Season Greating to you all! :)
I don't write often so you may not even remember me, but I am Carol from
Culver. Fairly new TM patient, diagnosed this past summer. I just want to
tell you that even though I don't participate in writing often, I do read
what you write and have learned so much from you. I really appreciate the
sharing and I'll try to do better in communicating with you all in 2006.
I will be visiting my doctor this Thursday to discuss going to John Hopkins
in January or February. Will any of you be there during this time frame?
Would love to catch up and talk with someone. But I guess there will be
plenty others there that I can converse with.
Was so sorry to hear about Mykella's passing.
Carol T10
From: [EMAIL PROTECTED]
Reply-To: [email protected]
To: [EMAIL PROTECTED]
Subject: tmic-digest Digest V2005 #517
Date: Mon, 19 Dec 2005 19:24:50 -0800
Content-Type: text/plain
tmic-digest Digest Volume 2005 : Issue 517
Today's Topics:
Re: [TMIC] MYKELLA [ [EMAIL PROTECTED] ]
[TMIC] so stiff [ "Krissy" <[EMAIL PROTECTED]>
]
Re: [TMIC] MYKELLA [ [EMAIL PROTECTED] ]
Re: [TMIC] so stiff [ "Gillian Clark"
<[EMAIL PROTECTED] ]
Re: [TMIC] so stiff [ [EMAIL PROTECTED] ]
Re: [TMIC] so stiff [ Heather & Pieter
<[EMAIL PROTECTED] ]
[TMIC] Devic's [ Diane <[EMAIL PROTECTED]> ]
Date: Sat, 17 Dec 2005 22:43:20 EST
From: [EMAIL PROTECTED]
To: [EMAIL PROTECTED], [email protected]
Subject: Re: [TMIC] MYKELLA
Message-ID: <[EMAIL PROTECTED]>
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Thanks for updating us......I'm very sorry for your loss!! janh
Stillwater,
OK
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<HTML><FONT FACE=3Darial,helvetica><HTML><FONT SIZE=3D2 PTSIZE=3D10
FAMILY=
=3D"SANSSERIF" FACE=3D"Arial" LANG=3D"0">Thanks for updating us......I'm
ver=
y sorry for your loss!! janh Stillwater, OK</FONT></HTML>
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Date: Sat, 17 Dec 2005 22:56:30 -0500
From: "Krissy" <[EMAIL PROTECTED]>
To: "TM List" <[email protected]>
Subject: [TMIC] so stiff
Message-ID: <[EMAIL PROTECTED]>
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boundary="----=_NextPart_000_00EB_01C6035D.1E739150"
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Just a small update and vent...
My left leg is good, I can just about stand on my toes now, =
I still have that *wad of sand* under the toe area tho..
My right tho is soo stiff in the knee and ankle area...sore =
at the calf sometimes,it does seem to have hit some plateau...
I had to stop my PT because of lack of transportation and =
hubby's hours, and my free care ran out. I do admit I have not kept up =
with the exercises at home, tho I do walk alot. There are times now I =
feel I will not progress past this point...to the dr's said 1-2 years he =
thinks I would be *back to normal*....I am sure the stopping of PT has =
alot to do wit this stiffness, tho when I try and exercise it almost =
hurts. I'm not sure I am at a point where I am giving up and I think, =
I'll be this way the rest of my life. And I do know it is quite =
possible. I don't want to be chasing rainbows..tho I really thought I =
was going to get better again.
Anyway, just had to let it out.
=AD=20
-:=A6:- )) Blessed Be! (( -:=A6:- =AD
=AD ~Lady K/Krissy~=AD
=AD =AD =B7.=BB=A7=AB =
=B7=B4=AF`=B7.,=B8*=B8,.=B7=B4=AF`=B7.=BB=A7=AB=B7.=BB=A7=AB =B7=B4=AD
=ADMay today there be peace within you. May you trust that =
you are exactly where you want to be.=AD
=AD =AD
=ADLife is not measured by how many breaths we take, but by =
the moments that take our breath away.=AD
=AD =AD
=ADDestiny is no matter of chance. It is a matter of choice. =
It is not a thing to be waited for, it is a thing to be achieved.=AD
=AD =B7.=BB=A7=AB =
=B7=B4=AF`=B7.,=B8*=B8,.=B7=B4=AF`=B7.=BB=A7=AB=B7.=BB=A7=AB =
=B7=B4=AF`=B7.,=B8*=B8,.=B7=B4=AF`=B7.=BB=A7=AB=B7.=AD
=AD =20
=20
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<!DOCTYPE HTML PUBLIC "-//W3C//DTD HTML 4.0 Transitional//EN">
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<META http-equiv=3DContent-Type content=3D"text/html; =
charset=3Dwindows-1252">
<META content=3D"MSHTML 6.00.2800.1528" name=3DGENERATOR></HEAD>
<BODY style=3D"MARGIN: 0px">
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<TBODY>
<TR>
<TD=20
style=3D"BACKGROUND: =
url(http://www.imgag.com/product/full/ap/3046591/peace.jpg) #ffffff =
no-repeat left top; MARGIN: 0px">
<DIV style=3D"WIDTH: 100%; POSITION: relative; HEIGHT: 100%"=20
unselectable=3D"on">
<DIV=20
style=3D"PADDING-RIGHT: 15px; PADDING-LEFT: 190px; PADDING-BOTTOM: =
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<TR>
<TD style=3D"WIDTH: 100%; HEIGHT: 100%">
<DIV=20
style=3D"FONT-WEIGHT: normal; FONT-SIZE: 11pt; WIDTH: 100%; =
COLOR: #990033; FONT-STYLE: normal; FONT-FAMILY: Times New Roman, Times, =
serif; POSITION: relative; HEIGHT: 100%; TEXT-ALIGN: justify; =
TEXT-DECORATION: none"=20
JM_P=3D"1">
<DIV><SPAN JM_INS=3D"1"><SPAN JM_P=3D"1">Just a small update =
and=20
vent...</SPAN></SPAN></DIV>
<DIV><SPAN JM_INS=3D"1"><SPAN JM_P=3D"1">My left leg is =
good, I can just=20
about stand on my toes now, I still have that *wad of sand* =
under=20
the toe area tho..</SPAN></SPAN></DIV>
<DIV><SPAN JM_INS=3D"1"><SPAN JM_P=3D"1">My right tho is soo =
stiff in=20
the knee and ankle area...sore at the calf sometimes,it does =
seem to=20
have hit some plateau...</SPAN></SPAN></DIV>
<DIV><SPAN JM_INS=3D"1"><SPAN JM_P=3D"1">I had to stop my PT =
because of=20
lack of transportation and hubby's hours, and my free care =
ran out.=20
I do admit I have not kept up with the exercises at home, =
tho I do=20
walk alot. There are times now I feel I will not progress =
past this=20
point...to the dr's said 1-2 years he thinks I would be =
*back to=20
normal*....I am sure the stopping of PT has alot to do wit =
this=20
stiffness, tho when I try and exercise it almost hurts. I'm =
not sure=20
I am at a point where I am giving up and I think, I'll be =
this way=20
the rest of my life. And I do know it is quite possible. I =
don't=20
want to be chasing rainbows..tho I really thought I was =
going to get=20
better again.</SPAN></SPAN></DIV>
<DIV><SPAN JM_INS=3D"1"><SPAN JM_P=3D"1">Anyway, just had to =
let it=20
out.<BR>­ </DIV>
<DIV><FONT face=3D"Comic Sans MS" color=3D#008000 =
size=3D2>-:=A6:- ))=20
Blessed Be! (( -:=A6:- ­<BR>­ =
~Lady=20
K/Krissy~­<BR>­ ­ =B7.=BB=A7=AB=20
=B7=B4=AF`=B7.,=B8*=B8,.=B7=B4=AF`=B7.=BB=A7=AB=B7.=BB=A7=AB =
=B7=B4­<BR>­May today there be peace=20
within you. May you trust that you are exactly where you =
want to=20
be.­<BR>­ ­<BR>­Life is not measured by =
how=20
many breaths we take, but by the moments that take our =
breath=20
away.­<BR>­ ­<BR>­Destiny is no matter =
of=20
chance. It is a matter of choice. It is not a thing to be =
waited=20
for, it is a thing to be achieved.­<BR>­ =
=B7.=BB=A7=AB=20
=B7=B4=AF`=B7.,=B8*=B8,.=B7=B4=AF`=B7.=BB=A7=AB=B7.=BB=A7=AB =
=
=B7=B4=AF`=B7.,=B8*=B8,.=B7=B4=AF`=B7.=BB=A7=AB=B7.­<BR>­ </=
FONT></DIV></SPAN></SPAN></DIV></TD></TR></TBODY></TABLE></DIV></DIV></TD=
></TR></TBODY></TABLE></BODY></HTML>
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Date: Sun, 18 Dec 2005 19:30:38 EST
From: [EMAIL PROTECTED]
To: [EMAIL PROTECTED], [email protected]
Subject: Re: [TMIC] MYKELLA
Message-ID: <[EMAIL PROTECTED]>
Content-Type: multipart/alternative;
boundary="-----------------------------1134952238"
-------------------------------1134952238
Content-Type: text/plain; charset="US-ASCII"
Content-Transfer-Encoding: 7bit
Thanks so much for letting us know. We hadn't heard from her in a long
while, and I had wondered about her many times. She was a sweet, caring
soul, and
I was so sorry that she was hit so hard with TM.
My mom passed away on the exact same day. Maybe they are getting to know
each other even now.
Barbara H.
In a message dated 12/17/2005 10:40:56 PM Eastern Standard Time,
[EMAIL PROTECTED] writes:
Dear All,
If any of you remember Mykella Ribble I am writing this to let you know
that
she passed away peacefully on December 10th. I wanted to thank you for
the
support she received from the club, I know how much she appreciated it.
My best wishes and thanks to all,
Mykella's Mom.
-------------------------------1134952238
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<HTML><HEAD>
<META http-equiv=3DContent-Type content=3D"text/html; charset=3DUS-ASCII">
<META content=3D"MSHTML 6.00.2900.2802" name=3DGENERATOR></HEAD>
<BODY id=3Drole_body style=3D"FONT-SIZE: 10pt; COLOR: #000000;
FONT-FAMILY:=20=
Arial"=20
bottomMargin=3D7 leftMargin=3D7 topMargin=3D7 rightMargin=3D7><FONT
id=3Drol=
e_document=20
face=3DArial color=3D#000000 size=3D2>
<DIV>
<DIV>Thanks so much for letting us know. We hadn't heard from her in a
long=20
while, and I had wondered about her many times. She was a sweet, caring
soul=
,=20
and I was so sorry that she was hit so hard with TM. </DIV>
<DIV> </DIV>
<DIV>My mom passed away on the exact same day. Maybe they are getting to
kno=
w=20
each other even now.</DIV>
<DIV> </DIV>
<DIV>Barbara H.</DIV>
<DIV> </DIV>
<DIV>In a message dated 12/17/2005 10:40:56 PM Eastern Standard Time,=20
[EMAIL PROTECTED] writes:</DIV>
<BLOCKQUOTE=20
style=3D"PADDING-LEFT: 5px; MARGIN-LEFT: 5px; BORDER-LEFT: blue 2px
solid"><=
FONT=20
style=3D"BACKGROUND-COLOR: transparent" face=3DArial color=3D#000000
size=
=3D2><FONT=20
face=3Darial,helvetica><FONT size=3D2 PTSIZE=3D"10">Dear All, <BR><BR>If
a=
ny of you=20
remember Mykella Ribble I am writing this to let you know that she
passed=20=
away=20
peacefully on December 10th. I wanted to thank you for the support
s=
he=20
received from the club, I know how much she appreciated it. <BR><BR>My
bes=
t=20
wishes and thanks to all, <BR><BR>Mykella's Mom.</FONT>=20
</FONT></FONT></BLOCKQUOTE></DIV>
<DIV></DIV>
<DIV> </DIV></FONT></BODY></HTML>
-------------------------------1134952238--
Date: Mon, 19 Dec 2005 11:41:24 +1030
From: "Gillian Clark" <[EMAIL PROTECTED]>
To: "TM list" <[email protected]>
Subject: Re: [TMIC] so stiff
Message-ID: <[EMAIL PROTECTED]>
Content-Type: multipart/alternative;
boundary="----=_NextPart_000_004F_01C60491.24167B60"
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G'day Krissy,
sorry to hear about your setbacks. not sure that the stiffness is part =
of no pt or just a normal part of tm. You will learn that a lot of =
complaints are "JUST" TM.
I think perhaps you have reached some sort of plateaux but tm forever =
changes. Some things will improve, some things will intensify. I found =
that once I accepted that it was "just" tm, it was easier for me to =
cope, didn't worry so much about each new symptom. Makes life easier, =
for me anyway, so I'm just passing on what has helped me. May be of no =
use to you at all.
Take care and keep as well as you can
hugs
Gilly
www.originaltouchofgilly.com
----- Original Message -----=20
From: Krissy=20
To: TM List=20
Sent: Sunday, December 18, 2005 2:26 PM
Subject: [TMIC] so stiff
Just a small update and vent...
My left leg is good, I can just about stand on my toes =
now, I still have that *wad of sand* under the toe area tho..
My right tho is soo stiff in the knee and ankle =
area...sore at the calf sometimes,it does seem to have hit some =
plateau...
I had to stop my PT because of lack of transportation and =
hubby's hours, and my free care ran out. I do admit I have not kept up =
with the exercises at home, tho I do walk alot. There are times now I =
feel I will not progress past this point...to the dr's said 1-2 years he =
thinks I would be *back to normal*....I am sure the stopping of PT has =
alot to do wit this stiffness, tho when I try and exercise it almost =
hurts. I'm not sure I am at a point where I am giving up and I think, =
I'll be this way the rest of my life. And I do know it is quite =
possible. I don't want to be chasing rainbows..tho I really thought I =
was going to get better again.
Anyway, just had to let it out.
=AD=20
-:=A6:- )) Blessed Be! (( -:=A6:- =AD
=AD ~Lady K/Krissy~=AD
=AD =AD =B7.=BB=A7=AB =
=B7=B4=AF`=B7.,=B8*=B8,.=B7=B4=AF`=B7.=BB=A7=AB=B7.=BB=A7=AB =B7=B4=AD
=ADMay today there be peace within you. May you trust that =
you are exactly where you want to be.=AD
=AD =AD
=ADLife is not measured by how many breaths we take, but =
by the moments that take our breath away.=AD
=AD =AD
=ADDestiny is no matter of chance. It is a matter of =
choice. It is not a thing to be waited for, it is a thing to be =
achieved.=AD
=AD =B7.=BB=A7=AB =
=B7=B4=AF`=B7.,=B8*=B8,.=B7=B4=AF`=B7.=BB=A7=AB=B7.=BB=A7=AB =
=B7=B4=AF`=B7.,=B8*=B8,.=B7=B4=AF`=B7.=BB=A7=AB=B7.=AD
=AD =20
=20
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<HTML><HEAD><TITLE></TITLE>
<META http-equiv=3DContent-Type content=3D"text/html; =
charset=3Diso-8859-1">
<META content=3D"MSHTML 6.00.2900.2802" name=3DGENERATOR>
<STYLE></STYLE>
</HEAD>
<BODY style=3D"MARGIN: 0px" bgColor=3D#ffffff>
<DIV align=3Dcenter><STRONG><FONT face=3D"Calisto MT" =
color=3D#008080>G'day=20
Krissy,</FONT></STRONG></DIV>
<DIV align=3Dcenter><STRONG><FONT face=3D"Calisto MT"=20
color=3D#008080></FONT></STRONG> </DIV>
<DIV align=3Dcenter><STRONG><FONT face=3D"Calisto MT" =
color=3D#008080>sorry to hear=20
about your setbacks. not sure that the stiffness is part of no pt or =
just a=20
normal part of tm. You will learn that a lot of complaints are =
"JUST"=20
TM.</FONT></STRONG></DIV>
<DIV align=3Dcenter><STRONG><FONT face=3D"Calisto MT"=20
color=3D#008080></FONT></STRONG> </DIV>
<DIV align=3Dcenter><STRONG><FONT face=3D"Calisto MT" color=3D#008080>I =
think perhaps=20
you have reached some sort of plateaux but tm forever changes. =
Some things=20
will improve, some things will intensify. I found that once I =
accepted=20
that it was "just" tm, it was easier for me to cope, didn't worry so =
much about=20
each new symptom. Makes life easier, for me anyway, so I'm just =
passing on=20
what has helped me. May be of no use to you at =
all.</FONT></STRONG></DIV>
<DIV align=3Dcenter><STRONG><FONT face=3D"Calisto MT"=20
color=3D#008080></FONT></STRONG> </DIV>
<DIV align=3Dcenter><STRONG><FONT face=3D"Calisto MT" =
color=3D#008080>Take care and=20
keep as well as you can</FONT></STRONG></DIV>
<DIV align=3Dcenter><STRONG><FONT face=3D"Calisto MT"=20
color=3D#008080></FONT></STRONG> </DIV>
<DIV align=3Dcenter><STRONG><FONT face=3D"Calisto MT"=20
color=3D#008080>hugs</FONT></STRONG></DIV>
<DIV><FONT face=3DArial size=3D2>Gilly<BR><A=20
href=3D"http://www.originaltouchofgilly.com";>www.originaltouchofgilly.com=
</A></FONT></DIV>
<BLOCKQUOTE=20
style=3D"PADDING-RIGHT: 0px; PADDING-LEFT: 5px; MARGIN-LEFT: 5px; =
BORDER-LEFT: #008080 2px solid; MARGIN-RIGHT: 0px">
<DIV style=3D"FONT: 10pt arial">----- Original Message ----- </DIV>
<DIV=20
style=3D"BACKGROUND: #e4e4e4; FONT: 10pt arial; font-color: =
black"><B>From:</B>=20
<A [EMAIL PROTECTED] =
href=3D"mailto:[EMAIL PROTECTED]">Krissy</A>=20
</DIV>
<DIV style=3D"FONT: 10pt arial"><B>To:</B> <A =
[EMAIL PROTECTED]
href=3D"mailto:[email protected]";>TM List</A> </DIV>
<DIV style=3D"FONT: 10pt arial"><B>Sent:</B> Sunday, December 18, 2005 =
2:26=20
PM</DIV>
<DIV style=3D"FONT: 10pt arial"><B>Subject:</B> [TMIC] so stiff</DIV>
<DIV><BR></DIV>
<TABLE height=3D"100%" cellSpacing=3D0 cellPadding=3D0 width=3D"100%">
<TBODY>
<TR>
<TD=20
style=3D"BACKGROUND: =
url(http://www.imgag.com/product/full/ap/3046591/peace.jpg) #ffffff =
no-repeat left top; MARGIN: 0px">
<DIV style=3D"WIDTH: 100%; POSITION: relative; HEIGHT: 100%"=20
unselectable=3D"on">
<DIV=20
style=3D"PADDING-RIGHT: 15px; PADDING-LEFT: 190px; =
PADDING-BOTTOM: 0px; WIDTH: 100%; PADDING-TOP: 25px; POSITION: relative; =
HEIGHT: 100%"=20
align=3Dcenter unselectable=3D"on">
<TABLE style=3D"WIDTH: 100%; HEIGHT: 100%" cellSpacing=3D0 =
cellPadding=3D0=20
unselectable=3D"on">
<TBODY unselectable=3D"on">
<TR>
<TD style=3D"WIDTH: 100%; HEIGHT: 100%">
<DIV=20
style=3D"FONT-WEIGHT: normal; FONT-SIZE: 11pt; WIDTH: =
100%; COLOR: #990033; FONT-STYLE: normal; FONT-FAMILY: Times New Roman, =
Times, serif; POSITION: relative; HEIGHT: 100%; TEXT-ALIGN: justify; =
TEXT-DECORATION: none"=20
JM_P=3D"1">
<DIV><SPAN JM_INS=3D"1"><SPAN JM_P=3D"1">Just a small =
update and=20
vent...</SPAN></SPAN></DIV>
<DIV><SPAN JM_INS=3D"1"><SPAN JM_P=3D"1">My left leg is =
good, I can=20
just about stand on my toes now, I still have that *wad of =
sand*=20
under the toe area tho..</SPAN></SPAN></DIV>
<DIV><SPAN JM_INS=3D"1"><SPAN JM_P=3D"1">My right tho is =
soo stiff in=20
the knee and ankle area...sore at the calf sometimes,it =
does seem=20
to have hit some plateau...</SPAN></SPAN></DIV>
<DIV><SPAN JM_INS=3D"1"><SPAN JM_P=3D"1">I had to stop my =
PT because=20
of lack of transportation and hubby's hours, and my free =
care ran=20
out. I do admit I have not kept up with the exercises at =
home, tho=20
I do walk alot. There are times now I feel I will not =
progress=20
past this point...to the dr's said 1-2 years he thinks I =
would be=20
*back to normal*....I am sure the stopping of PT has alot =
to do=20
wit this stiffness, tho when I try and exercise it almost =
hurts.=20
I'm not sure I am at a point where I am giving up and I =
think,=20
I'll be this way the rest of my life. And I do know it is =
quite=20
possible. I don't want to be chasing rainbows..tho I =
really=20
thought I was going to get better =
again.</SPAN></SPAN></DIV>
<DIV><SPAN JM_INS=3D"1"><SPAN JM_P=3D"1">Anyway, just had =
to let it=20
out.<BR>­ </DIV>
<DIV><FONT face=3D"Comic Sans MS" color=3D#008000 =
size=3D2>-:=A6:- ))=20
Blessed Be! (( -:=A6:- ­<BR>­ =
~Lady=20
K/Krissy~­<BR>­ ­ =B7.=BB=A7=AB=20
=
=B7=B4=AF`=B7.,=B8*=B8,.=B7=B4=AF`=B7.=BB=A7=AB=B7.=BB=A7=AB =
=B7=B4­<BR>­May today there be=20
peace within you. May you trust that you are exactly where =
you=20
want to be.­<BR>­ ­<BR>­Life is not =
measured=20
by how many breaths we take, but by the moments that take =
our=20
breath away.­<BR>­ ­<BR>­Destiny is =
no matter=20
of chance. It is a matter of choice. It is not a thing to =
be=20
waited for, it is a thing to be =
achieved.­<BR>­ =20
=B7.=BB=A7=AB =
=B7=B4=AF`=B7.,=B8*=B8,.=B7=B4=AF`=B7.=BB=A7=AB=B7.=BB=A7=AB=20
=
=B7=B4=AF`=B7.,=B8*=B8,.=B7=B4=AF`=B7.=BB=A7=AB=B7.­<BR>­ </=
FONT></DIV></SPAN></SPAN></DIV></TD></TR></TBODY></TABLE></DIV></DIV></TD=
></TR></TBODY></TABLE></BLOCKQUOTE></BODY></HTML>
------=_NextPart_000_004F_01C60491.24167B60--
Date: Sun, 18 Dec 2005 20:16:52 EST
From: [EMAIL PROTECTED]
To: [EMAIL PROTECTED], [email protected]
Subject: Re: [TMIC] so stiff
Message-ID: <[EMAIL PROTECTED]>
Content-Type: multipart/alternative;
boundary="part1_141.53502aaa.30d76404_boundary"
--part1_141.53502aaa.30d76404_boundary
Content-Type: text/plain; charset="US-ASCII"
Content-Transfer-Encoding: 7bit
One warning about blaming every little twitch on tm.............I
discovered
when I had the tia and broke my leg that the fatigue and shortness of
breath
that I had always faulted tm for, was in fact the blockage in my left
carotid..........since the rotorooter surgery, the shortness of breath is
much better,
as for fatigue, who can tell at this busy! time of year??
janh Stillwater, OK
--part1_141.53502aaa.30d76404_boundary
Content-Type: text/html; charset="US-ASCII"
Content-Transfer-Encoding: quoted-printable
<HTML><FONT FACE=3Darial,helvetica><HTML><FONT SIZE=3D2 PTSIZE=3D10
FAMILY=
=3D"SANSSERIF" FACE=3D"Arial" LANG=3D"0">One warning about blaming every
lit=
tle twitch on tm.............I discovered when I had the tia and broke my
le=
g that the fatigue and shortness of breath that I had always faulted tm
for,=
was in fact the blockage in my left carotid..........since the rotorooter
s=
urgery, the shortness of breath is much better, as for fatigue, who can
tell=
at this busy! time of year??<BR>
<BR>
janh Stillwater, OK</FONT></HTML>
--part1_141.53502aaa.30d76404_boundary--
Date: Sun, 18 Dec 2005 19:31:02 -0700
From: Heather & Pieter <[EMAIL PROTECTED]>
To: Gillian Clark <[EMAIL PROTECTED]>, TM list <[email protected]>
Subject: Re: [TMIC] so stiff
Message-id: <[EMAIL PROTECTED]>
Content-type: multipart/alternative;
boundary="----=_NextPart_000_0024_01C60409.950494C0"
This is a multi-part message in MIME format.
------=_NextPart_000_0024_01C60409.950494C0
Content-Type: text/plain;
charset="iso-8859-1"
Content-Transfer-Encoding: quoted-printable
You are so right Gilly. I just take it one day at a time with TM. I =
have reached my plateaux I think. (had this since Sept 2003). However, =
every once in a while I notice something I can do that I haven't done =
since '03. For example, I can now wash and rinse my hair without having =
to keep one eye open so I don't lose my balance. Didn't realize I could =
do it until one time I said to myself "self - you are doing this with =
your eyes shut". Small thing but big to me.=20
Heather in Calgary=20
----- Original Message -----=20
From: Gillian Clark=20
To: TM list=20
Sent: Sunday, December 18, 2005 6:11 PM
Subject: Re: [TMIC] so stiff
G'day Krissy,
sorry to hear about your setbacks. not sure that the stiffness is part =
of no pt or just a normal part of tm. You will learn that a lot of =
complaints are "JUST" TM.
I think perhaps you have reached some sort of plateaux but tm forever =
changes. Some things will improve, some things will intensify. I found =
that once I accepted that it was "just" tm, it was easier for me to =
cope, didn't worry so much about each new symptom. Makes life easier, =
for me anyway, so I'm just passing on what has helped me. May be of no =
use to you at all.
Take care and keep as well as you can
hugs
Gilly
www.originaltouchofgilly.com
----- Original Message -----=20
From: Krissy=20
To: TM List=20
Sent: Sunday, December 18, 2005 2:26 PM
Subject: [TMIC] so stiff
Just a small update and vent...
My left leg is good, I can just about stand on my toes =
now, I still have that *wad of sand* under the toe area tho..
My right tho is soo stiff in the knee and ankle =
area...sore at the calf sometimes,it does seem to have hit some =
plateau...
I had to stop my PT because of lack of transportation =
and hubby's hours, and my free care ran out. I do admit I have not kept =
up with the exercises at home, tho I do walk alot. There are times now I =
feel I will not progress past this point...to the dr's said 1-2 years he =
thinks I would be *back to normal*....I am sure the stopping of PT has =
alot to do wit this stiffness, tho when I try and exercise it almost =
hurts. I'm not sure I am at a point where I am giving up and I think, =
I'll be this way the rest of my life. And I do know it is quite =
possible. I don't want to be chasing rainbows..tho I really thought I =
was going to get better again.
Anyway, just had to let it out.
=AD=20
-:=A6:- )) Blessed Be! (( -:=A6:- =AD
=AD ~Lady K/Krissy~=AD
=AD =AD =B7.=BB=A7=AB =
=B7=B4=AF`=B7.,=B8*=B8,.=B7=B4=AF`=B7.=BB=A7=AB=B7.=BB=A7=AB =B7=B4=AD
=ADMay today there be peace within you. May you trust =
that you are exactly where you want to be.=AD
=AD =AD
=ADLife is not measured by how many breaths we take, but =
by the moments that take our breath away.=AD
=AD =AD
=ADDestiny is no matter of chance. It is a matter of =
choice. It is not a thing to be waited for, it is a thing to be =
achieved.=AD
=AD =B7.=BB=A7=AB =
=B7=B4=AF`=B7.,=B8*=B8,.=B7=B4=AF`=B7.=BB=A7=AB=B7.=BB=A7=AB =
=B7=B4=AF`=B7.,=B8*=B8,.=B7=B4=AF`=B7.=BB=A7=AB=B7.=AD
=AD =20
=20
-------------------------------------------------------------------------=
-----
No virus found in this incoming message.
Checked by AVG Free Edition.
Version: 7.1.371 / Virus Database: 267.14.1/206 - Release Date: =
12/16/2005
------=_NextPart_000_0024_01C60409.950494C0
Content-Type: text/html;
charset="iso-8859-1"
Content-Transfer-Encoding: quoted-printable
<!DOCTYPE HTML PUBLIC "-//W3C//DTD HTML 4.0 Transitional//EN">
<HTML><HEAD><TITLE></TITLE>
<META http-equiv=3DContent-Type content=3D"text/html; =
charset=3Diso-8859-1">
<META content=3D"MSHTML 6.00.2900.2802" name=3DGENERATOR>
<STYLE></STYLE>
</HEAD>
<BODY style=3D"MARGIN: 0px" bgColor=3D#ffffff>
<DIV><FONT face=3DArial size=3D2>You are so right Gilly. I just =
take it one=20
day at a time with TM. I have reached my plateaux I think. =
(had this=20
since Sept 2003). However, every once in a while I notice =
something I can=20
do that I haven't done since '03. For example, I can now wash and =
rinse my=20
hair without having to keep one eye open so I don't lose my =
balance. =20
Didn't realize I could do it until one time I said to myself "self =
- you=20
are doing this with your eyes shut". Small thing but big to me.=20
</FONT></DIV>
<DIV><FONT face=3DArial size=3D2></FONT> </DIV>
<DIV><FONT face=3DArial size=3D2>Heather in Calgary </FONT></DIV>
<BLOCKQUOTE=20
style=3D"PADDING-RIGHT: 0px; PADDING-LEFT: 5px; MARGIN-LEFT: 5px; =
BORDER-LEFT: #000000 2px solid; MARGIN-RIGHT: 0px">
<DIV style=3D"FONT: 10pt arial">----- Original Message ----- </DIV>
<DIV=20
style=3D"BACKGROUND: #e4e4e4; FONT: 10pt arial; font-color: =
black"><B>From:</B>=20
<A [EMAIL PROTECTED] =
href=3D"mailto:[EMAIL PROTECTED]">Gillian=20
Clark</A> </DIV>
<DIV style=3D"FONT: 10pt arial"><B>To:</B> <A =
[EMAIL PROTECTED]
href=3D"mailto:[email protected]";>TM list</A> </DIV>
<DIV style=3D"FONT: 10pt arial"><B>Sent:</B> Sunday, December 18, 2005 =
6:11=20
PM</DIV>
<DIV style=3D"FONT: 10pt arial"><B>Subject:</B> Re: [TMIC] so =
stiff</DIV>
<DIV><BR></DIV>
<DIV align=3Dcenter><STRONG><FONT face=3D"Calisto MT" =
color=3D#008080>G'day=20
Krissy,</FONT></STRONG></DIV>
<DIV align=3Dcenter><STRONG><FONT face=3D"Calisto MT"=20
color=3D#008080></FONT></STRONG> </DIV>
<DIV align=3Dcenter><STRONG><FONT face=3D"Calisto MT" =
color=3D#008080>sorry to hear=20
about your setbacks. not sure that the stiffness is part of no pt or =
just a=20
normal part of tm. You will learn that a lot of complaints are =
"JUST"=20
TM.</FONT></STRONG></DIV>
<DIV align=3Dcenter><STRONG><FONT face=3D"Calisto MT"=20
color=3D#008080></FONT></STRONG> </DIV>
<DIV align=3Dcenter><STRONG><FONT face=3D"Calisto MT" =
color=3D#008080>I think=20
perhaps you have reached some sort of plateaux but tm forever =
changes. =20
Some things will improve, some things will intensify. I found =
that once=20
I accepted that it was "just" tm, it was easier for me to cope, didn't =
worry=20
so much about each new symptom. Makes life easier, for me =
anyway, so I'm=20
just passing on what has helped me. May be of no use to you at=20
all.</FONT></STRONG></DIV>
<DIV align=3Dcenter><STRONG><FONT face=3D"Calisto MT"=20
color=3D#008080></FONT></STRONG> </DIV>
<DIV align=3Dcenter><STRONG><FONT face=3D"Calisto MT" =
color=3D#008080>Take care and=20
keep as well as you can</FONT></STRONG></DIV>
<DIV align=3Dcenter><STRONG><FONT face=3D"Calisto MT"=20
color=3D#008080></FONT></STRONG> </DIV>
<DIV align=3Dcenter><STRONG><FONT face=3D"Calisto MT"=20
color=3D#008080>hugs</FONT></STRONG></DIV>
<DIV><FONT face=3DArial size=3D2>Gilly<BR><A=20
=
href=3D"http://www.originaltouchofgilly.com";>www.originaltouchofgilly.com=
</A></FONT></DIV>
<BLOCKQUOTE=20
style=3D"PADDING-RIGHT: 0px; PADDING-LEFT: 5px; MARGIN-LEFT: 5px; =
BORDER-LEFT: #008080 2px solid; MARGIN-RIGHT: 0px">
<DIV style=3D"FONT: 10pt arial">----- Original Message ----- </DIV>
<DIV=20
style=3D"BACKGROUND: #e4e4e4; FONT: 10pt arial; font-color: =
black"><B>From:</B>=20
<A [EMAIL PROTECTED] =
href=3D"mailto:[EMAIL PROTECTED]">Krissy</A>=20
</DIV>
<DIV style=3D"FONT: 10pt arial"><B>To:</B> <A =
[EMAIL PROTECTED]
href=3D"mailto:[email protected]";>TM List</A> </DIV>
<DIV style=3D"FONT: 10pt arial"><B>Sent:</B> Sunday, December 18, =
2005 2:26=20
PM</DIV>
<DIV style=3D"FONT: 10pt arial"><B>Subject:</B> [TMIC] so =
stiff</DIV>
<DIV><BR></DIV>
<TABLE height=3D"100%" cellSpacing=3D0 cellPadding=3D0 =
width=3D"100%">
<TBODY>
<TR>
<TD=20
style=3D"BACKGROUND: =
url(http://www.imgag.com/product/full/ap/3046591/peace.jpg) #ffffff =
no-repeat left top; MARGIN: 0px">
<DIV style=3D"WIDTH: 100%; POSITION: relative; HEIGHT: 100%"=20
unselectable=3D"on">
<DIV=20
style=3D"PADDING-RIGHT: 15px; PADDING-LEFT: 190px; =
PADDING-BOTTOM: 0px; WIDTH: 100%; PADDING-TOP: 25px; POSITION: relative; =
HEIGHT: 100%"=20
align=3Dcenter unselectable=3D"on">
<TABLE style=3D"WIDTH: 100%; HEIGHT: 100%" cellSpacing=3D0 =
cellPadding=3D0=20
unselectable=3D"on">
<TBODY unselectable=3D"on">
<TR>
<TD style=3D"WIDTH: 100%; HEIGHT: 100%">
<DIV=20
style=3D"FONT-WEIGHT: normal; FONT-SIZE: 11pt; WIDTH: =
100%; COLOR: #990033; FONT-STYLE: normal; FONT-FAMILY: Times New Roman, =
Times, serif; POSITION: relative; HEIGHT: 100%; TEXT-ALIGN: justify; =
TEXT-DECORATION: none"=20
JM_P=3D"1">
<DIV><SPAN JM_INS=3D"1"><SPAN JM_P=3D"1">Just a small =
update and=20
vent...</SPAN></SPAN></DIV>
<DIV><SPAN JM_INS=3D"1"><SPAN JM_P=3D"1">My left leg is =
good, I can=20
just about stand on my toes now, I still have that *wad =
of sand*=20
under the toe area tho..</SPAN></SPAN></DIV>
<DIV><SPAN JM_INS=3D"1"><SPAN JM_P=3D"1">My right tho is =
soo stiff=20
in the knee and ankle area...sore at the calf =
sometimes,it does=20
seem to have hit some plateau...</SPAN></SPAN></DIV>
<DIV><SPAN JM_INS=3D"1"><SPAN JM_P=3D"1">I had to stop =
my PT because=20
of lack of transportation and hubby's hours, and my free =
care=20
ran out. I do admit I have not kept up with the =
exercises at=20
home, tho I do walk alot. There are times now I feel I =
will not=20
progress past this point...to the dr's said 1-2 years he =
thinks=20
I would be *back to normal*....I am sure the stopping of =
PT has=20
alot to do wit this stiffness, tho when I try and =
exercise it=20
almost hurts. I'm not sure I am at a point where I am =
giving up=20
and I think, I'll be this way the rest of my life. And I =
do know=20
it is quite possible. I don't want to be chasing =
rainbows..tho I=20
really thought I was going to get better=20
again.</SPAN></SPAN></DIV>
<DIV><SPAN JM_INS=3D"1"><SPAN JM_P=3D"1">Anyway, just =
had to let it=20
out.<BR>­ </DIV>
<DIV><FONT face=3D"Comic Sans MS" color=3D#008000 =
size=3D2>-:=A6:- ))=20
Blessed Be! (( -:=A6:- ­<BR>­ =
~Lady=20
K/Krissy~­<BR>­ ­ =B7.=BB=A7=AB=20
=
=B7=B4=AF`=B7.,=B8*=B8,.=B7=B4=AF`=B7.=BB=A7=AB=B7.=BB=A7=AB =
=B7=B4­<BR>­May today there be=20
peace within you. May you trust that you are exactly =
where you=20
want to be.­<BR>­ ­<BR>­Life is not =
measured by how many breaths we take, but by the moments =
that=20
take our breath =
away.­<BR>­ ­<BR>­Destiny=20
is no matter of chance. It is a matter of choice. It is =
not a=20
thing to be waited for, it is a thing to be=20
achieved.­<BR>­ =B7.=BB=A7=AB =
=B7=B4=AF`=B7.,=B8*=B8,.=B7=B4=AF`=B7.=BB=A7=AB=B7.=BB=A7=AB=20
=
=B7=B4=AF`=B7.,=B8*=B8,.=B7=B4=AF`=B7.=BB=A7=AB=B7.­<BR>­ </=
FONT></DIV></SPAN></SPAN></DIV></TD></TR></TBODY></TABLE></DIV></DIV></TD=
></TR></TBODY></TABLE></BLOCKQUOTE>
<P>
<HR>
<P></P>No virus found in this incoming message.<BR>Checked by AVG Free =
Edition.<BR>Version: 7.1.371 / Virus Database: 267.14.1/206 - Release =
Date:=20
12/16/2005<BR></BLOCKQUOTE></BODY></HTML>
------=_NextPart_000_0024_01C60409.950494C0--
Date: Mon, 19 Dec 2005 14:24:40 -0500
From: Diane <[EMAIL PROTECTED]>
To: TM <[email protected]>
Subject: [TMIC] Devic's
Message-ID: <[EMAIL PROTECTED]>
Content-Type: text/plain; charset=us-ascii
Content-Transfer-Encoding: 7bit
This one is for Grace is she's still here.
UK JJ member 'Nunney' has Devic's / NMO, which a rare MS variant. There
are
only 50 people in the UK diagnosed with it.
The neurologists from the Walton Centre in Liverpool have told Nunney
that if she can get together a worldwide database of 600 cases, they'll
be able to get funding for research into the condition.
Diane in Canada
http://www.devic.org.uk/
