Re: [TMIC] New Neurologist

[Sandy Heidel]

The current thinking in the MS world is that we do have what they call "silent attacks" that occur between those that we do notice.  I guess this came about because some MS patients were having follow up MRIs and they were noticing new/old lesions. That is that they had lesions they had not documented on MRI previously but they were not necessarily new or active.  I guess they occur between noticeable attacks.   I would think....that these silent attacks are nothing new in MS but more an artifact of the MRI.  We know more about how MS progresses because of the test. But the disease is still the same as it has always been. My neuro says I only need to do a follow-up MRI when I have new symptoms and feel like I am having a new attack.  But the MS folks  now think that you can be having damage that you do not even notice so regular follow-up MRIs may be a benefit.  I think it boils down to one of those TM/MS differences/similarities that we like to discuss from time to time.  Sandy in sunny Wisconsin where the rain has finally stopped. ----- Original Message ----- From: [EMAIL PROTECTED] To: TMIC List Sent: Sunday, June 25, 2006 9:08 PM Subject: [TMIC] New Neurologist I was just wondering about your thoughts....   Two years ago I was "hit" with TM (C-3), spent a couple days in the hospital, refused steroids, left with a cane and went back to work a month later, just living with the stiffness, numbness, burning, fatigue, etc.  The two neuorologists who saw me and diagnosed menever mentioned a follow-up so I just went to my GP.    Upon recommendation by some on this list to keep in touch with a newologoist, and wishing for something for the fatigue, I went to a neurologist who said I should have had follow-ups by a neuro and we shouldn't just assume my TM is idiopathic but could be a result of MS ( my initial MRI showed no brain lesions).  He said I could have gotten more "small" lesions with no further symptoms. If so, these small lesions could some day come together and, his quote, "all hell break loose".   He wouldn't prescribe anything long term for fatigue because he wanted more MRIs.  So, tomorrow I will have them.    I almost wish I hadn't gone to him as I don't think I have gotten "worse" but learned to live with the symptoms.  Just not sure I agree with his reasoning; haven't really seen this view from this list.   Any thoughts?   Gary in Michigan