Cora,
I would say you are definatley a much needed and loved part of the group
that has a demyelinating problem just like the rest of us no matter what the
cause.
Alan
----- Original Message -----
From: <[EMAIL PROTECTED]>
To: <[EMAIL PROTECTED]>; <[email protected]>
Sent: Sunday, May 07, 2006 9:00 AM
Subject: Re: [TMIC] Mr. Graves info?
Rosalie: The neurologist gave me a tm diagnosis, but also noted that I
had a B-12 deficiency. When I went to the 2004 Symposium, Dr Kerr noted
that a differential diagnosis (some other ailment that might look like tm
that might be present, and if found to be true, would supercede the tm
diagnosis) is B-12 deficiency. When I heard that, I asked him
specifically about it--subsequently became his patient, went to him, and
he confirmed that B-12 deficiency caused my spinal cord demyelination, at
L5/S1. A classic case, he said. Doesn't change the fact that the damage
I have causes the exact same symptoms, so I live with it like the rest of
you- and I hang around this bunch because you all are the best thing
since sliced bread! I love you all!
Cora
Of course so
far I have no diagnosis. First thought it was Guilliane-Barre Syndrome,
then
TM, but my neurologist says it was a spinal cord stroke and is quite
sure
about it.
In any case I have most of the symptons that most of you have but
fortunately not alot of pain. Some nerve pain that is like sciatic pain
but only
in the evening.
Also, the more I lie around the worse I feel. If I spend more
time
walking (with a walker of course and using mostly hands) then I dont get
as
stiff and ill feeling. I cant stand on my own yet but am working on it
and thats
because the muscles in my butt and my hamstrings are not working,
Thanks, Rosalie
