < [email protected] >
Subject: Asking for help for baby Samuel
To:[email protected]
Date: Friday, January 9, 2009, 8:24 AM
Hi
! My name is Samuel Ryan Raozen. I am a 6 month old baby boy born In 28 June
2008 in Bandung, Indonesia. I was diagnosed with a rare disease, namely Hepatic
Hemangioendothelioma. It is a tumor of blood vessels that makes my liver to
swell to almost a size of adult’s. The Big Liver makes my heart works so hard
that my heart also becoming swollen.
Initially
when I was 1 month old, my parents noticed of my big tummy. My cry was weak and
I was breathless. I was breathless. I was treated for 2 weeks in my home
country where the doctors mistaken my symtoms for viral infection and treated
me as they deemed appropriate. They did surgery on my hip where they put a plug
to take out some of my blood and put in some new blood. Each time is 5 ml blood
and it took 4 hours to exchange my blood with new blood donated by my uncles.
Then my body was swollen due to fluid retention. I was looked chubby while I m
in fact losing weight!
After
doctor s realized that it was not viral infection, I was evacuated to National
University Hospital, Singapore where I was diagnosed with the blood vessels
tumor. Since it is a rare disease in the world, my case becomes the first
experience for my doctor here in handling Hepatic Hemangioendothelioma.
My
Liver is so big that it fill up much of my tummy space. It pressed my lungs and
makes me difficult to breath. It also makes me couldn’t drink milk properly, so
I need to use feeding tube. I drink limited volume of milk with a machine
called feeding pump to make sure the milk goes into my body slowly.
Besides
the liver, I also got hypotyroidsm. Tyroid is a growth hormone. A child surely
needs it to growth up. Lacking of tyroid is harmful especially for the brain
who really need it to develop faster in first year of childhood. Hypotyroidsm
means my body lack of tyroid but it is not because of my tyroid glands being
naughty. My glands produce a proper amount of tyroid but the ‘naughty’ tumor
take the hormone for himself. It makes my body difficult to grow. Doctor’s term
is ‘I was failure to thrive’ while the blood vessels in liver keep growing very
fast. You must be agreeing with me that the tumor is VERY naughty!
So,
the good doctors here decided to put some coils into naughty blood vessels in
my liver. It will block some of the vessels so my heart wouldn’t need to work
so hard. They did this procedure called ‘Embolisation’ three times. When my
Oncologist saw the picture of my liver blood vessels, he was very surprised. He
said there are 3 arteries go to my liver instead of 1 in normal person. (Well,
I know I am special in certain way) Normally the doctor only needs 2 or 3 coils
in one embolisation. But guess, my liver need so many coil you could not count
when you see the picture! By the way it is all successfully done, oh Thanks
God!
If
you see my picture maybe you notice that I use tracheostomy tube. The doctor
found my airways pressed by my ‘BIG’ heart makes me depend on ventilator
machine. So, when I become 4 months old doctors open a hole on my neck and
place a tube for me to breath. Now I am more happy as I can breath easier.
Doctors said hopefully my airways muscle will become stronger when I grow up so
I won’t need ventilator and even trachea tube. Well, I certainly pray and
believe that I will.
By
the way, my health has clinically improved as y body response to chemotherapy
and medication I took. The doctors still want me to continue my medication
until I reach 12 for 18 months old since this kind of tumor will regress itself
after baby like me reach certain age. Oh, how I want to grow up faster!
Sadly
is I ve been staying so many month in ICU. Mid November 2008 I was very happy
as I can go home to my granduncle’s house where we can temporarily stay in this
foreign country. But then I need rushed back to ICU at 3 December keep alarming
because of my condition dropped suddenly. My mommy and auntie did CPR on me
while I was gasping for help. I can hear them praying while they keep pressing
my chest and blow oxygen through an ambubag “1 … 2… 3… Jesus help… 1….
2…. Please Jesus…. 3….”
Since
that day, I stay in ICU again. Hmmmm, I tell you friends, to those who never
been in hospital and might think is quite a cool place where everybody visit
you with doctors and nurses being so nice taking care of you. I tell you
staying 1 night here is really like a year. And if you have to, don’t stay too
long in hospital like me. it is nightmare.
Well,
after all God is keep helping me out. There was also one time in hospital where
my ventilator accidently loose out. I could not breathe and my heartbeat
stopped. Really, it was stopped. You can ask my doctor if you don’t believe.
Doctors gave me adrenalin shot and did resuscitation. And back I my heartbeat
again! It was really scary, but whew…. I feel alive again. Friends, you must
really - really – I repeat – really – really – with big capital – REALLY
grateful that you can breathe easily. Your respiratory system is such a
miraculous gift from God.
Now
that my mom and dad facing financial difficulties for paying my hospital bill.
When I was born they have asked 2 insurance companies to issue insurance
policy, but unfortunately they only accept if a baby already being 2 months
old. Then I was sick before getting 2 month, so no insurance want to cover now.
In
attempt to cone up with the costs for the medical care, mom and dad have
exhausted all their resources up to the point of placing our only house in
Indonesia as collateral for the loan (with an interest rate of 12.5% apr). This
is the fastest way of getting cash to pay the hospital than selling the house
in this time of global crisis. Wow, what an intelligent way of saying for a
baby like me! You know better about the global crisis than me.
My
dad also borrowed lot money from our relatives. My parents are willing to give
up any thing to help me but I know they could not afford anymore. Mommy said we
have paid a total of SGD 100,000 to the hospital and we have at least SGD
80,000 of debt to hospital. It still mounting up as doctors could not know when
they can discharge me.
The
hospital wants us to pay another SGD 40,000 on 6 months which is very difficult
for my parents to meet. And the rest of the bill to be paid as soon as
possible.
My
dad, Richard is working for the family printing business getting monthly income
of about SGD 1400 and my mom, Hellen is run small business while talking care
me and my big brother. She turn our home garage as kids photo studio & she
do photo design with average monthly profit of SGD 300 only.
Uncle,
Auntie, friends and whoever read my story here, I really to survive through
this all. I want to live. And I want to live fruitful live that I can grow up
becoming a big happy boy. I want to become a man who can live a normal life
like you and furthermore I want to help people as I am helped by many. I have
dream of helping sick and unfortunate children.
Please
pray for me.
For
those you would like to help by donation, you may do by transferring to below
accounts. No matter how much is it, you have been a great - great help for me
and my family. A BIG THANK YOU from little Samuel.
1.
2.
Samuel
is now staying in PICU, ward 46 room 10, National University Hospital,
Singapore.
Richard
and Hellen
Raozen
Jln.
Batununggal Mulia 2 no
18
Bandung
– Indonesia
Richard
Phone : +62 - 22 – 7514465 / +62818614405 (Indonesia)
Hellen
Phone : +65-98078281 (Singapore)
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