Hi
 
I am new on this list and not a patient but my husband has been suffering from TM since Nov 04. He made very good progress uptil June 05 and was walking fine(!) upto a distance of almost 800 meters without support. But then he had a urine infection with fever and E. Coli stuck on to his bladder bringing in recurrent infections. That made him very weak in the legs and since then he has been deteriorating in strength. He is travelling to India to get checked up again as Kenya is way out and the Neurologist is not familiar with the disease. He says it is a relapse of TM. Is that possible?
 
He had drooping left eyelid on and off for about a month then it stopped to droop on its own completely.
 
After that he seemed to have foot drop and that went with physiotherapy and TENS and the physio felt it wasn't foot drop at all.
 
He barely had spasms initially and now he walks on springs it seems. He is on Tizanidine and Gabapentin.
 
Anyone going through with urine infectons? We are trying cranberry extract and Uva Ursi alternately and have just come across D Mannose. Anyone ever used these herbal medicines? Do they have any side effects?  Ae they compatible with Neurontin/Gabapentin or Tizanidine / Baclofen?? Any ino or ideas about it???
 
 
regards to all
Nima

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