Hi Sue,
 
Well, I find it interesting that this has come up. I have had Sjogrens Syndrome (an autoimmune disease) since 1988. My DOCTOR told me a few years ago that shell fish should never be eaten if you have an autoimmune disease. I have also heard this from friends I know who have Rheumatoid Arthritis and other autoimmune diseases and they have been told the same thing.
I personally love shell fish (I live in the Pacific Northwest where it is fresh and plentiful!), but I haven't eaten it in years because of what I have been told.  Miss it terribly.
I don't know if this helps or not, it's just what I have been told.
Oh, yeah, then 4 years ago TM got me, so I am not about to even think about trying it now. Have enough "challenges" already! : - )
 
Linda in Bothell, WA
 
-------------- Original message --------------
From: "Bob and Sue Mattis" <[EMAIL PROTECTED]>

Hello!

I got a phone call on Tuesday night from a “newbie” to TM who found my name on the TMA website under PA Support Group. He developed TM in November and has recovered to the point of using a walker.  One of the questions he asked me, which I in turn am asking all you experts out there is this: “Why would eating shellfish have a negative effect on recovery from TM?”  Three times since developing TM he has eaten shellfish, and after each time, he totally lost all strength in his legs….nearly to the original point of TM paralysis.  This happened within hours after ingestion.  I had never heard of such a thing, but I told him I would post his question to the list, and perhaps someone else out! there has had a similar reaction.  Anyone have any comments on this?  I will pass on any information to him.  He unfortunately has no computer, so I will be contacting him by phone. 

 

Thanks for all your help.

Sue Mattis

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