Marie,
When I was diagnosed with TM almost two years ago, the final test was a
brain MRI (they had already done an MRI on my spinal area and found the
lesion). So, at first they said it was TM, and THEN said I would have the
brain MRI because I could have MS. The brain MRI showed no lesions, thus
the TM diagnosis held. I haven't had any tests since and my condition is
almost unchanged so I'm assuming I've not had anymore lesions.
Perhaps at the initial diagnosis you did not have the brain lesions? I
do'nt know.....is MS actually MS without brain lesions?
Sorry, I guess I'm not any help. If Johns Hopkins agreead with the initial
TM diagnosis, perhaps you did at that time only have TM. MS maybe came
later. I'll be watching to see what others think.
Gary in Michigan
----- Original Message -----
From: <[EMAIL PROTECTED]>
To: <[email protected]>
Sent: Sunday, February 12, 2006 11:12 PM
Subject: [TMIC] TM or MS
Feb. 7th was my 4th year anniversary of having TM... I have come a long
way from that night from "hell" when no-one could figure out exactly what
was wrong with me... Finally, it was decided TM was the diagnosis. Johns
Hopkins agreed with this diagnosis.I take 600mg of neurontin 4 times a
day... tho am never without pain.. I now walk with a walker, have hand
controls on my car and with my faith and family have adjusted to my new
life style. Due to Medicare I had to switch all my doctors. A Neurologist
was highly recommened as one of the best in the area. Long story
short...after all new MRI's etc... etc.. he informed me that without a
doubt I have Multiple Sclerosis. I am still in shock and not sure what is
my next step. I have made an appointment with another "top" neurologist in
the D.C area.. I have 5 lesions on my brain which supposedly indicate
MS. I am 59 years old. Also my brother -55- was just diagnosed with
underlying MS....
Any thoughts, suggestions would be greatly, greatly accepted... Anyone of
you with TM have lesions on the brain????
Thanks so much!
Marie Arthur
