Re: [TMIC] neuro appt.-vent

[Sandy Heidel]

Krissy, I think you and I are seeing the same guy!  I thought I had mine figured out but just this week I got a call from him that made me furious.  I had another MRI on 7/31.  I called 4 times for results and no one would call me back. Then on Monday he finally calls and is very abrupt. He announces that I have my first brain lesion and that confirms the diagnosis of MS.  He then says that it "doesn't change what we are doing" and tries to end the conversation.  Drop bomb get off the phone quick does not work for me.  Sooooo I say geez since the symptoms during my July attack were the same as my TM symptoms how did the lesion at the C1 look this time?  No answer...his pager goes off and he says...."I have to answer this page."  No mention of I will check and call you back.     In talking to the nurse yesterday I find that the report did not mention the cord lesions and also did not compare this MRI to previous.   So she asked to get the comparison done this week.   I now know that I must ask for this every time I have an MRI.  This is one of those things that my common sense says should be routine.  But alas...like I always say, "Common sense is not as common as it really ought to be."   I also found out that after 7 years the hospital throws out an MRI!!! So my first MRI that showed TM in 1998 is gone!  The 2001 is still there for a while but then it too is gone.  I cant believe they do this when its a chronic condition.  My nurse said she has tried to change the policy but they will not.   I am getting the CD this go round so I can hang on to them myself from now on.   Evidently even the CDs get tossed after 7 years!     The other thing I wanted to tell you is that I try to direct the conversation when I am at the neuro's office by taking in notes. Sometimes two or three pages. I describe everything in detail and ask that they be put into my file.  This gives us some topics to focus on and keeps me from forgetting to mention stuff. Plus I think my notes are more complete than his...in fact I know they are.  I learned this from someone on the list a few years back and it has made a huge difference in how my appts go.   Take care, Sandy in Wisconsin ----- Original Message ----- From: Krissy Z To: TMIC List Sent: Tuesday, August 22, 2006 7:50 PM Subject: Re: [TMIC] neuro appt.-vent well I had my 6 month neuro appt and you know I was very dismayed. I felt like he just rushed thru questions and testing my limbs, and I felt very rushed out of there. he said, see you in 6 mos, filled out my handicap placard form and sent me on my way. I did get to tell him things that were bothering me, but again I felt like he was rushing me or yes-ing me....I needed him to know more things for my chart/his notes too for my SSD appeal. I did like this guy at first, because he was calm and caring in the hosp..but now, it's almost as if he sees no change or little change and can't do anything for me...tho he did say my MRI's had no change and there is no MS. Should i call him? He's so not a phone person and I am sure he will just say so, what did you want to ask me? what did you need to tell me? and then.."is that it?" like he always does. Do I invest in another one where hes *been with me* since day 1? Krissy Zodda Tri State Support Group Leader (603)589-1894 http://www.geocities.com/tmladyk/home.html ~I'm In pretty Good Shape For the Shape I am in~ Yahoo! Messenger with Voice. Make PC-to-Phone Calls to the US (and 30+ countries) for 2¢/min or less.