Re: [TMIC] Re: Brain stuff or not

Tue, 19 Sep 2006 11:54:37 -0700

Have I already mention Trigeminal Neuralgia to you?  That may be the reason you feel pain in your jaw, neck and ears.  I have TN (N not M...lol) and I have pain in my ear, neck, and jaw.  Trigeminal Neuralgia is normal only on one side but I have it on both sides at various times with it usually only on the left.  When a patient presents with Bilateral Trigeminal Neuralgia then the docs need to look at MS.  And this recent tidbit:  I think it's 35% of MSers have Trigeminal Neuralgia.  That's a lot higher than they thought previously.  Now if it happens with MS I wonder if it also holds true for TMers? 

Sharon
 
Sharon --from Arizona TM 1997 to MS 1998
It's not easy taking my problems one at a time when they refuse to get in line.  ~Ashleigh Brilliant
http://health.groups.yahoo.com/group/MSersLife



----- Original Message ----
From: Jill Z <[EMAIL PROTECTED]>
To: bobby jim hijar <[EMAIL PROTECTED]>; Heather & Pieter <[EMAIL PROTECTED]>; [EMAIL PROTECTED]; [EMAIL PROTECTED]; [email protected]
Sent: Saturday, September 16, 2006 7:30:02 PM
Subject: Re: [TMIC] Re: Brain stuff or not

I'm confused too.  I swear something is wrong w/ my jaw and my left side feels weaker and less sensation than the right.  My lesion is at T10-11 why the hell am I feeling it in my left arm and jaw and neck and ears???  I see the neuro on 10/18 maybe something else is going on?  Anyone else feel this.  It sounds like only the MS'rs get this stuff?

bobby jim hijar <[EMAIL PROTECTED]> wrote:
Am not quite sure what recurring TM is........ a flare up...???? And I don't think it happens in a different part of the spine...... (help me, guyze).
 
As I understand it, recurring MS is the same as recurring-relapsing MS.  It is not a second attack if it's only an exhacerbation to a previous event (correct me if am wrong, y'all) but I believe that doesn't happen in MS, only TM.   And then, it's the progressive MS that doesn't respond to most ABCs.   But that's a horse of a whole different color.
 
Rain and snow..........????????   Already........???????   Yikes.  It hit 32ºC earlier today down here.  Damn.!!!!!!
 
Bobberino in balmy Elvisland 
Sent: Saturday, September 16, 2006 12:52 AM
Subject: Re: Brain stuff or not

Hmm, then what about Recurring TM?  Is that not a second attack in a different part of the spine?  I should read about it on the Forum website. 
 
Thanks Bobberino,
 
Heather in Calgary (and yes we had some rain mixed with wet 'snow' flurries today - Yuuuuuck. 
Sent: Friday, September 15, 2006 6:57 PM
Subject: Re: Brain stuff or not

Well, yes, from what I've heard as well, brain lesions are a sure reason for an MS dx.
 
On the other hand, I was also told that once there is a second attack in a different part of the spine, the dx changes from single sclerosis (TM) to multiple (two or more) sclerosis.
Ergo the change of dx.
 
The change of dx didn't upset us one bit.    It meant me missus qualified for the ABCs, and today, 325 injections later (I shudder at the 'real' cost), Da Boss is doing just fine, thankyew.....;>)
 
Hang in there, y'all........  Bobberino
Sent: Friday, September 15, 2006 1:25 PM
Subject: Re: [TMIC] Re: (OT) Re: tmic-digest Digest V2006 #185

I find it odd that if there are no lesions on your brain that the doctors have determined that you now have MS.  I have been under the belief that lesions on the brain 'usually' is why the diagnosis changes from TM to MS.
 
I have a sister 3  yrs younger than myself who has MS.  Hers is the slow moving kind and she was officially diagnosed back in 1991 but feels she had it for many more years than that.  In 1991 she had her second 'attack' and the MRI at that time found the brain lesions which were not in her first MRI a few years prior to that.
 
{{{ Hugs to you}}} and a listening ear from all of us.
 
Heather in Calgary


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