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Bev,
I have had TM since Sept 6, 2003. I live in
Calgary and we do not have much humidity here but the summer heat still bothers
me terribly. We do not have air conditioning and I find that I'm okay as
long as I do not go out in the heat outside. It just drains me. If I
am out then I have to stay in the shade. I have TM at T8 to
T10.
Resistance to heat has not got any better in the
last 3 years. I think there has been discussions previously regarding TM
and heat and not many people can stand it. I do like the summer for the
warmer weather as it makes it much easier on the joints and the stiffness
associated with sitting, standing, lying too long with TM. However it is
that old double edged sword with the good for the joints but the pits for the
rest of it as it must makes us tired.
No happy medium I guess.
Heather in Calgary
----- Original Message -----
Sent: Wednesday, September 20, 2006 9:16
AM
Subject: Re: [TMIC] Not Devic's (MS)-
then what???
Interesting, because we walked about at the shops and I had to sit
down and relax and that is not me! I usually have much better
stamina. I just did not feel like myself. I'm sure there will be
more limitations to discover. It just is my effort to understand what
they may be and why I feel a certain way at times.
Bev
From: "Lisa Domenic" <[EMAIL PROTECTED]>
To:
"Beverly Barr" <[EMAIL PROTECTED]>,
<[EMAIL PROTECTED]>,
<[email protected]>,
<[EMAIL PROTECTED]>
Subject:
Re: [TMIC] Not Devic's (MS)- then what???
Date: Wed, 20 Sep
2006 11:09:44 -0500
I was/am terribly affected by the heat.
1st summer (after 1st bout) a bit fatigued; 2nd summer (after 2 more
bouts) a complete noodle bc. heat and humidity. Not only drained/fatigued
but, blurred vision, nausea and leg muscle weakness if I was out in
the sun for any period of time. I used a big hat for shade, and would keep a
cool bandana around my neck and that helped tremendously if I did go out. I
bought the bandanna at Walmart in the camping section. You soak it in ice
water or put it in the fridge and it stays cold for hours. I spent the rest
of my time in AC.
Lisa D
----- Original Message -----
Sent: Wednesday, September 20, 2006
9:47 AM
Subject: RE: [TMIC] Not Devic's (MS)-
then what???
Same here; inflammation and my fluid pressure was high (but I'm not
sure what that means).
Bev
From: "Butcher, Bernie [S&FS]" <[EMAIL PROTECTED]>
To:
"Beverly Barr" <[EMAIL PROTECTED]>,
<[email protected]>,
<[EMAIL PROTECTED]>
Subject:
RE: [TMIC] Not Devic's (MS)- then what???
Date: Wed, 20 Sep
2006 08:04:49 -0400
The only thing they found from my spinal tap was
evidence of inflammation (?)
BERNARD BUTCHER
Last week I had the spinal tap and today I found out that the results
were negative. Negative for MS I'm guessing. I have to wait
until next week Tuesday in order to have a visit and sit down with my
Dr. What does this all mean? That I most likely have Devic's
and definately not MS? I need some answers so that I do not
get overly weighed downed...
I went to Cancun with my sister a two weeks ago. I left
children and husband behind...I really needed to mope and think.
My sister has Lupus and she was quite helpful on what to do when you are
exhausted, tired or just not in the right frame of mind. While I
was there, I believe I was very much affected by the
hot weather. I was sick for two days, back, neck
pain and I even spiked a fever overnight and woke up with a fever
blister on my lip. I had no appetite and I was a just wanting to
sleep. I took some of my sister's 600mg ibuprofen for
comfort. I typically, love and enjoy
the warm weather. I love the feel of the sun on
me and I just was a little disturbed that i did not feel well
and was so drained on my vacation.
Does the warm weather affect persons with Devic's in this
mannter??
-----------------------------------------------------------------------------------------------------------------------------
I just received a call from my dr. that my antibody test from the
Mayo Clinic was negative for Devic's disease. He previously ruled
out MS based on my MRI scans, what then is plaguing me? It is
possible to have Devic and have a negative testing for the particular
antibody?
Bev
From: [EMAIL PROTECTED]
To: [EMAIL PROTECTED],
[email protected]
Subject: Re: [TMIC]
subscribe
Date: Thu, 31 Aug 2006 23:02:30
EDT
You can correspond with all of the group by just writing using
the original address that you used that I replied to. In case
you do not still have it, the address is listed above along with
yours.
Ann in
Virginia
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