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Barbara,
When I first was hit with TM I had facial involvement which did
puzzle my neuro who was going for a probable TM diagnosis since there
were no lesions seen. I remember that my eyelids would feel stiff...when
I would wake up in the morning I felt that I had to use my fingers to
open my eyes. My tongue would twitch and my facial muscles felt like wet
cement. Even smiling felt like it took effort and I am one of these
people that are usually happy and smiling. I still occasionally get
these wet cement feelings when I have done too much and feel fatigued.
They don't last too long (usually just hours at the end of the day and
are gone in the morning). The nice thing is that I have recovered so
much that now I am able to do lots more before I hit the fatigue wall so
to speak. I feel "almost" like normal.
As for your facial stuff going on..is it possible that it could be
anything like Myasthenia Gravis? Doesn't that affect the eyes?
Laura in NC
-------Original
Message-------
Date: 05/17/06
09:35:41
Subject: [TMIC] Weird
feelings around eyes
When TM first came to take up residence, most of my
symptoms were in my left arm and lower trunk and legs. But there was one
very very sensitive spot right on top of my head (made getting haircuts
interesting -- I felt like I was going to jump out of my skin) and one
of my eyelids was at half-mast. The neurologist I saw the first couple
of days was puzzled over the eyelid, saying that that was "a brain
thing." The MRI and CAT scan showed everything was ok with my brain,
though. But when I had PT, the therapist said her chart listed TM and
encephalitis -- but nothing had ever been said to me about the latter. I
never really went back to question it, though, because I was out of the
hospital then and on the road to improvement (and it may be that in my
lists of questions I'd take when I saw the neuro, I just didn't think to
ask about it).
Eventually my eyelid righted itself, although the
sensitive spot in my head remained.
It seems like I remember reading here that TM usually
doesn't affect the head. Is that right? Would symptoms in your face or
head indicate brain involvement?
Over the past few months I've had these weird feelings
around my eyes. I'll look in the mirror, squint, wink, etc., and
everything seems to function -- just feels weird. It isn't constant, but
off and on. Then last week during one of those weird feelings, one
eyelid was a little lower, and the other was open way wider than usual
(looked very strange). It righted itself within a few
minutes.
I asked my dr. about it, and it said it must be
related to the TM. I do have weird little muscle spasm or twitchy things
going on in other muscle groups.
Do you think this is just one of those TM things or
does it warrant further investigation? Anyone else experience
this?
Barbara H.
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