Hi Gary - I have TM - lesion at C3-C4,C4-C5 - I saw
it on my MRI. My Neurologist says that she believes I do not have MS
(MANY brain MRIs) but "will not rule it out" I think she is just trying to
cover her own ass. She sent me for a spinal tap because she thought I had
Hydrocephalus, and by removing some fluid it would relieve pressure on brain
& spinal chords - didn't do a thing.
I had my 2nd appt. with a neurologoist
today. The 3 MRIs showed no new lesions. The evoked response tests
must have come out o.k. also.
I'm a little confused though
because the Dr. said I really don't have a true diagnosis
(even though I have a copy of my first MRIs from two years ago that says
Transverse Myelitis) since there is nothing to say things could not change
anytime and I could have MS, just no new symptoms.
But for now I am going to stick with the
original "diagnosis" of idiopathic TM since my original lesion is still the
only one seen on the tests. He did say to see him right away if there
are any new symptoms.
He mentioned (but didn't push it) my
having a spinal tap. But he said on that, if it came out
positive for MS--then I have MS. If the spinal tap came out
negative, that doesn't mean it couldn't change later and be postive
for MS.
SO THE ONLY TRUE DIAGNOSIS--IF I UNDERSTAND HIM
RIGHT--IS TO BE POSITIVE FOR MS!
I did start taking the Dantrolene a week
ago--one 25 mg. per day but will increase to 2 a day. I don't see much
difference yet as far as stiffness but haven't had much as way as
spasms.
Gary in
Michigan
