[TMIC] Re: tmic-digest Digest V2006 #56

Tue, 06 Jun 2006 12:10:54 -0700

PLEASE TAKE ME OFF YOUR EMAIL LIST. THANK YOU

[EMAIL PROTECTED] wrote:

tmic-digest Digest Volume 2006 : Issue 56

Today's Topics:
Re: [TMIC] Question re: Lyrica [ "Stacy Harim" <[EMAIL PROTECTED] ]
Re: [TMIC] Questions about weaning o [ Sharon Marsden <[EMAIL PROTECTED] ]
Date: Mon, 5 Jun 2006 21:00:02 -0400
From: "Stacy Harim" <[EMAIL PROTECTED]>
To: "Trudy " <[EMAIL PROTECTED]>
CC: <[email protected]>
Subject: Re: [TMIC] Question re: Lyrica

I take 200 mg lyrica 3 times a day.  I was taking 1200 mg 3 times a day.  I am maxed out on spasm meds.  30mg baclofen 3x, zanaflex 3x and valium and can't go up anymore.  I am paraylyzed from the waist down and now recovering from a flap surgery to close a pressure sore so I hope that when it heals my spasms get better and I can go down on meds.  I don't have feeling except for the nerve pain so it affects me differently.  I did have those dreaded headaches when I came off the neurontin but look at the amount I was taking..lol
 
Stacy
----- Original Message -----
From: Trudy
Sent: Monday, June 05, 2006 8:41 PM
Subject: RE: [TMIC] Question re: Lyrica

Stacy
How much Lyrica do you take? It has helped with the pain but my legs seem to feel almost “wooden” like.
My TM left me using a walker to get around and “crazy legs” for the most part. Tightness, banding and numbness. Why did you switch from Neurontin to Lyrica. I was having memory problems and so my new neuro thought lyrica would be better for me?? I am on Baclophen. Also just starting out with it. I am supposed to getup to 10mg three times a day. Lyrica 75mg. twice a day and Neurontin 300mg. 3 times a day till I can get off it completely.
Trudy
 
From: Stacy Harim [mailto:[EMAIL PROTECTED]
Sent: Monday, June 05, 2006 6:37 PM
To: [EMAIL PROTECTED]; Trudy
Cc: [email protected]
Subject: Re: [TMIC] Question re: Lyrica
 
I wonder if it is interacting with any of your meds.  The reason I say that is because I also belong to the quad list and a lot of them also switched to lyrica.  The majority of them haven't had any complaints.  I'm not a doctor or anything just making an observation.
 
Stacy
----- Original Message -----
From: Trudy
Sent: Monday, June 05, 2006 2:33 PM
Subject: RE: [TMIC] Question re: Lyrica
 
I started Lyrica a few weeks ago. I have had at times broken out into a
sweat.. Especially my forehead.... but I thought it was just more hot
flashes that still want to ruin my day! I am in the process of weaning
off Neurontin and onto Lyrica. I take two 75mg. a day of Lyrica and am down
to 1200mg. Neurontin..
Trudy



-----Original Message-----
From: [EMAIL PROTECTED] [mailto:[EMAIL PROTECTED]
Sent: Sunday, June 04, 2006 8:53 PM
To: [email protected]
Subject: [TMIC] Question re: Lyrica

Although I post very rarely, I do read the posts as I find the information
that all of you provide to be invaluable.

My husband started taking Lyrica on Friday and, so far, it seems to be doing
a lot for the pain.  He's had a strange symptom for the past couple of days
and we don't know if it's related to the Lyrica or if it's something
else...........his head is incredibly hot.  The rest of his body is fine but
his head just won't cool down.  Has anyone else experienced anything like
this?

Thanks in advance for your input,
Michelle in Atlanta, GA
Date: Mon, 5 Jun 2006 18:20:02 -0700 (PDT)
From: Sharon Marsden <[EMAIL PROTECTED]>
To: Stacy Harim <[EMAIL PROTECTED]>, [email protected]
Subject: Re: [TMIC] Questions about weaning off Neurontin

No, I wasn't on Medicaid.  I'm on Medicare.  I didn't have any prescription insurance at all last year.  Instead I received free meds from the drug manufacturers.  Now that Medicare has the new drug insurance program I am on that.  Since I have insurance for my meds I can no longer qualify for patient assistance programs through the drug manufacturers.  Medicare pays the first $2600 in meds (that's the total costs, not the copays).  Then I'm responsible for the next $3600 in costs.  My current meds total monthly cost is around $400.  That's too much for my meager income so I decided I needed to try to get the costs pared down before I reach that $2600 amount.  And I'm coming up on it very soon.
 
So you are on Lyrica?  How expensive is it?  How long have you been on it?  I take Baclofen and it's helping. 
 
Sharon

Stacy Harim <[EMAIL PROTECTED]> wrote:
I had a very hard time weaning off of the nuerontin.  Do it very slowly.  I did it the way the doctor told me to and started lyrica slowly at the same time and had severe headaches.  I would advise you to check and see how much the lyrica is.  That could help you with the cramping and numbness that wasn't there because you were on the nuerontin and the lyrica could help.
 
Was medicaid paying for your meds before the drug plan?  If so, you might be on the wrong plan because I only paid a few bucks for Neurontin.  I would go and investigate the drug plans and see which ones that have the lowest cost on your medications if you haven't done so.
 
I hope it all works out for you,
 
Stacy
----- Original Message -----
Sent: Monday, June 05, 2006 4:04 PM
Subject: [TMIC] Questions about weaning off Neurontin

Does anyone have advice on weaning off Neurontin?  I've decided I must do so because of the high cost.  I'm on the Medicare drug plan and the Neurontin is so expensive that I'll soon reach the first level.  (then I would have to shoulder the cost of the next $3600....can't afford that).  I'm on Baclofen since January and it's helping me. 
 
And, no, I have not discussed this with my doctor.  :)
 
I normally take 3200 mg. a day.  I started reducing my dosage slightly last week--down 400 mg. a day.  Yesterday I reduced it even more.  But I am having some additional mild cramping and mild pain in the cramping areas.  It's not bad but is noticeable.  I am also extra numb from head to toe.  Now the numbness could be from the heat since it's been hitting 112 plus for several days now.
 
Any thoughts?
 
Thanks!
Sharon
TM 1997 to MS 1998


Sharon --from Arizona TM 1997 to MS 1998
It's not easy taking my problems one at a time when they refuse to get in line.  ~Ashleigh Brilliant
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Sharon --from Arizona TM 1997 to MS 1998
It's not easy taking my problems one at a time when they refuse to get in line.  ~Ashleigh Brilliant
http://health.groups.yahoo.com/group/MSersLife/

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