Re: [TMIC]

[HeyJude48506]

In a message dated 4/30/2006 7:57:36 PM Central Standard Time, ACA ROE writes: Hi,  I am new to this list.  Just a little background.  7 mos ago I was on the golf course (I have been playing golf for the last 9 years and tennis at least 5 days a week for the last 25 years) when I had this feeling down the back of both of my legs as if I were being electrocuted.  Couldnt move from the waist down.  7 mos later the neurologists still havent given me an accurate diagnosis.  They ruled out Guilliane Barre because didnt have enough criteria for that.  Seemed to have ruled out TM.  One thinks I may have had a spinal cord stroke which other drs. have never heard of.        However, it doesnt matter what you call it, after reading all or your emails back and forth I have many symptoms and problems that you all have.  After 7 mos. I am walking with a walker but am putting most of the weight on my arms.  Still cant stand or walk without using 2 hands.  Still doing alot of therapy and working very hard.  I have some pain which seems to start every day towards evening.  Sometimes it keeps me up at night.  I am on ambian for sleep and when I wake up the pain is gone.  Also, cant get over how tired I am all the time.  I am so used to running and doing for my kids and grandchildren and now they are running and doing for me.  Thats the hardest part for me.        My husband, who is still working, is not the greatest housekeeper but I am learning to look away.  When he leaves in the AM I am able to wipe all the crumbs from the table and laugh that somehow he doesnt see them.  Cant believe I can do that because I am usually very anal about my house.         Interesting thoughts about Fosomax.  I have been on in for a number of years and so far havent had any trouble.  The medication I refuse to take is for cholestoral.  I heard I should stay away from statins.  Any thoughts.                            Thanks, Rosalie Hi Rosalie,   Welcome to the TMIC list.  It's no fun getting here, but for people with spinal cord injuries it is a Blessed place to be.  We are all warm, congenial people who get a bit cross every once in a while do to all of the frustrations we go through every day.   I am with you about being anal regarding my house.  It used to be perfect.  Four years later, I am ashamed to have people walk into the front door...back door is worse!  LOL   My husband works six days a week and we have a large home with five acres for him to mow and maintain.  He cannot take care of me and do everything that needs to be done otherwise.  I know what you mean by "looking away" and ignoring what I see that needs to be cleaned, dusted, vacuumed, etc.   I am paralyzed from the "nipple line" on down, with no sensation or movement except for my arms (Thank God) and my head.  At the moment I have two broken legs as well, due to severe osteoporosis, so have two casts to lug around with me whenever I try to get into my wheelchair.  I have been confined to bed rest, keeping my legs up, since the first of December.  The bones are healing, but at a snail's pace.   Please keep on writing and emailing.  Ask any and all questions you have and someone will try to answer you or send you to a site where you can find the information you need.   It is a Blessing that you have little pain.  It is a real issue with most of us and causes little quality of life if not medicated.  You will find that it seems like most of the doctors are still in the middle=ages when it comes to spinal disorders.   Take care of yourself.   Peace, Jude