Hello to all:
I doubt anyone here will remember me but I used to belong to this group years ago. I was diagnosed with TM after a major attack the Labor Day weekend when Princess Diana died (1997). Then the following year I was diagnosed with MS and, feeling I didn't belong here any longer, I left this group and went on to form my own MS group on Yahoo (MSersLife).
I love my wonderful bunch of friends on MSersLife but I am having more problems now and feel the need to talk to someone who will, hopefully, give me more advice and consolation than I am getting. Maybe the members on my MS group either have an easier course of disease than I'm having currently or the folks who could answer my questions are not reading my posts. Who knows? Anyway I thought of you people here. When I was first dxed with TM, and the months after, this gr!
oup
helped me over and over again.
Here's what's going on with me. I'm having really severe leg pain. My neuro calls it neurogenic spasms but he also calls it nocturnal spasms. He put me Baclofen last month. I started at 5 mg. and I'm now at 35 mg. Each time I increase it I am able to sleep for 3 or 4 nights then the pain gets bad enough to keep me awake again. Last night I was in too much pain again so I'll increase it tonight. I'm also having some kind of urinary spasms--I'm not really sure how to describe them. It happened all night last night and has been happening all day today.
I am just worn out from the months of disturbed sleep. I have woken up at night crying and I've been dreaming about suicide. I have always said I wouldn't kill myself because of my family --but you know it's bad when I dream about it, huh? I just wan!
t to be
pain free. I take hydrocodone for other pain but it doesn't work on this kind of pain.
I guess I'm wanting someone to say they understand. And please give me advice!
Sharon
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