Jude: I can't remember.... are you on Medicare too? If so call them and see what they say about this. Tell me what state you are in and I'll see what help I can find for you. I used to work in Social Services before TM/MS hit me and I might be able to find something that would help you.
hugs)))
Sharon --from Arizona TM 1997 to MS 1998
It's not easy taking my problems one at a time when they refuse to get in line. ~Ashleigh Brilliant
----- Original Message ----
From: [EMAIL PROTECTED]
To: [EMAIL PROTECTED]
Cc: [email protected]
Sent: Friday, August 11, 2006 8:24:36 AM
Subject: Re: [TMIC] HMO's
From: [EMAIL PROTECTED]
To: [EMAIL PROTECTED]
Cc: [email protected]
Sent: Friday, August 11, 2006 8:24:36 AM
Subject: Re: [TMIC] HMO's
Jude: What a Bummer! That is what anger is for! when you have been
messed over and it energizes you to do something about it. I am wishing I
was closer so I could help you advocate for yourself! Perhaps Adult
Protective Services could be called---I'm not sure what all they could do,
but maybe they would have an "in" with some of the systems in your state.
One thing we learned at the Symposium was that HMO s and PPO's sometimes
will assign a Case manager if you ask: I think that's the route I would
take ASAP. Also, don't just take one route. You can drop action from
other sources if you get results from any of the others. Cora
>
> Hi All and Frank,
>
> As usual, I need some advice and help. I am so darn mad I almost cannot
> stand it! (actually, can't STAND it, at all) LOL
>
> I think that most of you know I have been waiting and waiting to go to
> the
> seating clinic so that I can get my tilting/reclining wheelchair so that
> I can
> get out of this danged bed I have been in since December.
>
> Well, the telephone woke me up early this morning with the good news from
> my
> doc's office that all of this time the clinic they were sending me to is
> out
> of my HMO's territory!!! I hate ineptness so much...
> (anger)
>
> What have I done lately to hurt anybody? (feeling sorry for myself)
>
> I have been in this da____ bed (that I am so thankful to have) since the
> first of December with two broken legs, after being Paralyzed with
> complete TM
> for 4 years (for those of you who do not know this), and I want to get up
> and
> in my chair so badly I almost can't stand it!
>
> I can't sit in the chair for more than 1/2 hour because my legs swell
> inside
> the casts so badly and become so painful that I can't take it and have to
> go
> to bed in order to raise them.
>
> Besides that, I have a pressure sore inside the anal cavity (caused by
> the
> ischema (sp) bone) that bleeds profusely when I perform my normal bowel
> program. I was so looking forward to the new (my old one was stolen)
> seat for the
> new wheelchair...
> (feeling even more sorry for myself)
>
> I just don't know what to do any more. I need help with some ideas and
> answers. I don't know how to fight "city hall" any longer and am almost
> out of
> the strength needed to do it. It's all INSURANCE COMPANY and HMO'S, not
> to
> mention the SOCIAL SECURITY COMMISSION who have all of the power...They
> are in
> charge and what I/we say is of little or no consequence. I am getting so
> pissed!!! (anger)
>
> Why is it always one step forward and three steps back?
>
> Dr. Frank, I added your name to this email because you know what I need
> to
> say and who I mostly need to say it to in order to get something moving
> in the
> proper manner, by doing whatever it is in the proper order, addressing
> the
> right people! And, I want ACTION, now! What do I do, how do I do it,
> and who
> do I address my actions to? Help me, please!
>
> Some of you have already been helping from behind the List. Sally, the
> Nutritionist wrote a lovely letter addressing how the use of a new
> wheelchair
> that raises up above my cooktop so that I could take charge of making our
> meals
> using healthier foods (Dave does his best, but cooking is not his strong
> suit...), so that it would help by enhanced healing of pressure sores and
> stomach
> ulcers, my weight loss, and all over general health.
>
> People have been sending me loving support through the grapevine and I
> appreciate it all so very, very much. And I appreciate all that Dave
> does. He
> takes care of me all by himself...no one comes in to help and we can't
> afford
> to pay any type of service. He takes care of the animals, the house, the
> five
> acres, the laundry, all of my needs (staying up half the night last night
> because I had such deathly diarrhea I was in tears), and he works six/ten
> to
> twelve hour nights a week, at 54 years old. I don't mean ever to sound
> like I
> don't appreciate him.
>
> Anyway, I'm sorry for getting out of control with this. And for being so
> needy. But I am at my wits end and need whatever kind of help any of you
> can
> give.
>
> Peace and Prayers,
> Jude
>
>
>
messed over and it energizes you to do something about it. I am wishing I
was closer so I could help you advocate for yourself! Perhaps Adult
Protective Services could be called---I'm not sure what all they could do,
but maybe they would have an "in" with some of the systems in your state.
One thing we learned at the Symposium was that HMO s and PPO's sometimes
will assign a Case manager if you ask: I think that's the route I would
take ASAP. Also, don't just take one route. You can drop action from
other sources if you get results from any of the others. Cora
>
> Hi All and Frank,
>
> As usual, I need some advice and help. I am so darn mad I almost cannot
> stand it! (actually, can't STAND it, at all) LOL
>
> I think that most of you know I have been waiting and waiting to go to
> the
> seating clinic so that I can get my tilting/reclining wheelchair so that
> I can
> get out of this danged bed I have been in since December.
>
> Well, the telephone woke me up early this morning with the good news from
> my
> doc's office that all of this time the clinic they were sending me to is
> out
> of my HMO's territory!!! I hate ineptness so much...
> (anger)
>
> What have I done lately to hurt anybody? (feeling sorry for myself)
>
> I have been in this da____ bed (that I am so thankful to have) since the
> first of December with two broken legs, after being Paralyzed with
> complete TM
> for 4 years (for those of you who do not know this), and I want to get up
> and
> in my chair so badly I almost can't stand it!
>
> I can't sit in the chair for more than 1/2 hour because my legs swell
> inside
> the casts so badly and become so painful that I can't take it and have to
> go
> to bed in order to raise them.
>
> Besides that, I have a pressure sore inside the anal cavity (caused by
> the
> ischema (sp) bone) that bleeds profusely when I perform my normal bowel
> program. I was so looking forward to the new (my old one was stolen)
> seat for the
> new wheelchair...
> (feeling even more sorry for myself)
>
> I just don't know what to do any more. I need help with some ideas and
> answers. I don't know how to fight "city hall" any longer and am almost
> out of
> the strength needed to do it. It's all INSURANCE COMPANY and HMO'S, not
> to
> mention the SOCIAL SECURITY COMMISSION who have all of the power...They
> are in
> charge and what I/we say is of little or no consequence. I am getting so
> pissed!!! (anger)
>
> Why is it always one step forward and three steps back?
>
> Dr. Frank, I added your name to this email because you know what I need
> to
> say and who I mostly need to say it to in order to get something moving
> in the
> proper manner, by doing whatever it is in the proper order, addressing
> the
> right people! And, I want ACTION, now! What do I do, how do I do it,
> and who
> do I address my actions to? Help me, please!
>
> Some of you have already been helping from behind the List. Sally, the
> Nutritionist wrote a lovely letter addressing how the use of a new
> wheelchair
> that raises up above my cooktop so that I could take charge of making our
> meals
> using healthier foods (Dave does his best, but cooking is not his strong
> suit...), so that it would help by enhanced healing of pressure sores and
> stomach
> ulcers, my weight loss, and all over general health.
>
> People have been sending me loving support through the grapevine and I
> appreciate it all so very, very much. And I appreciate all that Dave
> does. He
> takes care of me all by himself...no one comes in to help and we can't
> afford
> to pay any type of service. He takes care of the animals, the house, the
> five
> acres, the laundry, all of my needs (staying up half the night last night
> because I had such deathly diarrhea I was in tears), and he works six/ten
> to
> twelve hour nights a week, at 54 years old. I don't mean ever to sound
> like I
> don't appreciate him.
>
> Anyway, I'm sorry for getting out of control with this. And for being so
> needy. But I am at my wits end and need whatever kind of help any of you
> can
> give.
>
> Peace and Prayers,
> Jude
>
>
>
