Hey all!! I recently (July) have been 'thrown' into the life of living with a loved one with TM. Mike was diagnosed at Johns Hopkin after a 30 day stay at our local hospital who initially diagnosed him with Guillian-Barre Syndrome. He has a lesion on his spinal cord that spans C3-C7. He managed to walk into the hospital months ago, but by evening - was paralyzed from the chest down. After a brief stay at JH, he has been moved to a rehab center and has been there for a month. They are now looking to move him closer to home to a nursing/rehab facility. He has had his good days and not so good days. I know his biggest frustration is not seeing any or very little improvement. The only thing that has changed since day 1 is he recently gained movement in his right thumb. Not much to him, but for me, it was like watching your child take her/his first step!! I guess what I'm looking for is answers, stories, and most of all...hope! I am a firm believer that there is only 1 person who knows how Mike is going to be -God! And for now, God hasn't told me that the life we live now is the way it's going to be forever. I just know he is going to get better someday.
Thanks for listening to my rambling,
ami
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