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I agree Grace, that we need to be proactive. I'm just learning
that. I think my generation, at least, grew up with the feeling that
doctors were all 'good' and all knew 'everything' and we didn't question!
But not only could they not possibly know everything, but even with all their
medical knowledge, there's one thing they can't possibly know - what it's like
to live in our body! We're the only ones that know that, which is why I
agree with you that we need to know whatever they find out about our bodies,
because we're the only ones that care enough to take the time to put all these
'clues' together, and try to come up with some answers.
I think this is one of the values of TMIC - we each share what we have
learned (including the questions), and together we have enough 'clues' to help
put the big picture together. That alone may not cure us, but at least it
helps us to see the big picture better, so we can make better decisions and
learn to better live with what we have to work with.
I'm just getting ready to 'demand' to see all the results from all the
tests they did in the hospital, and expect them to give me a hassle about
it. I have to keep reminding myself, it's MY body they tested, and MY
insurance that paid for it!
BTW, Grace, I've read a lot of the old messages (before I signed up) and
saw a lot of what you've gone through! Hang in there! It reminds me
of the saying "What doesn't kill me, will only make me stronger!" I think
you're doing great, considering what you've been through, and my prayers
are with you - and all the Tmers!
Sally |
